This Is The Face of ALS: Desi's Story

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  • Опубликовано: 29 сен 2024
  • May is ALS Awareness Month. This Is The Face of ALS is a project of the ALS Association's Greater New York Chapter to help raise awareness by sharing stories of those living with the disease.
    RICH & TINA’S STORY: • This Is The Face of AL...
    NELSON’S STORY: • This Is The Face of AL...
    PAUL’S STORY: • This Is The Face of AL...
    INTRODUCTION: • This Is The Face of ALS
    To learn more about how you can help fight ALS and further accelerate finding treatments and a cure visit www.als-ny.org #ThisIsTheFaceOfALS #ALS #ALSAwareness #ALSInthisTogether
    Video Editing: www.acesalisbu...

Комментарии • 50

  • @zentafergiefergie7044
    @zentafergiefergie7044 2 года назад +10

    We should count our lucky stars every day

    • @EricStorm23
      @EricStorm23 Год назад +1

      That’s not enough…we all should fund raise for a cure

    • @shelley7209
      @shelley7209 3 месяца назад

      @@EricStorm23they did a huge fund raiser across the country. They never find a cure . It’s awful . What’s the last thing they cured ..

    • @KarenCummings-s7b
      @KarenCummings-s7b 2 месяца назад

      Amen❤❤

  • @elizabethraygoza2508
    @elizabethraygoza2508 3 года назад +8

    Thanks so much for sharing this is a big help I am a caregiver and help me to learn more everyday to provide best care to other God bless you ❤🙏🏼

  • @elizabethconroy7665
    @elizabethconroy7665 3 года назад +6

    Hello pretty Desi
    You are a wonderful and inspirational Lady
    I’m a new Subscriber here from Amman Jordan Middle East
    Looking forward to following your Journey

  • @rere7380
    @rere7380 3 года назад +3

    I wis I could afford that chair for my mom.
    It's almost 3 year sincle last time I having conversation with my mom

  • @jackieprice6666
    @jackieprice6666 2 года назад +2

    You are so sweet and beautiful. I would never know there was anything wrong with you, but the title of the video.

  • @zentafergiefergie7044
    @zentafergiefergie7044 2 года назад +3

    Beautiful lady god bless you ⚘🙏

  • @kaywallace6139
    @kaywallace6139 3 года назад +3

    God’s blessings for you.
    You are very brave and beautiful.

  • @alancondren9293
    @alancondren9293 15 дней назад

    What is ALS what does that stand for

  • @campbellmarty36
    @campbellmarty36 2 года назад +3

    One question ??? GOD????. What was the reason to create this for humanity to deal with??!! Why????!!!!! 🤔🤔🤔 Bless your ❤️ lady! I’m SO sorry you were cursed on earth with this!!!!

    • @deanjelbertaustria6174
      @deanjelbertaustria6174 2 года назад

      One day science will heal all of the sickness and diseases.. we just have to wait..

    • @campbellmarty36
      @campbellmarty36 2 года назад

      @@deanjelbertaustria6174 good thinking... but that’ll NEVER happen my friend!. But it doesn’t hurt to wish upon a star! Lots of things SCIENCE will NEVER heal or cure!! Fact!!

    • @cygnusablackhole74
      @cygnusablackhole74 2 года назад

      @@campbellmarty36 it gonna happen soon

    • @gabrielblake5173
      @gabrielblake5173 2 года назад

      I want to give this testimony for the world to see and read how powerful God have blessed #DrItua on RUclips with his wisdom in curing me from Herpes virus.

    • @gabrielblake5173
      @gabrielblake5173 2 года назад

      I want to give this testimony for the world to see and read how powerful God have blessed #DrItua on RUclips with his wisdom in curing me from Herpes virus.

  • @dazeldibujosfeos8435
    @dazeldibujosfeos8435 3 года назад +3

    She’s cute

  • @martasatgo
    @martasatgo 3 месяца назад +1

    May you have peace and prosperity

  • @tu0ootu
    @tu0ootu 3 месяца назад +1

    beautiful person

  • @kevinb.jonesphotography4571
    @kevinb.jonesphotography4571 3 года назад +2

    God Bless

  • @BR9900-w5l
    @BR9900-w5l 3 года назад +2

    End ALS !

  • @khananme
    @khananme 3 года назад +2

    This is sad

  • @soumialuna5176
    @soumialuna5176 2 года назад +1

    please i'am from Algeria and i one bay this chair to my father he have the AlS please tell me haw can i bay it please

  • @Takeithome345
    @Takeithome345 3 года назад +1

    I’m not in your shoes ! Please stay strong !

  • @williekellerwhitaker1531
    @williekellerwhitaker1531 2 года назад +1

    Blessings

  • @Tayyab-hr1gp
    @Tayyab-hr1gp 4 месяца назад

    What is price of this voice device

  • @giselemartin7370
    @giselemartin7370 2 года назад

    Courage Desi❤️❤️❤️

  • @BigShean
    @BigShean 3 года назад

    Champion

  • @titasilva5523
    @titasilva5523 2 года назад

    Omg

  • @rgutbrown
    @rgutbrown 4 года назад

    Cheers China! I love you

  • @rgutbrown
    @rgutbrown 4 года назад

    Dessi

  • @InHitchWeTrust
    @InHitchWeTrust 3 года назад

    What big party in the sky???

  • @suessosimplesogoodrecipes5410
    @suessosimplesogoodrecipes5410 2 года назад +2

    Loved your video, thank you for posting xoxo

  • @026sharna
    @026sharna 3 года назад

    What is the name of the machine she is using for talking

    • @lissiebaguio2250
      @lissiebaguio2250 2 года назад +1

      I believe you have to voice bank with a program called Acapela and the the machine is separate not sure but I want to say it’s a Tobi

    • @leaveittolefty
      @leaveittolefty 4 месяца назад

      how does she control it?

  • @ASM881
    @ASM881 2 года назад

    Justin Beiber? Really?

    • @platosfriend
      @platosfriend Год назад +4

      That’s what you got out if this? 🤦‍♀️