Mary, I just rewatched an old vlog about you throwing up your J tube (I know, not a memory you want to revisit!)But I'm almost in tears every time I watch a vlog now because if anyone deserved a break, it's you. And you're eating candy from gas stations, helping move couches...MARY! God is so good. He was good then, when He held you through the hard times, and He is good now in this time of hope and improvement. I consider you a friend through these vlogs (though you don't know me at all!) and would love to meet you one day and give you a big ol hug. Love, a twenty something aspiring child life specialist in south carolina
I wonder if those deep rumbles are your body truly getting better and trying to clear that super deep mucus you've never fully been able to clear since getting on the Vertex med??
Somehow God is using you to honestly speak to me at just the right moments. I am facing horrible unknowns and road blocks in my medical journey and fight to regain some quality of life. Thank you again for the words that helped salvage my day. As always ❤️ you guys. Prayers for health and safety on your trip.
My devotion yesterday, said "Sometimes our waiting is a short period. We may, on the other hand, be kept waiting for a long time. But dare not move until He moves us). I have a hard time remembering that. 😀 Psalm 37:23 If the Lord delights in a man's way, he makes his steps firm. Keep trusting in the Lord to move you mentally, physically and spiritually where He wants you to be. Hugs
This is just what I needed to hear. So many unknowns right now. My dad is in Kidney failure but is stable so no dialysis right now. Also going into liver failure and an enlarged spleen. Has diabetes which in turn has caused Kidney issues. He has had a cathider since June and will probably become a permanent fixture of his every day life. He has been in either a hospital or rehab unit for 7 weeks now. I am always asking questions and fighting for answers. I know God has a plan but I hope his plan is to keep my dad around his family for many more years.
It’s so comforting to know that even though things are unknown to us, those things are known by a loving Father and he has a good plan! Thank you two for sharing with us!❣️
Hi Mary, my mom is a diabetic and I know your not but I thought this tip might help you and others. Quinoa raises her blood sugar and in the vlogs your saying your blood sugar keeps dropping possibly due to the medication. Quinoa is very easy to make in big batches and if your at home and pre-treating and not needing to get something into your body ASAP, I think it may be worth a shot. Hope this helps and so excited to see how you decorate your guy’s new house!
Hi Frey Life, I never commented before but on this video I just had to, because I wanted you to know how much God used you to speak into my life. My husband and I are facing some big uncertainties at the moment and I was pretty stressed out about them. Your videos usually help me to have a different perspective, but today was special since, even though the circumstances are different, there are similarities and what you said encouraged me so much. So thanks for sharing your life with us.
I am very grateful that through all these weird timings your move is currently no longer an emergency move! Thank you very much for sharing and save travels! Susanne 🤗
I so enjoy your blog! My health story is with MS but I can so relate. My drug trial has had such a huge impact on me enjoying and participating life! You go girl!
I wanna hug you Mary!!! you are doing so well on vertex, your encouraging words are helping so many people!!! Love how you put God in all your thoughts!!
Mary this may be weird but I have been watching you for a short time but I feel so close to you guys! I pray so hard and cry alot for you I feel so guilty that I can breath and dont deal with terrible lung problems I cant fix you but I can be a friend and be there if you ever need an extra ear I love you and Peter and Ollie when I see your videos everyday my heart smiles Mary you are strong brave beautiful and such a blessed servant of God! If you ever come to Florida I live in a little horse town called Ocala 45 minutes from the ocean!! Come visit we have plenty of room for you beautiful people ! I love you guys prayers...🙏🙏🙏
I am so happy that you are improving on this medication. You and Peter truly are blessed to have all this falling into place for you. Enjoy feeling a little healthier.
My family and I are walking through some unknowns right now. Stuff that I myself still need to allow myself to process. We have things in a God holding pattern, but I have so many unanswered questions. Please send prayers our way that things will become clearer and options will be known. Thank you Peter, Mary, and Ollie Boy . . . thank you for the laughs and the God lead vlogs
I am going through several major unknown. Nothing. I am so lost. You said some very positive thing to think on, to get me through this. I just need prayers.
So glad you are responding well to this new medication. You look like you feel better and that’s great. Stay blessed and give Ollie a ear scratch for me 🥰
Your channel is so uplifting, I love that you're so positive and praise God through the good times and bad times. May God continue to bless you, and keep his healing hand over Mary. Blessings!! 🙏🙏
I hope you are moving soon because you packed all of you living room and dining room furniture. Loving the new house, can't wait until you are totally moved in.
So happy for you guys!! I leave Sunday for a week long road trip from Kansas to toledo Ohio to see one of the nations top specialists for dysautonomia and POTs. This is my 3rd year going, then I’m managed by a somewhat local doctor in between. Hoping for some answers to new problems I’m having. Prayers starting Sunday and ending the next Sunday for travel safety and prayers on this coming Thursday for the appointment would be so appreciated!
Our Lord is going to take us where we need to be when we need to be there. You are exactly where you are suppose to be in life right now. His plan is perfect. You are a princess, a daughter of a King. You are loved beyond measure. Your faith is obviously strong, I mean, you are married to a Pastor. lol Love you both! Two of my favorite songs when I get a little down are "I Am Not Alone" and "Healer," both sang by Kari Jobe. I particularly love her singing because she is so spiritual. You can feel and see the Holy Spirit moving through her. I will continue to pray that this new medicine works it miraculous healing on you along with the Lord's healing hands!
We make decisions in the moment with the information we have at that moment...and God is so great in showing up and showing His faithfulness in those moment! So excited for the Frey Life journey ahead!
WOW!!! Vertex is working wonders, before it you could not have this long of a conversation without coughing. I am so happy that you are doing better and you get to embrace your move. :)
Drink, drink, drink....Water Mary, I go to the hospital for surgery the 28th. I’m going to be there a while, but while there, I’m going to ask for the portable puke bags. They are even stackable! I carry them or have one with me where ever I go. Mary, hun you desperately need something. You can put quite a few in your glove box, they are stackable ...but oh what a difference this will make in your life! And your new home, your wood floors...the acid and stuff in our vomit can permanently stain your floors. With you coughing less...this is AWESOME!!! Just in case though, better safe than 😐 sorry. I love ya girl! Please don’t take what I say in a bad way, or negative way..if you prefer to not have anything and just do how you always have and your not bothered by it, then so be it. Just know I mean NO disrespect!
I have hEDS POTS MCAS & have to keep hydrated but also salts/electrolytes to keep the fluid in long enough. Too excessive water etc without body having enough salts will have opposite effect, it can be dangerous & can also cause a sort of internal drowning effect. Wonder what advice hosp has given for you on this Mary. Loving seeing your health improvments 🙌😁 it's truely an amazing drug. Makes me wonder after looking up how the drug works, if Vertex could come up with something simarlar to fix EDS/HSD/Marfans etc (connective tissue disorders) the faulty production of the collagen/cells (from others research sure it would need to involve polysaccharides). Vascular type EDS (& knowing the faulty genes for it helps) has to be a priority as thats always life shortening. Sending healing hugs, 🙏 & spare 🥄's (#SpoonTheory) from 🇬🇧, although seems the drug has given you an extra truck load already, long may it last. Maybe pass them onto Peter 🤣 💞
Your emotional strength gives me the strength I need when I am low. I have Mitochondrial Disease MNGIES type, and I suffer from intermittent gastroparesis and all the side effects from that, extensive fatigue that is debilitating, muscle pain that I feel in my bones, POTS, and disautonomia, including fevers almost every day. I have 3 children and when I can’t take proper care of them, let alone take care of myself, I feel so guilty and depression sinks in. My husband is like Peter, happy to do anything and everything for me and the kids and supports me emotionally, but sometimes it’s just so hard to get through the day. Today I was supposed to see my GI doc because of pretty strong bloating/distention along with bad tenderness on my right lower quadrant. But I was actually too sick to go to the doctor. Most people find that counter intuitive but I know you get it. Sometimes it’s just too hard to get dressed, brush teeth, and drive there. Not to mention the waiting room, and the probability that he would send me for further testing. I just napped and hid under the covers. I will try another day!
Peter is wearing birthday week shirt!!! That color is so fun and actually looks good on you Peter! Praying for a smooth transition to NC and so glad to see Gods plan in action and how everything works out for good!
During the week at Duke you described about how the transplant program will require work-outs and exercise. Both the medication and the amount of physical effort you're doing towards this move are supporting that in the best way. Thank you for sharing this experience. I often have difficulty having the faith that I will be in the state I need to be in when the time comes, and your thoughts on this are tremendously strengthening. All the blessings!!
Usually i skip everyones intros but i love yalls so much! Praying for you guys while on this tough journey. God will guide you in the best way possible! Sending love and positive vibes!!
This is great timing since you dont want to put off the move until Mary is super sick. Great that the meds are working or the move would have been a lot harder.
This new med seems to be doing you really good! I can tell just by looking at you that you are feeling better because you seem more energized and no fever cheeks!
My heart is swelling with love, and amazement of your endurance and your snack choices🤣🤣 I think it might just bust. Every step y’all have taken has just falling together for a wonderful God-given path that he wants you guys on. I want to thank you for allowing us to become your friends and follow y’all and actually see Our Heavenly Father at work.❤️❤️❤️😃😃😃
God be with Mary, Peter, and Ollie as they travel. May the Lord bless and keep you guys. Sounds like the doctor at Duke is a very kind doctor. When the time comes, you’re going to be in awesome hands! I have to say, you look better than you have in ages since you started Vertex! It really shows! I will be praying for you hon!
I recently found out that your body absorbs water & is better at hydrating you when you have some food like at least a snack in your stomach. I hope that helps you, Mary. I'm glad you're still able to continue on Vertex.
God is so good, helping you every step of the way, even when you said when Mary's health was declining, that prompted you to find a house that much sooner, then the new medication came very soon after to help you Mary and enjoy this move, amazing work that God does for all of us, and sometimes we don't even realize it. And yay, you don't have to unload and load the Uhaul, another blessing. :-) Have a safe trip, sending my love and hugs to the three of you, see you tomorrow!
Oh so glad your liver is doing well! My sister was on meds and the doctors did not follow up on blood work.. she went into acute liver failure within a few weeks. She was blessed with a liver donor but... as a family we are so angry at the doctors and lack of support.
My goodness I am so happy for you both. I teared up when Mary said she helped with the couch. LOL That is such an answer to prayer. God is good. I was hoping Uhaul would do that. It makes more sense. Have fun in Maryland!
Just thought I'd offer hopefully a helpful moving suggestion that might make it easier... they have these pods. You get it delivered to your house, pack it up and they move your pod to your new house so you don't have to make a million trips back and forth... I've never personally used it but it looks like a really cool solution if you need something like that.
great news about no trailer swappage! i was worried for you! so relieved that Mary is doing so well on this new medication. Great timing for your move! must be a God thing! best wishes!
Mary I also had to increase my water intake by almost 1qt a day on Symdeko, I also had to increase my salt a little too. My sugars ran lower consistently in the mornings most of the time. I'm so happy it's helping you. It has helped me, and a feel blessed by God for this drug.
Hi Guys , So glad you are traveling with snacks !! Such an important part of any really good road trip !! Also , thanks for the info. I think the love and faith you guys share plays such a huge roll in both your lives. , If something did not go as planed , like finding the perfect house , well you would make what you found the perfect house . You folks play life that way too , I have to believe that your love and faith and strength in each other has this really super huge part in what you are able to do. I have seen really great times and I have seen not so great times , but your are always able to push through. Like packing the trailer , you were so methodic in placing everything just right , even knowing you will have to unload it , but no you don`t have to unload it. I wonder what would have happened if you had the mind set to load the trailer and when it was full , it was full , that is it. I remember you guys planning the trailer packing in your living room !! , You guys get where I am coming from , in other words , knowing you would have to unload it , did not bother you , but now you don`t have to unload it. Packing that trailer is your life !! If that makes any sense and I hope it does. You can find the happiness in the sadness , so glad you both are happy , God knows you both deserve it. Take care , travel safe , even if it means getting there late. Keep Ollie hydrated and safe. See you tomorrow thanks for the vlog. God bless , Gary
So, so happy to hear that all is going well with the new meds :) Sending love and hugs as always. Hope you have a lovely birthday week and a great time seeing family ❤️
So happy for you that it continues to help your body....I am still waiting for that wonderful call! 😂 God says you are not patient enough yet lmao 🌻🌻. Safe travels and Happy Happy Birthday on Monday Mary 🎂🎂🎂🎉
I think it is a wise moving now ..nothing worse then trying to move, when you are in the pits of really bad health .. I know God has all things in control, he is giving you this chance and hopefully a long long time of this peace and better health with this med (everything seems perfect timing for sure) .
Stiffarming that's our new word to hold on to!! Mary sorry for your bad morning but it seems like you have more energy and feel better !!hi Ollie Peter take care of everyone, remember positive thoughts love and prayers always
Soooo excited to see more footage of your beautiful families and your new house!!!! Ps: Where is your doggy bag holder (on back of car seat) from? I love it!
Mary, you were in the mood for nuts during your trip! I'm so happy to hear that your results are good thus far. I pray that they stay that way. It's so good to hear and see that a drug is doing a good job in giving you more freedom to do some things that were not as reachable for you previously. I know it doesn't take away the disease but in helping to make daily life with it easier that is an awesome achievement. Praying for blessings for you Peter and Ollie
Woah!! You know how to road trip...those snacks! Makes me think of all the road trips I took with my kids and letting them pick out snacks when we stopped for gas...fun times
2nd response .. Mary, I don't have CF. I am challenged with something else. For dehydration issue, you may want to have ADH tested if it wasn't. You probably have to be careful being too mushy but I will share what I do. I have to hydrate lots first thing in the morning - lots before noon. I have to be liberal with salt. Also, it helps me with blood draws if I hydrate well the day before. Much love and prayers. Take care you two.
Next time you are on 84 and looking for food I highly reccomend Rein's Deli in Vernon, CT. It's off the highway before Manchester. Amazing chicken salad and half-hour pickles!
Happy travels! Glad you are feeling great. Side note though Mary.... PLEASE don't leave any medication you drop on the ground. Any child could pick that up and swallow it or any animal could do the same. You just never know 😉
I really needed to hear what you had to say tonight💜 I've been struggling for the past 2 weeks trying to figure out what God has in mind for me. Having a rare medical condition, then being discharged from my primary care provider for a mistake that should never have happened, but did...I was medically abandoned for 2 weeks, and now I have 30 more days with my primary care physician.. but I'm not sure if I want to go back. His staff called me with diagnostic results that were crushing to me and should never have been told to a patient over the phone. I know my condition is far more complicated than my dr is comfortable with, as he's reminded me every time I've seen him how complicated I am...I have Ehlers Danlos Syndrome! He's a small town dr. It's time for God to lead me elsewhere. ✝️💜🦓💪
Sorry to hear (I'm a 🦓 across the pond) hope you can get to see an EDS expert (yes know short on the ground) or poss Skype/vid call, I'm starting to hear some do which is much needed. Hope your in good EDS soc media circles that can support & advice. I've found a great bunch on twitter that inc EDS aware medics inc those who have it. Sending gentle hugs 🤗
So Pleased that the Trial Medication is making such a Blessed difference for Both of you.. And Excited to see your New Chapters Unfold in your New Home!! One Question though.. As well as RUclips and the Frey Life Merch do you guys have an Update on Peters Transition as a Church Pastor like as well as itinerant preaching will Peter be Looking for a New Pastors in a new Home Church or does Peter have other plans?
I have respiratory failure and I didn't have to wear my oxygen today and I walked a longer distance. I'm doing better too.
How nice
Ebony Lowe aww I’m sorry I hope u get better and praise the lord that u didn’t have to wear ur oxygen today
Hey ebony u can follow me at the parks family
Mary, I just rewatched an old vlog about you throwing up your J tube (I know, not a memory you want to revisit!)But I'm almost in tears every time I watch a vlog now because if anyone deserved a break, it's you. And you're eating candy from gas stations, helping move couches...MARY! God is so good. He was good then, when He held you through the hard times, and He is good now in this time of hope and improvement. I consider you a friend through these vlogs (though you don't know me at all!) and would love to meet you one day and give you a big ol hug. Love, a twenty something aspiring child life specialist in south carolina
I wonder if those deep rumbles are your body truly getting better and trying to clear that super deep mucus you've never fully been able to clear since getting on the Vertex med??
My goodness , Mary. That's the longest you've been able to talk to us without coughing in such a long time. Wow ! Congrats .Travel safe.
Somehow God is using you to honestly speak to me at just the right moments. I am facing horrible unknowns and road blocks in my medical journey and fight to regain some quality of life. Thank you again for the words that helped salvage my day.
As always ❤️ you guys. Prayers for health and safety on your trip.
Kimberly Blizzard keep hanging in there.
My devotion yesterday, said "Sometimes our waiting is a short period. We may, on the other hand, be kept waiting for a long time. But dare not move until He moves us). I have a hard time remembering that. 😀 Psalm 37:23 If the Lord delights in a man's way, he makes his steps firm. Keep trusting in the Lord to move you mentally, physically and spiritually where He wants you to be. Hugs
I love how Ollie is looking at you when your showing what snacks you got. He's like..."where's mine?". So glad the new medication is helping you!
God gives us what we need when we need it amen you have blessed my life in so many ways thank you❤🤗
It's so true! Even when we don't feel that way in a certain moment of time
This is just what I needed to hear. So many unknowns right now. My dad is in Kidney failure but is stable so no dialysis right now. Also going into liver failure and an enlarged spleen. Has diabetes which in turn has caused Kidney issues. He has had a cathider since June and will probably become a permanent fixture of his every day life. He has been in either a hospital or rehab unit for 7 weeks now. I am always asking questions and fighting for answers. I know God has a plan but I hope his plan is to keep my dad around his family for many more years.
It’s so comforting to know that even though things are unknown to us, those things are known by a loving Father and he has a good plan! Thank you two for sharing with us!❣️
Hi Mary, my mom is a diabetic and I know your not but I thought this tip might help you and others. Quinoa raises her blood sugar and in the vlogs your saying your blood sugar keeps dropping possibly due to the medication. Quinoa is very easy to make in big batches and if your at home and pre-treating and not needing to get something into your body ASAP, I think it may be worth a shot. Hope this helps and so excited to see how you decorate your guy’s new house!
Just found out today that we get to move!! Finding the right place is such a blessing, as you well know. Please be careful driving!!
Hi Frey Life, I never commented before but on this video I just had to, because I wanted you to know how much God used you to speak into my life. My husband and I are facing some big uncertainties at the moment and I was pretty stressed out about them. Your videos usually help me to have a different perspective, but today was special since, even though the circumstances are different, there are similarities and what you said encouraged me so much. So thanks for sharing your life with us.
Yay so thankful that your liver is handling this new medication so well! Praise God!
I am very grateful that through all these weird timings your move is currently no longer an emergency move! Thank you very much for sharing and save travels! Susanne 🤗
I’m so happy that your health is doing better. I’m praying it only gets better.
I love that, 'count your blessings ' some times its hard to remember to do just that. Safe travels
I so enjoy your blog! My health story is with MS but I can so relate. My drug trial has had such a huge impact on me enjoying and participating life! You go girl!
I wanna hug you Mary!!! you are doing so well on vertex, your encouraging words are helping so many people!!! Love how you put God in all your thoughts!!
Mary this may be weird but I have been watching you for a short time but I feel so close to you guys! I pray so hard and cry alot for you I feel so guilty that I can breath and dont deal with terrible lung problems I cant fix you but I can be a friend and be there if you ever need an extra ear I love you and Peter and Ollie when I see your videos everyday my heart smiles Mary you are strong brave beautiful and such a blessed servant of God! If you ever come to Florida I live in a little horse town called Ocala 45 minutes from the ocean!! Come visit we have plenty of room for you beautiful people ! I love you guys prayers...🙏🙏🙏
I am so happy that you are improving on this medication. You and Peter truly are blessed to have all this falling into place for you. Enjoy feeling a little healthier.
My family and I are walking through some unknowns right now. Stuff that I myself still need to allow myself to process. We have things in a God holding pattern, but I have so many unanswered questions. Please send prayers our way that things will become clearer and options will be known. Thank you
Peter, Mary, and Ollie Boy . . . thank you for the laughs and the God lead vlogs
I am going through several major unknown. Nothing. I am so lost. You said some very positive thing to think on, to get me through this. I just need prayers.
Mary & Peter I’m happy that you had positive results to share and that you are excited about your upcoming move. You three are the sweetest family! ❤️
So glad you are responding well to this new medication. You look like you feel better and that’s great. Stay blessed and give Ollie a ear scratch for me 🥰
Your channel is so uplifting, I love that you're so positive and praise God through the good times and bad times. May God continue to bless you, and keep his healing hand over Mary. Blessings!! 🙏🙏
You guys are so inspiring!! I love watching your videos and look forward to them everyday ❤️❤️ Continue doing what you do and being you!
You can see how much they love each other in their videos
When you know you are following God's Path for you. Congratulations on your progress in Joy!
I hope you are moving soon because you packed all of you living room and dining room furniture. Loving the new house, can't wait until you are totally moved in.
So happy for you guys!! I leave Sunday for a week long road trip from Kansas to toledo Ohio to see one of the nations top specialists for dysautonomia and POTs. This is my 3rd year going, then I’m managed by a somewhat local doctor in between. Hoping for some answers to new problems I’m having. Prayers starting Sunday and ending the next Sunday for travel safety and prayers on this coming Thursday for the appointment would be so appreciated!
Our Lord is going to take us where we need to be when we need to be there. You are exactly where you are suppose to be in life right now. His plan is perfect. You are a princess, a daughter of a King. You are loved beyond measure. Your faith is obviously strong, I mean, you are married to a Pastor. lol Love you both! Two of my favorite songs when I get a little down are "I Am Not Alone" and "Healer," both sang by Kari Jobe. I particularly love her singing because she is so spiritual. You can feel and see the Holy Spirit moving through her. I will continue to pray that this new medicine works it miraculous healing on you along with the Lord's healing hands!
We make decisions in the moment with the information we have at that moment...and God is so great in showing up and showing His faithfulness in those moment!
So excited for the Frey Life journey ahead!
WOW!!! Vertex is working wonders, before it you could not have this long of a conversation without coughing. I am so happy that you are doing better and you get to embrace your move. :)
I keep a full size box of tissues in the glove compartment. A bag of wipes under the seat might be helpful as well. Both can come in very handy!
Drink, drink, drink....Water
Mary, I go to the hospital for surgery the 28th. I’m going to be there a while, but while there, I’m going to ask for the portable puke bags. They are even stackable! I carry them or have one with me where ever I go. Mary, hun you desperately need something. You can put quite a few in your glove box, they are stackable ...but oh what a difference this will make in your life! And your new home, your wood floors...the acid and stuff in our vomit can permanently stain your floors. With you coughing less...this is AWESOME!!! Just in case though, better safe than 😐 sorry.
I love ya girl!
Please don’t take what I say in a bad way, or negative way..if you prefer to not have anything and just do how you always have and your not bothered by it, then so be it. Just know I mean NO disrespect!
I have hEDS POTS MCAS & have to keep hydrated but also salts/electrolytes to keep the fluid in long enough. Too excessive water etc without body having enough salts will have opposite effect, it can be dangerous & can also cause a sort of internal drowning effect. Wonder what advice hosp has given for you on this Mary. Loving seeing your health improvments 🙌😁 it's truely an amazing drug. Makes me wonder after looking up how the drug works, if Vertex could come up with something simarlar to fix EDS/HSD/Marfans etc (connective tissue disorders) the faulty production of the collagen/cells (from others research sure it would need to involve polysaccharides). Vascular type EDS (& knowing the faulty genes for it helps) has to be a priority as thats always life shortening. Sending healing hugs, 🙏 & spare 🥄's (#SpoonTheory) from 🇬🇧, although seems the drug has given you an extra truck load already, long may it last. Maybe pass them onto Peter 🤣 💞
You seem so much better. I hope and pray you continue to improve.
Your emotional strength gives me the strength I need when I am low. I have Mitochondrial Disease MNGIES type, and I suffer from intermittent gastroparesis and all the side effects from that, extensive fatigue that is debilitating, muscle pain that I feel in my bones, POTS, and disautonomia, including fevers almost every day. I have 3 children and when I can’t take proper care of them, let alone take care of myself, I feel so guilty and depression sinks in. My husband is like Peter, happy to do anything and everything for me and the kids and supports me emotionally, but sometimes it’s just so hard to get through the day. Today I was supposed to see my GI doc because of pretty strong bloating/distention along with bad tenderness on my right lower quadrant. But I was actually too sick to go to the doctor. Most people find that counter intuitive but I know you get it. Sometimes it’s just too hard to get dressed, brush teeth, and drive there. Not to mention the waiting room, and the probability that he would send me for further testing. I just napped and hid under the covers. I will try another day!
Have you guys listened to NeedToBreathe? If not you should! They are an amazing Christian band from North Carolina
Need to breathe is out of South Carolina...about ten miles from me
@@melindahfreedom101 dang, whoops
Either way, amazing band!!!
So happy about your liver Mary. Safe and enjoy trip guys, so pleased you don't have to unpack that trailer until you get home.
So happy for you Mary, I really am. Please keep me in your prayers. Thank you love.
Peter is wearing birthday week shirt!!! That color is so fun and actually looks good on you Peter! Praying for a smooth transition to NC and so glad to see Gods plan in action and how everything works out for good!
Mary, Peter, and Ollie you guys are the Rainbow 🌈 after the storm! ❤️❤️❤️❤️❤️❤️
Yes there will always been unknowns. It is best to keep moving forward. Yay for getting to keep the trailer packed for the second leg of the trip!
So glad you’re feeling better. God is so good!!! 🙏
During the week at Duke you described about how the transplant program will require work-outs and exercise. Both the medication and the amount of physical effort you're doing towards this move are supporting that in the best way.
Thank you for sharing this experience. I often have difficulty having the faith that I will be in the state I need to be in when the time comes, and your thoughts on this are tremendously strengthening. All the blessings!!
I love Ollie-boy's nose prints on the car window. :)
bgmaple47232 I was admiring his nose art, too!
Ohhhh ahahaha. I just noticed that.
We call it pupkus 😊
Usually i skip everyones intros but i love yalls so much! Praying for you guys while on this tough journey. God will guide you in the best way possible! Sending love and positive vibes!!
Thanks for taking me on your journey. Lol you look very good again today Mary. I like that new medication for you. So exciting. Safe travels.
This is great timing since you dont want to put off the move until Mary is super sick. Great that the meds are working or the move would have been a lot harder.
I'm so happy for you. 🙏❤ Enjoy Maryland.
Keep on going Mary. You can do this. Enjoy the trip.
I once found Good and FRUITY in Pennsylvania. What a throwback.
I didn't realize this was your first house purchase! Now I understand how you can have two houses at once.
This new med seems to be doing you really good! I can tell just by looking at you that you are feeling better because you seem more energized and no fever cheeks!
My heart is swelling with love, and amazement of your endurance and your snack choices🤣🤣 I think it might just bust. Every step y’all have taken has just falling together for a wonderful God-given path that he wants you guys on. I want to thank you for allowing us to become your friends and follow y’all and actually see Our Heavenly Father at work.❤️❤️❤️😃😃😃
Hey, I just wanna say I love your channel. Mary is so strong, Peter is so kind, and Ollie is adorable!
God be with Mary, Peter, and Ollie as they travel. May the Lord bless and keep you guys. Sounds like the doctor at Duke is a very kind doctor. When the time comes, you’re going to be in awesome hands! I have to say, you look better than you have in ages since you started Vertex! It really shows! I will be praying for you hon!
Wonderful news and I had to lol at Ollies nose prints on his back seat window behind Peter.
I recently found out that your body absorbs water & is better at hydrating you when you have some food like at least a snack in your stomach. I hope that helps you, Mary. I'm glad you're still able to continue on Vertex.
Milke and Ikes over Good and Plenty and the White Chocolate Flips are so much better if you find them. Have a safe trip.
That's what I do. I keep counting my blessings and leave it all I Gods hands. Love you guys ♥️
God is so good, helping you every step of the way, even when you said when Mary's health was declining, that prompted you to find a house that much sooner, then the new medication
came very soon after to help you Mary and enjoy this move, amazing work that God does for all of us, and sometimes we don't even realize it. And yay, you don't have to unload and load
the Uhaul, another blessing. :-) Have a safe trip, sending my love and hugs to the three of you, see you tomorrow!
Oh so glad your liver is doing well! My sister was on meds and the doctors did not follow up on blood work.. she went into acute liver failure within a few weeks. She was blessed with a liver donor but... as a family we are so angry at the doctors and lack of support.
I have tears in my eyes cause I am so happy that you feel better with the new medication :)
My goodness I am so happy for you both. I teared up when Mary said she helped with the couch. LOL That is such an answer to prayer. God is good. I was hoping Uhaul would do that. It makes more sense. Have fun in Maryland!
So proud of you Mary and so happy for you all at the same time!!!
Just thought I'd offer hopefully a helpful moving suggestion that might make it easier... they have these pods. You get it delivered to your house, pack it up and they move your pod to your new house so you don't have to make a million trips back and forth... I've never personally used it but it looks like a really cool solution if you need something like that.
great news about no trailer swappage! i was worried for you! so relieved that Mary is doing so well on this new medication. Great timing for your move! must be a God thing! best wishes!
I love your faith, determination, resilience and strength.
Mary I also had to increase my water intake by almost 1qt a day on Symdeko, I also had to increase my salt a little too. My sugars ran lower consistently in the mornings most of the time. I'm so happy it's helping you. It has helped me, and a feel blessed by God for this drug.
You guys have HOPE now! Which is so very exciting!
Have a safe trip moving you are precious people love 💕 being on your life’s journey with you Mary and Peter and of course Ollie
I'm so happy and excited for you guys! I'm praying that everything keeps going good and even better.💜
Hi Guys , So glad you are traveling with snacks !! Such an important part of any really good road trip !! Also , thanks for the info. I think the love and faith you guys share plays such a huge roll in both your lives. , If something did not go as planed , like finding the perfect house , well you would make what you found the perfect house . You folks play life that way too , I have to believe that your love and faith and strength in each other has this really super huge part in what you are able to do. I have seen really great times and I have seen not so great times , but your are always able to push through. Like packing the trailer , you were so methodic in placing everything just right , even knowing you will have to unload it , but no you don`t have to unload it. I wonder what would have happened if you had the mind set to load the trailer and when it was full , it was full , that is it. I remember you guys planning the trailer packing in your living room !! , You guys get where I am coming from , in other words , knowing you would have to unload it , did not bother you , but now you don`t have to unload it. Packing that trailer is your life !! If that makes any sense and I hope it does. You can find the happiness in the sadness , so glad you both are happy , God knows you both deserve it.
Take care , travel safe , even if it means getting there late. Keep Ollie hydrated and safe. See you tomorrow thanks for the vlog. God bless , Gary
So, so happy to hear that all is going well with the new meds :) Sending love and hugs as always. Hope you have a lovely birthday week and a great time seeing family ❤️
Have you guys ever had Trader Joe’s dried chili mango ?? I can’t digest dried fruit anymore, but they are SO GOOD.
So happy for you that it continues to help your body....I am still waiting for that wonderful call! 😂 God says you are not patient enough yet lmao 🌻🌻. Safe travels and Happy Happy Birthday on Monday Mary 🎂🎂🎂🎉
I think it is a wise moving now ..nothing worse then trying to move, when you are in the pits of really bad health .. I know God has all things in control, he is giving you this chance and hopefully a long long time of this peace and better health with this med (everything seems perfect timing for sure) .
Stiffarming that's our new word to hold on to!! Mary sorry for your bad morning but it seems like you have more energy and feel better !!hi Ollie Peter take care of everyone, remember positive thoughts love and prayers always
I love Ollies expression while your showing your treat/goodies💗
Shabbat Shalom, Mary and Peter! Sending love to your families too xxxxxxxxxxxxxx
The look on Mary’s face when she realized they weren’t half way cracked me up 😂
Soooo excited to see more footage of your beautiful families and your new house!!!!
Ps: Where is your doggy bag holder (on back of car seat) from? I love it!
I love that this meditation is working for you!
Haha YOU said
" Breathing Room"
That's me, always looking for the FUNNY
Safe drive luv ya's
I’m so happy for you Mary!! ☺️☺️
Counting every blessing is one of my faves !!!!
Mary, you were in the mood for nuts during your trip! I'm so happy to hear that your results are good thus far. I pray that they stay that way. It's so good to hear and see that a drug is doing a good job in giving you more freedom to do some things that were not as reachable for you previously. I know it doesn't take away the disease but in helping to make daily life with it easier that is an awesome achievement. Praying for blessings for you Peter and Ollie
Woah!! You know how to road trip...those snacks! Makes me think of all the road trips I took with my kids and letting them pick out snacks when we stopped for gas...fun times
Happy early Birthday Mary. So very happy your liver is OK. Pure Leaf Tea is so good. Yummy snacks. You have a great team.
2nd response .. Mary, I don't have CF. I am challenged with something else. For dehydration issue, you may want to have ADH tested if it wasn't. You probably have to be careful being too mushy but I will share what I do. I have to hydrate lots first thing in the morning - lots before noon. I have to be liberal with salt. Also, it helps me with blood draws if I hydrate well the day before. Much love and prayers. Take care you two.
Next time you are on 84 and looking for food I highly reccomend Rein's Deli in Vernon, CT. It's off the highway before Manchester. Amazing chicken salad and half-hour pickles!
Love you guys and so happy for all the blessings and miracles that God is blessing you with each and every day!
Happy travels! Glad you are feeling great. Side note though Mary.... PLEASE don't leave any medication you drop on the ground. Any child could pick that up and swallow it or any animal could do the same. You just never know 😉
You guys are such an inspirational couple ❤️
I really needed to hear what you had to say tonight💜
I've been struggling for the past 2 weeks trying to figure out what God has in mind for me. Having a rare medical condition, then being discharged from my primary care provider for a mistake that should never have happened, but did...I was medically abandoned for 2 weeks, and now I have 30 more days with my primary care physician.. but I'm not sure if I want to go back. His staff called me with diagnostic results that were crushing to me and should never have been told to a patient over the phone. I know my condition is far more complicated than my dr is comfortable with, as he's reminded me every time I've seen him how complicated I am...I have Ehlers Danlos Syndrome! He's a small town dr. It's time for God to lead me elsewhere. ✝️💜🦓💪
Sorry to hear (I'm a 🦓 across the pond) hope you can get to see an EDS expert (yes know short on the ground) or poss Skype/vid call, I'm starting to hear some do which is much needed. Hope your in good EDS soc media circles that can support & advice. I've found a great bunch on twitter that inc EDS aware medics inc those who have it. Sending gentle hugs 🤗
So Pleased that the Trial Medication is making such a Blessed difference for Both of you.. And Excited to see your New Chapters Unfold in your New Home!!
One Question though.. As well as RUclips and the Frey Life Merch do you guys have an Update on Peters Transition as a Church Pastor like as well as itinerant preaching will Peter be Looking for a New Pastors in a new Home Church or does Peter have other plans?
I will be taking full advantage of your packing tips when I move!!!
You guys are an amazing couple love You so happy the medicine is helping You Mary praying for You guys God Bless.
That mango hibiscus tea is AWESOME....you’ll like it !!