I've been undiagnosed too. Done with MRI scans, CT scans, Blood tests and nerve conduction studies. All apparently normal. 24.7 I only pray for a successful diagnosis. Its been 3 years now. I feel imprisoned by this suffering. I dont have a routine any more. I'm on bed all day. I'd prefer death over this condition. I'm sure there are many more who are in the circumstances as I am. If by gods grace I get well and recover, I promise to contribute towards this mission of supporting undiagnosed people. The worst part about my story is that nobody acknowledges my suffering, they all think its a psychological problem.
@ suraj sharma. I am also suffering from a condition which has took over my social life. I am nothing but a 'living corpse'. Same here, people think that it is psychological. Can you please share about your problem in detail?
@@umaimauneeb from India too I have recovered 80% and am much better Text me on telegram - @suraj727644 This is my user ID I will help you and guide you
I’ve been undiagnosed for 14 months, with 7 main symptoms: -Sound Sensitivity -Light Sensitivity -Tinnitus -Headaches -Balance Problems -Tics -Hand Tremor I’ve seen six doctors, and have gotten 4 incorrect diagnoses so far.
I my self have a undiagnosed condition it's an undiagnosed Neurological condition I hate not having answers as to what is slowly chipping me away Im sad she never got an answer no body deserves to not have a answer then die not knowing that is scary to your whole life not know rip lovely lady u are missed by so many ❤
Golden Carter I too have undiagnoesd issues, and I am trying to start a few groups. Group A would be for people who took 10 yrs to get a diagnosis. Group B would be for ppl who took over 10 yrs to get a diagnosis, and Group C would be for ppl who still do not have a diagnosis. You're probably wondering why. Well, I'm trying to get us all together to show the world just how serious this issue is. Just how prevalent it is. And how it is real, and we're not crazy. There's no way all these thousands or millions of people are suffering from mental disease. It's to prove there's something else going. Chronic, mystery debilitating illness is on the rise, and doctors pawn us all to the mental side of it, because they don't have the answers. I'm trying to put an end to that once and for all. Granted some of them really do have mental disorders, but you know what I mean. Thank you and I'd really appreciate hearing from you so I can add you to the groups. They're new, as I just started this endeavor today. But I have a blog at illnesscoping.wordpress.com, and you can see my latest video to learn about me and my undiagnosed (or misdiagnosed) illness. Thanks!
I'm 11 years in. 30+ doctors and 40-50 symptoms. I've had doctors laugh at me, roll their eyes, refuse to answer questions, imply that I'm mentally ill.....the list goes on
@@marks8759 I was finally diagnosed this year after 8 years of suffering and being told it was all psychological. I have hypermobile Ehlers-Danlos syndrome, Postural Orthostatic Tachycardia Syndrome, Mast Cell Activation syndrome (those three syndromes are comorbid) and a hole in my heart which has caused me to have multiple transient ischemic attacks. I am getting the hole closed tomorrow, actually.
My daughter is 13 yrs old is the size of an 8 yr old and is not growing or gaining weight. She also has microcephaly and autism. Done allllll kinds of tests but no answers. I’m wondering if these people can’t help us..
@@perishableimmortal hey me from another channel I now spread awareness for the undiagnosed because I have a undiagnosed Neurological condition it would be cool if we could be friends thanks for the support
Man this is sad, I don't have a condition where it is going to lead me to death. But, I do have a medical condition in which i exude a pungent odor from my body and I cannot detect the odor, but everyone else can. Well, except doctors and family, but everyone outside of that would make terrible comments about how bad I smell and denigrate me. This video makes me sad because it makes me realize that when you die or you commit suicide because of your unbearable condition, that is the only time people are striving to help bring awareness to your condition. I feel sometimes that is the only way I can get any medical professionals to look into rare issue
I'm undiagnosed myself your not alone I have a undiagnosed Neurological condition I'm 19 and I have been undiagnosed since 4 years old I have been through the ringer multiple tests ambulance rides hospital visits er visits still no answers
I've been undiagnosed too. Done with MRI scans, CT scans, Blood tests and nerve conduction studies. All apparently normal. 24.7 I only pray for a successful diagnosis. Its been 3 years now. I feel imprisoned by this suffering. I dont have a routine any more. I'm on bed all day. I'd prefer death over this condition. I'm sure there are many more who are in the circumstances as I am.
If by gods grace I get well and recover, I promise to contribute towards this mission of supporting undiagnosed people.
The worst part about my story is that nobody acknowledges my suffering, they all think its a psychological problem.
Same here brother, even i prefer death sometime, i m from India, where r u from
@ suraj sharma. I am also suffering from a condition which has took over my social life. I am nothing but a 'living corpse'.
Same here, people think that it is psychological. Can you please share about your problem in detail?
@@umaimauneeb from India too
I have recovered 80% and am much better
Text me on telegram - @suraj727644
This is my user ID
I will help you and guide you
@@perishableimmortal message me on telegram
@suraj727644
@@SurajSharma-bf4qo arent u on insta?
I’ve been undiagnosed for 14 months, with 7 main symptoms:
-Sound Sensitivity
-Light Sensitivity
-Tinnitus
-Headaches
-Balance Problems
-Tics
-Hand Tremor
I’ve seen six doctors, and have gotten 4 incorrect diagnoses so far.
I have a undiagnosed Neurological condition too ❤ can we be friends ❤
I my self have a undiagnosed condition it's an undiagnosed Neurological condition I hate not having answers as to what is slowly chipping me away Im sad she never got an answer no body deserves to not have a answer then die not knowing that is scary to your whole life not know rip lovely lady u are missed by so many ❤
It's going on three years for me and still nothing as far as any sort of diagnosis.
Golden Carter I too have undiagnoesd issues, and I am trying to start a few groups. Group A would be for people who took 10 yrs to get a diagnosis. Group B would be for ppl who took over 10 yrs to get a diagnosis, and Group C would be for ppl who still do not have a diagnosis. You're probably wondering why. Well, I'm trying to get us all together to show the world just how serious this issue is. Just how prevalent it is. And how it is real, and we're not crazy. There's no way all these thousands or millions of people are suffering from mental disease. It's to prove there's something else going. Chronic, mystery debilitating illness is on the rise, and doctors pawn us all to the mental side of it, because they don't have the answers. I'm trying to put an end to that once and for all. Granted some of them really do have mental disorders, but you know what I mean. Thank you and I'd really appreciate hearing from you so I can add you to the groups. They're new, as I just started this endeavor today. But I have a blog at illnesscoping.wordpress.com, and you can see my latest video to learn about me and my undiagnosed (or misdiagnosed) illness. Thanks!
I'm 11 years in. 30+ doctors and 40-50 symptoms. I've had doctors laugh at me, roll their eyes, refuse to answer questions, imply that I'm mentally ill.....the list goes on
@@marks8759 I was finally diagnosed this year after 8 years of suffering and being told it was all psychological. I have hypermobile Ehlers-Danlos syndrome, Postural Orthostatic Tachycardia Syndrome, Mast Cell Activation syndrome (those three syndromes are comorbid) and a hole in my heart which has caused me to have multiple transient ischemic attacks. I am getting the hole closed tomorrow, actually.
@@GLGC688 good luck with your surgery. All the best
@@GLGC688 if you dont mind me asking what were your symptoms?
My daughter is 13 yrs old is the size of an 8 yr old and is not growing or gaining weight. She also has microcephaly and autism. Done allllll kinds of tests but no answers. I’m wondering if these people can’t help us..
Most of the genes in the genome are currently unknown to science, it is believed that there are more than 150,000 thousand genes in total.
Ur not alone I am undiagnosed myself ❤
I have an undiagnosed condition except for that my parents don’t care they gave up on finding answers but not me
This is worst thing that can happen to someone when your parents gave up. We are on the same page bro
@@perishableimmortal hey me from another channel I now spread awareness for the undiagnosed because I have a undiagnosed Neurological condition it would be cool if we could be friends thanks for the support
Man this is sad, I don't have a condition where it is going to lead me to death. But, I do have a medical condition in which i exude a pungent odor from my body and I cannot detect the odor, but everyone else can. Well, except doctors and family, but everyone outside of that would make terrible comments about how bad I smell and denigrate me. This video makes me sad because it makes me realize that when you die or you commit suicide because of your unbearable condition, that is the only time people are striving to help bring awareness to your condition. I feel sometimes that is the only way I can get any medical professionals to look into rare issue
Trimethylaminuria
I'm undiagnosed but I know what it feels like to have an unbearable condition I have a undiagnosed Neurological condition
6th year, undiagnosed 😭
I'm undiagnosed myself your not alone I have a undiagnosed Neurological condition I'm 19 and I have been undiagnosed since 4 years old I have been through the ringer multiple tests ambulance rides hospital visits er visits still no answers
@@thebravemuriel me too i never leave my house
@@bigmar2x201 yeah it can be hard to leave the house with a undiagnosed condition especially with chronic ongoing pain