My nephew had an artiovenous malformation and needed a standstill surgery around 20 years ago. Is this a similar malformation. He had a high cerrebial pressure for a couple of weeks. He was left with missing headaches and cannot remember why he was in thr hospital. A true miracle.
My husband was hospitalized for gbs and was paralyzed from the waist down. When he facetimed me around the fourth day his face looked funny, droopy or frozen on one side. He had no clue and the staff didn’t mention anything. Well he ended up calling me at 3am saying he was going for a ct to rule out a stroke. They said no stroke just gbs moving up his whole right side. They did find a cavernous malformation and said to just watch it. I feel something had happened during the time he was sick because he hasn’t been the same cognitively. Ps…I’m a surgical tech and love following you. My fav is neuro and trauma!! #femalesurgeons
Has anyone else experienced intense negative emotional reactions, almost like a shockwave, when trying to respond to personal topics due to cavernomas in the right frontal lobe or right supramarginal gyrus? How do you cope with these reactions, and have you found any effective strategies to manage them?
I have a few of these in my right brain and had a surgical resection of one as I had intractable temporal lobe epilepsy. I’m nearly 3 years seizure free now! While I was headache free for about a year after the surgery, unfortunately that did not last as long. I will definitely take headaches over seizures though.
I have a DVA (developmental venous anomaly) but as a teen it was called the older term "venous angioma". What's the difference between that and a CVA? fwiw I get horrible headaches, pulsatile tinnitus, vertigo, etc, but no bleeds have appeared.
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My nephew had an artiovenous malformation and needed a standstill surgery around 20 years ago. Is this a similar malformation. He had a high cerrebial pressure for a couple of weeks. He was left with missing headaches and cannot remember why he was in thr hospital. A true miracle.
My husband was hospitalized for gbs and was paralyzed from the waist down. When he facetimed me around the fourth day his face looked funny, droopy or frozen on one side. He had no clue and the staff didn’t mention anything. Well he ended up calling me at 3am saying he was going for a ct to rule out a stroke. They said no stroke just gbs moving up his whole right side. They did find a cavernous malformation and said to just watch it. I feel something had happened during the time he was sick because he hasn’t been the same cognitively.
Ps…I’m a surgical tech and love following you. My fav is neuro and trauma!! #femalesurgeons
Has anyone else experienced intense negative emotional reactions, almost like a shockwave, when trying to respond to personal topics due to cavernomas in the right frontal lobe or right supramarginal gyrus? How do you cope with these reactions, and have you found any effective strategies to manage them?
I have a few of these in my right brain and had a surgical resection of one as I had intractable temporal lobe epilepsy. I’m nearly 3 years seizure free now! While I was headache free for about a year after the surgery, unfortunately that did not last as long. I will definitely take headaches over seizures though.
For conservative management do you do blood pressure control and pain control? Would this affect the decision to use or avoid anticoagulants?
I have a DVA (developmental venous anomaly) but as a teen it was called the older term "venous angioma". What's the difference between that and a CVA?
fwiw I get horrible headaches, pulsatile tinnitus, vertigo, etc, but no bleeds have appeared.
Have one and nobody seems to understand. I was told no Aspirin or Aspirin based products. I'm so complicated