Это видео недоступно.
Сожалеем об этом.
How To JUMPSTART Your ME/CFS Recovery - An Honest Conversation with Miguel Bautista
HTML-код
- Опубликовано: 3 авг 2024
- In this video, Miguel Bautista is back to have an honest conversation about our ME/CFS recovery journey, barriers to recovery, and his latest program, Recovery Jumpstart that helps people with ME/CFS get unstuck.
Don't forget to SUBSCRIBE and click the bell for notifications for new videos - this way you won't miss anything! Plus, RUclips will show my videos to more people who might need some extra hope and inspiration ❤️
HOW TO CONTACT & FIND OUT MORE ABOUT MIGUEL:
👉 RUclips: CFS Recovery / @cfsrecovery
👉 Instagram: / cfsrecovery
👉Book:
USA - www.amazon.com/Thriver-Not-Su...
UK - www.amazon.co.uk/Thriver-Not-...
CANADA - www.amazon.ca/Thriver-Not-Sur...
KEY TAKEAWAYS FROM RECOVERY INTERVIEWS ►►
💌 Sign up for my weekly newsletter to receive highlights from the latest recovery story -
mailchi.mp/3bd95045319b/raela...
LEARN MORE:
📖 Check out my book! Finding Freedom: Escaping From the Prison of Chronic Fatigue Syndrome. View on Amazon - amzn.to/2LtzBcl
👩🏻🏫 Join my course! Lifestyle Pacing: Tools for Optimizing Your Energy and Achieving your goals (join for FREE with this affiliate link) - skl.sh/3BMsuqk
🥗 Need help with food? Join my course Mastering Meal Planning: Stress Less, Enjoy More, & Thrive - bit.ly/40SDHyM
LET’S BE FRIENDS:
💌 Sign up for my newsletter - mailchi.mp/3bd95045319b/raela...
💙 Join my Facebook group - / healingmecfs 🌎 Visit My Website - raelanagle.com 📸 Instagram - / raelan.agle
📌 Pinterest - www.pinterest.ca/raelanagle/
🐥 Twitter - / raelanagle
WANT TO BE A GUEST ON MY RUclips CHANNEL? LET ME KNOW HERE: 👉 forms.gle/qF2TXFzGVcJCbc6E6
TIMESTAMPS
00:00 Meet Miguel!
02:00 Miguel’s full recovery story from severe ME/CFS
04:43 What Miguel’s doctor understood that saved him
07:25 Miguel’s recent insights about what helped him recover
09:38 Raelan’s recent insights about what helped her recover
17:07 The challenges faced once recovered
20:00 Why people sometimes might get stuck at 70% recovered
27:30 Incredible health recovery stories
31:54 What is Recovery Jumpstart?
35:17 Some common barriers to recovery
40:13 Resources available now
42:57 How to deal with haters & not get triggered
49:15 Miguel’s message for people facing health challenges
51:55 Outtakes
…
NOTE: This description may contain affiliate links to products I enjoy using myself. As an Amazon Associate, I earn from qualifying purchases. Should you choose to use these links, this channel may earn affiliate commissions at no additional cost to you. I appreciate your support!
REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#chronicfatiguesyndrome #cfs #chronicfatigue
People all over the world recover in different ways and that is not a coincidence. People that say that some lie is just pure out of anxiety. I mean you can always question certain things but bashing is just not ok. My neighbor has fybro and when i told her I was planning my recovery she told me that I shouldnt try because she hasnt recover. And that was such a shame because if I was easily influenced i could be convinced. Luckily i know better. If you dont want to recover that is fine but dont take that chance from others. We should be cheering for each others recovery and successes.
Absolutely! It's about spreading inspiration and positivity 😀
Everyone is different so you should do whatever you can to get better. Do not compare yourself with others and vice versa. But statistically you know that only 5% fully recover from me/CFS(like MS full recovery rate) 25% partially recover and 75% will be disabled for life on disability. so for the supermajority of patients will need a future pharmaceutical to lift them out of disability.
@@larryc1616 wtf? From where do u have this data? Or are u just throwing with some numbers?
@@larryc1616 my father had CFS fully recovered I've had CFS 26 years but now it's more fybromyalgia I've had pots in.the middle
justbecauseican1410,
Great name! You're so right! We all travel a different journey ,but should try to encourage hope and healing whenever we can! I find that with my damaged spinal discs and Fibromyalgia my hope fluctuates too... Somedays, I'm super positive and hopeful. 🎉Other days, I'm down in the dumps and wonder why I should even bother to get out of bed... 😢
Apparently, I'm in an up phase now and looking once again for solutions... 🤩
Iv had this illness nearly 6 years. When I say iv been through hell, in the pit. The suffering has been overwhelming at times and sometimes I thought I couldn't go on anymore. Constant negative thoughts from all terrible symptoms. Just today I got my second driving lesson. It went well and I burst out crying from experiencing a little joy and the sense of achievement from years of misery and discouragement. I thanked God for this good feeling and à feeling of hope.
Congratulations Esther!! Well done to you and your body
How are you doing now ? X
I am in a better place even after a relapse. I am continuing to learn to drive it's taking alot longer due to my health but will keep going. My husband has just had another seizure so he never drive. Getting a car will be life changing to have family days out. I am thinking more positive as I have had some sleep, keep close to God and grateful for everything. God is good, and loves is deeply.
Keep up those positive experiences!!! Catch those negative thoughts and stop them immediately!! You CAN get better!!!
@@esthercave8111Have you improved again?
Just purchased Thriver on Audible. Been stuck at around 80% for almost a year now, after completing the ANS Rewire. I recognise my A type personality is setting my full recovery back, so I'm needing Miguel to guide me to kick (or manage) this for good! Raelan it was your channel that got me on the road to recovery, so I'll always be in deep gratitude to you and the work you do! xxx I've come a long way since then.
Listening right this second whilst bedbound for six days due to a long covid / ME relapse ..I will get better yes yes yes . Your videos keep me going
Right here with you 🧡🙏 All of this is temporary, and health is right around the corner.
You got this Ella!
I always see you at the Run-DMC channel :) hang in there, never lose hope ❤️.
@@pilarkrol thankyou that's kind of you and the same to you if you have similar issues
I started watching Miguel probably several months ago, and feel his videos were a final puzzle piece in my recovery. I addressed food allergies, candida, B12, iron and seeing a neuropath. My energy would increase but I would still crash badly. It wasn’t until I addressed stress levels and how I handle and respond to stressful events. This also meant loosing couple of friends and family members since they were narcissistic, or negative and their complaining was draining. Then simplifying my life and reducing stress. Looking back I always had food allergies, etc but then I moved and started new job for very abusive boss. Being overachiever and people pleaser I stuck there for 10 months. Right after found another job for another toxic boss. Finally switched jobs and work environment was much better and then my body felt safe and crashed. Thank you for all that you do! The interviews are so helpful ❤️
Glad you were able to learn and apply a lot of the strategies I share!! Keep on going 😀
I watch these videos before I go for a run and it’s amazing how it makes me feel no symptoms, maybe it’s because I have calmness before I do it
💓💓💓
Yes! Needing that stimulus and doing too much is a real issue. Once I have more ability the energy is used before I realise it. Type a 🤦♀️
Loved this interview. Was having a low afternoon and you guys reminded me to keep my vision. It really hit the button for me the part on the losing trust in people, things and especially some professionals. I remind myself each day, the healing comes from within. It's not easy, but it is possible. Brings me so much hope, faith and joy to listen about people's recoveries. And I often learn something new to implement or a different approach to life, recovery when I listen to recovery interviews. Thank you Raelan and Miguel for sharing and all the work you do. 💕🌷
Now, imagine, Miguel, when you felt what you did (during severe covid, meningitis, pneumonitis, toxic shock, anaphylaxis, etc....ICU patient, and NOT getting ANY medical care because it was...during covid. It was hell to face this on my own, on isolation, in my home and have strokes and seizures ....just 48 hours before I was treating patients, I was teaching zumba, etc. Not my first rodeo with abandonment but this lit the match and what a time, but I KNOW I'm thriving. I'll be writing a book. I'll send him mine and see if he wants me on. From nurse to patient, mainstream to "all of the above."
Wow so scary ..hope you are doing better !
Miguel struck gold with that doctor! Thank god, and what a shame there not all like that! Thanks for everything your both doing!
If i got better i would never charge people on the methodology to improve your symptoms . I would just it share freely on the web. The people with these conditions are vulnerable , they have lost there jobs , homes etc , so why charge them.
I agree with you 💯
I would too. I would sacrifice my time to put the program together, I wouldn't charge. I would write out the entire program, pre-record videos and distribute it. It's the least I could do after getting my life back. I would want to help all especially the most disadvantaged whose condition has left them with no quality of life, no job, no hope and no resources to get help even if it's out there. I'm in this position now losing hope.
@@nektariosandmagdalena4985 what you currently taking
This is fantastic. Reinforces everything I've learnt recently about trusting my body, and not freaking out if and when my symptoms kick up. I am forever grateful for you, Raelan, for bringing these concrete real life stories of recovery to help me when I'm having a "cocoon" moment. Thank you.
Thank you, Jasmine. You got this! 💓💓💓
I keep your book on a table top etc in various rooms in the house so it's always accessible. When I'm having a bad time it's a reference book, if I'm so bad I cant read I just hold it close to me for comfort. Thank you for your dedication, love, warmth and hope that you give to so many people.
Thank you so much, Donna! It means a lot! 💓💓💓
Thanks for all your incredible work! May I ask if you could maybe add very summarized videos explaining what really helped them cure. Honestly, I and probably others too don't have the strength to watch an entire hour of such videos.
Raelan, you DO so much by giving us hope; by showing us over and over again that even the toughest cases (30 years?) can recover. You are an angel and I love you.
The amount of things i related to in this video makes me want to cry. Everyone around seems to not understand anything, not doctors, not therapists - NO ONE. Then i come here and feel so damn understood.
Seems like his program is super expensive?
Thank you for some great info and food for thought. Got some really good perspective on my own illness. It would be great Raelan to see story's of older people recovering...just a thought. Thanks for all you do x
Here's the playlist for that, Zoe! ruclips.net/video/UxZYATqbzv0/видео.html
@@RaelanAgle Thank you 😊
Thank you once again for a great interview, new hope and inspiration! I truly am grateful for the work you continue to do!
❤️❤️❤️
I relate to Miguel's way of dealing with his emotions during recovery. Now it's hard to get out off.
Then there are hurt people who don't hurt people, but try to heal and help because they've been hurt. You're both we're all ..right. Great stuff, dear ones!
very true, Jennifer ❤️
You guys are so cool. There isn’t a day c I’ve seen in 13 years who can match your kindness and desire to help others!!! The support from you and all the people Raelan is interviewing make all of us (surely) feel so much hope and inspiration!!!! Love to you both!!!❤️❤️❤️❤️❤️
Thank you for this interview. Right on time🙏🏼
Really appreciate the varied stories on this channel, and the acceptance towards sufferers tring to navigate through these illnesses. The comments section is also very insightful and helpful. Best to all.
💓💓💓
What a great interview Raelan and Miguel - thank you! So inspiring. ❤️
Great video! I actually think traveling ( once someone is medically stable enough to do it ) IS THERAPY for CFS and long covid . Traveling just for 5 days in early May from NYC to Florida on a solo healing trip helped boost my recovery where now I am almost fully recovered from long covid . It helps to get out of your toxic environment that made you sick in the first place and get the fresh air and sunshine and beach water and seeing other people enjoying life ..and for you to enjoy life to even if for only 5 days . I brought my journal with me on the trip which helped ..ate good food...walked gently as much as I felt like , sunbathed..I returned a new person. Travel therapy for CFS and long covid could be a potential future " thing " in my opinion. Someone should open a recovery retreat somewhere tropical . It would help a lot .
Would love to hear more of your story! :)
Love seeing both of you collaborate. Both of you are awesome!!!
Thanks so much! 😀
Thank you, much of what you have said helps to conform that ME/CFS is an probaby an autoimmune disease and it can be knocked out or at least down. I have had it for 65 years although it was only diagnosed about 6 years ago. I have never had it as bad as many do and when ever I got what I called a tired spell I researched and focused on the positive. I know that I will never recover what I think of as full energy but I will recover full energy for my age although due to stress and pain I am in a temporary flare up. The positivity and guidance you have stressed will provide hope for many. Again thank you.
💓💓💓
You made so many good points and identified a lot of the road blocks that I am facing. Fear of trusting or getting my hopes up for a specific program and fear of getting worse from graded exercise are big ones. I want to try a recovery program but do not know which one to trust or where to get the money to do it.
Fantastic interview! Thanks Miguel and Raelan for your wisdom!!
Thank you, Patrick! 💓💓💓
Ah im just 15 min into this video but I can already tell this is pure gold!
I really love what you are doing, you are really making a positive change in my life.
THANK YOU
Glad you enjoyed this interview Anton! 😀
💓💓💓
Great interview, very inspiring...but what I want to comment Raelan, is that you look so pretty in this particular video! The beautiful vibrant colour of your top really looks good with your complexion.
Thank you Raelan for the video
I love the outtakes at the end!
Love this. Thank you
💖💖💖
Thankyou Miguel and Raelan.
I’m so sorry to hear that you both have experienced nasty comments. I think you are both inspiring and wonderful X
💓💓💓
All good Danielle 😀 99% of the comments are super positive (like your comments) and that's what we focus on!
I love the end. I laughed with you😄
Thank you for all your support and love💚
Thank you, Sophia! 💓💓💓
Miguel is a trustworthy guy
I have to recover alone. I don't have the money to seek help. But there's lots of things I can try.
Yes you can. And there's plenty others who are here to support you
There is tons of free information on Raelen's channel as well as mine breaking down how to recover!
Thankyou so much x
Spent all year very ill have blamed all manor of things even has surgery on my nose as I believed sinus's where causing all my symptoms. Months after the surgery I still feel very much the same, the doctors can't find anything wrong at all now... As you can see from my channel I have always been very active and not being able to be active has been very hard, I tried so hard to ignore my symptoms for so long drinking insane amounts of coffee before workouts. Going out and ignoring all my pain and crashing massively afterwards. Coming to the conclusion this isn't sustainable and this might be what I have, I'm sure I can get through this cheers for the video!
Your channel gives me so much hope ❤ I love what you do . I don’t know if I have ME. CFS but my daughter & I have been sick for a few years & the same thing , no test findings or structural problems they say .
Thank you ❤❤
What are your symptoms
@@Truerealism747 there’s a Laundry list .
Vertigo
Pots
Visual disturbances
Migraines
Tachycardia
Nausea
Exhaustion
Weakness
I could be here all day typing
@@Christinesobsevations maybe look into mould exposure/illness?
@@sophiel4701 yep I’m living in a severe mold infestation as we speak
@@Christinesobsevations could 100% be the cause. do symptoms relieve when you spend a long time out ur house?
Very interesting interview!
💓💓💓
Thank you Miquel and Raelan ❤️💞❤️ both helped and stil are…helping me so much with all the FREE content on youtube! Superangels 🙏
You're very welcome Jane! 😀
❤️❤️❤️
If anyone ever says anything mean to you I gonna @#%^%^&# them up! We love you Raelan!!!
Miguel, I’ve followed you from the start ,your’e bloody great! I’m broke my family is broke,my two kids have fibro!. Maybe when youv’e made enough cash,you will put it out for free,and stop the talk! You are giving love,how about ALL you’re LOVE! You can do it,and be it!👍👍
I put out hours of content for FREE on RUclips every week!
and thank you for the kinds words :)
How are you now do your kids happen to have OCD my sin has no fybromyalgia yet but hypomobility and on the spectrum same as myself it's the link
Thank you!
💗💗💗💗
Beautiful Raelan, hadn't scooba diving something to do with oxygenating your tissues and brain (& nervous system)? SD is very close to Hyperbaric therapy (S.Divers even practice it). Substantial anegdotal reports about how HCT was the only thing that helped, and even substantially. Possibly swimming at the same time also helped with lymphatic draining (that is kinda stuck with the disease). You're our guide & our light)
This might sound strange but it also happened to me last year when i tried to help someone recover from Long Covid. I was not fully recovered but i was already fully functional again so I thought I'd share some tips with a fellow long hauler. But you won't believe it, the guy attacked me and said i am nothing. A nobody. Who am i to think i can help him with something doctors can't heal? I was so confused. Why defend the illness against me?
That's the craziest part man. Some people aren't ready to change *yet*. I admit I was one of those people who would dismiss people's recovery stories and think it was all hype and exaggerated...until I recovered myself. It took me being at absolute rock bottom to accept that I was missing information and something drastic needed to change or else I'd stay stuck forever. You did a good deed in trying to help, but we can't help people when they're not ready 🙏🏼 How are you doing now?
@@cfsrecovery Exactly Miguel. But for some reason, i felt sorry for him. I understood his frustrations. Well, myself i am doing better than last time we spoke Last time we spoke. I have decided to stop thinking in percentages like you suggested but for the sake of this conversation, last time i said i was about 90%. Today i am better than that. Physically i am even more fit than before i got sick so physically i am way better than normal. But i still get these little tinglings if i look at screens for too long, but they are fading now. Light sensity here and there, but otherwise i am perfect. Thanks to you and Raelan. Raelan's tips actually got me from like 30% functionality to 80% real quick. real fast. But from 80% progress started to be slow. It felt like i was stuck. But i believe i would have recovered using her tips only but from that 80% it was gonna be slow but eventually it would happen. So from 80% i started focusing more on brain training and less on diet, and that's when i started following your channel, Then i heard you say with brain training you were recovering even on not so good diet. I thought let me try that and test it. I was nervous about not eating too clean but I tried that anyway, shockingly i started moving from 80% towards90% and to the point where i am. I am not eating too clean today but i am continuing to recover. So thanks to you and Raelan. You guys rock.
People are simply sick of being blamed for their illness. Telling them they can heal if they only want and try enough is exactly the same. What would someone with cancer say, if you tell him, he should plan his healing…?
That has been exactly my experience on long covid forums, especially reddit. The most vocal people in the long covid and cfs "community" are adamant that it is purely a biomedical affliction and they seem very offended by people who have recovered who recognize the mind-body connection. As Dr. Paul Garner said, there are two groups of people -- those who are open to the possibility that the mind and brain play a major part in their illness and those who claim it is simply a physical illness with no connection to the mind. The first group usually recover while the second group do not. There is also likely a hidden benefit to staying "sick" in some peoples' unconscious mind (heads would explode on reddit if I were to post that, lol) that delays recovery and prevents them from fully embracing techniques that will eventually help them get better. You see the same thing with people who have depression and anxiety. Some are open to psychological therapy while others insist it's purely a chemical imbalance (which seems like a futile attitude to have now that serotonin has been proven to have little to nothing to do with depression in a recent landmark study).
@@chrisduncan3943 Exactly Duncan. I am in such groups on Facebook (Long Covid groups), and people take offense if you tell them something that contradicts their own beliefs. They don't even care about recovering. They are more concerned about their beliefs being correct. I don't know but if i am desperate to recover, the one thing i will do is listen. I will not argue.
Thank you 🙏
💓💓💓
Miguel is amazing😊
💓💓💓
Thanks Leah :)
I'd appreciate this channel to be more about the actual steps to include in recovery, rather than just PR platform for all different courses, books, coaches. But that's just my view.
I guess to get specifics you join their program? It makes sense because they need to have an income, it is their job to help so therefore can’t give information free?
Omg stop
Complaining
I share at least 2 long videos per week on my channel, what actual steps do you feel you're missing Ivan?
Thank you both for sharing your incredible stories and trying to help others. Nevertheless there is an issue that you should consider:
ME/CFS is absolutely under-researched, and still the majority of physcians believe it is a psychosoamtic problem. Because of this, the cause is still not known and no treatment exists.
To be sincere, neither you nor anyone else can exactly tell, why and how you really recovered, it is all just hypotheses. (There is even no proof if you really suffered from ME/CFS)
So, even when you give hope to some people, even when others tell you, that you helped them:
The more storys about healing from ME/CFS by changing your mindset or livestyle are told, the more arguments are given to those, who believe, that this severe physiologic illness is „just in your mind“.
You should not underestimate the influence that this can have on the stigmatisation of those affected, and the williness to do further research.
A great point. Also, many long-term patients spent years, if not decades, getting the medical community to recognize them. It's challenging to find a balance between training one's neurology to be well, vs a lifetime of being told its all in your head, you're lazy, stupid, etc., lost marriages and bankruptcies. Getting well is of course priceless, but some experienced so much trauma during their medical journeys.
What people do not understand is that psychosomatic illnesses are mind body and so is cfs. The brain changes structure over time from stress and can result in anxiety depression and brain fog. Also can lead into cfs over time. If anyone who has this says it is only body based is way off bc the amount of mental and emotional symptoms that come with it as SYMPTOMS ( not secondarily) are astronomical. This is a brain/body issue. So knocking doctors over the head saying it’s body it’s body only isn’t going to get anywhere. The people that recover tend to be those that realize it’s a nervous system /neuroendocrine issue.. all of which involve the brain to a major degree and that changing your neurology can make big differences. And as you said.. who knows if those people had cfs.. how does anyone know if supposedly no one knows what it is? It is just a term. Call it xyz. The body is stuck in a trauma state. They can test mitochondria all they want but what happens when the body goes into a severe trauma state ? Things slow the heck down thr brain and body purposely withhold energy.
@@elizabethread6878 yes the subconscious brain I've found it's linked to Asperger's hypomobility add hypomobility for which I have all.worth mentioning many have OCD to.i was diagnosed 1998 neurosthenia later CFS now fybromyalgia.mund body is true real hard to crack
I am still not sure if you are guys like 100% recovered ?Like if u were a basketball player you stopped playing becouse of CFS would you be now ready to play becouse you are fully recvered?
Be SOLUTION MINDFUL.
What’s the difference between CFS and adrenal fatigue?
I like Miguel, but charging $500 a month for his program is a red flag for me.
Sadly I saw a video clip of him someone posted on cfs reddit of him saying was going to be angry if he didn't make a million dollars this year and how that's "only 10 sales a month".
I’m pretty sure the Recovery Jumpstart Program costs about $6000. He should be ashamed of himself for charging this amount from people who are already struggling so much financially because of this illness. He’s clearly in it to make money not to help people.
agreee
It’s not that expensive at all? I’m on the programme. Wtf. That’s a lie.
Same. One difference: i don't like grifters like him.
I like Miguel's approach very much
💓💓💓
Thanks Dom!
Thanks
Thank you so much, Yael! 💖💖💖
@@RaelanAgle thank YOU!
Is it possible to recover from ME/CFS while working full-time? Haven't found a story about that yet. Thanks!
Is his recovery system like DNRS?? Dynamic mural retraining system?
What was the doctors name that helped you?
It’s not that expensive! I think there are different types of programs he offers and one is more expensive than the other because it is more intensive and there’s a lot more support
Carolin myss, the energetics of healing. She compares energy to bank account.
Do they give specifics on what to do to recover?
Yup, we give you structure, hands-on guidance, the knowledge, and access to a strong community of like minded individuals who's #1 priority is recovery. You can check out www.cfsrecovery.co/apply to learn more about the program Janis!
What does your leap of faith cost?
Miguel did the CFS health clonic with toby if anyone interested :)
Yup I was actively in the program for a few weeks
Can this help if im V injured with this poison changing my dna?
Is there coaching available in Europe ? I'm have ME/CFS, CPTSD and Ehlers-Danlos, I live with my daughters half time. I live near Brussels. I sometimes hear people mention that they went to Brussels to heal from ME/CFS, but I have no clue who you are talking about. I'm searching for people like you in my surroundings, thanks !
Hi there,
I wanted to take a moment to leave a comment regarding your question. Unfortunately, I don't know about any clinic in Brussels (not to say there isn't one, just that I'm sorry I don't personally know of one,) however I do know that Toby Morrison of CFS Health (mentioned in this video,) runs his program online. So you don't need to go or travel anywhere.
I assume this is also the case with the program Miguel is running.
Also, I would HIGHLY recommended The Optimum Health Clinic here in the UK (London,) founded and ran by Alex Howard. It has official charity status, and Alex founded it around 17 yrs ago after he recovered from ME/CFS. He is EXTREMELY knowledgeable in this illness, he has a degree in Psychology, and is the founder of Therapeutic Coaching. He runs worldwide Fatigue conferences and is highly involved in research in the ME/CFS community.
They do see people in house (IE. at the clinic in London, but they also can do everything remotely too (IE. online.)
Here is the link to The OHC website:
www.theoptimumhealthclinic.com/
@@loobylouboti hi, thx for your comment. I did 6 month with Toby but I was never in the calls because I sleep a lot. And the same for connecting with other people online. They sleep when I am awake.
London is better for the timing. After all what happened to me, I only have my daughters anymore (15 and 17 yo), 1 week on 2. No family or real friends left. So speaking with people is vital for me.
I'll check for London, thanks.
Try john sarno mind body presciption, rebecca tolin tms recovery story they might help you and more affordable
@@ondineke Hi there. NP. I hope the info helps.
London is certainly a much better time difference! Maybe only one hour difference from where you are?
If you would like to connect with me, I can give you my details to do so.
I know how isolating this illness is, and we need to keep each other supported.
Take care x
@@loobylouboti Yes, thx, how can I contact you ?
Try vitamin d and magnesium
I do want to add to my previous comment. Miguels program wont work for everyone. Some people have more layers of healing to do. Some have traumas, need more somatic healing or need to focus more on diet.
Miguels program is clear and simple for people who get easily lost and overwhelmed but I was thrown back by the way you had to apply. You have to prove you want it so bad. And also one question was about how much you would pay to recover. There are no clear prices written down. So just because of this I would not apply to the program.
@More Lime Hold up...... He's charging 3000 dollars???!!!!!!?!?!?!?!?!!
I don't believe that. 😂😂😂 Whaaaaa?! Seriously?! I'm genuinely laughing at this. Good LORD man that's ridiculous. Even The OHC don't charge that much and it's been running for 17yrs, has official charity status, and is one of the worlds leading integrative medicine clinics (with a full on staff all who have qualifications coming out of their ears.)
My mind is (sadly,) 🤯
Yes unfortunately the costs are high for what it is. I appreciate his free information but i would never apply.
@More Lime Crikey. it was around the $2000 mark when I spoke to him and even then I was disappointed as I had really appreciated his videos and teaching style but knew i couldn't afford this.
@@loobylouboti OHC is one of the leading integrative medecine clinics?! LOL. Is Alex Howard an MD? A qualified dietician? A qualified psychotherapist? Some people are incredibly misguided.
@@Goldennuts44Calm down buddy. 👀
He is a qualified Psychologist.
So one out of three, ha!
It is indeed one of the worlds leading integrative medicine clinics. Using diet, psychology and other INTERGRATIVE medicinal practices, along with the experience and knowledge they have, makes this so.
But nit pick, away pal. I'm sure that will make you feel all better. 🤨
Isn't graded excercise which I heard is part of Toby Morrisons program/book harmful to people with true me/cfs? Honest question. I'm very ill with severe symptoms, looking for any help that's out there.
My daughter went for a German GET program and got worse and worse. She stopped it then. If you start a program and there is a first day lesson, do not bother with the second day lesson before day 2. She crashed badly within the first days for consuming too much of the material - too eager to do as much as possible in as quickly as possible.
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and disabling disease. It has been classified as a *neurological disorder* by the World Health Organization, though it affects many parts of the body, including the brain and muscles, digestive, immune and cardiac systems.
I have been going to doctors for decades but they have NEVER sent me to a neurologist. I need to fix that. That is the first step.
it's the prblm in the brain
so u may think something big is happening in the brain
there is nothing happened to ur brain
what happened is ur brain stucked at mindset and u halped that mindset by believing in it(believing in symptoms) and made it strong by losing hope
solution: gain hope correct mind set by brain retraining
it's just brain
not whole nervous system
nervous system=nerves+ganglia+spinal cord+brain
there is no prblm in nerves,ganglia,spinal card
hope u understand it
I was almost fully recovered but then I got an infection and I was given antibiotics, unfortunately it was a major setback to the worst that I've ever been.
I feel like I won't recover this time.
Erik, I'm so sorry to hear that you've been dealing with this for so long. I hope you find all your puzzles pieces and can finally put this all behind you soon ❤️
@@RaelanAgle Thanks Raelan.
@@TheFracturedfuture i didn't understand u ...u said u almost recovered so u know how to overcome symptoms...but why r u struggling now...do u know junior(u can see video in this channel) he also got into infection again but he didn't fell into cfs again bcause he know how to overcome
@@t2tmedia933 I have overcome it several times but I've had relapses. Things such as a cold, stomach bug or antibiotics have triggered relapses in the past.
It's possible to recover but the hardest part about this illness that most people never talk about are relapses. Essentially how to not get sick again after recovery or partial recovery.
Could you reevaluate giving this person a forum?
What made me doubt this guys info was me interacting with him and seeing how little he understood the illness. I gave him the benefit of the doubt that he knew what he was talking about but when he started to try to answer my questions it was so obvious how little he knew. He seems convinced CFS has to involve pain, which is bizarre because fibromyalgia is what is usually associated with pain with CFS. When I told him I didn’t have pain he started telling me I must have Lyme or mold toxicity and not CFS even though I’ve been tested for the others (all the sensitive tests) and they were negative. I’ve had a CFS specialist (Klimas) for 13 years and yet he this dude still thinks I don’t have CFS because I don’t have pain. I’m sure he’s a nice guy but wow.
Hi Jay, the beauty of the internet is there’s free speech so I appreciate you sharing your opinion.
I’ve been nothing but kind to you in answering questions and I genuinely wanted to help you.
Normally I don’t respond to comments like this but I feel this one needs to be addressed.
1. “How little he knew about the illness”
Ok. Somehow I’ve made hundreds of hours of videos talking about how to recover, done multiple interviews, wrote a book about the topic, helped people ACTUALLY RECOVER, built a program that works to help people recover, and recovered myself, but your belief is that I don’t know much about the illness. Interesting.
2. There are people in my program that don’t have pain…so if I didn’t think people could have CFS (which is a hypersensitive nervous system issue) if they didn’t have pain they wouldn’t be in the program. I’d like to see proof where I actually said this to you because I know I wouldn’t say something like that.
3. “You must have lymes or mold toxicity”
When it comes to diagnosing, when I talk to people outside of the program I NEVER EVER say you “must have” or “you definitely have” a certain illness outside of CFS. What I do say is “you might have x…so make sure to checked out”.
The fact that you’ve had a cfs specialist for 13 years and you’re still watching videos on how to recover tells me that you’re not recovered yet. So I think what’s really happening here is you’re taking your frustrations out on other people. And I get it. I was frustrated for a long time. Express yourself in ways you need to but what I won’t allow is for you to make false accusations about things I’ve said.
Anyways man I truly wish you the best and I hope you find your way out of this illness sooner than later 🙏🏼
@@cfsrecovery I never said you weren't kind. I even said I'm sure you're a nice guy. What I get annoyed by is how people like you make it sound like recovery is relatively simple. Not easy, but simple, and if people would just do what you say then they'd get better. It's a total oversimplification and it leads people, like me, to spend so much money on all the different programs out there, put all the hours in, get coaching, get our hopes up, only to end up in the same place we started. If recovery was simple then that would not be the repeated pattern for so many people that have this condition.
But just so you know I wasn't making stuff up, here's our previous interactions...
Me - I’m confused. I don’t have pain but do have severe cfs. How do I visualize with this? It seems pain center glowing and dimming wouldn’t be appropriate
You - Hi Jay, this can be tricky. If you don't have pain but have severe CFS I would definitely look into what other things might be going on (mold, lymes, etc). Have you had those checked yet? What kind of severe cfs symptoms do you feel?
Me - yea, I’ve been tested for everything. I’ve had this for 13 years.definitely, cfs, not the other things. I’ve also done most of the programs, Gupta, Toby Morrison, Optimum Health Clinic Alex Howard, DNRS, ANS Rewire, most with personal coaching. I’m trying to understand what I’ve done wrong and what’s different with what you recommend.
END
As you can see, you strongly indicated that if I did not have pain then I most likely did not have CFS but that I should definitely look into other conditions like mold or Lyme. I'm not sure how that can be interpreted any other way. When I responded that I had already been tested for that and had done other recovery programs you never responded, indicating you had no answer. You also asked what other symptoms I had, which was strange because it made it seem like you were unaware of the main obvious CFS symptoms that are officially listed (fatigue, brain fog, unrefreshing sleep, food intolerances, etc)
Here's another interaction on different video...
Jay - And it works on fatigue?
Miguel - Hi Jay, When I was getting better, I looked at fatigue and other strange symptoms as secondary issues. When we’re constantly in pain our bodies are stressed and that stress never really goes away. Once we start lowering that pain, overall stress is reduced in our bodies, so other symptoms and fatigue start to dissolve.
I really just focused on dealing with the pain at first (because mine was so bad even though I physically wasn’t doing anything). Once I got the pain under control then I felt my energy started to come back.
Some things I did that helped with everything else
-cool shower every night before bed helped relax my body so I could have a great sleep
-sleeping with an eye mask so I could stay asleep (this made a huge difference)
-NOT overreacting to symptoms and adjustment periods, but seeing them as necessary on the road to recovery.
END
Here you indicated that fatigue in CFS is secondary and that pain is the primary cause of the stress that leads to the fatigue. Once the pain is under control then energy starts to come back, again indicating that pain is the primary issue in CFS.
If you claim to know so much about CFS and that you agree that pain is not always a main symptom, then why did you answer my questions as if you thought pain was such a core issue? With the answers you gave me I would have no motivation to read your book or use your program to find out just how much you really know about this and how effective you're program is compared to the other programs.
Look, I'm sure you're sincere and are trying to help people. I don't doubt that you're helping some. Yet, I'm concerned that overall you'll give more hope than actual help and that hope will turn into despair for people when they don't get the results that they were sold on. I'm not trying to ruin you're business. If one person with actual CFS recovers from your help then it's worth it. But I've done all the programs and I've done them thoroughly for extended periods of time with personal coaching and still end up right where I started, so then I see interviews like this it triggers me and sometimes I just have to say something.
CFS is one of the most complicated disorders out there. Nobody seems to truly understand it. It seems you think you do (with your "hundreds of hours of videos...") but that honestly makes you sound more naive. CFS specialists have been trying to figure this out for years. Ron Davis, one of the smartest researchers out there with a vested interest in helping his own son recover, still has barely anything to show for his efforts. At best these types of programs put the body in a better healing state to do what looks like some pretty amazing magic that we simply don't understand yet from a medical point of view. Realize the scope of what you're dealing with and don't make it sound like you're some kind of guru who has the secret knowledge to master this.
If guys like you would just say something like, "look, I believe in my program but I need to give a disclaimer. This isn't going to work for everybody. It worked for me and it's working for some people, but for vast the majority of people these type of programs are not going to be a miracle. It's worth trying, but if it doesn't work for you, don't beat yourself up. It's not your fault. It's not anyone's fault. The body is incredibly complicated and none of this is simple or thoroughly understood yet. If it doesn't lead to full recovery it can still lead to an improved way of functioning optimally within the limits of CFS and that's still worth something." (Alex Howard is the only person I've seen say something similar to this)
That would be a far more accurate way of saying things, but I know that doesn't sell very well. The selling part of it is what really irks me. People with CFS are desperate and usually very limited financially, so selling something to them with such a small chance of true full recovery while making it sound like a near guarantee of recovery if one is simply consistent in using the tools is, well, shady. At least offer a 6 month money back guarantee like Gupta and ANS Rewire do. Daniel's von Loosbroek's Alignment Recovery Program is free, which is hard to believe, but true. (I've been using his program too) Maybe you do offer some sort of money back program, but like I said, after it seemed like you were primarily focused on the pain aspect and you didn't respond to my question about how your program was unique to the others, I never checked it out.
Good luck on your journey
@UCk3V8zJ4xO98Rsvnn7oKhWA I admit frustration at the lack of results from the programs. It’s been disappointing. But I’m not “playing the victim”. My comments were based on Miguel’s odd answers to my questions in the past, not blaming him or anyone for my condition. If someone is going to spend the money and put the time in to a program I think the person leading the program should have a thorough understanding of what they’re talking about and my impression of Miguel was that he is not that person. Should I have kept quiet? Perhaps. And I apologize to Raelan if I’ve offended her since this was her guest. Raelan is awesome and I’m thankful for her channel.
But like I said, I think more honesty from these programs regarding their success rate would be helpful for peoples expectations, but also eye opening at how rare full physical recovery is. Many of the programs are worth doing and worth the money just for the mindfulness and meditation. They have definitely helped me have a better quality of life with CFS, especially emotionally (mostly via Gupta). But the physical energy aspect is quite elusive for most.
The programs can get a little cult like and put the blame on you when you don’t get the results you want. That’s unfortunate and part of my issue with the oversimplification of the condition. But, seriously, don’t let me get you off track if you’re doing one of the programs. Go all in. Let me know if it works. I would love nothing more than for recovery to be common and straightforward.
I understand your frustration jay. Not all people recover by brain retraining. For alot of people its about peeling layers. Try to stay close to your instincts. What does feel right to you? I am not trying to let you buy anything but i listened to cathleen kings videos about her primal trust program. Most people go there who havent seen results with brain retraining alone. I wish you well in your journey. Believe in you!
I only wish he didn't screen the people who want to use his program. Seems like cherry picking only the most likely to succeed so he can claim higher success rates. (Only saying this because I'm over 60 and bedbound but I've dealt with MBS before and beat it. Will prob have to go with a different program that doesn't screen but is open to all. That's life. I'm determined to beat this!
Graded exercise is the worst for most people with M. E. Cfs. Glad it worked for you but does t work for most... In fact it usually causes incredible harm to most with cfs.
Indeed! My dauhter got so bad following a German program HealwithLeo. Explanation for her getting worse is that she probably has psychological issues she needs to look after.
13:15
Why do we blame doctors-doctors as well advise patients to move slowly with physical activities. Believe that your body will heal itself. CFS is something in the air in the body that only nerve system recognizes, doctor cannot detect it. No blame on them.
Went on his site to get info/pricing on his program and had to jump through so many hoops answering questions that basically committed you to the program without knowing the price. I was very turned off and have lost total trust in him.
Healthy people say " what is holding U back???? Surrender your life for healthy people. Wrong! Wrong. Wrong.
Wrong. Uncaring healthy doctors & nurses. Stay ALERT ongard.. in daily life. 🤓🤓🤓🤓👍👍👍👍.
you guys never had cfs if you recovered by sheer will of your thought and control of emotions
It’s not always about your conscious mind though. Your brain is essentially high jacked. CBT therapies might not be enough for people which is why brain retraining programs or talk therapy didn’t work for me. The subconscious mind is what needs healing, and CBT techniques aren’t the key. There are many different ways to heal the nervous system so perhaps you could try a “bottom up” approach (CBT is what’s called a “top down” approach to therapy) that includes body work such as somatic experiencing. CFS is a syndrome which means it’s just a label to categorize a group of symptoms. Perhaps you have a different cause of your fatigue, but it’s not fair to undermine someone else’s illness. By definition, they did have CFS because it just means that you’ve had fatigue for more than 6 months and your doctor has ruled everything else out. If your mind is already set about this approach to healing, then I cannot convince you. But I just wanted to give some information incase you’ve tried CBT techniques and they didn’t work for you. There many options out there! Healing the nervous system is not easy or simple, but I hope you can consider it. Good luck on your journey with whatever route you choose to take!
There is no intelligent and usable information in this video that will help someone recover from cfs m.e. Not enough information on finer points of his course.
Actually, there was a really good tidbit amidst all the chatter. And it was something I needed to hear, because I am about 70% recovered, but just can’t seem to make the last bit and keep crashing around every 3-4 months. This last time I crashed, I noticed that things were getting difficult. I was beginning to become resentful and stressed out over “all” the stuff I had to do. I’d already noticed that when I start getting cranky, I need to put up whatever I’m doing. Miguel did talk about “how” we do stuff, which I’d actually “learned” before with ANS REWIRE, but forgot. So, I need to be in a kind of flow with whatever it is I’m doing and if I’m not, put it up until I feel I can do it without being stressed later. Not go about each chore with a huff and a sigh, but with enjoyment.
This is not a nice guy. He plans on getting rich on the sick people and I mean rich rich, not just earn a living.
Miguel is a certified scammer
Graded exercise is the worst for most people with M. E. Cfs. Glad it worked for you but does t work for most... In fact it usually causes incredible harm to most with cfs.
Thats what im worried about, i heard graded exercise is a big no for people with true me/cfs
@@nektariosandmagdalena4985 yes the pace trial was completely falsified.nuce had to change their guidelines because graded exercise causes severe harm to people with m.e.