Registry Annual Impact Report

The ADPKD Registry is the first nationwide, patient-reported database for ADPKD, and so far over 2,700 people have signed up! This report highlights WHERE and HOW the ADPKD Registry data has been used since its inception in 2019, gives a sneak peek at the updates coming to the Registry this summer, and provides an overview of Registry demographics. Download the report: resources.pkdc...