What a beautiful family, May God Bless the parents, in reading the comments I realize Maizie has passed. I understand some of the things this family has gone thru. My son was 17 when he was diagnosed with Leigh Syndrome. My son is now 33. It is a difficult journey but I believe parents with children with lifelong diseases are chosen for this. M
I thought they lived in Toronto, Canada and that all medical healthcare is free. But from the way the mother speaks about the medical expenses I am surprised.
We live in Moncton New Brunswick. Being seen by a doctor is free (we pay though federal taxes) however all of the other expenses are not (ie; medical equipment, support care worker, medical trips, certain medications that are not covered, transport, parking ect)
@@amandashea1176 Wow thanks for explaining all of that. I just thought that you can just decide you want to go to the doctor and just go! And get everything from A to Z just because everything is FREE FREE FREE!!!
The mum said they flew home in a private jet because of the plastic tunnel (missile). Private jets cost $100, 000 - $300, 000 (hundreds of THOUSANDS $$) per trip. That’s outrageous. I’m certainly grateful to Canada for providing opportunity to save a human life, if the parents (&/or family & friends) are able, willing & capable to work at it. I wouldn’t want any parent to be refused medical service especially the way they refused my sick newborn child in 2002.
What a beautiful family, May God Bless the parents, in reading the comments I realize Maizie has passed. I understand some of the things this family has gone thru. My son was 17 when he was diagnosed with Leigh Syndrome. My son is now 33. It is a difficult journey but I believe parents with children with lifelong diseases are chosen for this. M
Hope she is doing well... 4 years on. ❤
What a beautiful story of a beautiful little girl and her family. Thank you for sharing Maizie's life with us Amanda.
Love
Beautiful story of an exceptional family💜
Sending love & prayers to you, your husband & your beautiful little Maizie Rae.
She is beautiful little girl
Maybe a vegan diet during pregnancy isn't a good idea ?
I thought they lived in Toronto, Canada and that all medical healthcare is free. But from the way the mother speaks about the medical expenses I am surprised.
We live in Moncton New Brunswick. Being seen by a doctor is free (we pay though federal taxes) however all of the other expenses are not (ie; medical equipment, support care worker, medical trips, certain medications that are not covered, transport, parking ect)
@@amandashea1176 Wow thanks for explaining all of that. I just thought that you can just decide you want to go to the doctor and just go! And get everything from A to Z just because everything is FREE FREE FREE!!!
@@amandashea1176 so sorry you lost your little sweetheart , she was adorable.
The mum said they flew home in a private jet because of the plastic tunnel (missile). Private jets cost $100, 000 - $300, 000 (hundreds of THOUSANDS $$) per trip. That’s outrageous. I’m certainly grateful to Canada for providing opportunity to save a human life, if the parents (&/or family & friends) are able, willing & capable to work at it. I wouldn’t want any parent to be refused medical service especially the way they refused my sick newborn child in 2002.
How old was she when she passed away. Thanks
Maizie passed away June 2021 (She was just shy of her 5th birthday)
@@amandashea1176I am so sorry to hear. I hope you and your husband are doing OK. Since condolences 😢❤
Sadly she passed away in July of 2021 👼
My niece also had same disease and passed away in 2021.She was 3 years old:(
Oh that is just just so sad for all of you. 😢@lela8081