My Endometriosis Symptoms & Experience | Infertility Journey | Endometriosis | Phylicia April

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  • Опубликовано: 15 ноя 2024

Комментарии • 70

  • @ChristinaJosue
    @ChristinaJosue 5 лет назад +30

    After two miscarriages in a row we are now expecting our first baby girl 💕

    • @King-mk9vi
      @King-mk9vi 5 лет назад

      Christina & Josue
      hows it going? my wife is getting checked, she has many symptoms.

  • @Crystarela21
    @Crystarela21 5 лет назад +16

    So happy for you to finally conceive a baby after endo! My husband and I have been trying for over 10 years. I had laparoscopic surgery to remove my endometriosis about 2 years ago. Didn't find out I had it until my second fertility clinic. Now I'm at my 3rd clinic but love my new doctor. She's so informative! I still have been unable to get pregnant on my own. We just got approved for our loan to move forward with IVF and I couldn't be more excited! I feel very hopeful for what the future has to bring. Bless you and your family!

  • @caitlynridley1417
    @caitlynridley1417 5 лет назад +12

    I love that you were so honest! I too suffered from what looked like IBS symptoms. My gastroenterologist diagnosed me with IBS based on the info. It was the worst pain. It affected me at work. I saw no one talking about this! No info. It wasn't until after my surgery and the location of my endometriosis lesions that it was explained to me. It was not IBS. This entire video was my life for so long. I am the first woman in my family diagnosed with endometriosis so I had no clue about anything. Thank you for being honest. I wish there was a video like this out there when I knew something was going on with my body and I couldn't figure it out. ❤

    • @PhyliciaApril
      @PhyliciaApril  5 лет назад

      How have you been doing since you had surgery?
      I noticed after I had mine all of my symptoms went away. I was especially thankful to not have IBS symptoms anymore!

    • @caitlynridley1417
      @caitlynridley1417 5 лет назад

      Yes! Same for me. After my surgery all of my symptoms went away. No more IBS symptoms and no more heavy, painful periods. For the first time I can take ibuprofen and it eases the cramps. Before, I was on a prescription pain killer just for the pain. It's a life changer. One of the big problems for infertility we found was that my ovaries were completely stuck to me from the endo lesions and so my doctor successfully corrected that issue and now we finally have a chance at conceiving. Your story is inspiring me and giving me hope that it will happen soon for me. I'm sure I don't know everything about your story. But it's a pretty similar journey to mine.

  • @blackriflehomestead
    @blackriflehomestead 5 лет назад +8

    Both my younger sister and I were diagnosed with endometriosis this past year but a bit different symptoms. My main symptom was infertility but still had endo despite barely any pain. (My sis has had extreme pain and heavy periods.) I’ve also had gut issues for YEARS, which my doctor said could’ve been linked to the endo. It’s such a horrible disease so thank you for spreading awareness! Finding an expert specialist is so important. I also wouldn’t be pregnant right now if it weren’t for my amazing surgeon who took care of the endo and truly was an instrument of God!

    • @PhyliciaApril
      @PhyliciaApril  5 лет назад

      I'm so glad to hear that you got the treatment you needed and are now pregnant! Congratulations!

  • @Marisha696
    @Marisha696 2 года назад +1

    I just wanted to say thank you for being so honest and vulnerable. It helped me a lot after just getting back my mri results that said I had endetriomas on my ovaries. I was in panic thinking I won’t be able to conceive, but I have hope now and I wanted to thank you for that. Truly.

  • @ryanmontgomery2261
    @ryanmontgomery2261 5 лет назад +5

    I was diagnosed 3 years ago and I am 38!!! I thought the pain was normal and that everyone had that type of pain. My pain really concentrated in my bottom and it radiated down my thighs and into my knees. So many doctors never paid attention to it. Bring awareness!!! Thanks for sharing!!!

    • @PhyliciaApril
      @PhyliciaApril  5 лет назад +1

      I hate that so many times, women who express this type of concern and pain but doctors just brush it off! I hope you are doing better now!

  • @7Jenita
    @7Jenita 9 месяцев назад

    I highly recommend the book Heal Endo. Crazy enough, science shows there are things we can DO to make our body into a minimally inflammatory environment that discourages endo. I'm rooting for you!

  • @aves6197
    @aves6197 4 года назад +1

    I relate so much to this. Thank you for sharing your story. I finally got my diagnosis after excision when I was 25. It's all crazy the delay of diagnosis is. I suffered for 16 years feeling like I was crazy because of the pain. The gaslighting is beyond infuriating from all the doctors. The validation from pathology was such a relief. Best of wishes to you and yours. 🍀✨💚

  • @DnG100
    @DnG100 5 лет назад +4

    Not even a few years ago did doctors diagnose Endometriosis. I remember seeing a male doctor like 12 years ago when I had severe pain. It was completely abnormal pain. But what did the doctor say. It’s menstrual cramps. Take Tylenol. That’s it!!!! I didn’t know any better so I just accepted it and didn’t do anything about it. He’s a doctor and should know everything I thought. Thanks for sharing your story.

    • @DnG100
      @DnG100 5 лет назад +2

      Not until I was trying to conceive a year and a half ago did I realize that I might have endometriosis.

  • @DelfromPR
    @DelfromPR 3 года назад +2

    Girlllll, you are describing my life!!! The only symptom that Ive never experienced is a heavy period but everything else, to a point is me. Thank you for sharing your journey!! I am scheduled to start IUI this month but this is something that Ill definitely bring up with my Fert Doc. Thank you thank you thank you!

  • @samantharex2262
    @samantharex2262 4 года назад

    Thank you for being a voice for women with this horrible disease. Thank you for being vulnerable and sharing your experience. ♥️

  • @lindatheresejansson
    @lindatheresejansson 5 лет назад +5

    Well spoken! I admire you for opening up and telling the searchers your story 😊💕

  • @rebeccatomlinson9043
    @rebeccatomlinson9043 5 лет назад +3

    My worst symptom has been the lower back pain, had X-rays since I was 17 (32 now )with nothing showing up. I had the other symptoms but like you I thought heavy periods and all the pain were normal. We have been trying 4 1/2 yrs . Like you before the past 4 1/2 yrs we weren’t not trying to get pregnant. I spent 6 months going to a fertility specialist they were very hesitant to diagnose and I went through a iui and it failed and we had to take a break because of the emotional stress. We’ve done all the tests and they have mentioned surgery but said they didn’t think it was necessary. I think now a yr has gone by and still nothing. We are going to go for the surgery 🤞🏼

  • @meghangossett3091
    @meghangossett3091 5 лет назад +3

    Thank you for being vulnerable and sharing your story. Hopefully your pregnancy is a healthy one :) thank you for your video to help point out the signs and symptoms

  • @mae1st
    @mae1st 5 лет назад +2

    Thanks a lot for this video. I can totally relate with all your symptoms. It's like hearing myself talking out everything I have been suffering all this years and I'm 42 now. It's about time to get it sorted. Thank you very much. You're such a big help. Congratulations for your baby.

  • @MindfulKimberly
    @MindfulKimberly 5 лет назад +3

    Hi, thank you SO much for sharing your story. That took courage.
    I have endometriosis and would often throw up, diarrhea, the works.. THE BED SHEETS... ugh. Painful sex.. so sad.
    Congratulations on your baby! I hear pregnancy helps with symptoms for a while, but that they can come back afterwords- and hysterectomies & surgeries are just not a sustainable form of “treatment”. SO....
    I do want to say that your instinct of foods being linked to your symptoms is TRUE.. it sucks, but it’s true.
    I’ve discovered I am intolerant to soy, dairy, gluten, eggs, and beef.. oh yeah, & coffee. It seems like “everything” triggers us because those ingredients ARE IN EVERYTHING..especially in restaurant food 😓 and processed foods. (I dare you to look at your food labels on common items you’re eating at home... it will say underneath the nutrition label if it contains dairy, soy, gluten, eggs... and most things have at least two).
    When I eat these things leading up to a period, BAM, awful periods, even after my surgery, ESPECIALLY if I eat one the day of or the day before. Everyone is unique though, so my intolerances may not be yours.
    Anyone reading this.. I really urge you to try and link which foods may be triggering you, it’s tough, but it has made a world of a difference. Find the common link of all the foods that are
    triggering you. It takes time, but it’s helped me immensely (all of my intolerances are very common, so maybe start with that list?)
    Pizza = dairy, gluten, eggs, often soybean oil.
    Seriously, what doesn’t contain gluten?
    Crackers: gluten, milk, often soy.
    Pasta: gluten, often eggs, and we top it with cheese.
    Sandwiches: don’t even get me started.
    Ice cream: 😐
    Popcorn: butter-duh! Always
    EVERYTHING everyone eats around me... unless it’s fruit or nuts(careful of soybean oil) I usually can’t eat.
    It will be tough... BUT ITS SO WORTH avoiding death periods.
    I’ve got an appointment with a naturopathic physician soon and I pray that my “food intolerances” will show up on their test. I’ll try to remember to leave an updated comment with my results.
    Hang in there... I know endo is UNBEARABLE. Love you all, wish I could hug every woman dealing with this.. blessings

    • @a.sweetpeac.2281
      @a.sweetpeac.2281 4 года назад

      So when you eliminate or minimize those trigger foods, do you feel like your period is more tolerable or shorter?

    • @mackenziemeyer1937
      @mackenziemeyer1937 4 года назад +1

      I also had all those food sensitivities!! Also cannot have carbonated drinks or artificial sweetners. I get a nasal headache, and feel instantly inflamed if I eat anything that has gluten, dairy, eggs, soy, sugar, and caffeine! :(

  • @aves6197
    @aves6197 4 года назад +1

    What makes this worse for me is no Specialists for OBGYN ever mentioned Endometriosis. No specialists at women's clinics mentioned it. I saw different doctors if they didn't listen to me. It finally took an ER visit and ruptured ovarian chocolate cysts for one ER doctor to mention that they highly suspected I had Endometriosis. Knowing what I know now that alone is indicative of DIE deeply infiltrating Endometriosis which is what I got diagnosed with base on pathology. It's rough. Cheers to you Endo sister. Stay strong ✨💚🌻

  • @rahhasan4535
    @rahhasan4535 5 лет назад +2

    I have 2 fibroid and I have all symptoms that you talking about 😭😭.. thank you for sharing this video 👍🏻

  • @cuddlz88
    @cuddlz88 5 лет назад +1

    I’m having laporoscopic surgery for the first time on 25th September. We tried naturally for a year with no luck and done 2 cycles of ivf. Our embryo quality is low but I’m hoping this surgery will identify the cause and help better the quality of my eggs and his sperm. Listening to your symptoms I don’t think I have endo as I don’t get heavy periods and they’re not that painful. I do get bloating and a bit of the ibs u refer to but not to the extreme that u describe. It will be interesting to see what my surgery uncovers. I hope we get some luck. Best of luck with your pregnancy and hopefully the endo doesn’t keep returning

  • @evaglam398
    @evaglam398 5 лет назад

    You speak so nice! Thank you for sharing. So happy you are healed!

  • @Brina-777
    @Brina-777 2 года назад

    I have the exact same thing as you, expect that I have anemia which put me in a place where my period last only 2days and spotting for 2days.
    I had my periods a little late, I was 13-14yrs no pain, but I went 11months with no periods, no spotting, no nothing . After a year, my period came back and ever since it’s painful, I cry, and I scream like a woman giving birth , I can’t even move for 2days, and now at 20 I just find out that I have a cyst on my right side.
    Nobody around me understand my pains, even my mom she is scared of how bad it is; my cramps are extreeeemee.
    A week Before my period, I always have IBS symptoms, constipated, bloated, vomiting till the end of the circle , cramps in the back, in the legs, and so many things.
    At this point, only God can do miracles

  • @straylight9916
    @straylight9916 2 года назад

    I love your story!!! Thank you so much for sharing

  • @thomsonclan5878
    @thomsonclan5878 5 лет назад +4

    I have Pcos, my dr kept sending me away, keep trying.. 3years later..my first cycle at the gynea my day 21 bloods confirmed I wasn’t ovulating!
    Any cycle longer than 45 days your not ovulating, it’s just a bleed.
    I’d have really painful periods, they were heavy, probably changing pad every two hours.
    Since having my children both clomid babies, I’m now having semi regular cycles and hardly any - no pain! ☺️ 34-40day cycles.
    Also one of those if your parents have it then they pass it on, apparently if your dad went bald young he carry’s the Jeans.

  • @ashrohe1305
    @ashrohe1305 4 года назад +1

    Lower back pain and pain during sex and after sex feeling like my period was coming are my top symptoms ive had 2 kids my last is 3 years old this last year has been hell i never knew about endo i finally found a doc who would listen to me. My periods have always been a mess but have gotten worse after my daughter im having my lap done next month finally will get answers
    Also i had my galbladder taken out after my son so i was told my bowels would never be normal so for 6 years ive been near using the bathroom on myself i cant go out to eat without a bathroom near i havent had a sold poop since i dont know when nasty i know but the pain really is terrible with that it hurts so bad its unbearable and you cant hold it it sucks and messes with ur life in alot of ways the only time my poop was ever normal was when i was pregnant
    Ps Im so happy for you finally getting your miracle baby!!! 💜💜💜😻

  • @mimouchkittabenyoussef5892
    @mimouchkittabenyoussef5892 2 года назад

    Starting round of clomid here and can’t stop thinking about endometriosis.thank u for sharing ur experience 🙏💐

  • @ExtremelyMcLovin
    @ExtremelyMcLovin 5 лет назад +5

    So glad you finally got your answers! So, my husband and I have been trying for 3 years, was diagnosed with unexplained infertility, never been pregnant, went through 3 rounds of clomid and IUI, all unsuccessful... no answers. I haven't gone back to my fertility specialist since February because I just felt too much like a number, and they didn't give me any other options of other testing or options to figure out what is wrong. We are currently stationed in Hawaii, so I don't have other options of different fertility offices I could go to. After this video, seeing very strong similarities in symptoms that I've ALWAYS thought were normal, I would like to get tested for endo. So my question is, do you think I could go through my primary doctors office... or do you know if I would HAVE to go through the fertility office (that I really dont want to go back to). Was the doctor from your fertility office the one to do your surgery? I just really want to go to my PCM and see if they'll just give me a referral and do it.
    Congrats on sweet baby! ♡

    • @PhyliciaApril
      @PhyliciaApril  5 лет назад +1

      My fertility specialist was the one who performed the laparoscopy to remove the Endo. That doctor was a Reproductive Endocrinologist and Infertility specialist who also specialized in Endometriosis. I highly recommend the Facebook group called Nancy's Nook. They are an educational resource for Endometriosis and they have a whole list of doctors who are experts in Endometriosis and who specialize in excision surgery. I had my PCM refer me to that specific doctor.

  • @JennStowe
    @JennStowe 5 лет назад +2

    Thank you soooooo much for making this!💗💗💗💗💗💗

  • @navkaur2882
    @navkaur2882 5 лет назад +3

    I never have commented on anyones videos before. I don't usually subscribe to many people either, but you're one of those youtubers that is very straight forward and to the point all you're videos are so helpful to watch. I'm trying to get pregnant since 5 years, it's a horrible feeling not being able to get pregnant and have periods every month! Could you please tell me what u did to fall pregnant. Im keep buying ovulation tests every other month which isn't cheap at all to buy, I have taken vitamins before pregnancy, I have taken blood tests and everything came out fine, my partner went for his semen test and his test came out fine aswell. Any helpfull tips would be great to know. Thank you :)

    • @PhyliciaApril
      @PhyliciaApril  5 лет назад +2

      I know how difficult it is to not have answers.
      Having the Endometriosis and adhesions removed is what finally allowed me to become pregnant. It was nearly impossible for me to conceive with how bad the Endo was.
      I hope you find answers soon! Best of luck to you.

  • @rryan7826
    @rryan7826 3 года назад

    How soon did u get pregnant after the surgery?? 🙏🏻🙏🏻🙏🏻🙏🏻

  • @aislinnmcp4016
    @aislinnmcp4016 5 лет назад +1

    I’ve had like ilike ever single one of those pains, I’ve been given laxitives and told I’ve constipation and that’s what’s causing bloating and abdominal pain and they dismissed all my other symptoms as if they weren’t related and said pain during sex I just need to be more relaxed lol yet I’ve been with the same boyfriend for the past two years but didn’t have trouble relaxing at the very beginning. So I’ve got my 4th doctor appointment in two weeks and I’m not gonna give up until I get rightly diagnosed.

  • @namrata4694
    @namrata4694 3 года назад

    It is very nice of you to share your story..... very inspiring.... I too got diagnose with endo..can you pls tell wat medication doctor gave you... ?

  • @vibes811
    @vibes811 4 года назад

    I think I am an exception., I have endo but never had heavy bleeding, just 1 1/2 day with clots + endless spotting. My heart is with you, is so hard when we need to pull out from work instantly and not even female collegues would believe us......

  • @supersniper90
    @supersniper90 5 лет назад +2

    My wife would like to know, have you experienced anything with constipation? She goes in for her laparoscopy very soon and we're hoping to have an outcome similar to you two. Congratulations from us both!

    • @Dr_Chizzy_Spikey
      @Dr_Chizzy_Spikey Год назад

      Yes ,constipation is a sign of endo .I only pooped on my period,meaning period poop is endo .

  • @RayRay-jq8en
    @RayRay-jq8en 3 года назад

    Were you put on suppressants like lupron depot before you got pregnant or was it just laparoscopy? I'm going through the same. I just found out I have endometriosis after many failed IVF.

  • @HoodsHomestead
    @HoodsHomestead 5 лет назад +2

    Thank you for sharing!

  • @naaayeleyshormey7562
    @naaayeleyshormey7562 5 лет назад +2

    Thanks for sharing bless you.

  • @taradaviess3133
    @taradaviess3133 4 года назад

    Thank you for these symptoms! I experience all of this! :(

  • @rajanisharma656
    @rajanisharma656 5 лет назад +3

    I am having leg pain 2 - 3 days before my periods specially in my lower legs... Do you also feel this kind of symptoms before or during your periods ???

    • @PhyliciaApril
      @PhyliciaApril  5 лет назад +1

      Unfortunately, I didn't not experience leg pains before/during my periods.

    • @shantell6253
      @shantell6253 5 месяцев назад

      Did you ever find out if you have endometriosis?

  • @nuraigal8382
    @nuraigal8382 3 года назад

    Hello congratulations for your successful journey I’m so happy for you I was wondering have you been experiencing a ovulation pain I don’t get a period pain but I get a extremely painful ovulation as well as gas and bloating and lower back pain and unexplained infertility so I was trying to ask my dc to send me a laparoscopy.

  • @naushmallick8228
    @naushmallick8228 4 года назад +1

    I have diagonsed with a chocolste cyst m married and couldnot conceive after 3 yrz of marriage my dr do some test like fsh or amh m 34 now i want to conceive i dont know what should i do

  • @wholeyanasesame2067
    @wholeyanasesame2067 5 лет назад +3

    endometriosis sucks..i have all the symptoms,every cycle was terrible bcoz of the dysmenorrhea,,

  • @kimmyjong-un3894
    @kimmyjong-un3894 4 года назад +1

    Does anyone have endometriosis and doesn’t have heavy periods ? My sister has fairly light periods but all the symptoms: extreme pain, extreme bloating, lower back pain, fatigue

    • @sarswatiyadav307
      @sarswatiyadav307 2 года назад

      I also have light bleeding with no pain but endometriosis( chocolate cyst) of 5cm. My main symptom was infertility.

    • @Dr_Chizzy_Spikey
      @Dr_Chizzy_Spikey Год назад

      Yes ,I had irregular and scanty periods with my endo

  • @JM-hm8mf
    @JM-hm8mf 5 лет назад

    I have bad cramps during menstruation and I'm afraid to see a doctor 😭

  • @sarar.4353
    @sarar.4353 5 лет назад +1

    Dear dear Phylicia please remove the music. Its so hard to focus. Im so sorry

  • @marabels7686
    @marabels7686 4 года назад

    Same sign and symtoms like you. A bit scared to go to Doctor.

  • @Dr_Chizzy_Spikey
    @Dr_Chizzy_Spikey Год назад

    My endo caused me scanty periods and spotting

  • @Dr_Chizzy_Spikey
    @Dr_Chizzy_Spikey 9 месяцев назад

    The IBS continues after laparoscopy

    • @Dr_Chizzy_Spikey
      @Dr_Chizzy_Spikey 9 месяцев назад

      I didn’t have IBS until after laparoscopy for endometriosis

    • @Dr_Chizzy_Spikey
      @Dr_Chizzy_Spikey 9 месяцев назад

      Can I ask you if you had IBS after your laparoscopy