Constantly on High Alert | Autism Sibling Aggression + Pica Scare
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- Опубликовано: 21 авг 2024
- Some days are full of small stressful moments that add up to a burnt out momma needing a break 🫣
#autismmom #autismfamily
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Hi Sebastian! I know exactly how you feel. Long story short. I saw my daughter in line for school dismissal, 5 seconds later, teacher runs to me because they lost my daughter. She’s 5 and autistic, my heart sank and I ran towards the front of the school. She had followed a parent across the street 2 houses down. I literally lived my worst nightmare. I like you telling the truth, it’s life real life. Sometimes I feel so alone and stressed out.
Omg that’s terrifying!! I’m so sorry that happened! Glad everything turned out okay but omg the horror 😰 I know what you mean, this day I just busted out crying from the stress. Releasing the stress that way helps me let go and have a better remainder of the day 💙
I completely agree with you . I cried for 3 days but it does help to cry it out.
Ladies you are not alone ! Praying for both your babies 😢
Man some days it comes down to just keeping everyone safe and that’s a win
I love your channel, you explain everything the good and the bad I love that because it’s not always unicorns and rainbows, life is hard, you are a great mom, you know exactly what each of your kids need, sending you hugs👍👍❤️❤️
🫶🫶
I know the feeling! Homeschooling, speech,OT and just life in general is so stressful!! You are doing great job momma!!! I take it day by day and just try to survive!!
Thank you! I can totally relate. We do what we have to do for our special kids, we need to try to rest when we can☺️
Hi Sebastian !,
I want you to know that I myself live with Autism Spectrum Disorder too and as much as I get hyper occasionally to make a long story short I have had those occasions where I have gotten negatively hyper even though I try to be positive and bring light with my hyper and My Immediate Family had to deal with some of those things that you are seeing your son do but the difference is that even when I expressed myself and tell them no, etc. when they cross that line with me and did things that I did not like or forced me into things that did not work with me My Immediate Family had to deal with some aggression too. They did not listen to me occasionally.
They were not ready to live with and deal with a disabled sibling and they had to learn the ropes and to deal with it the hard way.
Fortunately I always had that menu of options in me like warning them or making it into a joke before I get aggressive and disruptive.
Today, even though half of My Immediate Family is now long passed away My Immediate Family (specifically My Mother) has come around like BIG TIME and they have learned to listen to me more and try to make ways to avoid those triggers.
However, It is a whole different ball of wax to have your sibling live with Autism Spectrum Disorder and be non verbal on top of it because there is less of that menu of options to choose from to express themselves before they get to aggression or disruption.
God Bless You times infinity for hanging in there with him and enduring with him because for you the parent it is like trying to walk safely in a dark room and not be able to see what is in that room in having when it comes to learning the ropes without your son being able to tell you anything.
And as much as I would usually be afraid to say anything about this I have on what used to be sometimes but now on more rare occasions bitten on myself too.
Believe it or not so please don't feel alone. I don't want your son to ever feel like he is alone in this.
Keep working with him and learning from him because you are bringing yourself closer to more of a future of light with him.
Trust me. Again, I am Autistic Myself and My Mother had to endure things with me and now My Mother and I to make a long story short life cannot be better than it is now.
Keep Hope Alive !,
- Dwight
I’m so happy to hear with time things have gotten better! I hope for all the best for all of us autism families. I would love to know all the things my son can’t tell me, I will continue with love and patience ❤️
Both ur Boys are beautiful hope everything get more easier it will god great luv ur hair and ur a great mom and doing a great job stay blessed
You are a great mother
Can totally relate! I dislike having ro be "on" all the time. It leaves me so drained at the end of the day. Thanks for sharing and your willingness to be vulnerable. 💞
I love to see your videos they are real and honest. You are so lucky to have your family close to you and they are able to help you. My son is autistic and my fam moved away. So now I am left with most of the care in my hands for my son. Wish I had my mom close by 😢.
I’m sorry 😞 honestly they are one of the reasons I feel like I can handle it all. 💙 sending you love, I hope with time things feel easier!
💙
"To constantly be on" is a lot ...
"It wasn't a horrible day but a horrible moment"
"Sometimes our days aren't great but I'm not gonna dwell on it"
"Ohhhh we're showing off now"
"I smelled his mouth to check" ...
...
I've had these same conversations but people who don't know what you're talking about personally just don't get it. Seeing another mom in a similar boat reminds me I'm not alone.
Have you done a video on what you teach for homeschooling ?
I admire you so much. I definitely can relate. It can be difficult but we got this 🤗
Cool to know that he drinks coffee😊 I'm glad he enjoyed the elevator ride. Extra love to you Mommy❤
Usually I water it down and it’s not every day but that boy will chug my coffee if I’m not looking 😂 😂
We have always wanted another child, but I have a child similar to Christian (he has CDLS and level 3 Autism) and a child with severe psychiatric issues, they have already forced us to place him into psychiatric inpatient twice and he is only 7, and it feels like we can never have another child safely. Idk how you do it. The prospect of somehow keeping the boys safe, with a baby in my care, sounds so impossible. My son actually eloped at speech recently too, my other son was having a meltdown and was sick and somehow got out of his stroller and bolted to the gym (it is a full therapeutic clinic) which was so dangerous he could have gotten seriously injured on the equipment, but thank god someone grabbed him and brought him to the kids waiting area.
I just don’t see how it’s possible for us and it breaks my heart giving up on it.
How do you manage it? How do you prepare? How do you keep everyone safe while caring for a young child?
I hear you mama, I know how hard certain moments in our life can be and I wish I had the perfect answer to give you but I can only say from my experience we have always wanted three kiddos and close in age was our goal. When Christian got his diagnosis there was no way we could consider another child while going through the learning and adapting to our new life process. After he turned 5 things stared looking up in the sense of we had aba figured out for him once we realized school would not work out with his high needs. He was potty trained and was overall doing better. Then we hit a hard time with aggression and public outings when covid happened. I say all this in the way of saying in 2021 Our kiddos were older and life felt more balanced. We decided now would be the time we felt comfortable adding a member to our family. There is never a perfect moment but maybe a moment we’re we felt like our life was getting into a good place. Christian does have high needs but he doesn’t have severe outbursts where I constantly fear for his safety and others. It’s more so bursts of aggression and just constant seeking out food and non edible things if food is not found. We find what feels manageable for our life and make decisions that way. 💙
¡Qué bueno, llevas una camiseta de Maná!
Si! Mi esposo y yo los vimos el año pasado pa mi cumple! Me encanta su música desde chiquita 💙😁
💙💙💙💙
Hey hope you all doing well
In Kerala and Tamil they have autistic Ayurvedic treatments for children , which are not available in any western countries due to Anthropology programmes , W.H.O and FDA with what they class as illegal , the treatment are ancient and detoxes to let the body heal naturally, the issues is that one has to take the trip, these centres are online if considered
Hey how yall doing? I know you decided on homeschooling cristan. I'm going to be taking out my 8 year old nonverbal son cruz but do you feel the need to do book based work? Or is it mostly real life learning not asking in rude way but I feel like I should has books for him but the mom in me says life and interaction without teachers yelling at him would be better
I don’t do a curriculum or lots of books. Mainly because Christian is at a level where he’s still learning the basics of numbers,letters, matching and even just attending that I don’t feel like I need it but even still I focus more so on communication all day, life skills and skills like waiting, tolerating no and walking/ waiting near me for safety. I don’t think there is a exact way to do things and it’s all trial and error with our kids 💙
Can I ask you what homeschool curriculum you use?
I don’t use a curriculum currently. I am focusing on the basics that are needed like letters numbers and colors for now.
Cast all your anxiety on Him, because He cares for you. 1 PETER 5:7 and Matthew 11:28 Come to Me, all you who are weary and burdened, and I will give you rest. Jesus is The Answer. You don't have to carry all the burden on your own. 🙏🏼