reading vlog & | a week in my life with chronic illness

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  • Опубликовано: 10 июн 2023
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Комментарии • 40

  • @JamilaCAHProwse
    @JamilaCAHProwse Год назад +6

    Love love love the mix of the vlog: of having the fashion / haul / round the house / books / cooking. It breaks it up so nicely and just makes the whole thing so interesting and a joy to watch!

  • @lindacarson5429
    @lindacarson5429 Год назад +3

    Love a bit of everything vlog & always here for a random haul of fruit, drinks & Vanish!

  • @michelleslifeonrepeat
    @michelleslifeonrepeat 10 месяцев назад

    ME is so hard. Our brains try so hard to grasp, and fix it, but we are at its mercy so often.

    • @hannahmay11
      @hannahmay11  10 месяцев назад

      So true, acceptance is an ongoing battle x

  • @evie5298
    @evie5298 Год назад +9

    as a sixteen year old girl who has been adjusting to life with chronic illness (ME/long covid) for the past 2 years, i can't stress enough how important, even life saving, your content has been for me. i feel like i am only just now beginning to recover a sense of self after losing everything i used to love doing, everything that i felt made me who i am. your videos have been so important for me to even just have something to look forward to, so thank you ❤️‍🩹 and not to mention all the good books i've read because of you!! sending all my love and thanks your way 💌 chronic illness is shit, but you've helped make life a bit less shit for me, and that means a lot.

    • @hannahmay11
      @hannahmay11  Год назад +1

      Hey Evie thanks so much for your comment, it means so much to me that I can help others feel less alone. I hope little by little you can get back or even find new parts of you whilst navigating sickness. It is an ongoing journey but you’ll get there ❤️‍🩹🫶🏻

  • @JamilaCAHProwse
    @JamilaCAHProwse Год назад

    I felt this so deep in my bones and my heart. You articulate sm of exactly how it feels to be debilitated. I'm in the trying to be positive and rly enjoy the moments where I can do things phase rn, but that is such an effort and choice to make and you're absolutely right, we don't need to be sick in order to be grateful. It's hard to find those windows and pockets to keep going and the ebb and flow of either being in a full on crash/anger/frustration stage vs an "ok this is how my reality is rn how can I find a window of good" is such a constant and soooo draining. Last week I was angry and this week I feel a bit brighter bc I did get out. Sending you some of that warmth and positivity, in the hope that this week is a brighter one for you ❤

  • @kyliemaslen5969
    @kyliemaslen5969 Год назад

    the way you said “my favourite thing: a mooch!” i was like omg ilysm. also, i really loved TOXIC POSITIVITY by whitney goodman who debunks and addresses all the “everything happens for a reason” rubbish. i particularly enjoyed the way she talked about privilege within this live laugh love nonsense.

    • @hannahmay11
      @hannahmay11  Год назад +1

      Hahaha 🌞😇 wow need to read to channel this anger lol x

  • @ArehBoo
    @ArehBoo Год назад

    i missed your vlogs so much, thanks for always providing a safe and cosy corner on the internet

    • @hannahmay11
      @hannahmay11  Год назад

      So Glad you like them!🫶🏻🫶🏻🫶🏻

  • @RobynElizabeth28
    @RobynElizabeth28 Год назад

    I originally followed you for your book content and as someone with Endo, I thought it would be nice to relate to someone. Just started watching this as someone also with CFS/M.E and did not know until you said you also deal with this condition daily, your symptoms were striking such a chord and your inner feelings/frustrations. The value in your words and openness really made me stop berating myself. It is so easy to be unkind to ourselves. xx

    • @hannahmay11
      @hannahmay11  Год назад

      Thats so kind and I’m sorry to hear you’re in this boat too 🫠🫶🏻

  • @JannetjeW
    @JannetjeW Год назад

    Hi, as a fellow hay fever person in The Netherlands,it is vey important if you have been outside, to leave your clothes outside of your bedroom,

    • @hannahmay11
      @hannahmay11  Год назад

      I need to get better at that for sure!

  • @DearestDiaries
    @DearestDiaries Год назад +1

    Love an everything vlog! Also excited to hear you talk about Shiny Happy People - I've watched the first episode so far but can't wait to get stuck into the rest. I was sooooo fascinated by 19 Kids and Counting. One of the other daughters has also released a book talking about her experiences within the cult and her family, not sure if its just available in the States but I've seen a couple of interview clips of her talking about it!

    • @hannahmay11
      @hannahmay11  Год назад

      Ohhh it was so good I gobbled it up. I saw that on some of the commentary channels I watch aha. She’s still quite religious I beleive so her perspective is interesting

  • @katielouise210
    @katielouise210 Год назад +4

    couldn't agree with you more about the need for content warnings in books. just started reading 'something wild and wonderful,' a romance by anita kelly, and the author warned of use of homophobic language before the start of the text. it's just so easy? i don't see why this is something needing debating.

    • @hannahmay11
      @hannahmay11  Год назад

      Urgh that is so frustrating 🫠

  • @JungianHeights
    @JungianHeights Год назад +5

    Tom for most of this video: 🧍🏼‍♂️

    • @hannahmay11
      @hannahmay11  Год назад +2

      Lmao he is reluctant to appear at the best of times

    • @JungianHeights
      @JungianHeights Год назад +1

      @@hannahmay11 The food he made looks good, and I’m not vegan or veggie, so that’s saying something!

    • @JamilaCAHProwse
      @JamilaCAHProwse Год назад +2

      this is tom always. I feel like spotting Tom is like playing where's wally

  • @aleksismil
    @aleksismil Год назад +1

    When you spoke of this vicious cycle of anxiety and stressing about not having control over your body really resonated with me. After having a steady dietary exclusion of certain foods I was finally diagnosed with IBS. It was a relief knowing that it is not in my head and that now I know when something is wrong with my body's reaction to certain foods and where it comes from. But sometimes it is annoying to say the least because one day you eat something and you are fine and the next day that same food makes you sick.

    • @hannahmay11
      @hannahmay11  Год назад +1

      A diagnosis can be so validating but you’re right, it’s only part of the puzzle when illness can be so unpredictable ❤️‍🩹

    • @aleksismil
      @aleksismil Год назад

      @@hannahmay11 Exactly. I just wanted to thank you for being open and sharing your experiences. And also books that tackle this subject. Already planning to pick up some of your recs. ❤️

    • @hannahmay11
      @hannahmay11  Год назад +1

      Thank you so much it means a lot to know it’s all worth it

  • @rebekavesela9382
    @rebekavesela9382 Год назад +1

    thanks for sharing, 💗 your intro clip made me think of a crip theory i read recently, iť s a newish book and called Crip Negativity (by J. Logan Smilges). you pretty much summed it up but the motto of the book is “bad crip feelings being felt cripply”. it really helped me to validate my feelings and find myself in the disability justice discourse. thought you might like it

    • @hannahmay11
      @hannahmay11  Год назад +1

      I just bought that on my kobo! It’s hard to come by a physical copy it seems but I’ve been so excited after following the author on Twitter for ages ! So glad to hear it was great

    • @JamilaCAHProwse
      @JamilaCAHProwse Год назад +1

      this sounds like such a good read!

    • @kyliemaslen5969
      @kyliemaslen5969 Год назад

      this sounds amazing, thanks for sharing

  • @JamilaCAHProwse
    @JamilaCAHProwse Год назад

    omg and that veg chopper looks life changing (can you tell I'm commenting as I go along)

    • @hannahmay11
      @hannahmay11  Год назад

      Hahaha it’s ok I’ll link you

  • @pastorytime2683
    @pastorytime2683 Год назад

    There's no such thing as a mundane grocery haul in my eyes 😂. Also - yes, trigger warnings on books please!! And I also watched Shiny Happy people - tbh I wanted a bit more from it like a bit more depth? But it was really interesting/grim. Siân

    • @hannahmay11
      @hannahmay11  Год назад

      Hahah true. Yeh I agree I wanted at least 4 more episodes. I hope its reception encourages producers to do a second season

  • @JamilaCAHProwse
    @JamilaCAHProwse Год назад

    Also I love *a cross section of shit I love* as a category

  • @sasquatchblue
    @sasquatchblue Год назад +3

    Such a great vlog!! I really liked the beverágĕ review lol, and think it's great that you're sharing a little more about the reality of chronic illness (so long as it's not at the expense of yourself - fck the trolls (ง︡'-'︠)ง). I've requested Oh Sister and Without You, There Is No Us, and appreciate the rec - I don't think I would've come across them otherwise!

    • @hannahmay11
      @hannahmay11  Год назад

      Thank you so much for the encouragement I appreciate it too ❤️happy reading