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Why is Autism Being Over-Diagnosed?
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- Опубликовано: 31 янв 2022
- Is there a sharp rise in prevalence or is it being over-diagnosed?
Is it because much easier for parents to seek out diagnoses and treatment?
What are symptoms of autism?
Why is it dangerous to self diagnose?
Who are some well-known historical figures who
had / suspected Autism spectrum disorder?
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#autism #psychsore #autismoverdiagnosed
I was formally diagnosed with adhd and asd level 1 and dyspraxia at age 40 by psychologist who specialised in autism.
All the talk of over diagnosis gives me imposter syndrome, despite the fact I met all 7/7 criteria in addition to the early childhood and impact on life (unemployed despite being very highly qualified, no friends, difficulty accessing help, using phone e.g. Accessing medical help when needed, very poor confidence and self esteem and sometimes feel suicidal due to isolation and constantly being misunderstood, miss hunger, thirst and other body signals, difficulty with hygiene, very naive and miss lots of social signals and take everything at face value, and so on... ).
Despite all this I am afraid to tell people my diagnosis even when needed, like talking to a doctor, because I appear on the surface to communicate well and people, esp official people like doctors immediately act sceptical. So I just don't even say, which means I can't even access the support I need. (Sometimes I just use the term aspergers, as people like doctors who don't specialise in autism can easily believe and accept that I have aspergers, but struggle with accepting me as autistic.) So the ' it's being over diagnosed' narrative harms people like me because as a late diagnosed woman I know it colours people's view of my diagnosis, even though it was very thorough and ruled out other things like gad and personality disorders for example. That scepticism all adds enormously to the already inherent experience of being misunderstood and puts another barrier in the way of getting support.
Having said all that, while I fully appreciate that self diagnosis is the only option for many due to lack of resources, and I probably wouldn't question someone on an individual basis but would accept and trust they had done their due diligence, I am aware that many symptoms overlap with many other conditions, lots and lots, and without a trained psychiatrist or psychologist it would be very difficult to ascertain what is what. Even the professionals can misdiagnose at times as there is so much overlap. So it does concern me if someone self diagnoses but then it becomes apparent that they haven't put due diligence into exploring all the other possibilities that it could be. I also sense a worrying trend of strange behaviour amongst self diagnosed, including advocates, esp in online communities but also in real life, who display very toxic and even abusive behaviours and wonder if they may actually have a personality disorder or other trauma based condition that they are unaware of and have either misdiagnosed or not realised they have cooccuring things going on. No stigma intended against personality disorders by saying that but I do think it is dangerous because a) they are unaware and untreated and working with a vulnerable group of people and b) if they describe traits of other conditions but mistakenly attribute it to autism then it muddies the water as to spreading false info about what autism is.
Another bugbear is so many people saying 'oh everyone's a little autistic'. This is so disrespectful to people with autism and who have real struggles. Everyone will have some traits, as they are human traits - we aren't aliens- like everyone might have traits of anxiety from time to time. Doesn't mean they have gad. So yes, I agree that there is a problem with people misunderstanding and misappropriating it. Also I agree, people are equating it with anyone who is maybe a bit eccentric, which is also very incorrect (and insulting). Those eccentric traits may be indicators... But also could just be eccentricities or individual traits and nothing whatsoever to do with autism.
But I think it's way more nuanced than saying its over diagnosed, and I think that's a harmful narrative for various reasons, esp to woman and girls who are still under diagnosed, as it can prevent them seeking diagnosis and then being taken seriously as well, even if they do, and indeed even following diagnosis. But I do agree that there are a significant number of people self diagnosing incorrectly (not all but enough) and there are also people misappropriating it.
So while I think the overdiagnosing narrative is too simplistic and not quite accurate, I think the answer must be to spread as much accurate info as possible, as you are doing so well by highlighting that traits overlap with many other things which would need ruled out, that traits must be present from childhood, that it does significantly impact life (even for level 1 though in less visible ways), and that it's not just 'being quirky'. And that no, not everyone is a little autistic and for diagnosis you have to meet set criteria, not just a few traits. Also, that some people can mask and script to go under the radar but even then will still be experiencing a lot of, often unseen, difficulties and struggling on unsupported.
Sorry for rambling but I do appreciate you using your platform to inform and that you also engage and are open to ask for other views in the comments. So thank you for that.
P. S. Heard you say in another video that you went to Edinburgh uni so hi from another former edinburgh uni student
I hope you can put that imposter syndrome feeling behind you. You have enough on your plate without giving yourself more to worry about. You've brought up many valid points from the inside perspective, and I, for one, appreciate your willingness to do that. Thank you.
I was diagnosed as high functioning ASD at age 38. It fully explains my life and many issues. I have always been a bit of a loner, though not completely unsociable. I only have a few friends that I see occasionally. I obsess over things I find interesting to the point of driving everyone nuts. I used to have meltdowns and breakdowns easily. I still suffer with anxiety though have it under control more. Am seen as weird and eccentric by majority of people. My diagnosis took several hours a day a week, for several weeks, so wasn't a quick thing. My mum accompanied so gave full history of my childhood. The report the psychologist gave me was quite in-depth and explained so much to me about myself. The more I look into it and autism, and think how I work and my history, the more it makes sense.
Does having a label make you feel better?
@@autumnward6210 not about having a label, but about understanding myself.
Ie you’re just eccentric. Get over yourself
@@autumnward6210 understanding is more important, feelings aren’t all that relevant.
With the gradual using of dr Oyalo herbal recommendation for autism, whom I met on RUclips, my son is totally free from Autism with his speech cleared and social skills ok
I have CPTSD and the doctor that was supposed to be treating me mentioned autism after I told him about my personality change as a child AFTER abuse. Like you said, he completely ignored the context of everything and jumped straight to Autism. Me avoiding eye contact is from years of abuse, not because Im autistic.
I am afraid of telling therapists my teenage and early 20’s terrible social anxiety, eye contact avoidance or overdoing eye contact, and nervous fiddling because I’m concerned they’ll jump straight to autism. Just like you…I was not like that my entire life. I was not a socially anxious kid and I did experience abuse that changed my personality into one that was more dissociative. I am finally going to see a DBT therapist and inquire about CPTSD or borderline.
There is permanent herbs to improve autism. It’s a medicine you can get from Dr Oyalo RUclips channel, his herbs have made my son improve perfectly in his speech and social skills
That's very unusual. It's far more common for it to be the other way around. There's no evidence to support the idea that overdiagnosis is at all common, we had garbage epidemiological information before the DSM IV came out, and the jump may seem like it's big, but even at 1 in 50, that's still only a couple percent of the population, it's still a rare condition. Most adults diagnosed as autistic have to walk over metaphorical glass through, through barbed wire fences and over various barriers that the profession has created to get that diagnosis. It's simply not something that's being handed out like candy the way that some people are claiming.
I personally received just about every possible misdiagnosis that's associated with ASD including ones that aren't allowed to be given to the same person and ones that aren't allowed to be given to kids.
I'm sure that it does happen occasionally, but it's misleading to suggest that it's a significant problem at the population level. It's a significant problem for you, because that's not what was causing the things you need help with. But, there's little reason to believe that overdiagnosis is such a wide spread thing that they needed to rewrite the criteria to deliberately leave people with no possible diagnosis and remove diagnoses like Asperger's Syndrome that are likely a separate, but related, disorder.
Very interesting I relate to this. Currently diagnosed CPTSD auDHD
@@snowredsnow666It’s been found that autistic people are much more likely to develop cPTSD. Likely due to the total disrespect, often due to total ignorance, of our needs. I somehow didn’t, I think because I always leaned in to pain, rather than running from it; the kind of person determined to dig out a splinter, no matter how painful the process. Also, I wasn’t attacked physically or seggsually, as many are. 😮💨
I was officially assessed by a team of professors at Scottish Autism when I was 48yo. Many of us were not included in the statistics in the 70s and 80s because we were not recognised. But many women including myself were misdiagnosed with mood or other mental health conditions. I'm glad more people are aware and getting support. Just understanding myself has made life much easier over the last few years.
There is permanent herbs to improve autism. It’s a medicine you can get from Dr Oyalo RUclips channel, his herbs have made my son improve perfectly in his speech and social skills
Yep, I've had just about every possible misdiagnosis except for BPD, PTSD and schizophrenia. But, I've had pretty much all the other ones. Unfortunately, I didn't even have the option of an autism diagnosis when I was first getting mental health treatment. There was a brief period where I could have received a proper diagnosis, or would have had there not been a prohbition on handing out an AS diagnosis with comorbid ADHD and any of the schizophrenia spectrum disorders. Then the DSM 5 came out, and it's just an absolute mess. Significant stimming is absolutely mandatory, and it has to be clearly stimming, it can't be something like hair pulling that gets treated differently. And while there is a diagnosis to cover somebody that stims, and has communications issues, Social Pragmatic Communication Disorder; there really isn't a proper option for somebody who has sensory processing issues and social communication issues, but doesn't stim more than a typical person would.
Twice-exceptionality (having a high IQ and developmental disabilities like autism, ADHD, dyspraxia, and/or dyslexia at the same time) is still a major reason for missed and mis-diagnosis. There’s still an assumption you can’t be smart AND disabled; brilliant in some ways and incapable in others. Some of us are even “lucky” enough that our abilities and disabilities sorta cancel eachother out, resulting in “average” achievement, at least in elementary school. More commonly, we spend our school years as “failed” gifted kids or incredibly bored “special education” kids. A number of autistic folks have learned to type in adolescence and conveyed very bright minds that had been trapped by their inability to communicate, which had made everyone think they were very slow. This really needs to be addressed. In a standard elementary school of 450 students (75 per grade, K-5), there will be about 2 of us, maybe 3. 😕
I think it has a lot to do with availability of diagnosis now, awareness of autistic traits in girls/women and a bigger emphasis on diagnosing kids earlier rather than later. When my middle (i'm the oldest) brother was 2 y/o my Mom wanted him to get evaluated as she is working in thst field and recognosed typical behaviour. They told her to "not take work back home" and send her away, he ended up being diagnosed at age 14, after her started having severe behavioral issues, skipped school regularly even tho me, mom or dad drove him there and stayed untill he was in the fuckin building, and started using substances to cope with emotional issues and the pain from his chronical illness. Part of this could have been prevented if we had the help we have now for my youngest brother, who got diagnosed at age 6. I know many stories like this, even more of parents who straight up got told that "girls can't be autistic" and send away. Awareness of the damage this aproach caused might causes people to be wrongly diagnosed with asd but since (where i am) parents can choose If they want their kids to be medicated, get access to therapy options and a chance for accomodations for school and the kids doagnosis has to be reevalued every so often, i think over-diagnosing people might (!) cause less harm than underdiagnosing them. But i'm not sure about that and absolutely willing to be proved otherwise on the last sentiment.edit: i am talking about official diagnosis, not what uncle XYZ thinks after reading a buzzfeed article😅
There is permanent herbs to improve autism. It’s a medicine you can get from Dr Oyalo RUclips channel, his herbs have made my son improve perfectly in his speech and social skills
I don't think autism, ADHD, etc. are just make-believe conditions. However, the reason they are being diagnosed in people who don't have them is they can only be diagnosed *through the symptoms* . It's possible for a person to have cancer but not the symptoms of cancer. The diagnosis is made through photographing the cancer. The diagnosis of autism is open to the *opinion of the observer* regarding whether the person has the symptoms or not.
I got diagnosed at 26. Such a relief 🙏🏻 love this discussion
I was misdiagnosed with autism. I've got an IQ over 150 with Dabrowski's Overexcitabilities--which means that I am typical for people like me. Still, I'm considered neurodivergent because the structure of the brains of people like me does differ from the norm.
I question whether Albert Einstein had autism. I'm from Princeton and there were plenty of stories about him. Some of his eccentricities could be chalked up to the fact he was culturally Swiss / German. Other eccentricities that Albert Einstein had could be attributed to Dabrowski's Overexcitabilities, something you expect to see in someone who has a high IQ. He had outside interests, other than physics. He was a good amateur violinist. He enjoyed hiking, reading and sailing. He was very well read, enjoying everything from novels, poetry, philosophy, etc... a typical omnivorous reader. He enjoyed spending time thinking. He did not suffer from speech or motor development delays. There are plenty of pictures showing that he readily made eye contact with people. Biographers once described Einstein as a cold and cruel husband; with the release of over 1400 letters that show a much more nuanced side of Einstein that show him to be tender, caring, understanding and loving at times. These letters also show that he was actually reasonably self-aware, openly admitting his faults. Yes, he married twice and both marriages ended in divorce. He was most definitely a womanizer. He didn't wear socks. He didn't wear socks because they were a pain, you'd get holes in them. Good enough reason--and not the sort of reason an autistic person would give. I don't wear socks and prefer to go barefoot when I can. I will wear socks when it's cold or when I'm hiking or running, because it makes sense. He was known for his casual, somewhat unkempt look. I
I compare Albert Einstein to a science fiction professor I had in college who was mildly autistic. This prof was a wonderful writing instructor; was very good at teaching people how to organize large projects (which, IMHO, made him the best computer science prof at my school). After all, he was one of John W. Campbell's editors at Astounding. John W. Campbell was a brilliant editor, teacher and mentor, both to authors, prospective authors and his editors. This prof would not make eye contact with students, especially when they visited him in his office. Unlike other profs, his office was stark, no decorations on the wall. He had a singular interest: Science Fiction, unlike Einstein who had numerous interests.
I think that a better understanding of Albert Einstein is this: he had an IQ over 150 with Dabrowski's Overexcitabilities--which is typical. This does mean that he was neurodiverse. I must put into question whether Albert Einstein was autistic.
Autism can be misdiagnosed as a cluster b too often. Much discussion surrounding this
Absolutely agree. I was misdiagnosed with borderline personality disorder when in reality I'm on the spectrum and have to struggle daily to understand others emotions. It's not that I don't have emotions I just have a very hard time recognizing them in others. There's so much more to what I struggle with then just the emotions but it is something that is often obvious to others.
The over diagnosis epidemic is just annoying, having to raise a now 12 year old who is actually autistic - I've just fking had it. I know literally 4 kids/teens that are absolutely not autistic but their parents seeked out diagnosis. Even when we diagnosed our then 3 year old the doctor actually said (Marcus Atlanta) "let's just give your daughter a diagnosis, so she can get early intervention, then if she isn't it wont matter". If you can argue with me, NO you are probably not autistic. Thnx for making this video. I read some comments on a FB video from yet another fake AsD person and I've just had it, that's how I found this video.
With the gradual using of dr Oyalo herbal recommendation for autism, whom I met on RUclips, my son is totally free from Autism with his speech cleared and social skills ok
are you aware of "levels of autism" when it's being diagnosed? and i don't mean high and low functioning, but the support needs levels.
#actuallyautistic is also a hash tag used by people who may or may not be actually autistic.
@@EryniellLow functioning? Did you mean low suctioning?
@@e4m7g6 I was talking about levels 1-3 from low to high support needs. mostly because I don't understand why there is even a comparison made between levels 1 (which are those who tend to be able to speak) and 3 who tend to be non verbal, when both is accounted for in diagnostics.
It's not the deciding factor if someone is autistic or not.
My 15 year old son has just been diagnosed with ASD. It was a little surprising as we had all thought that he was just quirky and cute growing up. He has been refusing school on and off for the past 3 years, and thus we sought help from various channels. At first it was Adjustment Disorder (He had just moved from primary to secondary school at that time), then it was Mixed Anxiety and Depression, and then we suspected ADHD. I was tired of writing 'essays' to his teachers every day explaining why he was unable to get to school or why he was unable to do his work. His complaints included things like 'my teachers don't know how to teach me so that I can learn', 'I hate writing', etc. 2 months, 9 tests later, we have a diagnosis that explains a whole lot. But he is so high functioning (+ Very High IQ), that now I worry that the secondary school that caters for high functioning teens won't take him, and his current school won't know how to help him learn if he goes back. He is on a Leave of Absence until December. Hopefully he can return to a school that will support his needs. I'm doing research into high functioning ASD (Aspergers). Thank you for your content. Love your true crime content too.
My son is 19 and on the autism spectrum. He excels at maths and sciences and I mean he really excels but hated English with a passion. He just couldn't understand why people wrote poems. His view was that if you've got something to say - just say it don't commit it to some ridiculous verse that people have to try hard to understand. Suffice to say his English teacher just didn't take to him - at all! He infuriated her when (completely by accident) the class were asked to write a piece about Shakespeare's Romeo and Juliet and my autistic son simply wrote the facts down. He wrote that the main protagonist Romeo had not only murdered his best friend but also murdered another character and had he lived longer than his 18 years would most probably have killed again thus putting him into the 'serial killer' category. He also wrote that there were clear signs of grooming from 18 year old Romeo towards the 13 year old child Juliet. Additionally when they were given Arthur Conan Doyle's Sherlock Holmes to study, my son wrote that on chapter one, page one the main protagonist Sherlock Holmes jacks up. Then asks - Is this really appropriate text for pubescent boys to be studying. Needless to say his English teacher was very frosty on parents evening. Personally I just found it hilarious!!! My autistic son is very kooky and I love him to bits for it!!
@@gearupgifts That's hilarious! They say it just like it is, don't they?
@@ednaloytye I wish you well with your son. Hopefully back in school soon and giving his English teacher a hard time! 😄
There is permanent herbs to improve autism. It’s a medicine you can get from Dr Oyalo RUclips channel, his herbs have made my son improve perfectly in his speech and social skills
Doctor I can't stand these celebs saying dyslexia is a "gift" it's disrespectful to people who struggle and make it out to be something that you should just get on with and you won't need any support with it? Surely this will reduce funding if this rumor spreads?
Great video Dr Das. I was diagnosed in my mid 40's When I was a child in the 70's - I was just considered a 'bad kid' Thankfully my mum stood by me, despite family pressure to have me adopted or put in a home/school for 'difficult' girls as I was so strange.
I did win two international scholarships - one for law and one for veterinary medicine, plus winning class prizes and having very high grades in both. This was despite at the time having no living family/no friends for emotional/financial support and coming from a poor, working class background, including being the first from my family to go to university. I worked in the city for international law firms but hated it as I am not confrontational.
Although savant syndrome is not in the DSM, this is what my psychiatrist and other health care professionals who are experts in autism, have said would be an accurate definition of my condition. Although where I live there is no treatment for adults, the visiting psychiatrist (an autism specialist) who diagnosed me and usually writes a page or two on each individuals diagnosis, wrote 15 pages on me(!). I had no family to discuss my childhood with the psychiatrist as is normal in a diagnosis, but it only took a few minutes discussion with the three professionals involved in my diagnosis, to confirm I did indeed, without a doubt have autism - which again such a quick diagnosis is unusual. It can take hours. I always knew what my differences were defined as since I heard about autism, but it was nice to have a diagnosis.
It sounds fantastic. Huge intellect, can think in ways others can't etc etc. but it's not. I live in a world I don't understand. Where I don't fit in. I can't really cope with normal life - I have no friends, no family, no husband or kids, and I struggle to do the basics such as washing and dressing, housework etc which can be hard to get healthcare workers to accept and understand my care needs. Again this is as Dr Ds said, when there are inadequate resources, people like me can 'drop through the cracks' and be left not coping and suicidal. (I am ok and have the help I need now).
I would say my favourite autistic person would be Nikola Tesla.
Thank you for this comment. I was diagnosed late at 24 in 2019 (I'm a woman so I was just "shy" and "quiet") and I feel like because I'm "high functioning" I'm contantly in denial and frustrated that I struggle with "normal" activities. Dealing with suicidal ideation on a daily basis is a really big problem for me and I often feel exhausted. I'm glad to say though that I am having counselling and trying to work things out at my own pace. Really glad for this discussion, and hope you are able to take care too.
@@cronchyskull hi :) I am a woman too. It can be really hard. I'm glad you are having some counselling and hope you are starting to feel better.
Since getting my assistance dog Mazey, I have really felt a lot less isolated, as she has introduced me to lots of little friendships - mainly with people that work in shops and that like to speak to her - so I have a little bit of social interaction every day - which is nice
How are you going to claim historical figures as autistic what gives you the right?
@@KyleRittenhouseIsGuilty.how are you going to claim historical figures are NOT autistic what gives you the right?
It goes both ways.
Hi, ‘high-functioning” autistic adult here. (Again). I saw this vid when it came out and it’s taken me THIS LONG to formulate this particular response. 😅
CW: Suicide, discrimination.
My analogy is, Alaska and the Nevada desert are both in the US, right? But you’re not going to wear a big winter coat to visit scorching Nevada, nor are you going to go to Alaska in winter in flip-flops and shorts. And that’s to say nothing of everything in between, the Louisiana bayou, the Rocky Mountains, New York City, the Great Plains, Puerto-Rico, small-town Nowheresville, smoggy Los Angeles etc.
In the same way, even many professionals don’t seem to see that different forms of autism can be so vastly different from one another, and so they need different kinds of support needs. And in the same way that the cold can be harsh, so can heat!
You wouldn’t say to someone in a desert “Jeez, stop complaining! The sunshine is lovely! You’re not suffering like the people in the Arctic circle are; stop complaining!”
That may be so, but your feet burn, and you are thirsty, and in danger of sunburn and sunstroke… and are those vultures circling above you?
Likewise, it’s incredibly dangerous to assume that “high-functioning” autism is problem-free just because it doesn’t come with the same difficulties as other kinds in the autism soup, and by no means does it erase those other needs.
The solution therefore isn’t to save funding for the more “extreme” cases, but the more existentially draining answer is to increase NHS funding in general (yaaaaay 🙃).
Problems such as unemployment, subsequent co-morbid mental health conditions. Lifted this from the National Autistic Society website, but : “Autistic people are at a higher risk of suicide than non-autistic people. Figures show that as many as 11-66% of autistic adults had thought about suicide during their lifetime, and up to 35% had planned or attempted suicide (Hedley, D., & Uljarević, M. 2018). Autistic people are also more at risk of dying by suicide than non-autistic people, with the highest risk seen in autistic people without co-occurring intellectual disability, and autistic women (Hirvikoski, T. et al 2020; Kirby, A.V. et al. 2020).” (This is something I have struggled with all of my adult life; I’m getting help from my GP and a counsellor though!) rest of the page here www.autism.org.uk/advice-and-guidance/professional-practice/suicide-research
Sorry that that was so long! I really enjoyed the vid, as usual, and am so glad that we’re having this discussion here!
Some very good points here. Thank you.
I was diagnosed at 31, and it was one of the best things that ever happened to me. My entire life suddenly made sense, and I could finally embrace my neurodivergence rather than wondering what it was that made me so different and ineffective at peopleing.
There is permanent herbs to improve autism. It’s a medicine you can get from Dr Oyalo RUclips channel, his herbs have made my son improve perfectly in his speech and social skills
What do you do differently in your life now to embrace it?
Thank you soooooooo much for being a sane voice on the Internet
~ diagnosed aspie
de nada
Just reading your book "in two minds" it's amazing, well written and hilarious in parts. I love these videos as well. I would love to have gone down the road of you're career, but I am a psychotherapist and love everything to do with the mind. My son was diagnosed at 17. He struggles daily with severe depression and anxiety. We were refused by CAHMS in Jan 21. I had to scream from thy rooftops as he became suicidal. Now, September 22, finally accepted and still waiting to be seen. He has suffered for so long and yet still trys so hard everyday. It's painful to watch as a single mum. Fingers crossed help is near by.
This was a great video. I assess children for autism in the school system. There’s so much misinformation out there about ASD so thank you for spreading proper evidence based information and awareness.
My brother is currently in 24hr care (and will be for the rest of his life). He's severely autistic. Thank you for remembering the family. He's 34 and isn't toilet trained.
There is permanent herbs to improve autism. It’s a medicine you can get from Dr Oyalo RUclips channel, his herbs have made my son improve perfectly in his speech and social skills
I think it’s now over diagnosed due to adding additional symptoms to the DSM. Question- Can you be autistic if you only have 1 symptom? Specifically difficulty maintaining friendships? It was suggested that my child might be on the spectrum without meeting any other criteria. He has been diagnosed with ADHD and OCD already.
no, one symptom isn't enough.
Definitely not! ADHD and OCD (by themselves or in combination) can make it more difficult to maintain friendships. It can also be associated with other disorders like depression, social anxiety disorder, PTSD/C-PTSD, personality disorders (e.g., borderline, narcissistic, avoidant), etc.
Mental disorders in general tend to cause impairment in functioning (most mental disorders can only diagnosed if there is “clinically significant distress or impairment in functioning”), and social functioning is one such area that could be affected.
@@NatalieMarie917 This is true, and OCD+ADHD didn't used to be allowed as a diagnosis as in some ways they're polar opposites of each other. In the same way that ADHD and any of the autistic spectrum disorders wasn't permitted. Both of those sets of comorbiities are fairy common, even though it's not common enough to be normal.
And that second paragraph is a large part of the problem. Higher masking individuals may not hit that point until much later. And if somebody doesn't really mind being alone or not interacting much with other people, it wouldn't really count for some diagnoses that require poor interactions with others.
@@SmallSpoonBrigade there still is the statement for most disorders that you’re not supposed to diagnose them if the client’s symptoms can be “better explained” by a different disorder the client meets the criteria for. I honestly think a lot of clinicians ignore or forget about this part. I get that it can be tricky sometimes when there’s a lot of overlap in symptoms, but it can also get really messy when they assign someone 4+ different diagnoses, especially ones that are highly likely to be internalized and taken on as a big part of one’s identity (like ASD and ADHD).
My son was diagnosed at 18months he has severe autism non verbal and have had hardly any help and the help i did get had to fight for,now hes 18 and there is nothing really now for him because he has it very severe he can not and will not want to learn so to keep him occupied is hard the only thing he likes is going out on transport its been very hard and still is there should be more facilities for autistics and more help for the families.
There is permanent herbs to improve autism. It’s a medicine you can get from Dr Oyalo RUclips channel, his herbs have made my son improve perfectly in his speech and social skills
I was diagnosed as a child. My mom never told me.
I remembered that I went to The Easter Seals and everything-she knew. She took advantage of me. I am 44 years old.
Painful.
There is permanent herbs to improve autism. It’s a medicine you can get from Dr Oyalo RUclips channel, his herbs have made my son improve perfectly in his speech and social skills
I suspect I am on "the spectrum" but I am trying to figure out why it is such a wide range. So far what I have read explains so much about my life and how I function.
Really that is all I am seeking is an understanding of myself and how to take better care of myself. I am 57 and have spent so much of my life uncomfortable and unhappy. I also suffer from PTSD from abuse suffered as a child and teen. First I thought that was my only problem, but now I see a possible connection in how the autism may have made me more susceptible to being vulnerable. I wont list all of my autistic traits, I just want to find out what the definite criteria are for a diagnosis. I am not going around claiming to be autistic and probably will never, but I find it comforting to know that I fit somewhere and there are people that understand what I have been going through my whole life!
There is permanent herbs to improve autism. It’s a medicine you can get from Dr Oyalo RUclips channel, his herbs have made my son improve perfectly in his speech and social skills
As someone who was misdiagnosed with ASD it appears that the diagnosis a little too often is used to describe someone as being "weird". I have no doubt that a lot of people in the past haven't been diagnosed, but have instead been seen as excentric. Today you get a diagnosis, a generation or three ago you were just weird.
If you read my papers, it's obvious that the psychiatrist, who misdiagnosed me, had some very old-fashioned ideas about what millenials like me used their sparetime on as teens. I was gaming and LARPing with my friends, which was nerdy but not atypical interests. She made it sound like I was unable to have steady and equal friendships and like I was spending an abnormal amount of time on my hobbies. It was hurtful, and more importantly: All health personel spoke to me like I was a (pardon my french) retarded 10 year old.
A couple of years later another psychiatrist re-diagnosed me as a depressed nerd.
I may be wrong, but it appears that "disorder" is at least partly defined as something that stops you from functioning normally in society. Seen in that light autism is without a doubt a disorder.
With my aspie friends (their prefered term) I lovingly say that there's just installed an alternative operating system. It's not better or worse, but just different. It does however not always fit into society.
I would strongly suggest that you read the book, "Eccentrics: A Study in Sanity and Strangeness" by the psychologist (and definitely eccentric) Dr David Weeks and Jamie James. This book is important because Dr Weeks makes it clear that being a nonconformist, an eccentric, in itself is NOT a sign of mental illness.
It's a lot easier to study eccentrics in the UK because the culture is more tolerant of them. Healthy eccentrics find ways to stay true to themselves and to negotiate their way through a world that might not be all that tolerant of eccentrics (that is, until it becomes 'cool' to be a certain type eccentric). . Still, eccentrics can, and do run afoul of the mental health establishment; hence they avoid them. It's common for healthy eccentrics to be misdiagnosed with high functioning autism or schizotypal personality disorder.
On a personal note, I am grateful to Dr Weeks for convincing my pain management doctor and his Harvard clinical neuropsychologist friend that neuropsychological testing of me was likely to do far more harm than good.
it's odd to me that a self diagnosis would take away from the resources for a dr-dx. because in my area, even with the paperwork, I'm jumping through hoops to prove I need any help. I can't imagine how someone without the official papers could even touch the programs
There is permanent herbs to improve autism. It’s a medicine you can get from Dr Oyalo RUclips channel, his herbs have made my son improve perfectly in his speech and social skills
Neither self nor official diagnosis is taking resources away in the portion of the autistic community to which the "over diagnosis" issue could potentially apply. Accommodations at work, aren't taking away from people who can't work, and being allowed to know the cause of the suffering and reorient how we live our lives isn't taking away from them either.
It's a bunch of fear mongering. There's an apparent massive increase because there were no applicable diagnoses before 30 years ago and even after that, there were a bunch of women not being identified for further evaluation during screenings. And the system still hasn't diagnosed even a majority of the autistic adults. The higher masking individuals who are old enough to not have anybody on the lookout for the less obvious signs and traits.
It wasn't until 25-ish years ago that anybody even thought to start researching masking. And there's been very little interest in making sure that the margins of the disorder have support and treatment for those with clinically significant suffering.
Ive been wondering exactly this, same with ADHD, almost every other child has it these days and you get more benefits with a child with either diagnosis so great incentive to get them diagnosed (other 40%?)! Call me cynical but the range for autism is so vast you could either present as totally 'normal ' person or totally non functioning i.e will never speak/work/marry etc and you could fit most of the population into this
Autism is vast because they decided to smoosh all the autistic spectrum disorders into a single diagnosis rather than just addressing the issue of the overlap between them. And, no, you couldn't fit most of the population into this. The fact that there are some folks that are very high masking just makes it look like that. It's not normal to come home absolutely spent just interacting with people and the environment.
I have been diagnosed with autism in my late 30s and it has been a bit of a lightbulb moment but the information being circulated about overdiagnosis makes me feel really invalidated.
How does information about over diagnosis make you feel invalidated. It's not about you. It is about children being misdiagnosed with autism. You were not misdiagnosed. Example, if I had intermittent explosive disorder and I was misdiagnosed with autism. How would I get the proper treatment for my extreme (temper tantrum ), (explosions). Which is which ? At 13 is she having temper tantrum or an explosion. Sometimes it is hard to tell the difference between diagnosis and sometimes easy. The importance of correct diagnosis is about proper care for the client and their families and how best to take care of EACH other. It is not about invalidating anyone. It is about proper care and treatment for the people we love.
@@Claudia-se3mp because in many cases the idea of overdiagnosis seems to come from a sudden increase in autism diagnoses, which is not proof that it's overdiagnosed, only that it increased. Some people claim that this is happening because of "watering down" the diagnostic criteria and merging aspergers into ASD, which is atleast partially probably correct, but has also happened because we know more about autism now.
Overdiagnosis implies that people have been missdiagnosed or are wrongly diagnosed now and it's easy to assume that those who claim overdiagnosis without the proof for it are basing it on the social media presence, which then insinuates that they think it's THOSE people who "recently" got diagnosed are the wrong diagnosed ones (especially when someone claims people would want to be autistic because it's "trendy")
In other words: claiming overdiagnosis because of recent increase in diagnoses without proof is claiming that currently diagnosed autistics aren't actually autistic, therefore invalidating them.
(and by constantly comparing them to more severe cases their struggles are invalidated aswell, because people tend to assume that if you look fine and just appear quirky that it MUST mean you are actually fine and wouldn't have needed to be diagnosed or have access to those resources, which again is invalidating, extremely presumptious and actually discrimination)
Don't give my opinion so much credit over your own that it upsets you. . It is one person's opinion that matters; not. You make a great argument and I think you are absolutely correct on all your points. @@Eryniell
@@Claudia-se3mp The problem is that too many medical professionals are prioritizing the perceived over diagnosis problem over the under diagnosis problem. There's a bunch of people that aren't diagnosed for purely technical reasons and a distinct lack of any real interest in doing the necessary research to determine how to handle those folks near the edge of the spectrum.
There wouldn't be a massive increase in autistic diagnoses being handed out, if they had added diagnoses to cover the gaps between autism and other diagnoses. It took me 15 years to realize that even if I'm just outside the diagnosable region, that does not mean the traits are necessarily any less severe or that I have any less of a right to treatment and support. It's only been in the last year that I've been pushed hard enough for the traits that I'd been suppressing since early childhood came out in force. But, because of the way that the diagnostic criteria are written, it's a struggle to get any sort of appropriate diagnosis to cover my experience, my needs and to guide treatment in any sort of useful way.
My son was diagnosed at 12,he’s on the high end…he’s 17 now & just started community college,I am beyond proud
There is permanent herbs to improve autism. It’s a medicine you can get from Dr Oyalo RUclips channel, his herbs have made my son improve perfectly in his speech and social skills
I also have Geospatial Savant Syndrome. Savant Syndrome does not mean that you have a low IQ. I am 136 now. That is with Multiple Sclerosis and head trauma from abuse. It would be great if you speak more about that.
I'm not making light of any mental health conditions as I have suffered from depression and anxiety in the past, but I think in today's environment, if you really want to be diagnosed with some form of mild autism, you can. Probably keeps a lot of people in business. I agree with the concept that the "spectrum has been broadened".
No, you probably can't. Which is a big part of the issue that leads to self-diagnosis being an accepted thing. Getting the diagnosis is rather hard. I was able to rack up nearly all the schizophrenia spectrum diagnoses, bipolar, generalized anxiety disorder, OCD, ADHD, major deprssive disorder amongst other things without much trouble based only on the answers to some questionnaires, but getting a neuropsych evaluation to grant an autism diagnosis is a whole other level of complication. It takes records from childhood that those in their 30s and up probably don't have, because the records weren't creative, interviews with non-ND folks that knew you at the time as ND family members didn't see anything wrong at the time and are unlikely to see anything wrong now. A bunch of self-reflection and documents covering the ways in which you fit the criteria.
Even after all of that, if you don't have a good neuropsychologist they may think that you made eye contact too many times, or made a joke an disqualify you. Or, as happened with me, you might have a conflicting diagnosis that only conflicts because they've been tossing those diagnoses out, but is actually relatively common, or it was a misdiagnosis because the autistic spectrum wasn't very well understood when you were racking up all those conflicting diagnoses.. That happened with my attempts at getting diagnosed. There's no question that I'm somewhere in close proximity to the spectrum,there's just some question about whether I'm allowed to have the diagnosis or if I have to settle for a bunch of ill-fitting diagnoses that don't lead anywhere productive in terms of treatment and point towards medications that damaged my brain.
I have no idea where people are going where these diagnoses are being handed out like candy, because literally none of the autistic people I know, formally diagnosed or not, have had that kind of easy time of it.
Had a rather sketchy childhood diagnosis as I was born in 69 and there were not really any diagnostic pathways in place for Autism back then. So it was all kind of done on the hoof through a combination of educational services and your GP. Struggled with terrible anxiety most of my life. I also have sensory processing issues to do with noise, yet funnily enough, I'm a musician. Have also had bouts of depression, burnout, and various other things that have made life rather challenging. When I was born, if you were say none verbal until you were five. There was a very real chance that you'd have been institutionalized for the rest of your life. The mere fact that I started to speak when I did pretty much saved me from that fate. I got my adult diagnosis 7 years ago. Since then have found myself working alongside a few social enterprises as well as NHS Mental Health services because of my Autism experience. I never thought for a moment that my adult diagnosis would inadvertently lead me into newly created job roles. But I think part of the reason for that is because the lady that is the Autism Coordinator in my area is massively pro-active in trying to change things for the better. Which has led me to some fairly cool experiences such as meeting with The NHS Trust to explain my job role as a Peer Mentor and how it works when put into practice and such. I mean little me and two of my work colleagues who are also on the spectrum meeting with high ups from the NHS Trust. Thankfully, we impressed them.
As to Autism being overly diagnosed. I don't know. I think it is a tricky question. Especially given that there are many that slipped through the system when they aged out of it during the 80s and 90s before diagnostic pathways became as good as they are now. This is likely a big part of why you see so many people getting diagnosed now. As those children with Autism from back in the 60s and 70s and part of the 80s are now adults with Autism. And given that the mainstream has always considered Autism to be a childhood thing. They have never had to deal with Adults on the Autism Spectrum before. Though I do think it's kind of becoming trendy for people to self-identify as being on the Spectrum because of all these celebrities. I mean the only ones I was aware of personally before I got my Adult Diagnoses were Daryll Hannah and Dan Aykroyd. The latter of which has talked about it quite a bit as it was his special interest in Ghosts that helped him write Ghostbusters and that was written back in 84 before it was trendy to be Autistic lol. Thought I had always suspected that Anthony Hopkins was on the Spectrum before he publically declared it.
Anyway. Great video and interesting topic. I've subbed and will try and check back when I can between the many plates that I am currently juggling.
There is permanent herbs to improve autism. It’s a medicine you can get from Dr Oyalo RUclips channel, his herbs have made my son improve perfectly in his speech and social skills
I have to disagree with over diagnosis. I think with more awareness through technology and understanding of different representations of autism is different ppl. Boys vs girls, introvert/extrovert etc.
also there is still a major lack of access to assessments and treatments in the USA, affecting low income and minorities the most. Which screws statistics. There are little to no resources for adult women. I was diagnosed at 38.
Also I think it’s important to note that autism is more than a disorder, but a neurological difference. Yes it’s a disorder, but people struggle with that word.
Im curious. When it comes to “severe diagnosis” what is your opinion on separating Asperger’s and autism?
Also isn’t it invalidating when someone doesn’t have resources to get a diagnosis but found validation of who they are through research?
While I agree, some people appropriate mental health diagnosis, I think it’s less common than people not having access to resources.
Great video 👍.
In my experience (supporting /working with people diagnosed with autism) it's coommon for comorbidity to be present. Eg Autism + ADHD.
Comorbidity is very common in the field of psychiatric diagnosis - would be great to see a video on this. 😊
I did a search on APFSM and comorbidity but nothing came up... 🤔.
The disturbing thing to me is how algorithms of sites like RUclips push Autism self-diagnosis content to me on a daily basis. It’s aggressive and persistent and it’s been going on for a couple years now. I have PTSD so I spend a decent amount of time looking for resources to supplement my treatment for that, yet RUclips rarely recommends me content around PTSD or anxiety, but instead it fills my recommendations with click-baity videos about Autism and ADHD. I don’t have these things, but it feels like its being forced on me. No matter how much I say “Don’t recommend” or block entire channels, its never ending. There is hardly a day when I don’t see a video title like “Signs you’re Autistic” “Can you drive if you’re Autistic?” “Normal things you do that are actually Autism”, etc. I know I’m not Autistic, but after seeing these video fed to me for years straight it becomes like subliminal messaging. And I’m an adult. I can’t even imagine how many kids are being gaslit into thinking they are Autistic because they have niche interests or get anxious when talking to a new person, or any other number of normal things, or things that may indicate a completely different diagnosis. One of my friends is marrying an Elementary school teacher, and they give the students an Autism questionnaire in class! It’s not proctored by a medical professional, just by the teachers themself! My friend took the quiz for fun, since his fiancé brought it home to show him, and according to the quiz he is “highly autistic” which is laughable. He had never considered or been suspected to have autism before. My point being, the over-diagnosis and self-diagnosis is certainly out of control and completely rampant.
I have an autistic son and I think it is so important to get the proper diagnosis even though I would not have him any other way. The courses given to me as a parent has been invaluable to help me and families members deal with this. Also coming from a Caribbean background it's another issue not really talked about. From me going on this journey and providing information my brother and sister have also been found to be on the spectrum at 25 and 30. It explains so much
There is permanent herbs to improve autism. It’s a medicine you can get from Dr Oyalo RUclips channel, his herbs have made my son improve perfectly in his speech and social skills
I think they're loosening the standards of what is autism, and many 'high functioning' people are just normal people with normal issues. I don't trust any adult diagnosis. I think people just want a reason for why not everything in life is easy for them or comes naturally to them. They're medicalizing normal sensitivity, socially awkwardness, shyness, and introverted people. Its a joke. Every other person calls themselves 'neurodivergent', and the most curious thing is many seem to want everyone to know about it and advertise it about themselves or find reasons to bring it up, make it integral to their identity (odd af to me).
If you are so convinced of that, you should try and get a diagnosis then ;) it's not as easy as you might think.
bruh.. ur triggering my oddtism
We're not, trust me we're not. We may look OK from the outside, but we have all sorts of psychological problems that come as the result of having to force things to happen for us in ways that cause unnecessary stress. Adults seeking an accurate diagnosis may not even have the necessary childhood records or people to interview from that age to make a proper diagnosis. And if we weren't permitted to stimm as kids, that can completely bar any sort of diagnosis, even if we later are allowed to engage in stimming behaviors. If it wasn't early enough, it tends not to count and if it's something that's diagnosable as an anxiety reaction, it's also likely to be discounted.
We are who we are, and we don't particularly need or want your approval. A lot of us wind up spending decades being abused by the medical profession as they try to force us into diagnoses that don't really fit, and getting treatments that aren't appropriate to who we are. One of the reasons why so many of us are open about it, is because that's the only way that any of this gets better. I had the misfortune of having OCD which delayed my ADHD diagnosis for at least a decade. And because I had diagnoses for OCD, ADHD and basically every other disorder that is confused with autism, I was barred from getting the Asperger's diagnosis because at the time, you couldn't have ADHD and AS. And from what I can tell, even without the ADHD, the schizophrenia spectrum disorders also block any of the autism spectrum disorders.
You may not trust it, but these diagnoses are not easy to get, and even the psychologist that 'didn't see it" just saw the most autistic of all the technically not autism disorders as the likely explanation. It didn't fit super well either, just like most of the other diagnoses that I've received over the decades, it sort of fit-ish, but had serious bits that it didn't explain and wouldn't have led to treatment paths and likely won't even exist with whatever the next DSM equivalent we switch to has.
@@SmallSpoonBrigade if you don’t need my approval than why are you writing this multi-paragraph lecture. It is easy to get, I’ve been through the process of getting an adult diagnosis you can get it in one session with a psychiatrist who you can basically talk into giving you the diagnosis (little to no actual testing involved).
@@SmallSpoonBrigade you have made this your whole identity and the all purpose thing you can blame all your problems on, it’s super obvious by everything you’ve written here.
In my experience (i have a son 13 y.o with autism), the only neurologist that wrote the diagnosis was a paternal family relative, who knew and interacted with my son since he was 3 months. In my country the problem is not the overdiagnose, but the MISS DIAGNOSE. There is a lack of clinical trainment for neuro-psichiatrists and pediatricians in early detection of autism, unless the case is highly severe , and there are a lot of other condicions diagnosed as autism. My son was a severe case until he was 6 years. When he learned to read his development has increased exponencially through years, though he still has some social issues with children his age. He interacts much better with adults or smaller kids. It has been 13 years of mind reading, behavourial counsil and math teaching for me, but as i see it now the 80% of support therapy is parental dedication, 20% would be external professional issues.
Even here in the US where medical professionals should no better, it's an issue. Especially for higher masking individuals and ones with other conditions. I wish there would be more of a focus on midsiagnosis as that's the actual issue and the criteria should have been changed to address the misdiagnosis isssue rather than the perceived overdiagnosis issue.
I have a diagnosis of ASD. In my case, it doesn't feel like a disorder, because the symptoms are so mild. Sometimes I wonder if the diagnosis is accurate, but I was diagnosed by my psychiatrist. I think that knowing the accommodations that I need and limitations are more relevant to me than the diagnosis, because knowing my needs and strengths is what gives me the best quality of life. I hope that who have ASD and/or other diagnosis, don't let the diagnosis hold them back from trying to reach their potential or live their best life.
I think that is important to acknowledge the strengths that come with autism, ADD and OCD. It doesn't mean I hope that more have this difference. Also, it is damaging to the treat any person who has a difference as a tragedy or damaged. It is important to let people who have this, know that it is important to see themselves as capable so that they don't give up on themselves completely. It is important to raise awareness that ASD doesn't automatically mean that the person lacks intelligence. I have an IQ of 119. Non verbal doesn't equal low intelligence or inability to communicate. Speech is not the only method of communication and early intervention can help some non verbal people learn to communicate through writing, sign language or electronic devices.
I have been enjoying your channel and I look forward to seeing more videos.
In my home country if you have such a diagnosis you can't f.e. adopt or become a teacher. So it can be important not to get an official diagnosis. I'm happy you have no bigger problems because of it!
There is also SPD ( sensory processing disorder ) that 6% of the population have. But for some reason doesn't seem to be known in the US very much. I think because they use the DSM not the ICD and for some reason SPD is not in the DSM. Even though it is much more common than autism. It means having hyper or hyposensitive senses, if eyes are hypersensitive: pattern recognition, having sensory overload ect. But no bigger problems socially like not knowing when it's your turn to speak and no breakdowns when routines are broken, no need to have things exactly that way.
I think we need to be careful that people with SPD don't get autism diagnosis, because there are overlaps.
@@danika9411 oh my goodness. What is your home country?
@@chatroom101 Germany. Many students who want to become teachers that f.e. suffer from depression ect avoid going to therapy until they are done and got a stable job. Or you have to pay for it yourself outside of health insurance. That way it's not in any files. But it's too expensive for most.
Interesting. I took my son to a neurologist that specializes in spectrum disorders that performed multiple tests when he was quite young and was brought back, the tests were repeated for a confirmation. He then had a psycho educational evaluation in 7th grade which also discovered further conditions as far as learning disabilities. He then saw a child psychiatrist for treatment of ADHD with impulsivity, depression, and anxiety. I also started therapy with a psychologist. I'm happy to report that he just graduated from a private boy's school that focuses on academics and has been accepted in a good college. It's a lot of work, but it can be done.
There is permanent herbs to improve autism. It’s a medicine you can get from Dr Oyalo RUclips channel, his herbs have made my son improve perfectly in his speech and social skills
It can, the first step though is knowing what you're dealing with. And that's part of why the obsession with overdiagnoses rather than misdiagnoses is such a problem.
I suspect I have autism. I did go looking for it, not in a "I think I might have autism" way but I was in my twenties and my mum watched an interaction with me and our neighbour. After the conversation my mum said: "Sometimes talking with you is like trying to get blood from a stone" and I had lots of similar comments before so I went looking for something to explain it, which is when I found out about autism. I've never gotten a diagnosis, which is why I say suspect. When I've done AQ tests online, I score highly but they're not diagnostic and I'm very wary of self-diagnosing, especially when there's so much I don't know.
When I see how much some people suffer with autism, I feel like I shouldn't go for a diagnosis, because I would be classified as high-functioning and don't need it, especially when the NHS is already struggling. Then there's the issue with do you tell employers etc. or do you just allow people to take you as you are and form their own opinion.
You aren’t autistic. Find another trend to jump on, like being a gothic or something
@@katehenderson8194 How do you know, I'm not autistic?
I'm not trying to jump on a bandwagon. That was part of my point in my comment.
@@prigg88 You might well be, and you're doing the right thing. Traditionally, you'd take all the scientifically validated questionnaires. Copy down the diagnostic criteria and go on a deep dive through your life to find as many of the things that point to and away from that being an appropriate diagnosis. If you see the list and still think there's something there, or you need a second opinion, you'd then book a neuropsych appointment and get a thorough evaluation done.
You definitely should go get a diagnosis if you think one is possibly a fit for your life experience and you have the resources/access to do so. One of the reasons why the over diagnosis myth persists is that the higher masking folks are settling for self-identification and making our own life adjustments. The more actual diagnoses that are handed out, the harder it is for doctors and medical professionals to pretend that we don't exist.
I'm going to give it another go later on, and a lot of it has to do with the sheer number of misdiagnoses in my records.
So....once I was watching a "scary" movie with my friend, and at one point she got so scared she repeatedly slapped herself in the face....and every single time you do it, I just think about her and I laugh so hard I split a gut 😅😂🤣😭😂🤣😅☠️☠️
A lot of times children are diagnosed with autism when its just behavioral problems or bpd
I don't think it happens as much as it's made out it's hard to get a diagnosis and takes a long time, so many assessments and school reports need to go into it (if a childs school has even put them forward for it) I think there encouraged a lot more not to now because it means giving out echcp and more money, might seem that way as parents saying there children have Autism as like the video says parents self diagnosing and saying there child has it when there still maybe waiting to be seen?
In the past schizophrenia was often diagnosed in place of autism. Or they were described as deaf and dumb where they were non verbal. Hard to tell if what you say is true.
Maybe more people are getting the correct diagnosis of Autism then and that's why it's on the increase?
I just think a lot of people are judgemental of Autistic children/parents behaviour especially if they are high functioning because they don't see how something like a slight change in routine can upset them and just think there having a tantrum? My Cousin can't even decide to just nip to the shop she she needs something she has to start telling her 8 year old and give him an hour to go through a whole "melt down" over it.
That's funny, I've noticed that children are continually called a problem child and punished for lashing out at other kids, and then later finding out they have asd 😬 I mean, coming from people with autism speaking of their experiences getting diagnosed, actual autistics can't even get a diagnosis without a decade of treatment for the wrong thing first, so....
@@middler5 Yes, and that's part of how Schizoid Personality Disorder came to be in the schizophrenia spectrum even though it has little, if any, connection to the other disorders. In fact, it looks suspiciously like an extremely masked version of what used to be Asperger's Syndrome and if you go poking around in the professional research, you'll sometimes see the two terms used largely interchangably, only really varying in terms of when the diagnosis was made with AS being more typical at a younger age and ScPD being at an older age with a lot of grey area in the middle if the demands didn't exceed the capacity at the right time to be a clear case one way or the other. It's also part of why ScPD is one of a relatively small group of diagnoses that don't require clinically significant suffering as part of the diagnostic criteria.
Every time I watch these videos, I can't help but crack up. Hilarious.
Arguably a lot of disorders like bipolar were made up to explain autistic traits that didn’t fit standard definitions, especially among the ‘high functioning’. For example, rates of autism diagnosis in women is substantially lower than men, yet rates of bipolar are higher in women compared to men. Also, Autism, adhd, Tourette’s and bipolar all share common genetic markers. Perhaps a large minority have always been autistic and psychology invented other labels where autism would have been sufficient.
Interesting perspective and nice to see an perspective from the medical side of things. I agree that ASD is a disorder, it is by definition and is also classified that way currently. My issue personally is that it seems to be overly medical. I accept that a diagnosis needs to be medical but I hate that this means people are diagnosed based on their 'deficits' and 'difficulties' which I think paints the wrong picture. Yes, some of those with ASD struggle and need more help than others but I feel that a focus on the negative aspects of the disorder ignores the strengths that those with ASD can have. I think 'differences' (in line with the social model of disability) would be a better term to use and hopefully the global community or at least the NHS will move towards it.
I must admit, I understand the point about the possibility of over-diagnosis being an issue with ASD. I'd argue that with some of the content online, this likely applies to many other diagnoses too and will be particularly worse in any areas where access to formal diagnoses are not accessible. I would expect the proportion of the recorded autistic population to rise going forwards really. Our understanding of the disorder and resulting diagnostic criteria will improve over time so surely we will be able to identify those on the spectrum more easily. I wonder if part of it will be a bit a result of wider social awareness and understanding. I'd spent years working in education and had regular training about ASD whilst also teaching students on the spectrum. I never really spotted it in myself until another family member was diagnosed. I've heard similar stories from parents who were diagnosed after their child was identified too. I think there is a likelihood that there are many on the spectrum currently undiagnosed, particularly those with minimal support needs. I'm not sure about over-diagnosis but I feel that a certain proportion of the autistic population has likely been under-diagnosed or mis-diagnosed historically due to the understanding at the time.
My older brother was assessed by 2 psychs as a child (His school thought he was stupid when the psychs said he was intelligent, bored and wanted to do other things while the other students were farting around). Why two? The school didn't like the answer the first one gave. He's nearly 40 now and everyone who spends time with him agrees he has all the signs of high functioning autism, would there be any reason why he wouldn't have been diagnosed by the psychs, years ago?
I’ve never heard you explaining psychology from a behavioural perspective. Say non linear contingency analysis of mental illness as well as other presentations such as depression, anxiety, impulsiveness etc.
Incredible thanks always x respect x appreciate x wonderful man and deliverer of information 👌🏽😎
I was diagnosed at 32yo following my oldest son being diagnosed at 8yo. I think some of the reason for the increase in diagnosis is that the presentation of ASD in females was historically not well understood. There is more information and research available now around how females present quite uniquely with ASD whereas the initial research centred around males. This is quite a strong theme in the autistic community with women often waiting longer to receive a diagnosis or requiring input from a clinician with established experience specifically with women and ASD. Masking presents a challenge to diagnosis as females tend to mimic the people around them more convincingly despite not functioning well outside of these situations.
It's a relief to have received my diagnosis, and also a relief to my mother. My world made so much sense at that point.
It is most definitely a disorder. I struggle daily and my son does as well. I also absolutely loathe the functioning labels, it's unhelpful and misrepresentative honestly.
Howdy Dr. Das,
I think sometimes in the USA parents and sometimes even doctors use autism as a catch all. If the (regular doctor not psychiatrist) is unsure of what is wrong with you or your child they say you have autism. When I was an undergraduate I worked with autistic children. The autistic children were non verbal, they hand flapped with one or both hands , they liked being chased and did not like being touched. Some would sit on the concrete outside and move ants around with a blade of grass and loved it . Get pissed if you bothered them. LOL ( They were a trip for someone who had never even heard of autism before that class. Especially the hand flapping LOL ) They really did not bond with other human beings including their parents. Those kids would all eventually be placed in an institution, especially the boys. The boys tended to be large and would become more aggressive as they aged. I don't know how anyone could handle them at home without bouncers (staff)in their house. They could be dangerous. At that time the autistic spectrum was somewhere out in space. Just like you say every other kid has autism. Believe me most of the kids I see in schools have bad behavior not autism or the spectrum, but this is just an opinion.
Yes Claudia.
I completely agree. I think people appropriate it as a diagnosis, though not intentionally.
So, do you believe the diagnosis should go back to just the kids on the severe end (that you're describing here) be referred to and treated as autistic and those mid to high level functioning should have another diagnosis? I might be misunderstanding but it sounds like you're comparing kids with ASD, anywhere on the spectrum, with those fairly severe low-functioning kids you worked with years ago. As you say, these are kids that would be institutionalised so they aren't the same as those on the spectrum you're seeing in everyday settings.
I've certainly seen bad behaviour labelled as ADHD way too much and then get their kid's prescriptions for Ritalin so they can sell it on the streets and parents deliberately training their children to behave a certain way to get a diagnosis for the funding and personal carers - which angered me greatly as this means they took resources from other community members with more severe low functioning symptoms.
@@Secret_Soul_Survivor I guess teaching children to behave as if they have ADHD for parents to get hold of Ritalin to sell is common practice where you are from. In the USA it is common practice for the parent to be the one taking their children's drugs. I can't help parents that are criminals nor can I stop their bad influences on their children. It is just a sad reality. . What I am saying is it doesn't help children if they are misdiagnosed with autism. Some of the same symptoms found in autism can be found in other disorders such as conduct disorder, intermittent explosive disorder, bipolar-disorder as well as ADHD etc... Using Autism as a catch all is unhelpful to the child or the patient who really needs proper instruction , medication and outpatient therapies to help them understand themselves and the world at large. Whether you told you have Autism, diabetes, depression, heart disease or ADHD they are long term chronic diseases or disorders that will effect the entire family. It is a family problem not just the patiences problem. You want the proper diagnosis for the proper treatment and care for the ones you love. I do not believe in" I don't know what it is .so lets' call it a form of autism."
Where is that happening? The schools don't have the resources to make that sort of diagnosis. It is a bit easier to make a diagnosis on children than adults, but there's a lot of stuff that ideally would be checked before making a diagnosis. Schools just do not have the resources for that typically. Especially not as a catch all. The only kids that I encountered that were autistic when I did my student teaching and observations were showing pretty clear signs of the disorder that went well above and beyond a convenient excuse for the school not being at fault for what went on or as a means of securing funding for additional support.
I was diagnosed with autism in 2006 and I don’t think it’s a misdiagnosis (I’m not an expert so it could be I suppose) but still do not fully grasp the struggle people and families of people with severe autism face. When autism becomes culturally appropriated as a result of the increasing awareness and diagnosis of autism the severe cases of autism are left in the dark and the daily struggles of autistic people and sometimes their families.
I'm admiring how your shirt color matches the flowers. Think I might be on the spectrum?
I love how he puts jokes in and make it fun to learn more about subjects
It’s definitely over diagnosed
I got falsely diagnosed with autism at 15 It sucks
@@BritneyArmy101Please can you explain why you were diagnosed with autism? I'd love to know how you were misdiagnosed with autism. I'm autistic myself (unfortunately not misdiagnosed with it), it shows some professionals are clueless about autism but so are so autistic people themselves.
@@BritneyArmy101 And I got falsely diagnosed with not-autism in my late 20s and that sucks as well.
Misdiagnosis is the issue not over or under diagnosis.
@BritneyArmy101 so if you are asserting 'it' is overdiagnosed, please back that assertion up with something. How many people are incorrectly diagnosed? How many people are actually diagnosed?
So this highly vocal psych says in his book released only 2 years ago States that autism is a learning disability 😮 he also uses functioning terms. Did he last study anything about autism in 1990??
With the upcoming changes in the mental health act, should a patient with autism as a primary diagnosis be detainable?
I was diagnosed after doing my 'research' and seeking a diagnosis, 4 years on from the journey I actually don't think it's the correct diagnosis. I think I was likely misdiagnosed - I also had the honeymoon period where I thought it explained everything but it really didn't. What was much more helpful was learning about myself - I'm certainly eccentric but it would be inaccurate to say I have clinically diagnosable Autism. I think that possibly I'm far from being the only person with this outcome, but it's a hard thing to admit - especially when all the people around you have bought into it.
You sound so anxious!!! Get re evlautaed dr with good reviews some meds temporary life skills therapy. sound right I hate this bs greed game that btw drs get money for every diganois from insurance. Can’t even give details out but I was misdiagnosed with a lot of shit bc someone wanted money from everyone
Also, Im diagnosed ADHD (and a few other things like BPD) and my nephew is diagnosed ASD and nonverbal. Every so often I see how similar our neurodivergence is and question whether i was misdiagnosed bcs im female before realizing im 100% ADHD, cant be denied! The superficial overlaps between so many disorders are fascinating to me!
If you've gotten those diagnoses, it's probably not a bad idea to get a proper evaluation done as it's not uncommon for a BPD diagnosis to be a misdiagnoses for autism. But, OTOH, that is a lot of work, can be very expensive, and you don't necessarily get that much out of it.
Thanks Dr Ominous Shahominous, your channel rules!
Glad you think so!
It took me 6 years for my son to be diagnosed despite countless specialist visits and intensive therapies (many types) from a young age. I was afraid I'd be offended, but in fact I was comforted by this, THANK YOU!
Hi, when I was a child I had ocd and intrusive thoughts and I was put on medication aged 30 for depression and diagnosed by a psychiatrist with BPD and given five years of weekly psychoanalysis at the Borderline unit in Newcastle. Throughout this time I became psychotic and suicidal. The treatment did not help and as you know DBT later became approved as a better treatment for Borderline patients. I was given hundreds of different medications and later I entered private therapy at the NGP Jesmond where I was re referred to a different psychiatrist and diagnosed with Female Autism. I've been in weekly therapy there for eleven years and am now stable without medication. It has taken a long time to undo the damage I experienced at the hands of the ignorance and damaging treatments I received under the NHS. It has cost nearly £30000 and twenty years of my life. The repercussions affected my whole family and four of the five of my adult children are now also in private therapy. I really am happy that Female Autism has become more accepted and understood. Masking can look like lack of effect and even narcissism in some female ASD patients and meltdowns can look like a psychotic break or an EUPD episode. I'm so glad that progress is being made with awareness. My first psychiatrist actually graduated from Oxford university and he was struck off. I felt so let down by the system. Thankyou for your channel for those people who can't afford treatments and access to psychiatrists for diagnoses. Waiting lists are so very long. I was lucky I only waited two weeks from referral to diagnosis for Autism six years ago. The waiting list here now is averaging two to three years. Best wishes Amanda
I'm at the beginning of the video. One trend I'm seeing is that SPD ( sensory processing disorder ) gets overlooked. I think it's because the USA/ Canada both use the DSM not the ICD like most of the world and in the DSM SPD is not recognized. Because it's not a mental disorder.
It means that one or more senses can be hyper and/or hyposensitive. It can come with sensory overload, meltdowns, pattern recognition if sight is affected, stimming. BUT people have no bigger problems in the other 2 areas, don't need routine as much and can read social situations. They might get tired more easily or be moody when overloaded if they have a tendency for several senses being hypersensitive. Also tip toe walking in children, stimming, arm flapping, needing to move around, chewing on hair ect.
Then there is also hyposensitivity, which looks different again.
If the skin is affected not liking some textures, putting on clothes ect.
I heard the description from a mother who has 2 children,one with autism and one with spd. If a person would catch fire her autistic son would want to help but not instantly know how to help, her spd son would immediately understand the situation and run to get water.
Of course this is just one description. You can think about it like this: You need to score high in all 3 areas: sensory, interpersonal and routine. spd scores high in sensory, but only a little bit higher or normal in the other 2.
With what is going on right now I think we might diagnose spd children with autism sometimes. Even though around 1% of the population has autism and 6% spd. Spd can come in combination with other diagnosis like ADHD and fetal alcohol syndrome ect. If you count all of that together around 20% of the population has a form of spd. Yet this is not talked about enough.
Dr Das, you spoke about lack of services. I’d be interested to know what service availability looks like in the England and other European parts? I can only speak to our experience. From what our family has see availability of services in many US states is nil to none. Our fam has been on the waitlist for an appointment with the clinic where we received diagnosis and are very well established with for a little over a year now. The need for services since the epidemic has really increased because of its psychological ramifications. Ramifications that are particularly difficult for those who depend so much on routine. Do you think our deficit is mostly due to our for profit medical system? Or have services not caught up with diagnosis rates?
I think it's all about funding. There's just not enough money to keep up with the growing need for mental health services.
@@APsychForSoreMinds Which isn't really true. If you're talking about the sort of people that might be not autistic diagnosed as autistic, these are people that are already getting services. The services are usually for other diagnoses like anxiety, depression, BPD, PTSD and the like, but they're probably getting services already. A diagnosis just means that rather than spending money on inappropriate treatment, it gets spent on things that might actually address the problem. It also means that perhaps there can be some funding to actually get to the bottom of all this, figure out if these people should really be lumped in with ASD or if it makes more sense to create a separate diagnosis like they did with SPCD.
I was diagnosed as autistic and dyslexic at the age of 27 after starting my degree and finding it difficult to keep up with my fellow students, not fitting in when group work was called and preferred to do the work independently. I have to apologise for things I do because I have a very particular way of doing them or I have a problem with the texture of something or too many things happen at once and i know that people don’t understand but all learning disabilities aside I am not stupid, slower yes but not stupid and when It comes to learning, peak my interest and I will not stop trying to learn and I will learn as much as the subject has to offer. I prefer to say I am wired differently and that makes for some new perspectives normal situations….
Thank you Dr.Ominous Sohominous for always spreading the right information...As far as I know, I haven't seen anyone in my family or in my village diagnosed with autism, I don't think it's because all are perfectly fine, maybe we Indian's are not taking mental health care very seriously, atleast this is true for people in rural areas..
(Heads up: this is a subject that's very important/personal for me so I might be showing some stronger emotions here: I hope you are able to read through this with an open mind)
let's just be clear about one thing: as far as I'm aware there is absolutely no proof at this moment that there is actually a significant overdiagnosis of autism happening.
Self diagnosis does not count as "officially diagnosed" (and those who self diagnose DO know that)
but some people....MANY people don't have access to official diagnosis, because of their financial situation OR because of fear of the stigma and then there is another more well known fact, that the current autism diagnostics are not only flawed, but there are also many psychatrists who seem very biased for whatever reason who then start taking things like race, gender into account, don't actually take the patient seriously and dismiss due to high masking autistic adults OR they only know how to diagnose children and put adults through the same, often humiliating tests, which then also don't take into account that autistic adults grow and mature like any human does.
And let's not forget that part of why the autistic diagnostics are so flawed, is because generally everything is based on observations by others. Those people which are parents, caregivers, teachers etc. all of them who have an existing relationship to that autistic person, whom can influence how they perceive the autistics behaviour in various ways.
And because most only look at external signs and symptoms, there can be a lot of overlap with other conditions.
As example, on the outside you see someone avoiding eye contact, but how do you know if it's due to trauma/anxiety or autism?
or if someone is socially awkward or has difficulties, how do you know it's autism, social anxiety, depression or just having grown up in an environment where it wasn't teached and presented in the way you expect? either due to culture differences or growing up in a neglective/abusive household.
Of course those are just examples and I want to hope that someone who works as a psychatrist DOES take those kind of things into account and does question themselves on their own biases, BUT I have heard it way too often and even experienced it myself on how me and others have been dismissed, ridiculed or similar for the most ridiculous reasons.
like being told that "you can't be autistic because you are making eye contact"....or that "xy can't be a special interest" or "you have friends so you can't be autistic".
Not to mention any subconscious kind of judgements like women being more likely diagnosed with anything else but autism just cause they present differently.
And I absolutely don't understand why anyone thinks that self diagnosis would give anyone anything. You DON'T get access to ANY services for autistic people (for which there are very few, too few anyway in the first place) and that anyone would WANT to be autistic (it still has very heavy stigma and alot of missconceptions in the general perception within our society, like autism and intellectual disability often being confused with each other), not to mention the inherent trauma from being an autistic person in this society where the majority is neurotypical.
And on top of that, the amount you have to go through to get diagnosed is horrendrous, alot of people where there is free healthcare have waiting times of 2-4 years before they can even be seen by a psychatrist to be evaluated, with private care it can still take about 6 months to a year before being seen for the first time.
And then at every corner you are actively discouraged to seek out this diagnosis, because of the stigma, because there are some jobs you won't be allowed to do, because there is no cure for it, so they think it's not really necessary if you are "high functioning" (the term thats supposed to not be used anymore but still is by many).
Or indirectly discouraged by not even referring you to a specialist because the non specialist decided that you don't need it (in some countries you need referral from a general care provider to even get access to a specialist, which, that system has it's own flaws, even if I can understand why it's done that way, but a GP will never be able to replace specialist knowledge especially when it comes to subtleties unless they just coincidentially had an interest in learning about this very specific topic).
sorry for the outburst...I just have been seeing so much about how "self diagnosis is dangerous" and "autism is overdiagnosed" and claims made like "people diagnose themselves with autism through tiktoks" or "self diagnosed people are harming autistic people by taking away resources"....there are so many assumptions being made and often very much from an outside perspective, with no interest to actually look deeper into it. No questions asked just judgements being made and it doesn't help anyone.
There are alot of people suffering who have been gaslit their whole lifes about certain experiences they have had by everyone around them, because they felt and acted differently and they didn't know why. It's important that we make things accessable for them, not by "softening" diagnostic criteria but by better understanding of what it means to be autistic.
Instead of pushing away people who self diagnose, we should try to figure out what do they have in common and why are there so many of them?
Clearly somewhere something is going wrong currently on the state of official diagnoses if there are "so many" who are self diagnosing...
Another note: Self diagnosis for autistic people is a long an ardeous process, it takes often years and is not done spontaneously. And they mostly do it for themselves to find out what kind of things they can do to help themselves, not for the label, but for self understanding. It just so happens that some of them decide to be public about it and try to help others aswell who might be struggling with the same things. this should not be condemned.
I take issue with you categorizing this as being "a bunch of kids" when a significant portion of the numbers are coming from adults that should have had a diagnosis as children, but couldn't because the diagnoses didn't exist. There hasn't been that much of a change for kids, but there's been a massive spike for adults. I was 14 when the DSM IV was released, and I'd already gotten some pretty hardcore diagnoses that were wholly inappropriate for a teenager. From that point on it pretty much guaranteed that I wouldn't get accurate treatment because I was already classified with some pretty hardcore. By the time clinicians had enough experience with the diagnoses to actually understand how it worked, I already had nearlly all the schizophrenia spectrum diagnoses, bipolar, major depressive disorder, OCD, generalized anxiety disorder.
Inaccurate diagnoses are a very big problem, but I'm hardly the only one that has been so abused by the system. I would have had an Asperger's diagnosis, when it existed, but I already had an ADHD diagnosis and nearly all the schizophrenia spectrum disorders, so I couldn't have that diagnosis without getting those removed. I didn't bother because there was no support, treatment or general knowledge about how to deal with higher masking presentations of the disorder and had no idea that they were going to shrink the portion of the spectrum that I'm on and grandfather in the folks that already had a diagnosis and treatment plan. With whatever comes after the DSM 5, that's going to get worse as currently, the closest diagnosis for me would be Schizoid Personality Disorder, but just like with all those other diagnoses, it's not a particularly good fit. I can superficially look kind of schizoid, but it doesn't explain any of the traits that are mostly just associated with some sort of developmental disorder.
There's far more research needed and it was an absolute travesty that the criteria were changed without paying attention to the research or with any consideration for the folks that are impacted. The people who got removed from the spectrum weren't able to participate in the discussion because we were either too impactd by the disorder to participate or didn't know what it was that was making our lives so much harder than it is for everybody else.
TL;DR, this isn't an issue of the kids, the kids were always there, it's just a massive number were missed and we're starting to catch up in terms of diagnosing the more subtle cases and the adults that didn't even have an available diagnosis.
@josephmartin1540
0 seconds ago
I hit “like” hoping to see part two. Hopefully you will answer some criticisms to this which I might have posted. For instance, merely sighting diagnosis rates in the seventies would be a false premise. One would have to show that those diagnosis were “good” for the argument to be valid. I do believe it is over diagnosed while having hidden my own childhood characteristics for almost seven decades… two people are still living who might have noticed! In the US it is EXTREMELY difficult to find an actual expert… self diagnosis IS very dangerous, but can be the only way, in our system, to understand one’s lifetime of being “weird.” I felt belittled at first during the video, but encouraged after watching the entire video. PS. Should I to find an expert, I would be Level 1. My younger brother is level 3 with comorbid brain damage. I’ve studied this since 1968. Thank you!
I was diagnosed at 52 I knew I was different and struggled all my life .I don't know if its overdiagnosed but I think alot women are missed.
Well what’s part 2?
It's very interesting how speaking out against a thing brings more awareness to the thing itself. Kind of generates the opposite consequence of the intention.
Hi dr das thanks you for your videos, I have 2 children with autism, and both are in specialist school provision. I’m a single mother and my life is dedicated to getting them support. It’s took years of fighting the system to get the support. In total my children 12 and 9 have been out of school 6-7 years as the main stream schools can’t meet there needs. This is an epidemic due to no recourses available. Mental health don’t really have the support for asd children now either.
I agree is is a disorder if it wasn’t then I certainly wouldn’t have been through all this twice. The suffering these children go through and the complex autism mental health profiles they have are debilitating to them and there families. We are in a fairly good place now and I’m hopeful and positive for there future. I do also know the risk of a troubled and difficult future also very possible. With severe mental health in children and with my children’s complex diagnoses. Life won’t be plain sailing but you have to take action when needed and enjoy the good times. Minimise the harm to them selfs and others and hope with age things improve, my children are improving but I understand this is not a liniar process. My 13 year old lives with extreme intrusive throughts of hurting herself she’s had hallucinations and ocd ect. For a lot of parents with autistic children the struggle is real. Am I bothered by it being called a disorder absolutely not. I will do my best for my children and get them the support they need.
I have no time or want to argue that point. I think it’s more important to help society to understand the disorder, that’s far more valuable to our children and there future.
I’m just going through all your videos atm and really enjoy your content. Thank you.
Adhd is also seriously overdiagnosed
My biggest problem with the over-diagnosis is that people who have no training (or sense) are often the ones to throw the autism label at someone else, now. I know someone who is very shy. Just that. Shy. And recently I heard someone describe her as autistic because she doesn't "behave normally" around others, meaning going to bars to hang out, parties, football games, etc. Just because someone doesn't like parties and prefers to be with people she already knows, doesn't make her autistic. Introverted, yes. Autistic, no.
Ok so... myself and my kids would be considered *high functioning* autistic. But we struggle with stuff that should be easy, and we have a hard time getting help because we can "present" as "normal". It is a disorder, but I think peeps who say it isn't, are those who are fighting stigma and prejudice, but at the same time are considered "high functioning".
Ive been bingewatching your videos, theyre so interesting! ...but please upgrade ur mic!!!
I might be one of those ppl with a SPD lol I hear the music a little too well, but your voice sounds really muffled in comparison so its really hard to focus!
I was diagnosed 2 years ago, but I’ve always found that I can read body language and social behaviours normally. If anything, I’m more socially aware than the average human. I’m sensitive to certain noises, especially if they come from my adoptive parents. I’ve always found my anger is always directed at my adoptive parents and I feel a need to control them, so they don’t control me first. It’s even worse with my adoptive mum, because she makes my paranoia worse. If she closes a bathroom door I feel a strong urge to go and open and then close it, just to annoy her because I feel like she does it on purpose to irritate me. When I was a child I wanted friends and always made friends but gradually I’ve lost my reason and motivation to mix with other people. I don’t really want friends anymore because most people are nasty.
WTF THIS THE SHIT I HATE!!!! GOOD EXAMPLE OF PTSD AND A MOOD DISORDER WITH ANGER ANXIETY UR PROBABLY NOT AUTSITIC
Great. A couple of questions: How influential is DSM V in the UK? Who is Yvonne Bombay?
@@jamyDodger DSM is the American Diagnostic and Statistical Manual of mental illnesses for which their health insurance schemes will pay up. Still trying to discover Yvonne’s identity.
@@jamyDodger I fear you might be right.
surprised you are still describing it as disorder when current trend to reduce stigma is to recognise it as a condition
I'm surprised that you're surprised. I literally address this exact issue within the episode.
I'm late to the video however, my thoughts: my oldest son was diagnosed 18 years ago. Didn't speak until almost 4, late walker etc. The diagnostic process took over a year in total and many allied health people involved in that. They assessed other things too such as, was he being neglected... Since then, my subsequent 3 children were also diagnosed and more recently so was I.
My opinion is that there are certainly people who were missed in the initial statistics and that Autism is more prevalent than previously thought. However, I also think current lifestyle, expectations and stigma around other mental health diagnosis and or social status has meant we have seen an increase in diagnosis, and sometimes misdiagnosis. My belief is that we go longer let children be children, we rush them to grow up and the competition we feel with others means children are pushed to skip vital developmental stages, I E. Crawling which have an important role in brain development.
Further, we expect kids to sit and behave at school all day, come home and sit and behave there too. The opportunity to play, to climb, to run and ultimately burn energy and develop essential neural pathways is missed which then leads to coordination issues, behavioural and sensory issues etc.
Also, parents have so much pressure to work work work and are exhausted.....as soon as a child acts like a child they are therefore labelled difficult and taken to a dr for a diagnosis when what they actually need is a parent who understands they are a kid doing kid things.
I also think that health funding models around the world are impacting diagnosis. For example, in Australia an autism diagnosis is likely to get a person disability funding for support workers etc. There are an awful lot of children in the child safety system with a diagnosis, I would guess many of those are suffering from the effects of neglect or trauma but those things aren't funded like autism so the diagnosis is pushed.
I know this comment may be controversial but it is my opinion only based on what I have seen and experienced and I am not trying to trigger or cause upset.
I have autism and I think it’s being over diagnosed and appropriated. SPD,obsession, ECA, ADHD, social anxiety, panic and anxiety disorders,etc mimic autism but are not autism. The problem with it being over riahnosed is the disability appropriation a lot of kids and adults are actually not sutosyic are just shy, socially awkward, have speech and language issues like stuttering lisp or mumbles/whispers, talk to themselves, or walk/behave funny. ASD needs to change its difinition or else eventually autism is going to be everyone had it. Spectrums are dangerous forms of defining real struggles and issues fsce with individuals with the condition. I know Reddit disagrees with me as much as I disagree with them being a credible source for information. Reddit and Wikipedia are forms of social media and opinions than fscts.
It's not being over-diagnosed, It was being massively under diagnosed due to various misconceptions and there was previously no diagnosis to cover large portions of the spectrum with anything that could lead to support and/or treatment. The only reason that I didn't get an AS diagnosis is that I had conflicting diagnoses because I'd already been kicked around the mental health system for over 15 years before anybody thought to mention these new fangled DSM IV autism spectrum diagnoses. At the time, it was not permissible for somebody to have an ADHD diagnosis and any of the autism diagnoses. With the DSM 5, that changed, but the DSM 5 narrowed the spectrum significantly when it comes to higher IQ people, without providing any sort of alternate diagnosis to allow for support, treatment or further research. And it also fails for people that are dissociated enough to not be doing the stereotypical stimming as well.
The lack of competent diagnostic criteria and lack of research before changing the criteria has led to a situation where there's a bunch of folks that are left with self-diagnosis because the necessary supporting paperwork to justify that this started early enough to be considered developmental, just doesn't exist because it wasn't collected in the first place, and whatever was collected was probably destroyed.
EDIT: So, when are we going to get professionals that actually know what they're doing? They can't even decide what the diagnosis should be, can't be bothered to let research guide the decisions about where to draw the lines and can't be bothered to have a diagnosis to cover people that have something going on that requires support, accommodation or treatment?
What is this U Bombay you speak of?
I refused to get treatment for one of my sons, didn't believe in the meds. He's struggling with being adult, hard to know I aided in that. Now he has no financial way to get the treatment he needs. All because I didn't believe in mental health issues.
I was also diagnosed at 38. Growing up I was thought of as a weirdo, but never had trouble making friends despite this. Less of a weirdo now, though still have trouble with a few things. I find i don't get upset when I have to deviate from my routine, but its hard for me to remember when I have to, so I might miss an appointment, for example. I hate ambiguous driving directions , espcially when navigating traffic. Grooming and such could be difficult. I shower, put on clothes, deodorant I think I'm done. I have a hard time paying attention to wrinkles, shirt tucked in, collars bent up, or toothpaste on my shirt, often missing finer other details. I can hold a job, going on 8 years at my current one. Dating has been extremely difficult. I find it rare my attraction to women is more than lukewarm. Exceptions usually involve a woman who is especially intelligent and/or funny.
If you leave it up to the Physiatrists what do you do if you are happy with 'accepting' who you are. Does the general public actually 'require' a diagnosis? How do you overcome the 'stigma' that is often associated with people who have been 'diagnosed' with any perceived 'disorder'. We live in a world full of people where many are often keen to 'label' others in order to make out that they are 'superior' to them. Jane Austin is another person who some have thought was autistic. Could you explain the difference between mild autism and asbergers? Thank you again for all your videos. The 'stigma' surrounding mental health also needs to be specifically addressed. We all have value and high self worth. You are totally correct and your approach is right. We need to have more 'respect' for individuals and accept them as they are.
I think my 20 year old daughter may be on the autistic spectrum even though was told no by paediatricisn when she was 5 years old as she couldn't speak properly. Some of the symptoms you mentioned in another video match some common traits she has. Her dyslexia tutor mentioned she may be so she's now willing to check for herself. She is easily agitated, struggles to process information and yet can remember songs, scripts as studying musical theatre. She struggles define between Don't do that and I didn't do that even though she hadn't.
"I`m a weak weak man and I need the validation".....well that is pretty honest!
I was diagnosed on the Autism Spectrum when I was 17 years old, I was born in 1991. And a few years ago I was also diagnosed with Schizoaffective Disorder Bipolar Type. I was in two different Special Education schools as a kid and I've been to a juvenile detention center and I've been in different psychiatric hospitals 6 times in my life, because of my problems.
You sound a little bit like my cousin, who was born the same year. Are you doing okay these days?? I hope so. I know medication is important. Even for me, and my main struggle is generalized anxiety disorder (w/wilddddd social anxiety although I’m socially adept) and depression. I feel like the pandemic made things worse. I hope you’re hanging in there!
Super funny today 😂 & helpful
I agree with all the reasons stated at the beginning of the video. One that was not mentioned was advanced paternal age, as people are waiting later and later to have kids, particularly men. It was thought this was a phenomenon only women experience until recently and was historically overexaggerated while being completely overlooked in men. But now we know sperm quality also degrades over one's lifespan.
Where is part 2 is it up? I can't find it...i may just be being daft...
I have a lot of professional and personal experience with autism, my daughter has it and I've worked a lot as a physical therapist assistant with kids who have autism. So I have a lot of very accurate knowledge on the subject. I haven't been diagnosed, and I'm a little afraid to talk to anyone about my suspicions, but I meet so much of the criteria that it would be hard to believe I don't have it. My daughter (she's an adult now) is certain I have it, everyone that spends extended time with me is certain I have it. I did not grow up in a family that would have sought out or accepted a diagnosis of any kind, so I've very much had to deal with it alone. The one time I tried to talk to a therapist about it, I was told a diagnosis doesn't matter and it wouldn't make any difference in my life, so they wouldn't even bother to address the possibility.
Anyway, I agree that generally self diagnosing isn't a good idea. But in some cases for people who haven't had access and are very well informed, I don't think it's terrible to accept the likelihood. I really need reality, and I can't pretend I'm a degree of 'normal' that I'm not
I don't know that anybody really thinks it's ideal. It's just that the process of getting a diagnosis is expensive, time consuming and there may not even be anybody available to do the diagnosis even if those other barriers are surmounted. And even after all that, some of us have received what is essentially a "I know you are autistic, but the DSM won't permit a diagnosis unless these other diagnoses are removed, which I'm not allowed to do because I didn't make them" result.
Can’t watch this with the music. Might be good
might be good, might be bad. but you'll never know. all because you couldn't get past the music tsk tsk tsk ...
Should someone who is borderline/high-functioning seek a diagnosis or not?
ADHD kids being kids get diagnosed with ADHD these days.
Its been that way for 15 plus years!!
What was the weird mosquito noise in the background? But thumbs up for the Yo momma joke
I have a very severe burn out. I think it is brewing for years and since almost a year it is at its peak. If anyone would diagnose me at this moment, just looking at the last 2 years of my life, I would have a depression (I can't sleep even though I am exhausted, I feel exhausted all the time, I am not really happy, get angry real quick, etc.), I have schizophrenia (for instance, I lost my remote control of the tv and I blame or my five kittens of nine weeks old playing with it and shoving it somewhere where I can't find it, or someone sneaks in the house to place my stuff where I can't find it (I lose things all the time, like 40 times a day, so it must be leprechauns, right? (I know the kittens are to blame, for real)), and definitely autism. I cannot handle someone putting something in a different spot than I want it to be. If it is on the floor, let it be on the floor. The knife should be on the floor, because I don't want to pick it up 20 times a day. And please, for the love of anything, let that piece of paper that is at the computer be there. I know it has weird scribbling on it, but it makes sense to me. And even though I have a hearing impairment (not really bad, but still ...) I can hear everything. So stop breathing so loud and stop thinking.
However, if something happens that usually would scare the living daylights out of me (the doorbell ringing, for instance), I don't respond at all anymore. It is like I am immune to adrenaline.
Am I crazy? No (only pleasantly disturbed). Do I have any of the above disorders? Hell no! I just have a burn out. That is it, nothing more.
I know it will kill me if nothing changes soon. I feel more and more exhausted and the only thing keeping me upright is energy drink (sugar free), quick sugar rich meals and if I am really at the brink of collapsing, anger. Getting angry gives me the small boost I need to just do what needs to be done. After that, I am done. Over. Nothing comes out of me anymore.
Too much has happened in my life in general. And the last 2 years were a rollercoaster of shit. One thing wasn't even over yet, or the other problem knocked on my door. Not small things. Big things.
Every time I tried to get up, I was being knocked down hard again. And still I try to get up. I sometimes think of the definition of insanity. Doing the same fucking thing over and over again, thinking, this time it's going to be different. (I love the Far Cry 3 version of Vaas a lot better, hence the cursing)
But laying down and giving up is impossible for me. Even though sometimes I long for it.
(The kittens are real, by the way. Nine weeks old now and they go to a new home in 3 weeks. One is staying. They give me a hard time, destroying the house (kind of) and making things disappear. But they also give me joy. When they sleep they are so cute and when they play they are so funny. And no, this was not a wanted or planned litter at all. Thank a friend of mine (also a biologist, like me!), letting my cat out because she wanted to go outside so badly. Yeah, she's in heat. I just told you. Silence heat, very rare. No screaming and other weird behavior. But yeah, pay attention, dude!)
Really didn't learn much from this video. It would have been more helpful to explain how the historical figures listed were autistic rather than just naming them. Maybe explaining different ways that autism can present would be a good way for neurotypical people (like myself) to understand what it is. To my naked eye I have no idea what the difference is between a quirky person or an actual autistic.
the reason is because the definition keeps on changing...in this case the "spectrum" aplication....if you keep adding to what something means and thus making it vague ,of course its gunna seemingly apply to more poeple.
i recently looked up some autism spectrum charts and there are specific disorders in this "spectrum" that have almost no relation to one another... if the 1 and 4000 becoming 1 in less than 50 jump isnt an indicator that this is a problem i honestly dont know what is.
I wish the DSM 5 would have stuck with the criteria they had, or just tweaked them a bit while waiting for further research to dictate if other changes were appropriate. One of the consequences of removing and adding diagnoses is that it can make comparing research studies difficult and it can be hard to get funding to research conditions that don't have a diagnosis attached.
In a lot of ways, I think it would have been better to wait to smoosh all the autisms together until they had some idea about how to organize it in some sane way. Just saying that you've got ASD tells you far less than saying that you had Asperger's Syndrome or Rett's Disorder or Autistic Disorder or Pervasive Developmental Disorer - Not Otherwise Specified. There were issues with having so many diagnoses, but this should have been done on the basis of research with an eye to ensuring that people weren't being left without a diagnosis or the support that can come from it.
Is it really over diagnosed ? Or was it actually under diagnosed ?
Autism is a spectrum and not a one fit for everyone. Unfortunately even specialst didn't really knew about autism. ( Some still don't) and they were just picking up low functioning , stereotype autistic people. High functioning who were not fitting to those stereotypes was left out. Now as the understanding progress, specialst realised that some were left out for years and when those people get diagnosed , people think that autism are over- diagnosed. They don't realise that those people were always autistic with or without diagnosis.