I knew I wasn’t over the top. I raised a son with an autism diagnosis. He is 18 years old and over the years, I saw how funding, meds, therapies etc were barely existing to now it’s everywhere. I would like to see this conversation elaborate a bit more on the intersectionality of autism and the communities of minorities and poverty
Required watching! JULY 2022 -- I am putting together a lay-person blog post to disseminate your tireless work. I am so excited that the book is arriving in 2 days. It is high time that the festering wound of capitalistic exploitation of a large minority group is dissolved with expertise. This book is a major step in the right direction. #banABA
Nice video. I am mother of one nice 13 years old autistic daughter. We live in Serbia and my daughter attends the nearest regular School for all children. Her friends and teachers are very nice. I think the best ,, treatment " for her is inclusion , having friends and doing things which she likes with her friends. ❤️❤️❤️
The best treatment is to eliminate what is stressing her brain and immune system and let your daughter integrate and be like any other child and be able to do what others able to do.
As a former interventionist who has worked in the “field”, I then became a parent. When my daughter started showing signs, I then witnessed the pitfalls of the current referral and health care system to identify environmental and health issues that result in autistic behaviors in the first place. It was then I became aware of not only the dark “industry” (from autistic voices) but ALSO: the fact that there seems to be a purposeful attempt to intentionally increase autism in society specifically for profit… this is a disturbing system which must be confronted and discussed.
Also also, the worry about kids not having a typical life comes from trying to conform autistic people to the capitalist experience even outside of the autism industrial complex. There should be more financial supports for EVERYONE, not just autistic folks, such as universal basic income.
But this won't likely happen, because thats "cost" and not "profit". Even if the cost is worthwhile. All this fear about the cost, without any mention of how it would be worth it.
You must realize, however, that a universal basic income would do nothing. It would be a net zero. If you give everyone $500, then it becomes meaningless because everyone has it. Companies would recognize this and raise their prices. All it would do would create inflation, which would hurt the people who actually rightfully EARNED money by contributing value to society. I am not for supporting companies that don't serve human well-being over profits, such as this video outlines, but taking it so far as to advocate for a UBA is overly far-fetched and unproductive.
@@cameronmcgehee Well, if it is okay with you if I think out loud, then I would say that you could also see as a way to diminish the financial burden on a country's system. If you don't have to administer many different programs that employ many different people who assess - often on a basis of "targets" or other negative internal policies rather than on people's needs and often not hampered by much actual knowledge, by which I mean that many terminally ill cancer patients may not look that ill to lay people, that pain is not visible, that anything that women say and that non-whites say is often dismissed etc - then you free up a ton of money that could be put to better use than in fighting for example legal appeals against illegal benefits cuts by people who are not considered ill enough or who are considered to "dumb" to be able to fight back. There are experiments with UBA all over the world. It simply makes plain sense, from a humanitarian perspective. I see it as something that advanced societies would do. I am in a country in which tens of thousands of people die every winter as a result of being unable to afford heating their homes - far more than in countries with cold climates. This has been the case for a long time and yet, people are now talking about the energy price crisis in the UK as if this winter would be the first time that this might happen. The income inequality here is of a shocking level, with around one third of the population in poverty and many not even able to afford the bare basics. UBA might help even out such appalling disparities. Do you really think that companies who are seeing more people buy good food, clothes and furniture because they can now finally afford it would raise their prices so that fewer people could afford their products?
The fundamental problem with recognising autism as objective is that as long as it exists, so too shall the AIC. And there are always ways in which the AIC reduces autistics to philosophical zombies, as behavioural zombies are what ABA therapy truly creates; it builds those from soulless zombies, at least in the nefarious minds of Skinner, Kanner, Bleuler, and other pioneers of this horrible therapy.
these labels are also tied to tangible benefits or what I think of scraps from the table that keep people gasping just above the water line in the utterly disordered school, work place, home all driven by the broader cultural disorders of the political and economic systems all turned inside out into persona disorder for profit.
How much do you think royalties are in the US? We're not writing about magic wizards in a fairy-tale land, so no dental implants for us autistic researchers.
Abigail Campbell, If you haven't read her book I do recommend it. Have you ever heard of the Nemechek Protocol? Nemechek is just another person playing a scam and numerous people are taking the bait, he claims he knows the cause of autism, he claims he can cure autism, and he claims that genetics have no association with autism. Anyone can just hold out a bunch of herbs and oils making promises to parents, the parents will then just take it and assume it works because whether the child consumes it or not, they will still develop anyway. Anyone who claims they know the cause and a cure are just scamming people.
This makes so much sense. AFAB folks or BIPOC individuals who get missed because they are taught to mask. Can't peddle "interventions" to those folks, or apply fear tactics to people who've largely gone unidentified by others (no matter how much they've struggled in private). They don't want to help us understand ourselves, just to commodify us.
A few observations: I wouldn't exclusively categorise autism "services" as part of this AIC thing - part of it is state services. Scientists are not exclusively sociologists. Comparing criticism of capitalism to getting a fish to think about water is too abstract. One is about economics, the other psychology. In legal terms you should be allowed to attend these "summits" because of your qualifications. There does seem to be a small amount of emotionalism in this talk. I can appreciate this is an incredibly frustrating subject but injecting that into your notes potentially reduces the professionalism here. Individual states could work with a system of qualified franchise when it comes to providing autism services, that is to say they could have for a mandatory quota for qualified professionals to legislate with regard to services and policies. Politicians have zero authority when it comes to this subject.
MrNinjaFish, This did not actually begin in 1943, it began nearly a century earlier by Francis Galton and Adolphe Quetelet. Autism, Down Syndrome, Bipolar, ADHD etc... are not legitimate 'disorders'. They were all created by humans in the process sociologists call socialisation. If all of these are biological, why is there nothing biological included in the diagnostic criteria, but just a list of behaviors society dislikes? I'm pleased to see I am not the only one who sees a problem with the lack of scientific validity and excess of social biases in the DSM. To support this further, what else could of caused homosexuality and left-handed people to be placed in the DSM, at the time they were socially undesirable behaviors. I assume you know The Neurodiversity Movement is political. Typical vs Atypical Neurotypical vs Neurodivergent Both are entirely parallel, today's pathology/psychiatry is not scientific, it is socially political. Today's pathology/psychiatry is the result of a political movement called the racist Eugenics Movement that even lead to World War 2 by Francis Galton popularising eugenics. Francis Galton was the first to apply statistics to humans. Average = Normal = Social All three are directly linked confirmed by "Normative Social Influence" in conformity. How is it possible to go from about 80 disorders to 300+ disorders in less than one century? That is too fast to be evolution. Because of the delusional belief humans are "genetically deterministic" society has simply blamed the behaviours it dislikes to genes to produce the excuse to continue discriminatory eugenics in biotechnology. People born in December are 39% more likely to be diagnosed with ADHD and put on medication. The prescription records of nearly 1,000,000 school children were assessed, and those born in December were as I said 39% more likely to be diagnosed, what's the reason? They entered the same school grade at the same time as their January counter-parts, they were not medicated or diagnosed because of ADHD, but because they were naturally 11 months behind in brain development which is not enough time for self-regulation and attention brain circuits to mature. Children are being misdiagnosed and mismedicated as a result of socialisation. I don't see it as a coincidence all these 'disorders' were identified during The Eugenics Movement. Pathology/psychiatry lost their scientific validity in the 19th century.
@@autisticdan6151 Is it not a biological difference if autistic people have different neural wiring though? Yes the neurodiversity stuff segregates neurodivergient people from the rest of society. I was actually surprised to hear that Dr. Tony Attwood (leading expert on autism) disagrees with how the DSM removed Aspergers as a separate diagnosis from Autism Spectrum Disorders. Society needs to regulate certain behaviours to function properly, this has been the case well before eugenics. Autism is wrongfully seen as a problem that is true. Let's assume two hypothetical scenarios: autism being caused by something and autism being hereditary or genetic. If the former is true then clearly there are anomalies within our material and economic systems that need to be rectified. If only the latter is true and isn't associated with purely material causes then autism and other disorders clearly mean something more. Could you provide a source for your ADHD claims?
why bother to limit your involvement in in certain projects given how loose and broad the label 'autism' has become and the lack of real diagnosis never mind the advent of crazy self diagnosis - its completely out of control so now everyone and their dog might be labelled or self labelling with autism -its almost meaningless.
I knew I wasn’t over the top. I raised a son with an autism diagnosis. He is 18 years old and over the years, I saw how funding, meds, therapies etc were barely existing to now it’s everywhere. I would like to see this conversation elaborate a bit more on the intersectionality of autism and the communities of minorities and poverty
Required watching! JULY 2022 -- I am putting together a lay-person blog post to disseminate your tireless work. I am so excited that the book is arriving in 2 days. It is high time that the festering wound of capitalistic exploitation of a large minority group is dissolved with expertise. This book is a major step in the right direction. #banABA
One of the best videos ever! Thanks for the excellent presentation.
Nice video. I am mother of one nice 13 years old autistic daughter. We live in Serbia and my daughter attends the nearest regular School for all children. Her friends and teachers are very nice. I think the best ,, treatment " for her is inclusion , having friends and doing things which she likes with her friends. ❤️❤️❤️
The best treatment is to eliminate what is stressing her brain and immune system and let your daughter integrate and be like any other child and be able to do what others able to do.
As a former interventionist who has worked in the “field”, I then became a parent. When my daughter started showing signs, I then witnessed the pitfalls of the current referral and health care system to identify environmental and health issues that result in autistic behaviors in the first place. It was then I became aware of not only the dark “industry” (from autistic voices) but ALSO: the fact that there seems to be a purposeful attempt to intentionally increase autism in society specifically for profit… this is a disturbing system which must be confronted and discussed.
Excellent discussion!
19:20 “ valuing” autistic people
Also also, the worry about kids not having a typical life comes from trying to conform autistic people to the capitalist experience even outside of the autism industrial complex. There should be more financial supports for EVERYONE, not just autistic folks, such as universal basic income.
But this won't likely happen, because thats "cost" and not "profit". Even if the cost is worthwhile. All this fear about the cost, without any mention of how it would be worth it.
You must realize, however, that a universal basic income would do nothing. It would be a net zero. If you give everyone $500, then it becomes meaningless because everyone has it. Companies would recognize this and raise their prices. All it would do would create inflation, which would hurt the people who actually rightfully EARNED money by contributing value to society.
I am not for supporting companies that don't serve human well-being over profits, such as this video outlines, but taking it so far as to advocate for a UBA is overly far-fetched and unproductive.
@@cameronmcgehee Well, if it is okay with you if I think out loud, then I would say that you could also see as a way to diminish the financial burden on a country's system. If you don't have to administer many different programs that employ many different people who assess - often on a basis of "targets" or other negative internal policies rather than on people's needs and often not hampered by much actual knowledge, by which I mean that many terminally ill cancer patients may not look that ill to lay people, that pain is not visible, that anything that women say and that non-whites say is often dismissed etc - then you free up a ton of money that could be put to better use than in fighting for example legal appeals against illegal benefits cuts by people who are not considered ill enough or who are considered to "dumb" to be able to fight back.
There are experiments with UBA all over the world.
It simply makes plain sense, from a humanitarian perspective. I see it as something that advanced societies would do.
I am in a country in which tens of thousands of people die every winter as a result of being unable to afford heating their homes - far more than in countries with cold climates. This has been the case for a long time and yet, people are now talking about the energy price crisis in the UK as if this winter would be the first time that this might happen. The income inequality here is of a shocking level, with around one third of the population in poverty and many not even able to afford the bare basics.
UBA might help even out such appalling disparities.
Do you really think that companies who are seeing more people buy good food, clothes and furniture because they can now finally afford it would raise their prices so that fewer people could afford their products?
@@angelinasouren Yes, prices absolutely would increase. This is simple supply and demand. Have you ever owned and operated a business?
@@cameronmcgehee 🤣
The fundamental problem with recognising autism as objective is that as long as it exists, so too shall the AIC. And there are always ways in which the AIC reduces autistics to philosophical zombies, as behavioural zombies are what ABA therapy truly creates; it builds those from soulless zombies, at least in the nefarious minds of Skinner, Kanner, Bleuler, and other pioneers of this horrible therapy.
Amazing video!!!!
these labels are also tied to tangible benefits or what I think of scraps from the table that keep people gasping just above the water line in the utterly disordered school, work place, home all driven by the broader cultural disorders of the political and economic systems all turned inside out into persona disorder for profit.
What does she do with the proceeds from this book?
How much do you think royalties are in the US? We're not writing about magic wizards in a fairy-tale land, so no dental implants for us autistic researchers.
Abigail Campbell,
If you haven't read her book I do recommend it.
Have you ever heard of the Nemechek Protocol?
Nemechek is just another person playing a scam and numerous people are taking the bait, he claims he knows the cause of autism, he claims he can cure autism, and he claims that genetics have no association with autism.
Anyone can just hold out a bunch of herbs and oils making promises to parents, the parents will then just take it and assume it works because whether the child consumes it or not, they will still develop anyway.
Anyone who claims they know the cause and a cure are just scamming people.
15:50 commodification
This makes so much sense. AFAB folks or BIPOC individuals who get missed because they are taught to mask. Can't peddle "interventions" to those folks, or apply fear tactics to people who've largely gone unidentified by others (no matter how much they've struggled in private). They don't want to help us understand ourselves, just to commodify us.
Also, Q&A made me tear up a bit. Including autistic voices will absolutely help to shape this for the better. I am greatful for these discussions
I am a fellow victim of the AIC out for revenge.
28:30 ideas of aic
I don't get it. Should I not trust my therapist and neuropsychology tests?
nope, its a money making fad - search for psychiatrist free version of a book called insane medicine by Sami Timimi.
25:00 AIC
21:50 autism within capitalism
A few observations:
I wouldn't exclusively categorise autism "services" as part of this AIC thing - part of it is state services.
Scientists are not exclusively sociologists.
Comparing criticism of capitalism to getting a fish to think about water is too abstract. One is about economics, the other psychology.
In legal terms you should be allowed to attend these "summits" because of your qualifications.
There does seem to be a small amount of emotionalism in this talk. I can appreciate this is an incredibly frustrating subject but injecting that into your notes potentially reduces the professionalism here.
Individual states could work with a system of qualified franchise when it comes to providing autism services, that is to say they could have for a mandatory quota for qualified professionals to legislate with regard to services and policies. Politicians have zero authority when it comes to this subject.
MrNinjaFish,
This did not actually begin in 1943, it began nearly a century earlier by Francis Galton and Adolphe Quetelet. Autism, Down Syndrome, Bipolar, ADHD etc... are not legitimate 'disorders'. They were all created by humans in the process sociologists call socialisation.
If all of these are biological, why is there nothing biological included in the diagnostic criteria, but just a list of behaviors society dislikes?
I'm pleased to see I am not the only one who sees a problem with the lack of scientific validity and excess of social biases in the DSM. To support this further, what else could of caused homosexuality and left-handed people to be placed in the DSM, at the time they were socially undesirable behaviors.
I assume you know The Neurodiversity Movement is political.
Typical vs Atypical
Neurotypical vs Neurodivergent
Both are entirely parallel, today's pathology/psychiatry is not scientific, it is socially political.
Today's pathology/psychiatry is the result of a political movement called the racist Eugenics Movement that even lead to World War 2 by Francis Galton popularising eugenics.
Francis Galton was the first to apply statistics to humans.
Average = Normal = Social
All three are directly linked confirmed by "Normative Social Influence" in conformity.
How is it possible to go from about 80 disorders to 300+ disorders in less than one century? That is too fast to be evolution. Because of the delusional belief humans are "genetically deterministic" society has simply blamed the behaviours it dislikes to genes to produce the excuse to continue discriminatory eugenics in biotechnology.
People born in December are 39% more likely to be diagnosed with ADHD and put on medication. The prescription records of nearly 1,000,000 school children were assessed, and those born in December were as I said 39% more likely to be diagnosed, what's the reason?
They entered the same school grade at the same time as their January counter-parts, they were not medicated or diagnosed because of ADHD, but because they were naturally 11 months behind in brain development which is not enough time for self-regulation and attention brain circuits to mature. Children are being misdiagnosed and mismedicated as a result of socialisation.
I don't see it as a coincidence all these 'disorders' were identified during The Eugenics Movement. Pathology/psychiatry lost their scientific validity in the 19th century.
@@autisticdan6151 Is it not a biological difference if autistic people have different neural wiring though?
Yes the neurodiversity stuff segregates neurodivergient people from the rest of society.
I was actually surprised to hear that Dr. Tony Attwood (leading expert on autism) disagrees with how the DSM removed Aspergers as a separate diagnosis from Autism Spectrum Disorders.
Society needs to regulate certain behaviours to function properly, this has been the case well before eugenics. Autism is wrongfully seen as a problem that is true.
Let's assume two hypothetical scenarios: autism being caused by something and autism being hereditary or genetic. If the former is true then clearly there are anomalies within our material and economic systems that need to be rectified. If only the latter is true and isn't associated with purely material causes then autism and other disorders clearly mean something more.
Could you provide a source for your ADHD claims?
why bother to limit your involvement in in certain projects given how loose and broad the label 'autism' has become and the lack of real diagnosis never mind the advent of crazy self diagnosis - its completely out of control so now everyone and their dog might be labelled or self labelling with autism -its almost meaningless.