I love someone with MS, so I watch videos like yours to educate myself. What I think happens when you may tell someone you have MS and they may say how can that be or don't understand why you may not want to participate in some things, I think it is to them you look great and healthy. You look great and it is the invisible signs/symptoms they cannot see. My best to you. xo
Aw if it helps I have fibromyalgia which has most of the same symptoms as MS but not so sever so totally understand some of the things you go through and I get the whole people not understanding I cry sometimes because it's sad and frustrating that people don't understand but yea stay strong you're so brave for posting this
Just diagnosed a week ago, currently with CIS but with a likelihood of MS. I hear from your voice from Scotland too. Your video is seriously helping me coming to terms with things. I have just taken on gluten and dairy free too. You’re an inspiration. I’m afraid to tell people because I worry they treat me different. Sorry for the wee ramble, I wish you all the best 😘
Well done for showing the bravery to share with everyone what cruel illness you have to love with. However just watching a 20min video of you shows that you have unbelievable courage and inner strength to live your life to the fullest you can and not let it hold you back 👍
I'm 24, I was diagnosed a few years ago. My started that way too but mine was a pinched nerve also on my right side and it was completely numb and over a few weeks time that spread to my whole head to mid thigh and it was all numb and not working right. I appreciate you making this video, sometimes these make me feel better when my MS gets to me and it reminds me I'm not the only one going through this. Love from Orlando💜
It broke my heart when you got upset :( Regarding your fatigue and people not being understanding, there's an old saying "Those that mind don't matter, and those that matter don't mind"
Be encouraged. My best friend shares your story. He was diagnosed young and now is in his late 40s. Hoping he'll go vegan as well. He works full time, still drives, and I love him for the amazing person he is. God bless you. Chin up. You are an amazing and beautiful young lady.
Stay strong lady ❤️ They say MS is invisible because mostly it is. There are thousands who think they know it all already but no we are all so different and so we all have different experiences is what they were right about.
Be strong and be at peace....people can be mean and judgmental, so forget them..... I understand about the extreme fatigue ! it floors me at times. I stayed in bed once for 2 months. MS is a strange illness. God Bless you and your so beautiful !
I was diagnosed at 23. I've tried 4 ms treatments and none work. Now I am 26 and might have sarcoidosis as well. I totally understand what you're going through. I recently just got approved for disability, thank god. If you ever wanna chat I'm always a message away!
I'm 23 and just got my ms news about 2 months ago I had the same symptoms as you. I was playing a game on the computer (Hahah) then all the sudden my arm stopped working and I couldn't type. I freaked out and went kinda crazy crying and saying I had to go to the hospital. My parents took me and I couldn't even walk I felt so weak.. Did a whole bunch of tests for 6 hours and then they came to the decision that I was depressed and gave me some prozac... I kept telling them I don't think I'm depressed I told them that I just lost 85 pounds and feel happy.. He said not everybody knows when there depressed.. So I went home and the next day I felt bad again and said i have to go back.. They set up an MRI and a psychiatrist. I went to the psychiatrist and she was asking me so many questions about things i don't even think about and I was telling her i really don't think I'm depressed.. At the end of the session she told me that I have a subconscious anxiety and depression disorder.. I was like what?? Anyways time goes on 2 months and I get called in for an MRI we do the mri and then they call me a few hours later to come in the next morning for another one.. I go in and I ask if anything is wrong she says no and she said the doc didn't like the first take so were re doing it and I'm like ok.. 2 days later they said very likely ms. I did 2 spinal taps and got steroids injections as well.. it was confirmed ms 2 months ago I'm going to an MS doc next month hope you're doing well!!
Sorry to hear, I find doctors now days use depression and anxiety for things they don't understand. It's a cop out so they don't have to investigate further
Thanks for sharing your story. So brave making this video. I cannot believe that your neurologist just handed you a leaflet. Did they not do the test where they drag something up the bottom of your foot or anything? Btw are you Scottish or Irish?
Your comments about the neurologist makes me wonder if you live near me 😂 I was referred by my GP to a different hospital because they won’t refer to her because of her people skills and lack of!
What tests showed you had ms? Just over two years ago I started showing symptoms but ms was ruled out after no lesions were shown in MRIs but I still wonder if I may have ms.
A clear MRI rules out MS by definition, but sometimes it can take a while for lesions to show up in the MRI. So if you have new symptoms or worsening of existing symptoms, I'd go to the doctor again and check a second time. It's also good to rule out MS in case it's something else, so you can address the something else. You can also have a lumbar puncture, which is not enough to give you an MS diagnosis, but can help complete the picture.
At least vegans won't take high doses of cod liver oil (can send ferritin levels dangerously high) or other fish oils (can make conditions such as ALS worse). Supplements often have a dark side.
Thank you so much for this video! I'm glad I found you, just subbed! I have MS aswell, and just feel so alone, mostly because people just don't get it.. would to see tips on what to eat. Do you work? If so, how is that for you? Much love from Norway💗💗💗
Wow I was diagnosed at 35 at Christmas time too. But I can't imagine going through it all so young!! Thank you for sharing your MS journey!
I love someone with MS, so I watch videos like yours to educate myself. What I think happens when you may tell someone you have MS and they may say how can that be or don't understand why you may not want to participate in some things, I think it is to them you look great and healthy. You look great and it is the invisible signs/symptoms they cannot see. My best to you. xo
Aw if it helps I have fibromyalgia which has most of the same symptoms as MS but not so sever so totally understand some of the things you go through and I get the whole people not understanding I cry sometimes because it's sad and frustrating that people don't understand but yea stay strong you're so brave for posting this
Just diagnosed a week ago, currently with CIS but with a likelihood of MS. I hear from your voice from Scotland too. Your video is seriously helping me coming to terms with things. I have just taken on gluten and dairy free too. You’re an inspiration. I’m afraid to tell people because I worry they treat me different. Sorry for the wee ramble, I wish you all the best 😘
Well done for showing the bravery to share with everyone what cruel illness you have to love with. However just watching a 20min video of you shows that you have unbelievable courage and inner strength to live your life to the fullest you can and not let it hold you back 👍
Your video is so helpful in a personal way. Now I know that my tiredness has reasons. Thank you. You stay healthy in every way possible.
I'm 24, I was diagnosed a few years ago. My started that way too but mine was a pinched nerve also on my right side and it was completely numb and over a few weeks time that spread to my whole head to mid thigh and it was all numb and not working right. I appreciate you making this video, sometimes these make me feel better when my MS gets to me and it reminds me I'm not the only one going through this. Love from Orlando💜
It broke my heart when you got upset :( Regarding your fatigue and people not being understanding, there's an old saying "Those that mind don't matter, and those that matter don't mind"
Be encouraged. My best friend shares your story. He was diagnosed young and now is in his late 40s. Hoping he'll go vegan as well. He works full time, still drives, and I love him for the amazing person he is. God bless you. Chin up. You are an amazing and beautiful young lady.
Forget vegan...go Carnivore
Stay strong lady ❤️ They say MS is invisible because mostly it is. There are thousands who think they know it all already but no we are all so different and so we all have different experiences is what they were right about.
Be strong and be at peace....people can be mean and judgmental, so forget them..... I understand about the extreme fatigue ! it floors me at times. I stayed in bed once for 2 months. MS is a strange illness. God Bless you and your so beautiful !
I was diagnosed at 23. I've tried 4 ms treatments and none work. Now I am 26 and might have sarcoidosis as well. I totally understand what you're going through. I recently just got approved for disability, thank god. If you ever wanna chat I'm always a message away!
I appreciate your courage and honesty very much. Thanks for sharing.
You don't have to justify yourself/tiredness/illness. If people don't have the compassion to even try to understand, f*ck them! x
And yes the fatigue is the worst. It is definitely so difficult for others to understand!
I'm 23 and just got my ms news about 2 months ago I had the same symptoms as you. I was playing a game on the computer (Hahah) then all the sudden my arm stopped working and I couldn't type. I freaked out and went kinda crazy crying and saying I had to go to the hospital. My parents took me and I couldn't even walk I felt so weak.. Did a whole bunch of tests for 6 hours and then they came to the decision that I was depressed and gave me some prozac... I kept telling them I don't think I'm depressed I told them that I just lost 85 pounds and feel happy.. He said not everybody knows when there depressed.. So I went home and the next day I felt bad again and said i have to go back.. They set up an MRI and a psychiatrist. I went to the psychiatrist and she was asking me so many questions about things i don't even think about and I was telling her i really don't think I'm depressed.. At the end of the session she told me that I have a subconscious anxiety and depression disorder.. I was like what?? Anyways time goes on 2 months and I get called in for an MRI we do the mri and then they call me a few hours later to come in the next morning for another one.. I go in and I ask if anything is wrong she says no and she said the doc didn't like the first take so were re doing it and I'm like ok.. 2 days later they said very likely ms. I did 2 spinal taps and got steroids injections as well.. it was confirmed ms 2 months ago I'm going to an MS doc next month hope you're doing well!!
Sorry to hear, I find doctors now days use depression and anxiety for things they don't understand. It's a cop out so they don't have to investigate further
Sounds awful, you are helping so many people by talking about it. Very interesting video thank you. Beautiful North east accent you have 🙂
You are not ill you are beautiful
Thanks for sharing your story. So brave making this video. I cannot believe that your neurologist just handed you a leaflet. Did they not do the test where they drag something up the bottom of your foot or anything? Btw are you Scottish or Irish?
i love ur accent thank you for sharing.
Your comments about the neurologist makes me wonder if you live near me 😂 I was referred by my GP to a different hospital because they won’t refer to her because of her people skills and lack of!
You're incredibly soft-spoken! Aside from that well done for everything!
Nice video. Keep feeling good..
What tests showed you had ms? Just over two years ago I started showing symptoms but ms was ruled out after no lesions were shown in MRIs but I still wonder if I may have ms.
A clear MRI rules out MS by definition, but sometimes it can take a while for lesions to show up in the MRI. So if you have new symptoms or worsening of existing symptoms, I'd go to the doctor again and check a second time. It's also good to rule out MS in case it's something else, so you can address the something else. You can also have a lumbar puncture, which is not enough to give you an MS diagnosis, but can help complete the picture.
I am glad you switched to vegan I am trying to do that myself
At least vegans won't take high doses of cod liver oil (can send ferritin levels dangerously high) or other fish oils (can make conditions such as ALS worse). Supplements often have a dark side.
Thank you so much for this video! I'm glad I found you, just subbed! I have MS aswell, and just feel so alone, mostly because people just don't get it.. would to see tips on what to eat. Do you work? If so, how is that for you? Much love from Norway💗💗💗
Hi ❤️😘🙏
That is an awful way to be told. Sorry
Did you get an MRI of your brain and Spine? here in the USA MS is diagnosed by the white matter.
God bless you.