C-Diff Infection, Failing Remicade, & Back in the Hospital | My IBD Journey wit h Ulcerative Colitis

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  • Опубликовано: 6 сен 2024

Комментарии • 34

  • @amyshevtsov2534
    @amyshevtsov2534 3 года назад +5

    I have c diff and it's been a big struggle. Thanks for making this video, it helped me feel a little less alone. I relate with the feeling of almost losing hope from life events stacking up. Having a positive attitude is one of my biggest challenges right now.

  • @smolenskylaw
    @smolenskylaw 3 года назад +6

    I discovered your RUclips channel today. My daughter also receives Remicade. "There is another sky," a poem by Emily Dickinson, is to her brother who, like you, is named Austin. A few weeks ago I shared that poem with my daughter, hoping to brighten her day. Thank you for these videos.

  • @camcam794
    @camcam794 2 года назад +3

    I appreciate this video. I just got out of the hospital with c diff, and been in a UC flare for several months. It's been so difficult, and I have cried a lot.

  • @davidkay3784
    @davidkay3784 10 месяцев назад +1

    Hey thanks for posting this. We have a difficult condition. Second time with C-Diff Infection and am only getting treatment after two months. Sorry but nice to see I am not alone.

  • @hannahmcilvaine3766
    @hannahmcilvaine3766 3 года назад +6

    Thank you for sharing! I am currently in a similar situation. Your video gives me inspiration to stay positive during my time!

    • @curiouscat4337
      @curiouscat4337 3 года назад +1

      Same here. Currently in hospital. I feel like there is hope. Trying to stay positive.

    • @almostaustin
      @almostaustin  3 года назад +1

      Hi Hannah - I'm glad the videos are helpful. I hope you start to feel better soon. If you have C-Diff and it's being stubborn, I ended up getting a FMT and it cleared it up right away.

    • @almostaustin
      @almostaustin  3 года назад +1

      There is hope! Research as much as you can on IBD diets, health science, and the but microbiome. It takes time to heal... Autoimmune medications (Xeljanz) rescued me from a terrible flare, but I feel good diet and stress management will help me keep things under control.

    • @SaaDBAIGAN
      @SaaDBAIGAN 2 года назад

      Me too

    • @brookiecfun2271
      @brookiecfun2271 2 года назад

      Thank you so much for sharing I was looking up I found out today that I have to go in for Infusion so I was looking up what to expect and your video was the first thing that popped up and I just wanna say thank you

  • @tararivers8569
    @tararivers8569 3 года назад +2

    Thank you for making this video. Im newly diagnosed with UC just got out of the hospital and 7 days into it have now just been diagnosed with C-diff. Hope you start to feel better soon

  • @Jeradjjames
    @Jeradjjames 2 года назад +1

    Your story is sounding like mine. Minor symptoms for 6 months, bad diarrhea every 2-3 months for 3-5 days. I got COVID two weeks ago, starting having bad GI symptoms and just tested positive for C. Diff and now have to wait a third time for my colonoscopy to check for UC. Hope you’re doing better now!

  • @nateg1634
    @nateg1634 Год назад +1

    Wow I literally have the same diagnosis and same experience as far as cdiff and UC… 23 years old as well. Just found your video.. currently dealing with cdiff for the 4th time.

  • @alexb.-parisien8956
    @alexb.-parisien8956 3 года назад +3

    PLEASE CHECK WIM HOF METHOD. I have moderate UC (was in the hospital a week ago)and this method helps me so much . The key is to do with commiment. Just do it ounce and you’ll see what im saying.

  • @dibaygautam2076
    @dibaygautam2076 Год назад +1

    Every one goes through bad phase at the beginning but there are tons of treatment for Ra, as, IBD etc.
    Please don’t discourage by anything , usually 1 treatment lasts up to 10,15 30 years if not there are lots of treatments and they are finding more in next 5 years and in next 10 years there will be even more.
    Only temporary set back for the good.
    I am in steroids for 4 weeks and having my 3rd dose of Infleximab in 2 weeks hopefully it will work. If not I will be taking steroids again for another months or so until the new treatment makes effect in the blood.
    Best wishes ! Sending lots of love ❤️

    • @almostaustin
      @almostaustin  Год назад +1

      Thank you for sharing! Wishing you the best as well with the success of your treatments.

    • @dibaygautam2076
      @dibaygautam2076 Год назад +1

      @@almostaustin thank you for your reply. Did you not try humira before or after Infleximab?

    • @almostaustin
      @almostaustin  Год назад +1

      I did not try Humira. I was in really bad health, so my GI Doctor brought me straight up to Xeljanz. It has been an insurance nightmare, but I’m thankful it has been effective.

    • @dibaygautam2076
      @dibaygautam2076 Год назад +1

      @@almostaustin wow Bless you. they say humira is really powerful in healing IBD and xeljanz is given when humira and Infleximab isn’t working ..!
      Well this is my 7th week of Infleximab, hope next weeks infusion will work and bring down my steroid down 10 or less from current dose 15mg per day..if not they will give me humira. I had tried in before for my ankylosis spondylitis ( before I had IBD) it was working very well the boy reason I stopped was due to the fatigue, and now I don’t care about fatigue any more !
      Did you have to take steroids ? If yes what doses ?

  • @meirocco
    @meirocco 2 года назад

    Omg we sound so much alike. Sinus infection for 3 years, covid for a month. Antibiotics to treat sinuses,now this. C.diff, and colitis. The being awake for sigmoidoscopy (local hospital messed up). Friday, all day in er. Colitis. Debated wether or not to stay, and tomarrow first thing specialist. Thank you for sharing this, because it is scary as hell.

  • @speeddemon002
    @speeddemon002 2 года назад

    You need vancomycin or fidamaxin, taper for a month. With probiotics, florastor, and clean diet. Mix probiotics! Green tea, black seed oil, costrum

  • @shaileneleventian4895
    @shaileneleventian4895 2 года назад

    Hope you feel better soon. My husband’s doctor wants to put him on biologics for his UC and it’s really scary for us. We don’t know what to decide

  • @cheryllee2642
    @cheryllee2642 2 года назад

    Hope you are doing better and thanks for sharing.

  • @officialsuperrad
    @officialsuperrad 2 года назад

    I have UC and can’t figure out if I have UC flare or cdiff so it’s off to the doctor in the morning :( hope everyone is in remission!!!!

  • @saharsaadeh1739
    @saharsaadeh1739 Год назад

    Have you try to to take an glutamine and some collagen every single day to heal up the lining of the G.I. some people tried to use them and they are now it’s free any other medication

  • @sharolaid0190
    @sharolaid0190 3 года назад +1

    I was a home care provider ,my client passed away for that, I guess it was to late... well I changed him that day I took him to the emergency room some of his stool flew in my face... I wonder if I might have it... please help me im going through stomach problems now and im getting scared.

    • @almostaustin
      @almostaustin  3 года назад +1

      I cannot advise on this, please contact a medical professional. My treatment after getting tested was a round of antibiotics.

  • @modaenlaciudad3183
    @modaenlaciudad3183 2 года назад +1

    Did it mess with you with depression?

  • @Lordsfavourite1
    @Lordsfavourite1 7 месяцев назад

    Austin, i hope you’re doing much better today. l would love to get an updated video on your health🥹 i recently got C-diff while in hospital. it really made things turn really bad in terms of my UC

  • @sl3580
    @sl3580 Год назад

    I have a theory c. diff caused my IBD.

  • @CharetteOfficial
    @CharetteOfficial 2 года назад

    Did it help

  • @andriusbudrikas
    @andriusbudrikas 2 года назад

    @mikehealyourgutguy could say something