we don't have marriage equality either, disabled people can't get married without losing their benefits because the government assumes that their partner can fully cover their costs (which in this economy is a wild assumption to make)
Personally, I'd like to be able to work and have personal care. Marriage isn't my priority. We won't have equality until healthcare access isn't tied to income.
@@shizuwolf First hand experiance. My mom is, as of right now, disabled because of how screwed up her heart is. She qualifies for disability, but cannot draw because of my stepdad. If she divorced him but still lived here she would get those benefits, but lose any protections or benefits from being married.
An overwhelming majority of ppl will even in their lifetime experience disability; with it bein the exception to the rule when someone manages to live a life where theyre nvr disabled in any way... And usually thats cuz they died early in life; before gettin a chance to roll the dice a lot to become disabled, as happens to most abled ppl even if theyre not born disabled
@@SylviaRustyFae So true. Lots of people here in America develop cancer, heart issues, and many more issues as they get older and some of these issues can lead to other permanent problems with the body that causes them to not be able to work and have the independence they used to have. This is why I always tell myself that I am not better than a disabled person because we all are one accident away from being disabled. Smh
Don't forget, a lot of the issues disabled people face are social as well. In many places my presence alone can make people uncomfortable, never mind when I commit a social faux pas that I don't understand. I shouldn't have to feel ashamed for making people uncomfortable when the discomfort is solely caused by my demonstration of disability. We need to foster more compassion and empathy for those of us who are neurodivergent, differently abled, disabled, etc. etc. etc.
It's society's painoia. It's not about us. It's their deal. I get medically neglected big time. They wrongfully accuse me of shit. Sending you my love and exceptannce ❤
One reason I'm slightly against the idea of letting those with either mental illnesses or neurodivergent conditions be totally independent (as opposed to be with an accompaniment, not as opposed to be in facility) is that with a more abled either family member or professional accompaniment, they can get the help their need, saving them from such awkward situation like comitting social faux pas that you find harder to understand with people gaze at you. And, more importantly, I feel that the family of the person with disability can be more assured that he/she will not be harmed (like in Isaiah Lambert's abuse death case) or incidentally harm other people (like in Brendan Depa case).
@@jessicag630 The notion that disabled people cannot be or should not be independent doesn’t help us. Lots of us CAN be independent and choose to be. Many of us do need additional support, but that is not the case for everybody. Please look at this through a more nuanced lens.
@@jessicag630I don’t even know where to start with your statement. So you’re saying I need to have full time supervision because NT people can’t deal with autistics that just want people to be straightforward and not throw in hidden meanings, and not assume that because I don’t make solid eye contact and smile means I’m hateful or rude? How is that MY problem to fix? I literally cannot change how my brain functions, and there’s plenty of studies that show just how deleterious it is to our mental health. But sure /I/ need a babysitter because adults can’t treat another adult with a modicum of empathy and understanding,
@@jessicag630and you’re assuming disabled people have family that can do this. Most of us DONT, or family is already struggling to meet supportive needs, and govt funds for community support is pisspoor, difficult to get, and no where near close enough to actually help once approved. Personally, I can’t even get help despite having multiple other disabilities.
I've been unable to walk since birth, due to spina bifida, and I was 18 when the ADA was passed. I've seen a lot of progress made, but we are still far from having the same rights as abled people. And a lot of it is because disability is still stigmatized. We're one of the few marginalized groups that anyone can become a part of, but we're also one of the few that it's ok to look down on, to be glad because you're not one of us. We're still seen as an uncomfortable, unsightly imposition on society. A problem that needs to be 'fixed' as quickly and effortlessly as possible so that we can go back to being invisible. Until that perception changes, we won't be equal.
As an autistic I think Rosemary Kennedy was actually autistic because of a film I watched about her life. At one point her father took her to England to be presented at court and she thrived over there she was a completely different person. Her father put her in a Montessori school and she did wonderfully but she was wanted back home with the family and her mood immediately turned sullen and combative. She sounded like a wonderfully intelligent sensitive woman before her family scooped that part out of her brain for her. As was a man's right until the 1960s.
Also Autistic! I actually think basically the whole family was Autistic…they had so many rigid rules and behaviors that weren’t exactly normal. I think Rosemary was just the one that was gonna do her own thing and Joe Sr couldn’t have that💔
While this could be possible, it should also be noted that she would likely have another intellectual disability since when she was being born the doctor was busy taking care of a sick patient, so to make childbirth worse than it already is her mother had to close her legs and hold Rosemary in for hours, which likely damaged her brain from lack of oxygen getting up there
@@raed3240 as a diagnosed autistic I just want to say we can have multiple disabilities and often do. Autism is genetic and the Kennedy family should have been tested for sure if what we know now was around back then
I have been disabled myself and worked with disabled children. The goal is always to move towards the most independent option for the child that we can get; that doesn't mean removing supports or accomodations, but it does mean helping them thrive in a world that wasn't necessarily built for them. Thank for discussing this and hopefully drawing more attention to it!
It means PROVIDING accommodations and support. That's how we can be as independent as possible. Because the world is not made "for" us (not the goal.... everyone should be able to function as independently as possible).
we came out with the ADA and then systemically continued to sweep disabled people into permanent isolation in other ways. we're shut out from public spaces and society and then abled people think it's our choice or our fault instead of realizing theyve made everywhere inaccessible. we need abled people to think of us and include us in their conversations about societal change because right now they wont even wear a mask to ensure we can exist in public spaces without fear of death or additional disability from covid
@@TokiWithCheese Even when disabled, but very abled with knowledge, we are ignored simply due to automated systems. Designed by us, but neutered with their policies.
Thanks PBS Origins and Digital Studios for doing an episode on disability rights! We have a long way to go towards proper disability rights and what pisses me off the most is that everything from medical research and doctors almost all not being disabled yet deciding and determining what it is like to be disabled and what we need, to being shut up by being institutionalised and not allowed to speak of our experiences and be able to self-determine our needs and rights. Honestly we need to be able to tell others what we need, and the medical community to rewrite what IS disability, and what it is like living as a disabled person from the perspective of disabled people. My mum is an Ed-Tech at a high school and I'm disabled (physically, and mentally) and the arrogance of, 'I help disabled people, so my decisions universally benefit them!' ignores that she isn't the Autistic one with PTSD who was forced from a young age to assimilate my behaviour with neurotypicals and do it 'their' way. She doesn't experience the fatigue, the limitations, the way my body can't coordinate itself 'right' yet decided whether I saw a doctor, whether I needed help, what she would accommodate me for, without my consultation and instruction.
I’m so glad to see someone covering the disabled rights movement! So much of our history is glossed over or even outright forgotten! For most of our history, disability culture has been about making things easier for the abled people around us rather than making sure we’re able to pursue the lives we want to. I’m a member of the first generation disabled students who actually were able to receive an education, and I still faced a ton of discrimination. for example, my school refused to allow me access their online math classes system because they insisted I was just “lazy” and “had a bad attitude”. Turns out I have a processing disability (on top of all the other disabilities they already knew about) and the teachers were erasing the board before my brain could absorb it. I also had *several* teachers accuse me of cheating because I use a laptop to write notes due to dysgraphia, and they though I was just googling the answers (the laptop wasn’t even connected to the internet!) I hope you do more videos on disabled rights and history- it’s really a topic that needs more time in the sun!
Oh my goodness I go through similar I understand love, some people are so mean, you know the battle is God's.Jesus loves you. I get walked on all the time because of issues I have and it has not been the same for the last 8 years, even down to death threats. I know I have been falsely accused of so much too I get it and it is also revealed who Loved Me In My Life, who was really friends and even family in my life for that matter. Excruciatingly heartbreaking.
I know I've learned since I've moved they even said because of your disability you have to send rights for us to be able to get ahold of your doctors I've never heard of they have no reason to do that they would not give me a copy they would not let me take it back and they've already walked in when they felt like it, knowing I'm vulnerable alone and have to live in fear of going on the street if I even think to speak up anymore
Hi! I'm a disability advocate within the performing arts world. Beautiful work here! This is only one single (and to be clear: hugely important) aspect of the systemic ableist barriers that society places around us that exclude us from public spaces, from community, and from participating fully in that society that has so often decided for us that we are unable or unwelcome. But the issue is so broad, so wide-ranging, and so deeply interwoven with our history and the very fabric of the society in which we live that there really could be an entire PBS series just on ableism alone 🤣Thank you so much for sharing this video, and for working with the wonderful Emily Ladau on this - and I spy that beautiful Disability Pride flag you have in the background, too!
We couldn't agree with you more. We've only scratched the surface with this one story, but hopefully we - and all of you with your thoughtful comments here - are making more people aware of the serious challenges that disabled people face everyday.
There should definitely be a whole series on ableism! And include a chunk of modern day people on benefits programs who have work/ savings barriers, marriage penalties, had benefits taken that they couldn't afford to fight in court, or child custody lost w ASSUMPTION that disabled is the worst thing a parent could be.
Medical gaslighting pervades our lives. Culturally we are ignored, forgotten, and abandoned. Inflexible benefits hold us hostage, prohibiting partial work because we have to be perfect sufferers. It's particularly rough for men who are more likely to be disabled (workplace hazards) and homeless with no shelter access (majority of population, most likely to be victimized on the street, and zero priority bedding).
I love this new series. Thank you so much for this one. It's vitally important that Governments and Society as a whole, get serious about providing readily accessible services for people with a broad range of disabilities or differently abled members of our community. Especially for countries with Universal Healthcare, like my own. 🖖😁🤘🇨🇦❤️
I don’t think it was intentional but it made me sad that so many of our struggles were talked about in past tense. I think most of these problems being mentioned are still happening. If you don’t have a family to care for you or they are abusing you, you’re on the street or in a shelter. If your disability isn’t visible, good luck navigating the process as you will constantly be told you aren’t disabled enough. I’m not imagining this, this is reality.
This just csme across my feed. Thank god it did. Thank you so much for the educational information clearly communicated. Thank you for sharing this. Blessed are those that help others.
Was. Were. You keep using past tense when describing the disabled as outcast. I am blessed with being fairly high functionality, but because of my vision leaving me unable to drive.... that MINIMAL barrier of not being able to source my own transportation has shut me out of so much of society. Plus it leaves my family a back pocket way to snipe at me on opposing viewpoints. 'You're cut off from reality.' When the 'community' you are in doesn't want to do more than ensure your basics are met without you screaming like hell to be made a priority? There's still a rather severe problem. One that the current climate won't allow to be solved because it depends on compassion that just isn't there. I am blessed to be in a time where I have it so much better than even fifty or sixty years ago. Yet there is so much more that needsto be done.
Yes! I’m also vision impaired! Also disabled from mobility issues and am Autistic. Even with all those disabilities my biggest struggle is how people, whether loved ones or strangers, treat me. It makes being disabled sooo much harder, really eats at our dignity
I've moved from Michigan (U.S.A.) to the Czech Republic. The ADA has done wonders for the infrastructure in the U.S. In the Czech Republic, there are many metro stations (subway stations) that are only accessible to able-bodied persons. I don't think the elderly people or parents with a stroller (pram) can even access them, as you need to walk up and down around 36 stairs to get in or out of the station. There aren't even any escalators. The bathrooms in restaurants are tiny, the doorways are narrow, and you usually need to go up or down a few stairs to reach an elevator. However, when it comes to the trams--most are level with the street and have room and seatbelts for people in wheelchairs, and the tram will say which tram it is and where it's going (though I think you need to request this feature). These trams are probably a game changer for those with limited mobility. There is also a bus that goes to all of the metro stations that is specifically for people in wheelchairs. Now if only a country could have the wheelchair-accessible portions of the Prague public transport system with the U.S."s Americans With Disabilities Act public infrastructure, we'd have it made.
Blind and Visually Impaired people aren't called the "Invisible Population" for nothing. The American Federation of the Blind had a great ad campaign back in the late 90's/early 00's called "The White Cane" campaign, which was meant to bring more awareness of the needs of the Blind and Visually Impaired community. Sadly, the campaign was short lived due to lack of funding and faded into obscurity. As a Visually Impaired person myself (since birth), I understand how you feel. It is demoralizing to have to depend on friends/family to get wherever you want or need to go, especially if you live somewhere where Public Transportation isn't easily available or spotty.
@@rosemariemerritt5035 What annoys me is recent cateract surgery has solved ONE problem... raw accuity, and that's what aid programs focus on as criteria. 'can you see better than 20/200? then yo udon't need us.' Except my left eye is a mass of retenal scarring and more recent glaucoma. My right had a detatched retina that could get worse again in spite of how well the surgery went. My depth perception is thus... SHOT.... processing what i see is also an issue because it will take me a while to sort htorugh visual noise. But for aid systems 'oh you see fine. go away.'
Physically disabled person here (blind), but, I had an uncle that I never met because he was placed in a mental institute in the 1980s because of his cognitive disability Intellectual Deficiency Disorder) which actually wasn't that severe. He was a gullible guy, but sweet as honey from what my family members tell me. They just never knew how to help him. He passed away from COVID in 2020. So yeah, this is a real problem even today.
In 22 states your children are allowed to be taken from you if you can’t see. The 28th state recently signed a law that social workers are not allowed to take children away from people just because they are blind.
as a social worker, I wish it was all 50 states we could not do that in. It is a shame that some states still allow that. I am also disabled, and I have become a social worker, hoping that I can help make a difference in the lives of the disabled.
Don’t forget that Rosemary’s mom was completely devastated and against her getting a lobotomy from the beginning. And JFK was our second openly disabled president.
JFK (and same with RFK) wasnt openly disabled as President. He had to keep up the illusion of bein abled, and it was a secret to the general public even if white house staff and others were aware of it To their minds, America cant have a disabled president; bcuz bein disabled means weakness, and the president cant be weak (note this is the same bs reason why misogynists dont think a woman can be president). Its disgustin
Found this quote from a Salon article on JFK, which i think highlights the inherent ableism in the existence of inspirational disabled ppl; bcuz the inspo porn genre requires the disabled person to put other things before carin for their own wellbein and health "On the campaign trail, he would go from dawn until after midnight, day after day, driving his aides to exhaustion, never mind that his back was killing him and he had to use crutches to get around. It was almost as though he had to prove - to himself as much as to others - that his maladies would not get the better of him."
I am disabled, living on social security. I have lived below the federal poverty line my entire life and I still do today. I only survive because my disability qualifies me for a rent subsidy without which I would be homeless (again).
I have great fear for the future of disability rights. Parts of the ADA were rolled back under the Trump administration, and that was even overlooked in this video. Ive been permanently physically disabled with a Spinal cord Injury for 17 years, in the last 3 years ive found it more and more difficult to find adequate accessible parking at places of buisness in my community. More and more, im seeing parking spots going un painted and than used by non disabled drivers at gas stations. At the grocery store, there usually arent enough available, in part again due to non disabled drivers using them and the local police say they cant do anything because its a private buisness. Living alone and independent is getting much more difficult than it was just a few years ago.
Even the community where I reside, Norristown, Pennsylvania does NOT seem to understand that *blocked sidewalks for the purpose of selling unlicensed food interferes with pedestrian right-of-way as does cars parking on sidewalks in front of garage doors hampers movement in wheelchairs or pedestrians with walkers. Loving people like human beings and helping them be their BEST selves is the most healthy manner to promote community care and civilized behavior. However, when local authorities refuse to use their elected & appointed authority to guard & protect the citizens responsible for putting them in office it does reflect an institutional disregard for Human RIGHTS!
I face at least four beariors each time I go out ony wheelchair. Cops have been a royal pain Been hit fout times on the crosswalk with the light in my favor. 😮
The crosswalk is the worst. I hate how so many cars pull into it at stoplights. Don’t they understand that is the only safe place for some people to cross the street? Or is it that just enough people don’t care?
Many us elderly folks are in a similar situation. Our bodies have given out in ways that prevent us from doing all that needs doing. SSI doesn't cover the basic costs of our lives. We don't dare speak up of fear of institutionalization. If we could get help with some of the tasks we can no longer do, we might be able to stay in our communities and homes, but there is no hope for that. If you have even a small bank account, all help is denied us. Unless you are a pauper/homeless, you won't get help. Once you are in penury, then you will be shipped off to warehouses of death - nursing homes - where we can wait to die out of public sight. We often go without heat, without food, and more trying to stay at home. Life and age have taken our our dignity. And to speak up is dangerous.
I am elderly and multi disabled. I know where your coming from. I went pan handing I was so desperate. Pill cutters are great inventions. Also I shop at a food outlet store My phone battery only last twenty minutes Doctors neglect me and nitpick me I have no family I do pray a lot.i get overwhelmed. I love you ❤
First of all, the following comes from someone who raised a child on the Autism spectrum, he is now 37 years old. I spent those years advocating for and giving him the best life possible. I have done everything to give him an independent and rich social life. In 2010 I became physically disabled. I developed primary progressive MS. The constant act of well-meaning people to lump all disability, physical and mental into one category, causes me an issue every day of my life. Because I am in a wheelchair, people think my mind is broken and that I have an intellectual deficit. This truly makes my life a living hell. People need to understand that yes, a person can have both physical and mental disabilities, but not all people with physical disabilities have mental disabilities. When overgeneralization is used, people suffer the consequences of this. I would like to have seen that clearly addressed in this video.
direct action has been the *only* course for any movement of the "needle". not just for the disabled, but for every inch, every millimeter, of progress made by anyone who has had to live under the capitalists' oppressive over-riding imperative that profit comes before anything else.
This may have been one of the most important cases for my own life and survival. Yet to this day, services are unavailable or impossible to get. Meaning instead of having a halfway decent life I struggle just to not get kicked out since I cannot really manage an apartment on my own. The only saving grace is having to pay 10% of my disability income just to get a rep-payee to ensure my rent is paid. That's pretty much all I have gotten consistently since on disability. And even they cannot manage to get my portion paid out correctly month to month.
I have an aid - 35 hours a week of someone coming to do the things i cannot do (vacuum, make dice, brush my hair, etc) but it was a FIGHT. I qualify to live in an assisted living facility but do not want that. It's just, I'm not 65. And in my state, it's REALLY hard to get disability assistance if you're not 65+, everything is set up with the presumption that you're retired and elderly. It took me FIVE YEARS to get into the home health program, and I've been totally and permanently disabled according to the social security judge since 2008. Same with affordable housing, actually - most of the low income housing in my state has a minimum age (usually but not always 65 - one place was a young as 57. I'm 47. Sigh) and the few that AREN'T age restricted have years long waiting lists and high application fees (which is confusing - housing for poor people but 300-500 dollar APPLICATION fees?!) I won't touch the marriage issue, because A) I've never wanted to be married and B)i think the state (i mean government ENTIRELY) should NOT be involved in marriage. Households is what they should care about, and a household could mean 3 guys with zero romantic connections between them, or a couple and their kids and one of the couples sibling move in, that's a Household's and it DOESN'T MATTER to the gov't that there's a naked couple, just that they're a household (i lived that, it was STUPID, we were legally separate Household's according to the government) But honestly, a LOT of the marriage issue with disability is that, if you get married, you tend to lose your Medicare - and most private insurance is NOT ENOUGH to cover what disabled people need (not without PAYING way more than anyone making less than 500k+ a year could pay) A silly example - let's say i married my brother in law. He works as a database administrator for a big hospital and makes something like $110,000 a year and has REALLY good insurance. The amount he pays for his insurance would quadruple (yes i did indeed research this about a year and a half ago for unrelated reasons) so that's a huge hit - insurance goes from 300/ month to 1200. That's almost a 5th of his take home. But then there's copays - my 2 main Dr's would have $50 copays (i see one monthly) and my meds would be over a grand. JUST the copay is over a grand (and the 2 must expensive i would die if i lost them) but there's more and it's worse! There's the fact that the first 5 grand a year is OUT OF POCKET! And don't get me started on procedure costs, lab costs (i need lab work every 3 months, epidural every 4 because that's the most often i CAN, and continual PT) and gods forbid i need to be hospitalized (tends to happen every 18 months or so) or, even worse, need to see someone out of network! My BASIC medical care would bankrupt my brother in law. Quickly. Or I'd die. I PAID for social security and Medicare, that's WHY we pay those those taxes! Not just for when we retire, but in case of disability. Being denied Medicare because you are married or get married is a denial of something WE PAY FOR, and it's absolute BS, and just makes me more happy that i don't want to get married. But i want the people who want to get married or who are already married to be able to do so without losing their aid. If non- disabled people get married, there's no automatic losing of health insurance by one of them. And remember - ANYONE could become disabled at any time. All it takes is one accident, one piece of bad luck. I actually think that's a huge part of why the able bodied dislike seeing or thinking about us - they're afraid of bad luck will rub off... But my point - it could happen to anyone, at any time, and that's why the able SHOULD be invested in fixing it!
I'm autistic and have frequent migraines. Being able to work remotely gave me the ability to control my light and sound stimulation to prevent getting overwhelmed/a migraine. Now, companies are trying to force people back into the office, and any time I ask about remote accommodations for disability, I get ghosted.
For folks interested in these topics, the excellent disability justice podcast "Death Panel" recently released eye-opening deep dives into Section 504 (and the sit-ins resulting in it actually being enforced) and the ADA.
If someone can’t perform ADL’s adequately for health and safety, they should still be able to be maintained in a group care home. People who can perform ADL’s adequately for health and safety should be able to either receive help in their private homes or attend a day program where they can receive assistance. Only violent individuals should have to be maintained in institutions, and the first goal of special education should be to find ways to avoid violent outbursts before the child becomes too big and strong to cope with.
Thank you for this video! Disability activism is especially inspiring to me because it exemplifies people defending each others’ rights even when they have very different life experiences and backgrounds. I am glad more people are learning this history (and present)!
I have somehow “lucked” out despite 1) ADHD (Which I was never diagnosed as a kid)… It finally explained why things were so difficult in school, despite being labeled “Gifted”, 🤨. 2) Getting physically wrecked in a motorcycle crash that left me with permanent issues, chronic pain and difficulty walking. 😖However these are not considered much of a “Disability” even though they affect my ability to work and function. (I’m married, so I there is that, too). About the only thing this gets me is a parking placard and license plate. Which is useless at the stores that actually need them, since they don’t have enough blue spaces, or Karens/Kens ignore them and park there anyway. 🤬
Olmstead needs to be strengthened. When i applied for home aide i learned homemaker services did not include dishes or laundry. Those are the very tasks i need help with the most. I am in a wheelchair and now losing use of my arms too. But i am supposed to do my own dishes and laundry? While the homemaker service just dusts?
No, we still do not have the same communication rights as others. The FCC does not enforce ADA title 3 or FCC 504c. They have failed to investigate ongoing 508c and ADA title 2 violations by SSDI, the FCC, DOJ and results in blatant blocking of email by GSA when following the DOJ directions for their failures to redress grievances. This results in an ongoing genocide of police escalation, failure to get diagnosed due to communication barriers to access and failure of SSDI to follow through on individuals with developmental disabilities. Like neurodevelopmental disabilities It takes one, I have 5 diagnosed and my child has 4. Diagnosed. There's still many comorbidities etc undiagnosed due to communication barriers to access This is why there is a mental health, homelessness and incarceration social issues. This is due to ignorance of neurodevelopmental disabilities. Ignorance drives racism and this is neuroracist due to failures to update the ADA since it went into effect a year before the first major Autism study. Alot has been learned since then End the neuroracist genocide
Unfortunately, the way the US is going, people with disabilities will be some of the first to experience the horrors of war. Get prepared or get out if you can. If you cant, learn to defend yourself and your loved ones, it's going to be hell here in a few months.
I fear losing my ability to take care of myself and my family. I wish the world was as such where becoming disabled would be a setback at worst to live a fulfilling life. Its far better than it was even a few decades ago, yet the outlook is still less than ideal.
I always feel super ashamed when I remember my childhood and how I was peer pressured into looking down on people that are different.. I have a core memory of calling an awkward kid a "nerd" when he was trying to be friendly and just talk to my friend and me. I still feel secondhand shame when I remember how terrible his face dropping felt and I sought him out the day after, I hardly got a lick of sleep in that night, to give him a heartfelt apology and even if he accepted my apology, he never sought out my company again after that and it was something that I had to come to terms with over time and it took me many deep thoughts and I am still learning to this day.. i catch myself feeling uncomfortable around people that are "different" and I hate that I feel that way.. to be completely honest, I feel uncomfortable around other people in general, I am not very confident in social settings, but I particularly feel terrible about that because it's a different discomfort and it's a great source of shame.. i never had many opportunities through life to have close relationships with people, let alone people different than myself, so yeah.. I am still learning but I greet everyone with equal warmth the first time I meet them now, and I am still an awkward person with a terrible sense of humor to this day, but I do what I can to change my actions to reflect my growing stance
you definitely shouldn’t feel shame. Because even the day after you had empathy for the other kid. That is all the disabled really need from the world is people to try and understand what it’s like to be in our shoes. And also to do what they can to help. It can be very hard to talk to people that are disabled, and it makes us uncomfortable sometimes. But just remember that could be you, would you want people to treat you differently because you’re in a wheelchair? That is how my brother relates to me and has made it easy for him to learn that I am no different than I was when I was younger. I just can’t walk anymore. He literally feel free to reply. I would love to be able to talk to you more about this if you would like to speak with somebody.
My husband is disabled (kidney disease). My state doesn't interfere with him getting the federal money, but every 90 days we get grilled all over again by the SNAP program, and we live in fear of losing that help (which we most definitely need). My husband needs 24/7 care, and yet my state claims that I should simply leave him alone at home while searching for work. They haven't (yet) demanded that we put him in some kind of assisted living, but I worry quite often that they eventually will...or that they'll simply kick us out of the SNAP program. It's completely ridiculous that they should be attacking me, his caregiver, but here we are.
having had kidney disease in a transplant, I totally understand the frustration with snap. With kidney disease you’re so much more limited on the things you can eat, and a lot of them are more expensive than ordinary, canned food. Most of the time they don’t even give you enough money to survive for a month. It is a shame that our government does not recognize that the federal income level is not accurate to the expenses of our world now.
Been trying to get my disabilities recognized for almost ten years. Because of my disabilities its almost impossible to organize getting the paperwork done. Assistance has been slow.
@@PennyDavis-cm9tl you mean like the three I've had that did shit but insult me or treat me like a moron? Nah. Zero need to give someone 25% my payout for doing nothing. The lawyers not bothering to explain HOW to fill out the forms so that I wasn't getting in my own way ("I'm not disabled, society doesn't provide appropriate coping mechanisms to function properly so logically it's the disordered entity" as one example of something all of them said looked fine on the application form but in reality was automatically getting me rejected). Nah, dude.....I actually managed to get further listening to a friend and doing it myself. Disability attorneys aren't anything but scum that prey up on people who no one will take the time to teach properly.
Came here from Otherwords referral. So glad I came. Thank you for this interesting discussion. My mind is absolutely blown away at how recent all this is. I was a gov't civil service worker and ADA and such feels like it has *always* been a part of my career (not personally but hearing about it and several co-workers being impacted). And yet, obviously not. What it says to me is that when implemented (fully/properly), it simply becomes "the way the world is". And the way the world should be - that everyone has the chance to thrive and we don't make it harder for people already in vulnerable positions to survive *and* thrive. I look forward to more episodes
From what I’ve seen, the financial freedom aspect has been denigrated into absolute abject poverty due to the lack of money, specifically, awarded to those with disability who are unable to work, or work in a full capacity. The poorest people you’ll ever meet are those with disabilities and it’s a fate that financially excludes them from even participating in society, including forming friendships, because they’re never able to afford to go anywhere or do anything with the only, or largest, limiting factor being money. Freedom is severely curtailed to the point that they are often segregated, made homeless, and unable to access important services and care. This is especially true for those with the sort of family that would rather send you to a torture asylum, like in the Kennedy example, than allow you to be a part of their lives. It’s still akin to torture and can exacerbate the health issues one already may have, create new mental health issues that previously didn’t exist, and even death.
@@singletona082You’re absolutely correct. Trump definitely created the strong wave effect that has rejuvenated so much discrimination and blocks that us differently abled have struggled over decades. Disability rights, resources, accessibility and inclusion were areas where the U.S. was actually doing well in (all gained from previous generations who fought for) less than a decade and a half ago. But the more selfish and ignorant people have become (partly due to this Trump influence), the more us differently abled have had to struggle. This is what I meant by my original comment.
As a disabled viewer, i just wanted to say how much i love how yall got the disability pride flag in the background there Also, on that flag, i love that its an example of disability accommodation; bcuz its the second version of a disability pride flag... The first was a zigzag form with brighter colours, but this was an eye strain issue for many disabled ppl, particularly when viewed on a scrn; so the advocates went out and created a new version to accommodate more disabled ppl; and then everyone who used the zigzag version just prty much mutually agreed to adopt the muted version bcuz accessibility matters, esp moreso to smth like the disability pride flag I personally actually like the zigzag version better, but know that accessibility matters more and will only ever use the muted version when sharin online; tho i wudnt be against gettin a zigzag flag, tho id probs wanna get both flags so i cud use them as an infodumpin opportunity like i did here xD The disability pride flag shows exactly what progress shud look like; consideration for all, but esp for those more marginalised, bein the drivin force behind all change. The path to equal rights is a long and fraught one that we are still walkin on to this day; just look at the top comment on this vid callin out how we disabled ppl still lack marriage equality rly... But also we are the other exception to the minimum wage laws, with most ppl bein aware of prison labour; but entirely unaware of stories of places that "advocate" for disabled ppl that pay them not even enuf to buy a bag of $1 peanuts an hr And yet another way we are treated as far from equal still, far too many ppl are far too blase about usin previously medical only terms for disabled ppl; with many considerin them to be preferable to swearin even. What words you may wonder? Well theres the obvs example of crazy and insane (sanism bein a huge problem to this day), which i think anyone can see how theyve been used for certain disabled ppl. But also words like cripple, which whilst unlikely to be used as an insult is used all too commonly as a verb meanin literally the same as; to disable someone or smth But then we get to the many, less commonly known as ableist, actual insults, and those abound; mostly medicalised terms turned insults: dumb, idiot, deranged, moron, stupid, maniac, gimp, imbecile, lame, bonkers, lunatic cuckoo, nuts/nutcase, loony, mad (when used to refer to mental state; not the emotion), mental, wacko, psycho, and many more ive missed no doubt Oh, and i didnt even mention how commonly ppl use phrases like "blind to" and "deaf to" to mean one ignores smth... As opposed to just sayin closed their eyes to or covered their ears to or just ignored; or any other way that doesnt require comparin a person willfully ignorin to a person **unable** to hear These may not seem like inequalities compared to the bigger examples like the wage theft and marriage inequality; and they are, but theyre also still important to fight back agaainst all the same. Just like we shud fight back against when racial slurs become commonly used words; like takin a slur for the Roma ppl and makin it eponymous wih ripped off, and eponymous with unwanted vagrant. You no doubt have the word figured out by now but if not, its gypped and gypsy; which to some Roma is fine, but is still a slur nonetheless and shudnt be so commonly used by those who arent Roma ppl and Roma ppl who arent self declarin as such alrdy Theres worse harms caused to the Roma ppl ofc, but that doesnt mean we shud aknowledge all the harms all the same
Its not suprising its a tough fight still when alot of the changes werent long ago. Kind of a crazy thought, plus there is always a shortage of people willing to be "caregivers"
And those that do often are not the best of people. Or the organizations that these people serve under encourage catty cliquish pecking order type behavior in staff as way of keeping employees in line. Source : My low functionality aunt. My twin brother. My sister. ME. ....there needs to be reforms that there is no poitical or public will or finance to enact.
Unfortunately, the way the US is going, people with disabilities will be some of the first to experience the horrors of war. Don't be naive, get prepared or flee to another country if you can. If you can't, learn to defend yourself and your loved ones, it's going to be hell here in a few months.
We are forced to live in a world that has no place for us. It is ironic that normal people put us in chains and then blame us when their so called "for the best" bullshit does not work. I am tired of constantly having to prove myself to others all the time, act perfect just because others don't want to see me the way i am, and always being a nonessential unimportant doll on a shelf,only to have others gripe at me for not fitting their mold.
EVERYONE is ONE LIFE EVENT AWAY FROM BEING DISABLED! We ALL deserve to be married, have assistance, access to healthcare and services, be paid the same as our peers AND SO MUCH MORE!
We do not have the same rights, vulnerable people do not have the same rights, even people that are moving into apartment complexes they are getting away with having us sign that they have rights to our doctors and they do not, but they're getting away with this! I had a past landlord's wife always threatened hospitals with me just to put fear tactics in me constantly just to bully, God bless these people that stand up and do something about it, I reached out for help no one would listen, I'm tired I give up and I just pretty much isolate and waiting to go home waiting on the Lord, and if you stand up for yourself there will only be death threats, I'm very glad for those that are able to stand up, and have enough love in their life to stand by you to support you some of us are alone. God bless Jesus loves you🙏
@pbsorigins same! I didn't even know we said our vowels differently until I moved away for a couple of years. Love to see a Marylander thriving and educating!
I am sick of being too disabled to do something or to do it without accommodation but not disabled enough to get help. I am AuDHD (Autistic and ADHD) with inattentive ADHD and heavily masked autism with low support needs. I also have 5 learning disabilities, 3 forms of PTSD, as well as the classics of GAD (general anxiety disorder) and low grade depression. And I tech qualify for the gifted scale (tho I know it’s a flawed testing system.) I have undiagnosed physical health issues, likely endo or something similar and an autoimmune issue and/or sleeping issue. I am VERY sensitive to chemicals and have developed more allergies over the years. (Tho how much of this is US food standards idk. I already avoid artificial dyes for the most part.) And yet…I still only qualify for a minor 504 support plan and no medical accommodation unless I get a diagnosis. (It’ll be years.) So far only a few meds, one of which is BC that I am worried will be banned nationally. I still benefit from a supportive family, therapy, financial support, whiteness, and not appearing disabled unless I unmask obviously so. I am definitely one of the luckier ones with more resources, but in many ways I wish I was worse off so I could get more help. What I get is nit enough help. I currently cannot work, I cannot really do school very well (tho I have made strides), and I just want all levels of support needs for various disabilities to be accommodated instead of this black and white view all while being told IM the one who thinks inside a box, or cannot fathom empathy. (When really it’s a different type of empathy.) I’m just, ugh! Art keeps me alive, and I will do miniatures as long as I can to stay sane. Rant over.
I wonder if there are exceptions and if it is really a good idea for some cases of patients with disabilities to live autonomously after watching a video titled "Video shows how autistic teen died after 10 hours in Ohio jail. Mother wants his story told" by the channel "TheColumbusDispatch". In the country where I live, at least in older generation, people will prefer keeping their demented or disabled relatives with at least one family member assistance to letting them living alone. People can be really evil especially to those who are like that.
Yes, you are right. But, still I'm wondering if in cases where the disabled people are more suspectible to harming either themselves or people around them, giving them the choice to live independently will end up increasing their risk of getting harmed by not so good-willed people like in that particular case. Even Lois Curtis had a professional aid if I'm not mistaken. For some cases, it just feels safer if they are accompanied by at least one family member or caretaker both for other people and for themselves in my opinion.
If there is a Kentucky law, but it doesn’t say anything about the Attorney General being able to sue. I was told there was a separate bill for that, but they don’t know the name of it.
I would like to have finished watching this but the background music is too loud and intrusive. Ironic. I strongly suggest that you re-edit or make another version without this painful distraction so that it may be more accessible to folks with auditory or sensory disabilities.
It does on a superficial level, but the people who would get vouchers are of the same class as the people who can't afford them. In the case in the video, the class of disabled persons were being treated as if they had mental illness. Another major difference is that schools are funded through property taxes, which is why we have better schools in wealthier ZIP codes. School voucher programs exacerbate this issue by taking public funds and sending them to private schools. Most hospitals are funded from a variety of lines, so a psych ward wouldn't be as adversely affected if some portion of the state's budget instead went to funding community care instead. Hospitals do also suffer from similar issues of quality being correlated with the wealth of the surrounding neighborhoods in many cases.
E.g. the government appropriates tax dollars and spends them on my behalf for my direct benefit. I disagree with the nature and method of their use and believe I can better utilize those resources by self-directing the funding. Forcing me to use the government provided facilities is actually doing more harm than good, especially when government facilities are not the only provider of said service. That's not a superficial similarity.
@@DrewLonmyPillow I explained how that's incorrect because hospitals are profit centers and schools are a public good. Intentionally ignoring this just makes it seem like an excuse to promote school vouchers when they are clearly detrimental to public education.
we don't have marriage equality either, disabled people can't get married without losing their benefits because the government assumes that their partner can fully cover their costs (which in this economy is a wild assumption to make)
Yup! We are the last group in America without marriage equality, and the vast majority of Americans have NO idea!
That's f'd up
Personally, I'd like to be able to work and have personal care. Marriage isn't my priority. We won't have equality until healthcare access isn't tied to income.
@@shizuwolf First hand experiance. My mom is, as of right now, disabled because of how screwed up her heart is.
She qualifies for disability, but cannot draw because of my stepdad. If she divorced him but still lived here she would get those benefits, but lose any protections or benefits from being married.
@@singletona082 proving no one actually cares about the disabled
Nothing about us without us!
Thank you, PBS, from the grateful heart of a disabled adult US citizen!
the world at large would do well to remember: nobody is ever more than _temporarily_ abled.
So when you are a baby you are disabled? Is that what you are saying?
An overwhelming majority of ppl will even in their lifetime experience disability; with it bein the exception to the rule when someone manages to live a life where theyre nvr disabled in any way... And usually thats cuz they died early in life; before gettin a chance to roll the dice a lot to become disabled, as happens to most abled ppl even if theyre not born disabled
@@SylviaRustyFae So true. Lots of people here in America develop cancer, heart issues, and many more issues as they get older and some of these issues can lead to other permanent problems with the body that causes them to not be able to work and have the independence they used to have. This is why I always tell myself that I am not better than a disabled person because we all are one accident away from being disabled. Smh
Don't forget, a lot of the issues disabled people face are social as well. In many places my presence alone can make people uncomfortable, never mind when I commit a social faux pas that I don't understand. I shouldn't have to feel ashamed for making people uncomfortable when the discomfort is solely caused by my demonstration of disability. We need to foster more compassion and empathy for those of us who are neurodivergent, differently abled, disabled, etc. etc. etc.
It's society's painoia. It's not about us. It's their deal. I get medically neglected big time. They wrongfully accuse me of shit.
Sending you my love and exceptannce
❤
One reason I'm slightly against the idea of letting those with either mental illnesses or neurodivergent conditions be totally independent (as opposed to be with an accompaniment, not as opposed to be in facility) is that with a more abled either family member or professional accompaniment, they can get the help their need, saving them from such awkward situation like comitting social faux pas that you find harder to understand with people gaze at you. And, more importantly, I feel that the family of the person with disability can be more assured that he/she will not be harmed (like in Isaiah Lambert's abuse death case) or incidentally harm other people (like in Brendan Depa case).
@@jessicag630 The notion that disabled people cannot be or should not be independent doesn’t help us. Lots of us CAN be independent and choose to be. Many of us do need additional support, but that is not the case for everybody. Please look at this through a more nuanced lens.
@@jessicag630I don’t even know where to start with your statement. So you’re saying I need to have full time supervision because NT people can’t deal with autistics that just want people to be straightforward and not throw in hidden meanings, and not assume that because I don’t make solid eye contact and smile means I’m hateful or rude? How is that MY problem to fix? I literally cannot change how my brain functions, and there’s plenty of studies that show just how deleterious it is to our mental health. But sure /I/ need a babysitter because adults can’t treat another adult with a modicum of empathy and understanding,
@@jessicag630and you’re assuming disabled people have family that can do this. Most of us DONT, or family is already struggling to meet supportive needs, and govt funds for community support is pisspoor, difficult to get, and no where near close enough to actually help once approved. Personally, I can’t even get help despite having multiple other disabilities.
I've been unable to walk since birth, due to spina bifida, and I was 18 when the ADA was passed. I've seen a lot of progress made, but we are still far from having the same rights as abled people. And a lot of it is because disability is still stigmatized. We're one of the few marginalized groups that anyone can become a part of, but we're also one of the few that it's ok to look down on, to be glad because you're not one of us. We're still seen as an uncomfortable, unsightly imposition on society. A problem that needs to be 'fixed' as quickly and effortlessly as possible so that we can go back to being invisible. Until that perception changes, we won't be equal.
Well said
As an autistic I think Rosemary Kennedy was actually autistic because of a film I watched about her life. At one point her father took her to England to be presented at court and she thrived over there she was a completely different person.
Her father put her in a Montessori school and she did wonderfully but she was wanted back home with the family and her mood immediately turned sullen and combative. She sounded like a wonderfully intelligent sensitive woman before her family scooped that part out of her brain for her. As was a man's right until the 1960s.
♥She did indeed.
Also Autistic! I actually think basically the whole family was Autistic…they had so many rigid rules and behaviors that weren’t exactly normal. I think Rosemary was just the one that was gonna do her own thing and Joe Sr couldn’t have that💔
No, she was held in the birth canal too long to wait for the delivering doctor so lost oxygen to the brain. I don't think autism was the issue
While this could be possible, it should also be noted that she would likely have another intellectual disability since when she was being born the doctor was busy taking care of a sick patient, so to make childbirth worse than it already is her mother had to close her legs and hold Rosemary in for hours, which likely damaged her brain from lack of oxygen getting up there
@@raed3240 as a diagnosed autistic I just want to say we can have multiple disabilities and often do. Autism is genetic and the Kennedy family should have been tested for sure if what we know now was around back then
Ableism is spoonfed to all of us growing up. It manifests in the most insidious ways. All you need is just Level 1 Empathy to start.
Quote of the Day: “…a signature on a law does not necessarily mean that it’s being enacted to its fullest potential…”
I have been disabled myself and worked with disabled children. The goal is always to move towards the most independent option for the child that we can get; that doesn't mean removing supports or accomodations, but it does mean helping them thrive in a world that wasn't necessarily built for them. Thank for discussing this and hopefully drawing more attention to it!
It means PROVIDING accommodations and support. That's how we can be as independent as possible. Because the world is not made "for" us (not the goal.... everyone should be able to function as independently as possible).
@@radaro.9682 that's what I said?
we came out with the ADA and then systemically continued to sweep disabled people into permanent isolation in other ways. we're shut out from public spaces and society and then abled people think it's our choice or our fault instead of realizing theyve made everywhere inaccessible. we need abled people to think of us and include us in their conversations about societal change because right now they wont even wear a mask to ensure we can exist in public spaces without fear of death or additional disability from covid
@@TokiWithCheese Even when disabled, but very abled with knowledge, we are ignored simply due to automated systems.
Designed by us, but neutered with their policies.
Thanks PBS Origins and Digital Studios for doing an episode on disability rights!
We have a long way to go towards proper disability rights and what pisses me off the most is that everything from medical research and doctors almost all not being disabled yet deciding and determining what it is like to be disabled and what we need, to being shut up by being institutionalised and not allowed to speak of our experiences and be able to self-determine our needs and rights. Honestly we need to be able to tell others what we need, and the medical community to rewrite what IS disability, and what it is like living as a disabled person from the perspective of disabled people.
My mum is an Ed-Tech at a high school and I'm disabled (physically, and mentally) and the arrogance of, 'I help disabled people, so my decisions universally benefit them!' ignores that she isn't the Autistic one with PTSD who was forced from a young age to assimilate my behaviour with neurotypicals and do it 'their' way. She doesn't experience the fatigue, the limitations, the way my body can't coordinate itself 'right' yet decided whether I saw a doctor, whether I needed help, what she would accommodate me for, without my consultation and instruction.
"Challenges persist" is an understatement.
I’m so glad to see someone covering the disabled rights movement! So much of our history is glossed over or even outright forgotten! For most of our history, disability culture has been about making things easier for the abled people around us rather than making sure we’re able to pursue the lives we want to. I’m a member of the first generation disabled students who actually were able to receive an education, and I still faced a ton of discrimination. for example, my school refused to allow me access their online math classes system because they insisted I was just “lazy” and “had a bad attitude”. Turns out I have a processing disability (on top of all the other disabilities they already knew about) and the teachers were erasing the board before my brain could absorb it. I also had *several* teachers accuse me of cheating because I use a laptop to write notes due to dysgraphia, and they though I was just googling the answers (the laptop wasn’t even connected to the internet!)
I hope you do more videos on disabled rights and history- it’s really a topic that needs more time in the sun!
Oh my goodness I go through similar I understand love, some people are so mean, you know the battle is God's.Jesus loves you. I get walked on all the time because of issues I have and it has not been the same for the last 8 years, even down to death threats. I know I have been falsely accused of so much too I get it and it is also revealed who Loved Me In My Life, who was really friends and even family in my life for that matter. Excruciatingly heartbreaking.
I know I've learned since I've moved they even said because of your disability you have to send rights for us to be able to get ahold of your doctors I've never heard of they have no reason to do that they would not give me a copy they would not let me take it back and they've already walked in when they felt like it, knowing I'm vulnerable alone and have to live in fear of going on the street if I even think to speak up anymore
Hi! I'm a disability advocate within the performing arts world. Beautiful work here! This is only one single (and to be clear: hugely important) aspect of the systemic ableist barriers that society places around us that exclude us from public spaces, from community, and from participating fully in that society that has so often decided for us that we are unable or unwelcome. But the issue is so broad, so wide-ranging, and so deeply interwoven with our history and the very fabric of the society in which we live that there really could be an entire PBS series just on ableism alone 🤣Thank you so much for sharing this video, and for working with the wonderful Emily Ladau on this - and I spy that beautiful Disability Pride flag you have in the background, too!
We couldn't agree with you more. We've only scratched the surface with this one story, but hopefully we - and all of you with your thoughtful comments here - are making more people aware of the serious challenges that disabled people face everyday.
There should definitely be a whole series on ableism! And include a chunk of modern day people on benefits programs who have work/ savings barriers, marriage penalties, had benefits taken that they couldn't afford to fight in court, or child custody lost w ASSUMPTION that disabled is the worst thing a parent could be.
I hope there WILL BE an entire series on ableism by PBS.
Medical gaslighting pervades our lives. Culturally we are ignored, forgotten, and abandoned. Inflexible benefits hold us hostage, prohibiting partial work because we have to be perfect sufferers. It's particularly rough for men who are more likely to be disabled (workplace hazards) and homeless with no shelter access (majority of population, most likely to be victimized on the street, and zero priority bedding).
Well said. ".... prohibiting partial work because we have to be perfect sufferers."
I love this new series. Thank you so much for this one. It's vitally important that Governments and Society as a whole, get serious about providing readily accessible services for people with a broad range of disabilities or differently abled members of our community. Especially for countries with Universal Healthcare, like my own. 🖖😁🤘🇨🇦❤️
Hearing this from a POC is very powerful. Again, thanks
I don’t think it was intentional but it made me sad that so many of our struggles were talked about in past tense. I think most of these problems being mentioned are still happening. If you don’t have a family to care for you or they are abusing you, you’re on the street or in a shelter. If your disability isn’t visible, good luck navigating the process as you will constantly be told you aren’t disabled enough. I’m not imagining this, this is reality.
Bureaucratic jerks that want to gatekeep either because they see you as scamming, or just want to be able to slam the door on someone.
There's no way such a SCOTUS decision would be made with today's court.
I beg to differ. Roe v Wade was overturned. We have no rights in 2024.
@@ponyote that's what i'm saying
@@snowballeffect7812 Don't worry .. it was plainly obvious what you meant.
Let's hope they don't get a chance to take our disability rights away.
Um…sure
This just csme across my feed.
Thank god it did.
Thank you so much for the educational information clearly communicated.
Thank you for sharing this.
Blessed are those that help others.
Was. Were.
You keep using past tense when describing the disabled as outcast. I am blessed with being fairly high functionality, but because of my vision leaving me unable to drive.... that MINIMAL barrier of not being able to source my own transportation has shut me out of so much of society. Plus it leaves my family a back pocket way to snipe at me on opposing viewpoints. 'You're cut off from reality.'
When the 'community' you are in doesn't want to do more than ensure your basics are met without you screaming like hell to be made a priority? There's still a rather severe problem. One that the current climate won't allow to be solved because it depends on compassion that just isn't there.
I am blessed to be in a time where I have it so much better than even fifty or sixty years ago. Yet there is so much more that needsto be done.
Know what you mean. I have cerebral palsy and I feel trapped in my own house because I can't drive
Yes! I’m also vision impaired! Also disabled from mobility issues and am Autistic. Even with all those disabilities my biggest struggle is how people, whether loved ones or strangers, treat me. It makes being disabled sooo much harder, really eats at our dignity
I've moved from Michigan (U.S.A.) to the Czech Republic. The ADA has done wonders for the infrastructure in the U.S. In the Czech Republic, there are many metro stations (subway stations) that are only accessible to able-bodied persons. I don't think the elderly people or parents with a stroller (pram) can even access them, as you need to walk up and down around 36 stairs to get in or out of the station. There aren't even any escalators. The bathrooms in restaurants are tiny, the doorways are narrow, and you usually need to go up or down a few stairs to reach an elevator. However, when it comes to the trams--most are level with the street and have room and seatbelts for people in wheelchairs, and the tram will say which tram it is and where it's going (though I think you need to request this feature). These trams are probably a game changer for those with limited mobility. There is also a bus that goes to all of the metro stations that is specifically for people in wheelchairs. Now if only a country could have the wheelchair-accessible portions of the Prague public transport system with the U.S."s Americans With Disabilities Act public infrastructure, we'd have it made.
Blind and Visually Impaired people aren't called the "Invisible Population" for nothing. The American Federation of the Blind had a great ad campaign back in the late 90's/early 00's called "The White Cane" campaign, which was meant to bring more awareness of the needs of the Blind and Visually Impaired community. Sadly, the campaign was short lived due to lack of funding and faded into obscurity.
As a Visually Impaired person myself (since birth), I understand how you feel. It is demoralizing to have to depend on friends/family to get wherever you want or need to go, especially if you live somewhere where Public Transportation isn't easily available or spotty.
@@rosemariemerritt5035 What annoys me is recent cateract surgery has solved ONE problem... raw accuity, and that's what aid programs focus on as criteria. 'can you see better than 20/200? then yo udon't need us.'
Except my left eye is a mass of retenal scarring and more recent glaucoma. My right had a detatched retina that could get worse again in spite of how well the surgery went. My depth perception is thus... SHOT.... processing what i see is also an issue because it will take me a while to sort htorugh visual noise. But for aid systems 'oh you see fine. go away.'
Physically disabled person here (blind), but, I had an uncle that I never met because he was placed in a mental institute in the 1980s because of his cognitive disability Intellectual Deficiency Disorder) which actually wasn't that severe. He was a gullible guy, but sweet as honey from what my family members tell me. They just never knew how to help him. He passed away from COVID in 2020. So yeah, this is a real problem even today.
Your timing could not have been better, thank you and I plan to share! 💙💙💙
In 22 states your children are allowed to be taken from you if you can’t see. The 28th state recently signed a law that social workers are not allowed to take children away from people just because they are blind.
as a social worker, I wish it was all 50 states we could not do that in. It is a shame that some states still allow that. I am also disabled, and I have become a social worker, hoping that I can help make a difference in the lives of the disabled.
Don’t forget that Rosemary’s mom was completely devastated and against her getting a lobotomy from the beginning. And JFK was our second openly disabled president.
JFK (and same with RFK) wasnt openly disabled as President. He had to keep up the illusion of bein abled, and it was a secret to the general public even if white house staff and others were aware of it
To their minds, America cant have a disabled president; bcuz bein disabled means weakness, and the president cant be weak (note this is the same bs reason why misogynists dont think a woman can be president). Its disgustin
Found this quote from a Salon article on JFK, which i think highlights the inherent ableism in the existence of inspirational disabled ppl; bcuz the inspo porn genre requires the disabled person to put other things before carin for their own wellbein and health
"On the campaign trail, he would go from dawn until after midnight, day after day, driving his aides to exhaustion, never mind that his back was killing him and he had to use crutches to get around. It was almost as though he had to prove - to himself as much as to others - that his maladies would not get the better of him."
I am disabled, living on social security. I have lived below the federal poverty line my entire life and I still do today. I only survive because my disability qualifies me for a rent subsidy without which I would be homeless (again).
I have great fear for the future of disability rights. Parts of the ADA were rolled back under the Trump administration, and that was even overlooked in this video. Ive been permanently physically disabled with a Spinal cord Injury for 17 years, in the last 3 years ive found it more and more difficult to find adequate accessible parking at places of buisness in my community. More and more, im seeing parking spots going un painted and than used by non disabled drivers at gas stations. At the grocery store, there usually arent enough available, in part again due to non disabled drivers using them and the local police say they cant do anything because its a private buisness. Living alone and independent is getting much more difficult than it was just a few years ago.
Even the community where I reside, Norristown, Pennsylvania does NOT seem to understand that *blocked sidewalks for the purpose of selling unlicensed food interferes with pedestrian right-of-way as does cars parking on sidewalks in front of garage doors hampers movement in wheelchairs or pedestrians with walkers. Loving people like human beings and helping them be their BEST selves is the most healthy manner to promote community care and civilized behavior. However, when local authorities refuse to use their elected & appointed authority to guard & protect the citizens responsible for putting them in office it does reflect an institutional disregard for Human RIGHTS!
"Loving people like human beings and helping them be their BEST selves is the most healthy manner to promote community care and civilized behavior." ❤
I face at least four beariors each time I go out ony wheelchair. Cops have been a royal pain
Been hit fout times on the crosswalk with the light in my favor.
😮
The crosswalk is the worst. I hate how so many cars pull into it at stoplights. Don’t they understand that is the only safe place for some people to cross the street? Or is it that just enough people don’t care?
Many us elderly folks are in a similar situation. Our bodies have given out in ways that prevent us from doing all that needs doing. SSI doesn't cover the basic costs of our lives. We don't dare speak up of fear of institutionalization. If we could get help with some of the tasks we can no longer do, we might be able to stay in our communities and homes, but there is no hope for that. If you have even a small bank account, all help is denied us. Unless you are a pauper/homeless, you won't get help. Once you are in penury, then you will be shipped off to warehouses of death - nursing homes - where we can wait to die out of public sight. We often go without heat, without food, and more trying to stay at home. Life and age have taken our our dignity. And to speak up is dangerous.
I am elderly and multi disabled. I know where your coming from. I went pan handing I was so desperate.
Pill cutters are great inventions. Also I shop at a food outlet store
My phone battery only last twenty minutes
Doctors neglect me and nitpick me
I have no family
I do pray a lot.i get overwhelmed. I love you
❤
First of all, the following comes from someone who raised a child on the Autism spectrum, he is now 37 years old. I spent those years advocating for and giving him the best life possible. I have done everything to give him an independent and rich social life.
In 2010 I became physically disabled. I developed primary progressive MS. The constant act of well-meaning people to lump all disability, physical and mental into one category, causes me an issue every day of my life.
Because I am in a wheelchair, people think my mind is broken and that I have an intellectual deficit. This truly makes my life a living hell.
People need to understand that yes, a person can have both physical and mental disabilities, but not all people with physical disabilities have mental disabilities.
When overgeneralization is used, people suffer the consequences of this. I would like to have seen that clearly addressed in this video.
direct action has been the *only* course for any movement of the "needle".
not just for the disabled, but for every inch, every millimeter, of progress made by
anyone who has had to live under the capitalists' oppressive over-riding imperative
that profit comes before anything else.
This may have been one of the most important cases for my own life and survival. Yet to this day, services are unavailable or impossible to get. Meaning instead of having a halfway decent life I struggle just to not get kicked out since I cannot really manage an apartment on my own. The only saving grace is having to pay 10% of my disability income just to get a rep-payee to ensure my rent is paid. That's pretty much all I have gotten consistently since on disability. And even they cannot manage to get my portion paid out correctly month to month.
Thank you so much for this episode
I have an aid - 35 hours a week of someone coming to do the things i cannot do (vacuum, make dice, brush my hair, etc) but it was a FIGHT. I qualify to live in an assisted living facility but do not want that. It's just, I'm not 65. And in my state, it's REALLY hard to get disability assistance if you're not 65+, everything is set up with the presumption that you're retired and elderly. It took me FIVE YEARS to get into the home health program, and I've been totally and permanently disabled according to the social security judge since 2008.
Same with affordable housing, actually - most of the low income housing in my state has a minimum age (usually but not always 65 - one place was a young as 57. I'm 47. Sigh) and the few that AREN'T age restricted have years long waiting lists and high application fees (which is confusing - housing for poor people but 300-500 dollar APPLICATION fees?!)
I won't touch the marriage issue, because A) I've never wanted to be married and B)i think the state (i mean government ENTIRELY) should NOT be involved in marriage. Households is what they should care about, and a household could mean 3 guys with zero romantic connections between them, or a couple and their kids and one of the couples sibling move in, that's a Household's and it DOESN'T MATTER to the gov't that there's a naked couple, just that they're a household (i lived that, it was STUPID, we were legally separate Household's according to the government)
But honestly, a LOT of the marriage issue with disability is that, if you get married, you tend to lose your Medicare - and most private insurance is NOT ENOUGH to cover what disabled people need (not without PAYING way more than anyone making less than 500k+ a year could pay)
A silly example - let's say i married my brother in law. He works as a database administrator for a big hospital and makes something like $110,000 a year and has REALLY good insurance.
The amount he pays for his insurance would quadruple (yes i did indeed research this about a year and a half ago for unrelated reasons) so that's a huge hit - insurance goes from 300/ month to 1200. That's almost a 5th of his take home. But then there's copays - my 2 main Dr's would have $50 copays (i see one monthly) and my meds would be over a grand. JUST the copay is over a grand (and the 2 must expensive i would die if i lost them) but there's more and it's worse! There's the fact that the first 5 grand a year is OUT OF POCKET! And don't get me started on procedure costs, lab costs (i need lab work every 3 months, epidural every 4 because that's the most often i CAN, and continual PT) and gods forbid i need to be hospitalized (tends to happen every 18 months or so) or, even worse, need to see someone out of network! My BASIC medical care would bankrupt my brother in law. Quickly. Or I'd die.
I PAID for social security and Medicare, that's WHY we pay those those taxes! Not just for when we retire, but in case of disability. Being denied Medicare because you are married or get married is a denial of something WE PAY FOR, and it's absolute BS, and just makes me more happy that i don't want to get married. But i want the people who want to get married or who are already married to be able to do so without losing their aid. If non- disabled people get married, there's no automatic losing of health insurance by one of them.
And remember - ANYONE could become disabled at any time. All it takes is one accident, one piece of bad luck. I actually think that's a huge part of why the able bodied dislike seeing or thinking about us - they're afraid of bad luck will rub off...
But my point - it could happen to anyone, at any time, and that's why the able SHOULD be invested in fixing it!
I'm autistic and have frequent migraines. Being able to work remotely gave me the ability to control my light and sound stimulation to prevent getting overwhelmed/a migraine.
Now, companies are trying to force people back into the office, and any time I ask about remote accommodations for disability, I get ghosted.
For folks interested in these topics, the excellent disability justice podcast "Death Panel" recently released eye-opening deep dives into Section 504 (and the sit-ins resulting in it actually being enforced) and the ADA.
If someone can’t perform ADL’s adequately for health and safety, they should still be able to be maintained in a group care home. People who can perform ADL’s adequately for health and safety should be able to either receive help in their private homes or attend a day program where they can receive assistance. Only violent individuals should have to be maintained in institutions, and the first goal of special education should be to find ways to avoid violent outbursts before the child becomes too big and strong to cope with.
Thank you for this video! Disability activism is especially inspiring to me because it exemplifies people defending each others’ rights even when they have very different life experiences and backgrounds. I am glad more people are learning this history (and present)!
The only community we all one day join. The disabled community
I wish this was true. We will if we are lucky
This subject is exactly why my wife and I just moved to Vermont. They did away with Institutions in their constitution!
I have somehow “lucked” out despite 1) ADHD (Which I was never diagnosed as a kid)… It finally explained why things were so difficult in school, despite being labeled “Gifted”, 🤨. 2) Getting physically wrecked in a motorcycle crash that left me with permanent issues, chronic pain and difficulty walking. 😖However these are not considered much of a “Disability” even though they affect my ability to work and function. (I’m married, so I there is that, too).
About the only thing this gets me is a parking placard and license plate. Which is useless at the stores that actually need them, since they don’t have enough blue spaces, or Karens/Kens ignore them and park there anyway. 🤬
Olmstead needs to be strengthened. When i applied for home aide i learned homemaker services did not include dishes or laundry. Those are the very tasks i need help with the most. I am in a wheelchair and now losing use of my arms too. But i am supposed to do my own dishes and laundry? While the homemaker service just dusts?
Disabled people are still invisible to society😢
Not so much invisible as ignored.
@@johnnyearp52 Not to mention treated terribly. Not even second class citizens. Even in countries like Canada... 🫤
We're the last group that it's still somewhat socially acceptable to make fun of.
Well considering at least one president openly mocked the disabled (trump mocking a disabled reporter) to the cheers of their supporters....
No, we still do not have the same communication rights as others. The FCC does not enforce ADA title 3 or FCC 504c. They have failed to investigate ongoing 508c and ADA title 2 violations by SSDI, the FCC, DOJ and results in blatant blocking of email by GSA when following the DOJ directions for their failures to redress grievances.
This results in an ongoing genocide of police escalation, failure to get diagnosed due to communication barriers to access and failure of SSDI to follow through on individuals with developmental disabilities. Like neurodevelopmental disabilities
It takes one, I have 5 diagnosed and my child has 4. Diagnosed. There's still many comorbidities etc undiagnosed due to communication barriers to access
This is why there is a mental health, homelessness and incarceration social issues. This is due to ignorance of neurodevelopmental disabilities. Ignorance drives racism and this is neuroracist due to failures to update the ADA since it went into effect a year before the first major Autism study.
Alot has been learned since then
End the neuroracist genocide
Unfortunately, the way the US is going, people with disabilities will be some of the first to experience the horrors of war. Get prepared or get out if you can. If you cant, learn to defend yourself and your loved ones, it's going to be hell here in a few months.
@@robr4662 Yep, the ongoing reality of settlement and belief over understanding.
@@robr4662 Yes, I am worried. No other country would want me. So I am stuck here.
Maybe I could be an illegal immigrant.
I fear losing my ability to take care of myself and my family. I wish the world was as such where becoming disabled would be a setback at worst to live a fulfilling life. Its far better than it was even a few decades ago, yet the outlook is still less than ideal.
I always feel super ashamed when I remember my childhood and how I was peer pressured into looking down on people that are different.. I have a core memory of calling an awkward kid a "nerd" when he was trying to be friendly and just talk to my friend and me. I still feel secondhand shame when I remember how terrible his face dropping felt and I sought him out the day after, I hardly got a lick of sleep in that night, to give him a heartfelt apology and even if he accepted my apology, he never sought out my company again after that and it was something that I had to come to terms with over time and it took me many deep thoughts and I am still learning to this day.. i catch myself feeling uncomfortable around people that are "different" and I hate that I feel that way.. to be completely honest, I feel uncomfortable around other people in general, I am not very confident in social settings, but I particularly feel terrible about that because it's a different discomfort and it's a great source of shame.. i never had many opportunities through life to have close relationships with people, let alone people different than myself, so yeah.. I am still learning but I greet everyone with equal warmth the first time I meet them now, and I am still an awkward person with a terrible sense of humor to this day, but I do what I can to change my actions to reflect my growing stance
Thank You for your honesty. Takes a person with a true heart to share that. ❤ Sending you my love. Take care and be yourself ❤❤❤❤
Thank you for sharing.
Continue trying to use that memory as a reminder to try being better.
you definitely shouldn’t feel shame. Because even the day after you had empathy for the other kid. That is all the disabled really need from the world is people to try and understand what it’s like to be in our shoes. And also to do what they can to help. It can be very hard to talk to people that are disabled, and it makes us uncomfortable sometimes. But just remember that could be you, would you want people to treat you differently because you’re in a wheelchair? That is how my brother relates to me and has made it easy for him to learn that I am no different than I was when I was younger. I just can’t walk anymore. He literally feel free to reply. I would love to be able to talk to you more about this if you would like to speak with somebody.
My husband is disabled (kidney disease). My state doesn't interfere with him getting the federal money, but every 90 days we get grilled all over again by the SNAP program, and we live in fear of losing that help (which we most definitely need). My husband needs 24/7 care, and yet my state claims that I should simply leave him alone at home while searching for work. They haven't (yet) demanded that we put him in some kind of assisted living, but I worry quite often that they eventually will...or that they'll simply kick us out of the SNAP program. It's completely ridiculous that they should be attacking me, his caregiver, but here we are.
having had kidney disease in a transplant, I totally understand the frustration with snap. With kidney disease you’re so much more limited on the things you can eat, and a lot of them are more expensive than ordinary, canned food. Most of the time they don’t even give you enough money to survive for a month. It is a shame that our government does not recognize that the federal income level is not accurate to the expenses of our world now.
Been trying to get my disabilities recognized for almost ten years.
Because of my disabilities its almost impossible to organize getting the paperwork done. Assistance has been slow.
Get a lawyer.
@@PennyDavis-cm9tl you mean like the three I've had that did shit but insult me or treat me like a moron? Nah. Zero need to give someone 25% my payout for doing nothing. The lawyers not bothering to explain HOW to fill out the forms so that I wasn't getting in my own way ("I'm not disabled, society doesn't provide appropriate coping mechanisms to function properly so logically it's the disordered entity" as one example of something all of them said looked fine on the application form but in reality was automatically getting me rejected).
Nah, dude.....I actually managed to get further listening to a friend and doing it myself. Disability attorneys aren't anything but scum that prey up on people who no one will take the time to teach properly.
That it's "being enforced," not that it's "being enacted." A law is enacted when it passes through Congress, the Senate and signed.
Came here from Otherwords referral. So glad I came. Thank you for this interesting discussion. My mind is absolutely blown away at how recent all this is. I was a gov't civil service worker and ADA and such feels like it has *always* been a part of my career (not personally but hearing about it and several co-workers being impacted). And yet, obviously not. What it says to me is that when implemented (fully/properly), it simply becomes "the way the world is". And the way the world should be - that everyone has the chance to thrive and we don't make it harder for people already in vulnerable positions to survive *and* thrive. I look forward to more episodes
Idaho mental health court. Judge Rottenburg ed. center. Oregon psychiatric incarceration. We are second rate citizens still be treated as inhuman.
From what I’ve seen, the financial freedom aspect has been denigrated into absolute abject poverty due to the lack of money, specifically, awarded to those with disability who are unable to work, or work in a full capacity.
The poorest people you’ll ever meet are those with disabilities and it’s a fate that financially excludes them from even participating in society, including forming friendships, because they’re never able to afford to go anywhere or do anything with the only, or largest, limiting factor being money. Freedom is severely curtailed to the point that they are often segregated, made homeless, and unable to access important services and care. This is especially true for those with the sort of family that would rather send you to a torture asylum, like in the Kennedy example, than allow you to be a part of their lives. It’s still akin to torture and can exacerbate the health issues one already may have, create new mental health issues that previously didn’t exist, and even death.
Unfortunately, mental health is dealing it a huge blow.
Thank you for educating, so that we can effectively recruit more folks to the fight for rights!
Let us get back to a place where we’re making progress in this country, not like the last decade and a half where it’s been losing our rights.
Well considering at least one president openly mocked the disabled (trump mocking a disabled reporter) to the cheers of their supporters....
@@singletona082You’re absolutely correct. Trump definitely created the strong wave effect that has rejuvenated so much discrimination and blocks that us differently abled have struggled over decades. Disability rights, resources, accessibility and inclusion were areas where the U.S. was actually doing well in (all gained from previous generations who fought for) less than a decade and a half ago. But the more selfish and ignorant people have become (partly due to this Trump influence), the more us differently abled have had to struggle. This is what I meant by my original comment.
As a disabled viewer, i just wanted to say how much i love how yall got the disability pride flag in the background there
Also, on that flag, i love that its an example of disability accommodation; bcuz its the second version of a disability pride flag...
The first was a zigzag form with brighter colours, but this was an eye strain issue for many disabled ppl, particularly when viewed on a scrn; so the advocates went out and created a new version to accommodate more disabled ppl; and then everyone who used the zigzag version just prty much mutually agreed to adopt the muted version bcuz accessibility matters, esp moreso to smth like the disability pride flag
I personally actually like the zigzag version better, but know that accessibility matters more and will only ever use the muted version when sharin online; tho i wudnt be against gettin a zigzag flag, tho id probs wanna get both flags so i cud use them as an infodumpin opportunity like i did here xD
The disability pride flag shows exactly what progress shud look like; consideration for all, but esp for those more marginalised, bein the drivin force behind all change. The path to equal rights is a long and fraught one that we are still walkin on to this day; just look at the top comment on this vid callin out how we disabled ppl still lack marriage equality rly...
But also we are the other exception to the minimum wage laws, with most ppl bein aware of prison labour; but entirely unaware of stories of places that "advocate" for disabled ppl that pay them not even enuf to buy a bag of $1 peanuts an hr
And yet another way we are treated as far from equal still, far too many ppl are far too blase about usin previously medical only terms for disabled ppl; with many considerin them to be preferable to swearin even.
What words you may wonder? Well theres the obvs example of crazy and insane (sanism bein a huge problem to this day), which i think anyone can see how theyve been used for certain disabled ppl. But also words like cripple, which whilst unlikely to be used as an insult is used all too commonly as a verb meanin literally the same as; to disable someone or smth
But then we get to the many, less commonly known as ableist, actual insults, and those abound; mostly medicalised terms turned insults: dumb, idiot, deranged, moron, stupid, maniac, gimp, imbecile, lame, bonkers, lunatic cuckoo, nuts/nutcase, loony, mad (when used to refer to mental state; not the emotion), mental, wacko, psycho, and many more ive missed no doubt
Oh, and i didnt even mention how commonly ppl use phrases like "blind to" and "deaf to" to mean one ignores smth... As opposed to just sayin closed their eyes to or covered their ears to or just ignored; or any other way that doesnt require comparin a person willfully ignorin to a person **unable** to hear
These may not seem like inequalities compared to the bigger examples like the wage theft and marriage inequality; and they are, but theyre also still important to fight back agaainst all the same.
Just like we shud fight back against when racial slurs become commonly used words; like takin a slur for the Roma ppl and makin it eponymous wih ripped off, and eponymous with unwanted vagrant. You no doubt have the word figured out by now but if not, its gypped and gypsy; which to some Roma is fine, but is still a slur nonetheless and shudnt be so commonly used by those who arent Roma ppl and Roma ppl who arent self declarin as such alrdy
Theres worse harms caused to the Roma ppl ofc, but that doesnt mean we shud aknowledge all the harms all the same
Its not suprising its a tough fight still when alot of the changes werent long ago. Kind of a crazy thought, plus there is always a shortage of people willing to be "caregivers"
And those that do often are not the best of people.
Or the organizations that these people serve under encourage catty cliquish pecking order type behavior in staff as way of keeping employees in line.
Source : My low functionality aunt. My twin brother. My sister. ME.
....there needs to be reforms that there is no poitical or public will or finance to enact.
Yesss teach us Felecia!! This is so important!
Beautiful episode, very moving.
Fantastic video ❤
Thanks for this.
Unfortunately, the way the US is going, people with disabilities will be some of the first to experience the horrors of war. Don't be naive, get prepared or flee to another country if you can. If you can't, learn to defend yourself and your loved ones, it's going to be hell here in a few months.
A fellow pragmatist! Good to see somebody else who sees the writing on the wall.
We are forced to live in a world that has no place for us. It is ironic that normal people put us in chains and then blame us when their so called "for the best" bullshit does not work. I am tired of constantly having to prove myself to others all the time, act perfect just because others don't want to see me the way i am, and always being a nonessential unimportant doll on a shelf,only to have others gripe at me for not fitting their mold.
EVERYONE is ONE LIFE EVENT AWAY FROM BEING DISABLED! We ALL deserve to be married, have assistance, access to healthcare and services, be paid the same as our peers AND SO MUCH MORE!
I was born with spina bifida so this video will be right up my alley.
We do not have the same rights, vulnerable people do not have the same rights, even people that are moving into apartment complexes they are getting away with having us sign that they have rights to our doctors and they do not, but they're getting away with this! I had a past landlord's wife always threatened hospitals with me just to put fear tactics in me constantly just to bully, God bless these people that stand up and do something about it, I reached out for help no one would listen, I'm tired I give up and I just pretty much isolate and waiting to go home waiting on the Lord, and if you stand up for yourself there will only be death threats, I'm very glad for those that are able to stand up, and have enough love in their life to stand by you to support you some of us are alone. God bless Jesus loves you🙏
OMG, yes. All of this. I don't look disabled, but I am (cognitive, mental and mobility). Discrimination.
Is that a Baltimore/Maryland accent I hear? Those "O" sounds are so distinct
Great video btw
Very observant! Yes our host @feleciaforthewin hails from MD! 😉
@pbsorigins same! I didn't even know we said our vowels differently until I moved away for a couple of years. Love to see a Marylander thriving and educating!
I am sick of being too disabled to do something or to do it without accommodation but not disabled enough to get help. I am AuDHD (Autistic and ADHD) with inattentive ADHD and heavily masked autism with low support needs. I also have 5 learning disabilities, 3 forms of PTSD, as well as the classics of GAD (general anxiety disorder) and low grade depression. And I tech qualify for the gifted scale (tho I know it’s a flawed testing system.)
I have undiagnosed physical health issues, likely endo or something similar and an autoimmune issue and/or sleeping issue. I am VERY sensitive to chemicals and have developed more allergies over the years. (Tho how much of this is US food standards idk. I already avoid artificial dyes for the most part.)
And yet…I still only qualify for a minor 504 support plan and no medical accommodation unless I get a diagnosis. (It’ll be years.) So far only a few meds, one of which is BC that I am worried will be banned nationally.
I still benefit from a supportive family, therapy, financial support, whiteness, and not appearing disabled unless I unmask obviously so. I am definitely one of the luckier ones with more resources, but in many ways I wish I was worse off so I could get more help. What I get is nit enough help. I currently cannot work, I cannot really do school very well (tho I have made strides), and I just want all levels of support needs for various disabilities to be accommodated instead of this black and white view all while being told IM the one who thinks inside a box, or cannot fathom empathy. (When really it’s a different type of empathy.)
I’m just, ugh! Art keeps me alive, and I will do miniatures as long as I can to stay sane. Rant over.
I wonder if there are exceptions and if it is really a good idea for some cases of patients with disabilities to live autonomously after watching a video titled "Video shows how autistic teen died after 10 hours in Ohio jail. Mother wants his story told" by the channel "TheColumbusDispatch".
In the country where I live, at least in older generation, people will prefer keeping their demented or disabled relatives with at least one family member assistance to letting them living alone. People can be really evil especially to those who are like that.
The point isn't to force us to live independently, it's to give us the choice to do it or not
Yes, you are right. But, still I'm wondering if in cases where the disabled people are more suspectible to harming either themselves or people around them, giving them the choice to live independently will end up increasing their risk of getting harmed by not so good-willed people like in that particular case. Even Lois Curtis had a professional aid if I'm not mistaken. For some cases, it just feels safer if they are accompanied by at least one family member or caretaker both for other people and for themselves in my opinion.
I know the federal law that says you can sue, but is there a stat
What said that wrong I meant to say is there a Kentucky state law that said you have the right to sue on state level?
If there is a Kentucky law, but it doesn’t say anything about the Attorney General being able to sue. I was told there was a separate bill for that, but they don’t know the name of it.
The Capital Crawl was only a generation or two ago, and the ADA hasn't lived up to its promise, so I'm going to say no.
I would like to have finished watching this but the background music is too loud and intrusive. Ironic. I strongly suggest that you re-edit or make another version without this painful distraction so that it may be more accessible to folks with auditory or sensory disabilities.
A great organization is: Fountain House. Clubhouses around the world are modeled after that organization.
there are a lot of suport compenys in oregon violating 504
So can this same law be used to keep people out of Nursing Homes?
Disabled people in Aotearoa have no rights, there are even laws preventing disabled people from coming to live here from other countries.
Others made so many asked disabled unfortunately THEY did not pay that person as They needed to as they stoled there health .
link to videos about disability in Anderson SC UCr4cSyca75sk-GhLFKLvVyA
Some disabled people only have their lefts
👏🏻👏🏻👏🏻👏🏻
😊😊😊😊
8:10 this sounds a lot like the argument for school vouchers
It does on a superficial level, but the people who would get vouchers are of the same class as the people who can't afford them. In the case in the video, the class of disabled persons were being treated as if they had mental illness.
Another major difference is that schools are funded through property taxes, which is why we have better schools in wealthier ZIP codes. School voucher programs exacerbate this issue by taking public funds and sending them to private schools. Most hospitals are funded from a variety of lines, so a psych ward wouldn't be as adversely affected if some portion of the state's budget instead went to funding community care instead. Hospitals do also suffer from similar issues of quality being correlated with the wealth of the surrounding neighborhoods in many cases.
E.g. the government appropriates tax dollars and spends them on my behalf for my direct benefit. I disagree with the nature and method of their use and believe I can better utilize those resources by self-directing the funding. Forcing me to use the government provided facilities is actually doing more harm than good, especially when government facilities are not the only provider of said service.
That's not a superficial similarity.
@@DrewLonmyPillow I explained how that's incorrect because hospitals are profit centers and schools are a public good. Intentionally ignoring this just makes it seem like an excuse to promote school vouchers when they are clearly detrimental to public education.