Week 1 with an Ileostomy: Eating, Emptying, and More
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- Опубликовано: 26 июл 2024
- So you wake up from surgery with an ileostomy. Now what?! In this video I talk about how my first ileostomy bag changes went, what I was and wasn’t supposed to eat, and the different methods you can use to empty your bag. There is definitely a learning curve to having an ostomy and I had plenty of struggles in that first week, so know that you aren’t alone if you’re also having troubles.
⏱️TIMESTAMPS⏱️
0:00 Intro
0:40 What is an ileostomy?
1:25 Waking up with an ileostomy & naming my stoma
3:35 Changing the ileostomy bag in the hospital
5:30 Food restrictions following ileostomy surgery
7:26 Figuring out how to empty an ostomy bag at home
10:39 First ileostomy bag change at home
12:52 EXCITING ANNOUNCEMENT!!!
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15 days into my colostomy! It’s certainly been a roller coaster ride, but I’m alive and learning more each day. Jelena, I am so grateful for your videos. My home health nurse had never changed a bag! We got out the written instructions and managed to get a bag on me. I asked her to watch your videos before she comes back. The second home health visit was a different nurse with experience! I named my stoma Irene. No clue why, or if I will actually refer to it by name. I’m grateful for you. 💙❤️
Glad to hear you're doing ok and learning more all the time :-) So glad you got a different nurse that knew how to change a bag. If it was as easy as just following instructions we all would be pros at the first bag change! Wishing you and Irene plenty of smooth bag changes in the future 💙
J Siears love the name!
I had allergic reactions to the adhesive in the barrier/wafer. A trick I learned from my wife who is a Nurse Practitioner was to apply liquid Flonase to the irritated skin, let it dry, then apply liquid skin barrier on top. After the barrier dries then attach your barrier. It wasn’t a total cure but offered an 80% improvement.
Thank you for this advice. I have reactions to any kind of adhesive, so I'm sure I will need this.
I was loosing weight after my ileostomy. I typically drink lots of fluids while eating. Problem was that tended to flush my food quickly through the small intestine not providing enough time to absorb all the nutrients. So drink minimally during meals. Wait for 30 minutes after your meal to drink larger volumes of water. That helps your small intestine improve absorption of nutrients.
Yes, that’s a very good tip.
Thank you for this! I’m about three weeks post surgery now and it definitely is a learning curve! Mine is permanent, his name is Oscar the Ostomy, and I love him for what he does for me and helping me become cancer free. I love how quick pooping is now and how I can be odor free by using lubricating deodorant. No more stinking up the bathroom! My husband installed hand held bidet sprayers on our toilets. This makes rinsing my bag very easy and for me it’s an essential part of bag hygiene. But that just goes to show how very different people’s preferences are. I’m still getting the hang of bag changes and I do have some skin breakdown. But, I know I will heal and I will get better and better with time! Facebook groups for ostomates have been invaluable!! Thank you for this resource.
You're welcome! I like the name Oscar. The hand-held bidet sounds great for rinsing. You're right, we all have our different preferences for our ostomies just like for any other hygiene routine. Facebook groups are really helpful because you can show pictures to get quick feedback on stuff and learn about different techniques.
Goodness, gracious. So far I haven’t had to go through any of these experiences myself (as yet), thank the gods.🙏
The way you put your videos together is totally amazing. The writing, the expression and the jump cuts.
It would be hard for anyone to go through this period and you don’t pretend it was. You don’t sugarcoat it, but you also talk about how you end powering through it somehow, how the contributions of a nurse help save the patient from a lot of distress.
I know this might seem like an unfair comparison, but most people don’t want to be plumbers because you’re dealing with a lot of fecal matter day in and day out. But, when the toilet is backed up, you need to call a CV plumber, and thank the gods there are people you can call who can help resolve this unpleasant problem.
Similarly with any nurses who’ve chosen to take this job on.
For numerous other reasons, I got to consuming content on various medical situations and so forth.
My very small family is getting older, and maybe some of this content you’re providing, Jelena will help me help my family power through any of these trials and tribulations.
I know this video is from three years ago, so I kind of forgot where you got to in your recovery.
Thanks, Jelena. Wishing you all the VERY best. ❤️🩹
When my brother got his bag two months ago. Kaiser has me come in and show me for five minutes how to change the bag lol. We didn’t get home nurse for days and I had to do it lol. I been on my own to change the bag and his diet is another challenge. There was days I had to change his bags a few times a day . When I came across coloplast bags omg what a great bag 👍. You can shower and swim with that bag it’s amazing 👍
zee k wow, that sounds tough! Are things getting a little easier now for you and your brother? I LOVE the Coloplast bags!!! They dry so fast and feel so soft.
God bless you. I had my ilsecomy reversal 28 April this year. So far so good. I'm just eating small meals for a minute.
Glad to hear you're handling the reversal well so far! I hope all continues to keep going well for you.
It's been 3 weeks since I was diagnosed, 2 weeks since my LAR, and next week they're putting in my port. Things have happened so fast I haven't really had time to come to terms with any of this. My worst fears were having cancer and a having a poop bag. Now that I've had both, my worst fear is that I won't survive the chemo. I am very anxious about my stoma. They took out the staples and stoma bar 2 days ago and it was so irritated. It looks like it might be going to a normal size this morning and I freaked out until I remembered the doc saying my stoma was pretty big.
Wow girl, you are awesome. I have had my ileostomy for a week and I’m ready to ditch it. I named my stoma “my lil stoma”. I was told that my obstruction is pre-cancerous. Thanks for the videos.
I was ready to ditch mine a week into it too! 😅 Once I got the hang of it a little better I got more accepting of it.
Excellent informative video.
Thank you! 💙
Never named my colostomy of 27 yrs. But boy I am so scared now as I may have to get a iliostomy made. Why ? Because of a very large hernia. I am just out of our rvh. Had a blockage. So 5 days in hosp and 4th day still with pain
4 yrs back surgeon suggested for my rectum to be removed and an illiostomy. My marriage was in difs and my heart was everywhere!! 55 yrs of living with a chronic alcoholic. So it's colitis and diverticulitis fall on. Thankyou for your info. Love from n ireland
Mines is Bobby I have to live with him 2022 forever
I never had one of those, my cancer was in the transverse colon, it's good you didn't have it permanently 🤗
It is definitely quite the experience!
@@SurvivorJelena I bet 😟
i have had an ilieostomy for 50 years. i never gave it a name
I just found this video thx forinfo
Iv yet to name mine.
I did not look at it at all till the next day.
I prolapse for three months after the first month.( it no longer prolapses)
I'm pretty content with it now.
How long were you in hospital after surgury?
Oh yea my clip has removed itself in public 3 times here recently luckily I was outside but yhe6 first time I had to drive home frpm new Orleans in my shirt and boxers
I definitely had to gather up some courage to look at mine (and the rest of the surgical sites)! I was in the hospital for 5 days after my LAR surgery.
With just the small intestine doing the work for digestion, and the large intestine not in use - did they advise you to increase your rate of food consumption, to make up for the nutrients that the large intestine were not absorbing?
They did caution me that my body wouldn't be absorbing nutrients as well and to do my best to eat as well rounded of a diet as possible. Taking vitamins to supplement your diet may not even be the best option because if you take it in pill form the pill could just pop right out of your stoma and not get absorbed at all.
Good to see again sweetie . Can you do a video about the reverse of your stoma thanks 🙏
zee k good to hear from you again! Yes, it’s definitely on my list of videos to do.
Survivor Jelena thank you 🙏
The small intestine does not absorb water so I am wondering how you absorb water.
It sure does absorb water. If it didn’t, anyone that has an ileostomy would be dead from dehydration.
@@SurvivorJelena I have heard that many people with an ileostomy end up in hospital because of dehydration. That water goes straight through and is not absorbed. This comes from fellow patients at my bowel hospital and from some blogs I have read.
Yes, you can definitely get dehydrated more easily because you don’t also have your large intestine absorbing water too. So you’re absorbing some water, just not as much as when the large intestine was also working.
Stoma (big red)
I like that name 😂
@@SurvivorJelena you rock keep posting vids you very easy to listen to and very good at explaining things.we all love ya.rockon
Thank you! My executive producers, aka my husband and dad, make sure that I thoroughly explain things in my videos so that someone outside of the cancer world can understand what I’m talking about.
Sally the stoma ❤