Good luck to everybody reading, it's not fair that we have this disease but we can fight through it and develop mentally as a result and benefit. People tend to be stronger long term after going through a situation like this.
Thank you for this video. My 13 y/o is scheduled for his 1st infusion on Tuesday. He loved your video and said he's ready. Thank you for all the tips!!!
Thanks for sharing your story. I have been on remicade for 18 years and have had issues with UC. Keep up with your treatment plan. It is a long road but it gets better.
Wow! 18 years is a lot! I'm starting next week. Based on your clinical history, do you confirm the general avarage review of Remicade which says that you still get flares but they are relatively mild? Thank you
you ought to look into Dr Pam Popper ... she has a diet protocol that helps reduce inflammation naturally and get you off the toxic medications quite quickly ... I'd highly recommend her ... ruclips.net/video/OJj0N2NJQYU/видео.html
Our daughter in law has Crohn's and is going in for her first Remicade infusion tomorrow. Your video plainly showed just how the event was likely to unfold, so that was highly informative for us all, thank you, thank you! I am also a fan of all the cartoon/silent film clips you added throughout to illustrate each point -- very well done, I must say.
Mam can you please tell what your Dr said about sides effects? I m also a cronhs patient. My Dr also told me to take it but I m very concerned about sides effects especially because I m very malnarish and lean.
@@pardesirulgay Our daughter in law is also very thin, only 95 lbs. The side effects are published on-line, almost anywhere you look up Remicade. For our daughter in law, we were afraid she would have an allergic reaction & her body would reject the medication -- but that did not happen. She has now had a 2nd dose (two weeks after the first one), and that went well, too. The 3rd "loading dose" is four weeks after the 2nd one, and after that it's every eight weeks. Of course we don't know yet just how well Remicade will work for her, but so far her inflammation numbers went from 5.5 down to 1.1 after just the first dose, so we are hopeful! I know it is scary for you, but trust your doctor and give it a go -- it may take several months to work, but I have read about many people having success with it, and it's really changed their lives for the better. Good luck to you, it's worth giving it a try, I would say!
i’m 17 and recently diagnosed with Crohn’s, getting my first infusion in a couple of weeks. i appreciate this video, i’m quite anxious about the experience, side effects, etc and this helped a little :)
I got diagnosed with UC 6 years ago, and went through 6 different drugs none of which suppressed my symptoms indefinitely. I have been on Remicade for 5 years now and most of the time forget I even have UC (I am 20.) I hope the treatment works for you!
Miss kate can you tell what your Dr said told you about sides effects especially of TB and lymphoma? I m also a cronhs patient and my Drs told me to take it but I am concerned from side effects as I m already very malnarished!
These dude effects are very rare. You will feel tired Most annoying side effects are dry cough dry skin. But everyone is different. I did not find I could not drive
When I started remicade in 2019 I was given benedryl but I asked them to please only give me Tylenol and methylprednisolone because the benedryl had me so loopy I couldn't remember my own name. I've gotten use to going in for the infusions. I bring my own snacks and just watch Netflix/Hulu on my phone.
Thank you for this! Been looking it up cause in about to start and nothing has been as info packed and helpful as your video so thank you! Will be binging the rest of your vids and subbing
My husband has been told to start this but we are quite nervous about the side effects..has anyone been on infliximab for over 10 years without any side effects? His dr said hes going to be prone to every type of infections from URT infection to TB to melanoma cancer..its a nightmare not knowing what to do now
This was so helpful. I've had Crohn's for 12 years and did well on Pentasa (mesalamine) for close to 10 years. I always was scared to try biologics. I did Humira for about a year but it wasn't working as well as my GI wanted. So starting Remicade this month.
@@Sean-qo9yu Hi. I've been on Remicade almost a year. It's really taken my inflammation down. Unfortunately, I'm starting to experience side effects during or shortly after infusions (chest tightness and shortness of breath). Are you on a biologic too?
@KelcyPassportbyDesign How r u doin now? My husband is told to start infliximab but we are scared of the side effects, u get more prone to infections like TB or cancer...what to do someone help
@@IslamWorld-jg9qg Hi. I'm doing okay Thank you. My biggest Crohns symptom right now is fatigue. I can understand your fears. I was told that one of the biggest ways to avoid TB and cancer is to not take a biologic when you are feeling sick. If you do so, your body will be too weak to fight serious illnesses. So if I feel any symptoms of a cold, I reschedule my infusion.
@KelcyPassportbyDesign it's good to know you are doing good. We met his Dr today and were told about all the side effects that come along the biologics.my husband has been on and off the steroids for almost 10 years and now the Dr wants to stop putting him on steroids and start remicade.im confused as the Dr is saying steroids are worse than biologics bt biologixs also carry side effects..so what's the point on switching the drugs? It's like there's no permanent cure for any diseases, the Drs and pharmacies just want to earn money giving drugs to patients instead of curing the diseases, they want patients to keep eating medicines forever.i feel so down 😔
I bring. Blanket and electric hot pad. I find a longer time for infusion is easier. I’m in Canada we have bathrooms in our clinics. You can ask for a freezy spray We get snacks and juice Benadryl is not for everyone. Only given if you have symptoms of reactions. I can easily drive You are not allowed to be left alone I’ve had my Crohn’s for 42 yrs.
Approx 10 years remicade here for uveitis and Takyasus arteritis (eyes and aorta), and I do a Claritin and Tylenol as pre meds. I’m on a half hour infusion now which beats the 3 hr one!
I have UC and i recently visited my doctor So, I'm supposed to be starting my Remicade treatments soon Anyway, he explained to me that what it is is your body is actually attacking your colon so, it's not that, "Your colon doesn't like you"!! It's more like, Your body doesn't like your colon
Thanks for posting this. I have UC which is pretty well managed via Lialda (mesalamine) but the secondary Enteropathic Arthritis is not and my biologic for it is not doing so great. I have been considering asking if we could try Remicade as I can't do Cimzia as I can't self inject (medical trauma). This is fantastic and you gave me a great incite as to what would happen if I went this route.
Sir can you tell me should I go for biologic or no ? My Dr said to convert on it because I tend to have on and off symptoms of cronhs. But I m very concerned about sides effects especially TB (my dad had it) and lymphoma!
We're you Tired Exchusted after REMICADE IV INFUSSION or did you have upset Stomach after IV REMICADE INFUSSION???? I have CROHNS DISEASE since 2010. Can you Work after you get IV INFUSSIONS REMICADE OR should you not work for Few Days After????
I'm recently diagnosed with crohn's and I don't really think that it is working I've had about 6 infusions and have had very little improvement I basically have to live off of prednisone. Do you know anything about this? I've also been instructed to ween of the steroids but whenever that happens the pain always comes back. Always leading having to go back up on the dosage
please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did
@@harleyadam8787 hey there. I'm Graham. I'm located in cali and am in the hospital out of nowhere. Now suddenly about to take remicade due to what they think is either uc or chrons. They don't know. I just have a super inflamed colon..I tried calling the Dr that was listed. What information can you give me as an alternative? This dr. Isn't listed in that hospital. It's 10pm and I called the hospital in Houston. Is this dr. Real?
@@grahamsgoneagain yea, Dr folonsho is a herbal doctor, and heqls people with natural medicine, made from plants, he saved my husband, trust me he is safe to work with
I started remicade may 13 then may 26 then june 24 .. everything was going great then l week before this june 24 treatment l started a flare up again ... is this normal ???
@rebeccarice2650 its not that bad bro ull be fine, second one on Thursday. Trust the process, I ate while getting it which helped tremendously and kept joking around with the nurses.
I know this is a year old, but I can drive after my infusions because I don’t get the benedryl and never have. They have me take a Claritin tablet (allergy med) and Tylenol as a pretend up to an hour before my infusion but when coming straight from work, they give it to me there. Unlike benedryl, it doesn’t make me tired.
I love Inflexible Avsola been on it for almost a year but now mu Antibodies r higher was receiving every 8weeks what m i gonna tell the doctor in order for me to stay on because i don’t wanna bee on Humira or so they push me what m i gonna say to them
Good luck to everybody reading, it's not fair that we have this disease but we can fight through it and develop mentally as a result and benefit. People tend to be stronger long term after going through a situation like this.
I was absolutely delighted grateful with the immediate treatment I got through ( Dr imenherbal ) channel on RUclips , keep saving live sir .
Thank you for this video. My 13 y/o is scheduled for his 1st infusion on Tuesday. He loved your video and said he's ready. Thank you for all the tips!!!
Thanks for sharing your story. I have been on remicade for 18 years and have had issues with UC. Keep up with your treatment plan. It is a long road but it gets better.
Wow! 18 years is a lot! I'm starting next week.
Based on your clinical history, do you confirm the general avarage review of Remicade which says that you still get flares but they are relatively mild?
Thank you
I was absolutely delighted grateful with the immediate treatment I got through ( Dr imenherbal ) channel on RUclips , keep saving live sir .
you ought to look into Dr Pam Popper ... she has a diet protocol that helps reduce inflammation naturally and get you off the toxic medications quite quickly ... I'd highly recommend her ... ruclips.net/video/OJj0N2NJQYU/видео.html
Thank you! my gastro just put in a referral for me to start remicade so I'm trying to find out all the info I can on it.
My pleasure - I'm glad it was helpful. Best of luck with your Remicade treatment!
Our daughter in law has Crohn's and is going in for her first Remicade infusion tomorrow. Your video plainly showed just how the event was likely to unfold, so that was highly informative for us all, thank you, thank you! I am also a fan of all the cartoon/silent film clips you added throughout to illustrate each point -- very well done, I must say.
Mam can you please tell what your Dr said about sides effects? I m also a cronhs patient. My Dr also told me to take it but I m very concerned about sides effects especially because I m very malnarish and lean.
@@pardesirulgay Our daughter in law is also very thin, only 95 lbs. The side effects are published on-line, almost anywhere you look up Remicade. For our daughter in law, we were afraid she would have an allergic reaction & her body would reject the medication -- but that did not happen. She has now had a 2nd dose (two weeks after the first one), and that went well, too. The 3rd "loading dose" is four weeks after the 2nd one, and after that it's every eight weeks. Of course we don't know yet just how well Remicade will work for her, but so far her inflammation numbers went from 5.5 down to 1.1 after just the first dose, so we are hopeful! I know it is scary for you, but trust your doctor and give it a go -- it may take several months to work, but I have read about many people having success with it, and it's really changed their lives for the better. Good luck to you, it's worth giving it a try, I would say!
@@kelsowins
Thanks mam for ur words
I was absolutely delighted grateful with the immediate treatment I got through ( Dr imenherbal ) channel on RUclips , keep saving live sir .
i’m 17 and recently diagnosed with Crohn’s, getting my first infusion in a couple of weeks. i appreciate this video, i’m quite anxious about the experience, side effects, etc and this helped a little :)
I got diagnosed with UC 6 years ago, and went through 6 different drugs none of which suppressed my symptoms indefinitely. I have been on Remicade for 5 years now and most of the time forget I even have UC (I am 20.) I hope the treatment works for you!
@@aidanw6766did you experience hair loss side effects with ramicade? Thanks
How are you now brother ?
@@aidanw6766
Today I have to also take remicade 😢
I am a little bit nervous
How long will it take time to heal.?
This is really helpful. I’m about to start Remicade for my Crohn’s and I am very nervous, but this video helped.
Try reaching out to Dr folonsho, his herbal medicine can heal you
Miss kate can you tell what your Dr said told you about sides effects especially of TB and lymphoma? I m also a cronhs patient and my Drs told me to take it but I am concerned from side effects as I m already very malnarished!
These dude effects are very rare. You will feel tired Most annoying side effects are dry cough dry skin. But everyone is different. I did not find I could not drive
When I started remicade in 2019 I was given benedryl but I asked them to please only give me Tylenol and methylprednisolone because the benedryl had me so loopy I couldn't remember my own name. I've gotten use to going in for the infusions. I bring my own snacks and just watch Netflix/Hulu on my phone.
Me too 😂
I was absolutely delighted grateful with the immediate treatment I got through ( Dr imenherbal ) channel on RUclips , keep saving live sir .
Good information, considering taking this infusion, thank you.
Glad it was helpful!
Thank you for this! Been looking it up cause in about to start and nothing has been as info packed and helpful as your video so thank you! Will be binging the rest of your vids and subbing
My husband has been told to start this but we are quite nervous about the side effects..has anyone been on infliximab for over 10 years without any side effects? His dr said hes going to be prone to every type of infections from URT infection to TB to melanoma cancer..its a nightmare not knowing what to do now
My tip: Try to get your infusions done at home. It's way more comfortable and can actually be cheaper.
How?
I did this
How?
It's only possible with biologics like Humira and Stelara, not Remicade though
This was so helpful. I've had Crohn's for 12 years and did well on Pentasa (mesalamine) for close to 10 years. I always was scared to try biologics. I did Humira for about a year but it wasn't working as well as my GI wanted. So starting Remicade this month.
How are you doing on the Remicade? Hope you are well. Your situation sounds very similar to mine.
@@Sean-qo9yu Hi. I've been on Remicade almost a year. It's really taken my inflammation down. Unfortunately, I'm starting to experience side effects during or shortly after infusions (chest tightness and shortness of breath). Are you on a biologic too?
@KelcyPassportbyDesign
How r u doin now? My husband is told to start infliximab but we are scared of the side effects, u get more prone to infections like TB or cancer...what to do someone help
@@IslamWorld-jg9qg Hi. I'm doing okay
Thank you. My biggest Crohns symptom right now is fatigue. I can understand your fears. I was told that one of the biggest ways to avoid TB and cancer is to not take a biologic when you are feeling sick. If you do so, your body will be too weak to fight serious illnesses. So if I feel any symptoms of a cold, I reschedule my infusion.
@KelcyPassportbyDesign it's good to know you are doing good. We met his Dr today and were told about all the side effects that come along the biologics.my husband has been on and off the steroids for almost 10 years and now the Dr wants to stop putting him on steroids and start remicade.im confused as the Dr is saying steroids are worse than biologics bt biologixs also carry side effects..so what's the point on switching the drugs? It's like there's no permanent cure for any diseases, the Drs and pharmacies just want to earn money giving drugs to patients instead of curing the diseases, they want patients to keep eating medicines forever.i feel so down 😔
I bring. Blanket and electric hot pad. I find a longer time for infusion is
easier. I’m in Canada we have bathrooms in our clinics. You can ask for a freezy spray We get snacks and juice Benadryl is not for everyone. Only given if you have symptoms of reactions. I can easily drive You are not allowed to be left alone
I’ve had my Crohn’s for 42 yrs.
Approx 10 years remicade here for uveitis and Takyasus arteritis (eyes and aorta), and I do a Claritin and Tylenol as pre meds. I’m on a half hour infusion now which beats the 3 hr one!
I have UC and i recently visited my doctor So, I'm supposed to be starting my Remicade treatments soon Anyway, he explained to me that what it is is your body is actually attacking your colon so, it's not that, "Your colon doesn't like you"!! It's more like, Your body doesn't like your colon
For me is like my immune system fights against me, instead of been part of me.
Thanks for posting this. I have UC which is pretty well managed via Lialda (mesalamine) but the secondary Enteropathic Arthritis is not and my biologic for it is not doing so great. I have been considering asking if we could try Remicade as I can't do Cimzia as I can't self inject (medical trauma). This is fantastic and you gave me a great incite as to what would happen if I went this route.
I was absolutely delighted grateful with the immediate treatment I got through ( Dr imenherbal ) channel on RUclips , keep saving live sir .
I too was on mesalamine (Pentasa) for 10 years and it worked great until it stopped working. How long were you on mesalamine?
loved ur video, ill start soon my treatment with Remicade cause I have Spondylitis
I have crohns and have had so far had mild side effects. Fatigue is a big, but mild
Are you going to the mayo clinic in Jacksonville, FL? How long have you been on remicade?
Sir can you tell me should I go for biologic or no ? My Dr said to convert on it because I tend to have on and off symptoms of cronhs. But I m very concerned about sides effects especially TB (my dad had it) and lymphoma!
I was absolutely delighted grateful with the immediate treatment I got through ( Dr imenherbal ) channel on RUclips , keep saving live sir .
We're you Tired Exchusted after REMICADE IV INFUSSION or did you have upset Stomach after IV REMICADE INFUSSION????
I have CROHNS DISEASE since 2010.
Can you Work after you get IV INFUSSIONS REMICADE OR should you not work for Few Days After????
This was helpful!
I'm recently diagnosed with crohn's and I don't really think that it is working I've had about 6 infusions and have had very little improvement I basically have to live off of prednisone. Do you know anything about this? I've also been instructed to ween of the steroids but whenever that happens the pain always comes back. Always leading having to go back up on the dosage
please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did
Am on azathioprine. Maybe try that? And i had my first infusion yesterday.
@@stevenritchie2361 contact Dr folonsho he can help you, instead of taking so many drugs and going for surgery
@@harleyadam8787 hey there. I'm Graham. I'm located in cali and am in the hospital out of nowhere. Now suddenly about to take remicade due to what they think is either uc or chrons. They don't know. I just have a super inflamed colon..I tried calling the Dr that was listed. What information can you give me as an alternative? This dr. Isn't listed in that hospital. It's 10pm and I called the hospital in Houston. Is this dr. Real?
@@grahamsgoneagain yea, Dr folonsho is a herbal doctor, and heqls people with natural medicine, made from plants, he saved my husband, trust me he is safe to work with
My daughter has chrohns she's only 15 and she will start remicade Nexr month
My daughter is about to turn 15 , has been on remicade since she was 12, diagnosed at 11 with Crohn’s. Hang in there , your not alone
I started remicade may 13 then may 26 then june 24 .. everything was going great then l week before this june 24 treatment l started a flare up again ... is this normal ???
In USA you need to pay for remicade? Maybe i come to USA and i have crhons , the insurance pay the treatment?
You need to have insurance, or been 50 years old a list, to get insurance from the government.
@@alejandraguadarrama9844 thank you very much
wait why biologic infusion center looks like chemo center?
Mine are done at the chemo center. It’s the chemotherapy/oncology department and Remicade is considered a type of chemo.
Thank you for this 💯🙏💕
What is the infusion for?????
first remicade coming up
Me too. First infusion in a couple of weeks and I’m terrified!
@rebeccarice2650 its not that bad bro ull be fine, second one on Thursday. Trust the process, I ate while getting it which helped tremendously and kept joking around with the nurses.
is it okay to drive after taking it ?? please tell me
No, they recommend you get a driver with you
I know this is a year old, but I can drive after my infusions because I don’t get the benedryl and never have. They have me take a Claritin tablet (allergy med) and Tylenol as a pretend up to an hour before my infusion but when coming straight from work, they give it to me there. Unlike benedryl, it doesn’t make me tired.
In a group opinion can you drive two hours after the infusion....anyone anyone lol?
watching after starting it ! lol
I say we print tee shirts with “ MY OWIES ARE ON THE INSIDE”
Brilliant Idea!
Thank you 😂❤
🥰🥰
I love Inflexible Avsola been on it for almost a year but now mu Antibodies r higher was receiving every 8weeks what m i gonna tell the doctor in order for me to stay on because i don’t wanna bee on Humira or so they push me what m i gonna say to them