PANS Symptoms Not Improving Long-term? Factors To Consider

PANS/PANDAS is usually treated with antibiotics, IVIG, anti-inflammatories, and in severe cases - Plasmapheresis. What do you do though if these interventions don't bring long term relief? This video explains some factors to consider if these treatments aren't working so well long-term.
Disclaimer: I am NOT a medical professional, this is NOT to be used as a substitute for diagnosis or treatment from a qualified physician, this is to be used for educational purposes only. For medical advice, please see a medical practitioner. I do NOT claim to treat, cure or mitigate any condition.
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PANS PANDAS UK: www.panspandas...
ASPIRE PANS: aspire.care/
Cerebral Folate Deficiency in PANDAS/PANS: www.ncbi.nlm.n....
Neuropsychiatric MCAS: www.ncbi.nlm.n...
Pyrrole Disorder: www.healthline....

[@sarilynsteiner7049]

Thank you for sharing your expertise and story. Don't stop. I reshare because the news is so helpful.

[@Truerealism747]

Your videos are great so alike with autism and symptoms ive had and have

[@michelevanhulse9339]

Love you, Romy, you’re so incredible ❤

[@ChronicAdvocate]

Aww that is so kind thank youuu! You are as well!

[@Samara-e2o]

Super informative 🤗 thank you! 😘💕

[@illavitar]

Look into the Cell Danger Response. Couple of papers and youtube videos (naviaux lab). Along with the book "Toxic" by Neil Nathan. Basically even if the trigger is removed the healing cycle can still be stuck and things like rebooting the bodys systems and future antipurinergics will address that

[@Truerealism747]

If ive got pans i must have had it 40 years untreated but son has same ocd atb13

[@Truerealism747]

Pans mcas must be related with cirs

[@Truerealism747]

Where us inherited metabolic dr in uk

[@ChronicAdvocate]

metabolicsupportuk.org/information/metabolic-centres-in-the-uk/

[@Truerealism747]

Did the crappy NHS test pick up your Lyme

[@ChronicAdvocate]

I didn't get the NHS test as I heard about the low accuracy rate so I just got Armin testing

[@Truerealism747]

My ocd is genetic started at 3 sane as my mum my grandfather his mum.and grandmother all hypermobile all autism

[@ChronicAdvocate]

PANS is also genetic mine started at 3 also

[@Truerealism747]

​@@ChronicAdvocatedid it start with a infection though to be pans my son's started exact same time

[@Truerealism747]

​@@ChronicAdvocatealso worth noting uf i take antibiotics which i havnt un 29 years my OCD anxiety goes manic