Видео

In a world-first discovery, Griffith University researchers have discovered faulty cell function in veterans suffering from Gulf War Illness (GWI), also known as Gulf War Syndrome (GWS), is likely caused by intense exposure to hazardous biological and chemical agents during war service. The landmark research, published in PLOS ONE, solves a mystery that has baffled medical scientists for decades. Trying to spread the word for my brothers and sisters.

Omg Haylie stop interupting and the uh huhs and oh yeahs etc. We are trying to listen to the professional but you gotta keep getting your 2 cents in. Your audience gets triggered by over stimulation and there you are over stimulating us with the interuptions.

Learn more about INIM’s Research Studies: www.nova.edu/nim/research-studies/index.html

Insurance is allowed to dictate care, rather than critical thinking. This is why so many docs are breaking off & offering concierge services. Unfortunately, you still need insurance coverage for unseen circumstances & concierge fees don’t count toward the insane deductibles. There is no set deductible or cap on out if network expenditures, even when you can’t find services within the network. That’s why you now have “clubs” and “discounts” for businesses that want referrals from insurance companies, but aren’t an included benefit for anyone except maybe gold plans.

All of this is covered and most descriptive under CFS/ME. YOU WILL KNOW THE DIFFERENCE between the feel of normal 😅tiredness, exhaustion,

People are too ignorant to understand our suffering. They can't relate to something they haven't experienced first hand

I am a lifelong athlete who has had covid 3 times, and I have developed terrible PEM. I am contemplating trying a 3-5 day water fast as I just don’t know how to get rid of it.

❤

I was diagnosed in 2005 with Systemic Mastocytosis. Bone marrow biopsy and Tryptase serum level of 32. Now in 2024 I literally can’t go outdoors on a very warm/hot days my #1 trigger is too warm of a small Doctors office, my car is cooling inside before I get in to drive on a hot day. Early mornings work for a quick trip to the grocery store. I am 63 and my bone pain and tension headaches are intolerable most days. OTC doesn’t help/work for me. I will take a few Tylenol maybe 2x a week. I have been using n Ibuprofen and Acetaminophen for years and I want to help my liver to not fail. 25 years of OTC is a long time. People do tend to not really listen or they get bored quickly if I mention I am having a flare or my flushing starts with face and travels all over my body. Sure Benadryl helps if I carry it with me. My own family acts like I’m a burden. It’s nice when someone I know says have a good day and they look at me when they say it.

The Sick 'Care' system is sooooooooo FUBAR and corrupt, there are noooooo words to adequately express it.

I’ll have to STRONGLY disagree with “they’re actually pretty easy to test for”. If she means go to Quest, get blood drawn for EBV testing and see numbers, then yes. Agreed. But THAT is NOT a diagnosis. The Dr. must actually KNOW how to INTERPRET the resultant labwork. They don’t. Unless you can pay a functional medicine Dr. 💰. I have spent over a YEAR in seriously rapid declining health causing me to go from landscaping and hiking to wheelchair with head on chest/bedridden. Literally. Too many symptoms to list. All of which correlate exactly with EBV reactivation which I told Dr.s (a YEAR ago) I suspected was likely triggered by tickborne illness and extreme exposure to dangerous levels of mold. Either one of which can cause same symptoms, but also “wake up” reactivate sleeping EBV!! I was TOTALLY dismissed by every specialist and told “your labs are all negative for everything”. Now that I am near death, not exaggerating, ive recently double-checked lab results. Something it never occurred to me to do, bc I’M the patient! Only to discover ALL EBV reactivation was labeled “negative”, when I am off the charts POSITIVE bc they have zero idea how to interpret the EXTREMELY COMPLEX test results, which must be checked every few weeks bc they’re changing that quickly as the virus moves through stages!! If you do some research you will know what I’m talking about! Published journals are sparse on this complex subject. Thank God Dr. Been has an EBV Serology video 30 mins in, he explains- so “willing dr.s” can learn how to NOT KILL PATIENTS with their ignorance. Also Dr. Jin Sung has 5 min video on reactivation EBV. Quick and easy. VCA-IgM is only present first 4-6 weeks and then DISAPPEARS!!! Most ppl won’t even get checked before it’s gone but the REST must be interpreted properly. They are ignored as soon as Dr.s see-no VCA-IgM!!! They also hadn’t even tested the Early Antigen IgG!!! which is necessary To confirm REACTIVATION!! This includes 3 Infectious Disease “doctors”! They have NO CLUE! Nor do they care. Complicating further is the numbers represent differently in ppl with compromised immune systems (like me) so if number doesn’t “look high enough” to dr. Even though it’s WAY above the range, they’ll “just decide” not to worry about it. As patient is dying in front of their eyes. Now I am late stage, blood pressure so low, nurses think the machine is broken. and hoping after I’m gone, my daughter will commit to pressuring powers that be for restructuring the protocol for interpreting REACTIVATION of EBV. And hopefully save some victims. I mean, patients.

Holism is anathema to Big Pharma, who, like it or not rules allopathic medicine with an iron fist.

Missing in the Australian system, too but at least we are highly subsidised or mostly free for consultations.

🔥

We are now in year number forty since the Incline Village incident started, without so much as a single doctor or researcher ever looking into the origin of CFS.

Seems impossible in Atlanta, Georgia area. Have not found a “system “ doctor who is willing to educate themselves at best. Worse is I have been horrifically gaslit💙

Wow you are so right! It’s so much more complicated now!

So close to figuring out that wholistic medicine is the only way to fix people.

I go for my physical every year and I get referred out for anything I mention or discuss. I literally spend several months setting up appointments then follow-ups. It’s ridiculous and I’m healthy I have no major illnesses!

Learn more about us here. Website: www.nova.edu/nim/ Facebook: facebook.com/InstituteForNeuroImmuneMedicine Instagram: instagram.com/NSU_INIM/ Twitter: twitter.com/NSU_INIM TikTok: www.tiktok.com/@nsu_inim

I do NOT get the histamine, anaphylactic, itchy part AT ALL, but so much of the rest of this adds up. I wish someone who knew what they were doing, would do all these mast cell tests on me.

what does it matter what color you are or language you speak ? If you have ME/CFS there is little to no help anyway.(regardless if you're rich or poor ) and hardly anyone gets better.

Yes, if we research everything for decades by the time, we find out that we can’t do anything because we’re so damn inept all the veterans would’ve died and then there wouldn’t be a problem to figure out.

This happens with Lyme disease that happens with herpes. People have been institutionalized when they had Lyme disease encephalitis. Inflammation of the brain is horrible I know because I have it and went on diagnosed. I had Lyme in 2002 and successfully treated in 2015. I was in a black mold building. I didn’t know that I was living in the black mold all the compromised my immune system brought out my dormant line and also brought out it just be one HSV two which I never had a single outbreak in my life until I was 55 so you’re mean system is compromised and you can’t find anything that’s in your body or that you’ve been exposed to people that Epstein bars comes back cytomegalovirus a lot of people that had Covid are getting shingles and other dormant viruses and also lotta rashes weird symptoms for tinnitus is us is unbearable 24 seven nonstop don’t damage my ears also damaged my eyes lyme is a great mimicker, MS, ALS, Parkinson’s Alzheimer’s dementia. Those are diagnoses that people get when they actually have Lyme disease or some other virus. The inflammation in the brain is unbearable. I develop sensory peripheral peripheral neuropathy have axon damage and sensory damage they’re not crazy they’re sick brain on fire, I never had Covid as far as I know never had any symptom of it. I did not take the vaccines because I am immune compromised. My any immune system is destroyed. I’m reacting to everything foods environments fragrances never had this in my life before and I can’t find anyone to help me, I also had Bell’s palsy in 2020 so that’s how I know that is the line and tested positive for Lyme

I JUST DON’T CARE ANYMORE. I will not seek out medical care any longer to try to figure out what is wrong with me and I don’t have the credit cards to do it anyway. Over 30 years of being sick. I’m done. We should be hospitalized until a diagnosis is made.

What's your craziest symptom? Anybody ever had hair follicle pain? I felt like I had scalped myself walking under a low door frame and it hurt for about three days. I didn't know it was a symptom until I was reading the seemingly endless list of symptoms sometime after it happened. I was like hey, I remember that.

The brain fog from Mast cell is hell. One min, you're okay, and the next fee, like you were thrown in A GAS CHAMBER . I'm going to die . You feel under the influence, THAT comes out of nowhere . It debilitating to be talking and forget what your saying and look stupid. The brain fog is one of the worst symptoms. Being lost in your mind is not okay . Long COVID MADE ME WORSE .

Thank you so much, Dr. Theo and patients. I wish every doctor would watch this video.

It should ONLY BE ABOUT THE SCIENCE

Patients lived experience is constantly disregarded by “doctors”.

Absolutely, trust is absolutely key for the patient and doctor

This is why I’m a Generalist Social Worker

That is because big med is all about big money. The patient is nothing more than a money grab.

Have you taken the time to ensure this long covid symptoms are not caused by the covid vaccines? So called “scientists” especially those who work for the government have been exposed for lying about the problems resulting from the vaccines use. So obviously many people do not trust the so called science anymore

did you take the jab???

Thank you so much. The Pacing advice and how to time it was just what I needed to know

Dr. Obulor thank you so much for your dedication, expertise, and positive impact on health. I am truly grateful for all you do doctor Thanks,

Dr. Obulor thank you so much for your dedication, expertise, and positive impact on health. I am truly grateful for all you do doctor Thanks,

If you're damaged by the vaccines, you don't heal. Christa l know what they did to you.

Sounds like a bunch of bullshit to me

ME/ CFS can come about with different viruses and bacteria infections, not just covid. I was diagnosed with ME/ CFS with a late diagnosis of lyme-disease. I had a positive test after 2 years of symptoms.

Remember when disabled people were treated as acceptable losses while COVID was at its peak? Now y’all know how we live. Difference is, you might actually get better

How do we fix this without having to wear a CPAP machine at night?

Donate to ME/CFS Research: givecampus.com/b3yrwb

mold is also a trigger, a scent, exercise.....outcast Mcas

LC since March 2020. So good to hear you understanding us and following the right path. Thank you for your work to help us. ❤

I had long COVID and I don't anymore because I took Rick Simpson

I have long covid, 4 yrs this coming November. Its devastating to not be able to work a job and SSDI isn't enough to live on. I have no quality of life, no energy, I am barely able to keep my apartment clean and I sleep lots, 3 or 4 hours most days with full nights sleep. My covid felt like a sinus infection with terrible fatigue. My head is messed up, can't stay focused, head aches often, memory issues. I want my life back.

I have POTS. Diagnosed by tilt table test. My symptoms started after 1st dose of vaccine. I am struggling a lot. I can't work. Nobody is helping me. They don't go in depth like you discuss here. They say drink water and salt and exercise. But you're released to just figure it out. This is horrible. Please help.

Xolair has given my life back after MCAS…I was diagnosed after colon biopsies