Autism In Public | Coffee With David
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- Опубликовано: 30 сен 2024
- I tested out a microphone for Braylee's singing. We are currently working on getting her used to wearing it for long periods of time. We also took Braylee out for a bike ride for the first time this year! For coffee with David, we talked about staying at home vs. getting out in public. It is not easy at all but we believe it is important for us to open up the world for Braylee and not be stuck behind closed doors. We are not the best at getting out in public but we are getting better. We just want to give Braylee the best opportunities to succeed. #autism #weefam
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Agree totally, I also didn't go out much at first because I was scared/worried about Abby and other people. Once I got more confident on how to handle her behaviour then I started going out more. Now we take her everywhere 💖💖
We love to hear this!! ❤️
Yeeees WEE Fam!! I 100% agree with u guy's in the way it seems to make thing's worse ALL around when u seclude the Little's!! I guess the 1st thought from us all is jus to eliminate the situations all together in avoiding outing's ALL together, with the hopes with time it will all jus get better. But for us as well , it never worked out that way! Lol! Our daughter is the oldest an had always been above average with everything she accomplished, even back with her milestones. She made thing's seem easy at time's. An we also have a son who is the baby of the family, and who has had issue's from a very small toddler up until present time, he has really struggled socially at time's over some of the issue's he deals with, due to some of his disabilities an some of the behaviors they come with. So we jus took things slowly when it came to him. It takes away soo much when a kid is limited to their house. An ur rite on how some things just DNT occur at home so u can't find ways to deal with what ever may happens away from home. We had to ease certain place's in at a slower speed for our son. Bigger crouds, loud places an busier places where a NO NO when he was very young. As he got a lil older an was exposed to those situations slowly he has gotten to where he is currently an can manage long periods of time in all of the above. I'm so very proud of both my children, they are each amazing in their own ways. An they both have pride an confidence in all they accomplish, an my son knows that its OK to be different an its OK to have to take his time on what ever it is he is doing! Lol cuz what REALLY does it mean to be "Normal" , ur normal may not be my normal rite? So NEVER judge a book by it's cover 💖
You should be proud of them!! You did great. Like you said, even starting small and slow is so much more beneficial than to not try things at all. They need the patience and guidance to be successful. 🙂
the intro so cool lv her playing looked so fun and the singing oh my goodness she does awesome on her bike your both amazing parents lv the coffee cup
She’s a little rusty on functioning her bike but she picked it up!
You speak truth. Benefits the kids and the world to bring them out. Not always easy and no we don’t do it every time....but worth it.
It’s like the old saying, nothing worth having comes easy. Our lives prove that often! It’s really true though, it isn’t just about us or the kids, the world really needs the exposure as well.
Yes, kids should be included out in public to get the feel for things. If we hold back on them, they will never get the opportunity to experience what life is all about. Great job riding the bike Braylee!
Exactly!! There is so much to life that we want Braylee to be able to do and see! Even as an adult, there is so much that I’m now experiencing with her that I never was able to growing up, like traveling!
Another important point to add to this conversation is the fact I have other kids that are neuro typical and have needs as well. I don't like to make them miss out on anything because of Abby, so we make Abby come to all the sporting events and other activities, we always have a backup plan if she just absolutely can't handle it, but we make sure the other kids don't have to leave cause of Abby. It just takes plenty of planning, perseverance and patience from everyone 💖
You are so right! We don’t have any other children who’s needs have to be met as well, however, we take Braylee places knowing that if it really is that bad we can always just leave.
yes you need to go out it helps your child grow,yes it’s scary but they need stimuli and different situations if you let fear or behaviour stop you your child’s world well be limited,small i had a back pack that attached to my parents when i’d run good luck
Agreed. It can be intimidating, but the benefits for us have outweighed any negatives.
carsyn doesn't even peddle yet so maybe I might connect some straps to her peddles and and try to figure out how to get her to peddle. Anyways braylee I absolutely love your singing your so amazing. I hope one day carsyn will be peddling her back along side her sisters.💙
😂 I know I’m not mean to laugh but I spit my coffee when you read that reply initially. I thought surely the answer was a joke. Wow, limit going out. We are stuck sometimes and can’t take Dusty out because she’s so hightened and it’s not safe. I acknowledge for Dusty is can be other things upsetting her that she can’t communicate. But that situation is LITERALLY the number one situation we are trying to work on and improve.
Staying at home was legitimately someone’s response. It blew my mind.
The Wee Family i’d like to say I’m fully shocked by it, but our channel has opened my eyes to a spectrum of opinions and comments I was otherwise unaware even existed. Ahh the interwebs hey. 😂 🙈
Sorry wees, I forgot it hasn't rained at least in your video. My oversight.
I love you guys personality you ares super goofy and sweet and fun !
The song "I Like to Ride My Bike" by Queen comes to mind. I learn a lot from you, Wees. How are you guys holding up on your snow? Do you have a swimming pool in your backyard yet? Didn't you say Braylee likes water? :) I hope the situation is under control. Braylee is lucky to have a couple of excellent parents. :)
The snow is melting pretty quickly! The birds are out and chirping so Spring has definitely arrived! We do not have a swimming pool in our backyard. We wanted to put an above ground one in this summer but it requires too much work since the entire yard practically is sloped. She will, however be in swim lessons! She does LOVE the water. ☺️
Have a awesome weekend! 🦋🦋🦋🦋
So... I get my notifications, but only when I log into my RUclips... it isn't pushing them to my phone, but it's pushing ads, it's a little frustrating
We are trying to figure out if there’s any way to fix it. 😕
I am do not a fear take my 2 son out but my sons are very good in shops or restaurant.
What I did with my toddler was go places there were no people or very few so he could run and I could catch him. Or be completely fenced in. We started at 15 months though. If it's an older kiddo then it becomes much more difficult to handle. I would still use the same approach. We transitioned to empty stores he was able to be caught if he fled. Basically need to have the ability to catch them when they flee in a safe area. The children's area of the library is great and goodwill during slow periods. A completely fenced in field and or playground. Takes a lot of time to condition them and build trust so patience is key. Also helps to determine what the cause of the bolting is. If you start in an open unpopulated area outside and gain progress you know it's not being out in open areas. If you transition to an empty store you can figure out if lights, music, stimulus is a trigger. Basically what ever it is your doing needs to be strictly to expose them to the environment, to condition them, build trust and understanding. We also play a game at home that we run back and forth from one end of the house to the other and yell stop to stop and go to go. The idea is if he decides to unexpectedly bolt i can yell stop and it will trigger the game allowing me to catch him or keep him safe. Don't do it when you need to go shopping for things you need. Don't do it when you want to attend an event. Do it during a time when your only purpose is to work on and understand what is needed to better help them adapt. If you can't catch them or keep them safe you need someone with you who can and will. Number 1 reason our providers can't be elderly, physically disabled or unable to run and react quick. Sorry for such a long comment.
Yeah you have to start somewhere and just because you’re getting out doesn’t mean you can’t pick a setting or situation to set yourself up for success! That’s a great method to work on it and really work on those skills. Braylee works at ABA with staff on “stop and wait” to help with eloping. She is mostly past it, just the last month it’s come back. It’s phasing back out, but the idea of getting out in public in spite of behaviors can apply to any or all behaviors too!
David, I've been a Trekkie since about 1973 when at the tender age of 4 I used to lay on the shag carpet and watch the original series in syndication on an old RCA color TV. The term "engage" was actually used in the 1964 pilot - 23 years before Patrick Stewart made it famous in the pilot of Star Trek: The Next Generation. So yeah, I get the reference. I'm going to go play with my AMT model kits now lol.
PS: Star Wars is cool too - if a bit derivative of Flash Gordon.
- an old Sci Fi geek.
Well, I feel like I should have known that. Thanks for the info. Love learning about anything Star Trek. I need to watch the original series again, its been way too long.
I used to be afraid to take my son out because I was doing it all in my own and I would get overwhelmed. Now we attempt everything. We might not be able to stay out for very long but we still attempt. We also usually bring someone with us for big trips. It's nice to have an extra set of hands.
That’s so good to hear! You never know unless you try it out. And extra hands always help. We go everywhere as the 2 of us with Braylee
Regarding that Facebook post, I don't belong but instead prefer to seek out others' opinions on an app called "My Autism Team." Facebook IMO is good for "awareness", but IME it sucks for "acceptance."
That being said, I completely understand why someone would want to limit excursions out of a place of fear. I think it's a good idea to have at least two adults per one child when out in the community, to have set goals and expectations with the child - not to mention a good escape plan lol!
Seriously though, I used to take my boys out into the community all the time with a BCBA or at least a behavioral specialist in tow when my spouse was unavailable. That person was there to train ME as much as it was to interact with my son. My biggest challenge was that we would often have BOTH my sons and I felt pulled in two directions, which often led to "complications." FWIW I felt confident one on one with my son with ASD but I have to keep my eyes on him all the time because he's an "opportunist!" I like to tell people that I have to be sort of a "horse whisperer" at times too lol.
We totally understand being in that place because we have been there it’s just so much better to get out! Agreed, you have to set yourself up for success and always have a backup plan. Even if part of that plan is enlisting an extra person to make it manageable! Exactly, they’re helping us learn how to best handle those situations and be able to have the skills and confidence to do it ourselves.
Braylee can be quite the opportunist as well. Those are the sometimes the hard ones lol. That’s what she did at Mall of America like a month ago, we gave her the freedom at the dance party and she took it and literally ran with it 😂
In today's world we worry to much about what people think and people are critical of what others are doing. My view is who cares what other people think or do at the end of the day happiness is important and keeping a child in the house because of behavioural issues you may come across is only making them and you unhappy, also this could lead to more anxiety issues for them and you in the future. The best idea is to take them out put a ID band on them if it's really bad start with a place they can run and not get hurt like a park try to teach them not to run, for example if they run they get reins put on them for 5 mins, not so much of a punishment but a way so they can find a way to self regulate the run stim out of there system. Well that's my view may be wrong to some people but would hope it helps others.
Agreed, I know we have been guilty of worrying too much about what other people think. When we kept her home for that short while because of it, we actually did see an increase in anxiety for her.
Great video! My friend struggles with her son running. We have our kids therapies scheduled at the sane time and we carpool, so we have been working on the running together. So far the best option we have found for when we cant keep a hold of his hand, is a dinosaur backpack with a leash that attaches. I always thought they where ridiculous but i sware by them now. He loves the bacpack and he gets to wear it all the time he wants. We just attach the leash on days he is super excited and wants to bolt, or if we are in a situation where him slipping his hand from ours could be dangerous. Like walking next to a busy street. It has saved us from so much stress and worry, and keeps him happier and less likely to meltdown.
That’s a huge helper! That’s wonderful that you’ve found a friend to help work on the eloping with!
Super video!!
How come I'm up late? Because I don't want to miss anything from you guys. Anyways, I remember when I was scared but now look at me I'm not scared at all. But to be honest I haven't been riding my bike lately. Whoops. But oh well. Braylee, you are doing such a great job. Love, David.
Sorry it was a bit late today!! It was so nice out today for a bike ride. We don’t get a whole lot of good weather in the year so when we get it, we have to make sure to enjoy it.
@@TheWeeFamily thats true.
10 seconds in...wow, David, you should be ashamed of yourself...hand in your geek card mate...immediately :-P
wow, you guys had quite the thaw...and yay bike rides
"engage" I understand that reference....also, when are you going to move over to the Dark side.....resistance is futile...wait? what? ;-)
I agree that limiting a child's time out in the community will not assist them to develope their understanding and development of various social settings. I certainly was one of many who waited perhaps until they found their confidence with their child having special needs. My situation before the autism diagnosis was complicated by my son having a vision impairment, that despite genetic counselling did result from my own gene mutation. No one else in my family has it. I tried despite harsh words of some prove I was every bit the capable loving mother. Being on show was difficult before finishing a diaper change I'd be told told I hadn't finished by professionals coming Ng in assuming their excellent knowledge of our u inquest situation. It was easier to hide and initially and yes my baby had the cleanest body ever because I wouldn't have it any other way. My son has needed a oush chair longer than some to reduced the pressure and exhaustion of child community activities we have had him wear a harness here in NZ and the Netherlands where it was less understood. With me .people say well she is blind makes sense he us tied to her. For his Dad he has in his own place of birth Amsterdam had an ignorance comment have"do you keep him in a cage at home too". Stephen little it was a super cute harness now it's a lil more formal though whatever we add to make it look cool we try. A wrist strap is cool too. Where ever we can without any restraint we practice staying close. My son is my love and joy and I know as years go by he will be far taller than I. Whatever steps to keep him safe I will take.., I will never limited his world involvement. He has taught me and other so incredibly much in his five years I will continue show him the world absolutely as much as I possibly can! Many Blessings from NZ 🦋💜🌈🌟
Sorry modern tech and messaging ain't perfect apparently uyst checked this full of typos hope underlying msg makes sine kind of sense! 😌
You are wonderful working hard and learning with him and just finding what works best for you guys! ❤️
Bike 🚲 rides yesss!! Great job braylee 👉🏼engaged David 😂😂
Star Trek Next Generation. "Make it so"
David has a sweatshirt with Picard that’s Christmas themed and says “make it Snow”
Yeah, my mam would still take us all out even when me and my siblings would have meltdowns and behaviours were high. She wanted us to experience things, going places meeting new people even when those things were difficult she still wanted us to experience them. We used to have problems with eloping when we were younger but mostly because I wanted to explore everything all at once and I didn't understand boundaries and rules of safety this has gotten a lot better throughout the years and now it's just my sister who will do it from time to time. So overall it is very good to go out just be very patient and calming as that helps us to be more calmer too. Hope this helps from my perspective and thank you wee family for spreading awareness. Blessings and love
I love this, thank you! 😀
@@TheWeeFamily your so welcome I'm glad I could help 🌸🌸🌸🌸 be blessed always
How do you get her the rides bike? Emmett cannot get the petals to go.
We worked with her on it for quite a while. A lot of OT/PT helped also. I believe they started her on a bike/equipment that had straps for the feet so they’d at least stay on and went from there.
The Wee Family Cool Thanks. she is doing so good.
Love the TNG references. ;)