I had guillain barre 17 yrs ago and my doctor told me never to get the flu vaccine and now he told me to wait on getting the Covid-19 vaccine. Thank you so much for sharing your story
I myself had guillain barre syndrome from the covid 19 vaccine I had guillain barre syndrome about 2 years this year so I'm still In recovery i can walk but I can't walk far distance and my balance is still poor
Low dose naltrexone helped me a lot when I was trying to recover from vaccine side effects. You won’t get it prescribed from a regular doctor. Only alternative or functional medicine doctors are more aware of it’s use.
I just had GBS last February of this year , 2024. Still recovering. I had 5 days of IVIG and able to walk now. My balance is still flaky and there are still pins and needles feeling on my palms and feet but I am determined to get through this. I had to take the Astra Zeneca vaccine to be able to work during the pandemic and it was required by the city government I live in. To put it simply, I had no choice. I am 53 and I wish I never took the vaccine but it is what it is. I wonder 20 years from now how Astra Zeneca will ever admit the side effects of its vaccine to the public. All written definitions of GBS says that it is a "rare" condition. After the pandemic, it is NOT rare anymore.
I owe everything to Britannic , who made me so popular among my school days students and faculty , more particularly for the doctors were sympathetic to everyone at home , I especially recall Dr aggarwal specialises in tropical diseases, some skin rashes are so severe that you never know how it crops up and the medication were so good that after a regular course I got relieved of those rashes which appeared before sun rise and kept irritating until dawn , .
How is GBS or it's cousin CIPD diagnosed? I have neuropathy below my waist that feels like GBS. I've seen army of doctors and specialists over the last 9 months. X-rays, CT scans, EKGs, MRIs, nerve conductivity studies, etc, etc. No diagnosis at all... So frustrating. Maybe they are hiding the dignosis due to my advanced age. GBS takes months even years to treat, and that costs money. I went from being 100% mobile to unable to walk. My legs feel like concrete blocks.
Lumbar puncture (added in combination with the other tests) is the only way to get a 100% confirmed diagnosis of GBS. ..Which also makes me feel as if many of these cases, (including this one!), actually got an incorrect diagnosis. They do want to get a patient SOME treatment in the meantime, since it truly isn’t known what is wrong at the current time.
I had guillain barre 17 yrs ago and my doctor told me never to get the flu vaccine and now he told me to wait on getting the Covid-19 vaccine. Thank you so much for sharing your story
I was diagnosed with Guillain-barre in January of 2022 and still recovering
God speed your healing i too share this journey have had this since may 17 hope your healing well and praying for your recovery
My daughter got GBS and she is better!!
I myself had guillain barre syndrome from the covid 19 vaccine I had guillain barre syndrome about 2 years this year so I'm still In recovery i can walk but I can't walk far distance and my balance is still poor
Low dose naltrexone helped me a lot when I was trying to recover from vaccine side effects. You won’t get it prescribed from a regular doctor. Only alternative or functional medicine doctors are more aware of it’s use.
I just had GBS last February of this year , 2024. Still recovering. I had 5 days of IVIG and able to walk now. My balance is still flaky and there are still pins and needles feeling on my palms and feet but I am determined to get through this. I had to take the Astra Zeneca vaccine to be able to work during the pandemic and it was required by the city government I live in. To put it simply, I had no choice. I am 53 and I wish I never took the vaccine but it is what it is. I wonder 20 years from now how Astra Zeneca will ever admit the side effects of its vaccine to the public. All written definitions of GBS says that it is a "rare" condition. After the pandemic, it is NOT rare anymore.
Been stuck in a bed for over a year because of this.
I owe everything to Britannic , who made me so popular among my school days students and faculty , more particularly for the doctors were sympathetic to everyone at home , I especially recall Dr aggarwal specialises in tropical diseases, some skin rashes are so severe that you never know how it crops up and the medication were so good that after a regular course I got relieved of those rashes which appeared before sun rise and kept irritating until dawn , .
How is GBS or it's cousin CIPD diagnosed? I have neuropathy below my waist that feels like GBS. I've seen army of doctors and specialists over the last 9 months. X-rays, CT scans, EKGs, MRIs, nerve conductivity studies, etc, etc. No diagnosis at all... So frustrating. Maybe they are hiding the dignosis due to my advanced age. GBS takes months even years to treat, and that costs money. I went from being 100% mobile to unable to walk. My legs feel like concrete blocks.
Me Too 😢
Sorry to hear. @@DennisMC1974
I was diagnosed with it almost a month ago they found out by doing a lumbar puncture.
Lumbar puncture (added in combination with the other tests) is the only way to get a 100% confirmed diagnosis of GBS.
..Which also makes me feel as if many of these cases, (including this one!), actually got an incorrect diagnosis.
They do want to get a patient SOME treatment in the meantime, since it truly isn’t known what is wrong at the current time.
I got it from the mmr vaccine