Understanding erythropoietic protoporphyria

[@kellzlife2907]

Worse disease ever, seems I am the only one in my country with this disease.

[@sameekingston85]

Which country? There are 100 people roughly across the UK, 10,000 world wide. I always thought I was the only one until I found the EPP group on facebook! xx

[@mrmylunch1287]

I hate this disease with a passion thank god i live in ireland