Seriously, for me, nobody out there I've heard can begin to explain all these concepts like Dr Bateman. Another job well done. I don't even have a sleep schedule ... Indeed, it took me from my very abrupt onset on 5/11/04, "the day I woke up but couldn't wake up," till my daughter's wedding in 2007 to even figure out what PEM was for me. I came home from a weekend of my husband driving us to the wedding, relaxing in a hotel and sitting around socializing at the wedding to just crashing in bed at home and wondering how I could feel depressed from having a nice relaxed weekend. It was only then that the enormity of PEM really hit me. And funny thing, I really don't even get depressed ...
My PCP, whom I've seen for 2 decades, has been very supportive of my struggle with ME and guiding any possible treatments that might provide some relief. After my last visit, she started to recommend "forced excercise" (I had to ask what that even meant) and even after I raised PEM as a hallmark of this illness (and for me in particular) she urged me to do 20 minutes every day. It has unfortunately changed my relationship with her and how I will relate to her, and altered my trust in how she actually understands my condition. Thank you for this.
Seriously, for me, nobody out there I've heard can begin to explain all these concepts like Dr Bateman. Another job well done.
I don't even have a sleep schedule ...
Indeed, it took me from my very abrupt onset on 5/11/04, "the day I woke up but couldn't wake up," till my daughter's wedding in 2007 to even figure out what PEM was for me.
I came home from a weekend of my husband driving us to the wedding, relaxing in a hotel and sitting around socializing at the wedding to just crashing in bed at home and wondering how I could feel depressed from having a nice relaxed weekend.
It was only then that the enormity of PEM really hit me. And funny thing, I really don't even get depressed ...
Sick since 1982. No support in spite of detailed diagnosis.
My PCP, whom I've seen for 2 decades, has been very supportive of my struggle with ME and guiding any possible treatments that might provide some relief. After my last visit, she started to recommend "forced excercise" (I had to ask what that even meant) and even after I raised PEM as a hallmark of this illness (and for me in particular) she urged me to do 20 minutes every day. It has unfortunately changed my relationship with her and how I will relate to her, and altered my trust in how she actually understands my condition. Thank you for this.