NHS sickle cell patients face barriers to new treatment
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- Опубликовано: 12 сен 2024
- Sickle cell is an incurable disease that can mean a lifetime of blood transfusions, transplants and episodes of excruciating pain. Until recently, there has been little in the way of treatment. (Subscribe: bit.ly/C4_News...)
But a new drug approved for use in the NHS could see as many as a third of the 15,000 sickle cell patients in this country getting a treatment that reduces that pain. But - for many - there are barriers to getting it.
We heard from some of those patients.
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Nswana am Masi’s friend giving support from Zambia😊😊😊
I too have sickle cell and im saddened to hear that some patients have given up on their lives and feel that it will always be a handicap their lives. I have been able to cure myself from shoulder necrosis, pain crisis and live a very healthy life. It took a big change in mindset and a while lifestyle change to achieve this. I wish I could teach other patients with sickle cell to do the same. It starts with the strong desire and belief in self healing and knowing that our bodies and minds are so so much more powerful than we believe them to be. - we can play a huge role in improving our health even when most medical interventions don't always work and many health institutions havent offered concrete solutions for sicklecell patients.
youtube.com/@dromocure
@louisa - please help with lifestyle changes
🙏🏽🙏🏽 There is hope! I admire your strength.
﴿وَأَيّوبَ إِذ نادى رَبَّهُ أَنّي مَسَّنِيَ الضُّرُّ وَأَنتَ أَرحَمُ الرّاحِمينَ﴾ [الأنبياء: ٨٣]
(83) And [mention] Job, when he called to his Lord, "Indeed, adversity has touched me, and You are the most merciful of the merciful."
- الترجمة الإنجليزية
﴿فَاستَجَبنا لَهُ فَكَشَفنا ما بِهِ مِن ضُرٍّ وَآتَيناهُ أَهلَهُ وَمِثلَهُم مَعَهُم رَحمَةً مِن عِندِنا وَذِكرى لِلعابِدينَ﴾ [الأنبياء: ٨٤]
(84) So We responded to him and removed what afflicted him of adversity. And We gave him [back] his family and the like thereof with them as mercy from Us and a reminder for the worshippers [of Allāh].
- الترجمة الإنجليزية
Dang sucks … I learned about this in elementary 😢
Please how can I get this medication
Why is she not on oxygen? I have Sickle Cell AS. I hope she feels better.
From totally inexistant in the UK 40 years ago to most common genetic deffect now… what happened within those 40 years?
My PCP has me taking amitriptyline for the pain. ! I take it at night to help me sleep too !
But we are all drug seekers 😢😢🤦🏽♂️ I hate this world tbh
Finally found a cure for my son Sickle cell I’m so glad you came into my life. I pray for long life so you can save more souls,Thanks #druromi .
What's that cure hun ?
@@jessicapitter9813 It's a herbal medicine I ordered from #druromi