Rare Kidneys On The Hill Day || NephCure Briefing

This briefing is part of Rare Kidneys on the Hill Day, an event hosted by NephCure that unites individuals and families affected by rare kidney disease (RKD) to advocate for policies that address the challenges they face, including diagnosis, research, and access to treatments.
This briefing covered topics such as:
• The prevalence and patient impact of rare kidney disease and its significant cost to the health care system;
• The need for early diagnosis and research to connect patients with therapies at the earliest moment possible; and
• The impact the New Era of Preventing End-Stage Kidney Disease Act will have to improve the state of kidney care in America.

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