Speaking out to educate all of us about a rare disease. Instead of wallowing in self pity, she had found the strength to educate us in not judge others by their appearance. Marky had a mother who fought day in night for him like all mothers do for her children. Strength courage and unconditional love is something we really need. Thank you!
God Bless this family.. This is a brutal disease ..My son had severe dermatitis..So severe he also got strep on his skin and went septic. It looked like he was burned in a fire..He was 4 and he still remembers these days. He didn't get any relief until few yrs ago with some advancement in medications. This was years ago but sending my thoughts n prayers to this family...We need to bring more awareness to diseases like this...
Marky Is Having A Fantastic Time Back Home In Heaven Amen xxxxxxx Where Carlos Is Dragging Marky Every Where Saying Come See This Come See That Come Meet This One Come Meet That One. Marky Is Fine Trust Me xxxxxxx
Marky one brave guy. I can’t imagine the pain he went through. I’m so happy I knew him. He reached so many people with his love & kindness. He certainly has a brave mom. ❤❤❤❤ Rest in Peace Marky
God sent him on a mission. Mission accomplished. So brave! So humble! So accepting of his demeanor! God's angel now! God Bless his mother..she never failed him and loved him unconditionally! She was on a mission from God also.❤❤
How awesome that you featured Marky and Melissa on your show!! It is extremely important to share and normalize experiences like theirs. The courage and strength that it takes for people like Marky is beyond inspiring! Marky story is one of the most incredible I've ever witnessed. We love Marky the Rock and his amazing Mama!!
@@MarkytherockJaquez Thank you for sharing Marky with the world. ❤️ He was *SO* *STRONG* , *POSITIVE* & *BRAVE* ! I do believe that countless people who've seen his videos have been inspired by him as well as found motivation to persevere through their own challenges in life.
And this is why I don’t even have Tik Tok they are full of crap my heart ❤️ goes out to this mother and her son and I am glad that you are raising awareness about your son’s skin condition and I’m extremely sorry that your son has epidermolysis bullosa and that you had to go through such evilness with Tik Tok 💯. 🙏🏿
Hoping Marky & his brother are rejoicing in paradise! These boys are angels who will watch over & take care of those they loved now that they have no limitations. Never forget whilen on your next journey that you've made your mark here & now it's time for you to live the lives you were meant for! Your stories will continue to inspire forever ❤ Endlessly grateful for your message of strength.
I saw this beautiful Mom on a video talking about viewers giving her a hard time. Criticizing her for her trying to bring awareness n sharing their experiences. In my mind I’m thinking, WTF?! What is wrong with people? Admiration, reverence and respect for the entire family. ✨💝🙏🏽🌎🙏🏽💝✨ The world should feel nothing but appreciation, love and compassion for Marky and his family. I send my love and prayers to them all. 💝🙏🏽💝
Une honte, c est justement grace à eux que j ai entendu parler cette maladie horrible, puis marky nous a montré une humanité inimaginable, même dans la douleur il a toujours été souriant, humble et son rire, quand il est décédé je l ai vécu comme un proche, il me manque
In memory of the late Jonny Kennedy... I first became aware of this heartbreaking condition back in 2004 in the UK, a Channel 4 documentary 'The Boy Whose Skin Fell Off' on the channel web site and later 'RUclips' covering a young man whom had such an effect on my outlook of life, I would encourage people to take a look back 20 years and you'll witness one incredible young man, not wanting to be defined by this cruel illness. God Bless Jonny and his family, not a day goes by I don't think of him..
This has to be brutal and a physically painful H*LL on so many levels. I just can't even imagine the level of excessive pain these kids are in. Oh gosh.
marky is a amazing young man he goes through so much pain especially bandage changes he's so brave,hes recently undergone stem cell transplant & hes actually showing some improvements his momm& big brother are amazing he's got 3 dogs too theirhissupport animals
Too msny people ate obsessed with skin color. Marky touched everyone and inspired thousands. This little man 8s the bravedt person Ive ever seen. To see him smile knowing how he suffrred is inspiring and hesrt breaking at the same time. He's not a butterfly. Hes an Angel.
Sweet 😇 Marky... You have taught us so much more than you know... Resilience, Courage, Determination, Bravery, and Positive Loving Guidance!!! Thank You, Cherished Marky... Be At Loving Peace 🕊 with God's Loving Oneness!!! 🙏 💖🕊 ✨ 🕊 💖 🙏
Such a great mom, she & her son Marky are way too good for TicToc!! Sorry Marky has left us but he is with the angels and smiling down on all the good people here on earth!!
This young man is a POWERFUL inspiration to all that suffer in these physical bodies. He's mature beyond his years, and has a heart of solid gold. I pray for a miraculous cure for this precious soul! Father bless him and his wonderful family!!!
This young man and his family are so inspirational! The heart and love they demonstrate every time is a reason for faith and the belief in courage and strength.
Well it definitely was heartbreaking to watch. So, I kind of understand why tiktok would put a warning. I too couldn't watch because I felt like he was suffering so much and it hit me to the core.
Love,comfort and peace beyond understanding to this beautiful family! How anyone could complain while Marky suffered with a smile and so much love to give and around him. He knew he was loved dearly and he loved dearly too. May God open people's eyes to the love this family shared.We were so blessed to experience the love in this beautiful family. Don't judge nobody knows what tomorrow might bring but I pray the love this family has shown will open hearts! How could it not? True love is so beautiful and wonderful like this family. Fly high little Marky your with your brother and the angels are rejoicing around you both! RIP BROTHERS! JESUS IS CARRYING YOU NOW!
I loved watching & learning from Marky! I also wonder if it’s hereditary and if so, why continue to have children knowing that this is something they may have to suffer from? Also, I’m a fire survivor. When posting my burns, Facebook put a disclaimer on my photos as well. I wasn’t offended because some people do have extremely sensitive stomachs, my mother being one of them. She couldn’t change my bandages, my dad had to. She would literally get sick. I can’t blame someone for that.
The first time I saw Marky I totally fell in love with him. He is a huge inspiration too anyone who will listen. I’m older and have a lot of health problems. When I saw him I was ashamed of myself for worrying over my situation. My husband passed away 4 years ago it’s been hard. If you don’t get happy when you see him there’s something wrong with you. God bless you mom and family. I know Marky has passed so he is healed. ❤️🙏😇
Brave son and his brave mommy.❤❤❤😢😢😢. Be strong, dear mom. God is comforting you now. He doesn't put any more on a man than he is able to bare. Let God make you smile again. Rest in peace little son your pain is forever over.😢😢😢😢
Such a hideous desease. The first time I saw it was on RUclips about John Hudson, and I cried for hours. If I could afford it I would give so much for research to find a cure for EB. Lots of love and blessings to these young people
I have followed Marky for a while before he lost his fight, he was such a courageous young man and to ban his mother for trying to educate people about this horrible disease is unforgivable. The way he said Momma was so sweet, R.I.P Marky
Kudos also to Marky's family for the love and support given him throughout his life and instilling such a positive attitude in spite of knowing the ramifications of this dreadful disease. You all were his rock and will continue to be as he awaits your reunion again one day. You have two sons who were taken too soon, but we know God had a reason to call them home. God bless you all and may you find comfort in knowing how these two young men were such stellar examples for young men everywhere. Prayers to all.
He was a wonderful young man he was kind and loving he cared about others such a thoughtful young man I thank you for sharing Markie with the world your videos have really brought so much awareness about the horrible disease but more than that it's shown that even with all his pain and his troubles and hurt in the heartache that he suffered he still remained a happy kind and caring young man and this is because he has a wonderful family and it is so good of you to share him with us
What a warrior and that smile never seen one like it wonderful god bless wee man xmiss you nanapollyx 🙏 blessings to you mumand dad done a great job he love you so much and his dog❤
A veces no sabemos porque la vida nos pone a prueba y mucho menos a un angelito como Marky, admirable tanto él como la mamá que sabiendo la realidad de perderlo mostró siempre fe ante todo!!! 👏👏👏👏👏
So wrong to block clip with Marky, many could learn from hes strenght, hes good behavior towards humans, and hes dogs, here i would say especially dogs, always alert, how are you doing, love you mama, yes it was not nice to watch him suffer, but who could fight as he did ? shame tik tok.
Lord you took Marky in your arms and now he’s not hurting anymore Please Lord Jesus Christ help his family Thank you Lord Jesus Prayers are with the loving family Marky is beautiful Angel
Why shouldn't you be able to go on social media? She is trying to educate people. Also, as human beings we should have compassion and raise these families up in prayer. Bless your whole family.
I totally understands that mother.. It must have been SO hurtfull... Its one thing that you KNOW you are putting your child throu pain, at totally other that someone out there can, and will say "ohh he is too ugly, or to damaged, to have the right to be a human... Thats sad
I am so sorry that he went through with all this difficulty of growing up I'm so sorry but you're have gone through so much at least they're in peace and together 🙏♥️♥️
The EB community stands with Melissa and Marky. EB needs more exposure and that is what Melissa was doing.
He was such a remarkable human being. RIP MARKY🙏
Rest in peace Marky. I hope your family finds peace and solace in the number of hearts marky touched
Speaking out to educate all of us about a rare disease. Instead of wallowing in self pity, she had found the strength to educate us in not judge others by their appearance. Marky had a mother who fought day in night for him like all mothers do for her children. Strength courage and unconditional love is something we really need. Thank you!
Marky and his Mother are amazing.
Damn bruh u got me in tears man.
God Bless this family.. This is a brutal disease ..My son had severe dermatitis..So severe he also got strep on his skin and went septic. It looked like he was burned in a fire..He was 4 and he still remembers these days. He didn't get any relief until few yrs ago with some advancement in medications. This was years ago but sending my thoughts n prayers to this family...We need to bring more awareness to diseases like this...
God Bless You Amen xxxxxxx And God Bless Your Earthly Life Time And Earthly Family Amen xxxxxxx
It's Lyme disease. Take him to a doctor that knows how to test for it, read the labs properly & can treat it. Most doctors don't know how.
Sad he’s lost his fight. Such a beautiful soul that showed so much positive vibes through all the hardships
🙏🏾🙏🏾🙏🏾🙏🏾
Марки не проиграл, он был очень сильный, какую боль терпел каждую секунду. Он многому нас здоровых научил, ценить близких, жизнь.
We've just lost a 17 year old in our area with this disease.
See it from a higher position! This lovely soul is free now, all that pain is gone! He suffered extremely..... more than we can imagine.... ❤
Marky Is Having A Fantastic Time Back Home In Heaven Amen xxxxxxx Where Carlos Is Dragging Marky Every Where Saying Come See This Come See That Come Meet This One Come Meet That One. Marky Is Fine Trust Me xxxxxxx
Marky one brave guy. I can’t imagine the pain he went through.
I’m so happy I knew him. He reached so many people with his love & kindness. He certainly has a brave mom.
❤❤❤❤ Rest in Peace Marky
God sent him on a mission. Mission accomplished. So brave! So humble! So accepting of his demeanor! God's angel now! God Bless his mother..she never failed him and loved him unconditionally! She was on a mission from God also.❤❤
@@martijordak806I could never believe in a God that would allow someone to suffer so much for absolutely no reason at all.
Rest in peace Marky. You are God's angel now 🙏 ❤
How awesome that you featured Marky and Melissa on your show!! It is extremely important to share and normalize experiences like theirs. The courage and strength that it takes for people like Marky is beyond inspiring! Marky story is one of the most incredible I've ever witnessed. We love Marky the Rock and his amazing Mama!!
❤️❤️❤️
Agreed 💯❤️👍🏿💯
@@MarkytherockJaquez
Thank you for sharing Marky with the world. ❤️
He was *SO* *STRONG* , *POSITIVE* & *BRAVE* ! I do believe that countless people who've seen his videos have been inspired by him as well as found motivation to persevere through their own challenges in life.
And this is why I don’t even have Tik Tok they are full of crap my heart ❤️ goes out to this mother and her son and I am glad that you are raising awareness about your son’s skin condition and I’m extremely sorry that your son has epidermolysis bullosa and that you had to go through such evilness with Tik Tok 💯. 🙏🏿
Thank you for sharing! My son suffers from the same exact condition. It's brutal...
Blessings to you and yours.
Hoping Marky & his brother are rejoicing in paradise! These boys are angels who will watch over & take care of those they loved now that they have no limitations. Never forget whilen on your next journey that you've made your mark here & now it's time for you to live the lives you were meant for! Your stories will continue to inspire forever ❤
Endlessly grateful for your message of strength.
I saw this beautiful Mom on a video talking about viewers giving her a hard time. Criticizing her for her trying to bring awareness n sharing their experiences. In my mind I’m thinking, WTF?! What is wrong with people?
Admiration, reverence and respect for the entire family. ✨💝🙏🏽🌎🙏🏽💝✨
The world should feel nothing but appreciation, love and compassion for Marky and his family.
I send my love and prayers to them all. 💝🙏🏽💝
He had such a beautiful smile. God bless you all. Bev
His faith was outstanding!!!!
Rest in peace, beautiful boy.
Une honte, c est justement grace à eux que j ai entendu parler cette maladie horrible, puis marky nous a montré une humanité inimaginable, même dans la douleur il a toujours été souriant, humble et son rire, quand il est décédé je l ai vécu comme un proche, il me manque
Ive watched these videos so so sad awful disease and he was always smiling even how bad he was hurting very very brave boy
❤ I stand with u I'm part off EB community my little butterfly 🦋 was born and past in 2007 god be with u xxx
In memory of the late Jonny Kennedy... I first became aware of this heartbreaking condition back in 2004 in the UK, a Channel 4 documentary 'The Boy Whose Skin Fell Off' on the channel web site and later 'RUclips' covering a young man whom had such an effect on my outlook of life, I would encourage people to take a look back 20 years and you'll witness one incredible young man, not wanting to be defined by this cruel illness. God Bless Jonny and his family, not a day goes by I don't think of him..
This has to be brutal and a physically painful H*LL on so many levels. I just can't even imagine the level of excessive pain these kids are in. Oh gosh.
Agreed 😐😔😑
Or why the parents willingly and knowingly passed it to 2 children and watched them suffer and die in pain every day.
@@davidgray1515 das ist ja unfassbar!
@@davidgray1515agree when one has it why the hell have another one???? I will never understand, it’s very cruel
RUclips has wonderful coverage of another young man with the same condition, God rest his soul.
I watch this sweet family on Instagram. They are an amazing family! Such inspiring people!
marky is a amazing young man he goes through so much pain especially bandage changes he's so brave,hes recently undergone stem cell transplant & hes actually showing some improvements
his momm& big brother are amazing he's got 3 dogs too theirhissupport animals
Miss you very much marky. You are never forgotten ❤❤❤❤❤❤❤
None of us know what anyone is going through ❤❤❤ be kind xx😊
Too msny people ate obsessed with skin color. Marky touched everyone and inspired thousands.
This little man 8s the bravedt person Ive ever seen. To see him smile knowing how he suffrred is inspiring and hesrt breaking at the same time.
He's not a butterfly. Hes an Angel.
Sweet 😇 Marky...
You have taught us so much more than you know...
Resilience, Courage, Determination, Bravery, and Positive Loving Guidance!!!
Thank You, Cherished Marky...
Be At Loving Peace 🕊 with God's Loving Oneness!!!
🙏 💖🕊 ✨ 🕊 💖 🙏
God bless this beautiful child 🙏
Such a great mom, she & her son Marky are way too good for TicToc!! Sorry Marky has left us but he is with the angels and smiling down on all the good people here on earth!!
RIP🙏🏾 he passed recently
Love your son marky. Thank you for sharing his story and yours. Marley has stolen my heart and will be greatly missed.
KING DAVID! That’s Markys baby. Melissa is the mother we all want. She’s just amazing. As is Marky, he lives on through King David
No way would I want Miss Celebrity to be related to me in any way.
This young man is a POWERFUL inspiration to all that suffer in these physical bodies. He's mature beyond his years, and has a heart of solid gold. I pray for a miraculous cure for this precious soul! Father bless him and his wonderful family!!!
So sad that Marky had to suffer so much I hope he is painfree and happy in Heaven
My son has Epidermolysis Bullosa Simplex … these are strong children.
blessings for him and you
These are children who suffer greatly. I would not choose to live that way.
They banned her videos and didn't ban some of these videos I have come across. Bless your heart❤ RIP.
His Mother was his greatest ally. A wonderful human being!
You are blind
This young man and his family are so inspirational! The heart and love they demonstrate every time is a reason for faith and the belief in courage and strength.
I'll never forget you marky
From watching their videos I've learned so much. He's a beautiful, kind soul.
This is pure discrimination. I wonder if Tik Tok violated the ADA. She needs to sue.
The ADA only applies to American companies, and TikTok is Chinese.
Of course the black women narrating turned this story into a Racial Story, WHY? GET OVER YOURSELVES!
What a strong young man, god bless you on your ext journey full of angels like yourself😇😇😇😇😇😇😇
Well it definitely was heartbreaking to watch. So, I kind of understand why tiktok would put a warning. I too couldn't watch because I felt like he was suffering so much and it hit me to the core.
Just heartbreaking
Ruhe in Frieden 🙏.
Marky war ein unglaublicher Junge.
Tapfer,mutig und liebenswert ❤!
Une super maman pour un super petit ange 👍👍👍♥️♥️♥️🙏🕯️♥️🌹
S mothers love for and dedication to her son is remarkable ❤❤❤
He will never be forgotten. Rest in Jesus arms until you are reunited with your family.😢
God Bless Marky, RIP, Marky , you were so strong and positive ❤❤ sending love and Big Huge Hugs to his family, God Bless his family
God bless you! You and your husband are amazing! Micky is now a beautiful ANGEL! ❤️❤️❤️
I’m not on tik Tok. Screw that stupid app.
THANK YOU FOR SHARING HIS STORY.
Rest in Peace Marky. I have tons of health issues myself. I have a caregiver coming in...... Stay Strong...
I don't think there is anything wrong with wanting to share your story and get support in any way you can..
Rest in peace Marky great guy❤❤❤
Love,comfort and peace beyond understanding to this beautiful family! How anyone could complain while Marky suffered with a smile and so much love to give and around him. He knew he was loved dearly and he loved dearly too. May God open people's eyes to the love this family shared.We were so blessed to experience the love in this beautiful family. Don't judge nobody knows what tomorrow might bring but I pray the love this family has shown will open hearts! How could it not? True love is so beautiful and wonderful like this family. Fly high little Marky your with your brother and the angels are rejoicing around you both! RIP BROTHERS! JESUS IS CARRYING YOU NOW!
I loved watching & learning from Marky! I also wonder if it’s hereditary and if so, why continue to have children knowing that this is something they may have to suffer from? Also, I’m a fire survivor. When posting my burns, Facebook put a disclaimer on my photos as well. I wasn’t offended because some people do have extremely sensitive stomachs, my mother being one of them. She couldn’t change my bandages, my dad had to. She would literally get sick. I can’t blame someone for that.
Prayers 🙏🏼
God bless this family , The are going through a lot his a happy child he love people like he do pray for the family.🥰🥰🥰🥰
The first time I saw Marky I totally fell in love with him. He is a huge inspiration too anyone who will listen. I’m older and have a lot of health problems. When I saw him I was ashamed of myself for worrying over my situation. My husband passed away 4 years ago it’s been hard. If you don’t get happy when you see him there’s something wrong with you. God bless you mom and family. I know Marky has passed so he is healed. ❤️🙏😇
No!!!Your story matters so much❤❤❤
Bless you
I'll pray for you and yours
Strength and courage much love
This mother has been through so so so so much, and was also accused of burning her sons by her cruel ass neighbors. She deserves all the best in life.
Brave son and his brave mommy.❤❤❤😢😢😢. Be strong, dear mom. God is comforting you now. He doesn't put any more on a man than he is able to bare. Let God make you smile again. Rest in peace little son your pain is forever over.😢😢😢😢
No what she goes through my grandson born with disease too
Everyone loves Marky!! RIP sweet boy. ♥️
Such a hideous desease. The first time I saw it was on RUclips about John Hudson, and I cried for hours. If I could afford it I would give so much for research to find a cure for EB. Lots of love and blessings to these young people
I have followed Marky for a while before he lost his fight, he was such a courageous young man and to ban his mother for trying to educate people about this horrible disease is unforgivable. The way he said Momma was so sweet, R.I.P Marky
Kudos also to Marky's family for the love and support given him throughout his life and instilling such a positive attitude in spite of knowing the ramifications of this dreadful disease. You all were his rock and will continue to be as he awaits your reunion again one day. You have two sons who were taken too soon, but we know God had a reason to call them home. God bless you all and may you find comfort in knowing how these two young men were such stellar examples for young men everywhere. Prayers to all.
He was a wonderful young man he was kind and loving he cared about others such a thoughtful young man I thank you for sharing Markie with the world your videos have really brought so much awareness about the horrible disease but more than that it's shown that even with all his pain and his troubles and hurt in the heartache that he suffered he still remained a happy kind and caring young man and this is because he has a wonderful family and it is so good of you to share him with us
As if this lady hasn't been through enough already!
Condolences to the family of this special young man
So upset. RIP Marky! Beautiful soul! 🙏🏼🙏🏼🙏🏼🙏🏼
When I was young I knew a girl with these same symptoms. Her mother said she was allergic to the sun and that’s why she couldn’t come outside to play
😢 stay strong
Young lady, you are the woman in The Book of Proverbs 31.👏👏👏👏👏👏that is why your son a master of positivity.
These people are gifts from God for the rest of us to learn life
What is wrong with giving people the option of whether they want to watch your videos or not?
What a warrior and that smile never seen one like it wonderful god bless wee man xmiss you nanapollyx 🙏 blessings to you mumand dad done a great job he love you so much and his dog❤
A veces no sabemos porque la vida nos pone a prueba y mucho menos a un angelito como Marky, admirable tanto él como la mamá que sabiendo la realidad de perderlo mostró siempre fe ante todo!!! 👏👏👏👏👏
So wrong to block clip with Marky, many could learn from hes strenght, hes good behavior towards humans, and hes dogs, here i would say especially dogs, always alert, how are you doing, love you mama, yes it was not nice to watch him suffer, but who could fight as he did ? shame tik tok.
Incredible.
Lord you took Marky in your arms and now he’s not hurting anymore
Please Lord Jesus Christ help his family
Thank you Lord Jesus
Prayers are with the loving family Marky is beautiful Angel
He had a wonderful heart
When did he pass on I had just started watching the videos
I think marky had the worst symptoms of this disease yet was so positive and inspired many
Marky. You were such a hero. More of man than I could ever hope to be. Thank You Marky. You are a Rock.
Know a woman who loss 2 of her children to this skin condition before either was w years of age.
R.I.P MARKY. 💔🙏♥️
What a wonderful heart he had 🙏
My deepest condolences to you and your family. Thankyou Marky and RIP.
The first time I've seen the young man was on here on a RUclips channel called SBSK
So hard to watch this and not cry.
Why shouldn't you be able to go on social media? She is trying to educate people. Also, as human beings we should have compassion and raise these families up in prayer. Bless your whole family.
Tik Tok really needs some better parsing so they don't let the obvious attention seekers run amoke on the platform.
Supermom and Angel marky, they re warriors
God bless 🙌 🙏 ❤
This IS WHY LOVE ANIMALS MORE THAN HUMANS. JUST BECAUSE A PERSON IS DIFFERENT FROM SOMEONE ELSE DOESN'T GIVE SOMEONE THE RIGHT TO JUDGE...
I totally understands that mother.. It must have been SO hurtfull...
Its one thing that you KNOW you are putting your child throu pain, at totally other that someone out there can, and will say "ohh he is too ugly, or to damaged, to have the right to be a human... Thats sad
I am so sorry that he went through with all this difficulty of growing up I'm so sorry but you're have gone through so much at least they're in peace and together 🙏♥️♥️
How could you do that he has a beautiful soul ❤️ ♥️ love love love love love love love love him amen