We are so glad you found this helpful. Hope you are able to get answers and an accurate diagnosis soon. You can find more information and helpful resources on our website www.vasculitisfoundation.org/ including information on virtual support groups.
Hi im in UK with behcets disease and positive HLA-B51. I also have other conditions such as Fibromyalgia, Hypermobility Syndrome, Arthritis and Autism. Are many of these conditions connected? Im wondering how many with Behcets have others like me?
That's an interesting question. There has been research that shows that having one autoimmune disease increases your chance of having another autoimmune disease. I hope you get some responses from other people who have Behcet's. It would be interesting to hear if they've had a similar experience. You can find more information on Behcet's disease on our website www.vasculitisfoundation.org/education/vasculitis-types/behcets-syndrome/ plus information about our virtual support groups. I also wanted to share the link to our Behcet's RUclips playlist ruclips.net/p/PLr6Bwau6uSmtgcrprAo4-fGsGBuLMbVEy. You could also consider asking your question in our online chat community www.inspire.com/groups/vasculitis-voices/
This is such a great overview. I’m pretty sure I have this and I’m about to start trying to get diagnosed-very nervous!
We are so glad you found this helpful. Hope you are able to get answers and an accurate diagnosis soon. You can find more information and helpful resources on our website www.vasculitisfoundation.org/ including information on virtual support groups.
Hi im in UK with behcets disease and positive HLA-B51. I also have other conditions such as Fibromyalgia, Hypermobility Syndrome, Arthritis and Autism. Are many of these conditions connected? Im wondering how many with Behcets have others like me?
That's an interesting question. There has been research that shows that having one autoimmune disease increases your chance of having another autoimmune disease. I hope you get some responses from other people who have Behcet's. It would be interesting to hear if they've had a similar experience. You can find more information on Behcet's disease on our website www.vasculitisfoundation.org/education/vasculitis-types/behcets-syndrome/ plus information about our virtual support groups. I also wanted to share the link to our Behcet's RUclips playlist ruclips.net/p/PLr6Bwau6uSmtgcrprAo4-fGsGBuLMbVEy. You could also consider asking your question in our online chat community www.inspire.com/groups/vasculitis-voices/