I was a care buddy for a girl with Autism for 11 years. I looked after her at school, during classes and things. You really get your eyes opened to their world. The girl I cared for was so incredibly smart but everyone ignored that and instead looked at her output reactions instead. Nobody saw her potential back then but now she's a cake designer and is able to produce the most amazing designs in icing. I'm so proud of her and I felt so privileged to be able to know her.
Sounds just like me lol, but instead of cakes, it's computers, I also have autism and my main focus where I get good at is, riding motorbikes and tech :P I would say this vid is a little over exaduated personally, but does give a view of what it can be like!
@@Bikertrons does she have a page or something? My daughter is autistic and actually wants to be a baker when she’s older it would be great to show her someone like her
I have Asperger's. I find coffee shops really difficult, even though I love coffee. This video is the most accurate portrayal of my sensory overload issues. I have always struggled to try and explain what it's like to people and failed. You have now done it for me. Thank you from the bottom of my heart x
I also have Asperger Syndrome, too, and I'm also very sensitive to sensory input. But I'm ok in coffee shops. I do ok in pretty much any kind of restaurant. When I was in mid elementary and early middle school, I preferred to sit in the back of the bus, but it wasn't for the same reasons most kids prefer the back (ok, it was for some of the same reasons, but not all). It was mainly because I COULD NOT STAND the noise from the engine at the front! I also liked the bumps (this is one of the reasons a lot of kids like the back seats on the school bus). A lot of kids prefer the back just so they can misbehave or talk about inappropriate stuff, but I was never really into doing stuff like that. As I got better with my sensory issues, and learned more ways to deal with them, I just started sitting wherever I could find a seat on the school bus. If the first seat I found was in the front, I would sit in the front. If the first seat I found was in the back, I would sit back there. If the first seat I found was more towards the middle, I would sit there. But when we went on a field trip, I would usually try to sit wherever my classmates were sitting, so I could feel like a part of the group. If they were all sitting in the back, I would try to sit near the back. If they were all sitting towards the front, I would try to sit there. If they were all sitting in the middle, I would try to get a seat toward the middle, too.
+Leanne Strong i get that sitting in a room filled of people it just sounds like a constant drone of murmurs. carly is really good looking and what she is doing is great i hope she goes far
So true! I can't stay in places like Wal-Mart for very long because I get them. I often have to wear earplugs too. I feel for Carly, since I'm autistic myself.
This is literally the exact same for me. I can't stand being around more then 5 people at a time, more and there is a possibility i may break down. The only thing that keeps me up through the day is knowing i'll get home, and finally be alone.
Had to come back and watch after all this years. Today my son age 13 nonverbal after having a very painful meltdown made me understand somehow that he wanted coffee too. I poured him some and told him to hold with both hands and he gently walked to the table with the biggest smile and teary eyes. He came back and hugged me so hard.
Please make more videos like these. Neurotypical parents have such a hard time understanding what life is like for their spectrum kids, and the kids have a hard time describing it in terms the parents can understand. I applaud your courage Carly-never never quit.
I wanted to cry watching this....for all the children with autism, including my 2 grandkids I see their frustrations. Carly, you are informing so many out there that you each have a voice that wants to be heard! Don't stop Carly! You are an amazing woman! 👏🏼👏🏼👏🏼
I always treat anybody with a disability just like I would any other person. Everyone tends to treat you like a baby and I don't think its fair. I always get mad when I see people treating the disabled kids in my grade like babies. I just talk to them like normal human beings instead of saying things like, "Hi there!! How are you today??" in a voice like you are talking to a fucking baby or a dog or something.
As someone with Autism, that hacks me off too. The fact that someone specifically talks to you in a different manner because of their false preconceptions about how you think. What's rather worrying is I see this behaviour across so called autism "experts" as well. That just goes to show you how poorly understood Autism is to the general population.
flames1000000 I can also assure you that almost every single autistic person I have ever met has been genuinely smarter than those people who talk to them like babies. Temple Grandin (I don't know if you know her but she's an extremely famous autistic woman) was actually my when I first heard about her. My mom showed me the film back in 2010 when I was maybe 10 I think and I desperately wanted to be as smart as her. I never understood why people treated them any different. I don't have autism but I do have ADHD (completely different), but nonetheless, the second my teachers found out, they began to treat me differently. Even with my 4.0 GPA, they wanted to put me in "Special Study" groups even though I didn't need them. I simply asked them to accommodate some of my needs, like I may take extra time on tests or whatever. But they still treated me like a five year old. I am in high school I made sure that freshman year, I would not tell faculty because I am tired of this "baby" shit.
+Linda Bauman Actually the way People talk to there dogs(especially the wealthy ones) is like this: Who's a cutie?Huh?WHO'S a little cutie?!? YOU are!!!Oh yes You ARE a little cutie You little cutie!!!
This is exactly what I see because of my autism. When it comes to public places like this, the noise and stuff is overwhelming and so it drives insane. Since I can talk, life is easier for me but it's still a challenge.
Yep I cried. This is awesome. Bringing awareness to not only autism but other mental disorders as well. Having bouts of severe anxiety I get moments where I am completely overloaded by, it seems, every single internal/external stimulus plus my thoughts and emotions go haywire. It's scary and while it's nowhere near as intense as an autistic episode I can understand and imagine how difficult it must be for those with this type of sensitivity. Keep pressing forward Carly! =)
It is great but too much of exposure of anything can be detrimental to a cause and make a mockery of it and others resentful like SJWs, feminist, fakers on Tumblr, special snowflakes, professional victims, politically correctards have done with everything under the sun. They have made people including myself an individual with Spina Bifida and LBKA skeptical of those online coming forward with real issues. Utterly sad, disgusting, and vile they are. Most with disabilities want to be seen as equals not above beneath or anything else and certainly not defined by our disability or coddled for it. It seems there is an entire generation budding that is thriving off that alone which is an utterly crippling mind set to have if truely "disabled" hopefully most of them are fakers and will grow up, seek professional psychological help or move on to the next trend.
+BlinkinFirefly It is what it feels like when you have GAD and/or suffer from panic attacks and nobody bothers to listen to you or you are young and have not developed the language skills to describe how you are feeling and to assert yourself. It is only because of on and off years of counselling and reading self help and psychology books I can put those words into feelings and come up with clever replies. Also sometimes because of the pitch and volume of my voice people cannot hear it or pretend not to hear it as my voice is too soft. It's like I speak a completely different dialect to them and they are only aware of the dialect they speak.
+BlinkinFirefly A poet, that lived in our town some 50 years ago had a severely autistic daughter. At those times, it was customary and even advised to put anyone abnormal into an isolated institution, so he was viewed as a weirdo for keeping her at home and trying to teach her. He just said he could see her mind and soul trapped in a body she can't control. He was SO right to never give her up!
I felt my heart beat out of my chest when I saw the girls come in. This is a perfect analogy of a sensory overload and an anxiety attack, it’s completely uncontrollable and it’s worse when those around you don’t understand. Thank you for this.
This video touches my heart. I am a mildly autistic person, and this is how I feel sometimes when too many people are around. This has opened so many eyes and there’s so much positive feedback on this vid, and it makes me so happy. Thank you for this, Carly, thank you so much!
thank you so much for speaking out. my sister has autism and it breaks my heart all the time because as much as I think I do, I have no idea what she thinks or feels. with your videos I can try to understand more, I know each and every person is different, but this video has been a huge insight. I cannot thank you enough for this. :-)
My twin sister also has autism. she had the same diagnosis. she's actually able to anything I'm capable of doing. Every autism diagnosis is different, but you can always help them get heard and feel better about themselves.
I am training to be a SPED teacher and when i got into the field; we learned everything in the books, the theories, the symptoms. Everything. For my training, I have worked with kids who were diagnosed with ASD and only now can I fully understand what they are going through when they experience sensory overload. This was very enlightening. and humbling too. Thank you.
I find this so incredibly moving. The pain of not being able to communicate what you want and needing the people who are closest to you to hear your voice. The overwhelm of all that sensory input flooding in with your emotional frustration of not being able to communicate to your family and friends that you want coffee and not hot chocolate. The most moving part being when you come out and state how you persevered through this pain and found a way for people to hear your voice. You are so strong, and I am so happy I came across this. Thank you for sharing your story. I teach children with autism, and this inspires me to continue to help them find their voice, and not give up trying. It also makes me so happy you found a way to communicate and express yourself. Thanks again.
Someone once told me that I was too empathetic. This video proved that person right. It hurts me to know just how autistic people have it in life. Wanting to think but everything around you is too much stimuli? Damn that must be really rough. I have never been an ass to someone with autism or any similar condition, but now I feel bad because I didn't take the extra steps or effort to actually help or assist them, as we all should because it's our duty to understand people like them.
+TerrifiedTam I don't think that there is any such thing as being too empathetic. And besides, a whole hell of a lot more empathy is exactly what this World needs according to My observations. But then of course My observations would differ from those that do not have Autism.
TerrifiedTam the other thing I hate is when neurotypicals accuse us of having no empathy bollocks we have an over abundance of it. We are generous, kind hearted sweet individuals who are super sensitive and empathetic
Living with autism and ADHD I totally understand this. Being in different places sometimes can give me severe anxiety/panic attacks. And just socially interacting with ppl can be a great struggle for me... I tend not to go to big conventions because of this thing I have and it is really pissing me off. Like really bad. Living with a neurological disorder I often have hard time communicating with people, it takes so much energy from me that I get real exhausted... I get really angry when no one understands my problems but as my psychologist said. '' no one can't see that the foot is broken without it's cast. Which basically means that it's hard for people to understand because my disability is invisible... So people think I'm straight up normal when that is not the case... I often think of how it would be better if I just could have a visible disability because then people would understand and don't have any expectations on me... But I mean, viable disabilities has its downsides too
+Aisha Sed As an adult Aspie I know exactly how you feel. It can be overwhelming and people don't really get why I look normal but get tweaked out by what they think shouldn't bother me.
+One piece queen I get that and I'm very happy that you commented saying that you feel the same, it is reliving that I'm not alone with this! I have talked to many people with lack of understanding of my situation, I tend to explain that I'm just normal with different personality traits such as shyness at an extreme level. Just because you are shy doesn't mean that you suffer from social anxiety, we all have our difficulties in life but it's not until they get extreme we need help. I also explain with difficulty with concentration, that all the input goes in with the same relevance, like I myself have to pick out the things that are relevant. I don't have a filter. People tend to get what I'm saying, and they are very accepting, but the lack of understanding is a problem. And how society has such high expectations on employees that it's really hard to get a job. School is unbearable sometimes and I'm constantly tired... If you want to talk, feel free to text me on kik: aaaishased
Alicia Claesson there are whole online communities of people like this the secret is to find them. 1 in every 68 individuals are on the spectrum and the ratio males to females is more like 1:1 so world wide there are millions of us
THIS YOUNG LADI GIVES ME SO MUCH HOPE FOR MY AUTISTIC DAUGHTER. SHE IS CONSIDERED HIGH FUNCTIONING AND VERBAL,BUT SHE HAS MANY BEHAVIORS. AND ONE DAY I HOPE SHE IS ABLE TO EXPRESS WHAT SHE WANTS THE WAY CARLY HAS.
Carly.... you have such a beautiful soul within... I hope your story can help other parents whose child suffered the same affliction - you have given them hope.
Carly, thank you for raising awareness of what it's like to have autism. I believe it will help a lot of people who are unable to communicate as well as you can.
I'm high functioning Autistic (Asperger Syndrome), and I do ok in restaurants and stores. I can even handle going to the mall for a couple of hours. When I was younger, however, I preferred the back seat on the school bus because I couldn't stand the noise from the engine at the front.
+Leanne Strong (High/low functioning labels are actually very harmful and damaging. I can't control you, but it would be much appreciated f you didn't use these terms. Thank you.)
+Ashton Theodore I'm sorry if I have hurt your (or anyone else's) feelings. But the reason why I use those terms is because I want people to understand that I have pretty normal verbal skills, and am able to do pretty much everything most people without disabilities can do. A lot of people who don't have disabilities think of people with Autism as being non-verbal, weird, either really smart or very low IQ, and not being able to do things most people without disabilities can do. I don' mean to hurt anybody's feelings or make anybody feel less than they really are. I think some people are just being a little too over sensitive. My comment was not intended to hurt anybody.
I have Aspergers too. I'm 13 and I can't articulate to others very well what I feel. I usually just keep my emotions to myself and when people are shouting I get scared so I put my hands over my ears and shut my eyes. Other people in my year just think I'm weird but I just get used to it
I have a 14 year old son on the spectrum...functioning labels are rather a moot point. Yes, he CAN talk but can't communicate effectively...people can't seem to distinguish the difference. There is far more to communication than the ability to speak. He requires constant verbal prompting to get through a day, to complete any given task...yet because he has the verbal ability to speak, he is considered high functioning?
Carly, I'm so glad I met you! What an amazing gift you are to the world. I wanted to say, too, that it's not just autistic people who have sensory issues. I have them too. Especially sound. So much that I wear ear plugs 24/7 and it mostly helps. I cannot imagine though how hard it has been for you to cope. I am SO glad that you found your voice. What a wonderful, magical gift you are.
This is a truly amazing young girl, who has overcome some very tough obstacles and found a way to be heard. For all of you that have the nerve to leave such rude and horrific comments, shame on you. What if this was your daughter, niece, or sister, would it be funny then? Better yet what if it was you, what if tomorrow on your way to work you get in a terrible accident that paralyzes you and destroys larynx and you can no longer speak. You have to live the rest of your life fully aware of everything around you but unable to communicate or express your emotions to anyone. I honestly fear for the future of our country with such a disgusting inhumane society. Maybe instead of spending hours of your day leaving genuinely hurtful comments to videos no one made you watch but you, for the sole purpose of being mean at the end, you should spend that time helping the less fortunate in your local community so that you can see that the people you look down upon and judge, are people born a different, it wasn't a choice. Try having some compassion in life, it will get you a lot further.
I just saw your story that was on 20/20 in a facebook post. My life has not been affected by autism, but I am very inspired by your story! I love it when good happens in the world! Thank you for sharing! Also, as a father, I admire yours. He is a great example of fatherhood! Would you please tell him for me? Thank You
This an incredible video that really shows someone what it is like to have the sensory issues that are a part of autism. My sensory issues aren't quite as intense as this, but I have my moments. Stay strong Carly. You are an inspiration.
Shame that those saying cruel things about individuals with autism. I wonder if any of you have a heart? And I also wonder if any of you heartless individuals have children of your own. Move to another video if you have nothing to say. Until it happens to your child ....folks like yourselves will always say such heartless comments. I thank God for my child regardless of his condition!
I have never been so appalled after reading some of the small minded comments that other people have left. I have a sister who is on the autistic spectrum, a son on the autistic spectrum and two of my closest friends with sons also on the autistic spectrum. All four children are completely different, they are all on different levels of the spectrum but the one thing that seems present with all of them is sensory overload. I think Carly is a fantastic young lady and I am so glad she has found her voice. This video is not for the biggoted small minded but a fantastic tool for others with autism. It lets them know that others feel the same as they do and that in fact these people are NORMAL!!
OH man Carly! How frustrating. All you want is blasted cup of coffee and everyone looks at you funny. I'd swipe that blasted hot chocolate off the table too. Thank you so much for sharing all of this, it helps to understand those who suffer with autism.
Carly, we can all learn from your story. Thank you for sharing this with the world. Much love from a mother of a 13 year old autistic girl who is the light of my life. You give me so much hope!
almost seems like they are permanently going through a bad psychedelic trip or something.. the way this vid seems to emphasize the internal anxiety and random focusing on external stimuli that such a state of mind would bring about..
Scarily accurate and explains how people misunderstanding wants and desires when us on the spectrum are adamant at what we want can cause us a lot of stress within, very well made video!
Thank you for being a voice for us! I've been trying to explain this to so many people for so many years! And yes, these are tears of joy! I can't thank you enough Carly, God bless!
I'm sitting at Starbucks and almost switched videos because I thought it was a commercial, but This video was done beautifully and poetically. I understood when the narrator said, "I want a coffee". I actually felt the frustration, and feeling of being trapped. Helplessness and despair can be overwhelming. I'm so glad you have a voice and can express yourself. So many people that lead "ordinary" lives and are considered successful don't even seem to have the ability to express themselves so well.
Damn... Autism seems as if someone's experiencing drug ODs, but this time it's permanent, and the person can't do anything. Holy fuck do I feel sympathy those sufferers :(
+Fatal_Taco Actually, it's not always like this. This was what we would experience in a crowded place, lots of noise, lots of different things going on, ect. But in a calm environment with some nice music going and a nice fidget in our hands, we can be very relaxed and calm! The thing with autism is we get very overstimulated easily. But replace those bad feelings with good sensory ones, and we're happy! Most people don't understand this, which is too bad.
Wow, you see that too?? I thought the same thing. That I have been on a 'binge' before where, toward the end of it, I had much trouble being in a public place because of soooo many voices and a lot of commotion. I was trying to take it all in and it made me feel like Dr. Charles Xavier with his device Cerebro (X-men)...and NO, this was NOT 'cool'. At all. I could hear everyone all at the same time which meant that I could hear NO ONE individually. I could not carry-on a one-on-one conversation, even with those closest to me (the ones that I loved so dearly). It was pretty horrible. I don't do drugs anymore and I feel fine now.
I experience that, too, the thing where you can't separate voices from one another. People accuse me of eavesdropping, but it's really because I can't not listen. If that makes sense.
Carly is truly one of the most beautiful and courageous people I've ever seen. I have been touched deeply by her story and it helps me understand what others like her are going through.
This is a really good representation of how a meltdown feels. Add to that bugs crawling on your neck and and a match held under your palms and that's how mine feel.
I have 2 with autism, my oldest, 15,, girl, high functioning, lots of sensory issues and can’t hold eye contact, my son, 11, non-verbal, ID, w a twin, neuro-typical sister. He doesn’t have a lot of sensory issues but he’s an angel, you can sense that he can look in your eyes and if you are a good or bad person. I read “Carly’s Voice” and “Why I Jump” and “ Josiahs’s Fire” a decade ago. Their experiences has taught me SO MUCH - mostly patience. Thank you for posting these videos. And now Rainn’s twin sister is learning so much about her brother and sister. ❤️
Carley you are a beautiful soul! Thank you for sharing your experience and giving us an understanding of autism from within. I am incredibly inspired by you and your light. Keep doing what you do cause your impact is greater than you realize. Like a ripple in the ocean that turns into a wave. 💗
what a break through!!! Imagine all that we will be able to learn from her, when banging her head and playing up, people just thought that she was acting up, but for her to tell it herself, and say it feels as if ants are crawling up her arms and being in pain, is such a big break through. THINK ABOUT ALL THE TIME WHEN KIDS LIKE HER WERE SUFFERING AND CARERS ASSUMED THEY WERE BEING A NUISANCE,,.......THEY UNDERSTAND EVERYTHING BUT ARE UNABLE TO COMMUNICATE BACK!................watching this has really made me feel emotional................love you carley XXXxxx
***** The point of having her hair and clothes messed up is to show that she had a real breakdown - you see her spilling the coffee, hearing lots of jumbled sounds - the mess at the end shows that she was physically flailing, screaming, hitting her hands because she looses control of her body when she has a breakdown. It's a fiction film based on reality and that art direction was done purposefully. When she's actually out in public or being filmed she looks just fine.
Thank You Carly, Awareness is the key to understanding.We have a 12 yr. old autistic son who is higher on the spectrum but, never the less, my wife and I had to be trained on things that we took for granted just so we could understand how to make it work for him. Now, we all do our daily routine without thinking about it much.Thanks again Carly, you're beautiful and always remember to Believe in Yourself! Now, I'm going to pop over to your website. :-)
Wow, this is pretty amazing... I have Asperger's Syndrome, and I experience sensory overload, and though it's not to this extent, it's pretty close. It's difficult to pay attention to what I'm supposed to pay attention to when everything seems to be yelling at me.
.....and in that moment...when all at once, he was confronted with the reality of her, there came the burgeoning of a tear ....But this was no tear of pity nor shame....for such things are ill-befitting and beneath a spirit such as hers .....it was simply a tear of sheer admiration and utter humility in the face of true strength....and true beauty....if such a thing or moment can be seen as "simple". He will never be the same. Thank you for that moment.
That was the shortest most interesting movie I ever watched in my life. Was biting my bottom lip so hard, I nearly swallowed it! :) Thanks for the inspiration Carly! and the cinematography of this piece blew my mind. So good!
Just over two minutes but these images and the message will be with me forever. Thank you Carly for finding a way to get your voice heard even a little bit, it speaks volumes. I'm trying to write a story about a young girl who has non-verbal autism and your story is helping to inspire me to find what I need to properly share her story. Thank you.
So few of us understand about being locked up inside one's own body. I am glad for this series of Carly's experiences. I know a little boy I now understand better. Thank you Carly and thank you Mr. Fleischmann for the opportunity you gave so I can be of assistance to Killian my 5 year old friend with a bent for science.
My brother has autism and will sometimes start yelling or become flustered or upset in restraunts or puiblic places in general. I've learned how to make him feel better, like stepping outside and going for a walk, or distracting him on a game on my phone. He is such a wonderful person, I swear he is actually an angel, and I feel so horrible that he has to go through things like this and go through life with this. Thank you Carly for this video, to help people understand how things like this work, only if it's just a fraction of what it really is like.
+Hieifireshadow We just keep running into each other on RUclips! 8D Super impressed with whoever thought of how to represent everything, a lot of times stuff like this isn't really creative, but yowzah-- love how all the colors are so wiped out like the light's eating away at everything.
Some days I go nonverbal. And the noises overwhelm me on those days the worst. Seeing someone feel the same pain, seeing correct interpretation, just made me bawl my eyes out just now. Thank you. I love you Carly, and your father. I love this.
I work in the field...residential now, but have also been an employment specialist/job coach, recreational specialist and personal care attendant. I want to thank you for your input, your strength in the storm. Thank you for educating so many.
+Evelyn Allen Yeah, that's what I figured, just not when I first asked. It's not the most common way games are played (not to say there aren't many played in chapters). And I think you can agree if you first hear 'chapter' then you'll think of a book. Sorry if I wasn't clear.
Thank you so much for sharing this with the world! I am a mother of a 3yr old boy with Autism... You are an inspiration & you open eyes & help us to better understand!! :)
Damn imagine that for 11 years... I would go absolutely insane without coffee. (Jk, this video really well made and Carly seems like a real trooper. Can't wait to see more interview video's on the other channel!)
mark jonkman coffee energises and actually relaxes me it’s wonderful to combat the horrendous anxiety. I’ve actually found that doing drama is actually the best way to improve your social and communication skills.
Carly, did you know you are beautiful? Just the way you are. You touch many hearts. You change people. You fight a battle most don't need to fight, you are a warrior fighting to shed light on a very misunderstood diagnosis. Thank you. Keep going forward.
Caity Cat i think you misunderstand whats being presented as literal experience. one doesnt zoom in to things, or experience slow motion. the video is trying to express the sensation that is felt when one becomes overwhelmed with a situation and one's mind overloads with stimuli. the mind races, the 'ADD' in full force, cycling through observable elements already pre-cached in the mind, new observations of developing realities, sounds and other medium that catches the senses, etc., and all thoughts that are involved with this mass mixture of overwhelming experience. a video cannot truly convey the experience that one has in such a situation, with the kind of mind Carly, or anyone similar, has. when you can never communicate what you are thinking or feeling, life is very frustrating and overwhelming. you are trapped within your own mind.
Heulwen Sault-Jones How about you apparently allistic people quit talking down to me? My first comment wasn't fully serious and I don't even know why exactly I'm being targeted over the tons of other people saying saying this looks like someone on drugs, including the other autie I was speaking to. I know how severe sensory processing issues can be and on top of it I have misophonia too, so if you lot would kindly screw off with your "education" that'd be great. It's actually kind of funny how I'm being yelled at because I must not know how she's suffering if I don't "get" this video yet here you are talking to me as if you know anything about what I go through.
Caity Cat i see what your saying, but maybe this is spot on to other people. this kinda reminds me of how my brother would react to the enviornment when he was younger. i could see the sensory overload was pretty chaotic to him. he would scream and run away! and the only people that could calm him down was my mom or me. and if you still disagree that this video isnt accurate, can you explain why? cause id legit like some insight
This video really opened the tear ducts. I'm 25 and I got recently diagnosed with Autism after years and years of not feeling I could never fit in. I can relate so much to this video!
A lot of this video relates to everyone on the spectrum. To some degree we all have this experience. I have aspergers and can relate to the sensory issues and distractions. I have control over my body but it seems to require a lot of effort. The way I think in my head is completely different to how I will say something. It seems like a lot of it gets censored out before it reaches the mouth or worse, the wrong words come out and replace the ones I am actually thinking off. I only know when this happens when the other person laughs or tells me what I have just said. For this reason I tend not to speak much as I have to put even more effort into hearing my own words without losing my train of thought.
+DizzyIzzy Not being able to talk at all, is a rare occurance for me. However, it has happened in the past, usually when I tried to initiate a conversation with a woman I was attracted to while single. In such circumstances, I totally block.
+Tzimnewman3 what you say fits me to a tee....I like to write because writing allows me to communicate what I mean more clearly, plus allows for revision until I get it right. It seems like I can know what I want to say and 3 words into what I am saying things derail and/or I take the long route of lengthy explanation to say something simple ....I don't know how to do simple. It's very frustrating because I am smart in a lot of areas and look normal and was taught how to be congenial when I was young but still don't have social stuff mastered and at the worst times I seem to make matters worse. I have grown a lot thru cognitive behavior treatment but I will never be smooth like lots of people. I always feel out of place and uneasy. The sensory overload thing intensifies even more when a situation or a time in life is more stressful. When things get too stressful I resort to selective mutism because it's safe.
I can definitely relate to stressful situations causing sensory issues to increase. I can sort of deal with it for a short time before I need to get out of the situation. Even if it's for 5 or 10 minutes. It's like the energy to do anything just goes completely down. I find myself often revising my words too, I know exactly what I need to say in my head but by the time it comes to speaking it out to someone it gets all jumbled up or takes me longer to explain something that should be simple to explain. I agree, it's very frustrating. Even more frustrating when people use that against you to make judgements. Sometimes people assume I am an idiot and they can get away with treating me like dirt. Other times people know I have intelligence and treat me like I am a con artist or criminal. They avoid speaking with me or they are constantly questioning everything I am saying which only makes communication more difficult for me. I am always uneasy around people too. Never knowing what they are thinking or what intentions they could have leaves me feeling very vulnerable. There has been a few times in my life where I have retreated into myself under stressful situations and if I am in the workplace and many people are giving me problems I tend not to speak with anyone. This comes across negative for me but I just can't help it. When I was growing up I used to wonder if I belonged in a different time period because everyone around me was just so alien to me. The way they think, their expectations and their behaviour makes me feel like I am alien sometimes.
It's really heart-warming to read all these comments showing so much empathy and compassion. Whenever I see people act like morons in public, or driving down the road, or whatever... I can come here to this video and have my faith restored in humanity by people with soul and heart. Thank you, gang. You rock.
that is exactly what its like for me. Not quite as extreme but similar. except for good music on a top hifi system.. or the sound of nicely tuned v-engines.. they are different for some reason... but thanks, this will help those that want to understand.
This made me cry, my son is non verbal autistic and it just hit home as to why he freaks out in places like that 😔 thank you for showing what you experience ❤️
I think it is interesting how there are so many similarities when it comes to different brain malfunctions. I have schizoaffective disorder and when I am understress, my ability to filter sensory information does not work AT ALL. Suddenly hearing my typing, the cars driving by, the ticking of a watch in the dresser, the twitter of birds outside and the chatter of those around me (including the apartment upstairs, downstairs and to either side of me) and the TV show that my family is watching all comes in at the same loudness. It is really difficult to sort out people's conversations and focus on what is being said. It's just like what you protray in this movie Carly. I don't go to Starbucks because whenever I did, it was because someone had invited me to study or dicuss something business related and with all the noise of the machines, people ordering, cash registers beeping, counting change, talking and tapping on laptops and tablets. When I get like that, if I have the presense of mind, I pop in my wax ear plugs, they dull the noise and make it easier to think. I'm working on saving my money so that I can get some of those really cool motorcycle earplugs that protect my ears from the noise. Christmas time is especially difficult with all the twinkling lights, carrolers, crouds in malls, more twinkling lights, more music, heaters going, excited family members . . . oh and did I mention the Christmas lights? They make me dizzy. In my chart, it says that when I had my first psychotic break at aage 22, I was repeatedly banging my head on the wall. I bet it was for the same reason. Just trying to distract myself from the voices in my head. I don't have Autism, but my brain disorder is one that people are scared of. I'm no longer scared of it and have really enjoyed the past 5 years. Things will get easier Carly, as you continue to learn to adapt to the world around you, just as I have. Thank you. I'm going to share it with my friends and family so the can better understand me too.
I think when they get a cure for one they will have the cure for all. Unfortunately I do not feel that humanity will make it that far. I think for us to really excel and to evolve into a futuristic disease curing, space touring species, we need to get through the next fifty years. And it just isn't going to happen. Even if every single person in the world changed today. The damage is already done.
Hello beautiful... u know its amazing that u have conquered your disability and have learned to bring out your true talent. I think autistic people are extremely gifted people, who r considered as outcast because the society is unable to see the true potential in these people... may God bless u and make u his way to let like u be understood and appriciated... Lots of love :* :*
Thank you for your insightful video Carly! I work in a school for children with Autism and their needs and abilities vary considerably. I felt like I already had as good an idea as I could have of how my boys (I work in a class of 6 boys) experience the world but you have just put it into a visual and sensory video that really helps me understand! Thank you, and best of luck to you with raising awareness of what Autism is really like for many people!
This is absolutely amazing. I am in teacher's college right now in Hamilton Ontario, Canada. I have studied Autism before at Brock University and I have fallen in love with learning about it. Your videos are so inspiring and help with my education. I love working with different children on the spectrum. So far I have worked with a total of 7 at different times and different classifications of Autism. Your videos help me be a better teacher. I already knew to never give up on a child but this just makes it more encouraging that everything I do will be appreciated and somehow will help them. I will continue to work harder at understanding my students and finding new ways to reach out to them as well as helping encourage their inner voice to speak out. Thank you so much!
On the outside, we had no idea what you were going through on the inside.. Know we do... And I'm going to Internet invisible hug you..hope you feel it in your heart since I can't be there in real to do it.. ✨🤗✨
+CzamyMlot Actually some People with Autism hate being hugged. I have a form of Autism called Asperger's syndrome and am one of those People. When People try to hug Me it just makes Me want to scream!
Carly, I saw a video of you three years ago and just watched again. In the past I have worked with people with special needs as well as have family with autism and have always wondered what it was like to be in their shoes. Thank you for allowing the world to glimpse into your everyday life. You are an amazing young woman which such astounding talents!
It's appalling to see the ignorance in the comments here. People questioning the validity of the video, making jokes. Some people have to live this. Too busy debating the video to take in the message. If there was ever any question about the fate of humanity, it has been answered. The world is full of self serving bastards. It needs a purge. If you still question it, just wait for the slough of comments that are sure to come.
I do not cry often. This made me cry. I am "high functioning" ASD with verbal capability but this video described everything about the auditory and visual sensory overload that I have been unable to describe my entire life. Thank you.
After reading a lot of these comments, the fact that a lot people that supposedly are affected in some way by a form of autism, whether it be personally or by knowing someone, can't or won't respect the plight of those whose autism is either different or worse than the one they're familiar with, to me, speaks volumes. It seems as though people get the idea that autism affects everyone differently and at different levels but are still quick to yell "büllshít" because what's being shown isn't how they've experienced it. Well no crap! This is based on one persons experiences. How can you expect people outside the autism community to try to support, understand and empathize with those afflicted when those in it can't even support each other? And as far as the filmmaker not really knowing how it is, this IS Carly's channel. And since this is her channel, and she did take part in producing the vid and published it, I'd have to assume it met with her satisfaction. Well done Carly! I'm glad you finally found your voice.
This was beautifully done. I watched a documentary which involved non verbal individuals, but as soon as they got to a computer, they started typing the most beautiful words.♡ I'm currently trying to get a job at a place that works with those whom have autism and I wish to make a career out of it. Love this video, very beautiful, Carly~
Not to freak out you lucky non-autistics even more (and this video is SPOT ON and everything) but.... a lot of times it can be much, *MUCH worse*.... 😢
Yeah, I think that's because the video can't convey the overstimulation from the SMELLS and the TOUCH that an Autistic person would feel in the real situation.
Shiny Tbone touch is really difficult for us we have to really trust people beforehand. It varies from day to day. Our sense of temperature is different too
Why,oh why do I find out about Carly after so many years?My son is non verbal autistic and her content would have been /is of great help .I wish I could understand his every sensorial issue and how to respond to it.Carly,where are you these days?❤❤❤
Having autism, I don’t always mind the sound. Keyword: ALWAYS. Sometimes sound is way too overwhelming for me and my brain can’t help but focus on that one sound. Like when my sisters are talking loud or playing the four down the hallway, or my mom is talking when I’m trying to listen to a TV show.
Carly, I went to my first "parent" autism class for my four year old autistic Granddaughter. When I came home my friend shared your breakout video on how you found your voice. You are truly my inspiration. Your parents and therapists make me want to be a better caregiver. But truly, you have showed me what I knew from the moment Monica was born...that we all rock and roll, and just need to find our instrument. I knew from the moment Monica entered this world that I was born to be her grandma. I vow to you. I will work double hard to give my Monica what she needs to find her voice, release, relief!
I have not read through the others comments but I wonder if diet was addressed at all. I developed what would be considered mild autistic traits in my 50's where I had trouble putting sentences together, making eye contact was difficult and even when I was aware that I was avoiding the persons face as I was talking, I had a very difficult time to fix my eyes on them when speaking. My eyes would dart all over but not on the person. Complete sentences started to elude me. Sometimes the order of the words written or spoken would get mixed up. I also had terrible mood swings and was angry at the slightest thing and even at the moment of being angry knew that this was not appropriate for the circumstance. This continued for many years. To make this short it wasnt until I changed my diet that all these difficult behaviors slowly went away and today they are not a part of me any longer. Maybe this is something to look into. Leaky gut, parasites, food allergies, inflammation, gut dysbiosis, and several other health issues caused by these were all at the bottom of my problems. Although these symptoms showed up later in my life my immune system was damaged as a child from Lyme and then antibiotics and mercury. These all kept my immune system in overdrive till it was so broken I had a difficult time functioning. I thought being tired all the time was normal. I am sharing this only in the hopes that maybe it will help someone else find a solution.
+K SA NO, this is not an issue with Carly's diet. I'm sorry you suffered an adverse reaction to food ingredients that you believe mimic Autistic symptoms, but as the mother of an extraordinary 6-year-old child with classic Autism, I can assure you this is not something that comes and goes in episodes, and it has nothing to do with diet. One symptom/characteristic of Autistic children is a great deal of food aversions, sensitive digestive systems, and restrictive diets. My son was projectile vomiting in the hospital from the day he was born, and he had a Pediatric GI from age 8 weeks. I am quite familiar with Carly's story, and she has also shown classic symptoms of Autism from her earliest days. She has a twin sister who is neurotypical, but Carly's developmental disorder stopped her from developing language skills the same as her sister through the first 2 years (and continues to be a struggle for her). My son has recently learned to speak on a rudimentary level, yet he has a non-verbal IQ over 140, he has Savant Syndrome, and I suspect he'll be a bright future ahead of him due to early interventions. Autism is a very specific, identified, and well-documented developmental disorder that occurs in the brain, and it is genetic. My husband has PDD-NOS and carries the gene. Please do a little research on Carly's story as she is a remarkable young woman who has facilitated her own breakthrough moments in ways many others cannot. The reaction she is showing us here is common sensory overload, and the reason we do not take our child to many bright, loud, or crowded places if we can avoid it, and why I hold my hands over his ears if I know a loud noise is about to sound.
+James Livingston I said developed autistic traits what would you call them if they look and act the same? Mine did start early with destruction to my gut microbiome but I didnt know about it and lived with mild symptoms for years but as the years went on so did the symptoms get worse and worse. If your immune system was as broken as mine you can also became autistic. A friend of mine was recently told by his doctor that in his opionion this man has autism also a mild case. He also has a really toxic gut. He has many of the same symptoms as I had. I do not know this Dr and this is what the man told me. He had asked the Dr do you think that I am autistic and the dr said definitely. So it can happen at any age.
+K SA Get your medical degree before you start handing out armchair diagnoses to people you've seen on the internet for 10 minutes or less. FACT: Autism is a BRAIN DISORDER and it is present at birth, no matter what place on the spectrum you are. FACT: Autism is GENETIC. FACT: A major common symptom of Autism is a highly sensitive stomach, specialized diets, digestive disorders, and food aversions. FACT: all these dietary anomalies experienced by Autistic children and adults are a result of the developmental disorder i.e. the different hard-wiring of the brain they are born with, NOT the other way around. FACT: once you live in a family with multiple afflicted people (who, incidentally, often have as many special traits worth envying as they have social and developmental difficulties) then you see first hand how this works, and it certainly is NOT something that develops over time after eating the wrong diet, nor is it something that goes away if you change the diet. My son had severe GERD from the day he was born, and he was on a special diet of Organic formula mixed with a special water-to-powder ratio as prescribed by his pediatric GI when he was 2 months old. My son's Autism has NOTHING to do with what he ate during the first year of his life (and it was pretty obvious he was Autistic by his first birthday), it has EVERYTHING to do with the fact that his father has PDD-NOS. Daddy is 40, and changes to his diet do NOT effect his Autism, and I would never want to fix him, anyway. Everyone thinks their an expert on Autism, yet so few know anything substantial about it in the first place. Such a shame.
great job Carly ! Thanks for sharing this. Your comprehension of yourself is extraordinairy. My son is autistic and has learned to speak very well, yet he does not not comprehend his difference as he cannot appreciate that other people do not perceive the world the way he does. Please continue to share your perception of the world with us, it is very helpful and enriching !
I was just ranting to my friend earlier about how it pisses me off that people throw the word autistic around as an insult. Lots of autistic people are super smart and super gifted!!
Diagnose your bully with two broken arms. Fight back. Or don't. In my experience it doesn't matter. I was a strong kid who could beat up most bullies but it didn't matter because I got punished for fighting back, believe it or not. Anyone else experienced this?
Carly, You are amazing. I've got a daughter with Asperger's Syndrome (that describes people with autism on the "other end" of the spectrum for those who don't know) and even though you're quite different, you've helped me understand her better. That means a lot. So many teenagers struggle to find their place in the world. You're finding yours in incredibly meaningful ways. Congratulations on your achievements! I look forward to hearing more about you in the future.
I cried and started rocking when I saw this, until my wife reached out and touched me. Thank you for having what it takes to give expression to the experience. It's so hard to explain to anyone.
God bless you. I am a mother of a 7 year old autistic boy, and i understand the obstacles associated with day to day living. So, i just want to say thank you for attempting to educate people. Everybody is put on this earth with a purpose, and I beilive yours is this! Carly, you are making this world a better place, not only for you, for my little boy! Keep up the good work!🙏👼
![Gunna - HIM ALL ALONG [Official Video]](http://i.ytimg.com/vi/w7Wf0h1Q8a4/mqdefault.jpg)
I was a care buddy for a girl with Autism for 11 years. I looked after her at school, during classes and things. You really get your eyes opened to their world. The girl I cared for was so incredibly smart but everyone ignored that and instead looked at her output reactions instead. Nobody saw her potential back then but now she's a cake designer and is able to produce the most amazing designs in icing. I'm so proud of her and I felt so privileged to be able to know her.
Sounds just like me lol, but instead of cakes, it's computers, I also have autism and my main focus where I get good at is, riding motorbikes and tech :P I would say this vid is a little over exaduated personally, but does give a view of what it can be like!
Good for you. You will be rewarded greatly in life because of your sacrifice
@@thatguyjimmie "your sacrifice?!" Your ableism is showing. Don't pity us. We are different, not less.
@@Bikertrons does she have a page or something? My daughter is autistic and actually wants to be a baker when she’s older it would be great to show her someone like her
@@ivelissehaynes2719 Does who have a page?
I have Asperger's. I find coffee shops really difficult, even though I love coffee. This video is the most accurate portrayal of my sensory overload issues. I have always struggled to try and explain what it's like to people and failed. You have now done it for me. Thank you from the bottom of my heart x
I also have Asperger Syndrome, too, and I'm also very sensitive to sensory input. But I'm ok in coffee shops. I do ok in pretty much any kind of restaurant.
When I was in mid elementary and early middle school, I preferred to sit in the back of the bus, but it wasn't for the same reasons most kids prefer the back (ok, it was for some of the same reasons, but not all). It was mainly because I COULD NOT STAND the noise from the engine at the front! I also liked the bumps (this is one of the reasons a lot of kids like the back seats on the school bus). A lot of kids prefer the back just so they can misbehave or talk about inappropriate stuff, but I was never really into doing stuff like that.
As I got better with my sensory issues, and learned more ways to deal with them, I just started sitting wherever I could find a seat on the school bus. If the first seat I found was in the front, I would sit in the front. If the first seat I found was in the back, I would sit back there. If the first seat I found was more towards the middle, I would sit there. But when we went on a field trip, I would usually try to sit wherever my classmates were sitting, so I could feel like a part of the group. If they were all sitting in the back, I would try to sit near the back. If they were all sitting towards the front, I would try to sit there. If they were all sitting in the middle, I would try to get a seat toward the middle, too.
+Leanne Strong i get that sitting in a room filled of people it just sounds like a constant drone of murmurs. carly is really good looking and what she is doing is great i hope she goes far
I usually avoid busy crowded places and I hate going out for meals with my family
So true! I can't stay in places like Wal-Mart for very long because I get them. I often have to wear earplugs too. I feel for Carly, since I'm autistic myself.
This is literally the exact same for me. I can't stand being around more then 5 people at a time, more and there is a possibility i may break down. The only thing that keeps me up through the day is knowing i'll get home, and finally be alone.
Had to come back and watch after all this years. Today my son age 13 nonverbal after having a very painful meltdown made me understand somehow that he wanted coffee too. I poured him some and told him to hold with both hands and he gently walked to the table with the biggest smile and teary eyes. He came back and hugged me so hard.
It must be so damn hard to live in a verbal society but not a part of it. I got teary eyes to.
I'm so sorry to hear that :(
🥹🥹
Please make more videos like these. Neurotypical parents have such a hard time understanding what life is like for their spectrum kids, and the kids have a hard time describing it in terms the parents can understand. I applaud your courage Carly-never never quit.
I am so glad that we live in a technological age where autism has a voice. Also I'm definitely not crying why would you even say that
Autistic people don’t have a voice. We are still trying to fit into society
I wanted to cry watching this....for all the children with autism, including my 2 grandkids I see their frustrations.
Carly, you are informing so many out there that you each have a voice that wants to be heard! Don't stop Carly! You are an amazing woman! 👏🏼👏🏼👏🏼
I always treat anybody with a disability just like I would any other person. Everyone tends to treat you like a baby and I don't think its fair. I always get mad when I see people treating the disabled kids in my grade like babies. I just talk to them like normal human beings instead of saying things like, "Hi there!! How are you today??" in a voice like you are talking to a fucking baby or a dog or something.
As someone with Autism, that hacks me off too. The fact that someone specifically talks to you in a different manner because of their false preconceptions about how you think. What's rather worrying is I see this behaviour across so called autism "experts" as well. That just goes to show you how poorly understood Autism is to the general population.
flames1000000 I can also assure you that almost every single autistic person I have ever met has been genuinely smarter than those people who talk to them like babies. Temple Grandin (I don't know if you know her but she's an extremely famous autistic woman) was actually my when I first heard about her. My mom showed me the film back in 2010 when I was maybe 10 I think and I desperately wanted to be as smart as her. I never understood why people treated them any different. I don't have autism but I do have ADHD (completely different), but nonetheless, the second my teachers found out, they began to treat me differently. Even with my 4.0 GPA, they wanted to put me in "Special Study" groups even though I didn't need them. I simply asked them to accommodate some of my needs, like I may take extra time on tests or whatever. But they still treated me like a five year old. I am in high school I made sure that freshman year, I would not tell faculty because I am tired of this "baby" shit.
oh god you're right
I hate it when people talk to me like I'm some alien species or something! For goodness sake I'm autistic not something from a U.F.O!!!!
+Linda Bauman Actually the way People talk to there dogs(especially the wealthy ones) is like this: Who's a cutie?Huh?WHO'S a little cutie?!? YOU are!!!Oh yes You ARE a little cutie You little cutie!!!
This is exactly what I see because of my autism. When it comes to public places like this, the noise and stuff is overwhelming and so it drives insane. Since I can talk, life is easier for me but it's still a challenge.
Yep I cried. This is awesome. Bringing awareness to not only autism but other mental disorders as well. Having bouts of severe anxiety I get moments where I am completely overloaded by, it seems, every single internal/external stimulus plus my thoughts and emotions go haywire. It's scary and while it's nowhere near as intense as an autistic episode I can understand and imagine how difficult it must be for those with this type of sensitivity. Keep pressing forward Carly! =)
It is great but too much of exposure of anything can be detrimental to a cause and make a mockery of it and others resentful like SJWs, feminist, fakers on Tumblr, special snowflakes, professional victims, politically correctards have done with everything under the sun. They have made people including myself an individual with Spina Bifida and LBKA skeptical of those online coming forward with real issues. Utterly sad, disgusting, and vile they are. Most with disabilities want to be seen as equals not above beneath or anything else and certainly not defined by our disability or coddled for it. It seems there is an entire generation budding that is thriving off that alone which is an utterly crippling mind set to have if truely "disabled" hopefully most of them are fakers and will grow up, seek professional psychological help or move on to the next trend.
+BlinkinFirefly It is what it feels like when you have GAD and/or suffer from panic attacks and nobody bothers to listen to you or you are young and have not developed the language skills to describe how you are feeling and to assert yourself. It is only because of on and off years of counselling and reading self help and psychology books I can put those words into feelings and come up with clever replies. Also sometimes because of the pitch and volume of my voice people cannot hear it or pretend not to hear it as my voice is too soft. It's like I speak a completely different dialect to them and they are only aware of the dialect they speak.
+BlinkinFirefly I thought I was the only one
+BlinkinFirefly A poet, that lived in our town some 50 years ago had a severely autistic daughter. At those times, it was customary and even advised to put anyone abnormal into an isolated institution, so he was viewed as a weirdo for keeping her at home and trying to teach her. He just said he could see her mind and soul trapped in a body she can't control. He was SO right to never give her up!
+BlinkinFirefly you tried any drugs like cannabis or shrooms?
I felt my heart beat out of my chest when I saw the girls come in. This is a perfect analogy of a sensory overload and an anxiety attack, it’s completely uncontrollable and it’s worse when those around you don’t understand. Thank you for this.
I'm glad the father and sister were shown as normal and loving, keeping the focus on Carly's situation and not their mistreatment of her.
This video touches my heart. I am a mildly autistic person, and this is how I feel sometimes when too many people are around. This has opened so many eyes and there’s so much positive feedback on this vid, and it makes me so happy. Thank you for this, Carly, thank you so much!
I relate
Well I just cried. So amazing she is doing better and making things happen for her and her causes.
Carly, you are brilliant. I love this video, it really brings awareness to those that don't know what it feels like.
I like how they showed that she can make her own decisions.
As someone who has a much milder form of autism, I can say this is pretty friggin' accurate.
Granted, I'm able to control myself enough to avoid having a meltdown, but still.
Right there with you.
Me too, when I was younger that was me & it was so frustrating. I was lucky enough to get help right away.
W
same
thank you so much for speaking out. my sister has autism and it breaks my heart all the time because as much as I think I do, I have no idea what she thinks or feels. with your videos I can try to understand more, I know each and every person is different, but this video has been a huge insight. I cannot thank you enough for this. :-)
This made me cry...because I'm so ignorant...we all are.
Who knew..
Carly did..
✨💕😔💕✨
YES I have autism fuck you
@@zetazieta2061 YAAAAS WE SHALL RULE THE WORLD SOME DAY
lolol
My twin sister also has autism. she had the same diagnosis. she's actually able to anything I'm capable of doing. Every autism diagnosis is different, but you can always help them get heard and feel better about themselves.
I have a twin sis with Autism too.
I am training to be a SPED teacher and when i got into the field; we learned everything in the books, the theories, the symptoms. Everything. For my training, I have worked with kids who were diagnosed with ASD and only now can I fully understand what they are going through when they experience sensory overload. This was very enlightening. and humbling too. Thank you.
I find this so incredibly moving. The pain of not being able to communicate what you want and needing the people who are closest to you to hear your voice. The overwhelm of all that sensory input flooding in with your emotional frustration of not being able to communicate to your family and friends that you want coffee and not hot chocolate. The most moving part being when you come out and state how you persevered through this pain and found a way for people to hear your voice. You are so strong, and I am so happy I came across this. Thank you for sharing your story. I teach children with autism, and this inspires me to continue to help them find their voice, and not give up trying. It also makes me so happy you found a way to communicate and express yourself. Thanks again.
Someone once told me that I was too empathetic. This video proved that person right. It hurts me to know just how autistic people have it in life. Wanting to think but everything around you is too much stimuli? Damn that must be really rough.
I have never been an ass to someone with autism or any similar condition, but now I feel bad because I didn't take the extra steps or effort to actually help or assist them, as we all should because it's our duty to understand people like them.
+TerrifiedTam I don't think that there is any such thing as being too empathetic. And besides, a whole hell of a lot more empathy is exactly what this World needs according to My observations. But then of course My observations would differ from those that do not have Autism.
TerrifiedTam the other thing I hate is when neurotypicals accuse us of having no empathy bollocks we have an over abundance of it. We are generous, kind hearted sweet individuals who are super sensitive and empathetic
Living with autism and ADHD I totally understand this. Being in different places sometimes can give me severe anxiety/panic attacks. And just socially interacting with ppl can be a great struggle for me... I tend not to go to big conventions because of this thing I have and it is really pissing me off. Like really bad.
Living with a neurological disorder I often have hard time communicating with people, it takes so much energy from me that I get real exhausted... I get really angry when no one understands my problems but as my psychologist said. '' no one can't see that the foot is broken without it's cast. Which basically means that it's hard for people to understand because my disability is invisible... So people think I'm straight up normal when that is not the case...
I often think of how it would be better if I just could have a visible disability because then people would understand and don't have any expectations on me... But I mean, viable disabilities has its downsides too
+Aisha Sed As an adult Aspie I know exactly how you feel. It can be overwhelming and people don't really get why I look normal but get tweaked out by what they think shouldn't bother me.
+One piece queen I get that and I'm very happy that you commented saying that you feel the same, it is reliving that I'm not alone with this!
I have talked to many people with lack of understanding of my situation, I tend to explain that I'm just normal with different personality traits such as shyness at an extreme level. Just because you are shy doesn't mean that you suffer from social anxiety, we all have our difficulties in life but it's not until they get extreme we need help.
I also explain with difficulty with concentration, that all the input goes in with the same relevance, like I myself have to pick out the things that are relevant. I don't have a filter.
People tend to get what I'm saying, and they are very accepting, but the lack of understanding is a problem.
And how society has such high expectations on employees that it's really hard to get a job. School is unbearable sometimes and I'm constantly tired...
If you want to talk, feel free to text me on kik: aaaishased
yeah thats true, i wish you all the best! and good luck at becoming a better you because thats what we all are striving for? ;)
Alicia Claesson there are whole online communities of people like this the secret is to find them. 1 in every 68 individuals are on the spectrum and the ratio males to females is more like 1:1 so world wide there are millions of us
Shes such a beautiful smart girl. I can't even imagine what it must be like to live this way but im so proud of her for getting this far.
THIS YOUNG LADI GIVES ME SO MUCH HOPE FOR MY AUTISTIC DAUGHTER. SHE IS CONSIDERED HIGH FUNCTIONING AND VERBAL,BUT SHE HAS MANY BEHAVIORS. AND ONE DAY I HOPE SHE IS ABLE TO EXPRESS WHAT SHE WANTS THE WAY CARLY HAS.
Carly.... you have such a beautiful soul within... I hope your story can help other parents whose child suffered the same affliction - you have given them hope.
Carly, thank you for raising awareness of what it's like to have autism. I believe it will help a lot of people who are unable to communicate as well as you can.
I'm high functioning Autistic (Asperger Syndrome), and I do ok in restaurants and stores. I can even handle going to the mall for a couple of hours. When I was younger, however, I preferred the back seat on the school bus because I couldn't stand the noise from the engine at the front.
+Leanne Strong (High/low functioning labels are actually very harmful and damaging. I can't control you, but it would be much appreciated f you didn't use these terms. Thank you.)
+Ashton Theodore a lot of people think of people with Autism as not being able to talk
+Ashton Theodore I'm sorry if I have hurt your (or anyone else's) feelings. But the reason why I use those terms is because I want people to understand that I have pretty normal verbal skills, and am able to do pretty much everything most people without disabilities can do. A lot of people who don't have disabilities think of people with Autism as being non-verbal, weird, either really smart or very low IQ, and not being able to do things most people without disabilities can do. I don' mean to hurt anybody's feelings or make anybody feel less than they really are. I think some people are just being a little too over sensitive. My comment was not intended to hurt anybody.
I have Aspergers too. I'm 13 and I can't articulate to others very well what I feel. I usually just keep my emotions to myself and when people are shouting I get scared so I put my hands over my ears and shut my eyes. Other people in my year just think I'm weird but I just get used to it
I have a 14 year old son on the spectrum...functioning labels are rather a moot point.
Yes, he CAN talk but can't communicate effectively...people can't seem to distinguish the difference. There is far more to communication than the ability to speak. He requires constant verbal prompting to get through a day, to complete any given task...yet because he has the verbal ability to speak, he is considered high functioning?
Carly, I'm so glad I met you! What an amazing gift you are to the world. I wanted to say, too, that it's not just autistic people who have sensory issues. I have them too. Especially sound. So much that I wear ear plugs 24/7 and it mostly helps. I cannot imagine though how hard it has been for you to cope. I am SO glad that you found your voice. What a wonderful, magical gift you are.
This is a truly amazing young girl, who has overcome some very tough obstacles and found a way to be heard. For all of you that have the nerve to leave such rude and horrific comments, shame on you. What if this was your daughter, niece, or sister, would it be funny then? Better yet what if it was you, what if tomorrow on your way to work you get in a terrible accident that paralyzes you and destroys larynx and you can no longer speak. You have to live the rest of your life fully aware of everything around you but unable to communicate or express your emotions to anyone. I honestly fear for the future of our country with such a disgusting inhumane society. Maybe instead of spending hours of your day leaving genuinely hurtful comments to videos no one made you watch but you, for the sole purpose of being mean at the end, you should spend that time helping the less fortunate in your local community so that you can see that the people you look down upon and judge, are people born a different, it wasn't a choice. Try having some compassion in life, it will get you a lot further.
This really touched me, the mother of a 16 years old child with autism. I shed tears while watching this video, while enriching myself. thank you
I just saw your story that was on 20/20 in a facebook post. My life has not been affected by autism, but I am very inspired by your story! I love it when good happens in the world! Thank you for sharing! Also, as a father, I admire yours. He is a great example of fatherhood! Would you please tell him for me? Thank You
This an incredible video that really shows someone what it is like to have the sensory issues that are a part of autism. My sensory issues aren't quite as intense as this, but I have my moments. Stay strong Carly. You are an inspiration.
Shame that those saying cruel things about individuals with autism. I wonder if any of you have a heart? And I also wonder if any of you heartless individuals have children of your own. Move to another video if you have nothing to say. Until it happens to your child ....folks like yourselves will always say such heartless comments. I thank God for my child regardless of his condition!
Let's make him a big brother.
+Lizette Rocha , those folkes are just a buncj of idiots, dont get upset!!!
+PCGamingMaster Race Read The Bible, truth
+Lizette Rocha im sorry that people are that ignorant. god bless you. :)
I have never been so appalled after reading some of the small minded comments that other people have left. I have a sister who is on the autistic spectrum, a son on the autistic spectrum and two of my closest friends with sons also on the autistic spectrum. All four children are completely different, they are all on different levels of the spectrum but the one thing that seems present with all of them is sensory overload. I think Carly is a fantastic young lady and I am so glad she has found her voice. This video is not for the biggoted small minded but a fantastic tool for others with autism. It lets them know that others feel the same as they do and that in fact these people are NORMAL!!
OH man Carly! How frustrating. All you want is blasted cup of coffee and everyone looks at you funny. I'd swipe that blasted hot chocolate off the table too. Thank you so much for sharing all of this, it helps to understand those who suffer with autism.
Carly, we can all learn from your story. Thank you for sharing this with the world. Much love from a mother of a 13 year old autistic girl who is the light of my life. You give me so much hope!
almost seems like they are permanently going through a bad psychedelic trip or something.. the way this vid seems to emphasize the internal anxiety and random focusing on external stimuli that such a state of mind would bring about..
James Livingston *challenging trip
Scarily accurate and explains how people misunderstanding wants and desires when us on the spectrum are adamant at what we want can cause us a lot of stress within, very well made video!
Thank you for being a voice for us! I've been trying to explain this to so many people for so many years! And yes, these are tears of joy! I can't thank you enough Carly, God bless!
I'm sitting at Starbucks and almost switched videos because I thought it was a commercial, but This video was done beautifully and poetically. I understood when the narrator said, "I want a coffee". I actually felt the frustration, and feeling of being trapped. Helplessness and despair can be overwhelming. I'm so glad you have a voice and can express yourself. So many people that lead "ordinary" lives and are considered successful don't even seem to have the ability to express themselves so well.
Damn... Autism seems as if someone's experiencing drug ODs, but this time it's permanent, and the person can't do anything. Holy fuck do I feel sympathy those sufferers :(
+Fatal_Taco Actually, it's not always like this. This was what we would experience in a crowded place, lots of noise, lots of different things going on, ect. But in a calm environment with some nice music going and a nice fidget in our hands, we can be very relaxed and calm! The thing with autism is we get very overstimulated easily. But replace those bad feelings with good sensory ones, and we're happy! Most people don't understand this, which is too bad.
+Fatal_Taco Check out how Cranial Osteopathy helps with autism: clinicaltrials.gov/ct2/show/NCT01676389
Wow, you see that too??
I thought the same thing. That I have been on a 'binge' before where, toward the end of it, I had much trouble being in a public place because of soooo many voices and a lot of commotion. I was trying to take it all in and it made me feel like Dr. Charles Xavier with his device Cerebro (X-men)...and NO, this was NOT 'cool'. At all.
I could hear everyone all at the same time which meant that I could hear NO ONE individually. I could not carry-on a one-on-one conversation, even with those closest to me (the ones that I loved so dearly). It was pretty horrible. I don't do drugs anymore and I feel fine now.
I experience that, too, the thing where you can't separate voices from one another. People accuse me of eavesdropping, but it's really because I can't not listen. If that makes sense.
***** Same here.
Carly is truly one of the most beautiful and courageous people I've ever seen. I have been touched deeply by her story and it helps me understand what others like her are going through.
This is a really good representation of how a meltdown feels. Add to that bugs crawling on your neck and and a match held under your palms and that's how mine feel.
I have 2 with autism, my oldest, 15,, girl, high functioning, lots of sensory issues and can’t hold eye contact, my son, 11, non-verbal, ID, w a twin, neuro-typical sister. He doesn’t have a lot of sensory issues but he’s an angel, you can sense that he can look in your eyes and if you are a good or bad person. I read “Carly’s Voice” and “Why I Jump” and “ Josiahs’s Fire” a decade ago. Their experiences has taught me SO MUCH - mostly patience. Thank you for posting these videos. And now Rainn’s twin sister is learning so much about her brother and sister. ❤️
Carley you are a beautiful soul! Thank you for sharing your experience and giving us an understanding of autism from within. I am incredibly inspired by you and your light. Keep doing what you do cause your impact is greater than you realize. Like a ripple in the ocean that turns into a wave. 💗
what a break through!!! Imagine all that we will be able to learn from her, when banging her head and playing up, people just thought that she was acting up, but for her to tell it herself, and say it feels as if ants are crawling up her arms and being in pain, is such a big break through. THINK ABOUT ALL THE TIME WHEN KIDS LIKE HER WERE SUFFERING AND CARERS ASSUMED THEY WERE BEING A NUISANCE,,.......THEY UNDERSTAND EVERYTHING BUT ARE UNABLE TO COMMUNICATE BACK!................watching this has really made me feel emotional................love you carley XXXxxx
***** The point of having her hair and clothes messed up is to show that she had a real breakdown - you see her spilling the coffee, hearing lots of jumbled sounds - the mess at the end shows that she was physically flailing, screaming, hitting her hands because she looses control of her body when she has a breakdown. It's a fiction film based on reality and that art direction was done purposefully. When she's actually out in public or being filmed she looks just fine.
Thank You Carly, Awareness is the key to understanding.We have a 12 yr. old autistic son who is higher on the spectrum but, never the less, my wife and I had to be trained on things that we took for granted just so we could understand how to make it work for him. Now, we all do our daily routine without thinking about it much.Thanks again Carly, you're beautiful and always remember to Believe in Yourself! Now, I'm going to pop over to your website. :-)
BEAUTIFUL short film.
I'm sorry, I watched it for school purposes but why am I crying? Great job for Carly. I hope she's doing okay right now.
Wow, this is pretty amazing... I have Asperger's Syndrome, and I experience sensory overload, and though it's not to this extent, it's pretty close. It's difficult to pay attention to what I'm supposed to pay attention to when everything seems to be yelling at me.
.....and in that moment...when all at once, he was confronted with the reality of her, there came the burgeoning of a tear ....But this was no tear of pity nor shame....for such things are ill-befitting and beneath a spirit such as hers .....it was simply a tear of sheer admiration and utter humility in the face of true strength....and true beauty....if such a thing or moment can be seen as "simple". He will never be the same.
Thank you for that moment.
That was the shortest most interesting movie I ever watched in my life. Was biting my bottom lip so hard, I nearly swallowed it! :) Thanks for the inspiration Carly! and the cinematography of this piece blew my mind. So good!
Just over two minutes but these images and the message will be with me forever. Thank you Carly for finding a way to get your voice heard even a little bit, it speaks volumes. I'm trying to write a story about a young girl who has non-verbal autism and your story is helping to inspire me to find what I need to properly share her story. Thank you.
So few of us understand about being locked up inside one's own body. I am glad for this series of Carly's experiences. I know a little boy I now understand better. Thank you Carly and thank you Mr. Fleischmann for the opportunity you gave so I can be of assistance to Killian my 5 year old friend with a bent for science.
My brother has autism and will sometimes start yelling or become flustered or upset in restraunts or puiblic places in general. I've learned how to make him feel better, like stepping outside and going for a walk, or distracting him on a game on my phone. He is such a wonderful person, I swear he is actually an angel, and I feel so horrible that he has to go through things like this and go through life with this. Thank you Carly for this video, to help people understand how things like this work, only if it's just a fraction of what it really is like.
This. Is. Gorgeous. So proud to be on the same spectrum as Carly.
+Hieifireshadow We just keep running into each other on RUclips! 8D Super impressed with whoever thought of how to represent everything, a lot of times stuff like this isn't really creative, but yowzah-- love how all the colors are so wiped out like the light's eating away at everything.
HomeStarRunnerTron xD
OmG.
Some days I go nonverbal. And the noises overwhelm me on those days the worst. Seeing someone feel the same pain, seeing correct interpretation, just made me bawl my eyes out just now. Thank you. I love you Carly, and your father. I love this.
that made me so sad to watch. she just wanted coffee and to do what she wanted... but the message at the end was happy :)
I work in the field...residential now, but have also been an employment specialist/job coach, recreational specialist and personal care attendant. I want to thank you for your input, your strength in the storm. Thank you for educating so many.
I love this cause its feels and sounds like a chapter from Life Is Strange
Who's the author?
+Nickel M i think she's talking about the game
+Evelyn Allen I figured afterwards. It was just them saying 'chapter' as I am unfamiliar with the game.
+Nickel M um if im not wrong i think the game is played in chapters also so yeah
+Evelyn Allen Yeah, that's what I figured, just not when I first asked. It's not the most common way games are played (not to say there aren't many played in chapters). And I think you can agree if you first hear 'chapter' then you'll think of a book. Sorry if I wasn't clear.
Thank you so much for sharing this with the world! I am a mother of a 3yr old boy with Autism... You are an inspiration & you open eyes & help us to better understand!! :)
Damn imagine that for 11 years...
I would go absolutely insane without coffee.
(Jk, this video really well made and Carly seems like a real trooper. Can't wait to see more interview video's on the other channel!)
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mark jonkman coffee energises and actually relaxes me it’s wonderful to combat the horrendous anxiety. I’ve actually found that doing drama is actually the best way to improve your social and communication skills.
Carly, did you know you are beautiful? Just the way you are. You touch many hearts. You change people. You fight a battle most don't need to fight, you are a warrior fighting to shed light on a very misunderstood diagnosis. Thank you. Keep going forward.
I'm 17 and autistic and I can assure you this is exactly how my typical day goes
Tony Bullard LOL actually this is sarcastic, this looks more like smoking meth and cocaine combined or something
Caity Cat
i think you misunderstand whats being presented as literal experience. one doesnt zoom in to things, or experience slow motion. the video is trying to express the sensation that is felt when one becomes overwhelmed with a situation and one's mind overloads with stimuli. the mind races, the 'ADD' in full force, cycling through observable elements already pre-cached in the mind, new observations of developing realities, sounds and other medium that catches the senses, etc., and all thoughts that are involved with this mass mixture of overwhelming experience.
a video cannot truly convey the experience that one has in such a situation, with the kind of mind Carly, or anyone similar, has. when you can never communicate what you are thinking or feeling, life is very frustrating and overwhelming. you are trapped within your own mind.
dAc I'm autistic, I know all of this, I have experienced sensory overload, thanks for playing though.
Heulwen Sault-Jones How about you apparently allistic people quit talking down to me? My first comment wasn't fully serious and I don't even know why exactly I'm being targeted over the tons of other people saying saying this looks like someone on drugs, including the other autie I was speaking to. I know how severe sensory processing issues can be and on top of it I have misophonia too, so if you lot would kindly screw off with your "education" that'd be great. It's actually kind of funny how I'm being yelled at because I must not know how she's suffering if I don't "get" this video yet here you are talking to me as if you know anything about what I go through.
Caity Cat i see what your saying, but maybe this is spot on to other people. this kinda reminds me of how my brother would react to the enviornment when he was younger. i could see the sensory overload was pretty chaotic to him. he would scream and run away! and the only people that could calm him down was my mom or me. and if you still disagree that this video isnt accurate, can you explain why? cause id legit like some insight
This video really opened the tear ducts. I'm 25 and I got recently diagnosed with Autism after years and years of not feeling I could never fit in. I can relate so much to this video!
A lot of this video relates to everyone on the spectrum. To some degree we all have this experience. I have aspergers and can relate to the sensory issues and distractions. I have control over my body but it seems to require a lot of effort.
The way I think in my head is completely different to how I will say something. It seems like a lot of it gets censored out before it reaches the mouth or worse, the wrong words come out and replace the ones I am actually thinking off. I only know when this happens when the other person laughs or tells me what I have just said.
For this reason I tend not to speak much as I have to put even more effort into hearing my own words without losing my train of thought.
+DizzyIzzy
Not being able to talk at all, is a rare occurance for me. However, it has happened in the past, usually when I tried to initiate a conversation with a woman I was attracted to while single. In such circumstances, I totally block.
+Tzimnewman3 what you say fits me to a tee....I like to write because writing allows me to communicate what I mean more clearly, plus allows for revision until I get it right. It seems like I can know what I want to say and 3 words into what I am saying things derail and/or I take the long route of lengthy explanation to say something simple ....I don't know how to do simple. It's very frustrating because I am smart in a lot of areas and look normal and was taught how to be congenial when I was young but still don't have social stuff mastered and at the worst times I seem to make matters worse. I have grown a lot thru cognitive behavior treatment but I will never be smooth like lots of people. I always feel out of place and uneasy. The sensory overload thing intensifies even more when a situation or a time in life is more stressful. When things get too stressful I resort to selective mutism because it's safe.
I can definitely relate to stressful situations causing sensory issues to increase. I can sort of deal with it for a short time before I need to get out of the situation. Even if it's for 5 or 10 minutes. It's like the energy to do anything just goes completely down. I find myself often revising my words too, I know exactly what I need to say in my head but by the time it comes to speaking it out to someone it gets all jumbled up or takes me longer to explain something that should be simple to explain. I agree, it's very frustrating. Even more frustrating when people use that against you to make judgements. Sometimes people assume I am an idiot and they can get away with treating me like dirt. Other times people know I have intelligence and treat me like I am a con artist or criminal. They avoid speaking with me or they are constantly questioning everything I am saying which only makes communication more difficult for me.
I am always uneasy around people too. Never knowing what they are thinking or what intentions they could have leaves me feeling very vulnerable. There has been a few times in my life where I have retreated into myself under stressful situations and if I am in the workplace and many people are giving me problems I tend not to speak with anyone. This comes across negative for me but I just can't help it. When I was growing up I used to wonder if I belonged in a different time period because everyone around me was just so alien to me. The way they think, their expectations and their behaviour makes me feel like I am alien sometimes.
sweetcindylouwho theatre studies are the best for teaching social skills, communication and how to read non verbal signals and emotions
It's really heart-warming to read all these comments showing so much empathy and compassion.
Whenever I see people act like morons in public, or driving down the road, or whatever... I can come here to this video and have my faith restored in humanity by people with soul and heart.
Thank you, gang. You rock.
i cried watching this,an amazing video. go carly!!!!
My daughter is 18 with autism. Since you been making videos and helping my wife and I truly have a better understanding. I want to say thanks so much
that is exactly what its like for me. Not quite as extreme but similar. except for good music on a top hifi system.. or the sound of nicely tuned v-engines.. they are different for some reason... but thanks, this will help those that want to understand.
This made me cry, my son is non verbal autistic and it just hit home as to why he freaks out in places like that 😔 thank you for showing what you experience ❤️
I think it is interesting how there are so many similarities when it comes to different brain malfunctions. I have schizoaffective disorder and when I am understress, my ability to filter sensory information does not work AT ALL. Suddenly hearing my typing, the cars driving by, the ticking of a watch in the dresser, the twitter of birds outside and the chatter of those around me (including the apartment upstairs, downstairs and to either side of me) and the TV show that my family is watching all comes in at the same loudness. It is really difficult to sort out people's conversations and focus on what is being said. It's just like what you protray in this movie Carly.
I don't go to Starbucks because whenever I did, it was because someone had invited me to study or dicuss something business related and with all the noise of the machines, people ordering, cash registers beeping, counting change, talking and tapping on laptops and tablets. When I get like that, if I have the presense of mind, I pop in my wax ear plugs, they dull the noise and make it easier to think. I'm working on saving my money so that I can get some of those really cool motorcycle earplugs that protect my ears from the noise.
Christmas time is especially difficult with all the twinkling lights, carrolers, crouds in malls, more twinkling lights, more music, heaters going, excited family members . . . oh and did I mention the Christmas lights? They make me dizzy.
In my chart, it says that when I had my first psychotic break at aage 22, I was repeatedly banging my head on the wall. I bet it was for the same reason. Just trying to distract myself from the voices in my head.
I don't have Autism, but my brain disorder is one that people are scared of. I'm no longer scared of it and have really enjoyed the past 5 years. Things will get easier Carly, as you continue to learn to adapt to the world around you, just as I have.
Thank you. I'm going to share it with my friends and family so the can better understand me too.
I think when they get a cure for one they will have the cure for all. Unfortunately I do not feel that humanity will make it that far. I think for us to really excel and to evolve into a futuristic disease curing, space touring species, we need to get through the next fifty years. And it just isn't going to happen. Even if every single person in the world changed today. The damage is already done.
Gee, I'm sorry you feel that way. I think that we "can be the change [we] want to see in the world."
Sarah P. Hancock if there’s too much noise we just can’t process oral communication it can make us seem like we are deaf but we actually aren’t
This video made me cry but now I understand what my son goes through. Thank You! God bless.
Hello beautiful... u know its amazing that u have conquered your disability and have learned to bring out your true talent.
I think autistic people are extremely gifted people, who r considered as outcast because the society is unable to see the true potential in these people...
may God bless u and make u his way to let like u be understood and appriciated...
Lots of love :* :*
Anisha Sharma this warmed up my heart, thank you. (i'm autistic)
Arceus The God .... m glad if I made u feel good in anyway... :)
Anisha Sharma =D i love having autism, it makes me good at creative things
Arceus The God for me it really helps in sucking up information
Alex Cain cool!
Thank you for your insightful video Carly! I work in a school for children with Autism and their needs and abilities vary considerably. I felt like I already had as good an idea as I could have of how my boys (I work in a class of 6 boys) experience the world but you have just put it into a visual and sensory video that really helps me understand! Thank you, and best of luck to you with raising awareness of what Autism is really like for many people!
thank you, now i can show people what being me feels like and give a reason why i cant eat with others
This is absolutely amazing. I am in teacher's college right now in Hamilton Ontario, Canada. I have studied Autism before at Brock University and I have fallen in love with learning about it. Your videos are so inspiring and help with my education. I love working with different children on the spectrum. So far I have worked with a total of 7 at different times and different classifications of Autism. Your videos help me be a better teacher. I already knew to never give up on a child but this just makes it more encouraging that everything I do will be appreciated and somehow will help them. I will continue to work harder at understanding my students and finding new ways to reach out to them as well as helping encourage their inner voice to speak out. Thank you so much!
I have autism an severe senvorey Iusse this is what it like
On the outside, we had no idea what you were going through on the inside..
Know we do... And I'm going to Internet invisible hug you..hope you feel it in your heart since I can't be there in real to do it..
✨🤗✨
unless you don't like contact in which case I'll try and sit quietly next to you
A hug from me as well, take care stranger
+CzamyMlot Actually some People with Autism hate being hugged. I have a form of Autism called Asperger's syndrome and am one of those People. When People try to hug Me it just makes Me want to scream!
stephen lang Haha xD Sorry then. Warm wishes then?
Carly, I saw a video of you three years ago and just watched again. In the past I have worked with people with special needs as well as have family with autism and have always wondered what it was like to be in their shoes. Thank you for allowing the world to glimpse into your everyday life. You are an amazing young woman which such astounding talents!
It's appalling to see the ignorance in the comments here. People questioning the validity of the video, making jokes. Some people have to live this. Too busy debating the video to take in the message. If there was ever any question about the fate of humanity, it has been answered. The world is full of self serving bastards. It needs a purge. If you still question it, just wait for the slough of comments that are sure to come.
Binerexis You just made my point.
Honestly, it's youtube. What did you expect? The worst kind of people have been given the ability to almost anonymously comment.
hueseph Wah, wah, bitch, bitch. Lighten the fuck up.
Floreum
Yeah. I have to agree. Doesn't make it excusable though.
Trolls everywhere
I do not cry often. This made me cry. I am "high functioning" ASD with verbal capability but this video described everything about the auditory and visual sensory overload that I have been unable to describe my entire life. Thank you.
After reading a lot of these comments, the fact that a lot people that supposedly are affected in some way by a form of autism, whether it be personally or by knowing someone, can't or won't respect the plight of those whose autism is either different or worse than the one they're familiar with, to me, speaks volumes. It seems as though people get the idea that autism affects everyone differently and at different levels but are still quick to yell "büllshít" because what's being shown isn't how they've experienced it. Well no crap! This is based on one persons experiences. How can you expect people outside the autism community to try to support, understand and empathize with those afflicted when those in it can't even support each other?
And as far as the filmmaker not really knowing how it is, this IS Carly's channel. And since this is her channel, and she did take part in producing the vid and published it, I'd have to assume it met with her satisfaction.
Well done Carly! I'm glad you finally found your voice.
I have a son who is on the spectrum and i loved this video, some comments below are extremely ignorant and are not worth a read
This was beautifully done.
I watched a documentary which involved non verbal individuals, but as soon as they got to a computer, they started typing the most beautiful words.♡
I'm currently trying to get a job at a place that works with those whom have autism and I wish to make a career out of it.
Love this video, very beautiful, Carly~
Not to freak out you lucky non-autistics even more (and this video is SPOT ON and everything)
but.... a lot of times it can be much, *MUCH worse*.... 😢
Yeah, I think that's because the video can't convey the overstimulation from the SMELLS and the TOUCH that an Autistic person would feel in the real situation.
Shiny Tbone You're SO right!
Shiny Tbone touch is really difficult for us we have to really trust people beforehand. It varies from day to day. Our sense of temperature is different too
Why,oh why do I find out about Carly after so many years?My son is non verbal autistic and her content would have been /is of great help .I wish I could understand his every sensorial issue and how to respond to it.Carly,where are you these days?❤❤❤
Fiona coyne!!! This is so heart warming
Having autism, I don’t always mind the sound. Keyword: ALWAYS. Sometimes sound is way too overwhelming for me and my brain can’t help but focus on that one sound. Like when my sisters are talking loud or playing the four down the hallway, or my mom is talking when I’m trying to listen to a TV show.
People are so mean. You go Carly.
Carly, I went to my first "parent" autism class for my four year old autistic Granddaughter. When I came home my friend shared your breakout video on how you found your voice. You are truly my inspiration. Your parents and therapists make me want to be a better caregiver. But truly, you have showed me what I knew from the moment Monica was born...that we all rock and roll, and just need to find our instrument. I knew from the moment Monica entered this world that I was born to be her grandma. I vow to you. I will work double hard to give my Monica what she needs to find her voice, release, relief!
wow, this is deep
G-d bless Carley as she can teach us ALOT about those "locked inside". She is realizing a whole new world, and opening one for us also!
I have not read through the others comments but I wonder if diet was addressed at all. I developed what would be considered mild autistic traits in my 50's where I had trouble putting sentences together, making eye contact was difficult and even when I was aware that I was avoiding the persons face as I was talking, I had a very difficult time to fix my eyes on them when speaking. My eyes would dart all over but not on the person. Complete sentences started to elude me. Sometimes the order of the words written or spoken would get mixed up. I also had terrible mood swings and was angry at the slightest thing and even at the moment of being angry knew that this was not appropriate for the circumstance. This continued for many years. To make this short it wasnt until I changed my diet that all these difficult behaviors slowly went away and today they are not a part of me any longer. Maybe this is something to look into. Leaky gut, parasites, food allergies, inflammation, gut dysbiosis, and several other health issues caused by these were all at the bottom of my problems. Although these symptoms showed up later in my life my immune system was damaged as a child from Lyme and then antibiotics and mercury. These all kept my immune system in overdrive till it was so broken I had a difficult time functioning. I thought being tired all the time was normal. I am sharing this only in the hopes that maybe it will help someone else find a solution.
+K SA NO, this is not an issue with Carly's diet. I'm sorry you suffered an adverse reaction to food ingredients that you believe mimic Autistic symptoms, but as the mother of an extraordinary 6-year-old child with classic Autism, I can assure you this is not something that comes and goes in episodes, and it has nothing to do with diet. One symptom/characteristic of Autistic children is a great deal of food aversions, sensitive digestive systems, and restrictive diets. My son was projectile vomiting in the hospital from the day he was born, and he had a Pediatric GI from age 8 weeks. I am quite familiar with Carly's story, and she has also shown classic symptoms of Autism from her earliest days. She has a twin sister who is neurotypical, but Carly's developmental disorder stopped her from developing language skills the same as her sister through the first 2 years (and continues to be a struggle for her). My son has recently learned to speak on a rudimentary level, yet he has a non-verbal IQ over 140, he has Savant Syndrome, and I suspect he'll be a bright future ahead of him due to early interventions. Autism is a very specific, identified, and well-documented developmental disorder that occurs in the brain, and it is genetic. My husband has PDD-NOS and carries the gene. Please do a little research on Carly's story as she is a remarkable young woman who has facilitated her own breakthrough moments in ways many others cannot. The reaction she is showing us here is common sensory overload, and the reason we do not take our child to many bright, loud, or crowded places if we can avoid it, and why I hold my hands over his ears if I know a loud noise is about to sound.
+K SA Nonsense
+James Livingston I said developed autistic traits what would you call them if they look and act the same? Mine did start early with destruction to my gut microbiome but I didnt know about it and lived with mild symptoms for years but as the years went on so did the symptoms get worse and worse. If your immune system was as broken as mine you can also became autistic. A friend of mine was recently told by his doctor that in his opionion this man has autism also a mild case. He also has a really toxic gut. He has many of the same symptoms as I had. I do not know this Dr and this is what the man told me. He had asked the Dr do you think that I am autistic and the dr said definitely. So it can happen at any age.
K SA Nonsense.
+K SA Get your medical degree before you start handing out armchair diagnoses to people you've seen on the internet for 10 minutes or less. FACT: Autism is a BRAIN DISORDER and it is present at birth, no matter what place on the spectrum you are. FACT: Autism is GENETIC. FACT: A major common symptom of Autism is a highly sensitive stomach, specialized diets, digestive disorders, and food aversions. FACT: all these dietary anomalies experienced by Autistic children and adults are a result of the developmental disorder i.e. the different hard-wiring of the brain they are born with, NOT the other way around. FACT: once you live in a family with multiple afflicted people (who, incidentally, often have as many special traits worth envying as they have social and developmental difficulties) then you see first hand how this works, and it certainly is NOT something that develops over time after eating the wrong diet, nor is it something that goes away if you change the diet. My son had severe GERD from the day he was born, and he was on a special diet of Organic formula mixed with a special water-to-powder ratio as prescribed by his pediatric GI when he was 2 months old. My son's Autism has NOTHING to do with what he ate during the first year of his life (and it was pretty obvious he was Autistic by his first birthday), it has EVERYTHING to do with the fact that his father has PDD-NOS. Daddy is 40, and changes to his diet do NOT effect his Autism, and I would never want to fix him, anyway.
Everyone thinks their an expert on Autism, yet so few know anything substantial about it in the first place. Such a shame.
great job Carly ! Thanks for sharing this. Your comprehension of yourself is extraordinairy. My son is autistic and has learned to speak very well, yet he does not not comprehend his difference as he cannot appreciate that other people do not perceive the world the way he does. Please continue to share your perception of the world with us, it is very helpful and enriching !
A bully 'diagnosed' me with this.
Yikes...:(
cuz ur fucking autistic m8
Good. Autistic people mostly are much more observant and more capable of logical thinking than normal people. So, in a way, he called you smart.
I was just ranting to my friend earlier about how it pisses me off that people throw the word autistic around as an insult. Lots of autistic people are super smart and super gifted!!
Diagnose your bully with two broken arms. Fight back. Or don't. In my experience it doesn't matter. I was a strong kid who could beat up most bullies but it didn't matter because I got punished for fighting back, believe it or not. Anyone else experienced this?
Carly, You are amazing. I've got a daughter with Asperger's Syndrome (that describes people with autism on the "other end" of the spectrum for those who don't know) and even though you're quite different, you've helped me understand her better. That means a lot. So many teenagers struggle to find their place in the world. You're finding yours in incredibly meaningful ways. Congratulations on your achievements! I look forward to hearing more about you in the future.
Brave soul.
I cried and started rocking when I saw this, until my wife reached out and touched me. Thank you for having what it takes to give expression to the experience. It's so hard to explain to anyone.
i mean get to know her before u judge her.
***** You f'n POS!
***** No doubt she'd think the same question in regards to you; the difference is she's kind enough to not express it.
***** You wouldn't be able to get to that point,because you have made it clear that you have in intelligence of a dead stick
God bless you. I am a mother of a 7 year old autistic boy, and i understand the obstacles associated with day to day living. So, i just want to say thank you for attempting to educate people. Everybody is put on this earth with a purpose, and I beilive yours is this! Carly, you are making this world a better place, not only for you, for my little boy! Keep up the good work!🙏👼