Here in the US, cancer doctors tend to avoid terms like 'cancer free' for patients. (I have colon cancer). We use terms like 'No Evidence of Disease (NED)'. I've been NED for 1.5 years now, but every 6 months, more scans, more tests, and more waiting to see what's next on my journey. I love your content, keep it up. Know that you are in our hearts.
Have you hard the positve anti cancer ability of bolied water 💧 mixed with grapefruit skins n 🍋 skins .I strain and take a tablespoon first thing in the A.M. look it up
You’re the strongest girl!! WE GOT THIS💙 I was diagnosed in September and I’ve been following your journey! Thank you for being so strong and for being so open and honest with us. I’m vlogging my journey too so I hope I can help others and my youtube family is getting me through this tough time. Lots of love xxx if you ever need to chat, I’m here for you 💙 we got this 💙
Colon cancer survivor here. That numb feeling is normal. I was so tired of tests being told to wait till you could get appointment for results. My chemo was halted due to side effects, chemo was doing more harm then good. This may just be me but after the first 5 years of tests, I stopped doing the tests. I will have a tumor level blood test, but I have refused all others. I decided if I couldn’t do chemo again I was just going to live a normal life. I am 10 years cancer free, and I don’t have the stress and anxiety after I stopped letting it rule my life.
I am so sorry that you are having to endure this. My husband is currently undergoing treatment for stage 4 prostate cancer. Although he's been in remission for a few months, his oncologists at the Mayo Clinic are careful to never say he's "free of cancer". They simply cannot know at this point. What they do say is that ongoing cancer research and trials are unfolding quickly and holding more promise than ever for patients with all types of cancer. I know they've changed his treatment plan a couple of times because of new information. Our fight lies in keeping the cancer at bay and manageable, while preserving quality of life, until we come to the point where there is a cure. Hold on to that! I do empathize about waiting for scans and blood work results, it's excruciating! God bless you!
Another young cancer and autoimmune survivor YOU ARE NOT ALONE. sometimes you need to hear it from someone else who isn't getting great news and is having a shite time with self advocacy and trying to have my voice heard. You are a strong woman. Virtual hugs. We're rooting for you and supporting you. Xx
The power of your thoughts! You have to believe you are healthy! That you are cancer free! The power of manifestation. Think positively is so important!
Romee. You have encouraged others and fight advocacy of patients with Cancer. It is daunting and scary. You have all rights to be so. Be encouraged and positive. My prayers are with you.
Your body and brain is functioning perfectly to protect you. It is difficult… I can only understand from my own cancer experience. I do not have cancer now.. I am very grateful. Some measure of concern never goes away, especially at appointments. And landmark time frames. I’m cancer free 12 years…. That seems like eternity…. You can get there too! 💕💕💕
sounds like their being extra cautious with you, because of how you've been delt with so far and the problems in comunications you have had. instead of telling you that you're cancer free "maybe" he's double checking. WHICH IS A GOOD THING. this limits the possibility of a false negative. i know it's more time and stress for you but be strong Romee, it's better this way. xox
I understand what you are saying but that's absolutely not acceptable. This is a person's life. Yes, being told you are cancer free then them saying they got it wrong is a horrible experience, but these are professionals paid good money. They shouldn't be making mistakes and that's not a good enough excuse.
@@zaixai9441 but they DO make mistakes just like everybody else and in every single other profession, they are people too and not robots. It is extremely unfortunate if mistakes do happen but it's inevitable. I would rather have them check it again to be sure than to be happy l'm cancer free and then get told I'm not. How can you say this is "unacceptable" when he literally just can't say if she is cancer free because the pet scan just doesn not indicate that and they need to test it further? It's none of the doctors fault that there is more activeness on the scans than before and thus they need to further look into it
@@Sabrina-sx9fl yeah mistakes happen, doesn't mean it's acceptable. How can 2 or 3 doctors make the same "mistake"? That's not an accident that's just incompetents.
@@Sabrina-sx9fl also, the whole procedure for scans is weird. Why go for a scan then wait for weeks to then get told its not a clear scan? They should have a doctor present when the scans are performed so they can check on them and if they aren't happy with the scan then they go straight back to get another one.
@@zaixai9441 sounds like you have this idealistic notion of how you think doctors and hospitals should be. Doctors…hell, anyone for that matter, are only capable of doing so many things at the same time. I find it amazing that folks like you don’t pause for a single moment to even consider why things happen the way they do or what another person (in this case, a doctor) could possibly doing else while she gets her scans. I’m not remotely associated with oncology but I would imagine that her doctor has to TAKE TIME to thoroughly analyze the scans, compare them to previous ones, re examine her medical History, possibly confer with any number of her other doctors, then write up his analysis on her file. All this to ensure that out of the hundreds of patients he likely sees in a month, he doesn’t do her a disservice and make a major mistake. It sounds like you’d rather the doctor be there when the scans are done so he can rush a verdict he has not adequately examined. What you’re suggesting simply does not and cannot exists for the way the medical system must operate. It is far more efficient for a person do a scan and return when the doctor has thoroughly reviewed them. Mistakes can and do happen. But it’s rather arrogant to assume that any unsatisfactory outcome must be the result of incompetence.
I’m glad they are being EXTRA careful and suspicious about your scan. It’s better than the docs thinking you’re cancer free and then months down the line having to go into treatment again!
Or worse, as a close friend of mine was diagnosed as extensive stage 4 in spring 2020 during pandemic lockdown. After being told in November and December 2019 everything was fine and within normal limits.
you are so loved Romee. My son was 7 when he was diagnosed with cancer. He is currently 15 months off of chemo and has no evidence of disease (NED). Just wanted to tell you that it seems like there is ALWAYS something on the scans that is inconclusive... to this point it has been nothing major but the not knowing for sure is so so hard! You are doing a wonderful job with an awful situation.
Heel sterk van je dat je dit allemaal deelt! Het zal heel erg behulpzaam zijn voor mensen die hier ook doorheen gaan. Ik wens je echt alle geluk en gezonheid toe!
I am a breast cancer survivor and oh girl do I feel your pain waiting for those damn test results -- it's cruel to make you wait. Sending you tons of hugs and subscribing to get you to 100k!!!! Good things are coming!
I am very lucky to go to a breast cancer center whose policy it is to have a Dr look at the mamogram and or ultrasound and give you the results before you leave the building that day. I am 5 years out now and finally just do yearly and see my oncologist yearly. Leaving that building knowing one way or the other is a wonderful thing. I know with your PET scan it is not that simple. My husband had colon cancer surgery this year. He had a spot on his lung and a biopsy inconclusive so PET scan was done and it found his colon cancer luckily at a stage 2. The spot on his lung shrunk and is now not believed to have been cancer. He still will see oncology every 6 months and CTs of his lung and abdomen. He also may have another PET coming up too. It is a waiting game. I hope everyone affected by cancer could have more answers. Bless you all as you go through this journey.
Romee, I know it is frustrating but, I would rather the doctor know for sure before saying whether the spot is cancer or scar tissue. He is actually doing the right thing by you. Thanks to others here posting they or someone they know have had a similar situation and it turned out to be scar tissue, I feel a lot better and I hope them sharing that helps you to feel better about it too. One day at a time, one hour, or even one minute at a time, you will get through this.
You sharing this will help so many others. Your open and honest sharing is so valuable and appreciated. You show strength in sharing your vulnerability and the reality of what you are experiencing. You are a precious soul. Sending positive thoughts and appreciation for you.
I feel like you will get good news from this . My cancer doctor told me to never say that I am cancer free , just say that I am in remission. Been 13 years and I still say remission. I am hoping and praying for healing for you. Love and hugs .💖💖🤗🤗
How do you deal with that ‘never cancer free’ does it not freak you out or make you depressed? Sorry if insensitive question just suffer badly with health anxiety and it’s really interesting and inspiring to me that it’s possible to live a happy life post cancer
I am wondering, if those regular pre scan anxieties will ease up with time. I had my cancer diagnosis July 2020 and had 3 scans in the meantime. Every time the scan date comes up, I am just a complete mess, can not think of anything else than what the scan will reveal, will the contrast blow up my veins again, and land in the tissue. Will the nurse be able to find a good spot right away, or will I be a human pincushion with 4 or more attemts atfinding a proper IV spot. And then, when the scan is done the days until I hear, what the tumor board had to say about it are not better. Those few months inbetween scans are way too short, and when I finally get "back to normal", it is about time for another round on the scanxiety wheel.
Hi Romee, There is nothing I can do but sending you support behind screens. But please hang in there, sometimes it's not the diseases that beat you, but the mentality. I hope you can stay strong and I will pray for you!
Oh no Romee ,hang in there I don't know whats going on with all the miscommunication and all this running around, I continue to keep praying for the best news ever for you ! You got this and your strength is amazing 💜💜💜💜💜💜💜💜💜💜💜
Hi Romee, Cancer is like the toy yo yo. It's like no evidence seen and the something is seen. I have met many fortunate people who had cancer and then were free of the disease. I have breast cancer, stage 1. No spread but....I expect sometime in my last years it will come back. I think we all have it. It comes to many people and others are lucky. Even sweet dogs and cats get cancer. I feel so bad when I see your sadness. I understand. I hope you get great results. You've been through so much. Sending virtual hugs and positive thoughts. 💞
Romee I'm sorry because I know these weren't the results you wanted to hear. I can't even imagine how much frustration you feel but know we are all with you and hoping for the best. I think it will be good to get the biopsy. It is good the doctor wants to be extra cautious and find out what that spot is. You are so strong and I am sending you all the good vibes. A big hug from Texas.
I am so sorry for you at present. Anxiety leading up to scans and then waiting for the results really can't be described for anyone who hasn't been through what you are going through. My thoughts and prayers are with you.
Niet te doen dit, wachten, veel onzekerheid, en ondertussen gaat het leven door, en moet je er maar mee dealen allemaal. Altijd die donkere wolk die boven je hangt is mega zwaar en je wordt zo erg op de proef gesteld.. Heel knap hoe je met alles omgaat en bijzonder dat je je leven en je verhaal met de wereld wilt delen. Respect voor jou. Heel veel sterkte met de biopt/operatie en vervolgens het wachten op de uitslag....Er is nog steeds hoop ❤ liefs ❤❤
Romee, I’m so sorry you are going through this. I had endometrial carcinocarcinoma. After I had my hysterectomy, the surgeon said all looked good, but she wasn’t sure if one lymph node showed cancer or if it was a fat cell. It turned out to be a fat cell. I had a CAT scan after chemo, and that scan showed a small spot and it wasn’t clear if it was cancer or scar tissue from radiation. It was too small to biopsy. My doctor felt certain it was scar tissue, but I had to wait three more months for another scan to know for sure. It was determined to be scar tissue in the next scan in April. I finally had my chemo port removed two weeks ago. Stay strong. In hindsight I am glad that my doctor paid such close attention to everything. I am hoping you get good news with your biopsy.
So glad you are doing well. My s-i-l just found out she has endometrial carcinocarcinoma. She has had symptoms for over a year and is now waiting to receive hysterectomy.
@@carolinagurl22 I am so sorry to hear that! It’s a very scary diagnosis. Does she know how advanced it is? I was very lucky that mine was stage 1b and I had chemo and radiation and am currently disease free. I hope to stay that way! I made a video about what happened to me if you want to watch and share it with her. I wish her the best of luck and I will keep her in my prayers.
Any time your car windows won’t defog just roll one down a bit & it will clear right away. Sending lots of love & luck! You’re wonderful & so strong!! You’ve got this!!🤗
Hi Romee, I hate that you have all this stress and worry to go through. It was horrid you couldn't have had a clearer update of your cancer. The constant waiting for results must be so hard. I send you prayers and love Romee xxx🙏❤️❤️❤️
Romee I'm so sorry you are still left in limbo (a state of unknown). It's the not knowing 7that causes most of the stress and anxiety. You need the biggest hug ever my girl and i wish i could reach you to deliver it. I'll keep praying for you sweetheart I'm so glad your friend went with you as having that wxtra pair of ears to hear and the support would have been invaluable.🙏💜🙏
I'm sorry that you have to go through all of this tension. Please know that you have a lot of people who care about you. May I add that your nails, your knit top and your hat coordinated perfectly together. That is a great color for you. You are simply lovely.
You are such a dear and I am so sorry things are delayed and obfuscated and you must wait, and there are such ups and such lows. I believe you will have good news, but it takes so long to get it! I'm sorry you must go through this. Try to do pleasant things for yourself, and perhaps turn your phone off at night so no more interruptions to your sleep. Hang in there, dear one, and believe God is still in the miracle business! You are loved and admired.
I'm sorry that you are going through this nasty disease. So many people especially young people getting diagnosed. I found out this year that I have breast cancer. I hope your news is okay. Sending hugs and good wishes to you Romee. 💞
I'm so sorry you're stuck in waiting mode again, Romee. Waiting is the worst! I'm praying for you that all will be clear, and that what has shown up on your latest PET scan is artifact. You are incredibly brave sharing your journey with honest, raw emotion. I'll be watching out for your progress, and hoping for a clear answer for you. You are a beautiful and intelligent woman, Romee. Thanks for sharing. By the way, I'm a retired Oncology RN, so I can relate. Hugs and love to you, dear lady.
Just subscribe I thought I did but didn’t. Your will get your butter and your going to be cancer free. Your story is heartfelt and helping others. Be very very proud of yourself girl and how strong you are to tell your story dealing with Cancer sooo many people cannot do. ❤️❤️❤️❤️❤️❤️❤️❤️
As you describe your journey, Romee, it sounds like you are a medical teacher for the medical community. Their processes should improve as a result of your roller coaster. Just know that you have support worldwide. We love you and think you are so very funny, kind, diligent, patient, and a normal person going through a very stressful ordeal. 💖
Window advice. Clean them inside and out with shaving cream. Sounds crazy but they won't fog up anymore. Check your antifreeze level in the car. Hang in there sweetheart. Praying for strength and healing for you!
Make sure you have the air vents bringing outside in and if that doesn’t work then you need to close the outside vents and use only inside air. This always works for me. Just finding out which air works best for that particular day.
Romee I've only started watching you a few months ago but have come to care for you very much dear. I had brain cancer at 16 and almost died, it's not about me but I have been in remission for 36 years and am praying the same for you Dear. 🙏. Let me know if you need someone to talk to and I'll give you my contact information give you a shoulder to lean on. God bless you my friend. my heart is with you.🇨🇦
Romee, I'm so sorry that it wasn't better news and that the news wasn't more precise. Cancer journeys are pretty much like roller coasters (at least that has been my experience with breast cancer). I think you are doing great and I love to see that you have good support. If you get to the point where you may want to seek treatment in another country, that is an option. There are some terrific doctors in the US (MD Anderson, Sloane Kettering, Cleveland Clinic, Cancer Centers of America) that can provide an online consult and that may provide some other treatment options. I think you just email your records and they can take a look. Please understand, I don't want to imply that you aren't already getting top notch care where you are....just that second or third opinions can sometimes give a fresh perspective. Thank you for sharing your journey with all of us. You are loved!
I really feel for you Romee. You are going through a very , very hard time. The uncertainty of your future must and I know does bring you down. But stay focused on your future. You are an amazing women.☘️
Hold in there dear... I know what you are going through... I have been through 4 major ops in the last year... And I had hoped that the last was the last and I swore I will never go to hospital ever again... And here I am going to the Dr to schedule another op. I have my down moments but with support both you and I will get there
Ik hoopte zo op goed nieuws voor jou maar geef niet op. Diep respect voor jou, ook voor het delen. Alle goede wensen die ik kan bedenken wens ik jou.♥️
I LOVE your hair!!!!!!! Like, YOUR hair! You look darling with short hair. And I am so sorry about the results. You’ll get there girl, you will! Prayers continue🙏🏻❤️🙏🏻❤️ for a quickly scheduled biopsy and results. Also, invest in a weighted blanket. It will help you sleep.
Just a little bit longer, but the end is near!! You hang in there my dear as I can’t wait until I can sing from the California rooftops that you got the news you are looking for!
The waiting is the worst! It just eats @ you! Im not dealing with cancer, but I am chronically ill & have issues with medications not working. I also just had a 6 month follow up CT that did not bring the good news we all expected. So I get to start the waiting game for the tests & biopsies again. So I do get your frustration. Even though mines not cancer, there is a life expectancy slapped on it depending on how well you respond to treatment. So this last CT was devastating! My prayers are with you daily Romee. Something that helps me is trying to be as positive as possible. Yes I have my moments, but I let them happen & then I make it a better day. We've got this girl! Hang in there my friend! 💗Lots of love from Las Vegas!💗
I just want you to know that altho you’re younger than me, you inspire me and gave me strength to deal w my own cancer diagnosis. I’m in awe of your strength since the beginning as I’m struggling to find the will to even carry on. Currently dealing w the treatments side effects right now. You deserve to be cancer free and leave this all behind you. I know you will be soon. Please don’t lose faith, I’m praying for both of our healing. Lots of love and We will get there. xx
Dearest Romee, we don’t always understand or know what God has in store for us. In many ways it’s a good thing! But through all my prayers and pleading for you over the last year or so, I feel a peaceful calm is coming your way. You strength is amazing Romee and has taught me that’s what life takes , strength, patience and staying connected to God. Peace and Hope to you.
Aw Romee , I’m sorry you didn’t get the news you wanted 😔, sending you strength and love , from another cancer warrior 💪🏼❤️(sadly terminal) . Hopefully you’ll get the good news you deserve very soon 🤞🏼xx
Romee, I'm sending prayers and light and hope to you! You are such a light and you encourage me in my own depression and recent loss of my mom who had parkinsons disease to keep moving forward! Thankyou! I'm thinking about all the people that you are helping right now who maybe are going through the same thing. Here's a verse that I pray will give you comfort." I will never leave you nor forsake you" Hebrews 13:5. He's with you every step of the way.
You have been so strong and brave through this trying journey. Not many people would chose to live alone in these times. I pray God will keep this easy on you. Always remember even though some of us live in the US we love you and you are on our minds and in our hearts.
Understandable that you feel like you are going bananas. I wish I could take this all away for you. You continue to enrich my life; you are such a wonderful person Romee. Absolutely magnificent.
Romee, I am really preaying for you, and I really want to encourage you to feel grateful and be positive, because when you mind is healty your body will follow to, this is basic knowledge, so go out have fun, do all the things you will like to do, thinking that soon you ll be healthy and follow your dreams. Praying for you from Romania.
I love you so much! i’ve loved following your journey and i’m sorry he didn’t give you good news.. at least they weren’t horrible news! i think he just doesn’t want to tell you one way or the other, whether it’s gone or not, but that’s OK. It’s good he’s being honest. I know you’ll get the news that’s in gone, i can feel it!!💖
Wishing you well, sending healings thoughts your way. After 3 years, and surgery, I finally have a clear scan. Still have a year to wait until the end and port removal. Hang in there. Each time I go for a scan, I get nervous. It is natural.
I hope you can get the surgery done quickly so you can get answers you need and they can start whatever treatments you need! I’m sorry it was so disappointing for you!
Here in the US, cancer doctors tend to avoid terms like 'cancer free' for patients. (I have colon cancer). We use terms like 'No Evidence of Disease (NED)'. I've been NED for 1.5 years now, but every 6 months, more scans, more tests, and more waiting to see what's next on my journey. I love your content, keep it up. Know that you are in our hearts.
Prayers be with you! I just started my journey with melanomia, I am with her, most of the time just numb waiting on results.
In sweden they only say that your cancer free after 5 years with no evidence of disease
@Scott Blankenship we are on exactly the same path!! Same cancer, same time NED... same 6 months testing..... Best to you.
🙏 for you scott.i had breast cancer in 2018.
Have you hard the positve anti cancer ability of bolied water 💧 mixed with grapefruit skins n 🍋 skins .I strain and take a tablespoon first thing in the A.M. look it up
You’re the strongest girl!! WE GOT THIS💙 I was diagnosed in September and I’ve been following your journey! Thank you for being so strong and for being so open and honest with us. I’m vlogging my journey too so I hope I can help others and my youtube family is getting me through this tough time. Lots of love xxx if you ever need to chat, I’m here for you 💙 we got this 💙
Love you, Tiff!
Been watching your journey as well!
So nice to see Tiffany here too. Thinking of you both x
I ve been following both of you and you girls are the strongest💪💪💪💪
Colon cancer survivor here. That numb feeling is normal. I was so tired of tests being told to wait till you could get appointment for results. My chemo was halted due to side effects, chemo was doing more harm then good. This may just be me but after the first 5 years of tests, I stopped doing the tests. I will have a tumor level blood test, but I have refused all others. I decided if I couldn’t do chemo again I was just going to live a normal life. I am 10 years cancer free, and I don’t have the stress and anxiety after I stopped letting it rule my life.
I am so sorry that you are having to endure this. My husband is currently undergoing treatment for stage 4 prostate cancer. Although he's been in remission for a few months, his oncologists at the Mayo Clinic are careful to never say he's "free of cancer". They simply cannot know at this point. What they do say is that ongoing cancer research and trials are unfolding quickly and holding more promise than ever for patients with all types of cancer. I know they've changed his treatment plan a couple of times because of new information. Our fight lies in keeping the cancer at bay and manageable, while preserving quality of life, until we come to the point where there is a cure. Hold on to that! I do empathize about waiting for scans and blood work results, it's excruciating! God bless you!
Another young cancer and autoimmune survivor YOU ARE NOT ALONE. sometimes you need to hear it from someone else who isn't getting great news and is having a shite time with self advocacy and trying to have my voice heard. You are a strong woman. Virtual hugs. We're rooting for you and supporting you. Xx
The power of your thoughts! You have to believe you are healthy! That you are cancer free! The power of manifestation. Think positively is so important!
Romee. You have encouraged others and fight advocacy of patients with Cancer. It is daunting and scary. You have all rights to be so. Be encouraged and positive. My prayers are with you.
Your body and brain is functioning perfectly to protect you. It is difficult… I can only understand from my own cancer experience. I do not have cancer now.. I am very grateful. Some measure of concern never goes away, especially at appointments. And landmark time frames. I’m cancer free 12 years…. That seems like eternity…. You can get there too! 💕💕💕
sounds like their being extra cautious with you, because of how you've been delt with so far and the problems in comunications you have had. instead of telling you that you're cancer free "maybe" he's double checking. WHICH IS A GOOD THING. this limits the possibility of a false negative. i know it's more time and stress for you but be strong Romee, it's better this way. xox
I understand what you are saying but that's absolutely not acceptable. This is a person's life. Yes, being told you are cancer free then them saying they got it wrong is a horrible experience, but these are professionals paid good money. They shouldn't be making mistakes and that's not a good enough excuse.
@@zaixai9441 but they DO make mistakes just like everybody else and in every single other profession, they are people too and not robots. It is extremely unfortunate if mistakes do happen but it's inevitable. I would rather have them check it again to be sure than to be happy l'm cancer free and then get told I'm not. How can you say this is "unacceptable" when he literally just can't say if she is cancer free because the pet scan just doesn not indicate that and they need to test it further? It's none of the doctors fault that there is more activeness on the scans than before and thus they need to further look into it
@@Sabrina-sx9fl yeah mistakes happen, doesn't mean it's acceptable. How can 2 or 3 doctors make the same "mistake"? That's not an accident that's just incompetents.
@@Sabrina-sx9fl also, the whole procedure for scans is weird. Why go for a scan then wait for weeks to then get told its not a clear scan? They should have a doctor present when the scans are performed so they can check on them and if they aren't happy with the scan then they go straight back to get another one.
@@zaixai9441 sounds like you have this idealistic notion of how you think doctors and hospitals should be.
Doctors…hell, anyone for that matter, are only capable of doing so many things at the same time. I find it amazing that folks like you don’t pause for a single moment to even consider why things happen the way they do or what another person (in this case, a doctor) could possibly doing else while she gets her scans. I’m not remotely associated with oncology but I would imagine that her doctor has to TAKE TIME to thoroughly analyze the scans, compare them to previous ones, re examine her medical
History, possibly confer with any number of her other doctors, then write up his analysis on her file. All this to ensure that out of the hundreds of patients he likely sees in a month, he doesn’t do her a disservice and make a major mistake. It sounds like you’d rather the doctor be there when the scans are done so he can rush a verdict he has not adequately examined. What you’re suggesting simply does not and cannot exists for the way the medical system must operate. It is far more efficient for a person do a scan and return when the doctor has thoroughly reviewed them.
Mistakes can and do happen. But it’s rather arrogant to assume that any unsatisfactory outcome must be the result of incompetence.
I’m glad they are being EXTRA careful and suspicious about your scan. It’s better than the docs thinking you’re cancer free and then months down the line having to go into treatment again!
Or worse, as a close friend of mine was diagnosed as extensive stage 4 in spring 2020 during pandemic lockdown. After being told in November and December 2019 everything was fine and within normal limits.
Beautiful Romee, we are with you. Sending you so many hugs. When life feels crap, please remember that you have so many people out here who love you.
I've had a few pet scans. It's both exciting and scary at the same time. Your are young and you are going to be a strong amazing woman
You are a fighter and I am so proud of you. My life is so different after cancer. I am praying for you dear one. May the peace of Christ surround you.
You’ll get there Romee! You are so strong, and though it’s not been easy, I totally believe it’ll work out. ❤️❤️
Hang in there! I am cheering for you.
you are so loved Romee. My son was 7 when he was diagnosed with cancer. He is currently 15 months off of chemo and has no evidence of disease (NED). Just wanted to tell you that it seems like there is ALWAYS something on the scans that is inconclusive... to this point it has been nothing major but the not knowing for sure is so so hard! You are doing a wonderful job with an awful situation.
Heel sterk van je dat je dit allemaal deelt! Het zal heel erg behulpzaam zijn voor mensen die hier ook doorheen gaan. Ik wens je echt alle geluk en gezonheid toe!
God be with you, beautiful. Praying that you eventually become a sure cancer free. You’re wonderful!
Let's get Romee to 100k. I subscribed!
Sweetheart, I am praying for you. We love you and you will beat this illness.❤️❤️❤️
I’m so sorry Romee that you still have to play the waiting game. I pray in the end you will finally get the good news you deserve. 🤞❤️🇨🇦
I am a breast cancer survivor and oh girl do I feel your pain waiting for those damn test results -- it's cruel to make you wait. Sending you tons of hugs and subscribing to get you to 100k!!!! Good things are coming!
I am very lucky to go to a breast cancer center whose policy it is to have a Dr look at the mamogram and or ultrasound and give you the results before you leave the building that day. I am 5 years out now and finally just do yearly and see my oncologist yearly. Leaving that building knowing one way or the other is a wonderful thing. I know with your PET scan it is not that simple. My husband had colon cancer surgery this year. He had a spot on his lung and a biopsy inconclusive so PET scan was done and it found his colon cancer luckily at a stage 2. The spot on his lung shrunk and is now not believed to have been cancer. He still will see oncology every 6 months and CTs of his lung and abdomen. He also may have another PET coming up too. It is a waiting game. I hope everyone affected by cancer could have more answers. Bless you all as you go through this journey.
🙏🙏🙏🙏🙏
@@glendagrant9042 🙏🙏🙏🙏🙏
I’m a breast cancer survivor and it’s 16 yrs later caused me insomnia
Plz block your unlucky ex’s… u deserve someone better. Good to hear the good news. That pink sweater looks so good on u, beautiful 💕💐
Romee, I know it is frustrating but, I would rather the doctor know for sure before saying whether the spot is cancer or scar tissue. He is actually doing the right thing by you. Thanks to others here posting they or someone they know have had a similar situation and it turned out to be scar tissue, I feel a lot better and I hope them sharing that helps you to feel better about it too. One day at a time, one hour, or even one minute at a time, you will get through this.
You sharing this will help so many others. Your open and honest sharing is so valuable and appreciated. You show strength in sharing your vulnerability and the reality of what you are experiencing. You are a precious soul. Sending positive thoughts and appreciation for you.
I feel like you will get good news from this . My cancer doctor told me to never say that I am cancer free , just say that I am in remission. Been 13 years and I still say remission. I am hoping and praying for healing for you. Love and hugs .💖💖🤗🤗
I guess you could say free from active cancer. I've heard that comment a few times.
How do you deal with that ‘never cancer free’ does it not freak you out or make you depressed? Sorry if insensitive question just suffer badly with health anxiety and it’s really interesting and inspiring to me that it’s possible to live a happy life post cancer
I am wondering, if those regular pre scan anxieties will ease up with time.
I had my cancer diagnosis July 2020 and had 3 scans in the meantime. Every time the scan date comes up, I am just a complete mess, can not think of anything else than what the scan will reveal, will the contrast blow up my veins again, and land in the tissue. Will the nurse be able to find a good spot right away, or will I be a human pincushion with 4 or more attemts atfinding a proper IV spot.
And then, when the scan is done the days until I hear, what the tumor board had to say about it are not better.
Those few months inbetween scans are way too short, and when I finally get "back to normal", it is about time for another round on the scanxiety wheel.
Amen 🙏
My husband had cancer hodgkin's lymphoma his doctor told him the same thing never say he is cancer free he has been in remission for 15 years.
Don't give up, there's still much hope and I have hope for you ♥️
As long it doesn't grow that a good sign my prayers are with you 🙏🙏🙏🙏🙏🌹🌹🌹🌹🌹
This same thing happened to my husband with his PET scans. He is 9 years out now. Stay positive.
Hi Romee,
There is nothing I can do but sending you support behind screens.
But please hang in there, sometimes it's not the diseases that beat you, but the mentality.
I hope you can stay strong and I will pray for you!
aw sweetheart I'm so sorry you are going through all this trauma. you are such a brave girl.
Oh no Romee ,hang in there I don't know whats going on with all the miscommunication and all this running around, I continue to keep praying for the best news ever for you ! You got this and your strength is amazing 💜💜💜💜💜💜💜💜💜💜💜
You hang in there Honey we are with you in spirit. Positive thoughts sent your way❤️
Take one day at a time. You will get through this. We are all here for you! Sending tons of love and positive vibes❤❤❤.
That day is coming for you, I have a very good feeling. Cancer free xx
God bless you Romee. Hang in there sweet lady. Praying and thinking of you.
Hi Romee, Cancer is like the toy yo yo. It's like no evidence seen and the something is seen. I have met many fortunate people who had cancer and then were free of the disease.
I have breast cancer, stage 1. No spread but....I expect sometime in my last years it will come back. I think we all have it. It comes to many people and others are lucky. Even sweet dogs and cats get cancer. I feel so bad when I see your sadness. I understand. I hope you get great results.
You've been through so much. Sending virtual hugs and positive thoughts. 💞
Romee I'm sorry because I know these weren't the results you wanted to hear. I can't even imagine how much frustration you feel but know we are all with you and hoping for the best. I think it will be good to get the biopsy. It is good the doctor wants to be extra cautious and find out what that spot is. You are so strong and I am sending you all the good vibes. A big hug from Texas.
I am so sorry for you at present. Anxiety leading up to scans and then waiting for the results really can't be described for anyone who hasn't been through what you are going through. My thoughts and prayers are with you.
I am sorry you didn’t get the news you needed. I will keep you in my prayers 🙏🙏🙏
You are SO strong! Life itself is a waiting game. Stay positive. You're superWOMAN! And you deserve TH BEST!!!!!
Even when it’s daytime you can calm down with a calming vid. At worst it’s a distraction when you’re worried.
Niet te doen dit, wachten, veel onzekerheid, en ondertussen gaat het leven door, en moet je er maar mee dealen allemaal. Altijd die donkere wolk die boven je hangt is mega zwaar en je wordt zo erg op de proef gesteld.. Heel knap hoe je met alles omgaat en bijzonder dat je je leven en je verhaal met de wereld wilt delen. Respect voor jou. Heel veel sterkte met de biopt/operatie en vervolgens het wachten op de uitslag....Er is nog steeds hoop ❤ liefs ❤❤
Still with you. Will continue to keep you in prayer.
Romee, I’m so sorry you are going through this. I had endometrial carcinocarcinoma. After I had my hysterectomy, the surgeon said all looked good, but she wasn’t sure if one lymph node showed cancer or if it was a fat cell. It turned out to be a fat cell. I had a CAT scan after chemo, and that scan showed a small spot and it wasn’t clear if it was cancer or scar tissue from radiation. It was too small to biopsy. My doctor felt certain it was scar tissue, but I had to wait three more months for another scan to know for sure. It was determined to be scar tissue in the next scan in April. I finally had my chemo port removed two weeks ago. Stay strong. In hindsight I am glad that my doctor paid such close attention to everything. I am hoping you get good news with your biopsy.
So glad you are doing well. My s-i-l just found out she has endometrial carcinocarcinoma. She has had symptoms for over a year and is now waiting to receive hysterectomy.
@@carolinagurl22 I am so sorry to hear that! It’s a very scary diagnosis. Does she know how advanced it is? I was very lucky that mine was stage 1b and I had chemo and radiation and am currently disease free. I hope to stay that way! I made a video about what happened to me if you want to watch and share it with her. I wish her the best of luck and I will keep her in my prayers.
Any time your car windows won’t defog just roll one down a bit & it will clear right away. Sending lots of love & luck! You’re wonderful & so strong!! You’ve got this!!🤗
Hi Romee, I hate that you have all this stress and worry to go through. It was horrid you couldn't have had a clearer update of your cancer. The constant waiting for results must be so hard. I send you prayers and love Romee xxx🙏❤️❤️❤️
Καλή δύναμη κορίτσι μου. Μην χάνεις Ποτέ την Ελπίδα σου. Με πολύ αγάπη από Ελλάδα. 🌻
Stick at it and keep strong. You have lots of us behind you . Sending hugs 🤗
Rome! I am going to pray for you to finaly get good news!!! Amen!
Romee I'm so sorry you are still left in limbo (a state of unknown). It's the not knowing 7that causes most of the stress and anxiety. You need the biggest hug ever my girl and i wish i could reach you to deliver it. I'll keep praying for you sweetheart I'm so glad your friend went with you as having that wxtra pair of ears to hear and the support would have been invaluable.🙏💜🙏
I'm sorry that you have to go through all of this tension. Please know that you have a lot of people who care about you. May I add that your nails, your knit top and your hat coordinated perfectly together. That is a great color for you. You are simply lovely.
Sweet Romee, I am so very sorry about what you are going through. I will keep saying a special prayer for you. God bless you my dear. 🙏🏿💜
You are such a dear and I am so sorry things are delayed and obfuscated and you must wait, and there are such ups and such lows. I believe you will have good news, but it takes so long to get it! I'm sorry you must go through this. Try to do pleasant things for yourself, and perhaps turn your phone off at night so no more interruptions to your sleep. Hang in there, dear one, and believe God is still in the miracle business! You are loved and admired.
I'm sorry that you are going through this nasty disease. So many people especially young people getting diagnosed. I found out this year that I have breast cancer. I hope your news is okay. Sending hugs and good wishes to you Romee. 💞
I'm so sorry you're stuck in waiting mode again, Romee. Waiting is the worst! I'm praying for you that all will be clear, and that what has shown up on your latest PET scan is artifact. You are incredibly brave sharing your journey with honest, raw emotion. I'll be watching out for your progress, and hoping for a clear answer for you. You are a beautiful and intelligent woman, Romee. Thanks for sharing. By the way, I'm a retired Oncology RN, so I can relate. Hugs and love to you, dear lady.
Just subscribe I thought I did but didn’t. Your will get your butter and your going to be cancer free. Your story is heartfelt and helping others. Be very very proud of yourself girl and how strong you are to tell your story dealing with Cancer sooo many people cannot do. ❤️❤️❤️❤️❤️❤️❤️❤️
Thinking of you often. Praying you get good results. You are one brave young woman.
As you describe your journey, Romee, it sounds like you are a medical teacher for the medical community. Their processes should improve as a result of your roller coaster. Just know that you have support worldwide. We love you and think you are so very funny, kind, diligent, patient, and a normal person going through a very stressful ordeal. 💖
Window advice. Clean them inside and out with shaving cream. Sounds crazy but they won't fog up anymore. Check your antifreeze level in the car. Hang in there sweetheart. Praying for strength and healing for you!
Lol I've never heard of that before.
Another hack…take a bottle of hot water out with you and pour on windshield where the driver looks out, will temporarily get you going when in a rush!
I love this hack!! In a pinch.. newspaper works too, but who reads those anymore? Lol!!
Make sure you have the air vents bringing outside in and if that doesn’t work then you need to close the outside vents and use only inside air. This always works for me. Just finding out which air works best for that particular day.
Romee I've only started watching you a few months ago but have come to care for you very much dear. I had brain cancer at 16 and almost died, it's not about me but I have been in remission for 36 years and am praying the same for you Dear. 🙏. Let me know if you need someone to talk to and I'll give you my contact information give you a shoulder to lean on. God bless you my friend. my heart is with you.🇨🇦
You need to tell your parents. They are part of your close support group and deserve to know.
Romee, I'm so sorry that it wasn't better news and that the news wasn't more precise. Cancer journeys are pretty much like roller coasters (at least that has been my experience with breast cancer). I think you are doing great and I love to see that you have good support. If you get to the point where you may want to seek treatment in another country, that is an option. There are some terrific doctors in the US (MD Anderson, Sloane Kettering, Cleveland Clinic, Cancer Centers of America) that can provide an online consult and that may provide some other treatment options. I think you just email your records and they can take a look. Please understand, I don't want to imply that you aren't already getting top notch care where you are....just that second or third opinions can sometimes give a fresh perspective. Thank you for sharing your journey with all of us. You are loved!
I really feel for you Romee. You are going through a very , very hard time. The uncertainty of your future must and I know does bring you down. But stay focused on your future. You are an amazing women.☘️
Hold in there dear... I know what you are going through... I have been through 4 major ops in the last year... And I had hoped that the last was the last and I swore I will never go to hospital ever again... And here I am going to the Dr to schedule another op. I have my down moments but with support both you and I will get there
🧡
Take care love. You've got this! (One sick person to another ;))
Ik hoopte zo op goed nieuws voor jou maar geef niet op. Diep respect voor jou, ook voor het delen. Alle goede wensen die ik kan bedenken wens ik jou.♥️
I LOVE your hair!!!!!!! Like, YOUR hair! You look darling with short hair. And I am so sorry about the results. You’ll get there girl, you will! Prayers continue🙏🏻❤️🙏🏻❤️ for a quickly scheduled biopsy and results. Also, invest in a weighted blanket. It will help you sleep.
Sooo Sorry Romee, Praying 🙏 things will turn out To be Good News! Blessings! ❤️🙏😇🍁🍁
Just a little bit longer, but the end is near!! You hang in there my dear as I can’t wait until I can sing from the California rooftops that you got the news you are looking for!
Oh Romee, I am wishing you all the luck in the world! 🍀🥰👍
I’ll keep on saying a prayer for you and good news.
Just subscribed for you💙I am going to begin my 4rth year of screening cancer free from rectal cancer. I believe in you 💪
Sorry that things aren't going as you hoped. Please hang in there...Prayers continue. 🙏 💜🙏
Keep your chin up Rome you got this.Lots of hugs and prayers for your healing.
praying you are so strong. our hands are holding yours i hope you feel our love and prayers.
The waiting is the worst! It just eats @ you! Im not dealing with cancer, but I am chronically ill & have issues with medications not working. I also just had a 6 month follow up CT that did not bring the good news we all expected. So I get to start the waiting game for the tests & biopsies again. So I do get your frustration. Even though mines not cancer, there is a life expectancy slapped on it depending on how well you respond to treatment. So this last CT was devastating!
My prayers are with you daily Romee. Something that helps me is trying to be as positive as possible. Yes I have my moments, but I let them happen & then I make it a better day. We've got this girl! Hang in there my friend! 💗Lots of love from Las Vegas!💗
Hugs, Do not loose faith Romee, you will be fine ♥
You look beautiful, claim the victory. Your nails are beautiful as always.
Hugs to you Romee this roller coaster ride hopefully will be over soon & be cancer free
I just want you to know that altho you’re younger than me, you inspire me and gave me strength to deal w my own cancer diagnosis. I’m in awe of your strength since the beginning as I’m struggling to find the will to even carry on. Currently dealing w the treatments side effects right now. You deserve to be cancer free and leave this all behind you. I know you will be soon. Please don’t lose faith, I’m praying for both of our healing. Lots of love and We will get there. xx
Dearest Romee, we don’t always understand or know what God has in store for us. In many ways it’s a good thing! But through all my prayers and pleading for you over the last year or so, I feel a peaceful calm is coming your way. You strength is amazing Romee and has taught me that’s what life takes , strength, patience and staying connected to God. Peace and Hope to you.
Romee, the best days will come for you!
Always praying for you sweet Romee.🙏
I'm sorry for your troubles. Let's hope for the best.
God bless you. Romee - I hope when they finally do the biopsy they’ll say it’s nothing and you’re cancer free!
Aw Romee , I’m sorry you didn’t get the news you wanted 😔, sending you strength and love , from another cancer warrior 💪🏼❤️(sadly terminal) .
Hopefully you’ll get the good news you deserve very soon 🤞🏼xx
Hugs and prayers for you!!!
Even terminal I pray that you have a lot of years left.🙏🙏🙏❤❤❤
@@susanhogg5601 aw thank you 🙏 ❤️
Romee, I'm sending prayers and light and hope to you! You are such a light and you encourage me in my own depression and recent loss of my mom who had parkinsons disease to keep moving forward! Thankyou! I'm thinking about all the people that you are helping right now who maybe are going through the same thing. Here's a verse that I pray will give you comfort." I will never leave you nor forsake you" Hebrews 13:5. He's with you every step of the way.
If the path leads to the goal, its length won‘t matter in the end. You got this girl! 🍀👸🏻
You have been so strong and brave through this trying journey. Not many people would chose to live alone in these times. I pray God will keep this easy on you. Always remember even though some of us live in the US we love you and you are on our minds and in our hearts.
Understandable that you feel like you are going bananas. I wish I could take this all away for you. You continue to enrich my life; you are such a wonderful person Romee. Absolutely magnificent.
Thinking of you Rome stay strong have faith That all will be well. I pray for you for this. 😊🙏
Oh so sorry for your bump in the road, keep the faith! one day at a time you can do this you are looking very strong
Romee, I am really preaying for you, and I really want to encourage you to feel grateful and be positive, because when you mind is healty your body will follow to, this is basic knowledge, so go out have fun, do all the things you will like to do, thinking that soon you ll be healthy and follow your dreams.
Praying for you from Romania.
So sorry you're still having to wait for the good news x
Oh Romee you have been so open, honest and strong going through this all. I can't image. Prayers for you this this is a granuloma or nothing.
Sending hugs and prayers for you, hang in there. You will get better and be even stronger. This is just a small setback.
I will continue to pray that very soon you WILL get that clear Pet scan!!!💖💖💖💖
Good things are coming! You are strong Romee!
I love you so much! i’ve loved following your journey and i’m sorry he didn’t give you good news.. at least they weren’t horrible news! i think he just doesn’t want to tell you one way or the other, whether it’s gone or not, but that’s OK. It’s good he’s being honest. I know you’ll get the news that’s in gone, i can feel it!!💖
Wishing you well, sending healings thoughts your way. After 3 years, and surgery, I finally have a clear scan. Still have a year to wait until the end and port removal. Hang in there. Each time I go for a scan, I get nervous. It is natural.
So close to 100k! Good luck Romee!
I hope you can get the surgery done quickly so you can get answers you need and they can start whatever treatments you need! I’m sorry it was so disappointing for you!