Ethical Issues with Applied Behavior Analysis: Past and Present
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- Опубликовано: 26 янв 2022
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In this webinar, we review our argument that a dominant form of Applied Behavior Analysis (ABA), which is widely taken to be far-and-away the best “treatment” for Autism Spectrum Disorder, manifests systematic violations of the fundamental tenets of bioethics. Moreover, the supposed benefits of the treatment not only fail to mitigate these violations, but often exacerbate them. Warnings of the perils of ABA are not original to us-autism advocates have been ringing this bell for some years. However, their pleas have been largely unheeded, and ABA continues to be offered to and quite frequently pushed upon parents as the appropriate treatment for autistic children. Our contribution is to argue that, from a bioethical perspective, autism advocates are fully justified in their concerns-the rights of autistic children and their parents are being regularly infringed upon. Specifically, we will argue that employing ABA violates the principles of justice and nonmaleficence and, most critically, infringes on the autonomy of children and (when pushed aggressively) of parents as well. We discuss some reactions to our article, and conclude with a modern legislative debate regarding the use of ABA in the Judge Rotenberg Center in Massachusetts.
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NJACE is funded in part by the New Jersey Governor’s Council for the Medical Research and Treatments of Autism and by the NJ DOH
The views expressed herein may not necessarily reflect the views of the NJACE or our partners, the Governor's Council for Medical Research and Treatments in Autism, the New Jersey Department of Health, and Children's Specialized Hospital.
The mission of the NJACE is to educate society about the neurobiology of autism, and autistic people‘s unmet needs across their lifespan. We do this by listening to the perspectives of autistic people, their parents and families, clinicians from interdisciplinary fields, and researchers from various fields including psychology, genetics, engineering, and computer science. We hope to build an all-inclusive community, which embraces autistic people as valued members of our society.
Thank you for this video. I would have loved more examples but this was an excellent video. I specifically loved the section on autonomy. Respect speaks volumes
This was a great discussion
As a physician with a master degree in Clinical Ethic I question the premise. In treatment of Autism there are other treatments available that are much less expensive with scientifically proven results. For example, the DIR method is medically based and, in my opinion, more philosophically sound. Ethicist were a part of the development of the mode. In regards to Parent Autonomy, other modalities of treatment need to be discussed. Although we seldom consider cost in Ethics in the realm of ABA is important for justice that other therapies be used as it otherwise limits the therapy to those who can pay or who have insurance that will pay.
sexism, constant fear and neglect, constant terror against my person as i am, absolute destruction. no help, no nothing but torture.
I hope to see Sensory Integration Intervention used in the future in schools as Ayers Sensory Integration®is evidence based.
Is there a link to the paper or a place we can access it? This was a great conversation
How Much Compliance Is Too Much Compliance
Started out great. I think there may be other ways to share examples without coat tailing on sexual diversity. Especially since society and media use Skiner's method on a greater scale than any isolated case of misguided lone ABA therapist.
Some of the things I find most disgraceful are;
ABA workers are not even educated about neurodevelopmental conditions.
Every other scientific field is excluded.
ABA is regardless of emotional well-being.
ABA is regardless of the autistic brain.
ABA is regardless of psychological differences.
ABA is regardless of all internal constructs including autism itself, treating a neurological condition with behaviourism should be a red flag.
ABA has not done a single longitudinal study, they have no evidence of long-term effects. ABA was founded upon out of date science and a platform of ableism. ABA's so called evidence is very weak, every case is individualized, using diverse techniques on diverse people is too much individuality against the rules of science.
It's estimated up to 70% of autistic people are also diagnosed with intellectual disabilities which results in an immeasurable IQ. With their IQ being immeasurable they are excluded from ABA research, up to 70% of autistic people have nothing to do with what they claim to be evidence.
ABA: "We Are The Golden Standard for Autism, But We Are Not Even Educated About Autism"
ABA is a fraudulent organisation.
THANK YOU! The comment you shared here gave me the missing piece to one strong point I'm trying to make, as I map out a break-up manifesto for my son's school district, as I'm still finding out how to homeschool my kindergartener & help him heal from the trauma that I've participated in burdening him with. I can't just dump them coldly. The Board of Education needs to hear why this decision was made. He needs to be put on the public record.
They made it sound like there was no way I could homeschool him, like it would be something more or less criminally neglectful. His diagnosis is level 3 autism & sensory processing disorder, he is non-speaking. He's so awesome, I've tried really hard for him and my only regret is enrolling him in public school education in the first place. If I could have known how horrible it would be, & that our state does in fact give kids their rights to have the same amount of speech & OT they'd get at school, I would have spent the last several years preparing to ride out my midlife at home, making his lesson plans!
We are extremely low income, I always thought homeschooling is only for rich people, but allegedly there are grants out there that help a lot. There was a time within this school disaster when I let them pretty much gaslight me into thinking that I have some mental health issue- & that's what was making me feel this way about what I Now understand is the behaviorism based education system. It had to be so crazy for him to experience it too, his life has been based around this safe and sensory friendly home where we are always celebrating our neurodiversity & meeting our family members difficult times with love & kindness.
My counselor told me to look into someone she met professionally, Dr Mona Delahooke, & I felt a type of relief I can't describe... The channels that featured her are how this very content ended up in my algorithm 🙂 and wrote a few books about parenting / educating / treating children with a model based in the polyvagal theory. It recognizes that a child who is in a state of stress is not even physically capable of absorbing the information. I love it, this is the type of approach children need.
But I know that this school system will absolutely not go for this, maybe many years from now but not at any point in his education. It would completely restructure everything about how they handle neurodiverse kids. Trying to use overwhelmingly stressful challenges to change "challenging behavior" is pointless and ineffective at best, & we're living in an age of science that supports this. But I feel like many institutions are gonna get away with the equivalent of throwing a sheet over that bird cage, to stop us from delivering songs that tell the truth. And that's awful, considering the truth about the damages people have to live with without even delving into the worse half of the potential outcomes of the ways kids are treated here and now.
You seem to have a really huge, marvelous understanding of this stuff... Could I trouble you for some leads on ways I can educate myself more? Data, studies, channels, names of public figures in this movement, groups that discuss this stuff, anything really. The last couple of months have been the craziest time of my own life, & it wasn't even happening to me. I'm dying to make things right for my little boy. I literally can't shut myself down, it keeps me up at night. I need my child to have what he deserves, & I'm having a hard time finding more outside of what the algorithm has connected to Dr. Mona 😊even if you can't help with that stuff, I appreciate you. And you've already helped us so much by sharing here when you did.
Thank you ❤
@@marysupernova7780
I've been studying autism and neurodiversity ever since I were 9 years old, that's 23 years almost, I got more curious each time I heard my Dad tell someone I'm autistic.
It's good to look to others for information, but you must not stop it from you finding what has not been found. In 2004 through my experience around other autistic people I challenged all I read about autism, my relationships with other autistic people had no social issues so I made the theory autistic people like everyone else simply get along better with other like minded people. Then in 2012 a sociologist Damian Milton proposed the same theory and called it the 'double empathy problem'.
I always ask questions, for example: if we are autistic 24, 7, why do so many "symptoms" come and go, why don't they stay with the Autism?
That question alone brought me to the theory autism is possibly a distinct condition that is laying beneath all the various traits. Out of all the autistic people I've communicated with I see a common denominator of "authenticity", it's as if autism makes an individual more willing to live an authentic life instead of a life of social expectations.
There's numerous researchers who are looking from a neurodiversity perspective, it's good to look at their work.
I was wondering when i first saw this and i was curious about it ontill i gave it a try because my daughter was diagnosed with authism for a very long time and dr bante helped me cure it thamkfull for everything dr bante God bless
I was wondering when i first saw this and i was curious about it ontill i gave it a try because my daughter was diagnosed with authism for a very long time and dr bante helped me cure it thamkfull for everything dr bante God bless