Hi I’m new to your channel and 3 years late, still I’m happy to be here. I was diagnosed with Hashimoto’s and Fibromyalgia, and with working with 2 amazing Drs., I had gotten them under control. Then I moved to Florida 4 years ago. I started to get sick again, and kept getting worse. Due to the pandemic, I could not get established with a doctor. To make a long story short. I found out my house was loaded with mold behind the walls and ceilings. I did a lot of testing on myself and my home. The mold took out 50% of my homes electricity, and about 95% of my health. My home is unsellable, and the functional Drs I met with, all said I can’t be treated until I’m out of the mold. About a year ago I started having Neuro and cognitive problems. I just was diagnosed with POTS. I’ve been praying for a Plan B, to get out of my home, and get some normalcy back to my life. I want to thank you for everything you are bringing to light on your RUclips channel. It’s so important that folks hear your story, and message of hope. You’re doing GREAT ! God Bless.
So my Stanford doctor specializes in cfs (after a viral infection). He told me they have found that patients with CFS have low functioning mitochondria. He said that mono and 6 other viruses can actually damage mitochondria and set off the disease. So as part of his treatment plan he instructs you to rest and pace yourself because of the lower ATP (energy) levels in cfs.
There's a Dr in the UK who specialises in M.E/CFS and explains the mitochondria theory in her book (Dr Sarah Myhill - Mitochondria, Not Hypochondria, I'm sure it's available on Amazon US too). It's well worth a read, her website has a lot of information too.
@@nenemaria-cornfieldsgarden Yeah I read this book. Very fascinating. I think that mitochondrial dysfunction should be taught to all doctors for ME/CFS. Certainly makes a lot more sense than it being a psychological illness. My doctors in the UK not only did nothing to help, they essentially refused to try anything because they were convinced it was psychological.
ThePupular Charlie what is the Stanford Dr advising? There’s a dr I follow who says sun light on the skin and naked eye (no contacts, glasses) helps rebuild mitochondria. So far I don’t have much energy.
Wow, Mandy, so happy you’re continuing to get answers! God is so faithful 🙌🏼 I’m so thankful He led me to your channel. I was diagnosed with CFS this spring and this summer went into what my dr called a mono flare, most likely triggered my the mold we found in our air ducts 🤢 my EBV numbers are 750 and 600. I actually have an appointment with Rob Wilson next Friday and I’m sooooo excited!!! Funny thing, just yesterday I was thinking man wouldn’t it be great if I could just record our conversation. Then here you come with this awesome app today. Isn’t it funny how God works, even in the little things we think He wouldn’t care about! Thanks for everything you do Mandy. Continued prayers for your complete healing!
Actually the EBV panel is not like that, those are just antibodies, for you to be active and or chronic active/reactivated you need a positive VCA IGM and or positive EA IGG, those antibodies your mention stay with you forever after you get EBV, mine are trough the roof way higher than yours and apparently Im not reactivated.
So so happy that you are feeling better and finding answers!! I am trying to figure out the root cause of my chronic illness as well, and it is super encouraging to hear your story! It has been over a year, but I am praying that God will bring answers! Thank you so much for sharing:)
So happy you have steps to move forward! AMEN to finding the root cause! Coming from someone who has two autoimmune diseases (type 1 diabetes and hashimotos), I too can attest that there is always a reason + a healing story.
Piper Backholm oh, how nice. It’s been years of crying out to God. Where do you woolens get all these tests done ? How do you pay for them? The poor die.
Hey, Mandy, thanks for your video update. Candida and silver amalgam dental fillings were a couple of other things I thought of as you talked about various components of chronic illness to look into. Also, regarding treatment for viruses, IV vitamin C has utility, as do ozone therapies, including IV ozone. (Both of those are used for more than just viruses.) I totally get your excitement about the diagnosis; answers are such a relief at times!
I have fibro on my left side and irritable bowl along with anxiety. I also have vitiligo on my right leg. My house has mold in it but I cant afford to fix it as bad as that is. I just woke up sick with my illness one day and that's it! This house my Mom left me and its a small old house. There is mold in the bathroom walls and inbetween is the kitchen. I am not sure if that or stress or just having autoimmune issues caused my problems. I have heard that very stressful relationships can be a link for many women that have fibro. Who knows?! God bless and I hope you get better!
Sharee Jacobs, I'm not sure where you live, but some cities/counties have help for homeowners that need work done in their homes. It's usually income and need based and you would apply for it based on their program parameters. It might be worth looking into...
I must admit that my heart sank as you told the news of your new diagnosis. I have a family member who suffers greatly from various chronic conditions. She’s been doing DNRS for about 6 or 7 weeks. I had hoped to see some improvements by now, but we haven’t. We’ve spent thousands of dollars already, and to hear that we need to possibly try a functional medicine Dr. Is a little disheartening. I do realize that everyone’s health journey is different though. And I also know that the Lord is in control. One day we will understand. One day she will be well. Until then, we press on, continuing to look for the answers we need. 🙏🏻❤️
Check out my resources in my comment--I listed 18 modalities/programs, etc. which I have found people heal from CFS/Fibro/POTS/MCS. Neuroplasticity is really the only way as these illness are from the stress response in overdrive and all the downstream symptoms and impaired bodily symptoms come from this dysfunction. Mandy loves to talk about functional medicine and that it is the answer but so far she had way more healing with DNRS than with a year of functional medicine. Encourage your relative, the belief in recovery is so, so important. I am almost recovered, it has not been fast or easy but very doable with the right information. There are are so many mind-body solutions for bringing down the stress response and recovering from these illnesses--please check out my comment.
TIRED OF LYME , she was tested for Lyme and it came back negative. You went to the DNRS seminar. Did it help you,or are you finding you have other things beyond what it can help with - like Mandy?
@@nancyeckhart7351 It is on this page, but I copied the 18 treatments with lots of full recovery stories below. Mindbody therapies have lots of recovery stories as IMO and others the fight/flight nervous system dysfunction is the root cause of these illnesses (from a combination of mental, emotional and physical stress as the "root cause") and when we bring down the nervous system dysfunction the body heals itself. Many point to the amygdala in the limbic system as the issue. In 14 months of mindbody "medicine" I have gone from almost bedridden to walking a mile or two a day and almost recovered. here are the 18 modalities with many recovery stories that you can check out: , Lightning Process, The Shift, EFT, FasterEFT, Matrix Reimprinting, Reverse Therapy/Mickel Therapy, Optimum Health Clinic, ANS Rewire, DNRS, The Gupta Program, The Chrysalis Effect program, Dr. Joe Dispenza's retreats (see recovery stories from everything from cancer, autoimmune and CFS with his work), Energy Flow Coaching with Kyle Davies, The Three Principles coaching with John El Mokadem, The Curable App, and Dr. John Sarno's work (and all those that follow the late Dr. Sarno like the Sirpa Organisation in the UK, Nicole Sachs, LCSW, and so many more see TMSWiki.org) and many more out there ((I am an attorney by education and used my research skills to get to the bottom of how people actually healed from these illnesses).
I just got diagnosed with chronic Epstein Barr virus, and fibromyalgia. Thank you for sharing this Mandy! You are truly living out gods calling on your life!
I am so excited to watch this video, Mandy. I am halfway though and I've already felt an emotional/spiritual connection to what you are saying. Thank you for your bold testimony. You have been an instrumental support to me as I've journeyed through healing from chronic fatigue syndrome. Thank you! God bless. :)
Hi mandy! Thanks so much for sharing your insight on functional medicine. I think it's really important to have an integrative approach to dealing with chronic illness and to combine the best of Western conventional medicine with more alternative natural treatments just as you have mentioned. However, I think it is crucial to note that fibromyalgia is not simply a "label" for random pain and fatigue. Treating a leaky gut, your adrenals, among other practices, can certainly help to reduce and minimize fibro symptoms but fibromyalgia is a real disease in of its itself with a biological cause. I think that saying fibro is just a "label" would be like saying multiple sclerosis or diabetes is just a "label" for random symptoms that have no cause, which is of course not true. Dr. Ginevra Lipton is a fibro specialist and is a functional practitioner and she recognizes this so I think it's important to be clear on that. Also CFS and fibro are two separate diseases. Many in the medical community see them as one but this is false. I am a patient at Stanford's CFS clinic and they have done tons of research showing some of the biological abnormalities present in people with CFS and although many functional treatments can help to manage and keep certain symptoms at bay or even greatly contribute to someone's full recovery, oftentimes these holistic approaches are not enough for those with severe CFS, who are or were in a wheelchair for an extended period of time like I was. I think all of the things you have done are really important things to implement when recovering from a chronic illness so thanks again for sharing it with us! I saw a functional doctor for a while before becoming a patient at Stanford and did lot of similar testing like you did, but unfortunately, I didn't have the improvement you have had with this approach, but of course, that is not to say that it doesn't help people because clearly in some cases it can! I just wanted to share some of the insight I have on this, and thanks again for being so open with us. God Bless you and may you recover completely soon.
Thank you so much for saying that and getting that information out there. I was thinking the same exact thing when Mandy said fibromyalgia is just a label for all the symptoms and other issues. That is exactly like saying, any other chronic illness or disease is just a label because it’s not the root cause of the disease. The rest of the video was really great though!
I have similar EBV numbers! Declaring wellness for everyone. So interesting there is medication option... I look forward to hearing the process of how that goes!
I’ve been struggling with chronic illness for over 2 years (similar to your struggles with some variations) and through my journey I’ve seen the most common theme after talking to thousands of people like us being Lyme & Co (soooo often missed by blood testing, I found mine through EDS & AK testing) as well as mold, EBV, and damaged mitochondria which is caused by all of these :) To sum it up: Lyme & Co (don’t trust basic/blood testing), EBV, Mold. The big 3!
I'm seeing so many incidents of patients who had mono forcing their doctors to retest for it, and voila! Chronic EBV is the cause. Most doctors won't test for this as they're taught that it can't come back and doctors think that their training/expertise is sacrosanct. I'm definitely going to make sure my doctor does another check for EBV, as I've felt like it comes back for me all the time. I got it 7 years ago now and the symptoms never fully went away.
I have been suffering from fibromyalgia and me/cfs for 12 years now and I'm pretty much house bound. I would love to see a functional specialist but unfortunately that costs money where I live and since I can't work we can't afford it. This is the worst illness. Wouldn't wish it on my worst enemy
Such an important video!!! There are always root causes. I remember being diagnosed with CFS and being like, "What now??" Still trying to figure out how to regain my health but over the years, I discovered I had Lyme disease, mold illness, and I also did that GPL Tox that showed super high levels of chemicals as well!
So I have been having blood tests done for years. Always get the answer of low Vit D. I take 5K units a day to maintain a “normal” level. Last April my dr said according to my inflammation markers are to the point that we are “likely sitting on an autoimmune disease” but the blood test isn’t to the point to refer me to a specialist. At my worst point I couldn’t even make it through a work day without napping on my lunch hour. It’s so frustrating to not feel well but not really have answers. Still searching for my root.
Where are you going to get all of these answers? How did you find the functional medicine doctor? Tips on getting docs to do tests for us! I live near Oklahoma and if you recommend this functional medicine practitioner, I'm willing to drive!
Great video!! Thank you for sharing P.S: Everytime I watch your videos, I keep saying: I love how your teeth look so healthy. Could you share your teeth care routine, please?!!! xoxo
I hope the anti viral works for you because it didn’t help me. I also tried ozone IV’s which didn’t work. Now I’m doing a homeopathic protocol called Desbio. The only thing that’s made me herx is the Desbio so maybe I’ve found the right treatment. Don’t ever give up and please continue to minister to so many of us who are chronically ill. Praying you find healing soon.
TIRED OF LYME. Lyme, Babesia, EBV, CMV and Microscopic Colitis. I’m a mess and it feels like I’m playing whack-a-mole trying to treat one and then another. It’s a full time job!
Hi! Thank you so much for the encouraging and informative video!! I also got CFS after mono and have very high levels of EBV antibodies, but my doctor said there is nothing I can do and that it is normal for people who have had mono in the past.:(( I am determined to get better and working to retrain and relax my NS, but haven’t seen any major progress yet. How did the antivirals work for you? How are you doing now?💕
Hey Mandy, do you still practice DNRS? I was thinking about starting my own channel with my IT and possibly helping others. Watching your videos have helped me so much. Do you feel that talking about IT while making the videos interferes with the progress of DNRS?
Christina what type of treatment did you do for the mold exposure. I have tested positive for that two but didn’t know what that treatment consisted of.
So pleased you're finding answers and things that help. It's always interesting to hear others stories and comforting to know we're not alone in this. I've been diagnosed with M.E for 21 years after getting EBV and I'm 99% sure I've had chronic EBV since. I've also recently been tested for Lyme and that came up positive. I started to get drastically worse 5 years ago living in a very mouldy house (which I'm no longer in, thankfully). I can't afford the EBV, mould or co-infections testing but it doesn't make much difference either way as I've no source of treatment for any of these things in the UK. Our health service doesn't offer any treatment options or testing for ME, Lyme , mould etc and I can't pay for private healthcare. Just trying to figure it out on my own but it's very overwhelming, especially when being so ill makes it impossible to read or take in information at times. Wishing you all the best in your journey
Lyme disease is treated with antibiotics. But I suppose it depends on how long you’ve had it for. Avril Lavigne had undiagnosed Lyme disease and has made lots of videos about it if you want to check them out! I wish you the best x
I always love ur videos! I’m so glad ur having success, and thank u for compiling the list of things to research ...that does give me some direction on what to research next
hey Mandy! i am new to your channel, so please forgive me if you have mentioned any of what i am going to say in other vids. i went a similar route as you seem to be going with the functional medicine and such. Cat's Claw is one of the best supplements for killing EBV. HOWEVER, it is critical to note that the virus has an affinity for nerve tissue. if the nerves have been destroyed or compromised, then you will not get the proper signals (bring nutrients (blood), remove waste (lymph)) to heal the tissues. nerve damage also distorts your biofield, but i won't get into that. i dealt with debilitating fatigue for several years, even experiencing exercise intolerance (WTF?) where it took almost a week to recover from a mild workout. when i finally figured out how to fix the nerves, that is when i really made progress. the fascia of the body is 6 to 10 times more innervated than muscles; maybe check out some of the Anatomy Trains videos with Tom Myers. i have yet to come across anyone who seems to understand how to effectively reverse/fix nerve damage, so i will tell you what i did: i slept (and still do) every night with Earth-based pulsed electromagnetic field (PEMF) therapy. if you keep a good diet (WFPB, not vegan or vegetarian), use proper electromagnetic supplementation, and have a healthy mindset, YOU WILL MAKE A FULL RECOVERY. other things that really helped were some yogic breathwork techniques combined with meditation; this stimulates the nervous system and also the pineal gland to release a bunch of beneficial neurotransmitters. your pineal gland is your inner pharmacist, and will always give you the best "drugs" for you as they are endogenous and tailored just for your biology. ;) much love and i wish you a speedy recovery!
Have you researched breast implant illness? If so do you have a detox system for after explant of you know what I am talking about. If so would you be interested in even doing a video on it?
Another big cause of chronic fatigue syndrome and what triggered mine is fluoroquinolone toxicity, Medications like (Levaquin, avelox, cipro) some fell ill after one course others on their fourth or sixth and some after just one pill or two
Even if this wasn't the specific trigger for someone, if they had taken them specially more than once it's likely that it added to the load leading up to it.
So glad you’re starting to get some answers! I’ve been struggling with CFS and several other chronic illnesses for about a year now and it’s been so difficult to have test after test come back “normal” Quick question on your antibodies - I too have very high VCA IgG and Nuclear Antigen (191 and 179) but since my VCA IgM and Early Antigen were low, my functional doctor told me that this meant I had EBV in the past but that it isn’t reactivated. Are your IgM and Early Antigen numbers high as well? Or were you diagnosed based solely on your IgG and Nuclear numbers? Sending all my love and healing thoughts!
Kathy Myers Huh? Are you saying “wtf” in response to my comment about the tests? I should have clarified - it’s been difficult that no one can tell me why I feel so awful every single day. Why I can barely get out of bed, after years of having copious amounts of energy and working hard every single day and living life. Many chronic illness sufferers echo this same sentiment - it gets to a point where all you want is an answer.
We are finally getting settled in TX after moving from CA and I need to find some answers about my health. Do you have any recommendations on how to find a good functional medicine practitioner?
As a suffer of chronic illness, look into the lourdes hydrofix premium machine from the site holy hydrogen. It is not cheap, but the benefits are worth every penny. Uprising144k does alot of videos on it here on youtube. Two more things, NES Health bioenergetics is another tool I am currently using, but you would have to find a practioner in your area. And have you thought about seeing a homeopathic practioner? There are amazing success stories with homepathics! I did DesBio kits that my fuctional med doctor had me do, but going to a practioner would probably have been way more effective if I had a do over. I had results with the kits, but not the results I was hoping for.
Praying for healing for you! My Epstein Barr antibodies were extremely high. They were around 900. We tried an antiviral medication, but it made me so sick. I had such a hard time eating anything. I ended up only taking it a couple of weeks. I also did Ozone IVs to help kill the virus for 6 months. St first I noticed some slight improvement and then it stopped.
So interesting - is antiviral the same as antibiotics? If so, that's probably the same course of treatment for lyme as well? I test positive for epstein barr as well. Praying for healing for you.
Antibiotics are for bacteria whereas anti-virals are for viruses. EBV is one of the most common viruses and 90% of the worlds population carries it. The key is keeping your body healthy enough to keep it at bay. Antibiotics are generally bad because we have a symbiotic relationship with our most of our bacteria and antibiotics kill bacteria indiscriminately. The good bugs along with the bad. The human body contains trillions of microorganisms, outnumbering human cells by 10 to 1. Sometimes we need these medications when things get out of balance but it’s even more important to keep the good bugs happy because they fight the bad bugs. Our immune system starts in the gut microbiome.
Thank you for this video! If you all we’re happy with the mold inspector and thought he was knowledgeable, can you send me his Info? We have mold, but i don’t know where. I’m in Norman and am needing someone to find the source. Thank you!
I have Cirs too and I thought I was just severely hypothyroid and it turns out I was hypothyroid but i also had mold. My functional doctor ran the shoemaker labs. One can also run these through life extension without a doctor FYI.
Hey mandy, I'm wondering if you are able to give dietary recommendations based on lab work? Specifically, PHA (personal health assessment) results? I had this done to receive a discount on my insurance through work. So, it shows risk levels for kidney, blood work, liver, endocrine, heart and vitals...Mine passed, but I was concerned about some areas, for example my blood pressure and cholesterol were right at the passing mark. Anyways, any thoughts? I have also attended a Naturothapy (SP?) course for 1 year and do my best to follow the recommendations I received. Thank YOU for all you share:)!
@@MandyMeehan And my doctor told me that my fatigue syndrome and bad memory can be caused by lacking of iron in blood.....I don't know but I am going to take medicine and let is see!
Curious your IgM ("active") counts for EBV and your EBV PCR result. BUT, my dad has ME/CFS (as do I...and my aunt) and his IgG is literally off the charts. So, he doesn't fight it properly. Even though his IgM doesn't go high. And my ME/CFS physician I had for a few yrs (he switched to concierge, plus too far a drive but have a chronic illness specializing doc and feel very understood so all good) always goes to the Invest in ME/CFS Conference (IiME) in the UK and often does a presentation. Well, somehow I was either looking something up on his non-profit research org site or it led to a Google search and I found this! About a talk done at the IiME on research into latent virus replication in EBV. Thought it might really interest you re your Mono/EBV situation! I'll post it as a reply to this and space it out so hopefully it doesn't go in spam.
Did you let your Dr know that you were recording your appt? I am really wanting the app, but not sure how I feel about telling my Dr that I'm recording them.
antivirals did nothing for me (valtrex guessing same.... I also did lysine supp and low arginine) and my ebv numbers are triple yours. I hope it helps you though. Have you been tested for bartonella and babesia? These are lyme coinfections. I have bartonella (test through Galaxy worth it they are the igenex of bartonella which I am convinced is 10x worse than lyme) we are treating it now and hoping it helps. I see the top bartonella in us after my local functional dr could not help much in a year. I just started the bartonella treatment and it will take a year so hard to say if it is helping. I want to believe it is. I did the dutch too and my adrenals and pituary are all out of whack. we think the bartonella is driving that but we are doing diff things to help. did you do a provoked metals and mold test? I did not and wonder if those results are accurate
Wow! I just found out about you and your RUclips and Instagram! I am blown away at just this one video. I have dealt with fatigue symptoms for 2 years but with mine I loose my voice when I “flare up” Could you tell me some more information too get some further testing? I am scheduled for a swallow test today and a MRI & sleep study next week, only after going to doctors multiple doctors I finally found some that will listen. Do you have more research on EBV? I have that and Hoshimotos. Praying for you and so thankful I found you!!
Stacey Jones I have similar stuff with my throat hurting when I get tired. I’ve been told it is related to our adrenals. Maybe adrenal fatigue is something u could look into?
@@foreverythingaseason I think that maybe this person is asking about if Mandy has looked into a metaphysical spiritual approach, not the religious spiritual approach, re how we need to heal our life like stop people pleasing, stoping perfectionism, trusting life, letting go of control, etc.. See Louise Hay and others.
@@evelinel.9827 that is what her whole healing journey has been about! Learning that her identity isn't found in the work she does, that God has purpose for her in everything, and finding a way to embrace vs. endure the pain. I thought this person meant un-repentance as a cause for disease.
@@foreverythingaseason Also, yes Mandy has discussed some spiritual lessons in her journey, but the past year it has been all about healing the physical through functional medicine. I have seen so many go down that route and not have success as IMO all the dysfunctions that are in the body like not detoxing properly, not dealing with viruses in the body, etc. are just the downstream effects of the nervous system dysfunction. As someone who has watched Mandy's journey through her videos, she made tons of progress with DNRS and not that much progress with almost a year of functional medicine.
It all sounds a bit sketchy with functional medicine doctors charging thousands for tests then finding them slightly off so they can get you to buy expensive supplants dangling this carrot over you of like oh we found more so we can help you heal but it seems people are always having to go back for more and more and obsessing over health constantly; spending all their money in the process.
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Hi I’m new to your channel and 3 years late, still I’m happy to be here. I was diagnosed with Hashimoto’s and Fibromyalgia, and with working with 2 amazing Drs., I had gotten them under control. Then I moved to Florida 4 years ago. I started to get sick again, and kept getting worse. Due to the pandemic, I could not get established with a doctor. To make a long story short. I found out my house was loaded with mold behind the walls and ceilings. I did a lot of testing on myself and my home. The mold took out 50% of my homes electricity, and about 95% of my health. My home is unsellable, and the functional Drs I met with, all said I can’t be treated until I’m out of the mold. About a year ago I started having Neuro and cognitive problems. I just was diagnosed with POTS. I’ve been praying for a Plan B, to get out of my home, and get some normalcy back to my life. I want to thank you for everything you are bringing to light on your RUclips channel. It’s so important that folks hear your story, and message of hope. You’re doing GREAT ! God Bless.
So my Stanford doctor specializes in cfs (after a viral infection). He told me they have found that patients with CFS have low functioning mitochondria. He said that mono and 6 other viruses can actually damage mitochondria and set off the disease. So as part of his treatment plan he instructs you to rest and pace yourself because of the lower ATP (energy) levels in cfs.
I'm a patient at Stanford too
There's a Dr in the UK who specialises in M.E/CFS and explains the mitochondria theory in her book (Dr Sarah Myhill - Mitochondria, Not Hypochondria, I'm sure it's available on Amazon US too). It's well worth a read, her website has a lot of information too.
Yeah I've heard this too.
@@nenemaria-cornfieldsgarden Yeah I read this book. Very fascinating. I think that mitochondrial dysfunction should be taught to all doctors for ME/CFS. Certainly makes a lot more sense than it being a psychological illness. My doctors in the UK not only did nothing to help, they essentially refused to try anything because they were convinced it was psychological.
ThePupular Charlie what is the Stanford Dr advising? There’s a dr I follow who says sun light on the skin and naked eye (no contacts, glasses) helps rebuild mitochondria. So far I don’t have much energy.
Wow, Mandy, so happy you’re continuing to get answers! God is so faithful 🙌🏼 I’m so thankful He led me to your channel. I was diagnosed with CFS this spring and this summer went into what my dr called a mono flare, most likely triggered my the mold we found in our air ducts 🤢 my EBV numbers are 750 and 600. I actually have an appointment with Rob Wilson next Friday and I’m sooooo excited!!! Funny thing, just yesterday I was thinking man wouldn’t it be great if I could just record our conversation. Then here you come with this awesome app today. Isn’t it funny how God works, even in the little things we think He wouldn’t care about! Thanks for everything you do Mandy. Continued prayers for your complete healing!
Actually the EBV panel is not like that, those are just antibodies, for you to be active and or chronic active/reactivated you need a positive VCA IGM and or positive EA IGG, those antibodies your mention stay with you forever after you get EBV, mine are trough the roof way higher than yours and apparently Im not reactivated.
So so happy that you are feeling better and finding answers!! I am trying to figure out the root cause of my chronic illness as well, and it is super encouraging to hear your story! It has been over a year, but I am praying that God will bring answers! Thank you so much for sharing:)
thanks for your sweet comment. praying for you!
Kaelah .Hamman God brings answers when you can get all the TESTING. $$$$$$$$$$$$$$$$$&Thankyou God.
@@MandyMeehan Thank you so much!! You are so sweet! Praying for you as well:)
So happy you have steps to move forward! AMEN to finding the root cause! Coming from someone who has two autoimmune diseases (type 1 diabetes and hashimotos), I too can attest that there is always a reason + a healing story.
Piper Backholm oh, how nice. It’s been years of crying out to God. Where do you woolens get all these tests done ? How do you pay for them? The poor die.
Ehlers-Danlos Syndrome and other connective tissue disorders are another big cause of chronic pain/fatigue :)
Yes! Thanks for adding this here 🙌🏼
I will tested soon for it!
Rachael Elizabeth What does Epstein-Barr chronic symptoms look like?
Yes!!! I have hEDS! I strongly identify with having chronic fatigue. I view it as a comorbidity.
Congratulations! Will continue to pray for complete healing!
Hey, Mandy, thanks for your video update. Candida and silver amalgam dental fillings were a couple of other things I thought of as you talked about various components of chronic illness to look into. Also, regarding treatment for viruses, IV vitamin C has utility, as do ozone therapies, including IV ozone. (Both of those are used for more than just viruses.) I totally get your excitement about the diagnosis; answers are such a relief at times!
I have fibro on my left side and irritable bowl along with anxiety. I also have vitiligo on my right leg. My house has mold in it but I cant afford to fix it as bad as that is. I just woke up sick with my illness one day and that's it! This house my Mom left me and its a small old house. There is mold in the bathroom walls and inbetween is the kitchen. I am not sure if that or stress or just having autoimmune issues caused my problems. I have heard that very stressful relationships can be a link for many women that have fibro. Who knows?! God bless and I hope you get better!
Sharee Jacobs honey , sell it and get a small camper in backyard d. See if you feel better. Mold ruined my life and my adult kids are sick.
Sharee Jacobs, I'm not sure where you live, but some cities/counties have help for homeowners that need work done in their homes. It's usually income and need based and you would apply for it based on their program parameters. It might be worth looking into...
Myne OneX Thank you🙂
@@shareejacobs6434 You're welcome. :)
Thanks, Mandy! Glad to have found your vlog! Congratulations on your baby and hope you're doing much better now!
Thank you! The EBV Facebook group has been incredibly helpful for me for treatments etc.
I must admit that my heart sank as you told the news of your new diagnosis. I have a family member who suffers greatly from various chronic conditions. She’s been doing DNRS for about 6 or 7 weeks. I had hoped to see some improvements by now, but we haven’t. We’ve spent thousands of dollars already, and to hear that we need to possibly try a functional medicine Dr. Is a little disheartening.
I do realize that everyone’s health journey is different though. And I also know that the Lord is in control. One day we will understand. One day she will be well. Until then, we press on, continuing to look for the answers we need. 🙏🏻❤️
Check out my resources in my comment--I listed 18 modalities/programs, etc. which I have found people heal from CFS/Fibro/POTS/MCS. Neuroplasticity is really the only way as these illness are from the stress response in overdrive and all the downstream symptoms and impaired bodily symptoms come from this dysfunction. Mandy loves to talk about functional medicine and that it is the answer but so far she had way more healing with DNRS than with a year of functional medicine. Encourage your relative, the belief in recovery is so, so important. I am almost recovered, it has not been fast or easy but very doable with the right information. There are are so many mind-body solutions for bringing down the stress response and recovering from these illnesses--please check out my comment.
Eveline L. , I’m sorry. Where is your comment for the resource you were talking about? I couldn’t find it.
TIRED OF LYME , she was tested for Lyme and it came back negative. You went to the DNRS seminar. Did it help you,or are you finding you have other things beyond what it can help with - like Mandy?
@@nancyeckhart7351 It is on this page, but I copied the 18 treatments with lots of full recovery stories below. Mindbody therapies have lots of recovery stories as IMO and others the fight/flight nervous system dysfunction is the root cause of these illnesses (from a combination of mental, emotional and physical stress as the "root cause") and when we bring down the nervous system dysfunction the body heals itself. Many point to the amygdala in the limbic system as the issue. In 14 months of mindbody "medicine" I have gone from almost bedridden to walking a mile or two a day and almost recovered. here are the 18 modalities with many recovery stories that you can check out: , Lightning Process, The Shift, EFT, FasterEFT, Matrix Reimprinting, Reverse Therapy/Mickel Therapy, Optimum Health Clinic, ANS Rewire, DNRS, The Gupta Program, The Chrysalis Effect program, Dr. Joe Dispenza's retreats (see recovery stories from everything from cancer, autoimmune and CFS with his work), Energy Flow Coaching with Kyle Davies, The Three Principles coaching with John El Mokadem, The Curable App,
and Dr. John Sarno's work (and all those that follow the late Dr. Sarno like the Sirpa Organisation in the UK, Nicole Sachs, LCSW, and so many more see TMSWiki.org)
and many more out there ((I am an attorney by education and used my research skills to get to the bottom of how people actually healed from these illnesses).
I just got diagnosed with chronic Epstein Barr virus, and fibromyalgia. Thank you for sharing this Mandy! You are truly living out gods calling on your life!
I am so excited to watch this video, Mandy. I am halfway though and I've already felt an emotional/spiritual connection to what you are saying. Thank you for your bold testimony. You have been an instrumental support to me as I've journeyed through healing from chronic fatigue syndrome. Thank you! God bless. :)
Congratulations on your first sponsorship!! What a wonderful milestone!
Hi mandy! Thanks so much for sharing your insight on functional medicine. I think it's really important to have an integrative approach to dealing with chronic illness and to combine the best of Western conventional medicine with more alternative natural treatments just as you have mentioned. However, I think it is crucial to note that fibromyalgia is not simply a "label" for random pain and fatigue. Treating a leaky gut, your adrenals, among other practices, can certainly help to reduce and minimize fibro symptoms but fibromyalgia is a real disease in of its itself with a biological cause. I think that saying fibro is just a "label" would be like saying multiple sclerosis or diabetes is just a "label" for random symptoms that have no cause, which is of course not true. Dr. Ginevra Lipton is a fibro specialist and is a functional practitioner and she recognizes this so I think it's important to be clear on that. Also CFS and fibro are two separate diseases. Many in the medical community see them as one but this is false. I am a patient at Stanford's CFS clinic and they have done tons of research showing some of the biological abnormalities present in people with CFS and although many functional treatments can help to manage and keep certain symptoms at bay or even greatly contribute to someone's full recovery, oftentimes these holistic approaches are not enough for those with severe CFS, who are or were in a wheelchair for an extended period of time like I was. I think all of the things you have done are really important things to implement when recovering from a chronic illness so thanks again for sharing it with us! I saw a functional doctor for a while before becoming a patient at Stanford and did lot of similar testing like you did, but unfortunately, I didn't have the improvement you have had with this approach, but of course, that is not to say that it doesn't help people because clearly in some cases it can! I just wanted to share some of the insight I have on this, and thanks again for being so open with us. God Bless you and may you recover completely soon.
Thank you so much for saying that and getting that information out there. I was thinking the same exact thing when Mandy said fibromyalgia is just a label for all the symptoms and other issues. That is exactly like saying, any other chronic illness or disease is just a label because it’s not the root cause of the disease. The rest of the video was really great though!
I have similar EBV numbers! Declaring wellness for everyone. So interesting there is medication option... I look forward to hearing the process of how that goes!
Oh my gosh I got mono a week before my wedding too! So crazy, and now I have CFS/me.
I’ve been struggling with chronic illness for over 2 years (similar to your struggles with some variations) and through my journey I’ve seen the most common theme after talking to thousands of people like us being Lyme & Co (soooo often missed by blood testing, I found mine through EDS & AK testing) as well as mold, EBV, and damaged mitochondria which is caused by all of these :)
To sum it up: Lyme & Co (don’t trust basic/blood testing), EBV, Mold. The big 3!
Don’t know if know any of these but check out: Dr. Jay Davidson & Dr. Todd Watts (Microbe Formulas), Dr. JessMD, Dr. Kasey Holland!
Thanks for sharing.A true inspiration. Please do not discount the vital importance of sleep (please see Matt Walker Re sleep).
I'm seeing so many incidents of patients who had mono forcing their doctors to retest for it, and voila! Chronic EBV is the cause. Most doctors won't test for this as they're taught that it can't come back and doctors think that their training/expertise is sacrosanct. I'm definitely going to make sure my doctor does another check for EBV, as I've felt like it comes back for me all the time. I got it 7 years ago now and the symptoms never fully went away.
I have been suffering from fibromyalgia and me/cfs for 12 years now and I'm pretty much house bound. I would love to see a functional specialist but unfortunately that costs money where I live and since I can't work we can't afford it. This is the worst illness. Wouldn't wish it on my worst enemy
Glad that you're getting some more specific answers!!
Such an important video!!! There are always root causes. I remember being diagnosed with CFS and being like, "What now??" Still trying to figure out how to regain my health but over the years, I discovered I had Lyme disease, mold illness, and I also did that GPL Tox that showed super high levels of chemicals as well!
Oh, another thing that people should test their homes for are EMFs!
So I have been having blood tests done for years. Always get the answer of low Vit D. I take 5K units a day to maintain a “normal” level. Last April my dr said according to my inflammation markers are to the point that we are “likely sitting on an autoimmune disease” but the blood test isn’t to the point to refer me to a specialist. At my worst point I couldn’t even make it through a work day without napping on my lunch hour. It’s so frustrating to not feel well but not really have answers. Still searching for my root.
Where are you going to get all of these answers? How did you find the functional medicine doctor? Tips on getting docs to do tests for us! I live near Oklahoma and if you recommend this functional medicine practitioner, I'm willing to drive!
Just did a Dutch test too! I'm so excited to get the results!
Great video!! Thank you for sharing
P.S: Everytime I watch your videos, I keep saying: I love how your teeth look so healthy. Could you share your teeth care routine, please?!!!
xoxo
Oh yeah I always have had moldy houses as a child and maybe even now as we rent
I hope the anti viral works for you because it didn’t help me. I also tried ozone IV’s which didn’t work. Now I’m doing a homeopathic protocol called Desbio. The only thing that’s made me herx is the Desbio so maybe I’ve found the right treatment. Don’t ever give up and please continue to minister to so many of us who are chronically ill. Praying you find healing soon.
TIRED OF LYME. Lyme, Babesia, EBV, CMV and Microscopic Colitis. I’m a mess and it feels like I’m playing whack-a-mole trying to treat one and then another. It’s a full time job!
Adrenal fatigue is definitely chronic fatigue related too which I’ve been dealing with
Hi! Thank you so much for the encouraging and informative video!! I also got CFS after mono and have very high levels of EBV antibodies, but my doctor said there is nothing I can do and that it is normal for people who have had mono in the past.:(( I am determined to get better and working to retrain and relax my NS, but haven’t seen any major progress yet. How did the antivirals work for you? How are you doing now?💕
As usually, very encouraging. Keep us updated!
Chronic EBV - Kasia Kines book THE EBSTEIN BAR VIRUS SOLUTION. This book and resources have helped me so much!
Hey Mandy, do you still practice DNRS? I was thinking about starting my own channel with my IT and possibly helping others. Watching your videos have helped me so much. Do you feel that talking about IT while making the videos interferes with the progress of DNRS?
Any updates?
Anyone with me/cfs should read about Jennifer Brea’s recovery!
Oh my goodness, I have chronic Epstein Barr also. Really looking forward to hearing how you do with treatment!!!
Mold treatment has been key for me, I hope you're getting treatment for it!
Yes ma’am! Definitely addressing mold too! 🙌🏼
Christina what type of treatment did you do for the mold exposure. I have tested positive for that two but didn’t know what that treatment consisted of.
I had this as well and definitely have mold toxicity!!!
So pleased you're finding answers and things that help. It's always interesting to hear others stories and comforting to know we're not alone in this. I've been diagnosed with M.E for 21 years after getting EBV and I'm 99% sure I've had chronic EBV since. I've also recently been tested for Lyme and that came up positive. I started to get drastically worse 5 years ago living in a very mouldy house (which I'm no longer in, thankfully). I can't afford the EBV, mould or co-infections testing but it doesn't make much difference either way as I've no source of treatment for any of these things in the UK. Our health service doesn't offer any treatment options or testing for ME, Lyme , mould etc and I can't pay for private healthcare. Just trying to figure it out on my own but it's very overwhelming, especially when being so ill makes it impossible to read or take in information at times. Wishing you all the best in your journey
Lyme disease is treated with antibiotics. But I suppose it depends on how long you’ve had it for. Avril Lavigne had undiagnosed Lyme disease and has made lots of videos about it if you want to check them out! I wish you the best x
You can do it. Hugs.
I always love ur videos! I’m so glad ur having success, and thank u for compiling the list of things to research ...that does give me some direction on what to research next
Hey Mandy, what specific test did you do for the EBV? If you could share that.
hey Mandy! i am new to your channel, so please forgive me if you have mentioned any of what i am going to say in other vids. i went a similar route as you seem to be going with the functional medicine and such. Cat's Claw is one of the best supplements for killing EBV. HOWEVER, it is critical to note that the virus has an affinity for nerve tissue. if the nerves have been destroyed or compromised, then you will not get the proper signals (bring nutrients (blood), remove waste (lymph)) to heal the tissues. nerve damage also distorts your biofield, but i won't get into that. i dealt with debilitating fatigue for several years, even experiencing exercise intolerance (WTF?) where it took almost a week to recover from a mild workout. when i finally figured out how to fix the nerves, that is when i really made progress. the fascia of the body is 6 to 10 times more innervated than muscles; maybe check out some of the Anatomy Trains videos with Tom Myers. i have yet to come across anyone who seems to understand how to effectively reverse/fix nerve damage, so i will tell you what i did: i slept (and still do) every night with Earth-based pulsed electromagnetic field (PEMF) therapy. if you keep a good diet (WFPB, not vegan or vegetarian), use proper electromagnetic supplementation, and have a healthy mindset, YOU WILL MAKE A FULL RECOVERY. other things that really helped were some yogic breathwork techniques combined with meditation; this stimulates the nervous system and also the pineal gland to release a bunch of beneficial neurotransmitters. your pineal gland is your inner pharmacist, and will always give you the best "drugs" for you as they are endogenous and tailored just for your biology. ;) much love and i wish you a speedy recovery!
Have you researched breast implant illness? If so do you have a detox system for after explant of you know what I am talking about. If so would you be interested in even doing a video on it?
Abridge! How fun-do you have to ask the practioner permission to record?
Yes, you should ask for permission to record first!
Another big cause of chronic fatigue syndrome and what triggered mine is fluoroquinolone toxicity, Medications like (Levaquin, avelox, cipro) some fell ill after one course others on their fourth or sixth and some after just one pill or two
Even if this wasn't the specific trigger for someone, if they had taken them specially more than once it's likely that it added to the load leading up to it.
Where do you get someone to give you mold test or any other of the ones you’ve mentioned????
6 months and no response? Jeez
Such a good video! You’ve come so far!
have your ebv numbers come down since being on a protocol for that? I guess I am wondering if there is a way to tell treating is working?
So glad you’re starting to get some answers! I’ve been struggling with CFS and several other chronic illnesses for about a year now and it’s been so difficult to have test after test come back “normal”
Quick question on your antibodies - I too have very high VCA IgG and Nuclear Antigen (191 and 179) but since my VCA IgM and Early Antigen were low, my functional doctor told me that this meant I had EBV in the past but that it isn’t reactivated. Are your IgM and Early Antigen numbers high as well? Or were you diagnosed based solely on your IgG and Nuclear numbers?
Sending all my love and healing thoughts!
J Davis wtf? You must have great insurance. Must be nice.
Kathy Myers Huh? Are you saying “wtf” in response to my comment about the tests? I should have clarified - it’s been difficult that no one can tell me why I feel so awful every single day. Why I can barely get out of bed, after years of having copious amounts of energy and working hard every single day and living life. Many chronic illness sufferers echo this same sentiment - it gets to a point where all you want is an answer.
@@joanelised Check out my comment on this page and all the recovery resources available.
We are finally getting settled in TX after moving from CA and I need to find some answers about my health. Do you have any recommendations on how to find a good functional medicine practitioner?
The IFM website has a find a practitioner link.
As a suffer of chronic illness, look into the lourdes hydrofix premium machine from the site holy hydrogen. It is not cheap, but the benefits are worth every penny. Uprising144k does alot of videos on it here on youtube. Two more things, NES Health bioenergetics is another tool I am currently using, but you would have to find a practioner in your area. And have you thought about seeing a homeopathic practioner? There are amazing success stories with homepathics! I did DesBio kits that my fuctional med doctor had me do, but going to a practioner would probably have been way more effective if I had a do over. I had results with the kits, but not the results I was hoping for.
Yes he is a wonderful, helpful person.. I am using the hydro fix hydrogen machine for chronic fatigue and it has bee great.
Praying for healing for you! My Epstein Barr antibodies were extremely high. They were around 900. We tried an antiviral medication, but it made me so sick. I had such a hard time eating anything. I ended up only taking it a couple of weeks. I also did Ozone IVs to help kill the virus for 6 months. St first I noticed some slight improvement and then it stopped.
I’m sorry to hear you didn’t have much progress with that!
Were you floxed ? have you ever take Cipro or Levaquin type of antibiotics or eye drops ?
What were you supplementing with?
What chemical and heavy metals tests did you do?
So interesting - is antiviral the same as antibiotics? If so, that's probably the same course of treatment for lyme as well? I test positive for epstein barr as well. Praying for healing for you.
Antibiotics are for bacteria whereas anti-virals are for viruses.
EBV is one of the most common viruses and 90% of the worlds population carries it. The key is keeping your body healthy enough to keep it at bay.
Antibiotics are generally bad because we have a symbiotic relationship with our most of our bacteria and antibiotics kill bacteria indiscriminately. The good bugs along with the bad.
The human body contains trillions of microorganisms, outnumbering human cells by 10 to 1. Sometimes we need these medications when things get out of balance but it’s even more important to keep the good bugs happy because they fight the bad bugs. Our immune system starts in the gut microbiome.
Thank you for this video! If you all we’re happy with the mold inspector and thought he was knowledgeable, can you send me his Info? We have mold, but i don’t know where. I’m in Norman and am needing someone to find the source. Thank you!
I have Cirs too and I thought I was just severely hypothyroid and it turns out I was hypothyroid but i also had mold. My functional doctor ran the shoemaker labs. One can also run these through life extension without a doctor FYI.
Yes! That’s a great point 🙌🏼
So would you say it's worth going to mayo if you already know you have CFS and Fibro?
Hey mandy, I'm wondering if you are able to give dietary recommendations based on lab work? Specifically, PHA (personal health assessment) results? I had this done to receive a discount on my insurance through work. So, it shows risk levels for kidney, blood work, liver, endocrine, heart and vitals...Mine passed, but I was concerned about some areas, for example my blood pressure and cholesterol were right at the passing mark. Anyways, any thoughts? I have also attended a Naturothapy (SP?) course for 1 year and do my best to follow the recommendations I received. Thank YOU for all you share:)!
There is one called Hypothyroidism and that also caused Fatigue chronic syndrome
For sure. 🙌🏼 I’m surprised I didn’t mention that. I guess I usually associate it with autoimmunity.
@@MandyMeehan And my doctor told me that my fatigue syndrome and bad memory can be caused by lacking of iron in blood.....I don't know but I am going to take medicine and let is see!
Curious your IgM ("active") counts for EBV and your EBV PCR result. BUT, my dad has ME/CFS (as do I...and my aunt) and his IgG is literally off the charts. So, he doesn't fight it properly. Even though his IgM doesn't go high. And my ME/CFS physician I had for a few yrs (he switched to concierge, plus too far a drive but have a chronic illness specializing doc and feel very understood so all good) always goes to the Invest in ME/CFS Conference (IiME) in the UK and often does a presentation. Well, somehow I was either looking something up on his non-profit research org site or it led to a Google search and I found this! About a talk done at the IiME on research into latent virus replication in EBV. Thought it might really interest you re your Mono/EBV situation! I'll post it as a reply to this and space it out so hopefully it doesn't go in spam.
ht tp:/ /cfspatientadvocate. blogspot. com /2014/01/dr-carmen-scheibenbogen-berlin-charite.html?m=1
That's a Brilliant app ! X
We can eat jaggery in cfs please reply I am suffering from cfs
I am suffering from chronic fatique,,plssss suggest me something ,advice,,,plz help me, pls big hope to u
How did u do the quemichal toxicity test?
Did you stop DNRS? Or do you still do it?
Did you let your Dr know that you were recording your appt? I am really wanting the app, but not sure how I feel about telling my Dr that I'm recording them.
Yes - I always ask first. 💕
antivirals did nothing for me (valtrex guessing same.... I also did lysine supp and low arginine) and my ebv numbers are triple yours. I hope it helps you though. Have you been tested for bartonella and babesia? These are lyme coinfections. I have bartonella (test through Galaxy worth it they are the igenex of bartonella which I am convinced is 10x worse than lyme) we are treating it now and hoping it helps. I see the top bartonella in us after my local functional dr could not help much in a year. I just started the bartonella treatment and it will take a year so hard to say if it is helping. I want to believe it is. I did the dutch too and my adrenals and pituary are all out of whack. we think the bartonella is driving that but we are doing diff things to help. did you do a provoked metals and mold test? I did not and wonder if those results are accurate
Yes! I was tested for the co-infections as well as a provoked metals test! Hope you're doing okay. 💕
Wow! I just found out about you and your RUclips and Instagram! I am blown away at just this one video. I have dealt with fatigue symptoms for 2 years but with mine I loose my voice when I “flare up”
Could you tell me some more information too get some further testing?
I am scheduled for a swallow test today and a MRI & sleep study next week, only after going to doctors multiple doctors I finally found some that will listen.
Do you have more research on EBV? I have that and Hoshimotos.
Praying for you and so thankful I found you!!
Stacey Jones I have similar stuff with my throat hurting when I get tired. I’ve been told it is related to our adrenals. Maybe adrenal fatigue is something u could look into?
Have you looked into the sporitual root of diseases?
She's talked about the spiritual part of her journey often, just look at other videos on her channel!
@@foreverythingaseason I think that maybe this person is asking about if Mandy has looked into a metaphysical spiritual approach, not the religious spiritual approach, re how we need to heal our life like stop people pleasing, stoping perfectionism, trusting life, letting go of control, etc.. See Louise Hay and others.
@@evelinel.9827 that is what her whole healing journey has been about! Learning that her identity isn't found in the work she does, that God has purpose for her in everything, and finding a way to embrace vs. endure the pain. I thought this person meant un-repentance as a cause for disease.
@@foreverythingaseason Also, yes Mandy has discussed some spiritual lessons in her journey, but the past year it has been all about healing the physical through functional medicine. I have seen so many go down that route and not have success as IMO all the dysfunctions that are in the body like not detoxing properly, not dealing with viruses in the body, etc. are just the downstream effects of the nervous system dysfunction. As someone who has watched Mandy's journey through her videos, she made tons of progress with DNRS and not that much progress with almost a year of functional medicine.
💖💖💖💖
It all sounds a bit sketchy with functional medicine doctors charging thousands for tests then finding them slightly off so they can get you to buy expensive supplants dangling this carrot over you of like oh we found more so we can help you heal but it seems people are always having to go back for more and more and obsessing over health constantly; spending all their money in the process.
Omg that is Awesome,.. thank you for the information about the App.
What does Epstein-Barr chronic symptoms look like?