I want to thank you all who have taken the time to share your story with me and others and having the courage to ask questions. I have not been able to respond to each comment but please know how much I appreciate you all for creating a community and us knowing we are not alone! I have an update video coming soon. Until then stay strong 🦋
I’m a 16 year old teenage boy. I had my first seizure 2 months ago and I fell into a pond. I had my second in early October. According to the doctors, they weren’t the worst seizures in the world. I had a 24 hour EEG and nothing showed up. They did a brain test and nothing. The doctors are frustarated because I seem like a perfectly healthy teenage boy. I had no symptoms for the first one but before the second, I felt sick and extremely hot. Then I ran and once I stopped I passed out. It’s really sad because all the other doctors think something different causes it. It’s not epilepsy. I hope it’s hormones but we don’t know yet. Good thing is that they don’t think it’s the worst thing in the world and I can function normally. Just hoping right now and it’s honestly scary, especially for a younger person. Just thought I’d mention it. Thanks for the video. I hope I find out my things soon. God bless you!
I appreciate you sharing your story!! You are not alone my first one happened when I was 18 so I can sympathize with the struggle of being young with this condition. I’m so sorry it’s happening to you and it can be frustrating when tests are not conclusive. It is comforting to know it’s not the worst but that doesn’t make it easier to deal with especially when it comes on unexpectedly. Being patient with yourself and listening to your body, treating yourself compassionately is so important! Remember your strength for pushing through at such a young age with what you go through 🦋
Thank you for your comment my son of 17 also have this seizures and its very frustrating because the drs keep telling me its not epilepsy.Reading your comment brings is a bit of a comfort
I am currently in hospital with my daughter who is 16 and having these kind of seizures 😢 Thank you for sharing your stories as it is helping me right now to understand how I am going to help her ❤️
Please continue Looking into Food Sensitivity and vitamin and mineral imbalances specific to you. ❇️Matthew 17:14-21 14 And when they were come to the multitude, there came to him a certain man, kneeling down to him, and saying, 15 Lord, have mercy on my son: for he is lunatick, and sore vexed: for ofttimes he falleth into the fire, and oft into the water. 16 And I brought him to thy disciples, and they could not cure him. 17 Then Jesus answered and said, O faithless and perverse generation, how long shall I be with you? how long shall I suffer you? bring him hither to me. 18 And Jesus rebuked the devil; and he departed out of him: and the child was cured from that very hour. 19 Then came the disciples to Jesus apart, and said, Why could not we cast him out? 20 And Jesus said unto them, Because of your unbelief: for verily I say unto you, If ye have faith as a grain of mustard seed, ye shall say unto this mountain, Remove hence to yonder place; and it shall remove; and nothing shall be impossible unto you. ⚠️🚩❇️21 Howbeit this kind goeth not out but by prayer and ❇️fasting.❇️ Note: Fasting is eliminating and replacing something within the patient’s diet. What May be a health food for many May be severely chemically and neurologically Toxic to another. 🙏🏽
My daughter was diagnosed with conversion disorder/ FND a few months ago. She has these siezues where she passes out and her eyes roll back. It was interesting to watch your video she has similar triggers that I noticed. Sugar, bright lights, temperature changes, crowds, school, menstral cycle. Recently we have started an AIP diet , neurofeedback. And taking fish oil, tumeric, magnesium, B8 ,ashwagandha. She has improved so much. There are studies that show increased CRP/ inflammation levels in a high percentage of patients which prompted me to try these supplements and diet. May be worth a try.
Thank you so much for sharing this! I was recently diagnosed with epilepsy and PNES and the lack of information on these types of seizures and what causes them is incredible. Mine is caused by PTSD and it caused loss of body functions (walking, talking, etc). It takes such a toll on on your body and mental health. I wish the best on your recovery because I understand your pain! Health and peace 💙
Thank you Jessica for taking the time to share your story and give me encouragement! It is definitely draining and know you’re not alone! Here’s a video I did to encourage us seizure warriors ruclips.net/user/shortszSn-Cq3M_6Q?feature=share
Thank you so so much for sharing. I am the mum of the little girl in the profile picture. For the last 2 months I have been having tonic spasms on my left side. I'm currently waiting for neurology to get back to me with some test results. I was feeling so alone and that others don't understand what I'm going through. Your sharing reminds me that I'm not alone. My triggers can be laughing at a joke, stress, excitement, tiredness, and picking up heavier items with my left hand. Also standing up after an extended period of sitting. I hope that sharing this will help someone else feel that they're not alone. X
Josie I am so glad you know you are not alone. I am so sorry to hear about your tonic spasms. I hope the neurology test give some insight. Thank you for sharing your triggers as well so that others who read this know they aren't alone. Remember you are strong for all you push through🦋
I have been searching for PNES videos and finally ran across your video. My son is 14 and he started having tick episodes in the beginning since summer 2021. About a month ago he had his first seizure. Yesterday he had another one but this time we didn’t get much warning. Very scary situation for our family. Thank you for posting this video. He did go to bed late, he had a soda and one of those giant popsicles I found at the grocery store. I’m not saying that’s what caused it but watching your video made me think about things he had and he had not had them for some time. I will definitely journal his intake from now on. Thank you so much, we will beat this and so will you.
Hi Sephia I'm so sorry to hear about your son that must be hard for your to see. It is for my family. You're right that it may not have caused it but could be a trigger. Journaling will help you so much. You're a great mom for doing what you do. Thank you for watching and taking the time to share your story. Sending you compassion. Keep me posted if you can or you can email me at nina@naturallygraysful.com
Hey my son was 14 when he got his frist episode but he had a brain tumor and he is 19 yrs. Old now and you would never know if I didn't tell you. He was diagnosed with PNES after his surgery. I just want to encourage you that there is light at the end of the tunnel. I don't know your believes but I know a lot of friends and faith but my son to the point where he is now he's doing everything the doctor said that he would not do running jumping skipping hopping talking graduated from high school driver's license drives independent life to God be The Glory he is truly a walking miracle so I say again be encouraged mom you are doing a good job by monitoring and journaling everything that he does I had to shut my life completely off and just care for my son because it walked the core of my foundation in my whole house was in such shock so you keep taking him to doctors and journaling even videotaping him do whatever you have to do for your baby you guys will get through this. My son hasn't had a episode in about 2 years maybe three and has been off medication for about 2 years he does everything natural you change his diet and he exercise and he's 19.
Anything that spikes the nervous system pushes seizures out. Got to keep your body grounded. I can’t do black tea, coffee, sugar at items at all anymore. I don’t like the way it makes me feel. Stress triggers me, being sleepy, smells, being overly hot, bright lights, loud noises, the moon, weather, loud people, crowds, conflict and especially moods…depression and anxiety. Ugh pnes is so very hard. When I feel my seizures come on my face goes numb and I get a sense of panic. I try and make it to my bedroom and lay on my size and try to force myself to go go sleep, trying to shut down the machine. I’ve been in therapy for 3 1/2 yrs. I take herbal supplements that have helped a lot.
Oh my! I didn't know this could be a trigger! I have a seizure every single time I go to the pharmacy to get my meds and there is always a line. It's really the only place I wait in line. I wasn't sure why it was happening. I wonder if this is why?
My triggers to PNES are definitely stress, along with waiting in line or standing on my feet for extended periods of time, I'm certain diet plays a major role (Caffeine intake). Lack of sleep and I'm sure I'm missing many or triggers. These seizures only started 3 years ago and of which I've had approximately 6 or 7.
Thank you for sharing. I was diagnosed with FND in Nov 2020. My triggers are stress, anxiety, lack of sleep, heat, fast heart rate, getting up too quickly, exercise, any changes in medications, viruses or infections. I tried to go grocery shopping on Saturday, I had 3 seizures (Non-Epileptic attacks) in the shop alone. 11 in total that day!. Luckily I wasn't on my own. My NEA's only started a month ago. Saturday was the first time I had ever had any of this type whilst shopping. Previously I was having ones that looked like absent seizures. I think i scared everyone in the shop as well as myself!!
So sorry to hear about the seizures happening while you shop. Thank you for sharing your story and please know you are not alone Lesley. I also have been experiencing more absent seizures as of late.
It’s great to hear another person’s perspective and experience. I resonate with all these triggers, have yet to really brave the caffeine thing but recently cut way back and have seen a huge reduction of symptoms. Some triggers for me have been really weird, like the light flickering through trees while in public transit 100% off the time puts me into a trance and seizures. Almost like my Inner world and outer are experiencing very different perceptual modalities. My vision will often switch rapidly from local ( pointed object perception) to global ( more soft focused peripheral vision, the patterns not so much the objects the light hits) it can even be quite pleasurable if i can manage not to judge myself or be too self conscious. Anything trauma based that would create cognitive dissonance or like a reality I’m not ready to face (denial) will do it like clockwork. Also this weird compound seizure state like sexual intimacy compounded with deep embarrassment about the seizures, judgement of self, etc, etc. Anyways, thanks for the video! ❤️
Thank you so much for sharing your story! I resonate with your triggers. You definitely are not alone and by you sharing someone else who reads this will feel the same way! Self judgement is huge that is something that I am still working through. Sending you compassion and if no one has told you yet this week I’m proud of you for doing best you can with what you have🦋😌
For me triggers are 1. Lack of sleep 2. Stress from pain 3. Stress mentally 4. Bright flashing/sparkling lights. I have PCOS so I have an IUD. My cycles stopped to that doesn't trigger any for me. I never loose consciousness. It doesn't affect my lower half as much as the top.
I’m am a non epileptic. Mine is caused by extreme pain. I usually know when my finger and toes start to cramp really bad. Also my blood pressure drops really low. I haven’t had one this year so far. Praise the Lord.
Hi Kathy thanks so much for sharing something else we have in common. I hear you about the pain as a trigger, did not think about low blood pressure before. I am so happy to hear you have not had one yet this year that is something to be thankful for!🦋
My son 24 yr old has these seizures as well, non epileptic. We have discovered how very spiritual they are. We were NOT Christians when they began and have found Christ because of them. But it's interesting because his align with MY cycle. Doesn't make sense yet they align. Thank you both for sharing!
Triggers that I know of thus far are storms, like thunder, lightening and rain storms. Lack of sleep, low pulse rate and high pulse rate. It started with him just passing out. Actually all his beginning symptoms are vagus nerve responses. First he had hiccups for 2 weeks with no stopping, then didn't sleep for 2-3 months straight, then came over salivation of his mouth. Watering so hard it would pour from his mouth. Then came nausea. Then he began vomiting every single day. he vomited 29times a day for over a year before the passing out started. by then we were a year and a half in. I really though he was having seizures but the Dr.s said I was being dramatic. But then yep he began having huge grand mal seizures. Now we are almost 5 years in with no answers. The single biggest trigger appears to be spiritually caused.
@@notonau yes!!!! I have always been a very spiritual person. I also can speak in the spirit. Which is not uncommon in the Penecostal religion. However, once I started to have my seizures. My blood pressure would drop so low and my heart rate would go into heart attack mode. I have had to be rused to the hospital numerous times. While this was happening I realized ( and was told) I was yelling out loud... but the yelling was in prayer! ( what some call tongues) IT has taken me a long time to control it but now I know. When I feel one coming on, just get comfortable, stay calm, keep God close and remember.. You're safe and it all pass😁 I no longer yell but I do sometimes mumble.. I believe it's because my mouth will not open. Or my tongue will hang out😔 But God is good and will always protect us!! Take care and God bless😘
I was misdiagnosed as having PNES until a sighted person saw them and could tell my neurologist. The doctors at my school town just brushed it off. When I got to my hometown my neurologist was like, nope. It’s epilepsy. I don’t have triggers except maybe lack of sleep. I have warnings beg a tonic clonic seizures, it feels like the feeling when you are on an elevator and you get to your floor and it goes up a wee bit and then back down. That’s my warning to get the frick on the ground quick. And then I do the stiff and shaky shaky. It’s is controlled by my meds, the smaller ones aren’t though but it’s the bad ones that are more dangerous for me.
Yeaah. Listening to this OP's triggers, they all sound like epilepsy triggers tbh. I think she should get a second opinion. My neurologist tried to diagnose me as PNES despite being on medication for TWO years and it working fine. Then my medication became unavailable and the medications she switched me to I had reactions to. I guess it was easier to misdiagnose me and tell me I was no longer her problem then actually do her job.
These are also big triggers for epileptic seizures as well! Thanks for sharing your experience. Carbs/sugar and overexertion/overheating are the biggest trigger for my focal aware seizures.
I had my pnes onset during my ba in college in ‘17. Some of My triggers are my toxic family being toxic, yelling, even people being rude to me, when other people are driving dangerous or aggressive while I’m driving, talking to people in public or on the phone, talking to anyone in a hospital, clinical setting. It was really scary getting diagnosed, there weren’t any youtube vids about it then. It’s nice to know we’re not alone, not that I’d ever wish this on someone. But it’s nice. Thank you for making and sharing. Love to everyone here.
1) Stress 2) Poor sleep 3) Sustained heat 4) Sudden temperature drops 5) various mild illnesses I had open heart surgery at 27 years old in 2021. Started having seizures after I got out of the hospital l. At first was told they could detect “epileptic activity” and now today after I just had a 24 hour eeg, while experiencing multiple seizures and they didn’t detect anything. Makes me feel like a crazy person TBH
I was just Diagnosed. With PNES and felt like a crazy person because every time I went to the hospital they would think I was Lying about what I was telling them that I was shaking my feet and legs were uncontrollable and couldn't stop them.I couldn't walk. My speech was slurred. And I was born with Epileptic seizures but stopped having grandma seizures in my early Thirties... Had a stimulator put in me in 2019 When this stuff started happening. I thought it was the stimulator. But then they diagnosed me with.PNES 🤦♀️Just this month. Thank you so much for sharing your story. I look forward to watching more and learning about them.. God bless you.
Thank you so much for this my sister had her first non-epileptic seizure and I need all the information I can find this is all so new and she seems like a different person now
Thank you Thank you thank you. This video healed a piece of me, and how I live with my sezuieres. I am struggling with having constantly advocate for myself and this is exactly what I needed to hear. ❤
I get my seizures while I’m asleep - I have that electric shock in my brains and part of my body twitches . The neurologist couldn’t come up with a name and put me on CR500 and Epitec 50g which help with migraines as well. Alcohol made everything worse.I’m now on a strict paleo diet , little dairy,little fruit ,no caffeine, no processed foods, I only drink herbal teas and water. I took a 6 months sabbatical from work and the seizures stopped, I even went off the meds. I’m back at work and it has started with migraines and the seizures are back. So I also think stress has a lot to do with it and I also want to go back to therapy. I also take Ashwa- Gandha to keep me calm and normal vitamins. Lastly my last bloods indicate that the thyroid is a bit off , so you’re right about hormonal issues. So a healthy life style of the things you can control is important but I love it when you say ,be flexible to life’s unpredictable circumstances. So we need to also be open to other means for such unexpected changes in our lives like an open ended tool kit for these seizures. Blessings to everyone, you’re not alone 💐❤
I think I have this. I’ve started having them after dealing with chronic illness and pain. My MRIs and blood tests are all normal so I will bring this up with my doctor. Thank you for your video!
Hi! I have PNES as well, thank you for sharing your triggers :) I’m 16, and my biggest trigger would be school and all of the overwhelming feelings that come with it, such as loud noises (I’m also noise sensitive so that was a problem before I was diagnosed), cramped spaces and the stress just in general of school. Another one of my triggers is change, so if I have a substitute teacher or we change teachers in a different year, my seizures will definitely turn up. Thank you so much again! :D
Thank you for sharing this! Your triggers are very much the same as my migraine triggers but I watched this for my son who has started Non Epileptic Seizures in his sleep. He feels terrible for days after one and bites his tongue badly. He’s on medication but we need more information and help. Your video helped a lot!❤
I have wondered if I had episodes like this. Here has been my experience: vertigo, nausea, an exaggerated sense of smell or an offensive scent, déjà vu, and the feeling that I’m about to lose consciousness (although to my knowledge, I’ve never blacked out). A few years ago I started having migraines and I began taking topamax as a preventative med; it also treats epilepsy. It could be coincidence but I stopped having those dizzy spells. Unfortunately, I still have the migraines; not much relieves them ☹️
Thanks so much for sharing your story!! Have you gone to a neurologist? Keep a log of your symptoms as your doing. I’m sorry to hear about your migraines and sending you compassion cause it’s not easy but know you’re not alone!🦋
I get those symptoms as a warning that a migraine is coming, and a few days after. For me, most of my symptoms are not the actual headache. Sometimes it can last an entire week. Definitely check with a neurologist. Migraines and seizures have a lot of overlapping symptoms. Emgality (a once a month auto-injection in my stomach-not as bad as it sounds) was the best treatment so far for me.
Alcohol triggers my PNES. As a result since figuring this out I do not imbibe. I get a psychedelic light show pre seizures. My seizures have lasted as long as 3 days. I have had to be Life Flighted multiple times. After I was prescribed 500 mg Levetiracetam twice daily, I have not had any more seizures. As soon as I see the flickering lights begin, I take one and so far I have been seizure free.
My sister is going through this your information is so very helpful thank you for sharing. God-bless you and keep you and make his face to shine upon you
I'm so glad this was helpful to you Cheryl. She is not alone and I will be doing more videos on it. ruclips.net/video/Ec-ys-TMXH8/видео.html Thank you for your kind words☺️
I'm not diagnosed yet. I experience what I think are seizures and sometimes afterwards I feel shaky and extra tired for days. I also feel tired and anxious before they happen.
Thank you for sharing. I have been diagnosed with epilepsy and PNES. Some how my muscles have been affected and doctors are trying pinpoint why this occurring. You are very inspirational that I'm not alone and there are others who can relate.
Hi Polly how have you been since you commented last. I hope you got some answers about your muscles. Makes sense how they are affected. I appreciate your kind words and support here’s a video I did with words of encouragement for us warriors ruclips.net/user/shortszSn-Cq3M_6Q?feature=share
Oh my thank you for this it’s so close to my story I feel I can share with my closest friends I’m 70yrs my biggest hint is stouts smell will come out if no where besutiful smell I just love basking in it it’s thst good to me but dose bring in my seizure shortly after sll those things you mention I do not avoid but have cut back on long ago testing my self why
I have just been diagnosed last week with these seizures, thank you for explaining your triggers. Not only are you informative but you are also very beautiful. sending healing hugs from Manchester England 🫂🫂🌈🌈💗💗 i have not figured out what triggers mine off yet. when i feel one coming on i just tell myself this is going to pass this is going to pass and eventually it does. Take care of yourself xx
Thank you so so much for sharing your experiences publicly. I have a history of bacterial meningitis and petit mal epileptic seizures as a child. I got off my meds at 13 year old. I thought I was done but nope …. 28 years old I started to have non epileptic seizures. 75% statistically of the sufferers are women. When I was first diagnosed it started w tremors, muscle spasms, the whole left side of my body went numb, migraines daily for 6 months and I was having 30 to 50 seizures a day. My triggers are lack of sleep, dramatic life changes, relationships that are stressful, migraines are always a precursor for me as well so if I ever have a migraine I pop some meds really quick. I try to keep a low stress lifestyle. I do meditations on a regular basis and I work out because that helps my stress a lot. I was diagnosed at 28 years old n I am now 49. I’m setting goals for myself this year to take care of my body and mind. I have never done CBT therapy so I am going to try that. I don’t take meds for the NEAD. I just try to take breaks when needed and if someone is stressing me out I take a break from them too. My main thing I deal w is the spasms and tremors which are actually a lot of times worse for me than the seizures. They mimic my epileptic petit mal seizures so I can have them and no one knows. Thanks again for sharing!!!!! Much love to you
Similar experience, except with vertigo and am so happy to find your video. (my first one had seizure like symptoms). I haven't found anything on Conversion disorder. I was told the vertigo is in the panic attack realm.
NES has been a huge concern of mine. Have been dx'd with epilepsy for years! Looong story short...I DO NOT think so. Based on my triggers, and eeg's for years, and a neurologist refusing to even explain, explore, the possibility of NES. I am on my on to learn control and learn. You are the best. Your videos are absolutely invaluable. So clear, so informative. I am not taking as " medical advice" as you stated but must say, I now have your support! Along with your many followers. Things are making sense. One last question, what kind of Dr do I visit, do I see ? For certain dx ? Or will just take care of self. Thanks again! 🌷
I have similar triggers but I would add getting over heated. My breathing drops to do shallow my body turns to ice. I have learned to try and cover up when I know it's coming so there is some form of heat for my body. Stress is a huge factor and the smallest thing at this point can bring it on. I wish everyone the best who has this because it can be debilitating.
Thanks for sharing...it's really hard I have tbi and ptsd now I'm having seizures for 4 months they can be annoying the only way so far to put out this fire is with a seizure pill puts me to sleep for 3 hrs waste my whole day...bcuzz mine are traumatic seizures from an accident I can not hear a bum bum like drums bcuz it stars right there didn't know until one day at church they were playing a song and in my mind I saw the noise those drums in the music were a perfect match to the sound of my accident and that set me off so bad I had to be taking out of church in a wheel chair well Today iis the 4th of July we'll see How I do with these bum bum I feel so bad for soldiers with PTSD..Lord be with our soldiers😢
I'm a coffeeholic, I've drank coffee obsessively since the age of 5 now until 22. I never had epilepsy in my life. About 6-8 months ago I developed a benzo addiction and now i experience these aura feelings like deja vu and warning signs. Sometimes I think it's a panic attack but really I get scared it's some small form of a seizure. I've never had these feelings ever before i started taking benzos.
I studied chemical dependency in college. Heroin gets the bad rep for being difficult to come off of, but in real life, alcohol and benzodiazepines (which are chemically similar) are the most DANGEROUS to come off of. Stopping benzos directly causes seizures. I use them for my severe anxiety, and the only seizure I had was when I had to stop them abruptly because I lost access to my bottle. Since you say you have an addiction, guessing you are using them at higher doses than what would be prescribed therapeutically. Zero judgement here just genuine concern for your safety. Benzodiazepine withdrawal directly causes seizures and is very dangerous. They told us in school, be ready to have clients who come off benzos or alcohol cold turkey and flop down in front of you having a seizure in your office. You need to slowly, and I mean very slowly, taper off of them under close medical supervision. Even then, people taking them therapeutically are sometimes never able to stop them completely, myself included. I can't tolerate the withdrawal symptoms and rebounding anxiety. Please stay safe and see a qualified doctor. Run from doctors who say you can just stop them without tapering. Sometimes it takes years. They will not be mad at you if they know what they're doing. It's one of the most dangerous drugs to stop. They told us heroin addicts coming off will want to die but coming off benzos too fast can actually kill you. My friend now has permanent brain damage and gets seizures from trying to stop klonopin on her own.
I was diagnosed at the end of 2019, but I was having symptoms before that and had no idea what was going on. It was when I was taken to the hospital that the doctor was like, you are having absent seizures. I looked at him like what? I had no clue those were even a thing. I was then referred to my neuro who did a bunch of different tests and concluded I had PNES. I never heard of this condition, so it is nice knowing there are other people with it too.
I'm wondering if I have non epileptic seizures because I had my first seizure when I was 17 years old. When my menstrual started. I have tried every type of seizures medicine and none of them has helped me. I also had a vel nerve stimlator and that didn't help me. I wonder if my hormones have been a cause for my seizures. I am 56 years old now. But I wonder if my hormones might be a resaon I still my seizures. Because my menstrual has stopped. And I have not had gone thru mentapose. I wonder if that is a reason to. And I stress all the time about when or if I will have a seizure.
I just had 4 seizures in a row. Nothing showed up on the eeg I had no brain tumor. But my 1st one was about 10 yrs ago. I believe mine are caused by no sleep and stress that I can't control. I didn't understand that I had a warning system until this past time I told someone that I was feeling weird and I had a seizure before but I am warned I'm happy I do get a warning and this time has wiped me out mentally and physically then I started stuttering for about 2 weeks that's a new thing. I believe I just had another one I'm in bed but yes I'm aware of the facial thing and I just stare .but the past seizures I went completely out and don't remember. Thank you very much I'm glad I'm not crazy
Im not sure if I have PNES but it's 100% not epilepsy as I had a friend who was. I dont know how to describe it, but I will be doing my day and suddenly I'll be thinking "what does that seizure feeling feel like again?" And it comes on 😶 instant sweating, body heat, dizziness, feeling like im gonna throw up. You said hormones and that klmakes so much sense, because I still have period irregularity from the pill and I only got seizures once I got off now that I think about it... another thing is that when I dream my brain gets very stressed which could be another one, so I normally seizure and when I finally wake up, I can feel the seizure feeling that I can purposefully bring on (idk how anyone explain this? People have seen it come on and they cannot explain it they're all baffled) and all I can remember is the FEELING of a dream or a memory attached to that feeling while seizures happen and when I wake up it's like it's pushing itself into the deepest parts of my mind slowly as if the feeling of the memory and feeling I can bring on is attached/caused by the memory .. and I spend a whole dissociative day trying to grab a memory back with imaginative hands in my head (wish it worked that way) and the feeling disappears and so does the "almost" feeling of me reaching it remember. Every single time I seizure it feels like something my subconscious tries keeping away from me, and if I'm almost able to reach it the feeling comes on and I wanna throw up. I can't wait to see a doctor lmao
In 1985, I had a gran mal seizure that lasted 15 hours. I was 15 years old. It couldn’t be stopped so I was put into a coma. The doctors didn’t know when or if I would come out of it. I was in intensive care for 2 weeks and in the hospital for 2months. I had the same disabilities of someone with a head injury - short term memory, confusion, etc. I’ve had petit mal seizures since even though I take a lot of medications. I don’t go unconscious but I feel them at times in my brain, and I don’t have convulsions. This past year I started having non-epileptic seizures. I will have severe convulsions but no activity in my head. They’re usually happening at night when I am at people gatherings. They last 15 minutes to 30 minutes. I believe Covid has caused these because we were so secluded from people for a long time. Gatherings are causing stress because of so much info is being put in my head at once; several conversations at the same time, many visional changes, etc. I am very blessed with a caring family and caring friends; I am mostly blessed with my Heavenly Father who loves me and helps me all the time.
I think i have this, I've been extremely stressed lately, and I do have ptsd and I realised over the past few weeks when i got triggers my eyes would lose control. but last night was very hard for me mentally and i ended up having two seizures and one this morning it started with the uncontrollable eye movements and facial tension then my head went crazy and my body too. i get so tired after the seizures and my eyes hurt so bad because of the way they were moving. ive an appointment today with the doctor but i just don't know what to think about this.
I haven't firmly been diagnosed with these buy I have been told I have trauma related seisures. They seem to be very similar so far in my research. I've gone to the docs I've done all their tests they say I'm healthier then most ppl. It's conflicting. But my triggers are similar to yours Stress, caffine, sugar, not eating well, lack of water, hormone changes, and heat It's all really hard to manage but I'm learning as time goes on. Thankfully. Thanks for the videos and the info.
I’m just learning. I had my first and only (I hope) seizure last week. I have a dissociative disorder and had a new alter react to my husband being in the same room. Her terror threw us into seizure for close to an hour. I was terrified.
These are all “triggers” or things that can cause seizures in epilepsy. The warning is an aura… it’s also a seizure and can come in many different ways depending on the part of the brain the seizure occurs in and can actually happen days before. From what you have described, I’m not certain that you don’t have epilepsy. There’s multiple types of epileptic seizures that manifest differently. Are you positive it’s non epileptic? I guess I would have to understand what happened in the epilepsy study. I believe that focal seizures can sometimes not show eeg results. They were not able to induce a seizure in my study but they said that I had epileptic brain wave activity… I don’t know what that means though
I had my very first seizure which lasted 5 minutes on 5th November 22 and been in hospital most the weekend. All tests have come back normal but I am being referred to a seizure clinic, however I do feel mine are PNES as I’m under such a high level of stress and anxiety. I’m very emotional as it’s scary as mine have been very frequent since the 5th having around 6/7 seizures ranging anywhere between 1-3 minutes a day. I too also feel them coming on as I’ve recognised a pattern rather quickly. I am 28 year old and lost so I am so glad I have come across your video to help give me some insight into this. The not knowing as to why these are happening don’t help with the stress of it all. Will I have this forever, can I manage it, what are my triggers and will I be able to ease them. I feel I am at the start of a very long journey.
Wow it was like you were talking about me i too have PNES anxiety, lack of sleep,chronic neck and back pain,stress, going thru change so hot flashes, and idk if this is like it for anyone else but being overweight and having big boobs seems to make sleep a hard thing to do. Love my coke and mountain dew. Sugar and caffeine i love. Stress is something we all have. Thanks so much for sharing
1. anxiety 2. being sad for a long period of time, like 30 mins, I have depression so its common for me to feel mad or sad and that triggers me badly, 3. fast heart rate or low, 4. loud noises
Thank you so much for sharing....ever since I had covid in 2021 this has been happening to me on and off and I have been in and out hospital trying to figure it out. All test have been done and they say it's stress related....I strongly disagree. I will keep fighting I have changed my eating habits, walking with friends and now this has started back up. I will keep pushing
I am also suffering under pnes. It began when I was 16 (2 years ago) and I was 6 times in different hospitals because noone knew what I had. It was absolutly exhausting and one Doktor gave me meds for Epilepsie. After that I was not able to do anything and had even more problems. I was not able to go to school or to meet friends .After one hour I needed to Rest. But after my diagnose I learnd how to deal with it and also a Lot about my self. Now I can live with it. There are still ruff times but you learn to accept it.
Lucia thank you so much for sharing your story! So sorry to hear that the meds made it worse. It can be so frustrating at times especially in the beginning but I am glad to hear you are at a place of acceptance that helps alot🦋
I do think there is causation from an untreated TBI. The TBI caused anxiety and panic disorders. So the triggers are panic, anxiety attacks. Emotional Meltdowns, skipping meals, hangover, I had one with covid fever. So I’m working on all those triggers including changing my job and no drinking alcohol.
I began having what I called seizures after getting the covid antibody infusion, having covid pneumonia and taking Trelegy for it. 2 Neurologists said its not epilepsy, which i didn't think it was, but that it's stress related and sent me to a psychologist and they put me on zoloft. My PC diagnosed me with movement disorder and put me on a med for it. Neither have worked to do anything. I've not noticed anything in particular that trigger them. Sometimes I have them all day for days and other times I have gone for 2-3 months without having one.
I've been dealing with pseudo seizures for over 9 years and I still don't 100% know what my triggers are but I feel like the likelihood of myself having one does increase under the same things. Unfortunately I don't have insurance anymore but I also don't have my seizures as much as I used to but I still have them semi frequently
I am sorry to hear about the insurance Zane. But I am glad to hear that your seizures have been less frequent. I hope they get less and less. Thank you for sharing your experience.
my partners referral to neurologist for video EEG was rejected and referred onto a psychologist and she hasnt had any epilepsy tests. i believe it is psychological seizures. its so emotional to see her go through it
So sorry to hear about your partner Jason. It can be just as hard for those who love us to see us go through this. I'm sure she is grateful to have you by her side.
I had my first non epileptic seizure on 5 April as I was under a lot of stress and as I was gonna get up for college I had seizure and after that i fainted I did knew what is it. My family got really worried and they took me hospital where doctor ignored it and said this is bucz you woke up in hurry. After some time I Started having seizures but they were not so severe but in my periods I use to get severe seizure. Then I went to hospital and doctor diagnosed me with absence seizures but my EEG test report was clear. Then he said you have behavior issue and you should visit physiatrist. Then physiatrist referred me to psychologist. I took some sessions on 17 October I again got a severe seizure. After that seizure I fainted even after 2 days I am feeling headache. I don't know what to do with it. And how to cope up with my condition?
Thank you for your video I've now joined your chanel it's very difficult condition to manage I lots of other conditions that have come all with this condition sencery issues
Sending you compassion Helen! It is isn’t easy especially with other conditions as well. I encourage you to remember how strong you are because of all you deal with. Be patient with yourself and know your not alone!🦋
I am so alone ;-( diagnosed a week ago after almost 6 months. My family has been my biggest struggle. Triggers is stress, anxiety, blood sugar. Do you ever recover from this?
Hi Monique I'm so sorry to hear you have been diagnosed. Thank you for sharing your triggers. I have not been cured but I have found ways to help me cope. ruclips.net/user/shortszSn-Cq3M_6Q ruclips.net/video/Ec-ys-TMXH8/видео.html Know you are not alone!
This may not sound sincere but me and my grandson were talking about seizures today. Sorry you are experiencing them but thank you for sharing your story Nina.
I have mine whenever I feel stressed, overly anxious and when I have a lot in a week I become depressed for a few days. The day or two after I have my non epileptic seizures I feel very exhausted almost fatigued wanting to sleep a lot. It sucks when I have three or four in a day at times then it slowly builds up to 5 non epileptic seizures a week, to 6, 7, 8 a week then by the end of the week I feel exhausted and mentally burnt out but I try to push myself and go through my day as best I can.❤
I don't consider myself to have PNES although I think I've had a couple of psychogenic seizures in my life. I also have PTSD though so the couple of episodes I've had make sense to the circumstances. One of my PTSD causes was the 1991 Gulf War. (I was in the military and did clean up after the war.) I clearly have exaggerated startle response from loud noises. And during a period of life when I was suicidal; I had uncontrolled tremors too. I was fully conscious of what was happening, but I'd shake real bad. Like the footage of WWI vets in psych hospitals that have "shell shock". I've come to the conclusion that "battle fatigue" manifestations are a form of psychogenic seizure. The other times I've had them was from car accidents. I was in a really bad car accident in 2010. Spent a month in the hospital and it was another year of rehab after. (Multiple broken bones and injuries in my legs, a TBI and lost one eye.) So now, a trigger for me is accidents I've had from bad weather where I've gone off the road and smacked up the car a bit. Accidents that are a bit "bigger" than the average "fender bender". I haven't been hurt in any of these subsequent accidents; but the two times that has happened in the past 10 years; did bring on the tremors. So though I don't consider myself to have PNES; I think I know what a psychogenic seizure feels like. For the poster of this video and all those in the comments too: may you all find help and healing on your recovery journeys. Peace!
My triggers are stress anxiety (includes being mad or upset) heat being tired and sometimes I have then when I'm sleeping idk if maybe it's because I'm having a bad dream or went to bed stressed or something. I can't take certain medicines pain and hormonal. And not all of my seizures look the same. I can have a simple staring off or I can pass out or I can go into a full blown seizure. I was diagnosed with pnes but then the last major seizure I had they diagnosed me with epilepsy. I can always feel when they come on.
My husband is a non epeliptic seizures, 😢caffeine, stress, emotional,stress and fatigue this will trigger him, for me as a wife I wanted to know how to calm myself too everytime he has a seizures, maybe you can create a content on how to overcome fear on the person who be with in the person with seizures😢 and especially I'm a foreigner in his place and I need to learn the language in order for me to call a emergency😢
1) Stress 2) Caffeine 3) Sugar 4) Pain 5) Lack of sleep 6) Monthly cycle/hormones 7) Emotional stress
Temperature change.
I’m currently in the hospital now and was just diagnosed with PNES . my mom sent me this video and this has made me feel not alone
I am right there with you, newly diagnosed April 14 this year. You are not alone.
I have pnes and gran mal seizures
Im sorry you have to go through this, but it's many of us who are new to this. You are not alone
I know you comment is a year old but it's relatable to me currently. I had a focal seizure, never had heard of it until my doctor told me about it.
stress, temperature change, and physical pain are my biggest triggers for my psychogenic seizures.
I want to thank you all who have taken the time to share your story with me and others and having the courage to ask questions. I have not been able to respond to each comment but please know how much I appreciate you all for creating a community and us knowing we are not alone! I have an update video coming soon. Until then stay strong 🦋
I have PNES . My triggers are stress or anxiety and also heat. Also I noticed as well that when my cycle rules around I tend to have episodes as well.
Hi Mary thank you for sharing your triggers. Good point about the heat as a trigger. Remember you are strong for all you push through beautiful 🦋
Wow me too😢
I noticed it too it triggers when I have the heat on and seems to fade when I'm in a cooler setting.
I most probably have PNES as well and noticed that my triggers are: heat, stress, lack or not good quality sleep, and physical exhaustion.
Danggg me 2. I need electrolytes and i need eat better
I’m a 16 year old teenage boy. I had my first seizure 2 months ago and I fell into a pond. I had my second in early October. According to the doctors, they weren’t the worst seizures in the world. I had a 24 hour EEG and nothing showed up. They did a brain test and nothing. The doctors are frustarated because I seem like a perfectly healthy teenage boy. I had no symptoms for the first one but before the second, I felt sick and extremely hot. Then I ran and once I stopped I passed out. It’s really sad because all the other doctors think something different causes it. It’s not epilepsy. I hope it’s hormones but we don’t know yet. Good thing is that they don’t think it’s the worst thing in the world and I can function normally. Just hoping right now and it’s honestly scary, especially for a younger person. Just thought I’d mention it. Thanks for the video. I hope I find out my things soon. God bless you!
I appreciate you sharing your story!! You are not alone my first one happened when I was 18 so I can sympathize with the struggle of being young with this condition. I’m so sorry it’s happening to you and it can be frustrating when tests are not conclusive. It is comforting to know it’s not the worst but that doesn’t make it easier to deal with especially when it comes on unexpectedly. Being patient with yourself and listening to your body, treating yourself compassionately is so important! Remember your strength for pushing through at such a young age with what you go through 🦋
Thank you for your comment my son of 17 also have this seizures and its very frustrating because the drs keep telling me its not epilepsy.Reading your comment brings is a bit of a comfort
I was also 16 when I had my first seizure
It was very hard
I am currently in hospital with my daughter who is 16 and having these kind of seizures 😢 Thank you for sharing your stories as it is helping me right now to understand how I am going to help her ❤️
Please continue Looking into Food Sensitivity and vitamin and mineral imbalances specific to you.
❇️Matthew 17:14-21
14 And when they were come to the multitude, there came to him a certain man, kneeling down to him, and saying,
15 Lord, have mercy on my son: for he is lunatick, and sore vexed: for ofttimes he falleth into the fire, and oft into the water.
16 And I brought him to thy disciples, and they could not cure him.
17 Then Jesus answered and said, O faithless and perverse generation, how long shall I be with you? how long shall I suffer you? bring him hither to me.
18 And Jesus rebuked the devil; and he departed out of him: and the child was cured from that very hour.
19 Then came the disciples to Jesus apart, and said, Why could not we cast him out?
20 And Jesus said unto them, Because of your unbelief: for verily I say unto you, If ye have faith as a grain of mustard seed, ye shall say unto this mountain, Remove hence to yonder place; and it shall remove; and nothing shall be impossible unto you.
⚠️🚩❇️21 Howbeit this kind goeth not out but by prayer and ❇️fasting.❇️
Note: Fasting is eliminating and replacing something within the patient’s diet.
What May be a health food for many May be severely chemically and neurologically Toxic to another. 🙏🏽
My daughter was diagnosed with conversion disorder/ FND a few months ago. She has these siezues where she passes out and her eyes roll back.
It was interesting to watch your video she has similar triggers that I noticed. Sugar, bright lights, temperature changes, crowds, school, menstral cycle. Recently we have started an AIP diet , neurofeedback. And taking fish oil, tumeric, magnesium, B8 ,ashwagandha. She has improved so much. There are studies that show increased CRP/ inflammation levels in a high percentage of patients which prompted me to try these supplements and diet. May be worth a try.
Please make sure that her sugar levels are ok! I had that type of seizure due to low blood sugar!
Thank you so much for sharing this! I was recently diagnosed with epilepsy and PNES and the lack of information on these types of seizures and what causes them is incredible. Mine is caused by PTSD and it caused loss of body functions (walking, talking, etc). It takes such a toll on on your body and mental health. I wish the best on your recovery because I understand your pain! Health and peace 💙
Thank you Jessica for taking the time to share your story and give me encouragement! It is definitely draining and know you’re not alone!
Here’s a video I did to encourage us seizure warriors ruclips.net/user/shortszSn-Cq3M_6Q?feature=share
Thank you so so much for sharing. I am the mum of the little girl in the profile picture. For the last 2 months I have been having tonic spasms on my left side. I'm currently waiting for neurology to get back to me with some test results. I was feeling so alone and that others don't understand what I'm going through. Your sharing reminds me that I'm not alone. My triggers can be laughing at a joke, stress, excitement, tiredness, and picking up heavier items with my left hand. Also standing up after an extended period of sitting. I hope that sharing this will help someone else feel that they're not alone. X
Josie I am so glad you know you are not alone. I am so sorry to hear about your tonic spasms. I hope the neurology test give some insight. Thank you for sharing your triggers as well so that others who read this know they aren't alone. Remember you are strong for all you push through🦋
You sound just like another creator on RUclips who brings awareness about scammers! Ty for sharing.🌷
I have been searching for PNES videos and finally ran across your video. My son is 14 and he started having tick episodes in the beginning since summer 2021. About a month ago he had his first seizure. Yesterday he had another one but this time we didn’t get much warning. Very scary situation for our family. Thank you for posting this video. He did go to bed late, he had a soda and one of those giant popsicles I found at the grocery store. I’m not saying that’s what caused it but watching your video made me think about things he had and he had not had them for some time. I will definitely journal his intake from now on. Thank you so much, we will beat this and so will you.
Hi Sephia I'm so sorry to hear about your son that must be hard for your to see. It is for my family. You're right that it may not have caused it but could be a trigger. Journaling will help you so much. You're a great mom for doing what you do. Thank you for watching and taking the time to share your story. Sending you compassion. Keep me posted if you can or you can email me at nina@naturallygraysful.com
Hey my son was 14 when he got his frist episode but he had a brain tumor and he is 19 yrs. Old now and you would never know if I didn't tell you. He was diagnosed with PNES after his surgery. I just want to encourage you that there is light at the end of the tunnel. I don't know your believes but I know a lot of friends and faith but my son to the point where he is now he's doing everything the doctor said that he would not do running jumping skipping hopping talking graduated from high school driver's license drives independent life to God be The Glory he is truly a walking miracle so I say again be encouraged mom you are doing a good job by monitoring and journaling everything that he does I had to shut my life completely off and just care for my son because it walked the core of my foundation in my whole house was in such shock so you keep taking him to doctors and journaling even videotaping him do whatever you have to do for your baby you guys will get through this.
My son hasn't had a episode in about 2 years maybe three and has been off medication for about 2 years he does everything natural you change his diet and he exercise and he's 19.
Anything that spikes the nervous system pushes seizures out. Got to keep your body grounded. I can’t do black tea, coffee, sugar at items at all anymore. I don’t like the way it makes me feel. Stress triggers me, being sleepy, smells, being overly hot, bright lights, loud noises, the moon, weather, loud people, crowds, conflict and especially moods…depression and anxiety. Ugh pnes is so very hard.
When I feel my seizures come on my face goes numb and I get a sense of panic. I try and make it to my bedroom and lay on my size and try to force myself to go go sleep, trying to shut down the machine. I’ve been in therapy for 3 1/2 yrs. I take herbal supplements that have helped a lot.
I am so sorry you're going through this. This comment was so helpful. Please what herbal supplements have been helping you? Worth giving em a shot
This is me
1. Stress. 2. Heat. 3. Anxiety. 4. Waiting in line
Thank you for sharing.🦋
Oh my! I didn't know this could be a trigger! I have a seizure every single time I go to the pharmacy to get my meds and there is always a line. It's really the only place I wait in line. I wasn't sure why it was happening. I wonder if this is why?
My triggers to PNES are definitely stress, along with waiting in line or standing on my feet for extended periods of time, I'm certain diet plays a major role (Caffeine intake). Lack of sleep and I'm sure I'm missing many or triggers. These seizures only started 3 years ago and of which I've had approximately 6 or 7.
Thank you for sharing.
I was diagnosed with FND in Nov 2020.
My triggers are stress, anxiety, lack of sleep, heat, fast heart rate, getting up too quickly, exercise, any changes in medications, viruses or infections.
I tried to go grocery shopping on Saturday, I had 3 seizures (Non-Epileptic attacks) in the shop alone. 11 in total that day!. Luckily I wasn't on my own.
My NEA's only started a month ago. Saturday was the first time I had ever had any of this type whilst shopping. Previously I was having ones that looked like absent seizures. I think i scared everyone in the shop as well as myself!!
So sorry to hear about the seizures happening while you shop. Thank you for sharing your story and please know you are not alone Lesley. I also have been experiencing more absent seizures as of late.
I hope it's ok that I pray for you! I'm so sorry this is happening to everyone here
It’s great to hear another person’s perspective and experience. I resonate with all these triggers, have yet to really brave the caffeine thing but recently cut way back and have seen a huge reduction of symptoms. Some triggers for me have been really weird, like the light flickering through trees while in public transit 100% off the time puts me into a trance and seizures. Almost like my Inner world and outer are experiencing very different perceptual modalities. My vision will often switch rapidly from local ( pointed object perception) to global ( more soft focused peripheral vision, the patterns not so much the objects the light hits) it can even be quite pleasurable if i can manage not to judge myself or be too self conscious. Anything trauma based that would create cognitive dissonance or like a reality I’m not ready to face (denial) will do it like clockwork. Also this weird compound seizure state like sexual intimacy compounded with deep embarrassment about the seizures, judgement of self, etc, etc. Anyways, thanks for the video! ❤️
Thank you so much for sharing your story! I resonate with your triggers. You definitely are not alone and by you sharing someone else who reads this will feel the same way! Self judgement is huge that is something that I am still working through. Sending you compassion and if no one has told you yet this week I’m proud of you for doing best you can with what you have🦋😌
For me triggers are 1. Lack of sleep 2. Stress from pain 3. Stress mentally 4. Bright flashing/sparkling lights.
I have PCOS so I have an IUD. My cycles stopped to that doesn't trigger any for me. I never loose consciousness. It doesn't affect my lower half as much as the top.
I’m am a non epileptic. Mine is caused by extreme pain. I usually know when my finger and toes start to cramp really bad. Also my blood pressure drops really low. I haven’t had one this year so far. Praise the Lord.
Hi Kathy thanks so much for sharing something else we have in common. I hear you about the pain as a trigger, did not think about low blood pressure before. I am so happy to hear you have not had one yet this year that is something to be thankful for!🦋
Thank you Jesus..
My son 24 yr old has these seizures as well, non epileptic. We have discovered how very spiritual they are. We were NOT Christians when they began and have found Christ because of them. But it's interesting because his align with MY cycle. Doesn't make sense yet they align. Thank you both for sharing!
Triggers that I know of thus far are storms, like thunder, lightening and rain storms. Lack of sleep, low pulse rate and high pulse rate. It started with him just passing out. Actually all his beginning symptoms are vagus nerve responses. First he had hiccups for 2 weeks with no stopping, then didn't sleep for 2-3 months straight, then came over salivation of his mouth. Watering so hard it would pour from his mouth. Then came nausea. Then he began vomiting every single day. he vomited 29times a day for over a year before the passing out started. by then we were a year and a half in. I really though he was having seizures but the Dr.s said I was being dramatic. But then yep he began having huge grand mal seizures. Now we are almost 5 years in with no answers. The single biggest trigger appears to be spiritually caused.
@@notonau yes!!!! I have always been a very spiritual person. I also can speak in the spirit. Which is not uncommon in the Penecostal religion. However, once I started to have my seizures. My blood pressure would drop so low and my heart rate would go into heart attack mode. I have had to be rused to the hospital numerous times.
While this was happening I realized ( and was told) I was yelling out loud... but the yelling was in prayer!
( what some call tongues) IT has taken me a long time to control it but now I know. When I feel one coming on, just get comfortable, stay calm, keep God close and remember.. You're safe and it all pass😁
I no longer yell but I do sometimes mumble.. I believe it's because my mouth will not open. Or my tongue will hang out😔
But God is good and will always protect us!!
Take care and God bless😘
Stress is my trigger or getting very upset. My prayers are with you, and thank you for sharing your experience ❤❤
I was misdiagnosed as having PNES until a sighted person saw them and could tell my neurologist. The doctors at my school town just brushed it off. When I got to my hometown my neurologist was like, nope. It’s epilepsy. I don’t have triggers except maybe lack of sleep. I have warnings beg a tonic clonic seizures, it feels like the feeling when you are on an elevator and you get to your floor and it goes up a wee bit and then back down. That’s my warning to get the frick on the ground quick. And then I do the stiff and shaky shaky. It’s is controlled by my meds, the smaller ones aren’t though but it’s the bad ones that are more dangerous for me.
Yeaah. Listening to this OP's triggers, they all sound like epilepsy triggers tbh. I think she should get a second opinion.
My neurologist tried to diagnose me as PNES despite being on medication for TWO years and it working fine. Then my medication became unavailable and the medications she switched me to I had reactions to. I guess it was easier to misdiagnose me and tell me I was no longer her problem then actually do her job.
We share symptoms for sure!!!! It’s comforting to have community with PNES!
Hormonal factors are the newest of the symptoms for me!
You have a beautiful heart and communicate with authenticity. 🙏
These are also big triggers for epileptic seizures as well! Thanks for sharing your experience. Carbs/sugar and overexertion/overheating are the biggest trigger for my focal aware seizures.
I had my pnes onset during my ba in college in ‘17. Some of My triggers are my toxic family being toxic, yelling, even people being rude to me, when other people are driving dangerous or aggressive while I’m driving, talking to people in public or on the phone, talking to anyone in a hospital, clinical setting. It was really scary getting diagnosed, there weren’t any youtube vids about it then. It’s nice to know we’re not alone, not that I’d ever wish this on someone. But it’s nice. Thank you for making and sharing. Love to everyone here.
1) Stress
2) Poor sleep
3) Sustained heat
4) Sudden temperature drops
5) various mild illnesses
I had open heart surgery at 27 years old in 2021. Started having seizures after I got out of the hospital l. At first was told they could detect “epileptic activity” and now today after I just had a 24 hour eeg, while experiencing multiple seizures and they didn’t detect anything. Makes me feel like a crazy person TBH
I was just Diagnosed. With PNES and felt like a crazy person because every time I went to the hospital they would think I was Lying about what I was telling them that I was shaking my feet and legs were uncontrollable and couldn't stop them.I couldn't walk. My speech was slurred. And I was born with Epileptic seizures but stopped having grandma seizures in my early Thirties... Had a stimulator put in me in 2019 When this stuff started happening.
I thought it was the stimulator. But then they diagnosed me with.PNES 🤦♀️Just this month. Thank you so much for sharing your story.
I look forward to watching more and learning about them.. God bless you.
Have PNES for 3 years now, we have lots of similar triggers. I also have bipolar 2 on top of this lol. PS. you're voice is rly calming , thanks
You’re most welcome Allie thanks for sharing your story beautiful 🦋 remember you’re not alone!
Thank you so much for this my sister had her first non-epileptic seizure and I need all the information I can find this is all so new and she seems like a different person now
I have the same. Staring and crying. Today. Walking is also difficult today. Thanks for your video
Thank you for watching Cora and taking the time to share your experience 🦋
@Cora sending you kindness and blessings.🌱💜☮️
Stress and panic attacks are my triggers .
Thank you Thank you thank you. This video healed a piece of me, and how I live with my sezuieres. I am struggling with having constantly advocate for myself and this is exactly what I needed to hear. ❤
I truly appreciate your videos, you are describing exactly what triggers my seizures,, thank you and may God bless you
I get my seizures while I’m asleep - I have that electric shock in my brains and part of my body twitches . The neurologist couldn’t come up with a name and put me on CR500 and Epitec 50g which help with migraines as well. Alcohol made everything worse.I’m now on a strict paleo diet , little dairy,little fruit ,no caffeine, no processed foods, I only drink herbal teas and water. I took a 6 months sabbatical from work and the seizures stopped, I even went off the meds. I’m back at work and it has started with migraines and the seizures are back. So I also think stress has a lot to do with it and I also want to go back to therapy. I also take Ashwa- Gandha to keep me calm and normal vitamins. Lastly my last bloods indicate that the thyroid is a bit off , so you’re right about hormonal issues. So a healthy life style of the things you can control is important but I love it when you say ,be flexible to life’s unpredictable circumstances. So we need to also be open to other means for such unexpected changes in our lives like an open ended tool kit for these seizures. Blessings to everyone, you’re not alone 💐❤
You are not alone my dear, I also have electric shock in my brain and my doctor seems to doubt me when I told him.
I think I have this. I’ve started having them after dealing with chronic illness and pain. My MRIs and blood tests are all normal so I will bring this up with my doctor. Thank you for your video!
Hi! I have PNES as well, thank you for sharing your triggers :)
I’m 16, and my biggest trigger would be school and all of the overwhelming feelings that come with it, such as loud noises (I’m also noise sensitive so that was a problem before I was diagnosed), cramped spaces and the stress just in general of school. Another one of my triggers is change, so if I have a substitute teacher or we change teachers in a different year, my seizures will definitely turn up.
Thank you so much again! :D
Hi Glass Peregrine, I wonder do you have medication for the seizure? If you do, does it have any side effect by now you can see?
@@skadventureschool No, I don’t have any medication, unfortunately
Thank you for sharing this! Your triggers are very much the same as my migraine triggers but I watched this for my son who has started Non Epileptic Seizures in his sleep. He feels terrible for days after one and bites his tongue badly. He’s on medication but we need more information and help. Your video helped a lot!❤
I have wondered if I had episodes like this. Here has been my experience: vertigo, nausea, an exaggerated sense of smell or an offensive scent, déjà vu, and the feeling that I’m about to lose consciousness (although to my knowledge, I’ve never blacked out).
A few years ago I started having migraines and I began taking topamax as a preventative med; it also treats epilepsy. It could be coincidence but I stopped having those dizzy spells. Unfortunately, I still have the migraines; not much relieves them ☹️
Thanks so much for sharing your story!! Have you gone to a neurologist? Keep a log of your symptoms as your doing. I’m sorry to hear about your migraines and sending you compassion cause it’s not easy but know you’re not alone!🦋
I get those symptoms as a warning that a migraine is coming, and a few days after. For me, most of my symptoms are not the actual headache. Sometimes it can last an entire week. Definitely check with a neurologist. Migraines and seizures have a lot of overlapping symptoms. Emgality (a once a month auto-injection in my stomach-not as bad as it sounds) was the best treatment so far for me.
Alcohol triggers my PNES. As a result since figuring this out I do not imbibe. I get a psychedelic light show pre seizures. My seizures have lasted as long as 3 days. I have had to be Life Flighted multiple times. After I was prescribed 500 mg Levetiracetam twice daily, I have not had any more seizures. As soon as I see the flickering lights begin, I take one and so far I have been seizure free.
Thank you for sharing this brave lady. I think you are amazing, this is so kind of you.
My sister is going through this your information is so very helpful thank you for sharing. God-bless you and keep you and make his face to shine upon you
I'm so glad this was helpful to you Cheryl. She is not alone and I will be doing more videos on it. ruclips.net/video/Ec-ys-TMXH8/видео.html
Thank you for your kind words☺️
Thank you so much. Yes I have non epileptic seizures. I’m going to start to follow you. I don’t know anyone who has this. Xxx
I'm not diagnosed yet. I experience what I think are seizures and sometimes afterwards I feel shaky and extra tired for days. I also feel tired and anxious before they happen.
Thank you for sharing. I have been diagnosed with epilepsy and PNES. Some how my muscles have been affected and doctors are trying pinpoint why this occurring. You are very inspirational that I'm not alone and there are others who can relate.
Hi Polly how have you been since you commented last. I hope you got some answers about your muscles. Makes sense how they are affected. I appreciate your kind words and support here’s a video I did with words of encouragement for us warriors
ruclips.net/user/shortszSn-Cq3M_6Q?feature=share
Oh my thank you for this it’s so close to my story I feel I can share with my closest friends I’m 70yrs my biggest hint is stouts smell will come out if no where besutiful smell I just love basking in it it’s thst good to me but dose bring in my seizure shortly after sll those things you mention I do not avoid but have cut back on long ago testing my self why
Thanks for enlightening us. You hang in there, keep us informed and continue to feel better
Thank you beautiful 🦋 I appreciate your kind words and support!
Thank you for sharing your story. I too have PNES and am feeling defeated and alone. My triggers seem to be pain, and PTSD.
I have just been diagnosed last week with these seizures, thank you for explaining your triggers. Not only are you informative but you are also very beautiful. sending healing hugs from Manchester England 🫂🫂🌈🌈💗💗 i have not figured out what triggers mine off yet. when i feel one coming on i just tell myself this is going to pass this is going to pass and eventually it does. Take care of yourself xx
Thank you so so much for sharing your experiences publicly. I have a history of bacterial meningitis and petit mal epileptic seizures as a child. I got off my meds at 13 year old. I thought I was done but nope …. 28 years old I started to have non epileptic seizures. 75% statistically of the sufferers are women. When I was first diagnosed it started w tremors, muscle spasms, the whole left side of my body went numb, migraines daily for 6 months and I was having 30 to 50 seizures a day. My triggers are lack of sleep, dramatic life changes, relationships that are stressful, migraines are always a precursor for me as well so if I ever have a migraine I pop some meds really quick. I try to keep a low stress lifestyle. I do meditations on a regular basis and I work out because that helps my stress a lot. I was diagnosed at 28 years old n I am now 49. I’m setting goals for myself this year to take care of my body and mind. I have never done CBT therapy so I am going to try that. I don’t take meds for the NEAD. I just try to take breaks when needed and if someone is stressing me out I take a break from them too. My main thing I deal w is the spasms and tremors which are actually a lot of times worse for me than the seizures. They mimic my epileptic petit mal seizures so I can have them and no one knows. Thanks again for sharing!!!!! Much love to you
Similar experience, except with vertigo and am so happy to find your video. (my first one had seizure like symptoms).
I haven't found anything on Conversion disorder. I was told the vertigo is in the panic attack realm.
Hi Tammy thanks so much for watching and sharing your story. You are not alone.🦋
NES has been a huge concern of mine. Have been dx'd with epilepsy for years! Looong story short...I DO NOT think so. Based on my triggers, and eeg's for years, and a neurologist refusing to even explain, explore, the possibility of NES. I am on my on to learn control and learn. You are the best. Your videos are absolutely invaluable. So clear, so informative. I am not taking as " medical advice" as you stated but must say, I now have your support! Along with your many followers. Things are making sense. One last question, what kind of Dr do I visit, do I see ? For certain dx ? Or will just take care of self. Thanks again! 🌷
GOD BLESS YOU AND YOUR FAMILY!
I have similar triggers but I would add getting over heated. My breathing drops to do shallow my body turns to ice. I have learned to try and cover up when I know it's coming so there is some form of heat for my body. Stress is a huge factor and the smallest thing at this point can bring it on. I wish everyone the best who has this because it can be debilitating.
Thanks for sharing...it's really hard I have tbi and ptsd now I'm having seizures for 4 months they can be annoying the only way so far to put out this fire is with a seizure pill puts me to sleep for 3 hrs waste my whole day...bcuzz mine are traumatic seizures from an accident I can not hear a bum bum like drums bcuz it stars right there didn't know until one day at church they were playing a song and in my mind I saw the noise those drums in the music were a perfect match to the sound of my accident and that set me off so bad I had to be taking out of church in a wheel chair well Today iis the 4th of July we'll see How I do with these bum bum I feel so bad for soldiers with PTSD..Lord be with our soldiers😢
I'm a coffeeholic, I've drank coffee obsessively since the age of 5 now until 22. I never had epilepsy in my life. About 6-8 months ago I developed a benzo addiction and now i experience these aura feelings like deja vu and warning signs. Sometimes I think it's a panic attack but really I get scared it's some small form of a seizure. I've never had these feelings ever before i started taking benzos.
I am sorry to hear about what you're experiencing. Tell your doctor about it so they can find out what is going on. Hope you find some answers.
I studied chemical dependency in college. Heroin gets the bad rep for being difficult to come off of, but in real life, alcohol and benzodiazepines (which are chemically similar) are the most DANGEROUS to come off of. Stopping benzos directly causes seizures. I use them for my severe anxiety, and the only seizure I had was when I had to stop them abruptly because I lost access to my bottle. Since you say you have an addiction, guessing you are using them at higher doses than what would be prescribed therapeutically. Zero judgement here just genuine concern for your safety. Benzodiazepine withdrawal directly causes seizures and is very dangerous. They told us in school, be ready to have clients who come off benzos or alcohol cold turkey and flop down in front of you having a seizure in your office. You need to slowly, and I mean very slowly, taper off of them under close medical supervision. Even then, people taking them therapeutically are sometimes never able to stop them completely, myself included. I can't tolerate the withdrawal symptoms and rebounding anxiety. Please stay safe and see a qualified doctor. Run from doctors who say you can just stop them without tapering. Sometimes it takes years. They will not be mad at you if they know what they're doing. It's one of the most dangerous drugs to stop. They told us heroin addicts coming off will want to die but coming off benzos too fast can actually kill you. My friend now has permanent brain damage and gets seizures from trying to stop klonopin on her own.
I was diagnosed at the end of 2019, but I was having symptoms before that and had no idea what was going on. It was when I was taken to the hospital that the doctor was like, you are having absent seizures. I looked at him like what? I had no clue those were even a thing. I was then referred to my neuro who did a bunch of different tests and concluded I had PNES. I never heard of this condition, so it is nice knowing there are other people with it too.
Thank you for Sharing. I just got diagnosed with this condition and your videos have helped me a lot!
I'm wondering if I have non epileptic seizures because I had my first seizure when I was 17 years old. When my menstrual started. I have tried every type of seizures medicine and none of them has helped me. I also had a vel nerve stimlator and that didn't help me. I wonder if my hormones have been a cause for my seizures. I am 56 years old now. But I wonder if my hormones might be a resaon I still my seizures. Because my menstrual has stopped. And I have not had gone thru mentapose. I wonder if that is a reason to. And I stress all the time about when or if I will have a seizure.
GOD BLESS YOU AND YOUR FAMILY
I just had 4 seizures in a row. Nothing showed up on the eeg I had no brain tumor. But my 1st one was about 10 yrs ago. I believe mine are caused by no sleep and stress that I can't control. I didn't understand that I had a warning system until this past time I told someone that I was feeling weird and I had a seizure before but I am warned I'm happy I do get a warning and this time has wiped me out mentally and physically then I started stuttering for about 2 weeks that's a new thing. I believe I just had another one I'm in bed but yes I'm aware of the facial thing and I just stare .but the past seizures I went completely out and don't remember. Thank you very much I'm glad I'm not crazy
Im not sure if I have PNES but it's 100% not epilepsy as I had a friend who was. I dont know how to describe it, but I will be doing my day and suddenly I'll be thinking "what does that seizure feeling feel like again?" And it comes on 😶 instant sweating, body heat, dizziness, feeling like im gonna throw up. You said hormones and that klmakes so much sense, because I still have period irregularity from the pill and I only got seizures once I got off now that I think about it... another thing is that when I dream my brain gets very stressed which could be another one, so I normally seizure and when I finally wake up, I can feel the seizure feeling that I can purposefully bring on (idk how anyone explain this? People have seen it come on and they cannot explain it they're all baffled) and all I can remember is the FEELING of a dream or a memory attached to that feeling while seizures happen and when I wake up it's like it's pushing itself into the deepest parts of my mind slowly as if the feeling of the memory and feeling I can bring on is attached/caused by the memory .. and I spend a whole dissociative day trying to grab a memory back with imaginative hands in my head (wish it worked that way) and the feeling disappears and so does the "almost" feeling of me reaching it remember. Every single time I seizure it feels like something my subconscious tries keeping away from me, and if I'm almost able to reach it the feeling comes on and I wanna throw up. I can't wait to see a doctor lmao
Hi Cathy this is a clear gloss so there is no color.
@@NaturallyGraysful I don't think this comment is meant for me?
In 1985, I had a gran mal seizure that lasted 15 hours. I was 15 years old. It couldn’t be stopped so I was put into a coma. The doctors didn’t know when or if I would come out of it. I was in intensive care for 2 weeks and in the hospital for 2months. I had the same disabilities of someone with a head injury - short term memory, confusion, etc. I’ve had petit mal seizures since even though I take a lot of medications. I don’t go unconscious but I feel them at times in my brain, and I don’t have convulsions. This past year I started having non-epileptic seizures. I will have severe convulsions but no activity in my head. They’re usually happening at night when I am at people gatherings. They last 15 minutes to 30 minutes. I believe Covid has caused these because we were so secluded from people for a long time. Gatherings are causing stress because of so much info is being put in my head at once; several conversations at the same time, many visional changes, etc. I am very blessed with a caring family and caring friends; I am mostly blessed with my Heavenly Father who loves me and helps me all the time.
My new doctor asked me what FND is. This to me is so much more preferable to being treated badly because they don’t understand.
Thank you for talking about this- I had only heard of epileptic seizures before watching the video😊
Thank you for taking the time to watch and comment.🦋
I have non epileptic seizures and it always happens when theres an air pressure change and i didnt sleep well
I hear voices that make me go crazy b4 having seizure ❤
I think i have this, I've been extremely stressed lately, and I do have ptsd and I realised over the past few weeks when i got triggers my eyes would lose control. but last night was very hard for me mentally and i ended up having two seizures and one this morning it started with the uncontrollable eye movements and facial tension then my head went crazy and my body too. i get so tired after the seizures and my eyes hurt so bad because of the way they were moving. ive an appointment today with the doctor but i just don't know what to think about this.
I haven't firmly been diagnosed with these buy I have been told I have trauma related seisures. They seem to be very similar so far in my research. I've gone to the docs I've done all their tests they say I'm healthier then most ppl. It's conflicting.
But my triggers are similar to yours
Stress, caffine, sugar, not eating well, lack of water, hormone changes, and heat
It's all really hard to manage but I'm learning as time goes on. Thankfully. Thanks for the videos and the info.
Thank You so much for sharing needed this
You're so welcome Eva! Thanks for watching🦋
I’m just learning. I had my first and only (I hope) seizure last week. I have a dissociative disorder and had a new alter react to my husband being in the same room. Her terror threw us into seizure for close to an hour. I was terrified.
Dang girl you sound exactly like me to a T!! Thank you for sharing this helps me quite a lot.
These are all “triggers” or things that can cause seizures in epilepsy. The warning is an aura… it’s also a seizure and can come in many different ways depending on the part of the brain the seizure occurs in and can actually happen days before. From what you have described, I’m not certain that you don’t have epilepsy. There’s multiple types of epileptic seizures that manifest differently. Are you positive it’s non epileptic? I guess I would have to understand what happened in the epilepsy study. I believe that focal seizures can sometimes not show eeg results. They were not able to induce a seizure in my study but they said that I had epileptic brain wave activity… I don’t know what that means though
I had my very first seizure which lasted 5 minutes on 5th November 22 and been in hospital most the weekend. All tests have come back normal but I am being referred to a seizure clinic, however I do feel mine are PNES as I’m under such a high level of stress and anxiety. I’m very emotional as it’s scary as mine have been very frequent since the 5th having around 6/7 seizures ranging anywhere between 1-3 minutes a day. I too also feel them coming on as I’ve recognised a pattern rather quickly. I am 28 year old and lost so I am so glad I have come across your video to help give me some insight into this. The not knowing as to why these are happening don’t help with the stress of it all. Will I have this forever, can I manage it, what are my triggers and will I be able to ease them. I feel I am at the start of a very long journey.
Thank you for sharing ❤
Wow it was like you were talking about me i too have PNES anxiety, lack of sleep,chronic neck and back pain,stress, going thru change so hot flashes, and idk if this is like it for anyone else but being overweight and having big boobs seems to make sleep a hard thing to do. Love my coke and mountain dew. Sugar and caffeine i love. Stress is something we all have. Thanks so much for sharing
1. anxiety 2. being sad for a long period of time, like 30 mins, I have depression so its common for me to feel mad or sad and that triggers me badly, 3. fast heart rate or low, 4. loud noises
Confronting whatever is bothering you is what you all need and that is what you all have in common!
Wow!!! Will pray!!
Thank you so much for sharing....ever since I had covid in 2021 this has been happening to me on and off and I have been in and out hospital trying to figure it out. All test have been done and they say it's stress related....I strongly disagree. I will keep fighting I have changed my eating habits, walking with friends and now this has started back up. I will keep pushing
I am also suffering under pnes. It began when I was 16 (2 years ago) and I was 6 times in different hospitals because noone knew what I had. It was absolutly exhausting and one Doktor gave me meds for Epilepsie. After that I was not able to do anything and had even more problems. I was not able to go to school or to meet friends .After one hour I needed to Rest. But after my diagnose I learnd how to deal with it and also a Lot about my self. Now I can live with it. There are still ruff times but you learn to accept it.
Lucia thank you so much for sharing your story! So sorry to hear that the meds made it worse. It can be so frustrating at times especially in the beginning but I am glad to hear you are at a place of acceptance that helps alot🦋
Thank you for sharing this. From the age of 9 I was diagnosed with epilepsy. This week I was told this is actually what is wrong.
Oh wow Megan thank you for sharing your story. How are you feeling? That must have been something to hear after so much time.
@@NaturallyGraysful yeah it was a shocker...I'm okay learning and relearning
I do think there is causation from an untreated TBI. The TBI caused anxiety and panic disorders. So the triggers are panic, anxiety attacks. Emotional
Meltdowns, skipping meals, hangover, I had one with covid fever. So I’m working on all those triggers including changing my job and no drinking alcohol.
I began having what I called seizures after getting the covid antibody infusion, having covid pneumonia and taking Trelegy for it. 2 Neurologists said its not epilepsy, which i didn't think it was, but that it's stress related and sent me to a psychologist and they put me on zoloft. My PC diagnosed me with movement disorder and put me on a med for it. Neither have worked to do anything. I've not noticed anything in particular that trigger them. Sometimes I have them all day for days and other times I have gone for 2-3 months without having one.
I've been dealing with pseudo seizures for over 9 years and I still don't 100% know what my triggers are but I feel like the likelihood of myself having one does increase under the same things. Unfortunately I don't have insurance anymore but I also don't have my seizures as much as I used to but I still have them semi frequently
I am sorry to hear about the insurance Zane. But I am glad to hear that your seizures have been less frequent. I hope they get less and less. Thank you for sharing your experience.
my partners referral to neurologist for video EEG was rejected and referred onto a psychologist and she hasnt had any epilepsy tests. i believe it is psychological seizures. its so emotional to see her go through it
So sorry to hear about your partner Jason. It can be just as hard for those who love us to see us go through this. I'm sure she is grateful to have you by her side.
My dr have never given my seizures any type of name I’ve had could of brain trauma events they don’t come often but when they do hit it hits hard
I had my first non epileptic seizure on 5 April as I was under a lot of stress and as I was gonna get up for college I had seizure and after that i fainted I did knew what is it. My family got really worried and they took me hospital where doctor ignored it and said this is bucz you woke up in hurry. After some time I Started having seizures but they were not so severe but in my periods I use to get severe seizure. Then I went to hospital and doctor diagnosed me with absence seizures but my EEG test report was clear. Then he said you have behavior issue and you should visit physiatrist. Then physiatrist referred me to psychologist. I took some sessions on 17 October I again got a severe seizure. After that seizure I fainted even after 2 days I am feeling headache. I don't know what to do with it. And how to cope up with my condition?
Thank you for your video I've now joined your chanel it's very difficult condition to manage I lots of other conditions that have come all with this condition sencery issues
Sending you compassion Helen! It is isn’t easy especially with other conditions as well. I encourage you to remember how strong you are because of all you deal with. Be patient with yourself and know your not alone!🦋
Yes I find sensory is s trigger for me too. Does anyone know why there isn't much information from a medical standpoint on this ?
Stress heat lack of sleep
I am so alone ;-( diagnosed a week ago after almost 6 months. My family has been my biggest struggle. Triggers is stress, anxiety, blood sugar.
Do you ever recover from this?
Hi Monique I'm so sorry to hear you have been diagnosed. Thank you for sharing your triggers. I have not been cured but I have found ways to help me cope.
ruclips.net/user/shortszSn-Cq3M_6Q
ruclips.net/video/Ec-ys-TMXH8/видео.html
Know you are not alone!
This may not sound sincere but me and my grandson were talking about seizures today. Sorry you are experiencing them but thank you for sharing your story Nina.
Not insincere at all Kim. Thank you so much for sharing and supporting me, I appreciate you🦋
I have mine whenever I feel stressed, overly anxious and when I have a lot in a week I become depressed for a few days.
The day or two after I have my non epileptic seizures I feel very exhausted almost fatigued wanting to sleep a lot.
It sucks when I have three or four in a day at times then it slowly builds up to 5 non epileptic seizures a week, to 6, 7, 8 a week then by the end of the week I feel exhausted and mentally burnt out but I try to push myself and go through my day as best I can.❤
What about headaches? Numbness?
This is also referred to as a spiritual awakening and cleansing, what do you think?
Thank you so much😭❤️
I don't consider myself to have PNES although I think I've had a couple of psychogenic seizures in my life. I also have PTSD though so the couple of episodes I've had make sense to the circumstances.
One of my PTSD causes was the 1991 Gulf War. (I was in the military and did clean up after the war.) I clearly have exaggerated startle response from loud noises. And during a period of life when I was suicidal; I had uncontrolled tremors too. I was fully conscious of what was happening, but I'd shake real bad. Like the footage of WWI vets in psych hospitals that have "shell shock". I've come to the conclusion that "battle fatigue" manifestations are a form of psychogenic seizure.
The other times I've had them was from car accidents. I was in a really bad car accident in 2010. Spent a month in the hospital and it was another year of rehab after. (Multiple broken bones and injuries in my legs, a TBI and lost one eye.) So now, a trigger for me is accidents I've had from bad weather where I've gone off the road and smacked up the car a bit. Accidents that are a bit "bigger" than the average "fender bender". I haven't been hurt in any of these subsequent accidents; but the two times that has happened in the past 10 years; did bring on the tremors.
So though I don't consider myself to have PNES; I think I know what a psychogenic seizure feels like.
For the poster of this video and all those in the comments too: may you all find help and healing on your recovery journeys.
Peace!
My triggers are stress anxiety (includes being mad or upset) heat being tired and sometimes I have then when I'm sleeping idk if maybe it's because I'm having a bad dream or went to bed stressed or something. I can't take certain medicines pain and hormonal. And not all of my seizures look the same. I can have a simple staring off or I can pass out or I can go into a full blown seizure. I was diagnosed with pnes but then the last major seizure I had they diagnosed me with epilepsy. I can always feel when they come on.
Should you get and bracelets
I have PNES as well my triggers are bright lights , loud noises, when i over think and I have really bad muscle spasms as well and that’ll trigger it
Thanks for sharing Mirrah! You're not alone! 🦋
Same triggers as me !
I had my Seizure Tumor surgically removed when I was 8 years old (22 years ago)
Mine are in my brain and barometric pressure affects them. They are continuous when the weather changes.
after looking at the comments it seems heat is a common trigger and I'm glad because I thought I was alone on that one
Hi Eva I love that everyone is sharing so that we know we aren't alone. Thanks for watching!
My husband is a non epeliptic seizures, 😢caffeine, stress, emotional,stress and fatigue this will trigger him, for me as a wife I wanted to know how to calm myself too everytime he has a seizures, maybe you can create a content on how to overcome fear on the person who be with in the person with seizures😢 and especially I'm a foreigner in his place and I need to learn the language in order for me to call a emergency😢