My PCP, whom I've seen for 2 decades, has been very supportive of my struggle with ME and guiding any possible treatments that might provide some relief. After my last visit, she started to recommend "forced excercise" (I had to ask what that even meant) and even after I raised PEM as a hallmark of this illness (and for me in particular) she urged me to do 20 minutes every day. It has unfortunately changed my relationship with her and how I will relate to her, and altered my trust in how she actually understands my condition. Thank you for this.
My PCP, whom I've seen for 2 decades, has been very supportive of my struggle with ME and guiding any possible treatments that might provide some relief. After my last visit, she started to recommend "forced excercise" (I had to ask what that even meant) and even after I raised PEM as a hallmark of this illness (and for me in particular) she urged me to do 20 minutes every day. It has unfortunately changed my relationship with her and how I will relate to her, and altered my trust in how she actually understands my condition. Thank you for this.
Sick since 1982. No support in spite of detailed diagnosis.