Thank you this was very helpful Dr MacKay. I am in Canada and on a waiting list for a specialist, by doing my own research have been able to realize that what I am going through is all part of Me/CFS , Fibromyalgia which I was diagnosed first. I actually felt the ME creeping in as the heaviness I first felt in my shoulders start to creep down my arms and legs. Now it's an effort to use my arms at times I am hoping it will be a slow process. I spent a day in Dunedin and enjoyed it very much especially Cadbury 's , I found a Rum and Raisin bar that I had not tasted since I left Ireland. Many Thanks.
I found the model presented by Dr MacKay made a lot of sense to me. I was diagnosed with CFS in 2007. Like Dr MacKay I led a very active life, competing in triathlons and off road running events, plus working, being a Mum and organising community triathlon events. I had glandular fever in my last year at university. Before being diagnosed with CFS, I was presenting with what seemed like a chronic allergic reaction potentially from chemical exposure. Fast track to 2020 and I had a fall accident resulting in a dislocated fractured ankle. After slow recovery and meeting the Budapest criteria I was diagnosed with Complex Regional Pain Syndrome (CRPS). I have often asked medical specialists over the past 3yrs, "Do you think having a CFS diagnosis made me a sitting duck for CRPS"? Quite possible would be the reply. Some of the theories regarding CRPS are similar to CFS - neuroimmune in origin and involvement of glial cells. LDN is a treatment being trialled for CRPS. So a lot of similarities - maybe I was predisposed to developing these conditions. I wish you well with future research and would be happy to participate in any future studies.
Thank you this was very helpful Dr MacKay. I am in Canada and on a waiting list for a specialist, by doing my own research have been able to realize that what I am going through is all part of Me/CFS , Fibromyalgia which I was diagnosed first. I actually felt the ME creeping in as the heaviness I first felt in my shoulders start to creep down my arms and legs. Now it's an effort to use my arms at times I am hoping it will be a slow process.
I spent a day in Dunedin and enjoyed it very much especially Cadbury 's , I found a Rum and Raisin bar that I had not tasted since I left Ireland. Many Thanks.
I found the model presented by Dr MacKay made a lot of sense to me. I was diagnosed with CFS in 2007. Like Dr MacKay I led a very active life, competing in triathlons and off road running events, plus working, being a Mum and organising community triathlon events. I had glandular fever in my last year at university. Before being diagnosed with CFS, I was presenting with what seemed like a chronic allergic reaction potentially from chemical exposure. Fast track to 2020 and I had a fall accident resulting in a dislocated fractured ankle. After slow recovery and meeting the Budapest criteria I was diagnosed with Complex Regional Pain Syndrome (CRPS). I have often asked medical specialists over the past 3yrs, "Do you think having a CFS diagnosis made me a sitting duck for CRPS"? Quite possible would be the reply. Some of the theories regarding CRPS are similar to CFS - neuroimmune in origin and involvement of glial cells. LDN is a treatment being trialled for CRPS. So a lot of similarities - maybe I was predisposed to developing these conditions. I wish you well with future research and would be happy to participate in any future studies.
Awesome, your model fits so well with me too.