Paula Cirulnick EXACTLY AND THAT INSURANCE COMPANY CAN GO FUCK THEMSELVES LIKE WTF IS THAT THEY COVER THE PAIN AND KNOW IT'S A PROBLEM BUT THEY DONT COVER FOR THE DAMN SURGERY TO TAKE AWAY THE PAIN THEY COVER HER FOR THE PILLS THE FUCK, THANK GOD THAT DOCT IS GANA HELP HER
@@Julie86Mac Is thier am update.?.Thankfully technology is catching up to tmj.Its all pressure for me.Wich is a nightmare but it's not pain.Mostly a tightness that created pressure.
So he verified that her pain is very severe, yet they spent so much time shaming her and treating her like an addict because of the pain meds she takes. Some people genuinely need them.
oh man...i have severe jaw issues and required jaw surgery. I live in Canada. I am so grateful for our imperfect health care. Poor woman, i hope she gets better. The pain must be horrific.
It pisses me off so much that they are treating her like it is her fault she has to take pills. I wouldn't even call her an addict exactly, I mean sure she is chemically dependent, but she doesn't seem mentally dependent. Fix the problem and I am sure she will recover in time. In other countries she wouldn't have had to deal with all of this. But here in America we have to earn our right to be healthy, even when it isn't your fault you are sick. This is what happens when insurance companies and pharmaceutical companies are able to do what they want without regard for the people they are being paid to help.
THANK YOU. Literally what I was thinking. This women lives in constant PAIN. OF COURSE she's on medication for the pain because the surgery she NEEDS is being called an unnecessary "cosmetic" surgery. Which is such complete BS and just makes me hate the pharma even more.
***** It just goes to show how much judgement there is for women and mothers. We can't be in pain or need things. We are supposed to suck it up and take care of everyone except ourselves. I guarantee that her children would rather her be a little doped up than to be screaming at them for stupid things because she is in pain. Mouth pain is the worst, I hope she got the help she actually needed. She doesn't need rehab. She needs surgery.
onyxfeathers a pill addict is a pill addict is a pill addict no matter how you try to justify or classify it. pills don't care who one is....that's that liberal brainwashing saying ohhh blah blah blah. the woman is saying SHE'S ADDICTED. are you really this DUMB???
Yes Kim, I guess I am a dumb liberal. But at least I care about the people who live in this world with me. Even ignorant misguided Republicans as yourself. Yes she is addicted to the pills, that is how opiates work. But the truth is, if we had socialized medicine this problem would have been resolved before she had to become dependent on drugs to manage her pain. But right now we lack proper empathy in this nation as you have so wonderfully shown. When will people understand when we lift each other up we all benefit. When we tear each other down we get nowhere. But what do I know, I am just a dumb liberal, and I am proud to be.
onyxfeathers Even though she is not mentally dependent on her meds, she needs close medical supervision to safely come down off the opiates because opiate withdrawals can be life-threatening if the dosage is lowered too quickly.
I wanna see how she is after the surgery..Hope she's doing much better! I don't understand how insurance company can deny her for so long.. Obviously she needed surgery!
this is really getting under my skin... the doctor is talking to her like she is an addict instead of a victim in pain. If she was on the show at any other point in history he wouldn't be talking to her like that. fix the goddamned problem or at least help alleviate some of it. Then, if she gets that help and shows no signs of weaning herself off of them, is when you would talk to her like you are right now. You cannot understand what it's like to live in chronic pain until you experience it for yourself.
My heart truly goes out to her and I completely understand what she is going through and feeling pain wise. After several major jaw surgeries on both sides of my jaw I had no choice but to have a bilateral total joint replacement of my TMJ joints. The surgery was literally the most difficult and painful thing I had ever gone through. That was 14 years ago and even though it gave me a little function, I really didn't get much function sadly, I still live with severe chronic pain of my jaw and face. I was also diagnosed with trigeminal neuralgia which is horrible. I truly truly hope that she will get better pain relief and better function after she has this surgery. This surgery is NO joke. It was a loooong hard painful road and hopefully this will give her her life back. Seeing other TMJ/jaw patients like this always touch my heart.
I pray it works out well for you, I'm praying for you both! I can relate too much. Since I was 20, I've been battling colon cancer, ulcerative colitis, osteoporosis, osteoarthritis, depression, anxiety, DDD in my thoracic spine, fracture lumbar vertebrae, GERD, chronic migraines, hypertension, but to name a few. To date I've had 22 GI surgeries, the first when I was 21. My colon aka large bowel, ruptured, I was clinically dead for two minutes, but they were able to bring me back and remove my colon. Since then, I've have 7 intestinal diversions spread out over 22 surgeries. They've had to surgically remove my rectum (it wrecked me all right!, and yes, it hurt, a lot!), entire colon, and most of my small bowel. I'm now missing approximately 92% of my GI tract, having only my esophagus, stomach, and a 5 feet of my small bowel (the average person has about 26-28 feet of small bowel and 8-11 feet of colon). I've also had rotator cuff decompression surgeries done on both shoulders, and carpal tunnel release surgeries on both hands, plus, many, many painful procedures from cutting off part of my tongue to check for oral cancer, to having a pic line inserted, many times, for IV nutrition aka TPN. The reason I'm saying all this is because I too live with chronic daily pain, and take at minimum 9 Percocet/day. I've tried so many times to stop them, but the agony I'm left in is just too much to bear. I'm now 47, I was forced to retire early three years ago, because how can I work with having to take so many pain killers? So I know EXACTLY how it feels. Unfortunately, in my case, I'll never be able to get off them, as my daily pain is just too great, and without them, I simply can't function at all. These diseases have totally destroyed my life, my goals, and my finances, so to all of you reding this, that are healthy, all I can say is, you have no idea of just how lucky you are! It's a cliché, but it's true, you can have all the money in the world, but if you don't have your health, you have nothing, I just wish I had money, so I could at least afford to buy things I desperately need, like a new car to replace my 11 years old clunker that's falling apart at the seams!
Man this world is cruel but hang in there this world is temporary prepare your self for the next eternal world where you will be rewarded for your bravery and difficult task you have at hand.
@@westsidekasper4860 wow, thanks…now, 5 years since that first post? I’ve had an additional 15 more surgeries, but brave? I cringe, because I’m a big wimp, I just gotten used to dealing with it, and have a much better grasp on my situation….you can get used to almost anything if you have to, and because I have absolutely no choice but to learn how to live with it, that’s exactly what I’ve done. I have days where I am filled with self-pity, but now, they are few and far between (found one heck of a great therapist to help me deal with the mental health problems, which can be equally painful), and I don’t tell anyone usually, because there’s nothing anybody can do to change it, and everybody has a lot of problems to deal with, I don’t think anybody has an easy life, and I don’t wanna add more stress to the people I love. Yes it’s been a lot to go through, but with the help of modern medicine, and a lot of (new) different prescription and naturopathic pain control, combined with exercise, meditation, and all sorts of methods to better my mental health, I’m dealing with it just like everybody else. Yeah, I have a few more issues than most people do, but if life has taught me one thing, even though it’s so cliché, there are always countless people far worse off than yourself, spending most of my life in the hospital as an employee and a patient, I’ve learned that firsthand. Ironic, because originally I wanted to study music years ago, I never would’ve thought of healthcare for a career, but I didn’t want to spend my whole life sitting in a hospital bed, so after realizing how much joy I got from helping people in the hospital, simply by sharing my story, and offering support, well? I dug myself out of that dark hole I was trapped in for so many years, and instead, I got my message degrees in radiological medicine, and laboratory medicine, via correspondence with the University of Toronto. Technically, I am on permanent long-term disability forever, but there are certain times that I’m now strong enough to work, because I have a very understanding management team, they allow me to work whenever I want to, because nothing makes me happier than to ease other peoples burden by sharing my own, by telling them my story, so that they can see there is indeed life outside the hospital, even during those times when you don’t think you’ll ever make it out alive. I’m actually considering writing a book, I’m definitely not an intellectual, nor a literary expert, but I just want to share my story, because I know from experience that it helps a lot of people, and because I believe everything happens for a reason. Whatever you want to call it, fate, karma, God, etc., everything in my life good or bad has led to something I would have never have thought of otherwise. I’m currently 53 years old now, I know that my life span has been shortened by about 20 years, give or take, but after going through all that there is no way in hell I’m going quietly, I’m going to go kicking and screaming into that proverbial good night, I’ve fought too hard to get to this point just to give it up! I know that sounds a little crazy, probably because I am a little crazy🤪. I’ve now survived five rounds/relapses of intestinal cancer, and have almost none of my entire gastrointestinal tract left, so I’m a cheap date, I can’t drink alcohol ever again, and I can’t eat more than a few bites because there’s no room inside, it’s the ultimate diet, Jenny Craig eat your heart out!… But, I really wouldn’t recommend it! Lol! As you can tell, I now like to use humor, at first I used it as a shield, but once I learned how to deal with a psychological impact of going through all that, I learned to use humour as it was intended, to make people smile. I’ve done my share of crying, and while I still have the occasional day of tears, I crack jokes, yep, the most inappropriate ones you can imagine, but when you’re dealing with things like poop, how can you take it seriously? Very seldom do I ever take the subway, because I have a car and a handicap parking pass, but occasionally, I’ll take the subway for fun…..if you don’t know anything about an ileostomy bag, essentially your small intestine, is sticking out of your abdomen, and you have a bag stuck to your side for the rest of your life to collect whatever comes out of your intestine, you just dump it in the toilet, but when you get bad gas, and you can’t fart normally because you don’t have a rectum anymore like I don’t? It still sounds like a fart, but because it’s going into the bag, which is airtight and watertight, and not the open air around me?…if I’m on the subway or surrounded by people in a quiet environment, you can hear the farts, the entire packed train…all of them with the look of disgust on their face, but then in a few seconds, I swear to God, they start sniffing the air, because they can’t smell anything, it’s hysterical! The last time I did it I had to get off the train three stops early because I couldn’t stop laughing, they must’ve thought I was insane! But I swear to God these people looked disappointed because I couldn’t smell anything! One dude looked like he was going to cry! Lol! That’s how I deal with it, I think that’s the best way to deal with any tragedy or hard time. Anyways, I’ll shut up for now, because I never shut up, the running joke is I have more than just regular diarrhea, I also have verbal diarrhea! Thank you so much for your comment, it truly means a lot to me, take care of yourself, cheers from Toronto!
supercalifragilestic The doctor backed out unfortunately. She hasn't had surgery as of August 2017. Source in case it's needed: Comments section on this: m.facebook.com/UnitedHealthcare/posts/10210227471631287
I'm trying to figure out how it's an addiction when she doesn't have a choice? she's in pain. what is she suppose to? no meds and suffer? for God's sake American insurance wants her to suffet
Vanessativa it's doesn't mean she's still not in pain. Tolerance or not she started taking that medicine because it got to the point where she could no longer deal with the pain
I never said she wasnt in any pain. I understand she is pain her body is addicted to the meds none the less weather they take effect or not. I understand she is still in pain
Im confused because doesn't she need the medication to help the pain? So detoxing from the addiction means she cant take the pills anymore so she would still be in pain?
Imogen Elise those don't exist. What they mean by "non addictive." Pain management is Tylenol, anti inflammatories, sometimes antidepressants to distract your pain. Maybe if your lucky some treatments like steroid injections but those are massively expensive. But none of these things are actually "pain killer," and not some sort of controlled substance, i.e., addicting.
I agree. There is really no med thats non-addictive and really does anything besides treat minor pain. Marijuanna might help though? I hope they thought of that for her. Better than being hooked on opioids but sometimes they are the only option
Iyla Lacoste yes She's still be in pain. Which is bullshit. It's people, who have no idea what chronic pain is, that think like that. They made more of an issue about her being on pills then her being in pain. I suffer from. Chronic pain that I can have surgery to fix but insurance won't pay. I'd LOVE to be off these pills. But that will NOT happen until my pain is fixed. I would have walked right off that stage.
You can see how her face is pulling to one side. That is the major level of her pain. Her pain is obvious. That doctor offered to help her through communicating with her insurance and then a complicated surgical procedure pain intervention. Once she gets that resolved, the pain management will no longer be needed.
I have tmj. It can be aweful. Not as bad as this woman's issue. Doctors and jaw physiotherapist told me they don't like doing surgery because it can generally make things worse. But I think her case is so severe that any improvement at all would be beneficial. She'll always have jaw problems though. Even with new jaw. But interesting to hear about this since it is somewhat relevant to me
kslice I have tmj. Got a bunch of orthodontics done to fix it but it didn't. I will say it hasn't progressed any further so that's good but it hasn't gotten better. I think they can give injections to help with the swelling pain. Just trying to help
kurdistanss I am a disabled veteran. and when they did a surgery they messed up my jaw creating degeneration in my joints needing multiple surgeries until I had my final one. And now it's failing, I'm losing my profile and in chronic pain. not sure what to do and no doctor will touch me because I'm a nightmare case due to failure.
Tweedy Birdy there are actually other options that can be done. Like taking a rib and building from there. I'm in a place where there is no more choice because i no longer have joints I only have a bilateral jaw replacement that includes joints with 26 screws. I wish I would've been told about the rub joint.
Not a chronic pain suffer from jaw issues , but I do need jaw surgery due to having an overbite , which In turn causes me to have chronic migraines , I wish I could find a doctor to fight with my insurance to get me the jaw surgery I need :(
stop eating dairy, chips, paprika spice, those are inflammatory food. Eat leafy greens, and collagen rich food such as pig's feet, chicken feet. Take some collagen supplements if you have to.
That is one of many. What about the rest of us who are really in chronic pain. The insurance won't give me the medical help I need, but the government expects me to set goals that they (who are not in pain) think are reasonable, and I see as impossible. I am treated like a criminal each month I have to show up to get my monthly supply. Yes, we who are truly in pain would love to get off of the pain pills. I guess we must really believe we are getting better just by thinking it, and trusting that our government has those who really suffer has their best interest at heart.🤔😕
don't worry I had psoriasis and I had to go through it I had it for 4-5 years. I had so many medications to. I had cream, bandages to put on at nighttime, and emotional sad about it
She needed a medical surgery that was denied to get on with her life, but given pills instead. I hope that she finally gets complicated surgery that she so desperately needs. I hope that The Doctors follow up with her and her fiancé because I am praying for them.
Echoheart I have heard of a patient saying no to free surgery, but this is my first time hearing of a doctor backing out. I'm sorry to hear that. It seemed like she really needed the surgery. Maybe I am wrong.
Echoheart It seemed like her life was turned upside down. She and her fiancé seemed traumatized by the situation. I hope that things get better for them, too.
But as of August of 2017 she hasn't received surgery. The doctor backed out, she's still in pain. I hope she updates her story on facebook soon that she actually got what she needed.
I think what doctors don't understand is is that some people actually need these pain medicines because they are in a lot of pain. I think this girl is one of those people. I know because I was in a lot of pain and the doctors did not want to give me pain medicine because they thought I was addicted to it, but I was not. I was in a lot of pain just like this girl. They think a lot of people are addicted to pain meds which may be true, but what they don't understand is that some people actually need them in order to live a pain free life. Doctors need to get it into their heads that some people are addicted to them and some are not. I was never addicted to them. I needed them just like this girl. I know because I don't even like to take pills in the first place. #iwouldnevertakethesepainpills #ifididnthaveto #doctorsneedreeducationonpainpills
Jessica Romanosky you may have to go on a waiting list but it's worth it. I was able to get in right away because I was having suicidal thoughts. Good luck. I really wish u the best.
danielle pezzato I have finally been able to come off the pain meds but I still have major pain. so now time to deal with that through healthy living...
NeedMoreCoffee some people just never get it. when I say I have jaw issues people are like ya me to... then I go I have a bilateral jaw replacement with 26 screws in my face and their jaw drops. people are fucking ignorant. Thank you for speaking up.
I wonder what kind of jaw disorder this woman has. It's really such a shame that insurance companies don't always pay attention to how important certain medical procedures and treatments are actually to any patients' case and deny that patient the treatment that could easily fix or help them handle their medical problems. I've had gotten a major surgery done to my left leg because of multiple problems that I've had developed because of having cerebral palsy and if I had not switched from my pediatric orthopedic surgeon to the one I see now ( who treats adults), I would still be in crippling immobilizing pain as a result of being unable to move my left leg properly ( my mobility issues originated from dislocating my left kneecap and I had torn my patella ligament). The fact that at first my insurance didn't think that it would have been necessary for me to have gotten the surgery, however I couldn't be doing physical therapy for my entire life without any improvement. This is why I am thankful for my orthopedic surgeon who had found out what my situation was and agreed that I had exhausted my ability to do physical therapy. This is why if your doctor listens to you, they will definitely help do what they can to help you even if it means to go teach those insurance companies how important a certain treatment or procedure would be to help a patient's life, especially if it is a matter of life and death.
I would LOVE to know WHO THE INSURANCE COMPANY is! I would boycott and petition and post until they were SHAMED enough to do something. WE PAY THEM and this is how those BILLIONAIRE CEO'S HELP US???
Lol just how my insurance refuses to even cover a penny of anything related to obesity.. even a nutritionist appointment.. yet they have their own surgery buildings specifically for obesity one for adult and one for kids. But they will pay for your other conditions caused by obesity. Fucking hate America’s health industry.
So the insurance company basically made her depend on these pills instead of helping with the surgery & now she’s deemed an addict ? No she’s in fucking pain what’s she suppose to do scream all day ?
because that won't fix the problem......the issue is that she's in constant pain and she can't function like a normal human because it's too painful to EAT. I think you're really missing the point here entirely...this has nothing to do with how she LOOKS and EVERYTHING to do with her quality of life.
![Seungmin "그렇게, 천천히, 우리(As we are)" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/kAzmhLHePqU/mqdefault.jpg)
NOW THAT IS DOCTOR IS WHAT I CALL A HUMAN BEING AND WHAT BEING A DOCTOR IS ALL ABOUT
Paula Cirulnick
EXACTLY AND THAT INSURANCE COMPANY CAN GO FUCK THEMSELVES
LIKE WTF IS THAT THEY COVER THE PAIN AND KNOW IT'S A PROBLEM BUT THEY DONT COVER FOR THE DAMN SURGERY TO TAKE AWAY THE PAIN THEY COVER HER FOR THE PILLS THE FUCK, THANK GOD THAT DOCT IS GANA HELP HER
Paula Cirulnick this is another reason you guys need Medicare. I hope you get it sorted me day.
Paula Cirulnick And I second that, poor family, feel for them. Hope it all comes right
whetsit tuya. soooooo true you are. doctors are nothing but legal drug pushers with a degree.
We need a follow up video of how she's doing post surgery. PLEASE!?!?! :-)
As of August of 2017 she hasn't received surgery. The doctor backed out..
Echoheart omg that’s awful
It really is. I really wish she could have at least some relief.
he's doing the surgery now. he changed his mind.
@@Julie86Mac Is thier am update.?.Thankfully technology is catching up to tmj.Its all pressure for me.Wich is a nightmare but it's not pain.Mostly a tightness that created pressure.
So he verified that her pain is very severe, yet they spent so much time shaming her and treating her like an addict because of the pain meds she takes. Some people genuinely need them.
oh man...i have severe jaw issues and required jaw surgery. I live in Canada. I am so grateful for our imperfect health care. Poor woman, i hope she gets better. The pain must be horrific.
It pisses me off so much that they are treating her like it is her fault she has to take pills. I wouldn't even call her an addict exactly, I mean sure she is chemically dependent, but she doesn't seem mentally dependent. Fix the problem and I am sure she will recover in time. In other countries she wouldn't have had to deal with all of this. But here in America we have to earn our right to be healthy, even when it isn't your fault you are sick. This is what happens when insurance companies and pharmaceutical companies are able to do what they want without regard for the people they are being paid to help.
THANK YOU. Literally what I was thinking. This women lives in constant
PAIN. OF COURSE she's on medication for the pain because the surgery she
NEEDS is being called an unnecessary "cosmetic" surgery. Which is such complete BS and just makes me hate the pharma even more.
*****
It just goes to show how much judgement there is for women and mothers. We can't be in pain or need things. We are supposed to suck it up and take care of everyone except ourselves. I guarantee that her children would rather her be a little doped up than to be screaming at them for stupid things because she is in pain. Mouth pain is the worst, I hope she got the help she actually needed. She doesn't need rehab. She needs surgery.
onyxfeathers a pill addict is a pill addict is a pill addict no matter how you try to justify or classify it. pills don't care who one is....that's that liberal brainwashing saying ohhh blah blah blah. the woman is saying SHE'S ADDICTED. are you really this DUMB???
Yes Kim, I guess I am a dumb liberal. But at least I care about the people who live in this world with me. Even ignorant misguided Republicans as yourself. Yes she is addicted to the pills, that is how opiates work. But the truth is, if we had socialized medicine this problem would have been resolved before she had to become dependent on drugs to manage her pain. But right now we lack proper empathy in this nation as you have so wonderfully shown. When will people understand when we lift each other up we all benefit. When we tear each other down we get nowhere. But what do I know, I am just a dumb liberal, and I am proud to be.
onyxfeathers Even though she is not mentally dependent on her meds, she needs close medical supervision to safely come down off the opiates because opiate withdrawals can be life-threatening if the dosage is lowered too quickly.
I wanna see how she is after the surgery..Hope she's doing much better! I don't understand how insurance company can deny her for so long.. Obviously she needed surgery!
As of August of 2017 she hasn't received surgery. The doctor backed out..
Echoheart Please cite your sources. I can not find any information to back up what you’ve said.
Nicole Rodrigue
In the comments:
m.facebook.com/UnitedHealthcare/posts/10210227471631287
this made me cry. I'm so happy for her
this is really getting under my skin... the doctor is talking to her like she is an addict instead of a victim in pain. If she was on the show at any other point in history he wouldn't be talking to her like that. fix the goddamned problem or at least help alleviate some of it. Then, if she gets that help and shows no signs of weaning herself off of them, is when you would talk to her like you are right now.
You cannot understand what it's like to live in chronic pain until you experience it for yourself.
Crying so hard. ❤️❤️❤️❤️ I hope life is a lot better for her now.
My heart truly goes out to her and I completely understand what she is going through and feeling pain wise. After several major jaw surgeries on both sides of my jaw I had no choice but to have a bilateral total joint replacement of my TMJ joints. The surgery was literally the most difficult and painful thing I had ever gone through. That was 14 years ago and even though it gave me a little function, I really didn't get much function sadly, I still live with severe chronic pain of my jaw and face. I was also diagnosed with trigeminal neuralgia which is horrible. I truly truly hope that she will get better pain relief and better function after she has this surgery. This surgery is NO joke. It was a loooong hard painful road and hopefully this will give her her life back. Seeing other TMJ/jaw patients like this always touch my heart.
Theres a much easier surgery called arthroscopic
That's amazing. Those doctors actually have empathy unlike so many now
I cried a little :( I'm so happy for them. I wish her the best
God bless that doctor and promises for their selfless acts to help this poor woman
I pray it works out well for you, I'm praying for you both! I can relate too much. Since I was 20, I've been battling colon cancer, ulcerative colitis, osteoporosis, osteoarthritis, depression, anxiety, DDD in my thoracic spine, fracture lumbar vertebrae, GERD, chronic migraines, hypertension, but to name a few. To date I've had 22 GI surgeries, the first when I was 21. My colon aka large bowel, ruptured, I was clinically dead for two minutes, but they were able to bring me back and remove my colon. Since then, I've have 7 intestinal diversions spread out over 22 surgeries. They've had to surgically remove my rectum (it wrecked me all right!, and yes, it hurt, a lot!), entire colon, and most of my small bowel. I'm now missing approximately 92% of my GI tract, having only my esophagus, stomach, and a 5 feet of my small bowel (the average person has about 26-28 feet of small bowel and 8-11 feet of colon). I've also had rotator cuff decompression surgeries done on both shoulders, and carpal tunnel release surgeries on both hands, plus, many, many painful procedures from cutting off part of my tongue to check for oral cancer, to having a pic line inserted, many times, for IV nutrition aka TPN. The reason I'm saying all this is because I too live with chronic daily pain, and take at minimum 9 Percocet/day. I've tried so many times to stop them, but the agony I'm left in is just too much to bear. I'm now 47, I was forced to retire early three years ago, because how can I work with having to take so many pain killers? So I know EXACTLY how it feels. Unfortunately, in my case, I'll never be able to get off them, as my daily pain is just too great, and without them, I simply can't function at all. These diseases have totally destroyed my life, my goals, and my finances, so to all of you reding this, that are healthy, all I can say is, you have no idea of just how lucky you are! It's a cliché, but it's true, you can have all the money in the world, but if you don't have your health, you have nothing, I just wish I had money, so I could at least afford to buy things I desperately need, like a new car to replace my 11 years old clunker that's falling apart at the seams!
TJ Devereaux wow, I'm sorry, I hope things get better for you
Man this world is cruel but hang in there this world is temporary prepare your self for the next eternal world where you will be rewarded for your bravery and difficult task you have at hand.
@@westsidekasper4860 wow, thanks…now, 5 years since that first post? I’ve had an additional 15 more surgeries, but brave? I cringe, because I’m a big wimp, I just gotten used to dealing with it, and have a much better grasp on my situation….you can get used to almost anything if you have to, and because I have absolutely no choice but to learn how to live with it, that’s exactly what I’ve done. I have days where I am filled with self-pity, but now, they are few and far between (found one heck of a great therapist to help me deal with the mental health problems, which can be equally painful), and I don’t tell anyone usually, because there’s nothing anybody can do to change it, and everybody has a lot of problems to deal with, I don’t think anybody has an easy life, and I don’t wanna add more stress to the people I love. Yes it’s been a lot to go through, but with the help of modern medicine, and a lot of (new) different prescription and naturopathic pain control, combined with exercise, meditation, and all sorts of methods to better my mental health, I’m dealing with it just like everybody else. Yeah, I have a few more issues than most people do, but if life has taught me one thing, even though it’s so cliché, there are always countless people far worse off than yourself, spending most of my life in the hospital as an employee and a patient, I’ve learned that firsthand. Ironic, because originally I wanted to study music years ago, I never would’ve thought of healthcare for a career, but I didn’t want to spend my whole life sitting in a hospital bed, so after realizing how much joy I got from helping people in the hospital, simply by sharing my story, and offering support, well? I dug myself out of that dark hole I was trapped in for so many years, and instead, I got my message degrees in radiological medicine, and laboratory medicine, via correspondence with the University of Toronto. Technically, I am on permanent long-term disability forever, but there are certain times that I’m now strong enough to work, because I have a very understanding management team, they allow me to work whenever I want to, because nothing makes me happier than to ease other peoples burden by sharing my own, by telling them my story, so that they can see there is indeed life outside the hospital, even during those times when you don’t think you’ll ever make it out alive. I’m actually considering writing a book, I’m definitely not an intellectual, nor a literary expert, but I just want to share my story, because I know from experience that it helps a lot of people, and because I believe everything happens for a reason. Whatever you want to call it, fate, karma, God, etc., everything in my life good or bad has led to something I would have never have thought of otherwise. I’m currently 53 years old now, I know that my life span has been shortened by about 20 years, give or take, but after going through all that there is no way in hell I’m going quietly, I’m going to go kicking and screaming into that proverbial good night, I’ve fought too hard to get to this point just to give it up! I know that sounds a little crazy, probably because I am a little crazy🤪. I’ve now survived five rounds/relapses of intestinal cancer, and have almost none of my entire gastrointestinal tract left, so I’m a cheap date, I can’t drink alcohol ever again, and I can’t eat more than a few bites because there’s no room inside, it’s the ultimate diet, Jenny Craig eat your heart out!… But, I really wouldn’t recommend it! Lol! As you can tell, I now like to use humor, at first I used it as a shield, but once I learned how to deal with a psychological impact of going through all that, I learned to use humour as it was intended, to make people smile. I’ve done my share of crying, and while I still have the occasional day of tears, I crack jokes, yep, the most inappropriate ones you can imagine, but when you’re dealing with things like poop, how can you take it seriously? Very seldom do I ever take the subway, because I have a car and a handicap parking pass, but occasionally, I’ll take the subway for fun…..if you don’t know anything about an ileostomy bag, essentially your small intestine, is sticking out of your abdomen, and you have a bag stuck to your side for the rest of your life to collect whatever comes out of your intestine, you just dump it in the toilet, but when you get bad gas, and you can’t fart normally because you don’t have a rectum anymore like I don’t? It still sounds like a fart, but because it’s going into the bag, which is airtight and watertight, and not the open air around me?…if I’m on the subway or surrounded by people in a quiet environment, you can hear the farts, the entire packed train…all of them with the look of disgust on their face, but then in a few seconds, I swear to God, they start sniffing the air, because they can’t smell anything, it’s hysterical! The last time I did it I had to get off the train three stops early because I couldn’t stop laughing, they must’ve thought I was insane! But I swear to God these people looked disappointed because I couldn’t smell anything! One dude looked like he was going to cry! Lol! That’s how I deal with it, I think that’s the best way to deal with any tragedy or hard time. Anyways, I’ll shut up for now, because I never shut up, the running joke is I have more than just regular diarrhea, I also have verbal diarrhea! Thank you so much for your comment, it truly means a lot to me, take care of yourself, cheers from Toronto!
Can we get a follow up?
As of August of 2017 she hasn't received surgery. The doctor backed out..
Poor lady.. feel so bad for her.. i have fibro and disk disease so I know how bad pain can get.. Hope she can get a bit better..:)
I hope there is an "after" video for this eventually.
supercalifragilestic
The doctor backed out unfortunately. She hasn't had surgery as of August 2017.
Source in case it's needed:
Comments section on this:
m.facebook.com/UnitedHealthcare/posts/10210227471631287
I'm really pleased that the doctor will help her. Her suffering hopefully will end.
What a sweet husband and a strong wife. GBU guys
Where is the update. Very happy that they offered this to her, but wanted to see if they were able follow through.
Now that is a man that everyone can respect.
Just cried my eyes out
I'm trying to figure out how it's an addiction when she doesn't have a choice? she's in pain. what is she suppose to? no meds and suffer? for God's sake American insurance wants her to suffet
Cathleen Walker becaude her body has built tolerance. The meds no longer work her body is now just addicted to them.
Vanessativa it's doesn't mean she's still not in pain. Tolerance or not she started taking that medicine because it got to the point where she could no longer deal with the pain
I never said she wasnt in any pain. I understand she is pain her body is addicted to the meds none the less weather they take effect or not. I understand she is still in pain
God bless you honey☺️👍🏽
made me cry
I'm getting this surgery soon!!
Im confused because doesn't she need the medication to help the pain? So detoxing from the addiction means she cant take the pills anymore so she would still be in pain?
Iyla Lacoste The one doctor say they would be gradually swapping out the addictive pain meds for non addictive ones
Imogen Elise those don't exist. What they mean by "non addictive." Pain management is Tylenol, anti inflammatories, sometimes antidepressants to distract your pain. Maybe if your lucky some treatments like steroid injections but those are massively expensive. But none of these things are actually "pain killer," and not some sort of controlled substance, i.e., addicting.
I agree. There is really no med thats non-addictive and really does anything besides treat minor pain. Marijuanna might help though? I hope they thought of that for her. Better than being hooked on opioids but sometimes they are the only option
Iyla Lacoste yes
She's still be in pain. Which is bullshit. It's people, who have no idea what chronic pain is, that think like that. They made more of an issue about her being on pills then her being in pain. I suffer from. Chronic pain that I can have surgery to fix but insurance won't pay. I'd LOVE to be off these pills. But that will NOT happen until my pain is fixed. I would have walked right off that stage.
You can see how her face is pulling to one side. That is the major level of her pain. Her pain is obvious. That doctor offered to help her through communicating with her insurance and then a complicated surgical procedure pain intervention. Once she gets that resolved, the pain management will no longer be needed.
may God be with her... you're gonna have a good and healthy life Amen.
I was thinking the same solution too! I'm sorry this happened to her though :(
I have tmj. It can be aweful. Not as bad as this woman's issue. Doctors and jaw physiotherapist told me they don't like doing surgery because it can generally make things worse. But I think her case is so severe that any improvement at all would be beneficial. She'll always have jaw problems though. Even with new jaw. But interesting to hear about this since it is somewhat relevant to me
kslice I have tmj. Got a bunch of orthodontics done to fix it but it didn't. I will say it hasn't progressed any further so that's good but it hasn't gotten better. I think they can give injections to help with the swelling pain. Just trying to help
I have jaw implants and it's ruined my life. along with losing teeth and I'm still on opioid dependent !
kurdistanss I am a disabled veteran. and when they did a surgery they messed up my jaw creating degeneration in my joints needing multiple surgeries until I had my final one. And now it's failing, I'm losing my profile and in chronic pain. not sure what to do and no doctor will touch me because I'm a nightmare case due to failure.
I'm sorry to hear this. She can't eat or hardly talk. She can try & see if it helps as she has no options. Thing is that it can't get much worse.
Tweedy Birdy there are actually other options that can be done. Like taking a rib and building from there. I'm in a place where there is no more choice because i no longer have joints I only have a bilateral jaw replacement that includes joints with 26 screws. I wish I would've been told about the rub joint.
So sorry to read that. I hope things can get better for you. x
I really feel for you!! Hope everything turns out fine. If anyone knows please tell her present situation
Kindness 🤗
My HEART!!!
Can't wait to see the after math of this
Laura Gadille I guess she never got the surgery , the doctor backed out 😣
Nice trainers
Awwww that guy does not want to cry on TV.
How is she doing??
can somebody help me detox please. theres no help like this in scotland
Not a chronic pain suffer from jaw issues , but I do need jaw surgery due to having an overbite , which In turn causes me to have chronic migraines , I wish I could find a doctor to fight with my insurance to get me the jaw surgery I need :(
the doctor's please help me as my joints are now failing!!!! this sucks and I'm in some major pain.
stop eating dairy, chips, paprika spice, those are inflammatory food. Eat leafy greens, and collagen rich food such as pig's feet, chicken feet. Take some collagen supplements if you have to.
Isabella Huhn I've been to the doctor hence the fact that I actually have the freaking bilateral jaw replacement with 26 screws in my face.
I would never condemn a person who is in actual pain that takes pain medication.
How can she get off of the pain pills if the doctor even said the surgery if more for function, not too much for pain relief?
I hope the surgery helps this young woman. The suffering of jaw and any kind of head pain is very debilitating.
3:34 look at the mark on her arm, lol
That is one of many. What about the rest of us who are really in chronic pain. The insurance won't give me the medical help I need, but the government expects me to set goals that they (who are not in pain) think are reasonable, and I see as impossible. I am treated like a criminal each month I have to show up to get my monthly supply.
Yes, we who are truly in pain would love to get off of the pain pills. I guess we must really believe we are getting better just by thinking it, and trusting that our government has those who really suffer has their best interest at heart.🤔😕
don't worry I had psoriasis and I had to go through it I had it for 4-5 years. I had so many medications to. I had cream, bandages to put on at nighttime, and emotional sad about it
😢😢😢😢
She needed a medical surgery that was denied to get on with her life, but given pills instead. I hope that she finally gets complicated surgery that she so desperately needs. I hope that The Doctors follow up with her and her fiancé because I am praying for them.
As of August of 2017 she hasn't received surgery. The doctor in the video backed out.
Echoheart I have heard of a patient saying no to free surgery, but this is my first time hearing of a doctor backing out. I'm sorry to hear that. It seemed like she really needed the surgery. Maybe I am wrong.
Me too. I hope she gets what she needs.
Echoheart It seemed like her life was turned upside down. She and her fiancé seemed traumatized by the situation. I hope that things get better for them, too.
So is there an ending ?
As of August of 2017 she hasn't received surgery. The doctor backed out..
it's insane that people have to go through all of this just to get help
But as of August of 2017 she hasn't received surgery. The doctor backed out, she's still in pain. I hope she updates her story on facebook soon that she actually got what she needed.
Source:
In the comments section of this fb post:
m.facebook.com/UnitedHealthcare/posts/10210227471631287
I think what doctors don't understand is is that some people actually need these pain medicines because they are in a lot of pain. I think this girl is one of those people. I know because I was in a lot of pain and the doctors did not want to give me pain medicine because they thought I was addicted to it, but I was not. I was in a lot of pain just like this girl. They think a lot of people are addicted to pain meds which may be true, but what they don't understand is that some people actually need them in order to live a pain free life. Doctors need to get it into their heads that some people are addicted to them and some are not. I was never addicted to them. I needed them just like this girl. I know because I don't even like to take pills in the first place. #iwouldnevertakethesepainpills #ifididnthaveto #doctorsneedreeducationonpainpills
I was 6 when I got it. I got it from my great grandma
💕
Drink every time the doctor say uhhh
but it was from my tonsils so they took it out and now about 97 percent gone
I would give anything to go to a medical detox place.
Jessica Romanosky you may have to go on a waiting list but it's worth it. I was able to get in right away because I was having suicidal thoughts. Good luck. I really wish u the best.
I hope you overcome them. Keep your head up Danielle you sound like a sweet guy, good luck.
danielle pezzato thank you. Being a disabled veteran the chances of me getting in is slim to none...
danielle pezzato I have finally been able to come off the pain meds but I still have major pain. so now time to deal with that through healthy living...
NeedMoreCoffee some people just never get it. when I say I have jaw issues people are like ya me to... then I go I have a bilateral jaw replacement with 26 screws in my face and their jaw drops. people are fucking ignorant. Thank you for speaking up.
Jesus can heal all issues, if you trust and submit to him no disease is to BIG for him to heal
candy t Bullshit and ignorant.
I HAVE CRIPPLING JAW PAIN
I wonder what kind of jaw disorder this woman has. It's really such a shame that insurance companies don't always pay attention to how important certain medical procedures and treatments are actually to any patients' case and deny that patient the treatment that could easily fix or help them handle their medical problems. I've had gotten a major surgery done to my left leg because of multiple problems that I've had developed because of having cerebral palsy and if I had not switched from my pediatric orthopedic surgeon to the one I see now ( who treats adults), I would still be in crippling immobilizing pain as a result of being unable to move my left leg properly ( my mobility issues originated from dislocating my left kneecap and I had torn my patella ligament). The fact that at first my insurance didn't think that it would have been necessary for me to have gotten the surgery, however I couldn't be doing physical therapy for my entire life without any improvement. This is why I am thankful for my orthopedic surgeon who had found out what my situation was and agreed that I had exhausted my ability to do physical therapy. This is why if your doctor listens to you, they will definitely help do what they can to help you even if it means to go teach those insurance companies how important a certain treatment or procedure would be to help a patient's life, especially if it is a matter of life and death.
Wow total joint replacement is the last resort surgery for these type of cases...poor lady hope she is doing better.
I would LOVE to know WHO THE INSURANCE COMPANY is! I would boycott and petition and post until they were SHAMED enough to do something. WE PAY THEM and this is how those BILLIONAIRE CEO'S HELP US???
I hope they don't trying a taper until she has recovered from this extensive surgery, other wise it's just crule!
2:54 "enjoy our churro???????????"
lol... he said "Arturo"... her fiance
Lol just how my insurance refuses to even cover a penny of anything related to obesity.. even a nutritionist appointment.. yet they have their own surgery buildings specifically for obesity one for adult and one for kids. But they will pay for your other conditions caused by obesity. Fucking hate America’s health industry.
I'm being completely honest that is my mom
How is she now?
@@westsidekasper4860 she’s doing really good she has came a long way got the surgery and is a lot healthier now
first of all my deary, I am not of age for medicare so please keep your comments to yourself
i uh, would like to uh, know why uh, that one doctor could uh, not stop uh, saying "uh" and pausing, but uh, he is uh, a good guy
her fiance just thinking "maybe finally i can get some head after she gets surgery" LMAO
for those who may not have caught this.. her loser insurance company is UNITED HEALTH CARE.
So the insurance company basically made her depend on these pills instead of helping with the surgery & now she’s deemed an addict ? No she’s in fucking pain what’s she suppose to do scream all day ?
darling plz don't go on methadone or suboxone for your depentence. plz plz plz don't let them do that to you
Don't trust that audience doctor if his surgical skills are anything like his air traffic controller skills!
1:47 kratom.
Wow....way to stigmatize opiates for chronic pain patients!!!
why not wear your hair longer on the side that's affected?
because that won't fix the problem......the issue is that she's in constant pain and she can't function like a normal human because it's too painful to EAT. I think you're really missing the point here entirely...this has nothing to do with how she LOOKS and EVERYTHING to do with her quality of life.
are you serious?
wow..
Want to make the US great again Mr Trump .....fix your health system. Thank God I live in Australia.
She doesn't deserve that surgery