#glioblastoma

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  • Опубликовано: 15 сен 2024
  • I was with my mother and held her the night she passed. This entry is about that day.

Комментарии • 37

  • @romjay9689
    @romjay9689 Год назад +5

    Thank you 🙏🏽 so much for sharing your story - I am so glad I stumbled upon this video. I have recently said goodbye to my sweet mother for this terrible disease. She went to be with the Lord on her birthday,9/18 which is so memorable and hard since I couldn’t wish her happy birthday.😪 Very brief period no symptoms up until the last month. It feels so surreal and incomprehensible at the moment .Your tears are totally acceptable, I can’t stop my tears… still . I a thankful for others comments as well since it helps me process all this . May The Peace of Christ which surpasses all understanding be with you all 🕊️🙏🏽

    • @keepingitrealwithe7323
      @keepingitrealwithe7323  Год назад +1

      Hi - thank you for watching and sending me your note. I am so very sorry to hear of your mother. Nothing can really prepare us for what we go through and what our loved one goes through. But at the same time as we both know, this life is temporary and our Mother's are rejoicing in their eternal bodies with no sickness or pain. And yes, may the Peace of Chris surpass all understanding be with you too friend. 🙏

  • @jeremystull1308
    @jeremystull1308 2 года назад +5

    Thank you for sharing your mother's story. My wife just passed away from GBM on May 26, 2022 after her first symptom started March 18, 2022. My wife was already a childhood brain cancer survivor 19 years earlier. Unfortunately she passed at the young age of 31. We were high school sweethearts and together 3 weeks shy of 15 years. I miss her so much and am so devastated. Seeing her decline so fast in Hospice has resulted in my PTSD complex, severe depression and anxiety diagnosis from my counselor.

    • @keepingitrealwithe7323
      @keepingitrealwithe7323  2 года назад

      Jeremy, I am so terribly saddened for everything you and your beloved wife went through - and what you are still walking in. Please subscribe to my channel and view the other videos. There is definitely PTSD and more that you are experiencing due to this trauma. It is okay not to be okay. In time it will change, not go away, but will change. God bless you and give you peace and sleep.

    • @Paladin-mt1hl
      @Paladin-mt1hl Год назад +1

      Very sorry for your loss brother. I lost my mother to this 3 weeks ago and it was just like you described. She had her first symptoms on the 15th of September 2022 and died 21st September 2022. I cannot imagine the loss of your wife as I have never been married but losing my Mother who was the closest person to me has caused me the same issues with depression and anxiety. I hope you may find peace and God heals your pain. So sorry brother.

  • @jennifermajorsbaca9419
    @jennifermajorsbaca9419 2 года назад +6

    This video is so moving and you look so beautiful because you are being vulnerable and allowing us to feel your grief and pain and joy and memories. It was an honor and a privilege to be there for your Mother and for you. I love you E! I hope everyone feels as connected to you as I do after seeing this.

    • @keepingitrealwithe7323
      @keepingitrealwithe7323  2 года назад +1

      Oh Jen!!! Hi!!! I remember that day so ever present. So very very a part of my beating heart. I love you. Our testimonies our more powerful than our traumas. Please pass on :-) xoxo

  • @celinaflores8496
    @celinaflores8496 2 года назад +4

    My mother died of a glioblastoma on October 3, 2021. I live in Washington State and my parents moved to Harper, TX 7 years ago, we have been estranged for 7 years, but God allowed us to reconcile and I was able to fly down and help Dad take care of her during the last 7 months of her life. Going through the “what ifs” and “why’s “. Didn’t get to be there when Mom took her last breath, but Dad was. I am thankful that I did get to help her during the last few months and am thankful that God allowed us to reconcile! Mom died 7 months after her diagnosis and she was bedridden for those months. We are Christians so I am hopeful that the Bible is true and that we will see each other in heaven! Also, I should add that my mom’s only other child, my brother Brian died of a glioblastoma too 5 years ago, I have met with a genetic counselor and will find out my test results on August 4. I am so thankful to find your videos, they are helping me! I wish you well!

    • @keepingitrealwithe7323
      @keepingitrealwithe7323  2 года назад +2

      Celina - Thank you so much for sharing your heart and situation with me. Please please yes watch from beginning to end on the entries I share with GBM and my mother/ours journey. No one should walk this road alone. What a blessing restoration happened before your mother's passing on - graduation with the Lord. What an undertaking for your genetic testing - I pray for complete peace and wholeness for you. Please keep me posted.

  • @melissahagen5932
    @melissahagen5932 Год назад +1

    Mom did it her way… she blew through me with her spirit. You are such an amazing daughter to her and the best big sister any one could ever pray for.

  • @gloeppi
    @gloeppi 2 года назад +2

    Bless you. This was a beautiful video. Thankyou for sharing with us your experience. Our 29 yr old nephew has just given devastating news he has brainstem glioblastoma. There are no words right now.

    • @keepingitrealwithe7323
      @keepingitrealwithe7323  2 года назад

      Thank you it is my honor. I am so very sorry...sadness for your nephew and entire family. I am grateful that you found my journal entry. I have several entries that detail the 18 month journey - please like and subscribe. Get to know me and my/family/mother's journey. No one should go through this alone.

    • @monicaricco3392
      @monicaricco3392 Год назад

      Why wasn't your sister there?

  • @debbiesanderson9466
    @debbiesanderson9466 2 года назад +2

    I don’t know how your RUclips page came up in my feed but I’m so glad it did. I don’t know how to contact you directly but I live in the UK 🇬🇧 and I’m sat here in tears …. My partner died aged 54 on 4 th January 2020. He had struggled with MS for the whole 17 years I had been proud and honoured to be part of his life. After he died I have struggled with depression but your vlog has bought some peace finally to my life. He wasn’t able to die at home as he wished but he passed away during the night and for the first time in years all the pain and suffering had left his body. Thankyou 🙏🏻 🙏🏻🙏🏻🙏🏻🙏🏻xx

    • @keepingitrealwithe7323
      @keepingitrealwithe7323  2 года назад

      Hi Debbie - now I stand here in tears so moved. YOU are the very reason why I vlog. Thank thank you for reaching out to me. It is so very difficult. It never gets "easier". Just "different" ... 🙂 Please SUBSCRIBE to my channel and be sure to LIKE the videos you watch as this helps promote my channel to be seen on threads. Please keep in touch with me - we are actually moving to Singapore in October and I will continue to vlog on life changes, challenges and blessings ! God Bless you and may you continue to be comforted in His perfect peace. Big tight hugs from me - xoxo E

  • @tracyr54
    @tracyr54 2 года назад +4

    So beautiful...

  • @Paladin-mt1hl
    @Paladin-mt1hl Год назад +2

    Hi I lost my Mother to this cancer 3 weeks ago. It was very sudden, she died a week after her biopsy and was in a coma the entire time after it. I prayed for her many times a day with tears, but God didn't want to heal her or bring her back. I watched her die and haven't been the same ever since. Not sure how to cope with this as it seems to be getting harder as I realize she isn't around anymore. I don't know why God let her die and ignored my prayers..

    • @keepingitrealwithe7323
      @keepingitrealwithe7323  Год назад

      Hello - Thank you for writing. I am so terribly sorry your heart is breaking and for your entire family. There are no magic words to say or explanations. However, may I say to you what a privilege and honor it is to be with someone you love as they graduate on into new life. She gave life to you, with you from the beginning and you were there for her at her greatest need at the end of her life here. I hope that makes sense. May you find comfort in this. The huge whole in your heart right now is filled with grief I know. May I pray for you and hold your hand in my heart. Why did God not heal? I do not know. Having her loss so very quickly is a shock. No time to process it all. You may ask yourself, "what if we had found it earlier?".. All of the what -if questions.. It is normal to have those. I did. But it is not helpful to our mind to constantly badger yourself with those questions. I had 18months with my mother, however, watching her decline slowly was extremely difficult. Even with all of the treatments... it was very very hard. Please be sure to subscribe to my channel if you haven't. I share in several other videos the process we went through during those 18months. I cry along with you friend. I felt lost. I felt numb. It doesn't get easier, it just gets different. I was angry at cancer. Glioblastoma is insidious terrible type of cancer. I was never angry with God. Even in the midst of great sorrow, God has been faithful to me. This life is temporary. Please keep in touch with me so I may encourage you. Your mother's presence will always be with you. Continue in your faith and love. God's richest blessings and peace fill you friend - Elisabeth

  • @JOEYZReAcTiOnMYHOSPICEJOURNEY
    @JOEYZReAcTiOnMYHOSPICEJOURNEY 2 года назад +2

    GOOD MORNING! I am wishing you the best day Saturday ever! I'm having a bad day so I am wishing you a wonderful saturday...and maybe I will have a better day also.
    I need your positivity!
    Your friend Joey Z

  • @ClareBarker-e7d
    @ClareBarker-e7d 6 месяцев назад

    A dear life long friend of mine (who is in her early 50s) has had one of these monsters removed from her brain and now nearly at the end of her 6 week radiotherapy and oral chemo treatment regimen. I honestly can’t believe this has happened. 😔😔

  • @deepalisharma1531
    @deepalisharma1531 2 года назад +2

    Hi i am from india and i will be 20 on 22 sept...my mother was diagnosed with gbm in jan 2022 after that she had her first surgery on 10 jan 2022 and after that chemo and radiation...but in june her tumour reoccured and till august it had grown so deep that the doctors have said she would be unable to bear another surgery and they have given time till december 2022...we are trying to take help of ayurvedic medications also in india but they have their own side effect ....we are struck we are doing everything but nothing is making her better....it is devastating to see my mother die ....i wanna save her but no medicine is making her body better....i think god is against saving my mom ....i am depressed disheartened and in a fear of loosing her every day

    • @keepingitrealwithe7323
      @keepingitrealwithe7323  2 года назад +3

      Hi Deepali, I am honored you wrote to me. First let me say how my heart breaks for your mother, you and your family. I don't know if you have subscribed to my channel or have viewed the other vlogs I did which I start from the beginning of my mother's GBM diagnosis. I walk through all of the ups/downs, all the good and the bad. All cancer is terrible, but GBM is insidious. I understand completely where you are at, the hopelessness and desperation. I have seen God perform healing miracles. So I know they happen. But when when they don't happen for us, we question the why? Why isn't God healing my loved one? Why, Why did this insidious cancer happen to our beautiful mothers? I cannot answer that. But what I want to say which is very important for you and your mother -NOW is the time to love on her, be with her as much as possible, this time will go by.very fast. Depending on the location of the tumor, as it grows, it will affect differently - losing memory, confusion, losing the ability to write, losing all self care.. etc. She needs your strength and your love. Even though you are crumbling in every way, trust me - she needs you. May God bless you and I pray that you have his presence in a powerful way to see you through this most difficult time ahead and afterwards. - E

    • @deepalisharma1531
      @deepalisharma1531 2 года назад +2

      Thank u for such beautiful and encouraging words really means a lot to me

    • @sushilaprabha5554
      @sushilaprabha5554 Год назад

      Aap aayurved kaha se karai thi apni mother ka aur abhi kya situation hai unka . please reply I am also from india . My son has GBM 4 in his spine

  • @wendym.serrano3490
    @wendym.serrano3490 10 месяцев назад

    I'm so sorry that you all went through this than you your sharing with us. I'm currently going through this with my mom and I'm searching for any information and comfort I can get. I believe you always hearing the Elton John song is your mom letting you know she is the with you. Love and prayers ❤❤

  • @Karla-yi5ld
    @Karla-yi5ld 7 месяцев назад

    My husband was 64 when he succumbed to this disease.

  • @prettyboygirl
    @prettyboygirl 2 года назад +1

    My husband is currently dying from this horrific disease. My ❤️ is broken!

    • @keepingitrealwithe7323
      @keepingitrealwithe7323  2 года назад +2

      I am so so very sorry Debbie. My heart grieves for you. It is horrific. Be by his side as much as you are able. May you have the peace of God in the midst of such pain.

    • @lisajohnson7827
      @lisajohnson7827 2 года назад +2

      Prayers for you and your husband!

    • @christinewillfong9235
      @christinewillfong9235 2 года назад

      I’m laying next to my husband right now watching him sleep and hearing him breath. He was diagnosed with Glioblastoma on 5/14/22 and had surgery on 5/19/22 with successful tumor removal. After 6 weeks of radiation and chemo the most recent MRI shows that his turn or is back and more aggressive then what was expected. We were told yesterday there is nothing more they can do. I’m crushed and completely heartbroken. We will be celebrating our 35th wedding anniversary on 9/12. Thank you God for giving us time so that we can celebrate this milestone that I will CHERISH in my heart forever❤️ I will be 54 and a widow. I watch videos where young moms have lost their soulmate with young children to raise. People have lost love ones tragical with no time to prepare. God has provided us time to prepare so I am filled with complete GRATITUDE. This is NOT the way our storybook was supposed to end. What do I do? How do I move on? I trust in God as I am one of his children and I know he will not forsake me but satan is preying on my vulnerability😭🙏❤️👩‍❤️‍👨

  • @givemelovegivemepeaceonearth
    @givemelovegivemepeaceonearth 5 месяцев назад +1

    🕊️🤍🕊️

  • @itiiyt
    @itiiyt 2 года назад +2

    Any advice to caregivers ?

    • @keepingitrealwithe7323
      @keepingitrealwithe7323  2 года назад +3

      Hi Mia ☺ my advice to caregivers is: be patient with yourself ; be patient with the one you are caring for; savor every minute you can ; remember that they don't want to be sick or a burden ; do not be resentful ; let others help ; take a break when you need to otherwise you will break ; it is exhausting so don't be surprised, you do not have superpowers ; it is okay grieve a little bit daily bc the loss will come like a sledgehammer ; there will consistently be "new normals" ; hug longer hug tighter ; most of all walk in the spirit bc this brings the compassion and the Father heart of God to a whole other level - God Bless You and Keep You May His Face Shine Down Upon You in Graciousness and Peace - E

    • @itiiyt
      @itiiyt 2 года назад +2

      @@keepingitrealwithe7323 .
      Thank you , God is preparing me through your words.
      Thank you !

  • @Legittoquit1
    @Legittoquit1 Год назад

    Was it god?