Lessons from Narcolepsy: How to Snooze and Not Lose | Lum-Awah Atang Arrey | TEDxAliefStudio

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  • Опубликовано: 15 янв 2025

Комментарии • 51

  • @djsmdsleep
    @djsmdsleep Год назад +12

    I am a sleep doctor, and Narcolepsy is my specialty. I love this talk! Very inspirational! I will share it with my clients and suggest others view it in my upcoming book "Wake Up Sleepy Head! Diagnosing, Understanding, and Navigating Narcolepsy" Thank you for your insight into this disorder! Debra Stultz MD

    • @lum-awaharrey269
      @lum-awaharrey269 Год назад +3

      Thank you, Dr. Stulz! I would love to read your book when it is published. This is a topic that needs more media attention. i would like to talk to you more about your work.

  • @mabr789
    @mabr789 2 года назад +7

    Lum- Awah I am so proud to see you on the TED Talk stage educating all of us. I appreciate you teaching about Narcolepsy while also sharing your journey. Your tools will help many people over come many challenges beyond just Narcolepsy.
    You are brilliant, beautiful, hard working, and a great mother. God will continue to bless you and the children

    • @lum-awaharrey269
      @lum-awaharrey269 Год назад

      Thank you so much for your words of encouragement! It was an honor to share my experience.

  • @babashabazz5765
    @babashabazz5765 Год назад +4

    Beautiful and courageous presentation. I have been narcoleptic for 40 years . Lum you have described my journey and soul.❤ I have failed a million times and can’t wait to try again 💪🏾

    • @lum-awaharrey269
      @lum-awaharrey269 Год назад

      I'm so glad my talk resonated with you! Keep "failing" forward. I wish you all the best!

  • @azieatang423
    @azieatang423 2 года назад +9

    Your vulnerability is so courageous. Thank you for being so transparent to the world. You don’t know how many people you’re helping.

  • @ReceiveTheKingMinistries
    @ReceiveTheKingMinistries Год назад +1

    Thank you for sharing your light! I’m so encouraged!

  • @GAllanRoberts
    @GAllanRoberts 2 года назад +3

    Thank you for this important video. I recovered from narcolepsy 18 months ago, after a decade of suffering from this terrible condition.
    It cause me to change my career as graphic designer. At the end I fell fast asleep standing simply by blinking and same happen while driving.
    The final event was when I fell asleep behind the wheel for 30 seconds and I opened my eyes face to face with Mack truck.
    I called my friend who put me a special diet plan. 90 days later I had lost 45 lbs and my Narcolepsy was gone.
    I am grateful everyday I am 100% focused on my health.
    Thank you again.

    • @lum-awaharrey269
      @lum-awaharrey269 Год назад +2

      My understanding, from my Neurologist, is that the symptoms can improve but not complete recovery from Narcolepsy. I'm glad to hear you are doing well.

  • @carlaeskridge8365
    @carlaeskridge8365 2 года назад +3

    Great presentation! I too have Narcolepsy & can relate to your experiences. It took 20 years for me to be diagnosed. Being followed by a Sleep Disorder Clinic. Retiring end of this year after being a registered nurse for 40 years! God Bless You in your journey with having Narcolepsy!

    • @lum-awaharrey269
      @lum-awaharrey269 2 года назад

      Wow! I know how difficult it can be not knowing the reason for the constant exhaustion. I'm glad you finally got the diagnosis & hopefully your treatment is helping. Thanks for sharing!

  • @cessa1309
    @cessa1309 2 года назад +2

    Thank you so much for sharing your truth with us! So many lessened learned.

    • @lum-awaharrey269
      @lum-awaharrey269 2 года назад

      Thank you for watching. I appreciate your kind words & support!

  • @helenfusi8215
    @helenfusi8215 2 года назад +1

    I love the aspect of not looking failure as a bad thing but as a learning curve . Thanks for sharing love. ❤❤

  • @seemab6576
    @seemab6576 2 года назад +4

    Same here. Got scoldings from teacher for sleeping in class. Got dismissed from work for inefficiency in work. Got insulted from family people for sleeping during daytime. Nobody understands that i do not want to sleep but not in mu control to stay awake. Afraid of taking a desk job. Cannot get training as i am not able to sit with wakefullness continuously for hours. The tainer misunderstands me to be not interested. So not able to acquire any special skill. Trying to find a soliuton for this condition. Not found anything still.

    • @lum-awaharrey269
      @lum-awaharrey269 Год назад

      This is a very difficult journey & so easily misunderstood by anyone who has not walked in your shoes. I'm still figuring it out myself & can only encourage you to keep searching for solutions that will work for you. All the best!

  • @princesst6002
    @princesst6002 Год назад +1

    I was diagnosed 13 yrs ago but I can remember sleepwalking as a child about 6 or 7 yrs old. Fast forward and my youngest daughter and I did our sleep studies the same night and no shocker we both have it. It is a constant battle for me. I work in healthcare myself and everyone thinks it's something funny or minor but just one night with paralysis and that would definitely change their minds. Thank you for being an outstanding role model and someone to look up to.

    • @lum-awaharrey269
      @lum-awaharrey269 Год назад

      Thank you for sharing your experience as well. I have always been concerned about the possibility of my children having the same condition. It breaks my heart but I hope you are both getting the treatment you need to thrive.

  • @feliciabradley1777
    @feliciabradley1777 2 года назад +2

    Phenomenal!! I like how you used newly installed “mindfulness meditation” software to redirect negativity. Also, I like how you explained that brokenness & failures can be embraced platforms to promote achievements.

    • @lum-awaharrey269
      @lum-awaharrey269 2 года назад

      Thank you for watching! 🙏🏿 I appreciate your support & kind words!

  • @mayauwu8628
    @mayauwu8628 2 года назад +6

    Beautiful video Lum! I have liked and shared the video. Thank you for sharing your story. As Africans we tend to sweep a lot of issues that concern our families under the rug. I am definitely so proud of you for speaking up. God Bless you and your family!
    Love ❤️ you,
    Yvonne

  • @jacquelinembanya6141
    @jacquelinembanya6141 2 года назад +1

    Very inspiring, thanks for sharing 👍🏿

  • @cidolineehunyi6872
    @cidolineehunyi6872 2 года назад +2

    Thank for sharing your experience.

    • @lum-awaharrey269
      @lum-awaharrey269 Год назад

      Thank you for taking the time to watch and share my talk! Stay blessed!

  • @arreyobenson4009
    @arreyobenson4009 2 года назад +1

    Nothing is more powerful than learning from one’s experiences to grow. The mind is a powerful tool. Thanks for sharing!

  • @kaya2549
    @kaya2549 2 года назад +1

    Very bold introspective with much inspiration.

    • @lum-awaharrey269
      @lum-awaharrey269 Год назад

      Thank you for the kind words! Keep sharing the video.

  • @mariefongwa9972
    @mariefongwa9972 2 года назад +2

    Thank you for sharing your lived experience with a challenging condition, Lum. You have named it, demonstrated how to successfully live with it and not let it take over life completely. Your bravery, concrete examples, and powerful presentation will do many so much good. Joining many to thank you for the decision to share.

    • @lum-awaharrey269
      @lum-awaharrey269 2 года назад

      Thank you for taking the time to share your thoughts! I appreciate your kind words!

  • @thereset4490
    @thereset4490 2 года назад +1

    Great presentation Lum Awah and thank you for sharing your experience and solutions 🙏🏾❤️

  • @elizabethnangmenyi5432
    @elizabethnangmenyi5432 2 года назад +1

    Thank you for bringing this to our attention. Great presentation, Lum.

  • @geraldineessombe2929
    @geraldineessombe2929 2 года назад +1

    Thanks for sharing your experiences with the rest of us.

    • @lum-awaharrey269
      @lum-awaharrey269 Год назад

      Thank you for watching! Continue to share the video.

  • @chimdimmaohiri
    @chimdimmaohiri 2 года назад +1

    Great talk, Lum Awah!!! Well done

  • @EmemWashington
    @EmemWashington 2 года назад +1

    Love the lessons we all can learn from your experience. Thank you.

  • @rourketraining
    @rourketraining 2 года назад +1

    This was an excellent talk and shared valuable thoughts.

  • @lumn1
    @lumn1 2 года назад +1

    Amazing video!!! So inspiring

  • @futureleaders-usa
    @futureleaders-usa 2 года назад +1

    Awesome. Informative and truly a very serious subject to discuss further.
    A lot of people suffer from this without knowing what they are going through. Imagine those in Africa and other 3rd world countries.
    But hey...the world need to know more.
    Don't stop here. Connect and seek partnership with medical professionals and therapists in this field to work with them.
    Start writing about this..via blogs/vlogs

    • @lum-awaharrey269
      @lum-awaharrey269 2 года назад

      Thank you for taking the time to share your thoughts. I have been connecting with different organizations & one already reached out to me! I appreciate your support in sharing the video with your network. Thank you!