ALS Symptoms Spark Nonprofit in Lakewood Ranch
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- Опубликовано: 19 дек 2013
- ALS symptoms can be very difficult to explain in the beginning.
Kevin Swan was diagnosed with ALS in February of 2012. Within a couple of months of diagnosis, he left his job as Director of Communications for SingleHop, a rapidly growing Infrastructure Service Provider, and founded A Life Story Foundation. A 501(c)(3) organization, ALSF's mission is to tell the stories of PALS (People with ALS) in order to raise awareness, funds, and create action to help eradicate the disease.
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For more information about our research partner, please go to www.als.net/
To get more information about A Life Story Foundation, please go to www.alifestoryfoundation.org/
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Thank you for being vulnerable. You’re amazing. Rest easy
You have an amazing outlook on life.What a great inspiration you are.
God bless you you❤.My brother in law had ALS 11 Yrs. He got it at 29. It is a terrible disease. God be with you always. Prayers🙏
My husband was diagnosed with bulbar ALS back in October of 2023. I noticed his speech back in 2020, it was slurred then. It seems this disease is progressing so fast and it's so sad to watch him go through this. He fights and fights hard and I'm fighting with him 💙😢
I am continuously amazed by your courage and tenacity. You have been a bright spot in my life, and I pray for you and a cure for ALS deep in my heart. Thank you for sharing your story and your continuing fight. Your life is a testimony to the human spirit.
Awe, thanks Mrs. Craig. You were hands down, my favorite and best teacher!
@@ALifeStoryFoundation I always knew I would see you leading the way - I just thought it would be as a game show host!!! Thinking of you often
Amazing. I hope you are ok.
Amazing story. my father had ALS we need to get more education out there stay strong
Hi Amy, thanks for your support. We are going to start shooting videos on everything from the right wheelchair to how to make smoothies at home! Please subscribe and let us know what you want to see!
Hi everyone, my dad was diagnosed with Nurion motor Als disease and they told us there is no cure for it. But I want to thank Dr Ifa who reversed my dad Als with his herbal medicine treatment and I will continue to testify about treating him and God will bless you more. He can cure..Als, Herpes Hsv-1&2, HIV, HPV, Cancer, atonic seizures, reach him through Gmail.. drifahome@gmail.com
Doctor website: drifahomecentre.jimdosite.com
I am here to testify how great man called Dr Odigba Herbacure helped me out with herbs and roots which he prepared for me in use of curing ALS. I takes his product (cure) for (2) weeks before I am to known, I was totally cure out of it, and i promised him that i will testify my healing to the whole world about how he cured me which I am very happy doing now , Dr Odigba also cure all kinds of diseases ,HIV/AIDS HEPATITIS, A,B,C , CANCER, DIABETICS , FIBROID, ALL KINDS OF SPELL CAST ,and so much more , please you can get him contacted on via drodigbaherbalcure@gmail.com
Phone number: +2347061721242
You are very brave.
Be strong..bro.
And how are you today...
Wish you always good and be strong in life.
Thanks! We have lots of new content coming out soon! Please subscribe,
@@ALifeStoryFoundationI’m so happy you’re still with us!
Supporting you, I've been experiencing funny sensations that lead me to think I might have ALS. Supporting you all the way, this is a horrible disease keep fighting and God bless.
Don't diagnose yourself you're not a doctor. That's silly as hell
Funny sensations lol I don't think people really know what ALS . I have als and boy I knew it right off !!!
Hey there! Stay strong! I just find out this channel and it's very great channel giving us knowledge about this illness. My dad is a stroke patient with PEG and trache, and this year will be his 3rd year with stroke and PEG/trache. I saw another video about the bagpack you show us what you have inside, just like us...bring bag everywhere we go with tape, scissors, syringe hehehe. And at home he'll use his phlegm suction machine while outside we will give him like small pail to hold so easy for him to spit the saliva. But when he was in ward he can't spit at all and used to get assist to cough by using coughing assistance machine like you have but now with phlegm suction and I understand the struggle of that condition. Just now... when it's night those drooling saliva/coughing disturbing his sleep.
Btw during the bag pack video, she said..med school...is she a nurse? doctor? Lucky to have someone who is qualified with qualifications from med school as well! Me here studying different things in uni end up being a "nurse" with no nursing qualifications to my dad 😅 wish I'm a nurse with degree in nursing
Also...Heyy!! we are all stronger than we think! :)
Thoughts are with you💙💙💙
Thank you so much!
Love this man
God bless you 💔
God Bless you!
Hello Kevin. Thank you very much for sharing your story. I wish you the best.
I wanted to ask you, you mentioned you had muscle spasms at the beginning and it took 18 months to diagnose your ALS. So, for those 18 months you only had spasms? You didn't have any other symptom? Usually I read that people starts with weakness of some sort but you are the first one I heard it started with muscle spasms.
Happy to help. Yes, it started with muscles and weakness in my upper body.
@@ALifeStoryFoundation I see. Thank you for your reply. You are helping more than you can imagine. Best wishes, Kevin.
God bless strong men keep fighting
Thanks for your support! We won't ever stop fighting!
Thank God you are at your happy weight now!!!!
Definitely ! Me too.
keep fighting
Love this guy
Thanks man!
@@ALifeStoryFoundation welcome!
Vegetable diet and a crap ton of water people. Sweating is also very important.
This disease is just mean, and the fact that it takes your voice makes it even worse … Terrible disease, and anyone can catch it, which makes it scary …
Did you have nerve pain as well with your symptoms?
I take a pretty high dose of ibuproferin, but did have some pain initially. I also use medical marijuana...which you can see in another video.
Thanks so much Dr Alaho Olu on RUclips first of all for who you are as a person thank you for the wonderful work that you do for people in general no matter where you are I will always listen to your podcast and refer people to you because you care about people and the human body I listen to other people but you talk about the true disturbances disorders that means things that are out of order in the human system thanks 🙏 for curing my Amyotrophic lateral Sclerosis disease (ALS)..
I'm 66 woman who Aug 21 bulbar ALS.
My husband 65…same ..1 Year in
Is he ok
No, he has ALS
Geoffrey Min Your comment reminds me of when I was told that my father-in-law had a stroke, and I asked, “Is he okay?” The person that told me screamed back at me “NO! HE HAD A STROKE!” Of course I wanted to know if the stroke had killed him. His saying that to me angered me. I’m sure I don’t need to tell you why. He didn’t die. So in a sense he was okay. Rude comment.
@@barbaraclark9306 Sorry I wasn't trying to be rude. ALS seems like such a horrific disease, I couldnt understand how someone could even ask that question. I'm glad your father in law is ok btw, losing family is terrible
He's still alive.
An update....We are GREAT, actually, other than the ALS!
Fighter
buy golden rose ice color nail lacquer and apply on your middle finger.
Look like dystonia
Definitely gay
Uneeded comment
Definitely 10x the man you are.