I cannot thank you enough for the overwhelming support I got on my last video. I am so thankful for all of you and truly feel as if we are all in this fight together. And also thank you so much for 600 subscribers!! I seriously can’t thank you enough for all the love and support. I hope you all have a beautiful weekend💚
Thank you so much for sharing! You’ve really cast light on such an ambiguous disease. I’m beginning this journey with my daughter who is 19. We didn’t even have so much of the information that you’ve shared with us through our G.I. staff. At least now we feel better prepared about specific questions we can ask and also try to find someone that actually has some Gastro paresis knowledge and background to help guide us through this somewhat arduous journey🙏🏼🥰
You are so welcome! I am glad I was able to provide you information on this condition as your daughter is just starting her journey. This journey is tough, scary and confusing so I wish you nothing but the best in your journey with her. And yes it is so important to find someone with specific gastroparesis knowledge because then they will be aware of all the different types of treatments, medications, and surgeries for gastroparesis and also related syndromes to test for!
I love your videos so much and you genuinely brighten my day every time you post. Your content is amazing and I appreciate how vulnerable you are! So thank you! I hope you’re doing well and recovering all right!
oh my goodness this is such a sweet comment, this made my whole day. Thank you so so much, this means so much to me. I am doing a lot better since this video and I hope all is well with you!💕
Finding this video and seeing you had to go through all this after thinking you G Poem was gonna keep you going, this broke my heart. :( I am so sorry you had to go through all of this. I want to say again how much it means that with all you are going through, you share your journey with us all. This is EVERYTHING to me because right now I am able to relate so much. I learned more from your videos than you can imagine. I also am in FL. About to go to Mayo in 3 1/2 weeks. Scared to death! If I could talk to you, I would have SO many questions. Not one person in 8 years has hospitalized me, or run test or done any procedures yet. I am looking for answers but giving up hope. I watch you and your spirit and it is contagious. I am like, If she can keep going, SO CAN I! I could talk to you for days. Please please take care and I am wishing you nothing but the best! I have so many questions for ya! HUGS!!!
Aww I really appreciate your empathy, that means a lot to me and it's always helpful to know I am not going through this journey alone. This condition is so unpredictable and one minute you are fine and the next you are not. It is a lot to handle. That is so crazy that you have gone that long without any tests but I am so happy you got into Mayo and hopefully that will lead you to some answers. I am proud of you for continuing to fight through all of this. We are in this together and we will both keep going!! Thank you so much for this kind message, it is so comforting during this rough time. And feel free to message me on instagram with any questions you may have!! My username is kenna.krueger
Hi Kenna my name is Nellie I just had my gtube placed in yesterday. I’m in so much pain I have Dysphagia & weak esophageal peristalsis. I admire your happiness energy to share your life update. I hope you’re doing well I enjoy watching your vlogs. 🤗🌸
Hi Nellie! I wish you the best on your recovery from surgery. I remember that pain so well and it is rough but it does slowly get better. Thank you so much for your kind words and I wish you all the best!💚
Omg I feel so incredibly bad for you! The NG tube they put down you was extremely big! You should have been given a tiny thin one. When I get an NG tube it's always the really thin yellow ones. It's much less painful. That aside, I'm so glad I found your channel! Thank you for sharing all of this with us. Ps your roommate seems pretty awesome 😄
You're so brave going through all of this, I'm going to remind your strength as I try to get the g-poem . It's going to be crazy hard because where I live they don't do the gastric gammagraphy or know about the surgery , so I don't even have a diagnosis yet,.Thank your for making this disease visible and making me not give up. By the way, I really hope that you're feeling much better .❤️
Aww thank you so much that means a lot! I really hope you are able to find a way to get the surgery or a treatment that is able to help! I hope the more awareness that is brought to this condition the more people will realize how serious this condition is and that there needs to be more research done and treatments found for it because it is truly so miserable. We are in this together and thank you, I still have a long way to go but am feeling much better than I was when I was in the hospital. I am sending you all my best wishes❤️
@@KennaKrueger aww thank you so much , you're so kind.I will try so hard to have the surgery ,we all deserve to have a chance.I'm so glad that you're feeling better, step by step, I'm sure you will also find a way to kick this disease .
I found you yesterday and I’m in love with you??? Like, damn. I really appreciate your existence and I think you’re pretty great 😊 Hang in there dude!! You got this! Stay strong!! 💪💪💪
Hi, Kenna. My name is Sofia-Cristin (Sofia) I recently got diagnosed with Gastroparesis, too and my stomach has 72% food left in my stomach after four hours (according to the “test”) and I just wanna say for some reason your videos rlly comfort me. I’m supposed to get a tube on September 18th (NG for a few months but if I need something long-term I’m gonna need a surgical tube) and apparently my Gastroparesis was caused due to Anorexia Nervosa (I’ve had it since 11 and I turned 13 this year and I’m in inpatient rn for it but I also have to be in IP because I was at the lake this week with friends and I ended up almost drowning and was under the water for kind of a while which I do have some health side effects) and I am a bit anxious but at the same time, I kinda am a bit happy I’m going to recovery (normally you won’t get the incurable type of Gastroparesis due to Anorexia, but you still can which I did and it’s like super bad and I also have difficulty swallowing which isn’t due to GP so I have an Endoscopy on the Wednesday after next Wednesday. Once again, stay strong, Kenna! We got you and are on your side:)
Thank you for this. I found it really helpful. In the UK/NHS hospitals there are usually 4/6 beds in a bay & there is also usually mainly just 1 loo. I have a phobia about doing a no 2 (poo) when anyone else is around, so after my gastric bypass op 4 years ago I couldn’t go at all. I also couldn’t sleep.
Aw good you are so welcome! Omg that doesn’t sound like fun at all. I can’t imagine how that feels. I had a roommate for a couple hours the night I was doing my clean out and I was having a lot of anxiety because I also am scared of pooping with others around too so I did not enjoy that but to have 4-6 people omg. And hospitals are the worsttt place for trying to get sleep, I feel like you just feel so fatigued the whole time😫 you are so strong!!
I cannot thank you thank you enough For the I got on my video I am so thankful for all of you Ass Together And also Thank you So much for 600 Subscribers
As someone with ulceritive colitis who has had a good number of colonoscopies, I felt the "every time I lay back down, I feel like I have to poop" on a spiritual level, even when I'm not drinking prep sometimes a normal day is just like that too 🤣🤣
I have severe Gastroparesis myself and I’m curious what they did for pain management for you. I know there tends to be a concern about opioid pain medication slowing down the GI tract.
You deserve the support for.talking about pooping so much🤭 Glad your surgery went well and your home. Your boyfriend is a touch immature, but loyal and supportive which is the main thing. Look forward to watching your journey 👁
Watching this from hospital, been admitted again cause my potassium was so low. The dr I really don’t like is on for the weekend so that sucks, he doesn’t think gastroparesis is a thing and told me I need to be eating more potassium rich food (I vomit everything I eat) so eating is kinda the problem. To make things worse Auckland has gone back into lockdown so have to do this alone again. So frustrating!
Aww no I am so sorry to hear that, especially with the doctor not believing in GP. That is so crazy to me that doctors can believe that and that totally effects your care. I really hope you are able to be treated well while you’re there and I am so sorry you have to go through this alone. There were some really rough nights and mornings during my stay where I just cried because I hated being alone and sometimes the care was bad and I struggled standing up for myself and usually my boyfriend and mom are my really good advocates, so I can’t even imagine going through the whole hospital stay alone. I will be thinking of you and sending you all my best wishes and I really hope everything goes okay💚
Stacey can’t even imagine a dr not thinking GP is a thing. I’m so sorry your dealing with that. I don’t have GP. I have a tumor by my stomach and small intestine, basically causing the same symptoms as GP. So while I don’t have it, I understand it. I got my feeding tube in March of 2020. It gave me my life back. Praying you find answers! 💕
Sorry you have to deal with a doctor who lacks the knowledge and training to treat your health condition. You've had a gastric emptying test confirming your gastroparesis and digestive dysmotility, and the reports from that are in your medical record, and he still refuses to believe the scientific evidence of it? Are infusions an option for you? Sometimes people with digestive issues such as gastorparesis do better with infusions of nutrients they're deficient in, such as potassium and iron. Has any doctor tried medications with you to treat the gastroparesis? I've had great success on Mestinon, and it only costs about ten cents per pill: www.digestivedistress.com/novel-rx It can also treat fatigue, if that's also a factor for you: www.healthrising.org/blog/2016/06/17/mestinon-chronic-fatigue-vagus-nerve-stimulation-exercise/
I've gotten so use to NG tubes that I put my own in now. I've had so many of them. I have to use a pediatric ng tube because the adult ones are too big. Didn't they give you any pain meds after the surgery? If not that way not right
How long after the G-Poem did this happen? I had the G-Poem done on 5/27/22 and I’ve been even more miserable than before. I have lost even more weight since the surgery and getting weaker. I do see my gastroparesis gastro on Monday & cannot wait to see him. I’m hoping he can help or shed some light on why I feel this way. This disease is awful. I hope you’re doing better today. Congratulations on the engagement!!!! Also when r sweatshirts coming back in stock? I want one. Thx.
Hello. I have gastroparesis and am treated in Florida. I’m currently waiting on a doctors appointment to find out the next step in my journey. I have a gastric simulator but it’s dying and the pain and bloat is becoming unbearable. Thanks for the videos showing it can and will be okay. I’m so worried but u are a definite comfort for me 🥰 thank you.
I felt so bad for you kenna I’ve been hospital myself and I didn’t stay in I was too. Scared of hospitals my bowels are lazy too the problems could. Be linked 5 days with no loo I’m like 6 weeks now since my stomach is huge and I can’t eat so I’ve had to have picolax the only thing that works but it doesn’t work fully so have they said what they think is wrong with your stomach why it’s acting like there’s a block as my Bowels are lazy I don’t know how lazy my stomach is no results back yet it’s always more tests I feel bad on you in hospital over valentines you seem down bless you since this happened I understand as you have had everything missing now but you will get better well manageable your strong for going through this and have a lovely partner who’s a joker like mine but that’s what I like making fun of a bad situation I hope to see you more 💕💕💕💕get well kenna and rest love ❤️
Aww sorry it sounds like you are going through such a rough time! Having a slow GI system is so rough and makes you feel so crappy. And yes there are always so many tests and so many medications but I hope one of those tests will show something that is able to get you some better treatment. And I am definitely so thankful to have my boyfriend by my side through all of this and making me laugh on all the bad days! You get well and get some rest too!💗
@@KennaKrueger it’s life changing my stomach is huge right now there deciding if my lazy stomach is the problem the small bowel or large I’ve had test after test and the uk you always wait 3/6 months to find out it’s looking ok another test you just want to hear what all your medical issues are so you can get the treatment you need ..I have to take picolax tonight lucky me for tomorrow or the next day with me ...I’m glad I have my fella too he’s much needed ..it’s good he cheers y up on you bad days ...the top he made you was lovely ..I’m sending get well wishes for you ..I hope the two kitty’s are giving extra cuddles my pug is so stupid she senses pain but jumps on me even after I’ve had operations she’s a fool lol. get well kenna all the best from the uk 🇬🇧
That’s such a long wait and waiting for all these tests and results is so hard and frustrating! I am glad you have someone too that helps cheer you up! And haha my cats try jumping on my tube too but they have actually not been too bad around it which I was surprised because usually they play with everything. I am sending you all my best wishes too!💕
Yeah it is a long wait my surgeon is going end up with 3 emails about me one from my doctor then one from the head doctor in the doctors then an A+E doctor she seems certain of checking my small bowel my large is definitely an issue but if it’s both I have no clue and if it’s just the large they can fix it isn’t a nice fix but anything will do to live a better quality of life ...they may sense that they shouldn’t jump on them tubes my pug she’s to simple ...I hope your tests are done so much sooner than mine I have an op in 9 days to have my bladder device removed it used to be amazing and help me wee better but not anymore so I can stop setting alarms off in shops with this battery lol the tube you have are they leaving that till they get all the answers 💖
@@kerryhorrocks4453 The long wait is always such a hard part but definitely keep fighting for the care that you deserve! I really hope you are able to get answers soon so you are able to get a better quality of life. And yes for now we are keeping the tube in until we find more answers or better treatments because I am no where near able to take in enough nutrition by mouth.
Have you spoken to your gastro about adding tpn via a port for the added nutrition since the jejunum isn’t going to absorb as much that just the way it is. Mom to a daughter with gaseroparesis which has been DX we are fighting for the GJ tube and then the port with TPN. She also has POTS AND EDS as well as fluid in the lining of her heart as well as the living or both lungs and connecting tissue damage to god organs. Dairy free due to inability to process dairy proteins, allergies to soy and wheat not gluten or celiac. Recently we cannot keep her weight stabilized and she is having both tachycardia and bradycardia episodes where it used to be only Brady episodes. Stay strong hun you got this! Do as much research through reputable sources such as web md , other universities such as OHSU AND ANY other hospitals where they have articles written by well known gastroenterologist and are well known hospitals for extremely positive long s as well as short term outcomes. My heart hurts for you, but don’t take that as I pity you I know what you are going through as being a genetic illness my child inherited it from myself, my brother, my father and sadly the two letter were misdiagnosed due to developing ulcers prior to going to the doc. The rare cancer that got my dad at 48 is directly connected to gasteroparesisc but the common issue is, especially when my dad was DX with ulcerative colitis as well as my brother, they would see the ulcers and such and not like any further assuming they had already found the DX. My heart does go out to you, I see my 18 year old go spend one day having lunch and hanging out with friends only to come home and be so exhausted she cannot do much more than spend most of her time in bed which breaks my heart. Those your age should be out there enjoying life and full of energy and sometimes it’s just not the case. We have to push through but at the same time taking care of our health is above any of the rest as you can’t to anything for any one with no energy for you. Research the port and TPN (if you don’t already have those things) they deliver the nutrients into your body that the NJ/GJ feeds cannot provide alone. Not long term. Research and speak with your specialists about your energy levels etc. something seemingly as small as a vitamin D3 deficiency specifically D3 can halt the production of serotonin altogether. This happened to my daughter and it was terrifying! It took just months for a happy, energetic (even with all the health issues) child who was playing volleyball and going to public school to suddenly become suicidal and so depressed she couldn’t even get up. We went through hell because rather than listening to me and building her vD3. Levels back up first via infusions in the hospital they placed her on a hardcore psych med I knew was dangerous but they threatened me, didn’t even tell her actual doctor and even threatened me it I didn’t give her the medications they would call cps and have both my kids taken for failure to follow medical advice for the “safety” of a minor. This lead to my staying awake for 14 days straight attempting to watch her all night when she was not at school she the one night i fell sleep for an hour. She made an attempt that only failed thankfully due to being born so prematurely her arteries and vessels are very fragile and thank everything collapsed and sealed in both wrists. Had they not she wouldn’t be here today. Low and behold they listened to me finally, removed the mental health medications and gave vitamin D3 infusions and she has struggled like everyone with chronic illnesses here and there but NOTHING like what she and the rest of us went through that year. Plus stay strong, reach out for help when you need the extra support and try to remember there’s a light at the end of the ridiculously long max of healthcare tunnels. Just keep your chin up and enjoy as much wed you can when you can and don’t be afraid to admit and take time to relax when your body tells you it is time to sit down and chill or sleep. Take care my friend and I truly wish so much happiness and a remission of sorts if that’s the correct wording 😂. But honestly I do. Take care hun.
I was wondering if a feeding tube is mandatory for gastroparesis. I'm get a gastric emptying scan do determine if I have gastroparesis! Please reply if anyone has answers for me!
thanks for sharing all of this! I have GP too, and I was wondering if your endoscopy showed food just sitting in your stomach? I know you mentioned the CT showed food just sits there so I was curious what the scope showed?
You are so welcome! My endoscopy personally looked completely normal and did not show food sitting in my stomach but I also had not had any food over 24 hours prior to the test. But I do know for some people with GP, endoscopies do show food sitting in there!
You’re welcome! And trust me I wasn’t always this positive, it took awhile, a little over 2 years to learn how to accept and live with this condition and how to make the best of it. The first several months after my diagnosis were so hard on me mentally. Don’t be hard on yourself for not being able to be positive right now. It is a huge adjustment and positivity and optimism will come with time💕 my best tip right now is to try to find activities you love and that may help take your mind off the symptoms!
@@KennaKrueger how about ur partner how does he deal mine is scared cus they also may take my pancreas cus I also have chronic pancreatitis and if that happens it's a death sentence but without thet even he won't eat unless I eat and feels bad I can't sometimes this has been hard on him we have been together 15 yrs I always do everything for him I know this is alot to ask u and not even ur place to respond but if u have any tips please share id love to interview u if u ever wud be willing so I can document my story along with others to help anyone who may go thru this I also had addiction issues from pain meds that drs just prescribed to shut me up and it made it worse I know im rambling but I'm in shock I think
Hi I watch all your videos I just got my gastroperisis empty thingy done but I haven’t pooped in like 5 days and I’m very bloated and uncomfortable can you pls help me
It takes a lot of effort, after 3 weeks of doing it I was in missouri and in pain but to this day I'm still in missouri because I can't stand clear juices or even the smell of food it just makes me barf. But eating no solid food is better than having your pain tripled and I have enough pain do too Gastropresis and scoliosis. You will get there I promise you
Yes it takes so much effort and I am so sorry that is how it is going with you for food that is so frustrating, but I guess you are right it isn’t really worth the pain!
I cannot thank you enough for the overwhelming support I got on my last video. I am so thankful for all of you and truly feel as if we are all in this fight together. And also thank you so much for 600 subscribers!! I seriously can’t thank you enough for all the love and support. I hope you all have a beautiful weekend💚
How is your channel not famous 🥺 I love your vibe ❤️
omg you are so sweet thank you!💗
Yours and your boyfriend, I swear this is the sweetest relationship 💕💕💕 I love you two so much.
aww thank you so much that means a lot!!!
Thank you so much for sharing! You’ve really cast light on such an ambiguous disease. I’m beginning this journey with my daughter who is 19. We didn’t even have so much of the information that you’ve shared with us through our G.I. staff. At least now we feel better prepared about specific questions we can ask and also try to find someone that actually has some Gastro paresis knowledge and background to help guide us through this somewhat arduous journey🙏🏼🥰
You are so welcome! I am glad I was able to provide you information on this condition as your daughter is just starting her journey. This journey is tough, scary and confusing so I wish you nothing but the best in your journey with her. And yes it is so important to find someone with specific gastroparesis knowledge because then they will be aware of all the different types of treatments, medications, and surgeries for gastroparesis and also related syndromes to test for!
I love your videos so much and you genuinely brighten my day every time you post. Your content is amazing and I appreciate how vulnerable you are! So thank you! I hope you’re doing well and recovering all right!
oh my goodness this is such a sweet comment, this made my whole day. Thank you so so much, this means so much to me. I am doing a lot better since this video and I hope all is well with you!💕
Finding this video and seeing you had to go through all this after thinking you G Poem was gonna keep you going, this broke my heart. :(
I am so sorry you had to go through all of this. I want to say again how much it means that with all you are going through, you share your journey with us all.
This is EVERYTHING to me because right now I am able to relate so much.
I learned more from your videos than you can imagine.
I also am in FL. About to go to Mayo in 3 1/2 weeks. Scared to death! If I could talk to you, I would have SO many questions.
Not one person in 8 years has hospitalized me, or run test or done any procedures yet. I am looking for answers but giving up hope.
I watch you and your spirit and it is contagious. I am like, If she can keep going, SO CAN I!
I could talk to you for days. Please please take care and I am wishing you nothing but the best!
I have so many questions for ya! HUGS!!!
Aww I really appreciate your empathy, that means a lot to me and it's always helpful to know I am not going through this journey alone. This condition is so unpredictable and one minute you are fine and the next you are not. It is a lot to handle. That is so crazy that you have gone that long without any tests but I am so happy you got into Mayo and hopefully that will lead you to some answers. I am proud of you for continuing to fight through all of this. We are in this together and we will both keep going!! Thank you so much for this kind message, it is so comforting during this rough time. And feel free to message me on instagram with any questions you may have!! My username is kenna.krueger
The two of you are the cutest!!!!
Hi Kenna my name is Nellie I just had my gtube placed in yesterday. I’m in so much pain I have Dysphagia & weak esophageal peristalsis. I admire your happiness energy to share your life update. I hope you’re doing well I enjoy watching your vlogs. 🤗🌸
Hi Nellie! I wish you the best on your recovery from surgery. I remember that pain so well and it is rough but it does slowly get better. Thank you so much for your kind words and I wish you all the best!💚
Omg I feel so incredibly bad for you! The NG tube they put down you was extremely big! You should have been given a tiny thin one. When I get an NG tube it's always the really thin yellow ones. It's much less painful.
That aside, I'm so glad I found your channel! Thank you for sharing all of this with us.
Ps your roommate seems pretty awesome 😄
You're so brave going through all of this, I'm going to remind your strength as I try to get the g-poem . It's going to be crazy hard because where I live they don't do the gastric gammagraphy or know about the surgery , so I don't even have a diagnosis yet,.Thank your for making this disease visible and making me not give up. By the way, I really hope that you're feeling much better .❤️
Aww thank you so much that means a lot! I really hope you are able to find a way to get the surgery or a treatment that is able to help! I hope the more awareness that is brought to this condition the more people will realize how serious this condition is and that there needs to be more research done and treatments found for it because it is truly so miserable. We are in this together and thank you, I still have a long way to go but am feeling much better than I was when I was in the hospital. I am sending you all my best wishes❤️
@@KennaKrueger aww thank you so much , you're so kind.I will try so hard to have the surgery ,we all deserve to have a chance.I'm so glad that you're feeling better, step by step, I'm sure you will also find a way to kick this disease .
You are so welcome! And you are so right we all deserve a chance. Thank you so much and I am sure you will find a way to kick this disease too!💕
I found you yesterday and I’m in love with you??? Like, damn. I really appreciate your existence and I think you’re pretty great 😊
Hang in there dude!! You got this! Stay strong!! 💪💪💪
haha thank you so much, I really appreciate it!!
Hi, Kenna. My name is Sofia-Cristin (Sofia) I recently got diagnosed with Gastroparesis, too and my stomach has 72% food left in my stomach after four hours (according to the “test”) and I just wanna say for some reason your videos rlly comfort me. I’m supposed to get a tube on September 18th (NG for a few months but if I need something long-term I’m gonna need a surgical tube) and apparently my Gastroparesis was caused due to Anorexia Nervosa (I’ve had it since 11 and I turned 13 this year and I’m in inpatient rn for it but I also have to be in IP because I was at the lake this week with friends and I ended up almost drowning and was under the water for kind of a while which I do have some health side effects) and I am a bit anxious but at the same time, I kinda am a bit happy I’m going to recovery (normally you won’t get the incurable type of Gastroparesis due to Anorexia, but you still can which I did and it’s like super bad and I also have difficulty swallowing which isn’t due to GP so I have an Endoscopy on the Wednesday after next Wednesday. Once again, stay strong, Kenna! We got you and are on your side:)
Thank you for this. I found it really helpful.
In the UK/NHS hospitals there are usually 4/6 beds in a bay & there is also usually mainly just 1 loo.
I have a phobia about doing a no 2 (poo) when anyone else is around, so after my gastric bypass op 4 years ago I couldn’t go at all.
I also couldn’t sleep.
Aw good you are so welcome! Omg that doesn’t sound like fun at all. I can’t imagine how that feels. I had a roommate for a couple hours the night I was doing my clean out and I was having a lot of anxiety because I also am scared of pooping with others around too so I did not enjoy that but to have 4-6 people omg. And hospitals are the worsttt place for trying to get sleep, I feel like you just feel so fatigued the whole time😫 you are so strong!!
I cannot thank you thank you enough For the I got on my video I am so thankful for all of you Ass Together And also Thank you So much for 600 Subscribers
Thanks for sharing your life, love the realness of your vlogs😊 hope you get to feeling better!
Aww you’re too sweet thank you!!💗
As someone with ulceritive colitis who has had a good number of colonoscopies, I felt the "every time I lay back down, I feel like I have to poop" on a spiritual level, even when I'm not drinking prep sometimes a normal day is just like that too 🤣🤣
Omg that was such an annoying feeling😅 so sorry you know that all too well
I have severe Gastroparesis myself and I’m curious what they did for pain management for you. I know there tends to be a concern about opioid pain medication slowing down the GI tract.
I admire your positivity despite everything!! Best wishes hope you get better soon :)
Aww thank you so much!!💕
You deserve the support for.talking about pooping so much🤭 Glad your surgery went well and your home. Your boyfriend is a touch immature, but loyal and supportive which is the main thing. Look forward to watching your journey 👁
haha thank you
Watching this from hospital, been admitted again cause my potassium was so low. The dr I really don’t like is on for the weekend so that sucks, he doesn’t think gastroparesis is a thing and told me I need to be eating more potassium rich food (I vomit everything I eat) so eating is kinda the problem. To make things worse Auckland has gone back into lockdown so have to do this alone again. So frustrating!
Aww no I am so sorry to hear that, especially with the doctor not believing in GP. That is so crazy to me that doctors can believe that and that totally effects your care. I really hope you are able to be treated well while you’re there and I am so sorry you have to go through this alone. There were some really rough nights and mornings during my stay where I just cried because I hated being alone and sometimes the care was bad and I struggled standing up for myself and usually my boyfriend and mom are my really good advocates, so I can’t even imagine going through the whole hospital stay alone. I will be thinking of you and sending you all my best wishes and I really hope everything goes okay💚
Stacey can’t even imagine a dr not thinking GP is a thing. I’m so sorry your dealing with that. I don’t have GP. I have a tumor by my stomach and small intestine, basically causing the same symptoms as GP. So while I don’t have it, I understand it. I got my feeding tube in March of 2020. It gave me my life back. Praying you find answers! 💕
Sorry you have to deal with a doctor who lacks the knowledge and training to treat your health condition. You've had a gastric emptying test confirming your gastroparesis and digestive dysmotility, and the reports from that are in your medical record, and he still refuses to believe the scientific evidence of it?
Are infusions an option for you? Sometimes people with digestive issues such as gastorparesis do better with infusions of nutrients they're deficient in, such as potassium and iron.
Has any doctor tried medications with you to treat the gastroparesis? I've had great success on Mestinon, and it only costs about ten cents per pill:
www.digestivedistress.com/novel-rx
It can also treat fatigue, if that's also a factor for you:
www.healthrising.org/blog/2016/06/17/mestinon-chronic-fatigue-vagus-nerve-stimulation-exercise/
Thanks for the book recommendation.
You’re welcome!
I've gotten so use to NG tubes that I put my own in now. I've had so many of them. I have to use a pediatric ng tube because the adult ones are too big.
Didn't they give you any pain meds after the surgery? If not that way not right
I was in the hospital for gastroparesis over Valentine’s Day aswell then I went back in for a month a couple weeks later an nj was placed
aw I’m sorry you were in the hospital too, I hope the NJ is helping!
How long after the G-Poem did this happen? I had the G-Poem done on 5/27/22 and I’ve been even more miserable than before. I have lost even more weight since the surgery and getting weaker. I do see my gastroparesis gastro on Monday & cannot wait to see him. I’m hoping he can help or shed some light on why I feel this way. This disease is awful. I hope you’re doing better today. Congratulations on the engagement!!!! Also when r sweatshirts coming back in stock? I want one. Thx.
Get Better Soon!
Thank you!
@@KennaKrueger you are so welcome!
sending lots of love 💖
Thank you!❤️
Hello. I have gastroparesis and am treated in Florida. I’m currently waiting on a doctors appointment to find out the next step in my journey. I have a gastric simulator but it’s dying and the pain and bloat is becoming unbearable. Thanks for the videos showing it can and will be okay. I’m so worried but u are a definite comfort for me 🥰 thank you.
I felt so bad for you kenna I’ve been hospital myself and I didn’t stay in I was too. Scared of hospitals my bowels are lazy too the problems could. Be linked 5 days with no loo I’m like 6 weeks now since my stomach is huge and I can’t eat so I’ve had to have picolax the only thing that works but it doesn’t work fully so have they said what they think is wrong with your stomach why it’s acting like there’s a block as my Bowels are lazy I don’t know how lazy my stomach is no results back yet it’s always more tests I feel bad on you in hospital over valentines you seem down bless you since this happened I understand as you have had everything missing now but you will get better well manageable your strong for going through this and have a lovely partner who’s a joker like mine but that’s what I like making fun of a bad situation I hope to see you more 💕💕💕💕get well kenna and rest love ❤️
Aww sorry it sounds like you are going through such a rough time! Having a slow GI system is so rough and makes you feel so crappy. And yes there are always so many tests and so many medications but I hope one of those tests will show something that is able to get you some better treatment. And I am definitely so thankful to have my boyfriend by my side through all of this and making me laugh on all the bad days! You get well and get some rest too!💗
@@KennaKrueger it’s life changing my stomach is huge right now there deciding if my lazy stomach is the problem the small bowel or large I’ve had test after test and the uk you always wait 3/6 months to find out it’s looking ok another test you just want to hear what all your medical issues are so you can get the treatment you need ..I have to take picolax tonight lucky me for tomorrow or the next day with me ...I’m glad I have my fella too he’s much needed ..it’s good he cheers y up on you bad days ...the top he made you was lovely ..I’m sending get well wishes for you ..I hope the two kitty’s are giving extra cuddles my pug is so stupid she senses pain but jumps on me even after I’ve had operations she’s a fool lol. get well kenna all the best from the uk 🇬🇧
That’s such a long wait and waiting for all these tests and results is so hard and frustrating! I am glad you have someone too that helps cheer you up! And haha my cats try jumping on my tube too but they have actually not been too bad around it which I was surprised because usually they play with everything. I am sending you all my best wishes too!💕
Yeah it is a long wait my surgeon is going end up with 3 emails about me one from my doctor then one from the head doctor in the doctors then an A+E doctor she seems certain of checking my small bowel my large is definitely an issue but if it’s both I have no clue and if it’s just the large they can fix it isn’t a nice fix but anything will do to live a better quality of life ...they may sense that they shouldn’t jump on them tubes my pug she’s to simple ...I hope your tests are done so much sooner than mine I have an op in 9 days to have my bladder device removed it used to be amazing and help me wee better but not anymore so I can stop setting alarms off in shops with this battery lol the tube you have are they leaving that till they get all the answers 💖
@@kerryhorrocks4453 The long wait is always such a hard part but definitely keep fighting for the care that you deserve! I really hope you are able to get answers soon so you are able to get a better quality of life. And yes for now we are keeping the tube in until we find more answers or better treatments because I am no where near able to take in enough nutrition by mouth.
Iam in the hospital and I have that tube but in blue in the same place now
Have you spoken to your gastro about adding tpn via a port for the added nutrition since the jejunum isn’t going to absorb as much that just the way it is. Mom to a daughter with gaseroparesis which has been DX we are fighting for the GJ tube and then the port with TPN. She also has POTS AND EDS as well as fluid in the lining of her heart as well as the living or both lungs and connecting tissue damage to god organs. Dairy free due to inability to process dairy proteins, allergies to soy and wheat not gluten or celiac. Recently we cannot keep her weight stabilized and she is having both tachycardia and bradycardia episodes where it used to be only Brady episodes. Stay strong hun you got this! Do as much research through reputable sources such as web md , other universities such as OHSU AND ANY other hospitals where they have articles written by well known gastroenterologist and are well known hospitals for extremely positive long s as well as short term outcomes. My heart hurts for you, but don’t take that as I pity you I know what you are going through as being a genetic illness my child inherited it from myself, my brother, my father and sadly the two letter were misdiagnosed due to developing ulcers prior to going to the doc. The rare cancer that got my dad at 48 is directly connected to gasteroparesisc but the common issue is, especially when my dad was DX with ulcerative colitis as well as my brother, they would see the ulcers and such and not like any further assuming they had already found the DX. My heart does go out to you, I see my 18 year old go spend one day having lunch and hanging out with friends only to come home and be so exhausted she cannot do much more than spend most of her time in bed which breaks my heart. Those your age should be out there enjoying life and full of energy and sometimes it’s just not the case. We have to push through but at the same time taking care of our health is above any of the rest as you can’t to anything for any one with no energy for you. Research the port and TPN (if you don’t already have those things) they deliver the nutrients into your body that the NJ/GJ feeds cannot provide alone. Not long term. Research and speak with your specialists about your energy levels etc. something seemingly as small as a vitamin D3 deficiency specifically D3 can halt the production of serotonin altogether. This happened to my daughter and it was terrifying! It took just months for a happy, energetic (even with all the health issues) child who was playing volleyball and going to public school to suddenly become suicidal and so depressed she couldn’t even get up. We went through hell because rather than listening to me and building her vD3. Levels back up first via infusions in the hospital they placed her on a hardcore psych med I knew was dangerous but they threatened me, didn’t even tell her actual doctor and even threatened me it I didn’t give her the medications they would call cps and have both my kids taken for failure to follow medical advice for the “safety” of a minor. This lead to my staying awake for 14 days straight attempting to watch her all night when she was not at school she the one night i fell sleep for an hour. She made an attempt that only failed thankfully due to being born so prematurely her arteries and vessels are very fragile and thank everything collapsed and sealed in both wrists. Had they not she wouldn’t be here today. Low and behold they listened to me finally, removed the mental health medications and gave vitamin D3 infusions and she has struggled like everyone with chronic illnesses here and there but NOTHING like what she and the rest of us went through that year. Plus stay strong, reach out for help when you need the extra support and try to remember there’s a light at the end of the ridiculously long max of healthcare tunnels. Just keep your chin up and enjoy as much wed you can when you can and don’t be afraid to admit and take time to relax when your body tells you it is time to sit down and chill or sleep. Take care my friend and I truly wish so much happiness and a remission of sorts if that’s the correct wording 😂. But honestly I do. Take care hun.
I was wondering if a feeding tube is mandatory for gastroparesis. I'm get a gastric emptying scan do determine if I have gastroparesis! Please reply if anyone has answers for me!
thanks for sharing all of this! I have GP too, and I was wondering if your endoscopy showed food just sitting in your stomach? I know you mentioned the CT showed food just sits there so I was curious what the scope showed?
You are so welcome! My endoscopy personally looked completely normal and did not show food sitting in my stomach but I also had not had any food over 24 hours prior to the test. But I do know for some people with GP, endoscopies do show food sitting in there!
@@KennaKrueger I’m suffering from Gastroparesis also!
@@abbykuusisto4641 aw so sorry you know what this is like too, I wish you all the best and you are not alone!
@@KennaKrueger We’re in this fight together!
Yes we are!
I almost got the feeding tube
Just diagnosed after 22yrs of hell but I have pyloroplasty in next 2 wks so nervous
I am glad you finally have a diagnosis. It sucks but I am happy you now probably have more treatment options. Good luck!
@@KennaKrueger thank u I wish I cud be as positive as u 💓
You’re welcome! And trust me I wasn’t always this positive, it took awhile, a little over 2 years to learn how to accept and live with this condition and how to make the best of it. The first several months after my diagnosis were so hard on me mentally. Don’t be hard on yourself for not being able to be positive right now. It is a huge adjustment and positivity and optimism will come with time💕 my best tip right now is to try to find activities you love and that may help take your mind off the symptoms!
@@KennaKrueger I'm a youtuber as well I have 9k subs and will be linking ur videos to my vids about it to help u grow u deserve it for helping ppl
@@KennaKrueger how about ur partner how does he deal mine is scared cus they also may take my pancreas cus I also have chronic pancreatitis and if that happens it's a death sentence but without thet even he won't eat unless I eat and feels bad I can't sometimes this has been hard on him we have been together 15 yrs I always do everything for him I know this is alot to ask u and not even ur place to respond but if u have any tips please share id love to interview u if u ever wud be willing so I can document my story along with others to help anyone who may go thru this I also had addiction issues from pain meds that drs just prescribed to shut me up and it made it worse I know im rambling but I'm in shock I think
Hi I watch all your videos I just got my gastroperisis empty thingy done but I haven’t pooped in like 5 days and I’m very bloated and uncomfortable can you pls help me
I really love Three Little Words. Have you read the sequel?
It was such a good book! And no I haven’t I didn’t know there was a sequel I will have to check it out!
@@KennaKrueger Yes! It is called Three More Words
@@katieprice4906 Thank you!
Do you like the feeding tube
Joanna eye red lunch big trouble
Hey I’m waiting for an appointment in bad pain I’ve been given zofran that helps tho
Aww I am so sorry you in in pain right now but I am glad that zofran is able to relieve some of it. Zofran has saved me on multiple occasions!
I haven't had a single solid food in a year and 4 months
That is such a long time I honestly don’t know how you do it, I am still having a hard time coping not being able to eat many foods
It takes a lot of effort, after 3 weeks of doing it I was in missouri and in pain but to this day I'm still in missouri because I can't stand clear juices or even the smell of food it just makes me barf. But eating no solid food is better than having your pain tripled and I have enough pain do too Gastropresis and scoliosis. You will get there I promise you
Yes it takes so much effort and I am so sorry that is how it is going with you for food that is so frustrating, but I guess you are right it isn’t really worth the pain!
Gastroparesis is the new thing.
Just an FYI, having a GJ tube placed is NOT surgery, It's a medical procedure. As a nurse, you should know that.
Nope
@@thelittlesucculent8335 Yep