I've had ET all my life as far as I know. Writing has been a problem for me from the beginning, but no one knew why. I've always compensated for it by the way I held my pencil. I squeeze it really tightly, and write slow so the the tremor is reduced and only shows if you look really close. That caused me a lot pain which made me avoid writing as much as possible.The only time I've ever been able to write without that tight grip has been when I've been drinking alcohol. One thing I've noticed with my symptoms that I've never seen anyone talk about, is even in my legs a tremor shows. If I do squats or leg presses I feel the motion as being intermittent motion instead of being smooth even if an outside observer doesn't see it.
My goodness, how I wish I still lived in North Carolina. I appreciate you and your desire to truly help “us”. I’ve not yet found a specialist, and have been dealing with internal tremors since 2017.
I'm a 46yr old male and I've had ET most of my life but it got worse in my late 20's. I do have somewhat high anxiety and it makes my tremors worse. My father had slight tremors so I totally understand the gene connection. My Neuro wants to get the ball rolling at Vanderbilt for DBS. That's not a pleasant thought for me and I'm trying to see if therapy for the anxiety will help before going under the knife. I'm trying to gather all of the info.that I can so, I'm really looking forward to your help in this journey. Thank you for your channel 😊
@@danieloliver384 I'm so glad someone chimed in on my comment. It's hard to find people to connect with in regards to essential tremors. Yes I do take medication and have been through them all. I'm currently taking primidone but tappering off of it as all those seizure type meds make you tired all of the time.
yes, it is hard to connect with people who have essential tremors 😔 I to have essential tremors. I've had it all my life. I'm 34 years old. and in the last say 6 years it has gotten worse slowly 😔 mine is all body. including head tremor... my neurologist says I'm only mild E.T I've been on propanolol for 4 years now. and take only between 10 and 20mg daily And take natural supplements aswell.. st John's wart.. vitamin e.. vitamin B.. magnesium.. I find they help a bit. I actually just started seeing the neurologist again.. and he has just prescribed me primidone aswell. but have not started taking them yet 🤦♂️ how do you find the primidone to work?? I've just started with changing my diet. the last few months. to a Mediterranean diet. I've actually found that to help a bit. and drinking a lot of water. and no more soft drinks lol.
@@danieloliver384 Yes, I try to stay away from caffeine as well but with the meds dragging me down, I have to consume some caffeine just to push through. It's not good though. It revs up my anxiety and makes my tremors worse. I haven't found that "magic" pill that has helped my tremors at all and I've been through them all. That's the reason my Neuro wants to do DBS surgery. He says I've exhausted my limits with meds and there's nothing else except surgery left to do. I don't believe that quite yet. I've even tried high quality CBD oil and only felt a slight difference with it. But again, it slows you down so you feel tired a lot. I'm wanting to get away from anything that makes me feel tired. How was your tremors in your teens? Mine were very slight (had all my life) but got worse in my 20's. I have always been told from day one that the older you get, the worse they get. Primidone may work for you but for me it was just another one bites the dust.
No One has it in my family. After eating raw potatoes freshly sprayed with pesticide I développés a tremor in my hands at age 7. I also had it in my tongue so I spoke slow. Now at age 57 my tremor has progressed to my head and upper trunk . My short term memory is bad and my hearing is deminishing. I have trouble writing putting sentences in the proper order… so many other things
I can't tell you a name of any physician who understands that ET is multisymptomatic. At 74 I have only had 1 who asked how ET had affected my life. Spoiler alert: it wasn't my motion specialist. They don't care because they can't fix it.
![Eminem - Fuel (feat. JID) [Official Lyric Video]](http://i.ytimg.com/vi/t5H_CewqpKA/mqdefault.jpg)
I've had ET all my life as far as I know. Writing has been a problem for me from the beginning, but no one knew why. I've always compensated for it by the way I held my pencil. I squeeze it really tightly, and write slow so the the tremor is reduced and only shows if you look really close. That caused me a lot pain which made me avoid writing as much as possible.The only time I've ever been able to write without that tight grip has been when I've been drinking alcohol.
One thing I've noticed with my symptoms that I've never seen anyone talk about, is even in my legs a tremor shows. If I do squats or leg presses I feel the motion as being intermittent motion instead of being smooth even if an outside observer doesn't see it.
My goodness, how I wish I still lived in North Carolina. I appreciate you and your desire to truly help “us”. I’ve not yet found a specialist, and have been dealing with internal tremors since 2017.
I'm a 46yr old male and I've had ET most of my life but it got worse in my late 20's. I do have somewhat high anxiety and it makes my tremors worse. My father had slight tremors so I totally understand the gene connection. My Neuro wants to get the ball rolling at Vanderbilt for DBS. That's not a pleasant thought for me and I'm trying to see if therapy for the anxiety will help before going under the knife. I'm trying to gather all of the info.that I can so, I'm really looking forward to your help in this journey. Thank you for your channel 😊
PalmettoMoon do you take medication for it?
@@danieloliver384 I'm so glad someone chimed in on my comment. It's hard to find people to connect with in regards to essential tremors. Yes I do take medication and have been through them all. I'm currently taking primidone but tappering off of it as all those seizure type meds make you tired all of the time.
yes, it is hard to connect with people who have essential tremors 😔
I to have essential tremors. I've had it all my life. I'm 34 years old. and in the last say 6 years it has gotten worse slowly 😔
mine is all body. including head tremor... my neurologist says I'm only mild E.T
I've been on propanolol for 4 years now. and take only between 10 and 20mg daily
And take natural supplements aswell.. st John's wart.. vitamin e.. vitamin B.. magnesium..
I find they help a bit.
I actually just started seeing the neurologist again.. and he has just prescribed me primidone aswell. but have not started taking them yet 🤦♂️
how do you find the primidone to work??
I've just started with changing my diet. the last few months. to a Mediterranean diet. I've actually found that to help a bit. and drinking a lot of water. and no more soft drinks lol.
hopefully there will be a cure for E.T soon.. I think there will be in the future
Or at least better medications
@@danieloliver384 Yes, I try to stay away from caffeine as well but with the meds dragging me down, I have to consume some caffeine just to push through. It's not good though. It revs up my anxiety and makes my tremors worse. I haven't found that "magic" pill that has helped my tremors at all and I've been through them all. That's the reason my Neuro wants to do DBS surgery. He says I've exhausted my limits with meds and there's nothing else except surgery left to do. I don't believe that quite yet. I've even tried high quality CBD oil and only felt a slight difference with it. But again, it slows you down so you feel tired a lot. I'm wanting to get away from anything that makes me feel tired. How was your tremors in your teens? Mine were very slight (had all my life) but got worse in my 20's. I have always been told from day one that the older you get, the worse they get. Primidone may work for you but for me it was just another one bites the dust.
No One has it in my family. After eating raw potatoes freshly sprayed with pesticide I développés a tremor in my hands at age 7. I also had it in my tongue so I spoke slow. Now at age 57 my tremor has progressed to my head and upper trunk . My short term memory is bad and my hearing is deminishing. I have trouble writing putting sentences in the proper order… so many other things
I can't tell you a name of any physician who understands that ET is multisymptomatic. At 74 I have only had 1 who asked how ET had affected my life. Spoiler alert: it wasn't my motion specialist. They don't care because they can't fix it.
Check out our upcoming ET Webinar at www.icfyb.com/webinaret/