DAISY'S CLEFT REPAIR JOURNEY - PART TWO - PRE-OP & HOW I FEEL AS A PARENT | Charlotte Taylor
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- Опубликовано: 20 ноя 2024
- DAISY'S CLEFT REPAIR JOURNEY - PART TWO - PRE-OP & HOW I FEEL AS A PARENT: This is a video series I have thought long and hard about making, but I've decided to share my perspective as a parent of a baby who is about to have a cleft repair, in hope that I might help fellow parents like me, with children who have cleft palates, PRS, and Stickler Syndrome. So this is part two of Daisy's Story - passing her pre-op, what happened, and how I'm feeling too. xx
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WHO AM I?
I'm Charlotte.
I'm 28, love carbs, rubbish 90's music, Prosecco and baths without finding a bath toy stuck under my bum.
I have a little boy called Bill (born June 2012) and a little girl called Daisy (born April 2016).
I am, very recently, a full-time vlogger and blogger (the stuff dreams are made of), but I am also a trained journalist, former magazine editor, and content lead.
I'm also part of Channel Mum - which is really worth checking out if you're a mama like me and want to find videos to make you laugh, cry, nod, or get advice. / channelmum
I was a single mum, just me and Bill. But then I had a bit of a fairytale moment when I met Mark (he's a bit lovely) and things are better than I could have hoped for now. Daisy was born with Stickler Syndrome, and a cleft palate like me. Her start has been rocky but she'll be fine. She's got a family who adore her after all.
I know that all mums are different in their own way, but I hope you enjoy seeing snippets of my life, all the same.
Music sometimes from:
www.bensound.com
www.epidemicsou...
![Coheed and Cambria - Searching for Tomorrow [Official Video]](http://i.ytimg.com/vi/hDsYGLbmadg/mqdefault.jpg)
You truly are inspiring Charlotte. Motherhood is hard enough as it is, let alone with the added stress and pressures that you've had to go through. You're a marvel. Thinking of Daisy and praying all goes well tomorrow x
Good luck and will be thinking of you all. It is going to be such an amazing thing for Daisy's future. And as soon as you get her back in your arm she can start again on her little way to growing into the gorgeous and cute little lady she is becoming and get back to playing and adorning her fantastic big brother. You are just amazing Charlotte and a incredible family. xxx
Ah Charlotte, I just wanted to pull you into my arms and hug you. I'm sure this will help lots of mamas who are about to embark on the same journey and they will be thankful for your strength and bravery. Although I could barely see through the tears, that moment you shared with Daisy when you said you're sure she wouldn't want anyone else to be her Mumma and you wouldn't want anyone else to be your daughter, it was so so precious (I crumbled, but it was precious x). If thoughts, wishes and hopes were enough to get you, Daisy and your family through this, then I send them a million times over. Bill will have a wonderful time with his Granny and Po and I'm sure he'll be proud to tell his teacher and friends about his brave little sister.
Worrying does not take away tomorrow's trouble, it takes away today's peace.
Lots of love from me to you and a squishy hug for little miss Daisy Nelle 💛 xxxx
Wishing beautiful Daisy all the luck in the world! Will be thinking of you all over the next few days. Lots of love ❤️ xx
Miss Charlotte... I pray that you will feel supported loved happy secure & confident. I pray that miss daisy will be healthy happy & @ peace in the coming week. Blessings to you & daisy
You are so brave, Daisy and Bill are very lucky to have a mother like you. Sending hugs and best wishes xox
Sending sooooooooo much luck and love to you all. She will be fine. You will be fine. I have a little girl of a similar age and can't believe how quickly the time is passing, this will all soon be over and you'll be organising her first birthday party before you know it! Big hugs. You got this x
Oh Hun. You're not just a good Mum, you are an AMAZING AMAZING mummy to Daisy and Bill. And they will be so proud in years to come of you xxxx
You're so unbelievably strong, so much stronger than you think you are. Bill and Daisy are a real credit to you both. xxx
hope all goes well for not only daisy but you too! your doing the best for her! keep focus on that! look at you now! shes a tough cookie just like her mummy!! lots of love! xx
I wanted to come through the screen and give you a massive hug. You will get through this Charlotte. I hate seeing you upset please try not to be so hard on yourself. You have come so far in such a short space of time you are an amazing mummy. I wish there was something more I could say or do. We will all be thinking of you and we will be right behind you. Sending so much love, luck and huge hugs xxxxxx
She'll be just fine Charlotte, she's a fighter like her mama. Massive hugs, love and luck coming your way xxx
I know sometimes guilt isn't a logical thing but you should not feel an ounce of guilt! Daisy is such a lucky little girl she has a family who love her so much, she has the strongest and bravest Mummy! What you're doing now must be so very hard but it's the right thing to do and takes so much courage. You can get through this and enjoy your beautiful family together xxxx
Hi lovely, just wanted to wish you all the luck in the world for tomorrow. Keep strong, you have an amazing daughter who is so lucky to have you as her mama who has already been through this so knows how best to look after her and make her comfy and happy. Just seeing your face will make Daisy feel calm and safe I'm sure.
Bill is such an adorable little soul, so mature for his years and he will give you strength during this time.
Much love, big hugs Lucy xxx
Ps looking forward to hearing how well everything has gone x
Sending you massive hugs and wish beautiful Daisy a very speedy recovery, look forward to hearing all is well 😘😘😘😘
You are so brave for posting videos about this experience. I can't imagine what you are going through but I'm in awe of your strength. This is going to be so useful for any parents going through this in the future. I will be thinking of you and your family on valentines day. Sending lots of well wishes xxx
Bless your heart hun xx, Daisy is a very strong girl just like her mama and will be fine, sending lots of love and luck for Tuesday, stay stong mama xx
I can't imagine how you're feeling. My baby girl is 9 months too. You're very strong and Daisy (& Bill) are so lucky to have you. I'll be thinking of you all. Stay strong xx
Oh charlotte this broke my heart to watch. Will be sending lots of love and luck your way next week. Stay strong.
I felt incredibly emotional watching this video. Your such a fab mummy to both of.your children.
My little boy (6) watched this in parts with me and he has asked I let.him know when you habe updated us all on her op, bless him.
Enjoy your weekend and next week will be over before you know it. x
Charlotte, you've got to stay strong. You're doing an amazing job muma, and Daisy will come out the other side fine! I know its stressful and heartbreaking now, but think how happy you both will be after it's done xx
Sending you and family my very best wishes for the week ahead, be brave, you can do this xxx
Stay strong! I have stickler and can 100% relate to the passing on, my little one was in hospital through out his first year, they suspected that I had passed it on to him 😢 they eventually said they can't see any signs of sticker at the moment but he will be a carrier and it breaks my heart knowing it's my fault that maybe his children will get stickler (but my mum passed it to me and I couldn't care less lol) 😢😢😢 but just want you to know you are not alone and I will be thinking of you and your family on Tuesday xxx
been watching you videos for a couple months now, big hugs to you all, very brave Daisy is lucky you have you xx
Thank you for filming this! My daughter is no where near her repair yet but it’s so lovely to hear your experience.
The bit about your older son really rings true for me too with my boy ❤️xxxx
Oh bless you sweetheart. I hope that your daughter’s repair goes really well when the time comes. Daisy is almost a year on now and she’s doing amazingly. We both clearly have lovely boys to be proud of too! xx
I've never commented on a RUclips video before but I've been watching you guys for a while now and think you seem like an absolutely wonderful mum. I have a little girl a few months younger than Daisy and couldn't imagine what it must be like having a child that has gone through so much in her life already. She seems like she is thriving and growing into such a lovely little girl, and like you said, this op is for the best in the long run, even though it is so tough to go through at the time. I'll be thinking of you all next week but I'm sure she will be absolutely fine.
You mustn't beat yourself up about passing it on to her, if you got it through a genetic mutation, that means it could happen to any of us, and I'm sure you've passed on far lovelier things to her that, in the long run, will far outweigh this xxxx
I always watch youtube (channel mum girls mostly) whilst getting ready for work and doing my make up. Epic Fail. I'm a mess watching this flower. I can't begin to imagine how you feel. You're an amazing mummy, you're very inspiring and so so lovely. I will be thinking of you all on Valentine's day. Daisy is a very strong little girl and she has so many people wishing her well. xxxx
Best of luck to daisy she's going to be just fine. Sending lots of hugs your way mama xx
All the luck to you both, she will be fine don't beat yourself up too much. I know it's hard but you will all get through this. Bill will be fine too, children are resilient they can deal with far more than we give them credit for sometimes. Xx
you are incredible! good luck for tomorrow, I will pray and think of you and beautiful daisy all of tomorrow ❤ all of the love and cuddles 😚
I really feel for you . I just had to comment and say Daisy is so beautiful and you must be so proud of her. Both your children seem so happy. It's not an easy time for you. She will be in my thoughts. Stay strong. x
Hi Charlotte the swab in her groin was testing for MRSA so you're right. I have no experience with cleft I only tuned in cuz I think your fab and of course for the cuteness Daisy factor. Sending you lots of strength and luck for surgery day, stay strong which I know u will. She will come out the other end stronger and better for it. I know it's hard not being able to get out and about with 2 kiddies and one being a little fragile. You can still get out, try the park instead of soft play (soft play especially during term break can be a bit iffy, so many kids, so much infection etc) if weather permits, or perhaps small play dates for bill. I'm sure one or 2 days out of the week with sensible planning won't affect Daisy. You're such a fab mum, anyone can see that. Again best of luck for surgery day. Sending prayers. Xx
Oh Hun, I can't imagine how hard the past year has been for you. I know I've found mum guilt hard since having a second child and i didn't have to spend lots of time in hospital. Is there someone who can come round to help look after Daisy during half term so you can get out with Bill? I have tried to spend more one to one time just with Sophia so she doesn't feel left out but I know that's not always easy. You're doing an amazing job though honey and don't feel guilty at all x
Awwww Daisy waved at the end of the vlog 😘 Wishing you a speedy recovery x
You are so strong lovely, don't feel guilty! You are doing such an amazing job! Will be thinking of you all on the 14th 😘💕
good luck for tomorrow daisy. will be thinking of you all tomorrow. can't imagine how you and Mark must be feeling at the moment I just want to reach into the screen and give you a big hug xx
I just watched this after I responded to an Instagram and you make so much sense right down to the feelings that a certain place brings to you. All I know is that although our journeys are different health wise my unborn baby has a rare type of spina bifida the emotions, worries anxieties are the Same and there just isn't the support, advice I feel like I want etc and gosh the isolation is depressing enough and the blinking bickering over milk and other silly insignificant things we are having is ridiculous but I'm guessing we are in fact pretty normal! It's an emotional time and the mum guilt hits hard I will have 6 at home at delivery/operation week -one will almost be 2 let alone the what did I do wrong to make my child have this problem guilt. So I completely understand you and the reason I say this is to encourage you that the 'feels' worries thoughtS etc (I'm thinking of him going to sleep and panicking about that moment and can't get it out of my mind) is that it's completely ok and you don't have to apologise you just need to be understood and know that anyone watching this is spurring you on and wishing beautiful, clever Daisy a super speedy recovery and that you will dig deep and get your strength and courage that makes you an awesome mama and get through this in your little team. The journey is different and not expected with different rules but it's still precious. One day you will watch this back and you will see her little face and how clever she was (I know you know now) and see they love and strength right there and you will be proud at how far you have come even from this moment in time. Sending love and prayers your way xx
Good luck beautiful Daisy and stay super strong Mama!! xxx
Thank you Jasmine. You're a star. xx
Charlotte Louise Taylor please connect with me. I wrote to you multiple times on fb. If possible before Daisy's surgery. xo
Well done you for doing this and helping others out there xx
Good luck Daisy! :) sending lots of positive thoughts.
Bless your heart xxx Good luck for Tuesday xx
Don't beat yourself up, kids are very resilient ❤️
I hope everything goes as well as it should in hospital. Will be thinking of Daisy and you all on Tuesday x x
Good luck lovely daisy and stay strong mama I know it must be hard x
She will do amazing! Shes such a strong girl 😊 good luck daisy!
Good luck little daisy ! Xx
Sending lots of love and good luck wishes to you both xx
I'm a new mom to my 3 month old baby girl who has Stickler syndrome and Prs. I know exactly what you're feeling and going through because I too have Stickler Syndrome and neither of my parents have the syndrome it just came to me. I know the feeling of feeling guilty that you've passed this on to your little one. Must I tell you I am so thankful to have come across your video about all of this. I actually now don't feel so lonely. It's been a wild and crazy and emotional rollet coaster. Would love to get to know you and your daughter more. We're in the process of getting her metal plates removed from her jaw tmrw morning and everything I've learned about even cleft palate repair is scaring me so much. I know that won't be done til a yr from now bUT if wasn't for coming across your video to feel some since of normalcy I do t know what I'd do. I wish you well Charlotte for you and little Daisy!
You'll both be fine I'm sure
My eldest has had 6+ anaesthetics (she's disabled ) hers where only small procedures like a MRI scan Botox a few times and then teeth out due to over crowding the children's hospitals always have lovely nurses xxxxxx
And yes the swabs are to check for mrsa xxxx
Good luck cutie- stay strong family, it'll soon be over and nothing but a memory ❤️️
Ps in terms of Bill been on a back burner, if Mark is off can't one parent stay at home and one take Bill out? Or the grandparents? Don't beat yourself up more than you have to, Bill is a happy lad and family is all to him, you can tell that from the vids- no kid can remember half term from when they were 4!!! Praise yourself and say this too shall PASS ❤️️high 🖐🏽Daisy
whiteyho123 no daisy will need both parents present. But grandparents is a good idea.
MyIthaca2324 certainly she will at hospital , but I'm sure once she's home then the time can be divided more. But thanks for your input. Just my opinion btw- great work Charlotte I'm sure Daisy will be just fine !!! 😘😘😘
Sending lots of luck & love to you both 💗💖💗
Really hope you and lovely Daisy are doing ok. X
oh lovely my heart breaks for you unless you have been through these things no one can ever understand what your feeling but is completely natural and normal. My son was put under for an MRI scan at 7 months and I just felt numb didn't want to speak to anyone, he has a condition called septo optic dysplasia (SOD)which means he has a small optic nerve in his right eye he has very little sight in that eye it was picked up at 3 months old he's 7 now.
Trust me when I say you will cope and bill will be fine,this is just one of those times in your life.
Seems like you have been through a lot I have only just started watching your videos but you seem like a wonderful mum here if you want to talk xxx
Good Luck little flower x
Big kisses to you all x
good luck hope all goes ok
Hello there beautiful! Sending prayers your way! Always thinking of you! ❤❤❤🌼🌼🌼🌼
Sending love and hugs 🤗
charlotte hun sounds like you had a panic attack u can get pills for that at your gp I'm anxiety prone too and they turn to panic attacks so they give me propranolol and they stop all the feelings associated when a panic attack comes on i think you just have to keep positive `n tell yourself use done it loads of times before xxxxxx
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You need someone to talk to sweetheart have you asked about counselling? Xx
also I have a few questions I'd like to ask you. if you can reach me ill send you my info to chat. I have a few questions and would love to talk to you.
I'm trying to get a hold of you it's regarding PRS. Wish i could find a way to private message you.
MyIthaca2324 I replied on my last video with my blog email address, flower. I've checked Facebook and I don't have anything. I'm sorry! Please try that email address first. Though I will be a bit quiet over the next week or so with Daisy being in hospital. xx
Charlotte Louise Taylor Yay! Thank you for responding! I just wrote back on fb.