Thank You So Much- Very Helpful- I am in Stage 3 Diastolic Heart Failure- Are there any new break thru Treatments for chronic Diastolic HF with Preserved Ejection Fraction
UTSW is the Hospital my Cardiologist contacted for my Heart Transplant, I'm super nervous but I'm so ready to see what the next chapter of my life looks like...
You need to be in a facility which treats the possibility of helping you exercise seriously. If your legs are too swollen to get on a treadmill then maybe an exercycle. And perhaps mimicking cycling motion in bed with your feet in the air. You certainly certainly need to push for it very aggressively. The problem is you might feel that it is a top priority to regain mobility and that without regaining mobility life is not worth living. So you might be willing to exercise or die trying. From the point of view of the facility that has you, however, sticking you on an exercise when you're in stage d might be construed as malpractice. I don't know how to help you out here but I can tell you I have a friend who is in the same situation.
I have congestive heart failure, I have a pacemaker that shocks my heart 98% of time, I have an enlarged heart. Plus Afib. I,m blessed to have lived this last 10 yrs. Its in God,s hands. Thank mb you Lord.
i was so bad, i had to be on oxygen full time. my specialist, took off carvedidole and i didn't need oxygen anymore. i still can't excert myself, even after my 5 by-pass surgery in 2017. my doc said i was in stage 4 but with medication, she says she's not sure i'm still in stage 4. i'm on a nitro patch now.
I've been a Congestive heart Failure patient for many years My hearts been shocked back into normal rythm 3 different times by my Pacemaker/Defibrillator Feels like a horse kicking you in the chest Right now my EF is between 17-18% and my Heart Specialist Nurse Practitioner said that when it gets between 13-14% that I'm going to need a Heart Transplant I've been on several Heart meds throughout the past few years with a decline in my hearts EF 1 of my daily meds is Entresto The thought of a possible Heart Transplant in my future terrifies me
@@shanshan8402 I don't see an answer about stage D heart failure so I looked to see what Google Ai says. Here it is: Symptoms of end-stage heart failure include: Shortness of breath: Difficulty breathing or feeling breathless, even at rest Swelling: Fluid buildup in the legs, feet, ankles, abdomen, or neck veins Coughing: Persistent coughing or wheezing, sometimes producing white or pink mucus Weight change: Unexpected weight loss or gain Fatigue: Feeling tired or weak, especially with physical activity Heart rhythm changes: Irregular heartbeat, heart palpitations, or feeling like your heart is racing or throbbing Cognitive impairment: Difficulty thinking clearly, confusion, memory loss, or feelings of disorientation Other symptoms: Nausea, loss of appetite, low blood pressure, malnutrition, increased nighttime urination, or feelings of anxiety or “doom” BEST TO YOU. I'm in the middle of CHF somewhere. Lots of pain. But people are all different.
Diagnosed with heart failure 18 months ago... after 18 months of being treated by the medical profession, think I'll just let mother nature take it's course..
Similar problem here on getting to a cardiologist or any applicable doctor. I've been researching like hell. Get oxygen by going outside in the sun and breathing. Do exercise by finding the exact right amount. Not too much, not too little... get the balance. I'm going to use my computer while standing up to give my chest and lungs "room to breathe." I find internet guru's like Austin Goh and will do any video he offers just to keep moving in a doable range.... especially the one on getting oxygen. I love my Djembe drum to follow along with internet instructors. Bending over can lead to bendopenia. I eat meat, eggs and butter and low carb. You can ask Dr. Eric Berg about the keto diet but that is a long course of study and too much work for me. If you ever get to doctor ask about a far infrared mat that I use on a LOW setting. A very helpful lady sells them (not cheap but worth it). Search for: Amazon Sensible Decisions
It doesn't run in my family they pills for heart failure I take 3 blood pressure I had ego dine I don't have the sign all sign do think I should get second opinion what going on Connie 10:43
@@joea363 that sux, Joe. The world is not just, it does not owe us anything. You can be driving stone cold sober with a seatbelt and the drunk in the SUV on the other side of the highway jumps the divider and flattens you and your 4 year old daughter. We do what we can and hope for the best. My neurologist tells me I'm at risk for lewy body dementia. I'll tell you joe, from my perspective these days a heart attack is looking pretty good.
@@tim71pos You are a person of great wisdom. Ironically, I was in five car collision two weeks ago. Not my fault. I was at a stop when hit. I was one of two people to walk away uninjured. I also brought my 12 year old son through stage 4 cancer. One thing for sure, there is no such thing as God
Try telling me to take, Extra Virgin Organic Olive Oil add Avacado Seed Oil, Four table spoons twice daily, pray 2 Chronicles 30:18 - 20 Isaiah 53:5 Psalms 107:20 Ephesians 3:20 my Dr. Is Jesus Christ God, !
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Excellent in all you give us in this video. Extreeeeemely helpful!
Thank You So Much- Very Helpful- I am in Stage 3 Diastolic Heart Failure-
Are there any new break thru Treatments for chronic Diastolic HF with Preserved Ejection Fraction
Did you find out the answer to the question? I have a family member in same situation as you
Can't hear it
UTSW is the Hospital my Cardiologist contacted for my Heart Transplant, I'm super nervous but I'm so ready to see what the next chapter of my life looks like...
How can a patient exercise if they’re constantly tired from heart failure?
You need to be in a facility which treats the possibility of helping you exercise seriously. If your legs are too swollen to get on a treadmill then maybe an exercycle. And perhaps mimicking cycling motion in bed with your feet in the air. You certainly certainly need to push for it very aggressively. The problem is you might feel that it is a top priority to regain mobility and that without regaining mobility life is not worth living. So you might be willing to exercise or die trying. From the point of view of the facility that has you, however, sticking you on an exercise when you're in stage d might be construed as malpractice. I don't know how to help you out here but I can tell you I have a friend who is in the same situation.
I have congestive heart failure, I have a pacemaker that shocks my heart 98% of time, I have an enlarged heart. Plus Afib. I,m blessed to have lived this last 10 yrs. Its in God,s hands. Thank mb you Lord.
Amen. God bless
Wow .. can i have your whatsup Number ?? Really want to know your daily
But, how does someone exercise if they’re always tired from heart failure?
Don't, if you are stage 3 or stage 4 as myself. Ephesians 5:26 - 27
A real catch-22 …
i was so bad, i had to be on oxygen full time. my specialist, took off carvedidole and i didn't need oxygen anymore. i still can't excert myself, even after my 5 by-pass surgery in 2017. my doc said i was in stage 4 but with medication, she says she's not sure i'm still in stage 4. i'm on a nitro patch now.
I've been a Congestive heart Failure patient for many years
My hearts been shocked back into normal rythm 3 different times by my Pacemaker/Defibrillator
Feels like a horse kicking you in the chest
Right now my EF is between 17-18% and my Heart Specialist Nurse Practitioner said that when it gets between 13-14% that I'm going to need a Heart Transplant
I've been on several Heart meds throughout the past few years with a decline in my hearts EF
1 of my daily meds is Entresto
The thought of a possible Heart Transplant in my future terrifies me
Hi Nickie!!!🙂
Volume too low
I'm in stage d of heart failure have already died one time already.
What was your symptoms
@@shanshan8402 I don't see an answer about stage D heart failure so I looked to see what Google Ai says. Here it is:
Symptoms of end-stage heart failure include:
Shortness of breath: Difficulty breathing or feeling breathless, even at rest
Swelling: Fluid buildup in the legs, feet, ankles, abdomen, or neck veins
Coughing: Persistent coughing or wheezing, sometimes producing white or pink mucus
Weight change: Unexpected weight loss or gain
Fatigue: Feeling tired or weak, especially with physical activity
Heart rhythm changes: Irregular heartbeat, heart palpitations, or feeling like your heart is racing or throbbing
Cognitive impairment: Difficulty thinking clearly, confusion, memory loss, or feelings of disorientation
Other symptoms: Nausea, loss of appetite, low blood pressure, malnutrition, increased nighttime urination, or feelings of anxiety or “doom”
BEST TO YOU. I'm in the middle of CHF somewhere. Lots of pain. But people are all different.
Diagnosed with heart failure 18 months ago... after 18 months of being treated by the medical profession, think I'll just let mother nature take it's course..
Hovering between srage c and d. Cardiologist is booked for the next 3 months. I might die before my first appointment.
Similar problem here on getting to a cardiologist or any applicable doctor. I've been researching like hell. Get oxygen by going outside in the sun and breathing. Do exercise by finding the exact right amount. Not too much, not too little... get the balance. I'm going to use my computer while standing up to give my chest and lungs "room to breathe." I find internet guru's like Austin Goh and will do any video he offers just to keep moving in a doable range.... especially the one on getting oxygen. I love my Djembe drum to follow along with internet instructors. Bending over can lead to bendopenia. I eat meat, eggs and butter and low carb. You can ask Dr. Eric Berg about the keto diet but that is a long course of study and too much work for me. If you ever get to doctor ask about a far infrared mat that I use on a LOW setting. A very helpful lady sells them (not cheap but worth it). Search for: Amazon Sensible Decisions
Hi I'm Connie I just found out I have heart failure like to know I don't know they said I blood in my legs is that blood or water in my legs
Yes, I have heart failure, stage 3. Can't hear though😏
Hope you’re well. Is there a difference btw advance heart failure and stage c?
It doesn't run in my family they pills for heart failure I take 3 blood pressure I had ego dine I don't have the sign all sign do think I should get second opinion what going on Connie 10:43
So, you can do everything right in terms of diet and exercise and still develop serious cardiomyopathy as in my example. It makes no difference!
@@joea363 you can never touch a cigarette and still get lung cancer. It doesn't mean that you were wrong never to take up smoking.
@@tim71posbut I did everything I could to stay fit and healthy and was still tagged with genetic heart failure.
@@joea363 that sux, Joe. The world is not just, it does not owe us anything. You can be driving stone cold sober with a seatbelt and the drunk in the SUV on the other side of the highway jumps the divider and flattens you and your 4 year old daughter. We do what we can and hope for the best. My neurologist tells me I'm at risk for lewy body dementia. I'll tell you joe, from my perspective these days a heart attack is looking pretty good.
@@tim71pos You are a person of great wisdom. Ironically, I was in five car collision two weeks ago. Not my fault. I was at a stop when hit. I was one of two people to walk away uninjured. I also brought my 12 year old son through stage 4 cancer. One thing for sure, there is no such thing as God
@@joea363 I think there is a God he's just mean
What's a good diet for Congestive a Heart Failure Patient ?
@Jimmy S so what stop drinking water?
Become vegetarian - a plant based diet will help
@@slickdawg4634 maximum 2L per day and weigh yourself everyday. Contact your doctor if you gain more than 2 lbs in one day or 5 lbs over a week.
I have EF 2.5. I walk 30 min every morning. I take beef heart every day. I have trouble to breath but I'm not in bed every day but in chair relaxing.
seem like I'm tired all the time I sleep most of the day away why's that I had a heart attack I have AFib and heart failure.
That sucks
Try telling me to take, Extra Virgin Organic Olive Oil add Avacado Seed Oil, Four table spoons twice daily, pray 2 Chronicles 30:18 - 20 Isaiah 53:5 Psalms 107:20 Ephesians 3:20 my Dr. Is Jesus Christ God, !
The interviewer lady seemed relatively uninterested
V hard hear
BAD AUDIO.