Shane....I watch Squirmy and Grubbs all the time. I just found this. I am 2 minutes in and am weeping. I've not seen this side of you. You are a giant. A Monumental day of light on this earth. Bless you.💙
Ha. This showed up in my recommendations. He says “I will never...” It’s three years later. He’s got a very beautiful girlfriend. His own place and a RUclips channel that has scored well over 100k subscribers now. ❤️
I am the girlfriend of my wonderful man who is 21 and has SMA type 2. He shared this with me and all this does is bring to light the horrible nightmares that go through my mind. While I know this is the outcome of his future I wouldn't leave ever. He is my world and I will continue to fight for a cure. I will be with him til his end and I will carry on his legacy. We live each moment to the fullest knowing tomorrow may not come.
Shane this was very inspiring to me. Your body may be “disabled” but your mind is extremely strong and powerful. I admire your strength and determination.
People! Myself included. Get off the drama channels filled with hate and ignorance. Channels like this one are what life is all about... Counting our blessings and continuing to put others first.
Shane, I hope u go back to this video, every once in awhile. Look at you now!! UR life has SpinRaza, ur in love. Hannah, her family, your family, all ur friends. Now half a million subscribers on ur amazing channel. Keep writing. Ur words are chosen so thoughtfully, and they move and touch me deeply. This talent is a gift. You are a gift. You've come so far. I'm so thankful for ur major life changes since these scary times. Life is precious, add true love to that, life doesn't get much better than that!. My heart swells with pride, knowing how well ur doing now. I loved u then, every day since, followed ur journey, I've read and listened to ur books. I'm with you and Squirmy, and I'm so truly excited to see what life brings ur way. Go kick that soccer ball, kiddo! That's a pun for living and dying on YOUR TERMS. U are my hero. Truly. Just think of the tiny things that everyone bitches and moans about everyday. Makes us all reset our whine-o-meter. Much Love from N Carolina. Daria B.💙💚💛💜💪
You are a prince among men, Shane, and such an inspiration! When my 18-yr-old special needs son begins feeling a little too down, we watch your videos as well as the SBSK series! Respect! ❤️🙌🙏
Shane you have a disposition about you that inspires all who know you. Always know you are a child of God and that he loves you. Live life to the fullest. Don’t give up. Death is not the end-rather a beginning to eternally greater things.
Shane, you are the most amazing man I have ever seen. I am so thankful that I saw your RUclips channel in my recommended list. I am humbled by your strength, grace and humor. I am tall. I was 6’ tall at 15 years old and by age 17 I was 6’2”. Very , very, tall for a woman. I loved it and played basketball in high school. I went to college, got my Masters degree and traveled the US for several years working in my career field in LA, Montana, Virginia and DC. It was exciting and sometimes stressful but I loved my life. Then I got sick. A weird sick. Extreme pain all over, extreme exhaustion. I couldn’t lift myself out of the chair, had to use a wheelchair. I felt like I had been hit by a train. I have been whining for 10 years now, ever since I got sick with Lupus, Osteo Arthritis, and Fibromyalgia. I have to use a rollater when I’m outside the house. I have to sit about every 3 to 5 minutes when the pain in my back reaches a level I cannot tolerate. I sit on my rollater and the pain goes back down. This is from Scoliosis which I have had my whole life but reached this level 7 years ago. I will NEVER whine again. If you can deal with your (Nightmare), I can deal with my situation. I cannot thank you enough for making this very personal video. I could not watch it without crying. I am very tender hearted. God made me that way so as hard as I have tried to toughen up I can’t. I am looking forward to reading all of your books. You are a writer, a teacher, an encourager, an amazing man and so much more. I am so glad Hannah came into your life. I can only imagine how you feel about that girl. Thank you Shane, Thank you.
This was a very emotional video, 😢so touching.. but knowing that Hannah will be part of your life was comforting to know while watching this video..🤗 Your writing Shane is amazing , you are so good. So happy I found your vlog...🙏👍
After watching all your videos with Hannah, and seeing the vibrant energy you exude, this video broke my heart. I may never get to meet you, but I'm grateful that you are on this earth, and that you embrace this life with courage, pride, laughter and love. You are wise beyond your years Shane. Thank you for sharing your life with the world! XO
Shane, you have such great purpose in life, you are so valued as a genuine human being, God definitely has a plan for you, you have changed many lives for everyone that has met you.
Although this film presents the somber reality of Shane's life, it doesn't capture how super-smart he is, with a wildly droll sense of humour. In spite of having a very serious, debilitating condition, he is also an absolute blast. Check out his website and other links that feature him. Here's looking at 70, Shane!
Ohhh, sweetheart, my heart just shattered watching this, I pray for you, you remind me soooo much of my son, in fact you both get the same expressions, same eyes! I lost my son this past July ( it will soon be 1 year) on the 26th. He was my heart!! He didn’t have what you have, he had stage 4 colon cancer he went through so much, when they did surgery, they found 4 different kinds of cancer in him. But, he was sooo strong, but, I could see what it took out of him when I seen this, I have to wonder if he thought like this he was 35, didn’t make it to his 36 Birthday. I saw one of your videos one day, and I saw him in your eyes, so now, I watch every one! You and Hannah crack me up, you give me the laughter , I lost on July 26, 2018. He lost his battle, you fight for all your worth for yours!! Your a wonderful handsome man! I am sooo happy I stumbled on your video that one day .... you and Hannah bring me smiles, don’t have many anymore , thank you and God Bless❤️
Very well written Shane, very sad, very scary, and then very inspiring! I'm proud of you kiddo! (And yes you could be my son lol, I'm 51!!) cheers to the rest of your life. ♥️
Tonight was one of my scary nights also where I thought I’m so sick and I felt I had nowhere to turn, nothing to cling onto. But this vid showed me that no matter the pain all I have to do is focus my thoughts - I am going to beat this PTSD. Thank u Shane.
You have visited so many dark dark places. And yet you're still here fighting for your life with an amazing sense of humor and a beautiful heart. This movie was difficult to watch but very important to watch. Thank you Shane for putting this together and letting us see you the side of your disease that isn't so easy and pretty. Because you handle it so well we rarely see this side of what you go through when faced with an illness on top of your disability. pneumonia. You're an inspiration to me and I appreciate every video that you put together
kavita deva He now has a successful RUclips channel with his beautiful girlfriend Hannah! It’s called Squirmy & Grubs. They hit 157,000 subs today and they have only been on for 6 months! They are both truly inspiring!
Although my pain and suffering is real and all consuming, this brief walk with you in this video reminds me that we all have our pain to bare...let us be gentle towards each other even when the pain & suffering may be concealed to levels we Cod never know.... As you u would have traded places with the girl with the bleeding hand, I would trade places with you so I could know what parental LOVE feels like. I envy that & would trade in a heart-beat! You are a glorious SOUL in the process of changing lives for the better! It’s all God asked of US and you’re DOING IT! You and Hannah bring me such incalculable JOY! Thank you for sharing YOU with US! You ROCK!
Shane burcaw this is the most amazing and emotional piece of truth I have ever seen. I listened to you say, ‘I will get out of this hospital alive, I will get married, I will have kids and I will see my brother grow up’’ you just need to have babies with Hannah now and uve done it all. I cried listening to you speak. I’ve just received your two books today and I’m hoping they stir up as much emotion as this did. Thankyou for sharing this with us, it was fantastic, your fantastic, such strength and determination x
Amazing, YOU DID IT. I so enjoy all the videos of you and Hannah. I am so happy you two found each other and I do believe you will get married and have children and I will be watching and waiting! My name is Diane, and I live in R.I.. I will be watching and waiting as I am contemplating retiring soon from nursing. Love each other, life is short! God Bless You Both
Shane. You are so prolific in your words you tell the story so well. I am in tears. I have learned so much about disability and accessible needs. You are a fine young man with a dedicated wife and fulfilling your dreams. Thank you for all you and Hanna do to make people aware
This video made me so sad because you, Shane Burcaw are a fighter, a champion!! Compared to then, your life has changed so much because of Hannah!! She is your inspiration and you are really happy because of her and it's great to see. God Bless you Shane!! You rock!!!
You have a purpose and a plan that God Himself desires for you. The gold (not silver) lining per say. I really think that hearing you and your sweet girlfriend has really opened my eyes. I have had access issues from an injury (short time of 9 weeks). I'm so sorry things have been so rough, but seeing that the darkness is the darkest before the dawn. Glad you're doing better now and thank you for sharing with all of us. Keep on keeping on!
It's 4:04 am in the Morning... and Shane you Just move me with your words... Everything about you is just Amazing! Fast forwarding and looking back but seeing forward, Shane you deserve a lifetime of Love, Joy, & Peace & all that you had ever hoped for... Thank you my friend and Cheers to your future with Hannah 💎👣👸💕✝️💓
Shane ..i watch squirmy and grubs all the time..watching this video,i was not sad,because you Shane are a champion.I love you for who you are ,the strength you display to us and the loving person you are ..Bless 😘
You inspire me to really enjoy the little things in life. Even though I have never met you, I am so proud and glad I have found you. You are so strong Shane Burcaw. I will follow you wherever your life takes you. All my love, strength and good health to you.
Shane, thank you for your honesty in this film that will reach so many. I have just found you and Hannah on RUclips and I look forward to your videos. I have uncontrolled epilepsy and I have thought about most of the exact same things as you in this video. Although our disabilities are different, we are one in the same at helping others be more aware that we exist inside of these shells called human bodies. I sincerely hope to one day meet you and say thank you for all you do in person. You encourage and inspire me. Hugs to you and Hannah and your family and furry friends. 💕
You are a great man with a great soul.i am filled with joy that you are now 26 with a bright and beautiful future.as i always say "never ever give up".
This is amazing I don't know anyone with SMA but I do have a brother with autism and cerebral palsy and each day is a blessing and so many people take their life for granted.Shane has been an inspiration to me since I read his book.
Shane, deepest gratitude for being able to watch this inspiring and life changing video. Your verbal and written skills as well as your depth of charachter are magnificent. i'm so happy to see you achieving and helping countless people through your perseverance and courage. I enjoy Squirmy and Grubbs and feel as it has become a part of my everyday life. Wishing you continued health,propserity and joy.
Ugh. This was hard to watch. Knowing Shane still has these deep-seated fears that he covers through humor and a seemingly indestructible will, as he alludes to them every now and then on S&G, it's super depressing. He hates being an inspiration but hey, when you've got it, you've got it! 😍
thank you for making this video even though I'm crying every minute of it...I miss my mom so much...this helped wake me up to realize how my dad must feel going to the hospital nowadays....it's hard for him to say into words but after watching this my heart just melts
Wow. I'm glad I've been following your channel so I knew you didn't die, but the tears still ran down my face as I watched this. I'm joyful the world hasn't lost you.
Wow Shane, thank you for sharing this beautiful film with us. I’m also a wheelchair user, and can understand the fear - my chances of my three score years and ten are fairly slim, but f**k that - I’m going to make the most of what I have ! You are doing so brilliantly, and give hope to disabled ppl everywhere - and for this, and the hope you give - thankyou 💜
Incredible and inspirational! I follow/have been subscribed to Squirmy & Grubs for this past year, just now I ran across this video. Brilliantly done Shane. Now, that beautiful sparkle in your eye shines with more intensity and wisdom. At 27 you and Hannah are engaged, discussing children, traveling globally for both much deserved pleasure and tending to your ongoing missions of raising awareness, encouraging an increasing community toward advocacy and action, continuing to write and much more. Your humor has captured our hearts, your courage; our souls You are a true teacher!, I am sooooo glad that you are "on the 'Raza"! Thank you so much.
The video is so well put together and so touching to watch I was immediately teary eyed I got very emotional watching it but in the back of my mind I knew that today you're 27 years old engaged to a beautiful woman Hannah and definitely we expect to see children of your own brought into this world. Maybe knowing this I was able to see the whole video without crying my eyes out and seeing the great end of the video. Thank you for sharing this story. 💖
Absolutely incredible story with writing that captured the enormous knot I had in my stomach. I knew when I began this that Shane is well and quite happy with his wife, but his story was so captivatingly vibrant with description and real-life suspense that my body reacted to the possibility that he described.😷😭
Shane is such an inspiration for me. So young, so brave and so thankful for the life he is living, even though it's not the kind of life someone would ever want to have. I wish him all the best! Lots of love from Italy.
I speak life and evening strength to you. You WILL live and not die. My prayer is that you continue to progress and not regress, far more than any doctor or even your own thoughts and/or imagination. It ain’t over til it’s over and God call you home to be with him. #SpeakLife
I think to get the full impact of this video one has to watch their RUclips channel and see just how full of life Shane is. I have been binge watching them (him and his girlfriend) on here for the last few weeks and his sense of humor is just awesome. To see this personal side of him makes all the humor that much more endearing.
Holy crap! Actually sobbing at this!! I’m so glad you are thriving, in love and above all else happy! I’ve binge watched squirmy and grubs since finding your page, xx
I send you my love and support!! The two of you are just wonderful. And wonderful together. I'm so happy that you have each other!! One love.. One love, to the both of you.♥️♥️
So honest and raw, heartbreaking. Shane you didn't die. I'm so glad. If it is true that we choose our life before our soul enters our bodies as infants, then wow, what a brave soul you must be. The plan you created for this life seems to be unfolding and you are creating an amazing legacy. Your thoughts during a period of impending death are not unique though. Each of us face dreams and goals that are unmet, and longed for! When is it a good time to die? I do not fear death, just dying. Life itself is often more frightening than death, and yet how beautiful can the most simple and ordinary moments be! To live, struggle, love , suffer and die is the essence and privilege of our human condition. This we all share in common. I love You are not alone. Sharing your journey has been a profound gift for me, and I'm sure there are thousands of others that walk with you, (or roll) as well! Love and peace to you and Hanna and all you love. I
I just found your RUclips channel with Hannah about 2 weeks ago & I've already watched all of your videos. I love you guys! I just found this video & it's a real eye opener of where your mind was at that point in your life. I'm so happy for you & where you are today. Your character, intelligence & humor are incredible!
This is real good bro you motivate alot of people you have the life many wish to have I just started watching your videos it's amazing how you and your wife overcome obstacles keep up the good work and may God bless you richly
It is so great to see Shane now 26 years old and doing so well. He will survive but most importantly he is thriving.
Yaasss!! I love their new Channel !!! So HAPPY he found love.....it gives me hope that true love DOES exist!!
And now with an amazing fiancé and dog!!
Shane....I watch Squirmy and Grubbs all the time. I just found this. I am 2 minutes in and am weeping. I've not seen this side of you. You are a giant. A Monumental day of light on this earth. Bless you.💙
Exactly my thoughts. Beautifully said.
@@Wemius61 Me too. He will accomplish so much in life; he has such a spark in him to have success each day.
I too watch his show and can't watch more than a couple of minutes of this video.
me too Checker. Shane keep on keeping on xxx
My life is brightened by Shane’s existence! Keep rolling on up, buddy!
Little did you know Shane that 9 years later where you'd be. An inspiration to all.
Ha. This showed up in my recommendations. He says “I will never...” It’s three years later. He’s got a very beautiful girlfriend. His own place and a RUclips channel that has scored well over 100k subscribers now. ❤️
❤️
Actually he's 26 now... so it's almost been 10 years since the moments he's speaking of... heart Shane and his story
And engaged
I am the girlfriend of my wonderful man who is 21 and has SMA type 2. He shared this with me and all this does is bring to light the horrible nightmares that go through my mind. While I know this is the outcome of his future I wouldn't leave ever. He is my world and I will continue to fight for a cure. I will be with him til his end and I will carry on his legacy. We live each moment to the fullest knowing tomorrow may not come.
Victoria Steele...Love Him RIGHT NOW! That’s what We ALL REALLY DO! No One knows a second ahead. Grab Life!😍💜
I’m crying so much. I am SO glad you’re still alive, Shane. This was beautiful.
Brilliantly written is an understatement
Love Shane's wink(s) at the end...so incredibly cute!
Shane this was very inspiring to me. Your body may be “disabled” but your mind is extremely strong and powerful. I admire your strength and determination.
People! Myself included. Get off the drama channels filled with hate and ignorance.
Channels like this one are what life is all about... Counting our blessings and continuing to put others first.
9 years later..
Tiffany Curtis now now he’s living his best like got a beautiful girl
@@Andrew19991000 I know. SO CUTE😍♥️
Shane, I hope u go back to this video, every once in awhile. Look at you now!! UR life has SpinRaza, ur in love. Hannah, her family, your family, all ur friends. Now half a million subscribers on ur amazing channel. Keep writing. Ur words are chosen so thoughtfully, and they move and touch me deeply. This talent is a gift. You are a gift. You've come so far. I'm so thankful for ur major life changes since these scary times. Life is precious, add true love to that, life doesn't get much better than that!. My heart swells with pride, knowing how well ur doing now. I loved u then, every day since, followed ur journey, I've read and listened to ur books. I'm with you and Squirmy, and I'm so truly excited to see what life brings ur way. Go kick that soccer ball, kiddo! That's a pun for living and dying on YOUR TERMS. U are my hero. Truly. Just think of the tiny things that everyone bitches and moans about everyday. Makes us all reset our whine-o-meter.
Much Love from N Carolina.
Daria B.💙💚💛💜💪
You are a prince among men, Shane, and such an inspiration! When my 18-yr-old special needs son begins feeling a little too down, we watch your videos as well as the SBSK series! Respect! ❤️🙌🙏
Shane you have a disposition about you that inspires all who know you. Always know you are a child of God and that he loves you. Live life to the fullest. Don’t give up. Death is not the end-rather a beginning to eternally greater things.
Shane, you are the most amazing man I have ever seen. I am so thankful that I saw your RUclips channel in my recommended list. I am humbled by your strength, grace and humor.
I am tall. I was 6’ tall at 15 years old and by age 17 I was 6’2”. Very , very, tall for a woman. I loved it and played basketball in high school. I went to college, got my Masters degree and traveled the US for several years working in my career field in LA, Montana, Virginia and DC. It was exciting and sometimes stressful but I loved my life.
Then I got sick. A weird sick. Extreme pain all over, extreme exhaustion. I couldn’t lift myself out of the chair, had to use a wheelchair. I felt like I had been hit by a train.
I have been whining for 10 years now, ever since I got sick with Lupus, Osteo Arthritis, and Fibromyalgia. I have to use a rollater when I’m outside the house. I have to sit about every 3 to 5 minutes when the pain in my back reaches a level I cannot tolerate. I sit on my rollater and the pain goes back down. This is from Scoliosis which I have had my whole life but reached this level 7 years ago.
I will NEVER whine again. If you can deal with your (Nightmare), I can deal with my situation.
I cannot thank you enough for making this very personal video. I could not watch it without crying. I am very tender hearted. God made me that way so as hard as I have tried to toughen up I can’t.
I am looking forward to reading all of your books. You are a writer, a teacher, an encourager, an amazing man and so much more.
I am so glad Hannah came into your life. I can only imagine how you feel about that girl.
Thank you Shane, Thank you.
Ok I cried ugh I love him, his story, his family, Hannah. Beautiful people. So glad he’s alive and thriving!!!
This was a very emotional video, 😢so touching.. but knowing that Hannah will be part of your life was comforting to know while watching this video..🤗 Your writing Shane is amazing , you are so good. So happy I found your vlog...🙏👍
Dude, you are going to live for a long time, you are AMAZING!
you should post this one on the S&G channel for exposure purposes, as it's incredible!
After watching all your videos with Hannah, and seeing the vibrant energy you exude, this video broke my heart. I may never get to meet you, but I'm grateful that you are on this earth, and that you embrace this life with courage, pride, laughter and love. You are wise beyond your years Shane. Thank you for sharing your life with the world! XO
Shane, you have such great purpose in life, you are so valued as a genuine human being, God definitely has a plan for you, you have changed many lives for everyone that has met you.
At 26 his life is so different now. What a difference 10 years make.
Wow!! I'm bawling like a baby, Shane. I'm am so glad that you and Hannah found each other. I wish the both of you a long and happy life! ♡
Unbelievable Shane! You're life is on track now!💖
Although this film presents the somber reality of Shane's life, it doesn't capture how super-smart he is, with a wildly droll sense of humour. In spite of having a very serious, debilitating condition, he is also an absolute blast. Check out his website and other links that feature him. Here's looking at 70, Shane!
I am overwhelmed with emotion watching this. Shane I love your attitude and I love how far you’ve come.
Ohhh, sweetheart, my heart just shattered watching this, I pray for you, you remind me soooo much of my son, in fact you both get the same expressions, same eyes! I lost my son this past July ( it will soon be 1 year) on the 26th. He was my heart!! He didn’t have what you have, he had stage 4 colon cancer he went through so much, when they did surgery, they found 4 different kinds of cancer in him. But, he was sooo strong, but, I could see what it took out of him when I seen this, I have to wonder if he thought like this he was 35, didn’t make it to his 36 Birthday. I saw one of your videos one day, and I saw him in your eyes, so now, I watch every one! You and Hannah crack me up, you give me the laughter , I lost on July 26, 2018. He lost his battle, you fight for all your worth for yours!! Your a wonderful handsome man! I am sooo happy I stumbled on your video that one day .... you and Hannah bring me smiles, don’t have many anymore , thank you and God Bless❤️
As a mama of a boy who has Duchenne, so many tears! Thank you for representing the MD community so perfectly and beautifully.
Very well written Shane, very sad, very scary, and then very inspiring! I'm proud of you kiddo! (And yes you could be my son lol, I'm 51!!) cheers to the rest of your life. ♥️
Tonight was one of my scary nights also where I thought I’m so sick and I felt I had nowhere to turn, nothing to cling onto. But this vid showed me that no matter the pain all I have to do is focus my thoughts - I am going to beat this PTSD. Thank u Shane.
How ya doing Careen?
It is amazing how much his life has changed...so glad we still have this beautiful man in our lives 💞
Very well written! Compelling and utterly truthful. I have read Shane's book, Laughing at my Nightmare, which is a very good read!
This is beyond inspirational, love you Shane, so happy you found Hannah.
You have visited so many dark dark places. And yet you're still here fighting for your life with an amazing sense of humor and a beautiful heart. This movie was difficult to watch but very important to watch. Thank you Shane for putting this together and letting us see you the side of your disease that isn't so easy and pretty. Because you handle it so well we rarely see this side of what you go through when faced with an illness on top of your disability. pneumonia. You're an inspiration to me and I appreciate every video that you put together
kavita deva He now has a successful RUclips channel with his beautiful girlfriend Hannah! It’s called Squirmy & Grubs. They hit 157,000 subs today and they have only been on for 6 months! They are both truly inspiring!
@@BeccaBean2020 yes I know. I have watched all of their videos. They are awesome aren't they.
SHANE BURCAW YOU HAVE MY HEART ♥️
Your words are extremely powerful. Much love strong man.
Although my pain and suffering is real and all consuming, this brief walk with you in this video reminds me that we all have our pain to bare...let us be gentle towards each other even when the pain & suffering may be concealed to levels we Cod never know....
As you u would have traded places with the girl with the bleeding hand, I would trade places with you so I could know what parental LOVE feels like. I envy that & would trade in a heart-beat!
You are a glorious SOUL in the process of changing lives for the better! It’s all God asked of US and you’re DOING IT!
You and Hannah bring me such incalculable JOY!
Thank you for sharing YOU with US!
You ROCK!
Shane burcaw this is the most amazing and emotional piece of truth I have ever seen. I listened to you say, ‘I will get out of this hospital alive, I will get married, I will have kids and I will see my brother grow up’’ you just need to have babies with Hannah now and uve done it all. I cried listening to you speak. I’ve just received your two books today and I’m hoping they stir up as much emotion as this did. Thankyou for sharing this with us, it was fantastic, your fantastic, such strength and determination x
Amazing, YOU DID IT. I so enjoy all the videos of you and Hannah. I am so happy you two found each other and I do believe you will get married and have children and I will be watching and waiting! My name is Diane, and I live in R.I.. I will be watching and waiting as I am contemplating retiring soon from nursing. Love each other, life is short! God Bless You Both
Shane. You are so prolific in your words you tell the story so well. I am in tears. I have learned so much about disability and accessible needs. You are a fine young man with a dedicated wife and fulfilling your dreams. Thank you for all you and Hanna do to make people aware
So glad you are here alive and happy with Hannah! You are an amazing person! love you guy's 😊💖
This video made me so sad because you, Shane Burcaw are a fighter, a champion!! Compared to then, your life has changed so much because of Hannah!! She is your inspiration and you are really happy because of her and it's great to see. God Bless you Shane!! You rock!!!
You have a purpose and a plan that God Himself desires for you. The gold (not silver) lining per say. I really think that hearing you and your sweet girlfriend has really opened my eyes. I have had access issues from an injury (short time of 9 weeks). I'm so sorry things have been so rough, but seeing that the darkness is the darkest before the dawn. Glad you're doing better now and thank you for sharing with all of us. Keep on keeping on!
Who is here 5 years later after watching Squirmy and Grubs and 1. can tell how Shane has always been a writer but 2. so so happy that he is thriving
I love how things have changed for.you and I adore your poetic spirit. Purely beautiful. Best wishes to you and Hannah xxx
What a totally gripping and honest story. You had me laughing and crying. Shane, you write beautifully! Thanks for sharing.
Love him he’s so amazing! You do find love you have Hannah and us!
It's 4:04 am in the Morning... and Shane you Just move me with your words... Everything about you is just Amazing! Fast forwarding and looking back but seeing forward, Shane you deserve a lifetime of Love, Joy, & Peace & all that you had ever hoped for... Thank you my friend and Cheers to your future with Hannah 💎👣👸💕✝️💓
Thank you Shane for wanting to live! I love you an d your humor and spirit. You are an inspiration
Shane ..i watch squirmy and grubs all the time..watching this video,i was not sad,because you Shane are a champion.I love you for who you are ,the strength you display to us and the loving person you are ..Bless 😘
This is amazing!Im telling everyone to share it everywhere. So inspirational.
You inspire me to really enjoy the little things in life. Even though I have never met you, I am so proud and glad I have found you. You are so strong Shane Burcaw. I will follow you wherever your life takes you. All my love, strength and good health to you.
Shane, thank you for your honesty in this film that will reach so many. I have just found you and Hannah on RUclips and I look forward to your videos. I have uncontrolled epilepsy and I have thought about most of the exact same things as you in this video. Although our disabilities are different, we are one in the same at helping others be more aware that we exist inside of these shells called human bodies. I sincerely hope to one day meet you and say thank you for all you do in person. You encourage and inspire me. Hugs to you and Hannah and your family and furry friends. 💕
You are a great man with a great soul.i am filled with joy that you are now 26 with a bright and beautiful future.as i always say "never ever give up".
You're an amazing young man Shane x
This is amazing I don't know anyone with SMA but I do have a brother with autism and cerebral palsy and each day is a blessing and so many people take their life for granted.Shane has been an inspiration to me since I read his book.
Shane, deepest gratitude for being able to watch this inspiring and life changing video. Your verbal and written skills as well as your depth of charachter are magnificent. i'm so happy to see you achieving and helping countless people through your perseverance and courage. I enjoy Squirmy and Grubbs and feel as it has become a part of my everyday life. Wishing you continued health,propserity and joy.
What a great dude unreal how strong this guy is wow moved me no matter how bad your life may get stay positive shane god bless u brother
I wish more people had seen this, it is truly inspiring, and a wonderful story! Go Shane, 26 and going!🥰
Powerful and inspiring
Victorious man ,God bless you
Blessing you and I wish I had your strength. You are a hero.
I am in tears!! You are such an inspiration Shane. God has big plans for you. Never give up my friend. The best is yet to come!!❤
Ugh. This was hard to watch. Knowing Shane still has these deep-seated fears that he covers through humor and a seemingly indestructible will, as he alludes to them every now and then on S&G, it's super depressing.
He hates being an inspiration but hey, when you've got it, you've got it! 😍
So beautifully written!!!
Incredibly powerful, Shane♡ Your brutal honesty is painful and beautiful . I am so happy that you are thriving!!
So beautiful Shane. What a beautiful writer you are. I love you and Hannah. Sharing your gifts in a remarkable. way. So proud of you and Hannah.
That was incredible. So intimate, so raw, so informative. Shane, thanks for sharing!
thank you for making this video even though I'm crying every minute of it...I miss my mom so much...this helped wake me up to realize how my dad must feel going to the hospital nowadays....it's hard for him to say into words but after watching this my heart just melts
Wow. I'm glad I've been following your channel so I knew you didn't die, but the tears still ran down my face as I watched this. I'm joyful the world hasn't lost you.
Shane you've come so far!!! And will go further!
Wow Shane, thank you for sharing this beautiful film with us. I’m also a wheelchair user, and can understand the fear - my chances of my three score years and ten are fairly slim, but f**k that - I’m going to make the most of what I have ! You are doing so brilliantly, and give hope to disabled ppl everywhere - and for this, and the hope you give - thankyou 💜
I am crying of happy tears knowing that you are now married with a beautiful wife who loves and takes care of you. ❤️❤️
How far shane has come. He would never of thought he would be married in 2020.
He is thriving and soon he and Hannah will get married and maybe have children. We are so happy you are doing so well.
Incredible and inspirational! I follow/have been subscribed to Squirmy & Grubs for this past year, just now I ran across this video. Brilliantly done Shane. Now, that beautiful sparkle in your eye shines with more intensity and wisdom. At 27 you and Hannah are engaged, discussing children, traveling globally for both much deserved pleasure and tending to your ongoing missions of raising awareness, encouraging an increasing community toward advocacy and action, continuing to write and much more. Your humor has captured our hearts, your courage; our souls You are a true teacher!, I am sooooo glad that you are "on the 'Raza"! Thank you so much.
You are a warrior Shane! I'm so glad you (and Hannah) live such a happy life now! ❤️
Love his smile 😄❤️
Love You, Love You, Love You, Shane!
You Sir, are an absolute inspiration to all of us !
The video is so well put together and so touching to watch I was immediately teary eyed I got very emotional watching it but in the back of my mind I knew that today you're 27 years old engaged to a beautiful woman Hannah and definitely we expect to see children of your own brought into this world. Maybe knowing this I was able to see the whole video without crying my eyes out and seeing the great end of the video. Thank you for sharing this story. 💖
Beautiful and touching video. Continue to show us how to be grateful and celebrate life, Shane.
You are an inspiration Shane and an excellent writer too
Absolutely incredible story with writing that captured the enormous knot I had in my stomach. I knew when I began this that Shane is well and quite happy with his wife, but his story was so captivatingly vibrant with description and real-life suspense that my body reacted to the possibility that he described.😷😭
Shane is such an inspiration for me. So young, so brave and so thankful for the life he is living, even though it's not the kind of life someone would ever want to have.
I wish him all the best! Lots of love from Italy.
All I can say is WOW
What an amazing video
A very thoughtful and provocative film.
Thank you.
I speak life and evening strength to you. You WILL live and not die. My prayer is that you continue to progress and not regress, far more than any doctor or even your own thoughts and/or imagination. It ain’t over til it’s over and God call you home to be with him. #SpeakLife
I think to get the full impact of this video one has to watch their RUclips channel and see just how full of life Shane is. I have been binge watching them (him and his girlfriend) on here for the last few weeks and his sense of humor is just awesome. To see this personal side of him makes all the humor that much more endearing.
Holy crap! Actually sobbing at this!! I’m so glad you are thriving, in love and above all else happy! I’ve binge watched squirmy and grubs since finding your page, xx
Wonderful narration. I'm so happy that you are the strong, determined person that you are.
I send you my love and support!! The two of you are just wonderful. And wonderful together. I'm so happy that you have each other!! One love.. One love, to the both of you.♥️♥️
So honest and raw, heartbreaking. Shane you didn't die. I'm so glad. If it is true that we choose our life before our soul enters our bodies as infants, then wow, what a brave soul you must be. The plan you created for this life seems to be unfolding and you are creating an amazing legacy. Your thoughts during a period of impending death are not unique though. Each of us face dreams and goals that are unmet, and longed for! When is it a good time to die? I do not fear death, just dying. Life itself is often more frightening than death, and yet how beautiful can the most simple and ordinary moments be! To live, struggle, love , suffer and die is the essence and privilege of our human condition. This we all share in common. I love You are not alone. Sharing your journey has been a profound gift for me, and I'm sure there are thousands of others that walk with you, (or roll) as well! Love and peace to you and Hanna and all you love. I
I love Shane burcaw!! I'm so glad he's not going to die!
I just found your RUclips channel with Hannah about 2 weeks ago & I've already watched all of your videos. I love you guys! I just found this video & it's a real eye opener of where your mind was at that point in your life. I'm so happy for you & where you are today. Your character, intelligence & humor are incredible!
AWES0ME Video Shane!!!!
S0 GLAD You Made It, And You've Got A L0NG LIFE To Live!!!
This moved me so much. You are so incredible
So great showing our alikeness.
Thank you Shane
Oh Shane, thank God you survived this. You are a fighter.
This is real good bro you motivate alot of people you have the life many wish to have I just started watching your videos it's amazing how you and your wife overcome obstacles keep up the good work and may God bless you richly