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Does the same apply for severe patients? What’s the difference between moderate and severe patients?

No help for ME/CFS in Mo

Excellent guest ❤ but the host with her schoolgirl gigglies,looking for validation,interrupting guest as he's explaining critical info.👎

I have learned so much from this channel and very thankful for Nova!

Learn more about us here. Website: www.nova.edu/nim/ Facebook: facebook.com/InstituteForNeuroImmuneMedicine Instagram: instagram.com/NSU_INIM/ Twitter: twitter.com/NSU_INIM

Exactly… if the bladder lining is damaged all we can do is stop introducing anything that irritates it. That’s all.

Vertical annoying interviewer

I was perfectly fit and healthy before getting Covid in March 2020. No underlying conditions, a very physical job in the fresh air, and swam 3-4 times a week. I appreciate, as stated in the video, that pre-existing conditions like diabetes would make Long Covid / CFS / PEM more likely … but for people like myself who were perfectly fit and healthy before, and there are many, that is not the case. I have spoken to fitness instructors, yoga teachers, runners, athletes, etc on Long Covid forums who were also perfectly fit and healthy pre-Covid. Mostly those who are worst affected were infected right at the start of the pandemic or within the first few months. Lots of us are now reaching the 5 year mark of illness but were perfectly healthy before. I just think this is an important point to make. It really upsets me that people with Long Covid get gaslit and “victim blamed” that “only old / ill / vulnerable” got Covid / Long Covid. The presumption being that people with Long Covid got sicker because they were previously unhealthy (therefore their fault). It’s simply not true! 😞

I so wish you’d spoken of what MCA is…

Very useful information sir Jazakumullah o ahsanaljaza

I want to participate in a study, but live in Munich. Can you provide me with information if there's some possibility?

CBT does NOT cure - the debunking of the Pace Trial proved this. Biomedical research of which there's no mention here is the only way forward.

I am anaphylactic to gluten as well as my daughter. There are gluten free bread but is really expensive $10 a loaf and they are tiny!

Mam it causes auto immune disorders.I had me fully vaccinated three years ago, within few months my hair fall started, i also saw something like flakes and dead skin build on my chin and moustache area ( it seems like psoriasis or seboric dermatitis) which is also reduced to an extent now, after which my fingers swelling happened, after this one midnight the left side of my left eye became red and itchy, finger swelling and red eye went away after some time, then after few months I developed cheilitis and the oral mucosa also became inflammed and peeling started on lips and mouth inflammation in mild now but lip inflammation and thick scaly peeling is not over yet . I think the vaccine triggered some kind of auto immune response . Help me please please. What can I do now

Mam it causes auto immune disorders.I had me fully vaccinated three years ago, within few months my hair fall started, i also saw something like flakes and dead skin build on my chin and moustache area ( it seems like psoriasis or seboric dermatitis) which is also reduced to an extent now, after which my fingers swelling happened, after this one midnight the left side of my left eye became red and itchy, finger swelling and red eye went away after some time, then after few months I developed cheilitis and the oral mucosa also became inflammed and peeling started on lips and mouth inflammation in mild now but lip inflammation and thick scaly peeling is not over yet . I think the vaccine triggered some kind of auto immune response . Help me please please. What can I do now

I had a CPET last year, showed some high veinous O2. Still cant tolerate much exercise or work but I try.

What type of muscle biopsy should we be doing? I see Dr Kaufman.

My herpes is gone, the stigma and low self-esteem is gone too.i feel better now all thanks to doc oromi on RUclips channel”

Keep the hope alive! I'm 33 years in ME/CFS & have had large variations over time. It's strange that I can have an awful symptom Ive had for years dissappear almost overnight and a new one start the same way. It makes me think there are switches that can be turned on and off. We just need more funding and wonderful docs to find them.

Long ago getting shots was the source of all this I bet

ME/CFS x16 years, MD/DPM here, finally seeing improvement on pentoxifylline, which suggests it's not the vasculature, it's the stiffened RBCs that Dr. Ron Davis recognized in his lab. Please, investigate PTX. Find a way to contact me, and I will describe sequence of clinical improvements over time.

Nothing will save us right ….. ??

Individualized treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is essential due to the complex and varied nature of the condition. ME/CFS is a multi-symptom disorder that affects a person's energy levels, sleep patterns, cognition, and general physical function, and it presents differently in each individual. This necessitates a tailored approach to management, one that takes into account the wide array of symptoms and the unique needs of each patient. The primary goals of treatment are symptom management, improving quality of life, and minimizing functional limitations. A patient-centered approach to ME/CFS is crucial. An individualized treatment plan should be centered around the patient, considering their specific symptom profile, lifestyle, and medical history. Since there is no single cause for ME/CFS, and its manifestations can vary greatly, it's important for treatment strategies to address each person's unique presentation of the illness. A collaborative relationship between the patient and healthcare providers is essential for developing an effective plan. This relationship allows for the identification of the most troublesome symptoms, helps to track disease progression, and enables the patient to feel involved in their care decisions. Symptom-based interventions are key. Common symptoms include chronic fatigue, sleep disturbances, pain, cognitive impairment (often referred to as "brain fog"), and orthostatic intolerance (difficulty standing upright without dizziness or fainting). Fatigue management is vital. Tailored strategies for energy conservation are important. Patients often benefit from learning techniques to pace themselves, avoid overexertion, and balance activity with rest. This helps prevent post-exertional malaise (PEM), a hallmark of ME/CFS where symptoms worsen following physical or mental exertion. Pain relief strategies vary. For those experiencing widespread pain, treatment may include non-steroidal anti-inflammatory drugs (NSAIDs), or in some cases, prescription medications for neuropathic pain, such as gabapentin or amitriptyline. Low-dose antidepressants can also be useful, particularly if there are concurrent mood disturbances. Sleep improvement is another focus, as sleep disorders are common in ME/CFS and often include difficulties falling asleep, staying asleep, or experiencing restorative sleep. Cognitive-behavioral therapy for insomnia (CBT-I) can be effective, as well as pharmacologic treatments such as low doses of sedating antihistamines or medications like trazodone or melatonin. Cognitive impairment is often addressed with cognitive rehabilitation and strategies to improve memory and focus. In some cases, medications that impact cognitive function, such as modafinil (for daytime alertness), may be used, though their effectiveness can vary. A multidisciplinary care approach works best for managing ME/CFS. This involves specialists in various fields to address the diverse aspects of the illness. General practitioners (GPs) oversee overall care and coordinate with specialists. Neurologists manage issues like brain fog and cognitive impairment, sleep specialists treat sleep disorders, pain management specialists address chronic pain, psychologists or therapists offer cognitive-behavioral therapy (CBT) and counseling, and physical therapists help with mobility, balance, and gradual rehabilitation without exacerbating symptoms. Pharmacological treatments are sometimes used, though no specific drug is universally effective for ME/CFS. Certain medications can help alleviate symptoms and improve quality of life. Antidepressants, while primarily used for mood disorders, can also help alleviate pain, improve sleep, and address fatigue. These are typically used cautiously to avoid exacerbating symptoms. For orthostatic intolerance, medications such as beta-blockers (to reduce dizziness) and fludrocortisone (to increase blood volume) may be prescribed. Though there is no definitive evidence to support the use of antivirals or antibiotics in ME/CFS, they may be considered if there is an underlying infection contributing to symptoms. Lifestyle adjustments are also essential in managing ME/CFS. Dietary modifications, such as a balanced diet rich in antioxidants, vitamins, and minerals, can support overall health and help with symptom management. In some cases, specific dietary restrictions may be recommended to address gastrointestinal symptoms, which are common in ME/CFS patients. Physical activity and exercise can be a crucial part of treatment. While it may seem counterintuitive, a carefully managed exercise program designed by a specialist can improve strength and endurance over time. The focus should be on low-intensity, gradual activity, with frequent rest periods to avoid triggering PEM. Mind-body techniques like yoga, mindfulness meditation, and breathing exercises have been shown to improve symptom management and reduce stress levels, which can exacerbate ME/CFS symptoms. There are several challenges in providing individualized treatment for ME/CFS. One of the primary difficulties is the lack of a definitive diagnostic test for the condition, which means that it is often diagnosed by exclusion. Furthermore, the cause of ME/CFS is still not fully understood, which limits the ability to develop targeted therapies. The subjective nature of many symptoms-especially fatigue, pain, and cognitive impairment-can make it difficult to quantify the severity of the disease and monitor progress, creating challenges in assessing the effectiveness of various treatment modalities. In resource-limited settings, there may be additional barriers to care, such as limited access to specialists, diagnostic tools, and advanced treatment options. The management of ME/CFS in these settings may rely heavily on symptom control and basic supportive care, and healthcare systems in low-income regions may lack the resources to implement comprehensive care models. Individualized treatment for ME/CFS requires a holistic and flexible approach to care, focusing on the unique needs of each patient. Although there is no one-size-fits-all treatment, with careful symptom management, collaborative care, and patient-centered strategies, many individuals with ME/CFS can experience improved quality of life. However, continued research is necessary to understand the root causes of the condition and develop more effective and targeted treatments.

I'm not sure if we're talking about the same thing here, but there's a study released in January 2024, called "Muscle abnormalities worsen after post-exertional malaise in long COVID", which can be found by googling the title. They looked at muscle biopsies and found that perfusion wasn't the issue in these muscle abnormalities when experiencing PEM

Stop talking about make believe nonsense. No one is buying it. You might as well be talking about elves and unicorns.

What a great phrase! Immune muck up!

Spot on.

Thankyou.

About to hit my 3 year ME/CFS mark, starting to think improvement is out of the cards :/ yes, the research is improving but there's not real treatments yet

Solution ?

This is so simply said. Thank you for your work and giving me hope of getting out of this bed someday. Just wish I could find a doctor like you❤

That was uninformative

Yes, protecting people from jab damage is invaluable

I am so excited for a cure to come as I dream of going skiing again. Have you any advice/tips in what I can do to improve.

Long covid is only for the ones who took the shots.

Have you posts the full interview that this is from? Which video it is?

I had Covid twice in 2023. The one thing that I believe that has helped me is taking NAC every day. I wasn’t able to take regular NAC. It made me feel light headed and like I was going to pass out. So with further research, my daughter pointed me in the direction of Augmented NAC. It’s expensive and only available from a pharmacy in NYC, but I feel it is worth it. I’m 74 years old.

Dr Klimas is 100% on track. I wish she was my doctor.

No such thing ,and what about the stress to your system from the evil JibJab we know lady we know and were coming for yous

Might be nice if you mentioned what the hell she is talking about.

Unbelievable HSV1&2 is curable with natural herbs, its Very informative page for every person who want to get cured, Drapalahealing on RUclips has be found the real & legit herbal Doctor he cured my HSV. All given information are highly recommended……

So it's all "maybe" and "maybes" we're of hypothesis we need a solid solution asap !

Thanks for the discussion

❤

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Why aren't there more views in this channel? Such important info!

I couldnt follow interview because she kept interrupting

Vision problems, did anyone experience along with other symptoms?😢

Wow. Such a great video! I have been in the same boat plus having retinal vein occlusion! The symptoms are sometimes unbearable 😢 from now on I will try luteolin and quercetine and other medications

PS: I’m a PGWV wGWI