Leigh's disease.Palliative Care/Learning about palliative care and the difference it can make.

"I learned about palliative care and I thought, that's exactly what we need." • Leigh's disease.Pallia...
The mother and father of a 5-year old with Leigh's Disease, a mitochondrial condition, share how they learned about palliative care from Courageous Parents Network, sought it out for their daughter, and the difference it has already made in how they feel about the care she is receiving, including during a medical crisis. If your child has Leigh's disease or another pediatric life threatening illness, these parents share their perspective which may help you find your way. Visit www.courageousparentsnetwork.org to see more videos.