IIH UK Member Webinar 26/06/2021 Professor Alex Sinclair - Professor of Neurology Gives an overview of the latest research in IIH being undertaken by her team at Birmingham University.
I’m 67 and have been on bio identical hormones for 7 years which included testosterone. I’m sad to say I now have IIH and FMD, (Fibromuscular Dysplasia) Both seem to have a possible hormone connection. The FMD is only problematic in my carotid arteries. I’ve stopped all bio identical hormones and wondering if IIH can be reversed. I don’t think there is much I can do about the FMD.
I have IIH and went total blind I just so happened to be able to see some THROUGH technology. I don't look it but I am and my doctor's told me I don't look a blind person. I remember when I got my first iphone I wanna say almost ten years ago I had to replace my phone almost every 3 months. If I would be on the phone talking my phone would get extremely hot I could be on it for long it went on for years tillll the day I went blind and was given a shunt. When I tell u my headaches would be extremely worse using my iPhone. I don't have headaches anymore and my phone no longer gets hot when im using it. Never told my doctor's this.....
I was diagnosed with IIH just a week ago. I'm so sorry about your sight and happy to hear technology helped a little. This terrifies me and a lot of my sight has diminished quickly... I just had a lumbar puncture last week and they confirmed IIH. During the mist of them testing and dilating my eyes my pressure improved when I cut out sodas & added a herb called Bilberry...It went from 30 to 24 in a week according to my last test. I wish blessings your way.
Such essential and amazing research! Thank you!
Why are so many skinny patients having IIH as well.
Thank you 🙏🏻 amazing work
I’m 67 and have been on bio identical hormones for 7 years which included testosterone. I’m sad to say I now have IIH and FMD, (Fibromuscular Dysplasia) Both seem to have a possible hormone connection. The FMD is only problematic in my carotid arteries. I’ve stopped all bio identical hormones and wondering if IIH can be reversed. I don’t think there is much I can do about the FMD.
In my experience my adipose was definitely changed when I got I’ll as I was never obese
Great presentation. Looking forward to hear about what is the current knowledge of IIH in men!
I have IIH and went total blind I just so happened to be able to see some THROUGH technology. I don't look it but I am and my doctor's told me I don't look a blind person. I remember when I got my first iphone I wanna say almost ten years ago I had to replace my phone almost every 3 months. If I would be on the phone talking my phone would get extremely hot I could be on it for long it went on for years tillll the day I went blind and was given a shunt. When I tell u my headaches would be extremely worse using my iPhone. I don't have headaches anymore and my phone no longer gets hot when im using it. Never told my doctor's this.....
I was diagnosed with IIH just a week ago. I'm so sorry about your sight and happy to hear technology helped a little. This terrifies me and a lot of my sight has diminished quickly... I just had a lumbar puncture last week and they confirmed IIH. During the mist of them testing and dilating my eyes my pressure improved when I cut out sodas & added a herb called Bilberry...It went from 30 to 24 in a week according to my last test. I wish blessings your way.
ALSO, I wonder wth was going on with making the phones get hot... That's strange.
@tasha9650 thanks hun! Yes cut as much sodium as u can cuz with this condition it can lead to other health issues. Stay blessed