What is Going On...?
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- Опубликовано: 4 окт 2024
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I'm a SAHM of 4 boys, living with a chronic illness. I also have a special needs child who suffers with ADHD, anxiety and High Functioning Autism.
My name is Meredith (aka Meri) and I'm a stay at home mom of 4 boys (including twins). I also suffer from an autoimmune disease called Sjogren's Syndrome, which makes each day a little more challenging. I am also the mom of an ADHD ODD, Asperger's child.
Like most of you out there, I'm just a regular (crazy) chic trying to survive as a mom. I'm far from perfect, but I do my best to get through each day while keeping everyone alive. I also share what works for me for managing the day to day madness of being a family of 6.
Please feel free to leave me feedback. I love to hear from everyone!
Don't forget to follow me on Twitter @SurvivingasMom
Send me stuff! I love to do reviews!! Inquiries: SurvivingAsMom@gmail.com
Greetings Meridith!! I seem to be dealing with all the same issues you are having and it wears me down. My husband, like yours, is huge support. I'm going to start to follow you to see how you're doing and follow you through the maze of doctors and all the medical BS you have to go through. I pray you find answers and relief. You're too young to be dealing with this! I'm wishing you well, and, hopefully, tomorrow will be better!
Hello there... I have been watching your videos because of the Sjögren's information. I recognize so many of the things you say in myself and my daughter. We both have been diagnosed with HEDS as the main condition with comorbidity conditions of Fibromyalgia, Chronic Fatigue, Chronic pain, Mitochondrial Dysfunction, Mast Cell, Pots, Scoliosis, CSF leaks, Raynauds, Brain Fog, Proprioception, TMJ, Chostochondritis, migraines, Sjögren's .... And others. With Ehlers Danlos there is a laundry list of things it effects as it is a connective tissue disorder with faulty collagen. Everywhere you have tissue you have collagen. With that being said people with EDS are like snowflakes, we have varying ways that it effects us with some much more severe and some cases more mild. Some days we are very much in bed and can't walk and some days you might not know there is anything wrong. The pain is always there but it varies and sometimes we can just carry on as close to normal as possible! I feel very bad to see that some people have very bad EDS more often than us, but just trying to let you know it is indeed variable.With HEDS there is no genetic tests, it is a collective symptom examination from a geneticist who is aware of EDS. We see a wonderful geneticist in Calgary, Alberta, Canada. Dr. Yee is a wonderful doctor who has helped us enormously, very knowledgable about EDS! People are referred to him from all over, but you may have an EDS doctor closer to you. The Ehlers Danlos Society online has so much information and online support group, many many topics! Best wishes to you in figuring out what is going on for you. There is a lot of power in having the information of a diagnosis and being able to move forward down the road of coping and knowing what you might be able to do to help yourself! We also love Disney and try to go every year, wonderful get away and so supportive if you are needing any extra care, disability help and wheelchair positive. Sending you some Disney Magic!! Stay strong as you can, you are never alone no matter what the diagnosis. Thanks for sharing your videos and being so encouraging to others! Even on your bad days, it just bonds us all together in support! Best wishes to you🌻
Meridith I'm always impressed at how positive you stay. I've suffered with many of your symptoms for 15 years now, and I guess you would say I gave up looking for a diagnoses above the diagnoses of fibro and cf. I'm truly to tired to mess with doctors to much. So your strength is encouraging. I have always been able to pop my hip out and I just thought it was a cool trick. Lol. So I love hearing what your doctors think or find is going on with you. Thank you for sharing. Continue to stay positive and strong in your search for answers.
There is a new program on TBS , Thursday at 9pm, named Chasing the Cure. Have a listen you may find it interesting. Hope your tomorrow's become more bearable. Jesus is Love
Hi merideth, I was just diagnoised with Sjogrens last week. I’m getting the inside lip biopsy this week. The doctor ordered 12 tubes for labs. I’m really worried about this outcome of life. I haven’t been able to work since 2002. I’m in serious pain. University of Kansas hospitals will be treating me. I also have neuropathy. I was told I have autoimmune disease for a while but with no treatment. How did you find out you had Sjogrens? I would love to learn anything on this disease. I have no energy ever. I can’t get disability they turned m down again for like the 10th time.
Mitzy Arnold I was diagnosed with Sjogren’s and Lupus July 2017. I too recently had to have a 12 tubing blood testing. I was recently diagnosed with RA. They also found that I had a small stroke from my MRI of the brain. I was already on disability for three years due to other health reasons. I pray your tests comes out good or at least renders answers to your health concerns and conditions in order for you to be properly treated in hopes of gaining some quality of life.🙏🏾🥰💞
I just had that same skin biopsy yesterday. I’m hoping it doesn’t take the full 2 weeks to get the results back. I’ve been dealing with numbness in my feet and hands which is getting worse so I’m hoping for some sort of diagnosis to get it treated. Hoping today is a better day for you!
We all have Dreams and Aspersions, I do hope all yours come true Meridith.(The good one's !)
In the meantime Greetings from New Zealand.
(Subscribed)
Kind Regards,
Alistair Bentley.😃
Rotorua, New Zealand
I hope that you feel better. I know what it feels like to be stuck in bed and feeling like your day is not being productive when you are. Remember not to push yourself too hard on the days when your ip and moving, take time to relax and nap, that way you will be able to be up an moving everyday... take care its good to see that your doing g better on your treatments.
Hi Meridith , sorry to hear you are having a bad day. I hope tomorrow s better for you.
What kind of doctor did your biopsys? I am also in search of answers , regarding my health problems.
Sending you warrior girl energy across the miles 💜
hEDS (hypermobility form of EDS) cannot yet be diagnosed through genetic testing. Beighton score is a good starting place. Google and/or RUclips search Dr Claire Francomano-she is a geneticist and an expert in the subject of Ehlers-Danlos.
💜
Are you still using medical marijuana? Do you find it's helping at all with this and your anxiety still at all?
Thanks for your vids
I still use it. It does help.
That how it is, it’s a roller coaster.
Change in weather? I know after a hot day I am rendered useless even though im inside