if i had a quarter for every youtube dressup lady i follow who has EDS, i would have 75¢. which isn't enough for the vending machine but is still, like, thrice what i was expecting to find in my pockets
@@itslikelymakeup_i do not, but i've been learning a bit from creators like you, snitchery & jessica kellgren-fozard about the condition! as someone with a very different disability i appreciate opportunities to learn about other chronic illnesses, especially from creative ppl ;v; they remind me that my nonconformity to the standards of ableist society is something to take pride in, because of the kinder and more unique perspectives it prompts me to take 💖
@@asmokeus Snitchery is a zebra, too? I had no idea! I knew about JKF, as I've been following her since before her mixed connective tissue (I think that's what it was) dx was changed to EDS. There's also Martina, formerly of Simon and Martina of Eat Your Kimchi/Sushi, now King Kogi. And of course the late Mel Thompson (RIP). JKF is neurodivergent as well, as she's recently been dxed with ADHD. I'm AutiHD myself, along with hEDS, and it seems to be INCREDIBLY common among people with EDS to also be neurodivergent in some way. I've heard lectures from pretty prominent medical professionals about EDS in which they say it's so common that they would say that any time you see one, you should look for the other.
I don't know if it's a coincidence, but I've noticed that many people who "are good with their hands", ie. can sew, paint e.t.c. have very bendy fingers 🤔 I don't have BTW...
this is such an interesting observation!!! i wonder if there is a correlation. i have read that ADHD/autism & hyper-mobility often go hand in hand. could be something going on there!
Does that hurt? Or is it just a cool party trick? I truly hope it doesn't hurt! Thanks for being so damn brutally honest! You never know who you might help to figure out this may be their issue, resulting in diagnosis?!... or just help period! Your a beautiful blessing Ms Jordi!🫶🏾🥰❤️🧡💛💚💙💜🩷
unfortunately all my joints hurt all the time because i have a connective tissue disorder. it also causes the bendy-ness! i always thought this was normal-ish so i hope if people see this video they realize that sometimes it isnt normal & they should ask their doc 😅 thanks for being so sweet! i hope you’re having the best day ever.
Sending love from another fellow EDS gal. Do you also have a lot of the stupid GI disorders that kinda co with EDS? Like I have gastroparesis and SMAS which lead me to have a J feeding tube and port . I have to say tho, port and weekly IV hydration and meds at infusion therapy has helped me stay out of the actual hospital for years. Super suggest anyone with any of these to get Infusions of fluids often if you can, helps stabilize soooo much. I'm a creative portrait photographer, I really want to do a " freak show" style photoshoot showcasing EDS in a bendy cool twisted way. A lot of models we work with oddly have eds
Oo eds is scary. On of my classmates had it and was trying to get a bunion surgery and it led to so many complications that she was in a boot and in extreme pain for like 1-2 yrs in middle school and another well quite literally all 4 yrs of hs. Shes fine now i think????? Since shes in college w me now and shes not wearing a boot anymore
Not dumb at all. My son inherited his from his dad. He has two bends though so it looks like a little zig zag finger and they are so sweet. Love yourself. Every little thing. 💗
you’ve been my favorite makeup youtuber to watch for years now and i can’t believe i just found out you also have hEDS !!!! id actually watch you during horrible flare ups to distract me from the pain. this is so crazy omg
HOW… JUST. HOW?😹 I literally thought on some of the things ‘oh but it should be like that for me too’ so I tried it and no.. wth?😹 it’s really cool:0 but again, HOW😹👀❤️ still cool tho:3 Edit: like the thumb bending backwards… how hahah❤️
I have EDS and thought that my hypermobility (I can do what she’s doing plus partially dislocate my shoulders and hips at will) I had no idea it wasn’t “normal” or something everyone could do until I learned about EDS in my early 20s 😅
#justedsthings I have most of that, myself. Fun! My thumbs aren't AS bendy (sometimes I can touch my arm with them, sometimes I can't), and I can only flap the tops of SOME of my fingers, but yup. I used to be able to bend both thumbs back behind my palm at a 90 degree angle and wedge them behind the bottom knuckle of my index finger. Now I can only reliably do it with one, because I'm old. But to be fair, I shouldn't really try to keep them able to do that because it's probably bad for them. :D I can also do the reverse namaskar (praying hands, but behind my back, up between my shoulder blades), which is probably disturbing to see, and not good for my stupid hypermobile shoulders and the stupid rock-hard muscles trying to hold their dumb wobbly asses together. Yes, the asses of my shoulder blades. My shoulder blade asses. Anyway. If only cool 'double-jointed' party tricks was all we had to deal with, eh? . . . Time for me to go (try to) have a poo and probably faint afterwards (if the attempt was at all successful). Wheeeee!
Hi Jordi, I immediately thought Ehler Danlos syndrome. I'm really sorry you have this condition. I have spondylarthritis, fibromyalgia, endometriosis, and just learned about having thyroidal cancer (it's o, it's not the baddest type). You probably face other conditions too as ED is often, like any auto immune desease, an association of diverse shit. I really hope you are ok, I guess the chronic fatigue and pain. Wish you the best ❤
My daughter freaked me out one time when she bent her fingers backwards overlapping each other. I didn’t know she had that until I frantically took a picture and sent it to her pediatrician over fb. Iol I have the same but never saw that in person 😣
i’ve never seen anyone else able to bend their top finger joints like that. i thought i was an alien. i used to go up to random people and do it in their face like “can you do this????!?!” (i didn’t understand social interactions as a kid) but everyone always thought it was weird/gross that i could bend the top joints of all of my fingers.
Omg were TWINS meeeeee too 😅 I'm lost for words and I'm also double jointed or at least that's what I wast told it was called when I've shown it to others
Lots of people with EDS get called 'double-jointed' as kids when they can do weird stuff like this. It's actually even sort of part of the diagnostic criteria, if I remember correctly.
This absolutely blows my mind because I’ve never seen someone have the same amount of flexibility in their hands in the same ways that I do! 💕
if i had a quarter for every youtube dressup lady i follow who has EDS, i would have 75¢. which isn't enough for the vending machine but is still, like, thrice what i was expecting to find in my pockets
youtube dressup lady is what i am going to tell people i am from now on 😂 do you also have EDS?
@@itslikelymakeup_i do not, but i've been learning a bit from creators like you, snitchery & jessica kellgren-fozard about the condition! as someone with a very different disability i appreciate opportunities to learn about other chronic illnesses, especially from creative ppl ;v; they remind me that my nonconformity to the standards of ableist society is something to take pride in, because of the kinder and more unique perspectives it prompts me to take 💖
No literally same I love seeing people with my same condition
@@asmokeus Snitchery is a zebra, too? I had no idea! I knew about JKF, as I've been following her since before her mixed connective tissue (I think that's what it was) dx was changed to EDS. There's also Martina, formerly of Simon and Martina of Eat Your Kimchi/Sushi, now King Kogi. And of course the late Mel Thompson (RIP).
JKF is neurodivergent as well, as she's recently been dxed with ADHD. I'm AutiHD myself, along with hEDS, and it seems to be INCREDIBLY common among people with EDS to also be neurodivergent in some way. I've heard lectures from pretty prominent medical professionals about EDS in which they say it's so common that they would say that any time you see one, you should look for the other.
You're an extra special kinda cool. No wonder you're makeup is so great.
Wait, fingers bending like that in the first one aren’t normal? Mine do that
I don’t have EDS but I know several who do and I have the upmost respect for y’all, I also have chronic pain and makeup helps me soooo much!
I don't know if it's a coincidence, but I've noticed that many people who "are good with their hands", ie. can sew, paint e.t.c. have very bendy fingers 🤔 I don't have BTW...
this is such an interesting observation!!! i wonder if there is a correlation. i have read that ADHD/autism & hyper-mobility often go hand in hand. could be something going on there!
Does that hurt? Or is it just a cool party trick? I truly hope it doesn't hurt! Thanks for being so damn brutally honest! You never know who you might help to figure out this may be their issue, resulting in diagnosis?!... or just help period! Your a beautiful blessing Ms Jordi!🫶🏾🥰❤️🧡💛💚💙💜🩷
unfortunately all my joints hurt all the time because i have a connective tissue disorder. it also causes the bendy-ness!
i always thought this was normal-ish so i hope if people see this video they realize that sometimes it isnt normal & they should ask their doc 😅
thanks for being so sweet! i hope you’re having the best day ever.
I can do all but the tip of the pinky thing
Sending love from another fellow EDS gal. Do you also have a lot of the stupid GI disorders that kinda co with EDS? Like I have gastroparesis and SMAS which lead me to have a J feeding tube and port . I have to say tho, port and weekly IV hydration and meds at infusion therapy has helped me stay out of the actual hospital for years. Super suggest anyone with any of these to get Infusions of fluids often if you can, helps stabilize soooo much.
I'm a creative portrait photographer, I really want to do a " freak show" style photoshoot showcasing EDS in a bendy cool twisted way. A lot of models we work with oddly have eds
This is an amazing idea!!!
Oo eds is scary. On of my classmates had it and was trying to get a bunion surgery and it led to so many complications that she was in a boot and in extreme pain for like 1-2 yrs in middle school and another well quite literally all 4 yrs of hs. Shes fine now i think????? Since shes in college w me now and shes not wearing a boot anymore
My 10 year old daughter loves that we both can do all the same finger things you can do 😅🖤
aawww bendy hand high fives!!
Let’s see the 90degree angle thumb! 😩 I have it and it makes me so self conscious..
My pinky is crooked if it makes you feel any better lol both of them. My mom has them too so it’s genetic.
They legit look broken in half lol 😂
Feeeeeeeeengers.
Love the glasses! 👓❤️
Love you Jordi🩷
Yep this is how I started figuring out I was hyper mobile as well, I just always thought I could do cool party tricks 🎉😂
same!!! until everything started to hurt 😂🫠
😳 your thumb!
Not dumb at all. My son inherited his from his dad. He has two bends though so it looks like a little zig zag finger and they are so sweet. Love yourself. Every little thing. 💗
my hyper mobility is caused by a disability that also causes terrible chronic pain in all my joints, so for me personally, its dumb!
you’ve been my favorite makeup youtuber to watch for years now and i can’t believe i just found out you also have hEDS !!!! id actually watch you during horrible flare ups to distract me from the pain. this is so crazy omg
i hate that you have pain but i also love that my videos have helped with your flare ups. it makes my eyes teary 🥹
it also inspires me to film more 🩷
HOW… JUST. HOW?😹 I literally thought on some of the things ‘oh but it should be like that for me too’ so I tried it and no.. wth?😹 it’s really cool:0 but again, HOW😹👀❤️ still cool tho:3
Edit: like the thumb bending backwards… how hahah❤️
I have EDS and thought that my hypermobility (I can do what she’s doing plus partially dislocate my shoulders and hips at will) I had no idea it wasn’t “normal” or something everyone could do until I learned about EDS in my early 20s 😅
My fingers used to do this. Then I got arthritis and they're all stuck, and half the time I can't even hold a pen. I miss my bendy fingers. 😢
Omg! Someone else who’s fingers aren’t straight 😂 seriously I don’t notice it generally speaking but I can’t straighten them without physically trying
#justedsthings I have most of that, myself. Fun! My thumbs aren't AS bendy (sometimes I can touch my arm with them, sometimes I can't), and I can only flap the tops of SOME of my fingers, but yup.
I used to be able to bend both thumbs back behind my palm at a 90 degree angle and wedge them behind the bottom knuckle of my index finger. Now I can only reliably do it with one, because I'm old. But to be fair, I shouldn't really try to keep them able to do that because it's probably bad for them. :D
I can also do the reverse namaskar (praying hands, but behind my back, up between my shoulder blades), which is probably disturbing to see, and not good for my stupid hypermobile shoulders and the stupid rock-hard muscles trying to hold their dumb wobbly asses together. Yes, the asses of my shoulder blades. My shoulder blade asses.
Anyway. If only cool 'double-jointed' party tricks was all we had to deal with, eh?
.
.
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Time for me to go (try to) have a poo and probably faint afterwards (if the attempt was at all successful). Wheeeee!
I got diagnosed this year and have followed you for years, so it was nice to see someone I knew of also had it for some reason lol
you’ve been my favourite content creator for almost a decade and i never knew you were an hEDS baddie just like me 🥹🥺 so much bendy love from me
Hi Jordi, I immediately thought Ehler Danlos syndrome. I'm really sorry you have this condition. I have spondylarthritis, fibromyalgia, endometriosis, and just learned about having thyroidal cancer (it's o, it's not the baddest type).
You probably face other conditions too as ED is often, like any auto immune desease, an association of diverse shit.
I really hope you are ok, I guess the chronic fatigue and pain. Wish you the best ❤
My daughter freaked me out one time when she bent her fingers backwards overlapping each other. I didn’t know she had that until I frantically took a picture and sent it to her pediatrician over fb. Iol I have the same but never saw that in person 😣
I finally found someone with the same as me I thought I was just strange
I could do this a few months ago, but i ended up fucking up both of my knuckles and now i cant bend my fingers back without pain
I kept saying "me too! Me too!" my dumb fingers helped me scare away boys who were bugging me when I was little 😂
I can also do ALL these things with my fingers too
Girl..........❤
i’ve never seen anyone else able to bend their top finger joints like that. i thought i was an alien. i used to go up to random people and do it in their face like “can you do this????!?!” (i didn’t understand social interactions as a kid) but everyone always thought it was weird/gross that i could bend the top joints of all of my fingers.
I can do same thing plus I can pop my shoulder out of place n my hip. It scares my bf 😂😂😂😂
I can do about half of those, malleable hands lololol
I had a friend with fingers like this
wait i can do all of these things 😅
Mine do that too!!!
Omg were TWINS meeeeee too 😅 I'm lost for words and I'm also double jointed or at least that's what I wast told it was called when I've shown it to others
Lots of people with EDS get called 'double-jointed' as kids when they can do weird stuff like this. It's actually even sort of part of the diagnostic criteria, if I remember correctly.