The good days are few and far between. You're right, it's hard to remember. Keep up the good fight. Hang in there, you will find the good in the midst of the bad. I admire your tenacity and you are never going to give up.
Thank you Sharrell. Nope, not planning to give up. I have too much to do. Thankfully, there are ways to ease symptoms if we look hard enough. Thankfully.....😀😁😊
This video is accurate. Dave, you describe it so well. Fkn scary schlitz. I admire your strength and courage putting it out there. Thank you for sharing.
Thanks for your comment and letting me know this video helps. PD can be scary stuff. One minute you're walking, 10 minutes later frozen or crawling. It's good to have a backup plan when you need it quickly.😊😁😀
Praise the Lord for that device! Watching your video now I feel like I can understand a little bit better why my mom dont want to go to church anymore.... and I pray one day she will be as excited to go as you again! and I hope nextstride will be available for international shipping soon!! Bless you!!!
Hi Min, it has to be very hard on your mom not to be able to go to church anymore. It was for me. I haven't been for about 4 years until last Sunday. I would very much like to see the NexStride ship international. Thank you for your feedback.😀😁😊
Hi Jess, here are the updates I have so far. No longer available in Canada. No update at the moment for the petition yet. ruclips.net/video/DAvR8RrKdig/видео.html ruclips.net/video/ShY6D2TRA9A/видео.html ruclips.net/video/H5tZKAaxATQ/видео.html
Hi Lora. Nice to meet you and glad you found our channel. Hopefully there is lots of information for you. If you have any further questions you can always send an email to info@lifewithparkinsons.ca
Hi David, I feel that if I lift my right foot Higher when take my first step, it tends to make it easier to continue to walk without the sense of freezing. Try it and let meknow what you think.
I was diagnosed in Jan. of 2020. My biggest issue is balance and freezing at this time. I don't use any assistive devices at this time. My only tremor is my index finger on my left hand and it's very minimal. (My left side is my affected side). I have freezing episodes when going through doorways, when getting up out of a chair or sometimes mid-stride. I also stutter step when slowing down to stop walking. I've noticed if I don't "think" about the process before I start walking it comes more easily, but those times are few and far between. I've tried several things like "marching in place", acting like I'm "stepping over an obstacle" and trying not to overthink it and just do it. But I still have numerous freezing episodes daily. Does anyone have any ideas I haven't thought of? I've talked to my MDS about it and he pretty much said "Yes, that's very common with Parkinson's" and that was about it. I thank you for putting these videos out here to help those of us with Parkinson's to feel not so quite alone in our journey! I've always said people with Parkinson's are like snowflakes no two Parkinson's people experience the same symptoms or issues with this disease.
Hello Cheri. Thanks for explaining your symptom set, it sounds very similar to mine. I have all of your problems regarding gait and walking. That is why I am grateful NexStride has partnered with our channel to offer some relief for those symptoms. Here is their link. yes.getnexstride.com/discount/lifewithparkinsons10
My mother got diagnose around the very same time, and also started with the left side. Its not easy, not easy at all... but this videos are blessing even for the families to be able to understand more! Bless you Cherigrogg
Hi David, I’ve only been diagnosed since July of this year, but by far the worse symptom I have is FOG! Going through tight spaces and doors are hell. I’ve noticed if I backup I usually get out. Does levodopa help ? Thanks!
When you say your “off times” what hours are you off compared to “on”? I’m new at this, but I take Rytary 3x a day 6am, 12, and 7pm. I also take Pramipexole at 6am and 7pm. What would be considered my “off time ?” Thanks
@@Anthony99355 HI Anthony, my off hours are usually in the morning and evening. Morning, I am usually on by 8am, Evening I am off from 6-8pm usually, then back on until I go to bed. I don't know what your off times would be. Off times for me is when I can't walk
Hi Nick, I am on the wait list for DBS, about 3 years till my turn. At this time I am not sure that is the way to go for me. There are many alternative options we have not been introduced to. Check out this channel from a researcher in Australia.www.youtube.com/@slchan1
I know this is an old post but I recently became friends with someone who has PD so this is quite an insight into daily issues with freezing. Thank you for posting
Thanks for sharing
My pleasure😀😁😁
The good days are few and far between. You're right, it's hard to remember. Keep up the good fight. Hang in there, you will find the good in the midst of the bad. I admire your tenacity and you are never going to give up.
Thank you Sharrell. Nope, not planning to give up. I have too much to do. Thankfully, there are ways to ease symptoms if we look hard enough. Thankfully.....😀😁😊
Love your videos!!always nice to see you
Thank you David. So glad to see you each week!😀😁😊
This video is accurate. Dave, you describe it so well. Fkn scary schlitz. I admire your strength and courage putting it out there. Thank you for sharing.
Thanks for your comment and letting me know this video helps. PD can be scary stuff. One minute you're walking, 10 minutes later frozen or crawling. It's good to have a backup plan when you need it quickly.😊😁😀
Great topic! Getting stuck is the worst!🤬
Thanks Jeremy, yes it is!😀😁😊
Hey David I am happy you are closer to figur ing things out with the gloves 🧤 woot woot 🙌🙌 🎉🎉🎉
Thanks Tory, it is a major relief to get some recent success with the gloves. 😀😁😊
@@LifewithParkinsons Aaaah your so very welcome 🤗
❤❤❤Thank you! Learning to understand what Parkinson's patient feels.👍💝☮🗽
Thank you for your kind words and encouragement.😀😁😊
Praise the Lord for that device!
Watching your video now I feel like I can understand a little bit better why my mom dont want to go to church anymore.... and I pray one day she will be as excited to go as you again! and I hope nextstride will be available for international shipping soon!! Bless you!!!
Hi Min, it has to be very hard on your mom not to be able to go to church anymore. It was for me. I haven't been for about 4 years until last Sunday. I would very much like to see the NexStride ship international. Thank you for your feedback.😀😁😊
Bless the Lord for that!!! Tysm for sharing your experiences@@LifewithParkinsons
Thanks! I had not heard of that device. Take care!
Glad to help😀😁😎
Thank you sir. your videos are always informative and inspiring
Thank you 4merLawman. I love your RUclips name! Thank you for letting me know that the videos are helpful.😀😁😊
Could you please make a video for the update of Movapo? Thanks.
Hi Jess, here are the updates I have so far. No longer available in Canada. No update at the moment for the petition yet.
ruclips.net/video/DAvR8RrKdig/видео.html
ruclips.net/video/ShY6D2TRA9A/видео.html
ruclips.net/video/H5tZKAaxATQ/видео.html
Thanks!
Thank you so much for supporting this channel, Angela.😁😀😊
Great information
Thank you so much, I hope these videos help you even just a bit,😃😊😁
Thank you I enjoy your videos. I can relate to freezing and falling. I look up thr Nex Strde.
Hi Lora. Nice to meet you and glad you found our channel. Hopefully there is lots of information for you. If you have any further questions you can always send an email to info@lifewithparkinsons.ca
Hi David, I feel that if I lift my right foot Higher when take my first step, it tends to make it easier to continue to walk without the sense of freezing. Try it and let meknow what you think.
Hi John, I will try that for a bit. Probably will cut down on the holes in my socks. lol😊😁😀
I was diagnosed in Jan. of 2020. My biggest issue is balance and freezing at this time. I don't use any assistive devices at this time. My only tremor is my index finger on my left hand and it's very minimal. (My left side is my affected side). I have freezing episodes when going through doorways, when getting up out of a chair or sometimes mid-stride. I also stutter step when slowing down to stop walking. I've noticed if I don't "think" about the process before I start walking it comes more easily, but those times are few and far between. I've tried several things like "marching in place", acting like I'm "stepping over an obstacle" and trying not to overthink it and just do it. But I still have numerous freezing episodes daily. Does anyone have any ideas I haven't thought of? I've talked to my MDS about it and he pretty much said "Yes, that's very common with Parkinson's" and that was about it. I thank you for putting these videos out here to help those of us with Parkinson's to feel not so quite alone in our journey! I've always said people with Parkinson's are like snowflakes no two Parkinson's people experience the same symptoms or issues with this disease.
Hello Cheri. Thanks for explaining your symptom set, it sounds very similar to mine. I have all of your problems regarding gait and walking. That is why I am grateful NexStride has partnered with our channel to offer some relief for those symptoms. Here is their link.
yes.getnexstride.com/discount/lifewithparkinsons10
My mother got diagnose around the very same time, and also started with the left side. Its not easy, not easy at all... but this videos are blessing even for the families to be able to understand more! Bless you Cherigrogg
@QueenMinCovers thank you! ❤️ 🙏 for your Mother.
Have you considered DBS?
Hi Jess, I am on the waiting list.😁😀😊
Hi David, I’ve only been diagnosed since July of this year, but by far the worse symptom I have is FOG! Going through tight spaces and doors are hell. I’ve noticed if I backup I usually get out. Does levodopa help ? Thanks!
Hi Anthony. Levodopa does help me a lot. I would be lost without it. Yes I struggle with doorways and tight spaces also when I am off.😀😁😊
Good to know, I’ve been on levodopa only a week and haven’t noticed any improvement. Thanks for the info.
@@Anthony99355 No problem. For me the levodopa helped right away.
When you say your “off times” what hours are you off compared to “on”? I’m new at this, but I take Rytary 3x a day 6am, 12, and 7pm. I also take Pramipexole at 6am and 7pm. What would be considered my “off time ?” Thanks
@@Anthony99355 HI Anthony, my off hours are usually in the morning and evening. Morning, I am usually on by 8am, Evening I am off from 6-8pm usually, then back on until I go to bed. I don't know what your off times would be. Off times for me is when I can't walk
What about DBS?
Hi Nick, I am on the wait list for DBS, about 3 years till my turn. At this time I am not sure that is the way to go for me. There are many alternative options we have not been introduced to. Check out this channel from a researcher in Australia.www.youtube.com/@slchan1
I know this is an old post but I recently became friends with someone who has PD so this is quite an insight into daily issues with freezing. Thank you for posting