When Insomnia Becomes Deadly
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- Опубликовано: 22 янв 2020
- For most people, insomnia won't kill you. But in one very rare, very specific case, not only is it deadly, it's lurking in your genes.
Hosted by: Anthony Brown
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Sources:
first case: www.nejm.org/doi/full/10.1056...
other cjd:
www.ninds.nih.gov/Disorders/P...
www.mayoclinic.org/diseases-c...
www.ncbi.nlm.nih.gov/books/NB...
rarediseases.org/rare-disease...
onlinelibrary.wiley.com/doi/f...
sci-hub.tw/https%3A//www.scie...
www.cdc.gov/prions/index.html
onlinelibrary.wiley.com/doi/f...
I miss 5 minutes ago when I didn't know this existed
Big mood.
me too
this is the scariest disease i heard of.
Same
Now I think I'ma die if I sleep
"Experience insomnia and other psychiatric symptoms and then die"
Isn't that just adulthood, though?
I'm waiting on death myself
Santa Clause isn't real. Sorry. Also Taxes.
Well, we are all going to die someday.
Real funny
Dont worry, FFI contains a lot more symptoms than insomnia at onset, including cognitive deficits, psychiatric symptoms, ataxia, double vision and vegetative hyperactivity as well as daytime hypovigilance which is way worse than just sleepiness. The symptoms depend on the genetic form of FFI because there are two different variations (hetero-/homozygotic). The symptoms at the beginning are NOT the same than insomnia. Ive done research over this for MONTHS, as I was very very scared to have FFI because I do have insomnia. I can absolutely assure you that you would have way more and way worse symptoms than just being tired, not able to sleep etc.!
Vegan ASMR if you know your family and no one has the rare genetic disease, then usually you don’t have to worry. This is a dominant gene so one of your parents would have had the gene.
Mr. & Mrs Smith it was the Fore tribe. And the disease is Kuru. I have always found it fascinating
@@aleciastar1433 there are new random mutations without family history, sadly. Just think about where they come from in the known families. Somewhere it had to Start with a new Mutation and so it does today.
@Mr. & Mrs Smith however, it's also been found that someone members of the Fore tribe are capable of healing from kuru.
I get those symptoms from my anxiety like tachycardia
"It's lurking in your genes from the time you are born"
Me: *screams in anxiety*
if none of your grandparents died of it, you can count yourself as safe.
Erin Skittle this comment hit me in the feels
I had insomnia before and thankfully I fully recovered, but after watching this video I fear that I might have this gene it just wasn’t turned on before... Ignorance is a truly a bless sometimes.
@@yitaowang8547 how you cure your insobnia
The disease has a wrong name. Shouldn't be called fatal insomnia but fatal prion disease. I think that the name of the disease isn't a good choice and not accurate. You can't die from insomnia. And in this case, the body and the mind still ask for sleep, the prion is just affected and can't work properly so... It's fatal yea. But shouldn't be called fatal insomnia at all. That lend to make people anxious about it. And especially weak, insomniac people etc.
Don't forget too.. :
If you panic about not sleeping at all.. : just know that.. It's impossible to be dead of lack of sleep. Your body protect you, even after night's of bad sleep, your body create dopamine, struggle to keep you awake, and try his best to eliminate the cells that can lead you to sleep. The human body is fascinating, and battle for you, to keep you awake, conscious and alert about things.
If you suffer from ffi, your body doesn't even try to fight at a moment. Because the prion is affected so the brain and the body can't even help you to regulate your mental health. And.. Don't forget that :the disease doesn't appear naturally like "I can't sleep omg I got ffi!!"
It last months and months before the phase of "I can't sleep at all", you have several stages
The first one is insomnia. Last for months. Second one worsen insomnia. Last for month too.
Last phase, inability to sleep. Last for days.
So.. Not just because you didn't sleep last night that you got ffi. This disease is malicious and last for 6 months minimum and 18 months max.
Welp, I'm not sleeping tonight knowing this exists...
Just don't die
Currently having trouble sleeping....sleep damn you sleeeeepppppp
I suddenly felt awake when I started watching the video. I didn't help knowing that half the documented cases of this are from my region.
yee its 4:22 am right now and im watching this vid because i remember seeing it in my fee
gee... i wonder how the people who know they have this could sleep at night... if it were me, i would stop sleeping before this disease even hits for real. its just sad. i feel sad for them. i would rather die than not be able to sleep.
Is anyone here because of a bokuaka fanfic ‘in another life’ T_T
Yes, yes I am and the hurt has still not gone away😖
T-T
It’s honestly pretty scary.. i feel bad for Bokuto.
i just finished it and i’m sobbing
‘i found you!’ ‘you found me’ 😭😭
damn, this must be one of the most horrific ways to die 😞😞😞
I'm here because of In another life :>
same
"I found you"
What does this mean
Same ᕕ( ᐛ )ᕗ
"Good night, Koutarou,"
JUST A HEAD'S UP: It's not the insomnia that kills you with FFI. The insomnia is just the main sign/symptom. What really kills is the *destruction of the brain over time caused by prions,* similar to dementia or alzheimers. Basically, even if FFI patients slept, they'd still deteriorate and die. Many FFI patients actually *do* seem to sleep, and their issues can only be picked up by a brain scan.
It's also important to add that insomnia is only a symptom in the later stages of the disease. The mental deterioration happens long before the insomnia.
So if you're like me a month ago and worried that you have FFI because you can't sleep, RELAX. Unless you were already going downhill long before your sleep issues began, you're just a normal insomniac. Go see a doc and get yourself some help. You'll be fine. Even of you were having troubles before then, it could indicate a more common illness.
Thank you
Thank you
thank you man
Phew thank you
Yep. That was me 10 years ago learning about this disease. I would go 3 to 4 nights with literally zero sleep and I swore I had it.
10 years later, I'm doing really well! I still have bouts of not sleeping for days. Insomniacs deal with a lot, but we are okay and still living our best lives!
just sorta.... exploring whats the cause of FFI after reading in another life..
Same, This only makes it worse
Me too😭
Ik
Summer after high school, when we first met
We'd make-out in your Mustang to Radiohead
And on my eighteenth birthday, we got matching tattoos
Used to steal your parents' liquor and climb to the roof
Talk about our future like we had a clue
Never planned that one day I'd be losing you
In another life, I would be your girl
We'd keep all our promises, be us against the world
In another life, I would make you stay
So I don't have to say you were the one that got away
The one that got away
I was June and you were my Johnny Cash
Never one without the other, we made a pact
Sometimes when I miss you, I put those records on, whoa
Someone said you had your tattoo removed
Saw you downtown, singin' the blues
It's time to face the music, I'm no longer your muse
In another life, I would be your girl
We'd keep all our promises, be us against the world
In another life, I would make you stay
So I don't have to say you were the one that got away
The one that got away
The one
The one
The one
The one that got away
All this money can't buy me a time machine, no
Can't replace you with a million rings, no
I should've told you what you meant to me, whoa
'Cause now I pay the price
In another life, I would be your girl
We'd keep all our promises, be us against the world
In another life, I would make you stay
So I don't have to say you were the one that got away
The one that got away
The one (the one)
The one (the one)
The one (the one)
In another life, I would make you stay
So I don't have to say you were the one that got away
The one that got away
Same 😔✋
FFI has been one of my deeper fears for several years (a remnant of my old hypochondriac tendencies). The idea of just one day not being able to fall asleep, and eventually realizing I have a very limited amount of time left always terrified me. It's actually very reassuring then, to know that it can only be brought about by a very specific mutation, and doesn't just randomly happen to a person at some point in their life. I'm glad y'all made this video!
Woodrow Loftis it is also a dominant gene so one of your parents would have had it
Well, from what I've read SFI can occur randomly, FFI of course is genetic and EXTREMELY rare. I also read that SFI symptoms doesn't incluse insomnia at first. Many phases occur BEFORE insomnia in SFI.
I came here to understand Bokuto's illness more...
Love ur PFP
found my people
Me: (Has insomnia)
Oh boy, let’s get some F’s in the chat
F
@@JamesSmith-rb5lv F
I
No.
F
The first time I heard about this disease it was a Discovery Channel documentary airing at 2am. I couldn't sleep at all that night.
Pedro Marcelino me too, I saw it ages ago. I mean 15 plus years
Don't worry. For people who are worried about having. It's more complex than just not having sleep at all. It's the cycle of sleep which is totally disturbed. For example, a patient who got ffi : He / she goes through the first stage of sleep to the REM directly for mn. He / she goes though the 2nd stage of sleep to the subwakfulness directly. He / she goes to the third phase of sleep to the first one directly. It's an exemple which show you that the cycle of sleep is clearly disturbed and not any coherence through the stages. So, if you have trouble sleeping but if your cycles of sleeping is normal ( awake, then stage 1, then stage 2, then stage 3 then rem) so that's a sign too that you doesn't have to worry about having ffi. It's not just insomnia. It's the WHOLE sleeping process which is disturbed and totally incoherent.
So, if you want to know more : I recommend you to type "ffi sleep cycle" on Google, there's an interesting article from a Chinese study (with 5 ffi patient who were examined during the first stage of the disease until their death).
Its not just insomnia. So, you can sleep peacefully. If you have trouble falling asleep but if you doesn't goes through rem sleep to awakening state, or if you just waking up during the night and having trouble falling asleep afterwards, that's normal and absolutely not ffi.
When you have ffi, you feel that something isn't normal about the sleep cycle. It's clearly abnormal and strange.
Plus, during the second state of sleep, patient have hypinic jerks. So if you have hypinic jerks, before falling asleep, that's, too not an accurate symptom because patients have these things during the second or even third cycle but they didn't even realize it, or they just, totally live their "dreams" by having vivid dreams and strange reactions. Hypinic jerks occurred before falling asleep most of the time or during first stage of sleep.
Everything is disturbed and it's not about just the trouble falling asleep. It's deeper. As I can see, some studies shows that patients have some deep sleep during a total of 2 hours but knowing that their sleep cycle is totally disturbed, the regenative sleep isn't working and doesn't have any benefit. It's like.. If you sleep during 20 mn, and then you are awake, and then you sleep during 30 seconds and then you are awake. It's like the brain totally forget the notions of "falling asleep rightly"
Sorry for bad English but hope you understood what I meant.
God it's like they were trolling you playing such a terrifying documentary about never being able to sleep at an hour when you were supposed to be sleeping.
Everyone : Interested
Weebs : In another life~,
I found you.
You found me...
"Good night, Koutarou,"
You are beautifull,
Sleeps doesn't come as easy as it used to
Cloud atlas
Bokuto didn't feel like hospital he felt like home
I think you just gave everyone in your audience an anxiety attack, myself included.
Anxiety attacks are a symptom of FFI
@lovelyxwes ☠️☠️☠️☠️☠️☠️☠️
Anyone here because of
*"In another life"* ?
Yep. Just read it, and I'm still crying.
I'm broken
hey there... haven't finished it yet cuz of mixed emotions and weird feelings
Again yes
Broken for life
Great, now we're going to have a billion hypochondriacs in the comments section thinking they have this. Look, guys, as a hypo myself, don't. Don't even go there. You're going to make your problems so much more worse by thinking about this.
Yep
Dude I have fatal insomnia now I know its stupid and I know I dont have it but im still freaking out
Yea tru. I’m so mad I found out about this. CuZ now my anxiety keeps me up.
if only they knew what it’s actually like...
Я с тобой согласна, у меня эта болезнь, это самое ужасное что может случиться с человеком, это ужас
Man I really love having this guy on, his presence is so calming
Alright, alright. Every Psych video now comes with these kinds of ASMR comments. Others of us have to speed up the video to get through it.
@@smurfyday well that's why there's more than one host
I find he articulates really well, my brain however keeps telling me it is unnatural how good it is so I have no trouble hearing him but somehow have trouble watching him
But: do these patients actually die *from* the insomnia itself, or do they die from the brain damage that also causes insomnia? There's a big difference.
I've always wondered the same thing from what I understand is the lack of sleep can't kill you itself but it can cause fatal symptoms such as various organ failures or strokes and heart attack
protatoplays games if it's the cause for those symptoms then it's the cause of death to me.
The body goes through a restorative phase every time you sleep.
It is a time where the body can relax, do less, and focus on repairing itself.
@@lIlIllIlIllIlllIllIIIIIIIIIlII I see how that could be the case, I am just curious if there's ever been a person that died strictly because lack of sleep But to my knowledge you are correct it causes fatal symptoms therefore not being the actual cause of death. One could say the same about cigarettes or a car accident but we all know what killed them. I wonder why sleep causes these things though
protatoplays games: The closest analogue I can think of is HIV/AIDS. The virus itself is too weak to ever kill its host. However, since it destroys its host's immune cells, they're unable to survive even the most normally harmless of infections.
I've had a hard time sleeping all of my life. There were nights when I'd wished I was dead, but had no idea it could have done the job!
How did you fixed your sleeping problem
I hope u sleep better these days
Prion diseases freak me out.
Me too. There is zero cure and they're resilient little sods, so transmission is somewhat easier than normal diseases
*insomnia intensifies*
2:30 AM and this videos isn't helping 😂
2:30 am is nothing it kept me up til 7
I would be interested in your references. From my research on FFI (and I've done a lot), age onset is around 50. Also, there are definitely more known cases than "a few dozens". But the biggest flaw of this video is that you present FFI as a disease that manifests exactly like normal insomnia in the beginning which is not the case as there are lots of other severe symptoms from the beginning. You should definitely add this, otherwise this video will give a lot of people a lot of anxiety about their harmless insomnia being FFI. I experienced this anxiety myself some months ago exactly because of "well researched" online Information like the ones presented in this video. Doing further research, I realised that FFI is not only a desease that manifests during sleep, but equally during wakefulness. As well as your sleep is getting dysfunctional, your abilty of being awake is decreasing, too. Daytime hypovigilance and other cognitive deficits are one very important aspect to FFI as its the big difference between normal insomnia and daytime sleepiness vs. a severe and deadly brain damage like FFI, that is related to BSE by the way. Also, there is a variety of severe symptoms that May occur from the beginning such as ataxia, double vision, vegetative hyperactivity depending on which of the two genetic FFI forms you have. You should have made this clear in your video to not spread unnecessary health anxiety among people.
All SciShow series put links to their sources in the dooblydo (the description).
@@lunacouer thank you, I did not know that. I've read over the references now. Their first case reference is a single case study from one 53old man from 1986. Only 34 years ago! Read through their literature and you can see that every single reference tells about many different symptoms. Some say the autonomic hyperactivity comes first whereas others state that cognitive decline and ataxia are early symptoms... well this is science and as I said, there are two different genotypes with different phenotypes following, but none of them is reduced to the symptom of insomnia as insomnia itself is definitely NOT a symptom of a deadly disease. It is important that people know that!
Vegan ASMR you are wrong, insomnia is a symptom of FFI. The medical definition of insomnia is difficulty falling asleep or staying asleep, even when a person has the chance to do so. There is no such thing as “normal” insomnia, it has many causes from bad sleeping habits, to stress, to serious diseases.
At the beginning of the video they do state that insomnia is only one of the symptoms, but it is the one symptom that people with FFI have in common. And there are cases that people don’t have other symptoms prior to the onset of insomnia. As with most diseases, symptoms and onset can vary greatly from one person to the next.
@@mopar_dude9227 Yes, but he said there are other more severe symptoms along with insomnia that indicate FFI, such as hypo-vigilance.
@@mopar_dude9227 i didnt say insomnia is not a symptom but it is definitely NOT the only symptom. Symptoms vary a lot from case to case.
I need a Hank Green body pillow
A muscle hank pillow to be exact!
I need a hank hill body pillow
Liking Anthony's hosting.
Another great person of the SciShow team!
Fatal Familial Insomia is so interesting ive been looking for more on this for years. I didnt know it was a Prion disease.
It feels like all crazy scary brain degenerative diseases turn out to be prion diseases.......
@@tiffanymarie9750 it's almost as if how proteins fold, and cell signalling is just really damn important
Thought I had this when I got a depressive relapse after trying to ween off antidepressants (complicated by sleep apnea) - took about a year and new meds to fix. Truly terrifying.
Ive had insomnia for literal years, so i guess theres nk chance of me having this lol.
if you have actually slept any time at all during those years, probably not.
me too..I cant sleep without medication and even then I struggle
Rachel ryan same for me dr can’t help on 3 different medS 😢😢
Well I just start having trouble sleeping a week ago and I'm scared I never had this problem falling sleep before in my 43 years of age until now
@@sohopedeco yet again there is a less serious case that gives you a 1-2 hours of sleep
Nice, I literally asked about this in lecture today! Although the answer I got was that there were other factors (the prions) that killed you not the insomnia itself.
ive been watching youtube before i sleep for the last 3 years. it works great
first heard of this disease in psych class senior year. 2 years later i read in another life and was reminded of it again. such a terrifying thing to happen to a person, i wouldn’t wish it on my worst enemy
This was an excellent video. I like when you discuss rare conditions.
This host is awesome! I love his voice - it's very calming and pleasant to listen to 😊
As an insominac:
*No we haven't all been there
*1nights bad sleep is in no way similar
*A full week of no sleep MAY give you an insight.
*No you can't even empathise
*It's incredibly insulting to even say oh I understand.
I was once awake for a week, crashed non-restfully for 13 hours, then up for another week lol
thank you.
Yes! This ! I was up for a WHOLE WEEK taking ambien and other medications that didn't knock me out. People say they understand BUT THEY REALLY DON'T AND IT'S FRUSTRATING AS HELL
Want a cookie?
I mean, correct me if i'm wrong here but at least some of the symptoms are pretty much the same when you have inseomnia and when you just have 1 night of bad sleep, so in a way you can relate, it's just the severity itself of those symptoms that you cannot relate/empathise with. Ethier way people are just triyng to exercise their empathy so please don't feel insulted, but yeah i understand your point of view.
i go through cycles of sleeping mostly fine, then i simply cant sleep.
im like 2 weeks into just not sleeping i just lay there best way to describe it is i feel like i forgot how to sleep, i dont get tired either all night. i have a broken c4 vertebrae could be part of it.
grumble grumble..ill be fine..
This man does not blink.
Hey, if I die that's just a bonus.
You and everyone who thumbed this up need to get help.
@@smurfyday it's the internet. Wanting to die jokes are normal
@@dutchik5107 sadly
@@Ganara426 it are just jokes cause life is so stressfull.
Just like people fantasize to get hit by a car while on their college campus. Cause of free tuition rumour. But also not having to go to class/test.
When you’re hear because of in another life BokuAka now you’re crying 😔👌
Oh boy as an insomniac this just made me paranoid
Saaaaame😨
This is a dominant gene so in order for you to have it, then one of your parents would have had it. And so on to one of your grandparents
look for Vegan ASMR comments. You get other symptoms before Insomnia
My Anxiety goes wild😢
Well if you've had insomnia for over a year, you probably don't need to worry about FFI.
While I don't have FFI, I have not had normal sleep patterns since my late teens, it worsened with age and by my late twenties it had settled into it's terminal pattern. My sleep studies showed that I don't have normal sleep brainwaves and on top of that my sleep cycle is 15 min long which causes me to wake up. Even worse I am often conscious and "aware" through much of that cycle. By my thirties I started noting an ever so slowly creeping cognitive loss. By my mid-late 30s it was something I couldn't hide anymore. Memory was effected, recall of complex tasks reduced to hash. While once I could code in multiple languages, I cannot write code any longer. It's not that I don't remember what to do but what comes out is gibberish, even though while I am writing it it seems to make sense. Eventually I started having motor-skill loss and muscle degradation, something I noted when doors felt like they weighed too much to move.. but my muscles simple were not responding. Testing in my early 40s showed that I had lost 20 points of IQ (from tests done in my late teens) and had issues transferring between short and long term memory. What followed on was a ghost pain that haunts me still even though I've found work around for much of what I've lost. I have to focus to walk but unless I become exhausted I can hide what is going on but distract me while I am walking and watch my legs just collapse. I often am not properly located in my time perception often thinking of myself in terms of when onset began earnest. If I close my eyes I slowly lose contact with my body. Not like numb, but something much more strange, best described as error 404 limb not found, never had one, what are you talking about? I sleep a little better with the pain medication but the pain isn't really pain, it seems linked to a misinterpretation of normal signals from what my body is parking.. kind of like the brain says.. I don't know what this is.. its.. umm.. Pain! yeah.. that is what that is. Fun stuff really. No, not really. It appears genetic as my father went through something similar and his father did as well. We all find ways of just coping and hiding it. Though it hit me harder. Issues crop up at certain stages of life. It matched across all three known cases in my family. Research into my past showed the same pattern. Onset at 2-3rd grade level, again at about 19, and then it comes back and stays in the mid to late 30s. The younger cycles last less than a year and then suddenly, like someone flicks a switch.. it just disappears. But at 35+ if it happens, it stays. Though to be fair all throughout is a long and slow sleep decline. Unfortunately no hard data as only in my late 30s did sleep studies ever get performed. I just remember often having and an always worsening pattern of sleep.
Sleep is pretty important. Wish they could figure out what is wrong, but as my Neurosurgeon said.. short of autopsy there is little more we can do and that is just how it is with some of these things. Anything we did to study it would likely cause more damage and since I've found ways to live with it and handle the limitations it puts on my life. Such is how it is.
I can relate to this. Let's keep fighting
I suffered from insomnia on and off for years and I rarely feel rested when I wake up, no matter how much I sleep.
Lately, I was getting less than 6 hours, within the past week, now less than one hour a couple days ago. Yesterday morning, I kept getting to that spot where you're almost asleep, you're dreaming but still awake and aware and I bounce back. I would also wake up shortly after falling asleep. Now, I can hardly sleep at all. I'm scared I have this.
@@torian6600 Yes, it lasted a few days.
I have this exact thing where I'm close to sleep then wake up again as well. Did you fix it for yourself? If yes, how?
@@leonschander7126 It went away after a few days.
I don't think I tried anything except eating and I made sure I had enough calories, protein, and calcium.
A weird fact is that sleep deprivation can make you not sleep well.
I'm just getting over another spell, where I is sleeping only 1-3 hours at a time and I'm wide awake for another. Last night I probably got 7 hours of sleep. I wish you the best of luck.
Always pray to God 🙏
Hallucinating? Or dreaming while microsleeping? This happened to me when I was sleep deprived and still have to work. I literally starts dreaming while reading stuff on my work computer until I wake up 3 to 5 seconds later.
That's not good, if the boss finds out... but worse, if it happens while you're driving in rush hour traffic. I hope you have a short trip home, so you can catch a safe nap before dinner.
@@LindaGailLamb.0808 Nah, I'm practically retired now. But someone probably saw me suddenly jerk my head up when I wake up in those times.
I'm crying because
1. This is a seriously terrible disase, and such a scary way to die
2. ,,It's snowing in November.
How odd is that"
Hello, how are you? Have you been able to beat insomnia?
This is just one day shy of April fools day... not the time to stumble upon this after a night of not being able to fall asleep! >.
I understand exactly what you going through, Have you tried using natural herbal medicine, my cousin had same problem ( FFI ) insomnia for 2 years. Imagine young beautiful can't even sleep and restless legs it affected her life and career, we came in contact with Dr Isibor on youtube who helped her with his herbal medicine and body cleanser, now she's fine and perfectly ok, she can now sleep peacefully thank you dr isibor..
Anyone else watching exactly at 04 : 01 **AM** ?
Ok, Anthony, it's ok to blink sometimes. Seriously. Blink.... BLIIIIIINK!!! Please!!!
His voice is incredibly soothing 😂
I like this guy as a presenter/host 👍🏻👍🏻
It kills you by phantoms.
I have progressively worsening insomnia to the point I'm hallucinating. I got an injection of abilify maintena that gave me akathisia for over 2 years, after that passed some disease started that began with night sweats, dry skin and eyes, vision and hearing problems (hyperacusis & tinnitus), joint pain.. I gained 40 pounds since this started. All my autoimmune panels normal as well.. I seriously need sleep, I wake up every hour or 2 over like 8 times a night. Then I'm up for the day. Extremely exhausted
I really think I have this... I'm not able to sleep for 2 weeks, I lay with my eyes closed in bed and can't tell if I sleept or not, feels like I'm not sleeping and being aware of everything around the all the time. I can't go though the next stage of sleep. And I don't feel tired at all. I have myonoclus as well and muscle stiffness, agitation, depression and anxiety and I'm not able to do my daily activities anymore. My health is deteriorating day by day. :(
Me too i thought I was alone but I have the same symptoms as you I have muscle spasms as well and when I try to drift off to sleep a jerk wakes me up and my heart is racing I think the problems were experiencing is stress and anxiety I constantly google symptoms before bed and during the day but it makes it even worse I also have thought of impending doom thinking I have ffi.
Are u ok?
I’m so sorry :((
my mom has it she went crazy and passed away it took 5 months for pass and the scary thing is Sporadic Fatal Insomnia can happen for no reason I say if your having any probs sleeping go to a doc
I'm seeing this at 4:30am.
I feel called out.
I thought i was the only one watching this at 4:00am
Lol
I have a disease which also cause sleep disturbances (unrefreshing sleep/insomnia), concentration/memory/recall function loss & seems to have links to the correct functioning of the *Thalamus* , *Hypothalamus* & a part of the _brainstem_ in the *Substancia Nigra* called the *Ventral Tegmental Area* (VTA), which makes conditions like FFI all the more terrifying.
*_Fibromyalgia_* though, which while non terminal (as far as known) & having an (as yet unidentified) _genetic_ component), has only recently found to have a _neurological_ etiology ( it's more often listed as a *_Pain Dysfunction / Connective Tissue Inflammatory Disease_* ) and may be found in as much as *5-7%* of the population in countries with a high proportion of people of *European* - & especially *_Mediterranean_* - descent ( such as the United States & Australia ), making it an extremely common condition.
It's research into rarer diseases like *FFI* which may bring relief for those of us who must live with symptoms of other neurological/genetic diseases.
thats some scary stuff the fact..
it has no cure..
Or atleast treatments to make it a chronic disease instead of a fatal one.
Really good video
Maybe the protean does both of those things? Why does it HAVE to do ONLY one?
The new host is great!!!
This is one of the worst things to suffer along with cancer
I went 396 straight hours with no sleep and not because of chemicals. It was hell , and there sure weren't any micronaps. I was acting crazy by the end and tried to smash myself in the head with a hammer just to get some rest as I argued, it made perfect sense at the time. A bit over two weeks without sleep does that to you. The hallucinations were strange as well , I was n another world after the tenth day. This was the worst episode of this but now several years on, I can't sleep for longer than 3 hours a day and I feel fully rested.
Antininos Pius what the hell kept you up?
@@shaneharrington3655 I don't know. It has happened periodically but never to the extreme of that episode. I remember every single miserable second. Sleep loss is a real problem physically and mentally. I can say it wasnt substances, or injury. I didn't go to the dr till my heartbeat fell to 40bpm and they said I was in danger of dying by heart attack. I've had bradycardia since.
@@antininospius sounds like hell... I hope you can find a specialist who might help you figure out what's happening and why. Better yet - one who can help actually solve the problem, whatever it is...
@@LindaGailLamb.0808 thank you, I don't go that long anymore, but I can go several days. If I have bad times like that again I will go get a sleep specialist.
Antonio please answer I didn’t sleep today I have a tension headache you have experienced the worst and you’re a warrior ! Do you have any tips ?
I knew exactly what this video was going to be about before I even started watching it.
antony i LOVE your voice
"And yes, it is fatal"
I mean, it has fatal in the name, so I would assume so
Hello, how are you? Have you been able to beat insomnia?
Wow, I work with the PrPc protein! Nice to see it featured here hahah
There is also Sporadic Fatal Insomnia. Which is the same misfolded prion as Fatal Familial Insomnia. It happens randomly without the gene mutation though. Less than 100 cases have been reported in the literature. There are 72 known families with the genetic variants.
Watching this while having one👌
Thank you.👍🏿
Look at him rock that vest!
I remember watching a documentary on this years ago
Scary, i always have trouble staying asleep, early insomnia (?) or middle insomnia (?).
I got to 12 seconds in the video and I was like: ok...thanks....that's all I needed to know...
Anthony Brown? I don't recall seeing him before. Is he new? Hello Anthony! :)
Guys some of yall should stop saying "i think i have this" stOp seLf diAgnOsinG just because you can't sleEp
50% Insomniacs
50% Bokuaka shippers
FFI must be the worst way to die. It's so fascinating tho!
I really wish I didn’t know about this. I first heard about it a few years ago, and since then every time I have trouble sleeping, I’m afraid I have this, and then I get worked up and have even more trouble sleeping. It’s a nasty cycle. If you don’t know what this is yet and are suggestible, DO NOT WATCH THIS VIDEO.
Dooality look for my comment in the list - was sure I had it too
It is a dominant gene. One of your parents would have had it. If no one in your family has it then don’t worry.
Even if you are adopted or something, this is EXTREMELY rare
Too late !! I already watched 😱.
Then again... I'm probably safe. I *do* sleep... I just have a weird sleep schedule.
Could you tell me what help i cam get with this? I think i may have this and its getting worse. I'm now 38 years old 39 in June. I really am scared. I suffer with debilitating anxiety too. Any help would be greatly appreciated 🙏 this is not a joke or a fake post. Any advice anyone can give me would be greatly appreciated thank you so much
Hello, how are you? Have you been able to beat insomnia?
I thought they had attributed this one to a pron that came from eating crops fertilized with ground up human remains as they were clearing out catacombs?
sooo this protein is glue... it keeps the brain held together when it gets damaged by a stroke, but when it goes bad the whole brain falls apart. NOBEL PRIZE PLEASE 🥺🤚
i wonder if autophagy has any affect on this disease, autophagy is able to get rid of abnormal proteins which cause FFI in the brain. no one would ever think to go on a week long fast after finding out they have this disease.
Still not enough blinking. This host is my sleep paralysis demon.
SciShow: It starts with symptoms like not being able to fall asleep or stay asleep.
Me, with insomnia and anxiety: I haven't slept well since age 26... hmmm...
Trevor Kent if your parents don’t have it then you cannot have it. It is a dominant gene so it doesn’t hide
Alecia Star That's where the anxiety comes in and says "Yeah but forget that fact nonsense!"
I mean no disrespect to the victims of this awful condition, but I do feel strongly that it would be unethical for them to have children after learning that they carry this gene. If all 40 or so affected families made that sacrifice, we might cure this disease forever. I know it's a lot to ask, but I think it's what's best for the posterity of humankind in general.
I agree fully. There is nothing more selfish and cruel than having children knowing you’ve cursed them with a horrible, drawn out death and allowed this disease to persist to another generation. It’s rare because it’s supposed to have been weeded out via natural selection. Prior to knowing it existed it was understandable, but now that it’s known, having children when you have that gene is inexcusable and among the worst thing one human being could do to another.
No not really the disease can develop in people with no history of the disease in their families, in fact that’s how these cases start from the first place, someone was unlucky enough to have the genetical mutation and then spread it in their family.
Anyone worried, listen to medical mysteries podcast about this disease and it is more obvious that it's not common and you would notice. It's not usual insomnia, it is a really long process too, with more symptoms, it doesn't happen overnight. At least as much as i've understood.
By any chance do you know where I can find this podcast
This triggered my anxiety bad. I wish I never saw this.
The beginning of this makes me think of the plot of one Star Trek episode where almost everyone lost the ability to REM sleep. Anyone else?
"why me?"
"Because life is unfair"
*sobs* you shut your mouth rn 😭😭
Me at 2 am wondering if I can’t sleep because I have this condition or because I can’t get over how he says “relay” @ 1:46 🤦🏻♀️
A abomination lies dormant within the conscious. Waiting for the day it wakes.
I have to say one of the worst parts of FFI is that by the time you find out you have it, you probably have a biological descendant who could carry on the gene.
Many fatal genetic diseases are like that, because it prevent evolution from weeding them out effectively.
There is a genetic test that can be done for folks who have had this disease i. This family. This test can tell one years or even decades before they have any obvious symptoms. It is a gene mutation that causes the disease.
FFI crops up in an episode of Ghost Whisperer.
I have these symptoms, and I'm so irritated that my sleep is so bad... ☹☹ but I've had it for years, so I doubt I have the actual disease.
Aaaaaaaaaaaaand now I think I have this.
hhjk377 Did one of your parents have it? If not, then you don’t have it. This is a dominant gene
You probably shouldn't do too much googling medical things... who knows what other things you might think you have 😁? I wonder how many hypochondriacs google has created.
Linda Gail Lamb I google and I show symptoms but my parents don’t have it
At the edge of town there is a shittly little gas station
Where have you been hiding this host?!?
my mom has this Sporadic Fatal Insomnia one day she never feel sleepy and she can no longer sleep and she was legit going crazy and seeing stuff im saying anyone can get this even without being gens
A study and research are being conducted in San Francisco.
"you are beautiful"
"I found you"
"You found me."
@@hannahcozo8859 MMMM ACTUAL PAIN
Thank you. Beautiful
@@gial3942 it's been weeks but still hurts
@IRAE MAUTOATASI it's like rubbing salt in an open wound😭
Hideous disease but very well presented in this video.
"and then eventually die"
Don't we all?