My girl has chronic health issues, including chronic pain. I remember being shocked in a doctor's appointment with her, where she was asked how much pain she was in on a scale of 1 to 10 and she responded "pretty normal today, about a 4 out of 10." When we got back to the car i hugged her and asked if she really was in that much pain all the time. She just hugged me back and laughed amusedly, and told me "yes i am, but you dont need to worry about it. Ive been dealing with it all my life. Im pretty used to it by now." Shes also allergic to NSAIDs, with a history of addiction in her family. So her only options shes okay turning to, are tylenol and benadryl. Hearing that we might get new pain meds that are not addictive, and can stop pain, in a few years, just in time for us to start a family, Is fantastic news. I cant wait to tell her.
@@jennifermcelmon5954 I have severe ADHD and homeopathy helped me. I only share what I know. I also had pain issues. Oh I forgot in your opinion ADHD doesn't exist! Try and go to a conventional doctor with pain issues and see what they will offer you and how they will treat you! Never tried using homeopathy yet? Maybe it's your time!
I have a rare presentation of CIDP. Chronic inflammatory demyelinating poly neuropathy. I started off hypersensitive to everything. As a child, anything that touched me was irritating. A pin prick felt like being bitten by a shark. As the years went on, it started to reside. In my twenties, I started to notice my tolerance for pain was extremely high. Then I started to notice that in random parts of my body, I couldn't feel pain at all but my hands and upper back were still excessively sensitive. Now I can't feel pain in most of my body. I get hurt and I don't know until someone points it out or I see the blood. I have cut myself to the bone, stabbed myself in the stomach and put a metal rod through my leg without noticing. It's dangerous when you don't know when to stop.
It's like saying quadriplegic doesn't need disability because they don't feel pain. Or someone with mental disabilities doesn't deserve disabilities because it doesn't cause pain. I want to have a few words with the judge, just a few.
I had to get a lawyer. They sent my medical records to a doctor who spoke for me at the trial. The judge who acted like a prosecutor did not know what stage four cancer was. A disability court judge who did not know what stages of cancer was. She stunned the doctor when she said “stage four doesn’t sound that bad”. I was told that I had six months to live and it was four months before I could have emergency neurosurgery. Not that bad. The doctor said, “her disability isn’t from being in a wheelchair, it’s pain.” It wasn’t easy and if it wasn’t for the lawyer I was already denied(not a free one, you don’t get one for disability court). I have CRPS2.
the court is actually idiotic. They should have been given disability status even if they didn’t suffer serious injuries, because that condition itself is disability enough. I can’t imagine the amount of labour it takes for him and his parents to make sure he’s ok, and the constant fear of something being incredibly wrong but not knowing about it is incomprehensible to me.
I'm going through the same thing right now with disability. I have extreme POTS to the point where I pass out doing almost any kind of strenuous activity as well as just by standing up I have to constantly flex my legs to send the blood back to my brain. And I have a myriad of other health issues which I just had hip surgery for and won't be walking for a few months but nope can't get disability as I'm supposedly just as able to work as anyone else -_-
@@dormantlime215 This exactly. They'll automatically deny the first application in the hope that a person gives up. There are a whole lot of lawyers out there who will represent a person in exchange for a chunk of the back pay.
Yep. Feeling pain is a sign something is wrong. If you can't feel pain, how do you know if you have appendicitis (just one quick example) or anything else going wrong that could be super deadly?
@@tinykittenlollipop1 I feel pain constantly. I was told by a neuropsychologist not to stop taking my meds that treat some of the pain. I can have seizures, blindness, blackouts, and 💀
@@ciezkignoj1120 Well that's a weird example as you'd surely prioritize altering their cancerous genome to either self-destruct or become benign before thinking about CRISPR pain treatments. But there's thousands of other diseases where that could apply.
It's fascinating that the main danger seems to be the psychological effects of not having any reason to not injure yourself rather than being unable to feel the pain itself. If, say, they had grown up with pain and it suddenly "turned off", they would already be conditioned to avoid dangerous activities and it would just be a matter of diligent self-inspection and caution.
Yes, but also, imagine having a bad but treatable injury and then not feeling like it was that bad and going on for months, like he did. After that, you cat fractured vertebra... Even if you're cautious, you maybe should go to the hospital at every injury just to be sure. I don't see how that would be monetarily feasible living in the U.S.
Indeed. The problem is that it's a congenital problem, so it start from the start, when the kid is still learning everything. Eventually (assuming they survive that long), they'll learn logically what they're supposed to do, but without the negative-reinforcement training, it's weak. (It's still not an excuse for psychopaths who don't feel emotions or empathy since they have no reason to do bad stuff to others because they still have logic ability to know right from wrong.)
Even the small things, like bumping into furniture as a little kid helps make an adult that doesn't slam into doorframes. Even just the small pain of stubbing your toe is important to make an adult that doesn't accidentally kick things all the time. Without feeling pain, you can't train.
@@I.____.....__...__ On a somewhat unrelated note,this is like the first time I've seen a person on the internet who actually knows what a psychopath is It's kinda grinds my gears but I've learnt to ignore it😅
As someone who needs to use painkillers every now and then due to my scoliosis, I’m glad that he has used his disability to improve other’s lives. I hope the medical trials go smoothly!
My husband suffers from chronic pain. He’s a big tall guy, even a bit scary for some people. Living in a place where there’s a lot of snowstorms, he was always the one who was called on to help push the car out of the ditch. On more than one occasion he has simply lifted the car’s front end out and placed it back on the road. But, there are some days when all he can do, is cry from all the pain! It’s such a terrible lack of balance! One feels nothing and is thrown into a lifetime of checking oneself to make sure they haven’t suffered the tiniest scratch to avoid infection and another feels overwhelming, unrelenting pain preventing normal function.
Ideally, everyone should be somewhere in the middle. Pain should only be a minor inconvenience, not such an overpowering thing that people who are injured can't even escape a dangerous situation or make it to a place where they can be helped.
I have heard of these stories quite a few times. As someone who suffers in pain daily from crohns, I often wondered if that would be better. I wish I had a condition where pain is just very very light. Or, you know, no crohns.
So sorry you’re dealing with this. Chronic pain and illness can really get you down. Please keep fighting. Just want to make sure you know that people care.😊
Yeah, I also suffer from chronic pain, but at least your brain kinda dulls the focus on it after all because it's just used to it. Or at least that's how it is for me. I don't think I'd want to go to the extreme of no pain; I'd like to be able to make sure the rest of me is fine.
One thing that I’ll never understand is the process of obtaining support when you’re disabled. The fact that your support depends on someone else’s opinion of a smidge glimpse into your livelihood will always be insane to me, but infinitely understandable as word of mouth can’t be trusted. Just disappointing when those that need it can’t receive it.
Absolutely, it's miserable. Unless your disability is painfully obvious, the person will probably get denied. We have a whole type of lawyers who strictly deal with disability cases.
Pft, then there's the part about how they had a doctor, you know, an EXPERT testify for them and the court just waived it off and ignored it and did what it wanted. 🤦
12:54 "how did the parents manage so many hospital bills". a question only asked in one country... just saying, that universal healthcare is quite helpful with that kind of situation.
@@Hiphop618 What? I'm not in Canada, so I can't say if that's false, but it seems unlikely. It sounds like anti-universal healthcare propaganda. In my country (like in a number of other european countries) they would have been granted disability status, full medical coverage, easily accessible medical leave, school and worplace accommodations, as well as the possibility of a helper at home and school.
@@Hiphop618 So true lolz, but they technically can't pressure you, only suggest it. Do you got a broken leg? MAID is an option. How about a chronic back pain? That's fine too! That been said, even if you choose to, you can only apply for it, doesn't mean you'll be granted
what a terrible condition to have... I mean, it would be nice to not feel pain when you get badly injured, but pain is there for a reason. Without pain, how do you know when something has gone terribly wrong?
Couple of hours ago I slipped on the stairs and fell into the sharp wooden pointy thing at the bottom of the banister, and looks like my side has been sliced with a knife now. It burns and my ribs hurt as well. Probably feel worse tomorrow. I wish to not be feeling this pain. Doctors and pharmacies are closed tomorrow, so nothing I can do to effectively to properly aid it. Opiates it is then.
Goes to show how important pain is to the body - it's why I often avoid painkillers with physical injuries, cause the pain tells you when you're hampering your own recovery. Though I do wish the body had adapted to shut off those signals for things like papercuts, where it's not really necessary to be constantly aware it is there after the first instance.
Yeah, feeling no pain is only a good power if you have invulnerability to go along with it. This lack of pain is simply a lack of the body recognizing damage.
It's terrible to not feel pain. Imagine not knowing when you're in danger. Edit: It would also be great because it's also terrible to feel unrelenting pain.
@@Jakey4000I empathize with you. After all, when I was a child, I had appendicitis and I cried in pain for an hour because I had to wait for the hospital to attend to me. So sorry. It's a terrible feeling but it does save lives, but well it can also be a curse.
@@Jakey4000 I don't have chronic pain, but I do have chronic skin dryness (most likely eczema) in private, sensitive areas, which leads into discomfort, irritation and pain. If it ain't personal to ask, what's the cause of your pain?
OH MY GOD! HELP ME!!! ...I WAS JUST GOING TO SAY... OH GOD! HEEEELP! SWEET JESUS!!! ...IT'S A GOOD THING... FOR THE LOVE OF GOD!!! ...THEY DIDN'T UN-ALIVE HER SON UNDER THEIR CARE AS I'M SURE... WHY IS THIS HAPPENING!?!? ...THEY WEREN'T KEEPING THEM UNDER THE SAME STRICT CARE... SOMEONE END THIS NIGHTMAR-R-R-R-RE!!! ...THE PARENTS KEPT THEM UNDER. WHAT DID I DOOOO!?! _WHAT DID I DOOOOOOO!?!?!_ ...oh. sorry. I just read "imagine being on fire". my bad.
Can confirm. My mum used to work for CPS and saw one family separated for malnourishment, which seems fair. One child died. But the other kids couldn't gain weight in foster care either. They all had a rare genetic condition, too, though I don't recall the name anymore.
@@DarcOne13judging bye this it seems CPS in America is more dependent on the average child for comparison,rather than the child themselves and their health conditions
This was a very interesting video !! Amazing work as always !! Also, I just want to say, I'm really, really glad we got more animation and interactions between the characters. I'm so happy to see Grill again. It gives character to the Brew videos. There are many instructional videos out there, but the animations and characters make Brew very special to me. I am very invested in this channel, and it's so good to see it coming back to its roots. Thank you so so much for your hard work. I can't wait for the next episodes ! Good luck !
I wonder if temperature sensitive gloves could be a thing. Some dye or color changing material for the back of the hand, palm, and fingertips, that could change color between green for a temperature at safe levels, and then deepening hues of red and blue for hot and cold. To let people with the condition, know when they might be in an environment or about to touch something with extreme or safe temps
I deal with pain daily, but not being able to feel it sounds worse. Like always, amazing content! I noticed Chill hasn't been in any recent episodes, is he going to make a return any time soon?
Pain is nothing bad. Pain is really something that is actually very practical. Yes it may not be the best to have to feel it but it’s the only way for your body to alert your brain that something is not how it seems.
Yep, for normal people. For someone like myself, crohns pain daily, and others with even worse pain conditions, not so much. Obviously it keeps you safe, but it also makes like miserable, but at least I can suffer in pain for much longer lol
I would still choose having the inability to feel pain over feeling pain constantly, being able to feel pain in places I didn't know had nerves, sleeping less than 2hrs a day because pain wakes me up. It's worth the risk of dying to not feel that.
2 insane things here: the fact that, according to the law, not feeling pain somehow cancels out the fact that you're stuck on a wheelchair and the fact that Steven even considered having children that could bear this genetic curse instead of adopting
People will always call me a scardey cat but it's bcz I don't do anything that might risk my life, which is why I always wait for everyone to go down the stairs before I, and if I feel scared, I don't do it, my primary school wanted me to do a roll thing in pe, but I always listened to my mom when she said to never do it because it could break my neck, possibly damaging my spinal cord too? I realized that being a scardey cat was kind of a positive because I was walking with one of my teachers one day and she said that It was good that I'm so cautious, she also helped me cross the street that day :)
I can't imagine having this all over the body. It's already a hazard to not feel waist down (and have the capability to walk). I even have a recent example of why feeling things is so important! While I feel lucky a lot of the time because I don't have the pain (non-nerve pain), this is one of those times where it's dangerous: In august I had ripped off a callus on my foot because it looked like I might have had a splinter under it (it's happened before), but I wasn't aware that I was ripping off live skin. I bandaged it for a couple of days until I forgot about it because it didn't hurt. At the end of last month, my mom really wanted me to go in because it seemed infected, but since it couldn't be soon, we went into urgent care to get antibiotics. Urgent care sent me to the ER for X-rays, and ER (with my doctor because he saw it) had me admitted to the hospital. While I was there, an MRI showed the infection was down to the bone, and still no pain! The fact that it didn't hurt made me basically gaslight myself out of thinking there was anything wrong since the redness also looks like when my feet get irritated. That was until the skin started coming off that I went "maybe." I'm still doing antibiotics through a PICC line, 2nd time in my life for the same reason!! The first time was when I was 11, lol.
I have such severe fibromyalgia that showers hurt and even looking at kids touching monkey bars at a playground makes me cringe because touching anything at all, including clothes if they're not super soft, hurts. I can hug people but most touch is awful. If I had to pick one condition or the other, I'd probably take not feeling pain. I've thought about that a fair bit in my life.
I've wondered if I have that. Rain hurts, showers hurt. Temperature change at all hurts. Especially cold. Even if I don't whatever the problem is, sucks.
@@poolhalljunkie9 consider going to a doctor to find out?. being unsure the whole time about it is no fun. (sorry for bad english it's not my native language i am dutch)
Well individuals with this condition should be taught to use logic to not get themselves into danger. But it will be kind of awkward to have to ask if the coffee is hot or not so they don't just burn their mouth/tongue, so i can understand how carefull you have to be.
@@joane24 Understandable, but as a teen i believe it's possible to follow logic. For kids the parents have to find restrictions. I know it's easier said than done.
But logic need feedback 'If you do this and the feedback is pain, then that is bad' Because he doesn't have direct feedback, he has to learn from experience
As a congenital heart defect kid, I can say, thank you for submitting yourself to this study! I actually have done the same myself, but for the heart!!! (I was born with a very rare heart defect) I know this study will help out so many kids in the future!!! You ROCK!!! Thank you!
I remember hearing the story of a girl with this who was jumping off of something and laughing but when her parents found out why she was laughing it was because she liked the cranking sounds. The crunching sounds of her shattered knees as she continued to jump on them over and over. That story made me feel like I was watching someone get a tooth pulled. Hurts you in your bones
Seems like there was some mental illness involved here as well, because it's one thing not to feel pain, but to purposefully try to cause HARM to oneself is something else entirely. He was well aware of his condition, lacking pain shouldn't mean an immediate aversion to risk. Did he not have people in his life that he loved and wanted to be around for? Were there not things he wanted to be able to do and needed mobility to do so? You could blame childhood for most of this, but even as an adult, and married - he callously taped up his foot instead of wearing a cast? Does he want to require hospice at a young age? That's not fair to his family. Lack of pain shouldn't mean a complete lack of consideration for his well being.
That's wild if you think about it pretty deeply.. Like for instance, if you had literally zero pain, you might jump out of a 3+ story window and shatter your legs and it wouldn't hurt and you wouldn't even realize there was a problem until you tried you stand and your legs buckle like a wet noodle... That's wild.. I used to think feeling no pain would be a super power too until I thought more about it and the reason it exists. I remember when I smashed my finger and got staph, that was the worst pain I'd ever been in (and I'm a rough, manual laborer and a country boy - so I've had tons of pretty gruesome injuries) and I had to have surgery - I told them freaking amputation was on the table if necessary lol - but somehow it hurt even worse after the surgery (it got into my tendon and traveled from the last joint of my middle finger all the way down to the center of my palm) - but after they sewed me up, I had numbness all down the finger and to the palm. And even now, weeks later, I still have numbness in the tip and the first digit - the middle part feels normal. But the doctors were kind of freaking out about that and telling me how dangerous it was. I get it but it's really just numbness down the scar - I can feel all around it. I don't think I'm going to accidentally burn, cut or otherwise injure it without knowing.
I’ll never forget the House episode covering this condition. He was having a who-has-it-worse? contest with the teenage patient. Patient: Boys can’t hold me for too long, because I can overheat. Dr. House: Girls can’t hold me for too long because I only pay for an hour.
In the beginning I was thinking about how studying this condition could help with chronic pain sufferers like me, on this day where my endometriosis pain has been the worst ever.
@@bekkakay8573 I wasn't told until the last day in the hospital what it really was, but I was in there from late February to early March. It happened this year, 2024
Not to get caught up on one detail but that child services reaction is absolutely wild. It's kind of a representation of the whole system. That poor kid.
What's absolutely terrifying to me with this is that I have a personal insight into what it's like to have this condition, when I'd go to the dentist and get anesthetic. I'd be so terrified of hurting myself after the appointment while I still couldn't feel anything, that I'd be hypervigilant of being gentle with myself until the anesthetic wore off. I shudder to think about what it's like for people in states like this who never learnt what pain was, and can have situations like the boys covered in this video. >_
23:05 not nearly the same, but I have an above average pain tolerance and one time I accidentally sawed a serrated knife through my left index finger when I was cutting myself a piece of baguette. Fortunately it only went about half a centimeter into my finger, but I could definitely feel the serrations go "d-r-r-r-r-r" through my finger meat.
The ability to turn pain off when needed is a lot more useful, and humans already have that wired in via adrenaline. Folks dealing with this condition really are playing Life on hard mode and really highlight how we kind of take pain for granted. They teach us just how invaluable the ability to suffer really is for our long-term well-being.
I'm basically the opposite. I have severe chronic pain issues from musculoskeletal disorders, along with hyperesthesia -- a nerve disorder that jacks up my nerve signals way above "normal." On a 1-10 scale, I wake up at about a 4 or 5 every day, and all physical activity pushes it up. My entire life is dealing with significant pain and/or figuring out how to function without making it worse. Human bodies are garbage, lol.
Having dreams where you're stabbed or crushed can also be without pain and in my experience it seems likely that it's a good emulation of actually feeling it without pain. The fear is usually still there but it's interesting to think about how certain things would actually feel if pain wasn't there.
what how is not feeling pain the only criteria used for disabilities i mean blind and deaf people are not constantly in pain this is disability not the severe pain fund.
I’m confused why they are so reckless with their condition. A regular child would not get hurt as much as these kids have. I get not feeling pain but why do things like holding a lit cigarette to your arm for your peer’s amusement? Seems like some of these injuries intentionally self inflicted ( due to immaturity or plain stupidity) instead of accidentally.
My father had head and facial injuries from an auto accident. He needed seven surgeries followed by intensive rehab. He made a full recovery except he lost all sensation on the left side of his cheek, mouth, and upper throat. He joked that he saved on dental bills because he didn’t need anesthesia for treatment on the left side of his teeth. If he’d still had his tonsils, he could have had his left tonsil removed pain free!
What an incredibly irresponsible way to determine if a child can't feel pain; by burning their foot until it blisters?! That doctor knowingly added a potential for infection and worse when there are many ways to check for pain signals. Since he knew he was right about the child having the disease, he opened that baby up to all kinds of secondary issues, up to and including amputation of a limb from a wound that might not have been able to heal.
Point of fact: 20:10, it's Fentanyl, not Fentanol. I literally can't remember anything between about 2 minutes after I was given it in hospital, and about 20 miutes later.
I feel like there was probably a better and safer way than burning his foot, that seems incredibly unnecessary. Like they could’ve just pinched him or poked his foot gently with a needle or something. Also, after one kid with a serious genetic condition why would you have more children?? I have a couple of genetic conditions that would be almost certainly passed on to my children and therefore have chosen not to have kids and make them suffer like I do. It’s irresponsible and cruel to make someone suffer just because you want kids
I saw a patient in the clinic who complained of a mild pain in her foot and looking at the XR it showed a break. I was like, wow you tolerate pain really well. She's like "Oh i'm like that, pain doesn't affect me that much. After I got a surgery they didn't even need to give pain med after"
I wish we could turn pain on and off, so let's say you get injured you feel pain you realise you are injured you turn off pain go to the hospital your body gets healed and then you turn your pain back on
7:25 Why was state so mean? If he wants to go home, it is clear that he is not abused. Easy thing. This way poor boy was even more emotional pain. That his parents were cut of him for several weeks was just wasting some weeks of his childhood he could've spent with his parents. That time of Childhood should given back to him. And bullying is never okay. Why on earth didn't the teachers look after this because this dare-games thretened poor Stevens live. At least Thermometers exist so that Steven had a chnace to have a proper pain-substitute. 15:40 Its sad if someone loses the memory of his childhood. 16:36 Again emotional pain is still feel-able even if your body can't. 19:41 Nice that Steve helped rest of humanity for research. So he might be a two-legged painkiller. And he is even not adictive. Hopefully he has friends he's addictive though, as friendship is one of the few addiction that isn't harmfull. As I understand, thiese painkiller don't influence the brain but just cut our brain off from pain-causes. 20:32 Capsaicin works with much less risk. 22:00 Thanks Steven for all this research. And I know from my own (much less severe, plus my condition is mentaly and not bodyly disabledness) condition it is very compforting to know ones own condition better, no matter if its just a minor like mine or a major like yours. 23:45 Nice quote. Stil wish you could turn off pain as like an alarm clock that only will turn off if you gurantee to tacke cere of the damaged tissue.
I heard about this condition from a radio interview with a middle aged woman here in the UK who only recently discovered she had this condition recently after an accident. But no it can't be considered a superpower. Since I've had cervical spine injury I've had various sensory experiences, the worst of which was getting a life threatening kidney infection which I didn't feel at all. And yes I can experience that painless feeling of a knife, or the insertion of a needle into my right leg.
Back when I was at school, they taught us (or it was my parents I don't remember) that pain is a signal to your brain something is wrong. While pain can be pretty bad, it helps us stay out of danger. Thank god I can feel pain.
I have a very high pain tolerance as a child of a redhead. I already have an exhausting time figuring out what is wrong with myself, I couldn’t imagine no pain at all. At least I know when an injury is to a far extent.
My girl has chronic health issues, including chronic pain. I remember being shocked in a doctor's appointment with her, where she was asked how much pain she was in on a scale of 1 to 10 and she responded "pretty normal today, about a 4 out of 10."
When we got back to the car i hugged her and asked if she really was in that much pain all the time. She just hugged me back and laughed amusedly, and told me "yes i am, but you dont need to worry about it. Ive been dealing with it all my life. Im pretty used to it by now."
Shes also allergic to NSAIDs, with a history of addiction in her family. So her only options shes okay turning to, are tylenol and benadryl.
Hearing that we might get new pain meds that are not addictive, and can stop pain, in a few years, just in time for us to start a family,
Is fantastic news. I cant wait to tell her.
I would say try and find a good homeopathic doctor.
@@daryapeppo2359keep your misinformed opinions to yourself.
I hope these meds come out soon, and she's finally able to see a life without pain.
@@jennifermcelmon5954 Homeopathy hater here ?
@@jennifermcelmon5954 I have severe ADHD and homeopathy helped me. I only share what I know. I also had pain issues. Oh I forgot in your opinion ADHD doesn't exist! Try and go to a conventional doctor with pain issues and see what they will offer you and how they will treat you! Never tried using homeopathy yet? Maybe it's your time!
I have a rare presentation of CIDP. Chronic inflammatory demyelinating poly neuropathy. I started off hypersensitive to everything. As a child, anything that touched me was irritating. A pin prick felt like being bitten by a shark. As the years went on, it started to reside. In my twenties, I started to notice my tolerance for pain was extremely high. Then I started to notice that in random parts of my body, I couldn't feel pain at all but my hands and upper back were still excessively sensitive. Now I can't feel pain in most of my body. I get hurt and I don't know until someone points it out or I see the blood. I have cut myself to the bone, stabbed myself in the stomach and put a metal rod through my leg without noticing. It's dangerous when you don't know when to stop.
You put a rod through your leg? Sounds like a bad idea to me.
The court denying disability is insane. I cannot believe such a stupid verdict.
Seriously that blew my mind. He can't walk ffs!!
It's like saying quadriplegic doesn't need disability because they don't feel pain. Or someone with mental disabilities doesn't deserve disabilities because it doesn't cause pain. I want to have a few words with the judge, just a few.
It’s literally the dis-ability to feel pain!
Land of the "free"
I had to get a lawyer. They sent my medical records to a doctor who spoke for me at the trial. The judge who acted like a prosecutor did not know what stage four cancer was. A disability court judge who did not know what stages of cancer was. She stunned the doctor when she said “stage four doesn’t sound that bad”. I was told that I had six months to live and it was four months before I could have emergency neurosurgery. Not that bad.
The doctor said, “her disability isn’t from being in a wheelchair, it’s pain.”
It wasn’t easy and if it wasn’t for the lawyer I was already denied(not a free one, you don’t get one for disability court). I have CRPS2.
the court is actually idiotic. They should have been given disability status even if they didn’t suffer serious injuries, because that condition itself is disability enough. I can’t imagine the amount of labour it takes for him and his parents to make sure he’s ok, and the constant fear of something being incredibly wrong but not knowing about it is incomprehensible to me.
I'm going through the same thing right now with disability. I have extreme POTS to the point where I pass out doing almost any kind of strenuous activity as well as just by standing up I have to constantly flex my legs to send the blood back to my brain. And I have a myriad of other health issues which I just had hip surgery for and won't be walking for a few months but nope can't get disability as I'm supposedly just as able to work as anyone else -_-
@@theATF Gonna have to get a disability lawyer and make those appeals, sadly. They want people to give up so they don't have to pay them. Keep at it.
actually they where smart. why pay out money when you can say no???
@@dormantlime215 This exactly. They'll automatically deny the first application in the hope that a person gives up. There are a whole lot of lawyers out there who will represent a person in exchange for a chunk of the back pay.
But certain people would lead you to believe that it's ~sooo~ easy to get welfare and things like that.
Not feeling pain isn't a blessing, it's a curse.
Feeling pain is a cause to not hurt ourselves.
Yep. Feeling pain is a sign something is wrong. If you can't feel pain, how do you know if you have appendicitis (just one quick example) or anything else going wrong that could be super deadly?
@@tinykittenlollipop1 I feel pain constantly. I was told by a neuropsychologist not to stop taking my meds that treat some of the pain. I can have seizures, blindness, blackouts, and 💀
@@genericamerican7574 oh wow
Tell that to people dying from cancer. Maybe in the future, it will be possible to alter the DNA of dying people to stop them from feeling pain.
@@ciezkignoj1120 Well that's a weird example as you'd surely prioritize altering their cancerous genome to either self-destruct or become benign before thinking about CRISPR pain treatments. But there's thousands of other diseases where that could apply.
It's fascinating that the main danger seems to be the psychological effects of not having any reason to not injure yourself rather than being unable to feel the pain itself. If, say, they had grown up with pain and it suddenly "turned off", they would already be conditioned to avoid dangerous activities and it would just be a matter of diligent self-inspection and caution.
Yes, but also, imagine having a bad but treatable injury and then not feeling like it was that bad and going on for months, like he did. After that, you cat fractured vertebra... Even if you're cautious, you maybe should go to the hospital at every injury just to be sure. I don't see how that would be monetarily feasible living in the U.S.
Indeed. The problem is that it's a congenital problem, so it start from the start, when the kid is still learning everything. Eventually (assuming they survive that long), they'll learn logically what they're supposed to do, but without the negative-reinforcement training, it's weak. (It's still not an excuse for psychopaths who don't feel emotions or empathy since they have no reason to do bad stuff to others because they still have logic ability to know right from wrong.)
Even the small things, like bumping into furniture as a little kid helps make an adult that doesn't slam into doorframes. Even just the small pain of stubbing your toe is important to make an adult that doesn't accidentally kick things all the time. Without feeling pain, you can't train.
@@I.____.....__...__ On a somewhat unrelated note,this is like the first time I've seen a person on the internet who actually knows what a psychopath is
It's kinda grinds my gears but I've learnt to ignore it😅
As someone who needs to use painkillers every now and then due to my scoliosis, I’m glad that he has used his disability to improve other’s lives. I hope the medical trials go smoothly!
My husband suffers from chronic pain. He’s a big tall guy, even a bit scary for some people. Living in a place where there’s a lot of snowstorms, he was always the one who was called on to help push the car out of the ditch. On more than one occasion he has simply lifted the car’s front end out and placed it back on the road. But, there are some days when all he can do, is cry from all the pain!
It’s such a terrible lack of balance! One feels nothing and is thrown into a lifetime of checking oneself to make sure they haven’t suffered the tiniest scratch to avoid infection and another feels overwhelming, unrelenting pain preventing normal function.
nice paragrapth
@@PreetyepicgamerThanks, though I wish I had nothing to say on the subject.
Ok AI...
Ideally, everyone should be somewhere in the middle. Pain should only be a minor inconvenience, not such an overpowering thing that people who are injured can't even escape a dangerous situation or make it to a place where they can be helped.
@sulawesi-steve huh?
Pain sucks but you need it to stay alive
That is actually true
Pain is awesome fym
Why so many likes ?
There's no point in living if you can't feel alive.
Pain and fear are vital to our survival as a species.
I have heard of these stories quite a few times. As someone who suffers in pain daily from crohns, I often wondered if that would be better. I wish I had a condition where pain is just very very light. Or, you know, no crohns.
So sorry you’re dealing with this. Chronic pain and illness can really get you down. Please keep fighting. Just want to make sure you know that people care.😊
Yeah, I also suffer from chronic pain, but at least your brain kinda dulls the focus on it after all because it's just used to it. Or at least that's how it is for me. I don't think I'd want to go to the extreme of no pain; I'd like to be able to make sure the rest of me is fine.
Going vegetarian helped my chron's recede. I've been mostly abdominal pain free since fixing my diet.
One thing that I’ll never understand is the process of obtaining support when you’re disabled.
The fact that your support depends on someone else’s opinion of a smidge glimpse into your livelihood will always be insane to me, but infinitely understandable as word of mouth can’t be trusted.
Just disappointing when those that need it can’t receive it.
Hear, hear!
Absolutely, it's miserable. Unless your disability is painfully obvious, the person will probably get denied. We have a whole type of lawyers who strictly deal with disability cases.
Pft, then there's the part about how they had a doctor, you know, an EXPERT testify for them and the court just waived it off and ignored it and did what it wanted. 🤦
Usually you have to appeal and then you’ll get it
@@ChicagoMel23pretty messed up system if it requires that
12:54 "how did the parents manage so many hospital bills". a question only asked in one country...
just saying, that universal healthcare is quite helpful with that kind of situation.
If they were in Canada they'd just pressure them into MAID, actually
@@Hiphop618 What? I'm not in Canada, so I can't say if that's false, but it seems unlikely. It sounds like anti-universal healthcare propaganda.
In my country (like in a number of other european countries) they would have been granted disability status, full medical coverage, easily accessible medical leave, school and worplace accommodations, as well as the possibility of a helper at home and school.
We spend the money on more important things. Like rewarding people who come here illegally.
@@Hiphop618 So true lolz, but they technically can't pressure you, only suggest it.
Do you got a broken leg? MAID is an option. How about a chronic back pain? That's fine too!
That been said, even if you choose to, you can only apply for it, doesn't mean you'll be granted
Brew never fails to appear in my suggestions once a year and then make me question reality for the next 3 months
what a terrible condition to have... I mean, it would be nice to not feel pain when you get badly injured, but pain is there for a reason. Without pain, how do you know when something has gone terribly wrong?
If you could turn it off and on that would be perfect
@@Dominus4776Or maybe just some sort of audio cue
@@EddieWelch-hk8vsyeah if you have a stomach ache you just hear “your stomach is hurting” in your head, i dont think audio cues are the best idea
Shocking none of these people took up MMA or Boxing
Couple of hours ago I slipped on the stairs and fell into the sharp wooden pointy thing at the bottom of the banister, and looks like my side has been sliced with a knife now. It burns and my ribs hurt as well. Probably feel worse tomorrow. I wish to not be feeling this pain. Doctors and pharmacies are closed tomorrow, so nothing I can do to effectively to properly aid it. Opiates it is then.
Pros: not being uncomfortable
Cons: perishing
"How did the parents manage the hospital bills..."
Not a question heard or asked in most countries.
As someone with rheumatoid arthritis I appreciate his contribution to pain research!;
Goes to show how important pain is to the body - it's why I often avoid painkillers with physical injuries, cause the pain tells you when you're hampering your own recovery.
Though I do wish the body had adapted to shut off those signals for things like papercuts, where it's not really necessary to be constantly aware it is there after the first instance.
Yeah, feeling no pain is only a good power if you have invulnerability to go along with it. This lack of pain is simply a lack of the body recognizing damage.
Its wild that they burnt his little baby foot to the point of blistering rather than pinching him or another more normal test.
Omg, if their situation can lead to a new pain medication that isn't deadly or addictive is amazing.
It's terrible to not feel pain. Imagine not knowing when you're in danger.
Edit: It would also be great because it's also terrible to feel unrelenting pain.
It would be horrific, however with chronic pain some days it's hard to not wish for no more pain
@@Jakey4000I empathize with you. After all, when I was a child, I had appendicitis and I cried in pain for an hour because I had to wait for the hospital to attend to me. So sorry. It's a terrible feeling but it does save lives, but well it can also be a curse.
@@Jakey4000 I don't have chronic pain, but I do have chronic skin dryness (most likely eczema) in private, sensitive areas, which leads into discomfort, irritation and pain. If it ain't personal to ask, what's the cause of your pain?
@@Jakey4000 Also I'm not trying to make your pain seem unimportant. I'm sure it takes a toll on you and stresses you out. I wish you well.
@@Jakey4000yeah same, with crohns disease, I wish I could have a condition that just meant I felt barely any pain. But at least I am not Pamela...
This sounds like a horrible condition to have. Imagine getting a serious injury and not knowing.
Having no pain sounds nice at first but cases like this make you think different
In heaven we will have no pain sickness or disease and we will not bite off our tongues and no more sadness
it’s like how people think being immortal is really good but when you think about it, it’s horrible
@@MelB868 we are not talking about religious here so talk about that somewhere else rather than a random video
"imagine being on fire"
*combusts*
Twin…where have you been? 🥹
OH MY GOD FAMILY REUNION
OH MY GOD! HELP ME!!!
...I WAS JUST GOING TO SAY...
OH GOD! HEEEELP! SWEET JESUS!!!
...IT'S A GOOD THING...
FOR THE LOVE OF GOD!!!
...THEY DIDN'T UN-ALIVE HER SON UNDER THEIR CARE AS I'M SURE...
WHY IS THIS HAPPENING!?!?
...THEY WEREN'T KEEPING THEM UNDER THE SAME STRICT CARE...
SOMEONE END THIS NIGHTMAR-R-R-R-RE!!!
...THE PARENTS KEPT THEM UNDER.
WHAT DID I DOOOO!?! _WHAT DID I DOOOOOOO!?!?!_
...oh. sorry. I just read "imagine being on fire". my bad.
@@duolingo-bird-duoNobody likes you like I do, nobody no🎶
Bro leave me alone I got my perfect streak going I just did a lesson I’m starting to feel like ur stalking me…
Child services in the US are the worst.
Can confirm. My mum used to work for CPS and saw one family separated for malnourishment, which seems fair. One child died. But the other kids couldn't gain weight in foster care either. They all had a rare genetic condition, too, though I don't recall the name anymore.
@@DarcOne13judging bye this it seems CPS in America is more dependent on the average child for comparison,rather than the child themselves and their health conditions
@@Cane4092 that would be corrcet!
Not always
0:51 isn’t this illegal??? Like, at the very least aren’t they breaking their oath.
There had to be a better way to test this 🤦🏻♀️
my literal thought 🙄🤦🏾♀️
It’s also 1981 so
Welcome to 1981
Introducing heal pricks
When I saw this notification, I spat out my gum. Thank you, Brew.
At least it didn't explode
@random_user_i2i loll from the white powder vid where his jaw exploded?
@@random_user-i2i your gum doesn't explode??
This was a very interesting video !! Amazing work as always !!
Also, I just want to say, I'm really, really glad we got more animation and interactions between the characters. I'm so happy to see Grill again. It gives character to the Brew videos. There are many instructional videos out there, but the animations and characters make Brew very special to me. I am very invested in this channel, and it's so good to see it coming back to its roots. Thank you so so much for your hard work. I can't wait for the next episodes ! Good luck !
I wonder if temperature sensitive gloves could be a thing.
Some dye or color changing material for the back of the hand, palm, and fingertips, that could change color between green for a temperature at safe levels, and then deepening hues of red and blue for hot and cold. To let people with the condition, know when they might be in an environment or about to touch something with extreme or safe temps
I deal with pain daily, but not being able to feel it sounds worse. Like always, amazing content! I noticed Chill hasn't been in any recent episodes, is he going to make a return any time soon?
My mom took her own life with opioids out of despair for her pain. It’s really nice to see that there may be hope in the future for others like her.
Not feeling pain or not feeling it properly is part of why diabetes can lead to limb lost. Not feeling an injury can lead to infection.
Poor, brave, caring man; hats off to him for surviving and helping others!❤
Pain is nothing bad. Pain is really something that is actually very practical. Yes it may not be the best to have to feel it but it’s the only way for your body to alert your brain that something is not how it seems.
Yep, for normal people. For someone like myself, crohns pain daily, and others with even worse pain conditions, not so much. Obviously it keeps you safe, but it also makes like miserable, but at least I can suffer in pain for much longer lol
@@SWISS-1337it can be a blessing if we could turn it on and off
I would still choose having the inability to feel pain over feeling pain constantly, being able to feel pain in places I didn't know had nerves, sleeping less than 2hrs a day because pain wakes me up. It's worth the risk of dying to not feel that.
I feel the same.
2 insane things here: the fact that, according to the law, not feeling pain somehow cancels out the fact that you're stuck on a wheelchair and the fact that Steven even considered having children that could bear this genetic curse instead of adopting
"Bro you are literally on fire"
"What do you mean?"
People will always call me a scardey cat but it's bcz I don't do anything that might risk my life, which is why I always wait for everyone to go down the stairs before I, and if I feel scared, I don't do it, my primary school wanted me to do a roll thing in pe, but I always listened to my mom when she said to never do it because it could break my neck, possibly damaging my spinal cord too? I realized that being a scardey cat was kind of a positive because I was walking with one of my teachers one day and she said that It was good that I'm so cautious, she also helped me cross the street that day :)
@20:09 "many strong painkillers such as morphine and fentanyl have opioids in them" ...
Those two are opiods
What a lucky guy. Imagine getting 3-4 hours of sleep a night! What luxury!
I’m so sad about this.😢 I love sleep.
What a unlucky guy romantic gets no sleep
I can't imagine having this all over the body.
It's already a hazard to not feel waist down (and have the capability to walk).
I even have a recent example of why feeling things is so important!
While I feel lucky a lot of the time because I don't have the pain (non-nerve pain), this is one of those times where it's dangerous:
In august I had ripped off a callus on my foot because it looked like I might have had a splinter under it (it's happened before), but I wasn't aware that I was ripping off live skin. I bandaged it for a couple of days until I forgot about it because it didn't hurt.
At the end of last month, my mom really wanted me to go in because it seemed infected, but since it couldn't be soon, we went into urgent care to get antibiotics. Urgent care sent me to the ER for X-rays, and ER (with my doctor because he saw it) had me admitted to the hospital. While I was there, an MRI showed the infection was down to the bone, and still no pain! The fact that it didn't hurt made me basically gaslight myself out of thinking there was anything wrong since the redness also looks like when my feet get irritated. That was until the skin started coming off that I went "maybe."
I'm still doing antibiotics through a PICC line, 2nd time in my life for the same reason!! The first time was when I was 11, lol.
I have such severe fibromyalgia that showers hurt and even looking at kids touching monkey bars at a playground makes me cringe because touching anything at all, including clothes if they're not super soft, hurts. I can hug people but most touch is awful. If I had to pick one condition or the other, I'd probably take not feeling pain. I've thought about that a fair bit in my life.
I've wondered if I have that. Rain hurts, showers hurt. Temperature change at all hurts. Especially cold. Even if I don't whatever the problem is, sucks.
@@poolhalljunkie9 consider going to a doctor to find out?. being unsure the whole time about it is no fun. (sorry for bad english it's not my native language i am dutch)
The parents npt having rhe disorder doesnt mean they didnt inherit it. Recessive genes exist.
They seriously refused financial services?? That's so incredibly messed up
Well individuals with this condition should be taught to use logic to not get themselves into danger. But it will be kind of awkward to have to ask if the coffee is hot or not so they don't just burn their mouth/tongue, so i can understand how carefull you have to be.
Sure but have you seen a small child following logic? Kids do risky things and injure themselves even when they feel pain.
@@joane24 Understandable, but as a teen i believe it's possible to follow logic. For kids the parents have to find restrictions. I know it's easier said than done.
But logic need feedback
'If you do this and the feedback is pain, then that is bad'
Because he doesn't have direct feedback, he has to learn from experience
Thanks brew. Now I can't sleep now.
I'm happy that I can feel pain.
Not feeling pain is like not knowing you are in the end stages of Alzheimer’s. Sure. You don’t know it’s happening, doesn’t mean you’re living well
grill still being back in the videos makes me so happy
Why was the doctor's first thought to burn the baby's foot and not use a reflex hammer or something that doesn't scar?? 💀
It would be misleading because reflexes might be fine outside of pain-related reflexes
@@TheExileFox They usually use needles rather than reflex hammers(based on google) to prevent scaring, so using fire still sounds insane.
@@supercalifragilisticex It was 1981. 🤷
As a congenital heart defect kid, I can say, thank you for submitting yourself to this study! I actually have done the same myself, but for the heart!!! (I was born with a very rare heart defect) I know this study will help out so many kids in the future!!! You ROCK!!! Thank you!
What’s more rare dysgraphia or disguise disease? I am trying to find out how rare my diseases. I don’t call disease like mostly a disorder.
That is such a Doctor House moment 😂
There was an episode about this condition.
This man is truly remarkable. I'm glad he made it through the trials and tribulations of his life.
I remember hearing the story of a girl with this who was jumping off of something and laughing but when her parents found out why she was laughing it was because she liked the cranking sounds. The crunching sounds of her shattered knees as she continued to jump on them over and over. That story made me feel like I was watching someone get a tooth pulled. Hurts you in your bones
Thank you Stephen. We all owe you a debt if this comes to fruition
Seems like there was some mental illness involved here as well, because it's one thing not to feel pain, but to purposefully try to cause HARM to oneself is something else entirely. He was well aware of his condition, lacking pain shouldn't mean an immediate aversion to risk. Did he not have people in his life that he loved and wanted to be around for? Were there not things he wanted to be able to do and needed mobility to do so? You could blame childhood for most of this, but even as an adult, and married - he callously taped up his foot instead of wearing a cast? Does he want to require hospice at a young age? That's not fair to his family. Lack of pain shouldn't mean a complete lack of consideration for his well being.
That's wild if you think about it pretty deeply.. Like for instance, if you had literally zero pain, you might jump out of a 3+ story window and shatter your legs and it wouldn't hurt and you wouldn't even realize there was a problem until you tried you stand and your legs buckle like a wet noodle... That's wild.. I used to think feeling no pain would be a super power too until I thought more about it and the reason it exists. I remember when I smashed my finger and got staph, that was the worst pain I'd ever been in (and I'm a rough, manual laborer and a country boy - so I've had tons of pretty gruesome injuries) and I had to have surgery - I told them freaking amputation was on the table if necessary lol - but somehow it hurt even worse after the surgery (it got into my tendon and traveled from the last joint of my middle finger all the way down to the center of my palm) - but after they sewed me up, I had numbness all down the finger and to the palm. And even now, weeks later, I still have numbness in the tip and the first digit - the middle part feels normal. But the doctors were kind of freaking out about that and telling me how dangerous it was. I get it but it's really just numbness down the scar - I can feel all around it. I don't think I'm going to accidentally burn, cut or otherwise injure it without knowing.
I’ll never forget the House episode covering this condition. He was having a who-has-it-worse? contest with the teenage patient.
Patient: Boys can’t hold me for too long, because I can overheat.
Dr. House: Girls can’t hold me for too long because I only pay for an hour.
In the beginning I was thinking about how studying this condition could help with chronic pain sufferers like me, on this day where my endometriosis pain has been the worst ever.
If it weren't for pain, I wouldn't have found out I had sepsis in February
Yikes, glad you’re ok! Sepsis is no joke.
@@bekkakay8573 I wasn't told until the last day in the hospital what it really was, but I was in there from late February to early March. It happened this year, 2024
Unrelated, but your PFP kind of looks familiar, where's it from?
(Hope your okay though!)
@@FallenZoey Wow! Close call. I may be broke and broken, but stuff like that makes me appreciate being able to open my eyes on another day.
@@WigglePup according to her bio it looks like she just got it online
I can always count on Brew to unlock new fears for me to be anxious about! thanks Brew!
Not to get caught up on one detail but that child services reaction is absolutely wild. It's kind of a representation of the whole system. That poor kid.
When I needed Brew most… he returned..
What
14:37 BEAN TELEPORTED!!!!!!!!!11!!!!!!!!!1111!!!!!!!!!!!! 🤯🤯🤯🤯🤯🤯🤯🤯🤯
What's absolutely terrifying to me with this is that I have a personal insight into what it's like to have this condition, when I'd go to the dentist and get anesthetic. I'd be so terrified of hurting myself after the appointment while I still couldn't feel anything, that I'd be hypervigilant of being gentle with myself until the anesthetic wore off. I shudder to think about what it's like for people in states like this who never learnt what pain was, and can have situations like the boys covered in this video. >_
Pain is your best friend, the only friend who always tell you that yiu are still alive. And Pain is the only best friend you never want around you
Also let's understand that universal health care is not communism lol.
It’s also the government telling people when they can and can’t get treated, waiting 6 months to see a doctor and high taxes. Wake up
23:05 not nearly the same, but I have an above average pain tolerance and one time I accidentally sawed a serrated knife through my left index finger when I was cutting myself a piece of baguette. Fortunately it only went about half a centimeter into my finger, but I could definitely feel the serrations go "d-r-r-r-r-r" through my finger meat.
Ouch
i hope this drug is devolped for people with firbomigla
my dream is to have a one day with out the pain im in 24/7
not feeling pain is only good if you can decide when that is
I havent been recommended a brew video in what feels like years
That’s why you should subscribe~
"how could a doctor test this by burning the kid to the point blisters formed! that's so irresponsible!"
'it was the 1980s'
"oh"
The ability to turn pain off when needed is a lot more useful, and humans already have that wired in via adrenaline.
Folks dealing with this condition really are playing Life on hard mode and really highlight how we kind of take pain for granted. They teach us just how invaluable the ability to suffer really is for our long-term well-being.
Pain - Three Days Grace is so fitting here! Sad that people without
Omg Three Days Grace fan ❤
i just listened to that song lol
Dr. House type of test
Your the man who makes me afaid of everything
I'm basically the opposite. I have severe chronic pain issues from musculoskeletal disorders, along with hyperesthesia -- a nerve disorder that jacks up my nerve signals way above "normal." On a 1-10 scale, I wake up at about a 4 or 5 every day, and all physical activity pushes it up. My entire life is dealing with significant pain and/or figuring out how to function without making it worse.
Human bodies are garbage, lol.
Having dreams where you're stabbed or crushed can also be without pain and in my experience it seems likely that it's a good emulation of actually feeling it without pain.
The fear is usually still there but it's interesting to think about how certain things would actually feel if pain wasn't there.
BREW RENAMED IT AGAIN
1:35 "Medical science was not as advanced at the time." Dude, the doctor used a lighter to do the job of a needle. Lol
what how is not feeling pain the only criteria used for disabilities i mean blind and deaf people are not constantly in pain this is disability not the severe pain fund.
I’m confused why they are so reckless with their condition. A regular child would not get hurt as much as these kids have. I get not feeling pain but why do things like holding a lit cigarette to your arm for your peer’s amusement?
Seems like some of these injuries intentionally self inflicted ( due to immaturity or plain stupidity) instead of accidentally.
Mate of mine mentioned burns feeling like a tingle instead of actual pain... wonder if he has something similar
My father had head and facial injuries from an auto accident. He needed seven surgeries followed by intensive rehab. He made a full recovery except he lost all sensation on the left side of his cheek, mouth, and upper throat. He joked that he saved on dental bills because he didn’t need anesthesia for treatment on the left side of his teeth. If he’d still had his tonsils, he could have had his left tonsil removed pain free!
What an incredibly irresponsible way to determine if a child can't feel pain; by burning their foot until it blisters?! That doctor knowingly added a potential for infection and worse when there are many ways to check for pain signals. Since he knew he was right about the child having the disease, he opened that baby up to all kinds of secondary issues, up to and including amputation of a limb from a wound that might not have been able to heal.
Point of fact: 20:10, it's Fentanyl, not Fentanol. I literally can't remember anything between about 2 minutes after I was given it in hospital, and about 20 miutes later.
Random fact.
My classroom globe still has the Soviet Union and Yugoslavia on it.
Brew. Giving me paralyzing anxiety with every upload.
I feel like there was probably a better and safer way than burning his foot, that seems incredibly unnecessary. Like they could’ve just pinched him or poked his foot gently with a needle or something.
Also, after one kid with a serious genetic condition why would you have more children?? I have a couple of genetic conditions that would be almost certainly passed on to my children and therefore have chosen not to have kids and make them suffer like I do. It’s irresponsible and cruel to make someone suffer just because you want kids
4:46 bro speaking straight facts 🗣️🗣️💯💯🔥🔥
11:59 my same reaction EXACTLY
😂😂sad but..
I saw a patient in the clinic who complained of a mild pain in her foot and looking at the XR it showed a break. I was like, wow you tolerate pain really well. She's like "Oh i'm like that, pain doesn't affect me that much. After I got a surgery they didn't even need to give pain med after"
This is so bad. Pain, as unpleasant as it is, indicates when something is wrong.
Wothout that you could just fall over dead at any moment..
I wish we could turn pain on and off, so let's say you get injured you feel pain you realise you are injured you turn off pain go to the hospital your body gets healed and then you turn your pain back on
This condition is so awful. Poor Steven.
7:25 Why was state so mean? If he wants to go home, it is clear that he is not abused.
Easy thing. This way poor boy was even more emotional pain.
That his parents were cut of him for several weeks was just wasting some weeks of his childhood he could've spent with his parents. That time of Childhood should given back to him.
And bullying is never okay. Why on earth didn't the teachers look after this because this dare-games thretened poor Stevens live.
At least Thermometers exist so that Steven had a chnace to have a proper pain-substitute.
15:40 Its sad if someone loses the memory of his childhood.
16:36 Again emotional pain is still feel-able even if your body can't.
19:41 Nice that Steve helped rest of humanity for research. So he might be a two-legged painkiller.
And he is even not adictive. Hopefully he has friends he's addictive though, as friendship is one of the few addiction that isn't harmfull.
As I understand, thiese painkiller don't influence the brain but just cut our brain off from pain-causes.
20:32 Capsaicin works with much less risk.
22:00 Thanks Steven for all this research. And I know from my own (much less severe, plus my condition is mentaly and not bodyly disabledness) condition it is very compforting to know ones own condition better, no matter if its just a minor like mine or a major like yours.
23:45 Nice quote. Stil wish you could turn off pain as like an alarm clock that only will turn off if you gurantee to tacke cere of the damaged tissue.
I heard about this condition from a radio interview with a middle aged woman here in the UK who only recently discovered she had this condition recently after an accident.
But no it can't be considered a superpower. Since I've had cervical spine injury I've had various sensory experiences, the worst of which was getting a life threatening kidney infection which I didn't feel at all. And yes I can experience that painless feeling of a knife, or the insertion of a needle into my right leg.
Back when I was at school, they taught us (or it was my parents I don't remember) that pain is a signal to your brain something is wrong. While pain can be pretty bad, it helps us stay out of danger. Thank god I can feel pain.
Also fyrboal is a syndrome when your limbs and eyes feel lethargic but not rest of your body
This may affect my internet and gaming skills
Did you spell that right? I googled it and nothing came up
@@eeen4119 Because only I know it
@@Retro-Grid why do i always manage to respond to the crackheads on the internet
I have a very high pain tolerance as a child of a redhead. I already have an exhausting time figuring out what is wrong with myself, I couldn’t imagine no pain at all. At least I know when an injury is to a far extent.