Endometriosis Patient Ignored Until it's Almost Too Late | Transplant | MD TV
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- Опубликовано: 27 сен 2024
- When a woman with endometriosis is convinced the pain she's feeling is different than usual, she is brushed aside and ignored until it's almost too late and ends up needing emergency surgery.
From Transplant Season 1 Episode 2 'Tell Me Who You Are' - Bash's experience as a doctor in Syria informs his unconventional approach as he joins the staff at York Memorial.
Transplant (2020) When Dr. Bashir Hamed, a charismatic Syrian doctor with battle-tested skills in emergency medicine, flees his war-torn homeland, he and his younger sister become refugees, struggling to forge a new life in Canada. If Bash ever wants to be a doctor again, he must redo his medical training from the ground up. He scores a residency in the biggest Emergency Department of the best hospital in Toronto, but it's a tough road. Bash's training is different, his life experience is different and he's not an exact match for his new colleagues. But his journey is universal, and his passion and hopefulness become contagious.
Watch the full series here: www.justwatch....
Welcome to MD TV! A channel dedicated to your favourite medical dramas! Featuring iconic moments from House M.D., Chicago Med and more. Follow the professional and personal lives of the hospital staff, as you go a journey right from the very first doctor's call to the E.R and beyond. MD TV is packed full of drama, intrigue, and plenty of medical emergencies!
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Seriously, someone with chronic pain knows better than anyone when it changes.
say it louder for the folks in the back and with their heads up their butts. as someone with ME/CFS, i feel this so hard. i have been laughed at and in very similar situations as this girl, and only being given the run around by "qualified professionals"
Its the Health Insurance Companies that push and put pressure on the doctors and telling the Doctors to not care when in reality doctors do.
Unfortunately Doctors see: someone with chronic pain = drug seeking
💯 They always think you're faking for pain meds.
If this happened in real life,the hospital and/or the doctor could be sued for malpractice.
This made me cry. The medical system sucks when it comes to women's reproductive health. I've been to the ER and been dismissed. It's terrible.
Yes! This needs to change! And the bedside manners!
Me too. I felt this.
Not only reproductive health…health in general….
Yeah....I went into the hospital bleeding profusely. Told the doctor I was having a miscarriage (I had been for that awful ultrasound 3 days prior) and the f***ing doctor asked me "how do you know?"😑
@@aynsleyhamilton8840 wow! Oh my word! That's so terrible!!!
Love how the man is explaining how women feel. This shit is why people die for no good reason.
He wasn't even talking to me and I felt offended.
@@deathsanguish4091 same the way he talked about it and talked to the black woman..I don’t like his attitude and he doesn’t care at all either
They would of said the same thing if it was a woman though. They follow a protocol that isn't always right. Nurses (man/woman) know better since they are the ones who speak to their patients, not the surgeons.
you do realise that the symptoms probably came from a woman who was in a clinical trial right? and the man there was just explaining how women tend to feel. now im no sexist, but like, you cant even cry about the fact that people call women 'sensitive'. you guys are really crying about a tv show? then you get mad when someone calls you sensitive? lmao
And women explain how men feel lol
Women's pain is often dismissed and not taken seriously, it's a problem. My Granny started what she thought was her period at 83 F'ing years old! She had already gone through menopause, this was NOT her period returning. The doctor, a female doctor by the way, blew her off entirely. She was later diagnosed with uterine cancer and was gone a few months later. I don't know if she would have survived cancer treatments, but I can't help but think if the doctor had taken her seriously and done her damn job, that my Granny might very well still be alive today. Fast forward many years later and I went to church with my parents, only to come face to face with the Dr. who in my mind is responsible for my Granny's death. She is a member of this church and I am still very conflicted about it all.
Why does the medical community not take women seriously when they say they are in pain? Do they just assume we are faking it or are so weak that any pain is probably no worse than a man's hangnail? I just don't understand the logic behind it.
Did you ever speak to the doctor about how you feel? Matthew 18
Unfortunately Dr's are arrogant pricks sometimes if it isn't flashy or groundbreaking it's not worth their time. I'm sorry you have to go through the pain of loss I know what it can do to people all to well
Exactly, god I don’t even want to see an OBGYN because I know without a shadow of a doubt that they will not believe anything I say
I'm sooo sorry to your family & you. I'm a nurse practitioner, and I swear & promise that head I been at that hospital. I would have personally fought for as many test as needed to find out why a 83 elderly woman was bleeding.
Yeah, I get you. You will not be fine after you have a baby and the female system being "complex" is not a valid excuse to ignore problems
I think what the female doctor did after the surgery was very admirable. The patient was rightful hurt and upset with the system. The doctor recognized her pain and her frustration. She tried to give her comfort. The patient may have responded angrily, but that's out of a place of real pain. I'm glad the doctor responded calmly. The doctor knew her words would never make up for what this woman had experience, but she wanted to express humility that they were wrong. She didn't actually say she was sorry for the way that the system had treated her, but I do believe she believed it. I hope the doctor goes to advocate for these chronic pain patients.
Endo pain makes you so angry as a patient
The female doctor at least tried to get her into surgery. She are not responsible for what happened, but the male doctor is. She did what she was told to do and discharge the patient, but she believed that something was wrong and told the patient to come back. I believe that the patient understood that there's nothing the female doctor could do at that point and listened when she was told to come back. I believe that the way the doctor reacted when she did show up again shows that she suspected that something was wrong, but that her hands were tied.
@@lillkarin7472 Sad but the female doctor would have lost her job if she directly went against her male manager. Something needs to change where employees can exercise judgement in emergency situations. Even chronic pain, if it is a severe episode, is an emergency and needs to be treated cause you cannot get relief from severe pain with ibuprofen or tylenol
My wife has endometriosis and had a cyst on her ovaries and the doctors didn't want to listen to her. Thank god hers wasn't so bad like this patients and the her obgyn was able to catch it. Stop treating those who have endometriosis when they get similar symptoms as if it's nothing.
I have endometriosis and I had a cyst on my ovary they were able to shrink it down with birth control pills. But it hurt bad to where my period didn't look like it was there and then having problems getting out of bed for 10 days at least and then very strong heavy bleeding every two weeks after that but it was like having a bad period to the extreme where it was two weeks long and then it would go away for a short time and then be for two weeks long agian. And a doctor told me having a cyst on an ovary is normal but I still have both ovaries. I even thought in all this I was pregnant and having a miscarriage and it looked like hemorage and I looked glowing according to a guy at the time before I found out what was wrong and I really thought I was pregnant and miscarriage oh and I didn't know I had endometriosis at the time it was years later that I was diagnosed with endometriosis. But I always had bad period pains before that and never knew it was endometrosis. Also I figured out way late in life that I had this condition I think I found out in like 2019 and I had the cyst in 2013.
@@brianamcshane9219 - Yes, men will way all sorts of BS to women to either get in their pants or to minimise their pain. If you were "glowing," then fever can cause that.
We need more men like you, Thankyou for advocating your wife. Continue to do so
Pro-tip....when a doctor refuses to address your concerns DEMAND they chart their blatant ignorance in your chart/record. Watch how fast those pricks change.
wdym demand they chart, etc?
@@insanelittlefangirl you can demand a doctor to write into your chart exactly why they refused to not run a test for you and a lot of times (at least in my experience) they change their minds pretty quick and start running tests because they don’t want to be sued later on for their incompetence
@@angelblood13 I'll keep that in mind thanks for the info
Exactly people don't know that though
thank you for this tip. i’m terrified of becoming pregnant just bc of the way they treat women in medicine. that’s exactly why i want to become an obgyn. why won’t they listen to patients? it’s disgusting.
My girlfriend had the same situation with the same results accept she lost a part of her uterus in addition and told she will never have children. She had to aggressively fight for herself and ended up saving herself. She overcame and now has 2 children. ❤️
Lots of these episodes come from the case notes of real past patients, glad your partners doing OK, stay safe and keep smiling....👍👌👍
"I know my body and this pain is different"👏👏
I have endometriosis and a history of ovarian cysts. About seven years ago, I went into the ER for abdominal pain. I thought it was period cramps at first because I was bleeding, but I knew something was off because it never got this bad. I remember my mum being with me at the ER and we waited HOURS before a doctor paid us any attention. The doctor was young and male and thought it was just period cramps even though he knew I’d had an ovarian cyst before. I was sent home. The next day it got worse, so we went back to the ER. Within five minutes an older female doctor took one look at me and knew I needed immediate medical attention. I got the ultrasound and it turned out to be a ruptured ovarian cyst. I got the operation the next day and when they took the thing out, they found it had grown teeth and hair.
Isn't that more like a parasitic twin? I never knew this can happen with cysts, sounds scarry as fluck
Sounds more like a teratoma or dermoid cyst
So you were pregnant or can a cyst actually grow teeth?
@@dashans6175 cysts can grow teeth and hair
@@dashans6175 this is not known by many people but can happen
I relate to her so much, I was diagnosed with endo at 24 and have been going through bladder and bowel pain for six years. They always said it’s anxiety, it’s premenstrual dysphoric, just a weak pelvic floor. I’m still looking for someone to fight for me as well.
I’m going through the same thing since 15 and I’m 33
Bowel and menstrual problems often come together unfortunately. Hormones can give you diarrhea. Blood flow increases during your period, which makes any internal hemorrhoids bleed like crazy... which, of course, leads to additional pain and anemia.
And then there's the vagus nerve that can get triggered, and the next thing you know you're throwing up AND have the runs.
It's no way to live. Get a second opinion or a third one. Get help.
try getting a pelvic floor specialist, that might help . have you had children ?
I can definitely relate to this character
Can't believe I'm sharing this but I was diagnosed with endo when I was 21. Dealt with the pain the way the doctors told me. Every month I spent 2 working days in bed writhing in pain, despite painkillers, I couldn't eat, if I did I would throw up. Ignored it until the pain got in the way of work, every day.
Some obgyn gave me expensive meds he knew would do nothing. Once he was close to performing an ablation, and stopped when he found out my dad couldn't pay right then. Sent me home even though he had already administered anesthesia. I have no words to describe that trauma. He is a well known doctor.
The pain from endo is real, and this episode perfectly captured the anger it feels as a patient being tossed and turned. I finally got surgery, removing endometrioma and foreign tissue in both ovaries by an obgyn who was so kind to me.
I later found out, he had a family of all girls who suffer from dysmenorrhea
It makes me so mad how accurate this is! I have a friend who had numerous medical issues with her utuerus and has severe pain. She's had a number of surgeries for it and she has requested a hysterectomy so many times but keeps getting refused because she may change her mind and want kids. She's an asexual/aromantic who never wants kids or a relationship. The doctors still won't do it in case her future partner wants children. They take into account her non-existent hypothetical future partner more than the woman currently in pain who knows what she wants.
It's always about the hypothetical husband or male partner and their wants. It's never about the needs of the patient that's sitting right in front of them
- That's when you lecture them on why it is not acceptable to tell a woman that a man gets to decide on what happens to her body. It doesn't matter if her husband or male partner is sitting right there. Women are not incubators for men who want children.
She has to keep fighting. Maybe she can try seeing a different provider. Tell her to bring a family member or two to advocate for her. My old co-worker had a hysterectomy at 31 because she had too many reproductive health issues and she never wanted children.
I'm actually going in in 2 days for my 3rd endo surgery, so this is an all too familiar scene. the patient spoke the truth - "you don't know what it's like being dismissed, and being told how you feel." I remember being in the ER at 12 years old in excruciating pain, and the doctors turned me away, dismissing me as either an attention seeker or drug addict. again, I was only 12. im 23 now and I still have severe medical ptsd from being treated so horribly by medical professionals. endo is severely misunderstood, and many doctors aren't as educated on it as they should be. I'm thankful I've found an endo specialist who truly sees me, who listens to me, who makes me feel seen and heard, who understands that my pain is real - but the thing is, there's not enough doctors like that, and that needs to change! no, it's not just a bad period, getting pregnant won't cure it, getting a hysterectomy won't cure it, birth control doesn't always work, neither does a diet or exercise change, we aren't just going around "whining" about our pain bcuz we want sympathy - endo is a real disease. it is a serious disease. it should not be taken lightly. we need more awareness for the Hell endo causes us women!
3rd endo surgery?! I've just had one and the only reason the obgyn gave in was because he has 3 daughters with dysmenorrhea. I only found our after surgery, when I was wondering why he was so nice to me.
Endo pain leaves you traumatized. I'm just realizing I should see my therapist for about the PTSD. I have BPD(borderline personality disorder) as well so when I'm not screaming out in physical pain from endo, I'm contemplating suicide.
@@nancyokang7446 I had a similar experience with my first endo surgery when i was 15 - at the time, it obviously hadn't been confirmed to be endo bcuz the surgery hadn't been done to find it yet, but I had all the symptoms. we found an obgyn that was willing to see me - at that point it had been 6+ months of daily excruciating pain, so we were desperate. she said she wouldn't do the surgery bcuz I was "too young to have endo." (🤦🏼♀️🙄) my mom and I literally had to beg her to do the surgery, saying we didn't care if they found nothing, we just wanted to know. she agreed reluctantly and made sure we knew that the chances of her finding anything were extremely low - I had the surgery a few days later and "shockingly" (can you sense the sarcasm?), she found endo! so we had our answer finally, but not long after, my pain returned, and was worse than before. we went back to the doc saying something wasn't right, and she had the audacity to look at us and say "I told you it wasn't endo. all that I can suggest you do now is have a hysterectomy." yes, she told that to a 15 year old girl. we realized we weren't going to get anywhere with her so we started looking for a specialist - we finally found one who had numerous excellent reviews, and 6 months after my 1st surgery, I had my 2nd lap done. I'm fortunate to have found such an incredible doctor, but I know many women aren't that lucky. the hard thing about endo is often times bcuz these doctors are so closed minded about it, and have a lack of knowledge around the condition itself, we have to be our own advocate. we have to be the ones to research our illness and push these for certain tests to be done to rule out other things.
@@nancyokang7446 I'm so sorry you have to deal with so much pain😔 I can definitely relate to your feelings - you're so miserable, so sick and tired of being sick and tired that you feel the only way you'll finally get that much needed relief is by ending it all. it's not that you want to die, it's that you want your pain to stop. hang in there - we endo sisters will get thru this together!💛
@@marzbarj16 Thanks Marissa
That any doctor would think a 12yo is "drug seeking" is just bizarre.
This happens every single day for women like her and me. I’ve been told the same things. I took so many pain meds my stomach was bleeding and they almost didn’t see me. I’m glad they brought light to situations like this.
I feel this trying to get people to acknowledge I'm not well. Not endometriosis but I keep having to fight to be taken seriously. I should not be dizzy, nauseous with eyes blacking out at times for multiple days of the week!
15 years of dealing with stage 4 and literally this is how they treat us .. like we are overreacting. I had one doctor literally tell me to my face the pain would just pass as I was crying in front of her literally looking it straight in to my eyes. Is like we are invisible just like our illness.
She lost an ovary an organ and was told she was lucky wtf!? How you tell a person that is constantly telling you something is wrong that the damage they have is because you as dr didn’t take care of it in time then tell things like you are lucky or you still have another ovary or you didn’t loose your bowel is insane to me ..
Exactly I have had pain for years and they act like I’m fishing for drugs
I have rheumatoid arthritis and I have been suffering with chronic pain and fatigue for eight years now. One time I went to the hospital because the pain was just unbearable and this nurse told me that I need to go gluten-free and change my diet and then I’ll be fine. I remember sitting on the wheelchair because I was not even able to walk. I was crying because I knew right there and then that they wouldn’t treat me properly. They gave me a script and sent me my way. People have no idea what it’s like to have chronic pain.
I understand what it's like, I have this too, since childhood (doctors as a child told me it was "growing pains"), since it went untreated I had severe damage in my wrists by college. Also have other degenerative skeletal stuff. Know how constant pain can grind you down since I have had it as long as I can remember. Therapy helps.
@@stephieg 💜💜💜
Not an RA haver but I've got Fibro. The worst part with chronic pain is that, well, it's chronic. Being in mild to excruciating pain every day, forever, is exhausting. Trying to explain that to anyone else... Also pretty tiring.
There's little things that can *help*, but being told I wouldn't be in pain if I exercised more and changed my diet... Ugh.
I really hope chronic conditions get more attention. Maybe we'll get some real treatments someday.
I was in and out of the er for over 7 years as a kid for chronic stomach pain and they kept saying they couldn't find anything wrong. When I became an adult and switched to Kaiser they believed me and gave me an ultrasound and found that I have PCOS. I then had this doctor with Kaiser a few years later that dismissed all these symptoms I was having that suggested I had cancer. I switched doctors and they found that I have cervical cancer
I'm sorry
I'm so sorry you went through all of that
I don't disclose that I have PCOS to physicians for this reason especially when I'm seeking a second opinion.
It can be truly, truly, truly frustrating when doctors ignore us. I’m 27, My arm and leg swells and my hand and I also get numb throughout my body. My stomach usually just stays numb. It’s weird asf. Apparently the hospital nor my doctor cant figure it out and that it’s all in my head. My doctor literally asked me if I been seeing my psychiatrist lately 🤦🏽♀️ When I ask my ppl if they can see a difference in my legs they say yes your leg looks swelled but yet the doctors nor hospital can’t see it ? It’s super frustrating. I feel this is something that may kill me one day cause no one wants to help me. I have a freaking 2yr old and a husband. Absolutely frustrating. I have no one to turn to for help. I feel alone.
I am so sorry you are going through this. According to the symptoms you described Im assuming your doctors are saying your neuropathic pain, swelling and numbness is idiopathic (I.e. not caused by a discernible underlying physical condition but rather being the physical manifestations of a psychological condition) but there are so many other reasons for neuropathy (nerve pain/disorders) than just psychological - this could be diabetes symptoms, this could be the after affect of spinal or head trauma or an infection or a metabolic or hormonal imbalance. Next time you see a doctor and get the vibe you are being pushed out the door make a voice recording on your phone (with the consent of your physician ideally) and specifically state what your symptoms are, what your history of symptoms have been, what tests or treatments you have been prescribed and then re-iterate what the physician in front of you is saying (in terms of discrediting or minimizing your recounted experiences or symptoms) and have them verbally acknowledge that their professional diagnosis and recommendation is that these symptoms are definitely psychological in nature and there is absolutely no risk that these symptoms may be indicative of a more serious condition that could threaten your life or quality or life if treatment or detection is delayed. Put that fucker on the record telling you it is all in your head and tell him that this recording will be used in the accompanying malpractice case that will be pursued against both the physician and medical institution should any harm come to you as a result of their refusal to investigate further or believe their patient.
Nerve pain has serious long term chronic and debilitating affects on your body if left untreated. Idiopathic pain is a scam in my opinion, it is an excuse for doctors to misdiagnose or ignore their patients.
Unfortunately this is a method I have had to use in practice to get adequate attention paid to a chronic issue I have lived with - and reported to doctors - for over a decade. It turns out my debilitating and worsening migraines, ear pain, post nasal drip-induced nausea and gastric reflux are ALL SYMPTOMS OF TMJ - and not one doctor out of approximately 20 suggested that my existing diagnosis of TMJ could be the cause of my symptoms. Every single one came up with a different explanation or told me there was nothing they could do. I literally got so fed up I did what I said above and lo and behold after taking a more in depth medical history we uncovered the TMJ diagnosis from my youth and everything clicked to him apparently. I’ve been treating my TMJ directly for the past year and every single one of my symptoms has gotten better.
@@ariannawhite2844 how do you treat tmj?
Have you tried other hospitals or doctors?
The irony of the female patient telling the female intern that she doesn’t know what it feels like to be ignored and dismissed even though she knows she’s right.
And/or the fact she's saying that to a Black woman.
I'm surprised this is the only comment I've seen so far acknowledging the irony in this scene. When I was diagnosed with cancer in the fall, I did the google thing that's usually advised against. I found the survival rates and there was a 20-25% difference between white and black women, with the latter being lower. Fortunately, my oncology team has been great, but I did have to advocate for myself during the diagnosis process and a bit after. As well as for any non cancer related things that crop up.
@@checksanity I was thinking the same thing
She was in a lot of pain at the time and had just dealt with a major surgery. That is decidedly a low point and you can't expect someone in that bad of a situation to self-regulate themselves perfectly and have no anger towards the person who, in her mind, denied her care.
My thoughts too. I understand she’s going through a lot but black women can also have pcos and endo i couldn’t have imagined what would have happened if the nurse was white.
@@ameliasellers6396 actually I can have the expectation of her to self regulate because the exact same is expected of me, no matter the circumstance.
Yep and that's real life. Some people I know who died from late stage cancer were told by incompetent doctors in Belgium (public doctors and hospitals) that it was all psychological!!!!!!!!!!! If they had been more professional, they could have saved the patients (and it was clearly written tumor/mass in their files but they couldn't care less about it). Doctors are like kings in Belgium and when they make serious mistakes, they never get fired!
You mean they couldn’t care less about it
@@fluffy695 Thank you very much! 😊👍
Ohh honey the times I’ve been prescribed antidepressant for being to anxious for expressing the pain that is killing me. That is all in my head that im just looking for attention, telling me that need to get a job ( the pain stops me from keeping one) is all just pure BS .
Thats called SOCIALIST MEDICINE.
Try the Netherlands they’re even worse . I was told I should try having sex so it would help me with the pain I was 14 yrs old!!!! One time my dad had to call the ambulance coz I passed out on the bathroom floor. The on call doctor told my dad next time he should call for the mental crisis help line coz it’s all in my head. I hear Americans complaining about their doctors so I see the problem is everywhere.
I had one of the worst cases of endometriosis my gynecologist ever seen. He didn't believe I was in this much pain, just like the doctor male doctor of this girl. But when they went in to do the hysterectomy, they came back to me while I was recovering and said I was right. The endometriosis took all of my reproductive organs and stretched them from where they were supposed to be and connected them to different organs in my body. They were fused to different organs that they were supposed to be. I still have a portion of my cervix that has cancer on it now and it is fused to my colon that also has cancer on it now. The cancer is not cervical cancer or colon cancer is from the fallopian tubes and ovaries that were fused to those sections. I had my appendix taken out when I had a severe diverticulitis attack nine years after my hysterectomy. They removed a foot of my colon and had to take the appendix because it was in the way. And when they went and did the biopsy of the colon they removed plus the remaining colon plus the appendix and they also biopsied the top portion of the cervix that was remaining and every single biopsy came back loaded with cancer. So I have stage 3C Fallopian slash ovarian cancer that cannot be treated. Well the tumors can't be treated because they are extremely resistant to treatment. The cells they're not sure if the chemotherapy worked but they had me do chemotherapy just in case. So the last seven years it's been hell
Oh my God I'm soo sorry
Hope the pain will stop at some point. Sending a virtual hug in case you need one.
Oh dear God you poor thing. My hopes and prayers are with you and I really hope that you sued your doctors for everything.
@@Loveroffood41 couldn't sue. One killed himself, the other retired and closed the business because the 1st one killed himself in his office at the practice.
@@jadeswrapsandbraids Im so sorry you had to go through this. Women's issues need to be addressed at the earliest.
I've been like that girl. The doctor's wouldn't listen, even when I showed them a blood clot that was larger then a half-dollar, and a hemorrhage in my bed that was bigger then this girls was. I ended up with a hysterectomy. Never having kids, EVER!
Did you have pain aswel? This kind of scares me because i have large blood clots, about 2x a dollar somethimes and bleed a lot. But i don't have extreme pain? I'm scared sometimes it wil affect my chance of having children.
@@SL-gz3dy It wasn't always severe cramping, but it was continuous. Continuous pain can wear you down to a serious degree.
Depending on how old you are, there are suppose to be new treatments that can keep you from getting to the point I was. Keep at your doctor about it, make sure they understand exactly what you are feeling.
@@SL-gz3dy I also have massive clots and insane hemorrhaging without pain. I have no answers for you, but you aren’t alone. I can’t find anyone else who also just has insanely long, insanely heavy periods without pain.
It absolutely disgusts me seeing this. I lived through this. I had a fried come in have need an emergency hysterectomy because the doctors didn’t believe her. How many women have to die before doctors actually take us seriously.
Because the patient is not their problem. Their only concern is money.
It's nothing compare to this, but my first year in college, I gave my older sister the last money I had to get me some pads. We were broke students. She bought me the light ones she uses. I am a heavy bleeder and I have recurring issues with anemia. I was upset about it and explained to her that they would not work for me. She said and I quote," it's psychological, it's in your head". I cried so hard, it was not the inconvenience but the dismissal that hurt the most. As an awkward person socially, my heavy periods plus the pain are the most uncomfortable time ever for me. Fast forward 15 years, I met with this doctor because of other health issues, and he told me that heavy bleeding with recurring anemia is not normal. Turned out I had menorrhagia.
The healthcare system disgusts me to my very core.
Yup they act so passive towards people in pain
As a woman with chronic health issues, I can relate. I have Lupus and a history of Pulmonary embolism and CKD. My Lupus(which took 6+ years to diagnose) is known to cause pain and flare-ups just like endometriosis. However, recently I had a pain that was more intense & acute than I've felt before on my left arm and my chest was tight. I was transported by ambulance from an urgent care clinic(which I had driven to) to an ER. At the ER, they ran tests and said I might have to be admitted. Long story short, after waiting over night, I was sent home and told that they thought it was not a heart attack. They didn't know what to do, so I was sent home. This was last month. To this day, I don't know what really happened. Was it a silent heart attack( I've read those are harder to diagnose). I really hope whatever happened wasn't something that could have longer repercussions on my health.
“But it’s never Lupus”-Dr House
My therapist has Lupus and she get hospitalized quite regularly…..
@@downhomesunset lol at the House reference.
As someone with endometriosis I totally get it. People just tell you to take painkillers and carry on with you day like it's regular cramps it's so infuriating
I’ve got endometriosis it is extreme pain two and a half weeks outta the month…thing that ppl don’t realize is that even tho I’ve dealt with it since 12 ppl think it’s something to “get used to” but tell me how to GET USED TO the pain of literally give birth EVERY MONTH! It’s not just scarring of the uterine walls and ovaries the scarring can spread to other organs such as the intestines and saw it causes me not only pain in my uterus but I’ve got IBS with constipation and at times pushing out my normal bowel movements is like being ripped open from the sternum down it’s horrendous being a woman sucks ass!!!!!!
Why can't they remove endo earlier than they do? Why is surgery put off?
@@2degucitas Because nine times out of ten, a person dealing with endo is told it's in their head, they're making up how bad the pain is. That they don't need surgery and having a baby will magically fix it. It is a system wide issue, and it doesn't matter what country you're in, it is just this bad.
Same here, even after hysterectomy. I think the doctor missed some endo, and I have to have surgery again.
@@2degucitas unfortunately because it’s considered an elective surgery (which it shouldn’t be!). I’ve had on/off chronic pain for over 2 years and on the waiting list for a laparoscopy for over a year, even though I was only supposed to be on it for a year. It keeps getting pushed back because of covid and even when I’ve tried to get it expedited, I can’t, because of the backlog.
Apparently surgeries that diagnose and help treat chronic female reproductive conditions are “elective”
@@Monntanaaxx Ugh.
""I need someone to fight for me" hit the feels.
Not endometriosis or anything but, I really connected when she said she knows her body and that feels different. I have schizoaffective disorder so I have had hallucinations in the past. Well, last month I started having intense hallucinations and I went to my psychiatrist and I told her that this was not a normal schizoaffective related hallucination. It felt different and I specifically told her that my lithium levels need to be checked. She put me on a hallucination medicine and sent me home without checking my blood work. 5 days later, I was fighting for my life in the ICU with lithium toxicity. Doctors need to listen better. I know patients aren’t always right but, is it really worth it to not listen to their concerns? I nearly died because my doctor didn’t listen to me when I told her something was very wrong…
As someone with endo, I cried watching this. No one listened to me for years. I was told it's all in my head and sent home several times. I hate it here. 😒
Same here 💛🙏🎗
Wow, I suddenly remembered my horrible experience last year. Ended up having surgery, I took notice of my body and how nothing was working okay. Thank God I had an amazing doctor and she made sure I was well taken care of 🙏🙌🏽
This literally happened to me at the age of 14 and had the same result!
I was told having children may not be an option for due to the scare tissue.
I can happily say I did have four children. With my one ovary!
I don’t know if I ever really recovered from not being believed, told I just was trying to get out of school, the pain and the uncertainty. Not to mention it could have been much more serious, if not fatal due to rupture.
Like she said, I know my body!
I know of a story that happened here in my country.
A young woman, 27 years old, died because of her endometriosis.
Over a period of 9 months she went to 32 different doctors and all they did was pass her along. She was in horrible pain because the endometriosis had spread to her intestine, causing blood to pour into her guts, wounds on the intestine walls and cause constipation. By the end she could not keep food down, her stomach was rock hard and swollen but she had lost so much weight in a few months that her BMI was down to 14. When she was finally taken seriously she had to undergo surgery. They emptied her stomach of 10 litres of excrement.
Unfortunatly, she got toxemia (blood poisoning) and passed away.
I too might have endometrios, but the general time it takes to get a diagnosis is 7 years.
It's to much effort, to much work to be taken seriously only to not really have a cure for it anyway.
The trauma of being told its all in your head and you just want drugs
This is how chronic illness becomes a mental health emergency
This is the only time I've ever seen endo in the media.
As a teen and young adult I was constantly told I was over reacting when I vomited and passed out from my period pain. I was 21 when a doctor first brought up endo with me. I'd never heard of it before. It was years later I got a diagnosis, and I'm now on two types of birth control after other types either made it worse or didn't work at all, and I've been chastised by doctors and nurses who've refused to help me for taking dangerous amounts of pain meds and still been unable to move. My current doctor is trying to help me to get a hysterectomy, but even then other doctors fight me with two second "no's" and telling me I'll regret my decision to not have kids as if I'm not 30 and can't even have sex anyway.
This treatment is absolutely normal, and it needs to change. One way is to have it portrayed in the media so people can understand that this is a serious issue that can ruin lives.
@@MsMaryPatricia Thankfully I live in Oregon and that's illegal. Also I'm gay.
It did used to be a law when my mum got her tubes tied that you had to have three kids, though.
@@MsMaryPatricia "what if your husband would want kids" good lord, I'm about to go off, don't click "read more" if you don't wanna read a novel.
I have always had insanely painful periods. The pain is so bad, my knees will buckle and I will fall from the shock. My vision also goes dark, sometimes I think I actually pass out... I also cannot eat or drink anything (not even pure room temperature water) without throwing up for at least the first day, usually first 2 days. It's agony.
I went to a doctor when I was around 14-16 to see if there's something I can take, and the doctor said that birth control was an option, but I couldn't have it. His reasoning was that my future husband "may not want to date or have relations with a woman who took ~that type~ of medication." and refused to offer it to me. He also said something about its "long term psychological effects" which is just straight lies, birth control doesn't permanently damage you. But apparently these psychological effects would make me a "poor wife" which, now that I've had years to think, I think the phychological effects he was talking about was a woman feeling like she should have control over her fertility. Like... how sick of a person do you have to be?
To look at a 15 year old who is sick, and withhold the medication because some man may be unwilling to fu/ck her due to her treating her pain.
Revolting.
This is exactly what happened to me I was 13 it happened for 2 days and we thought my appendix was bursting or period cramps luckily the doctors didn’t ignore it and I am being treated and doing good.
If it hurts a lot trust your gut doctors aren’t always right.
I have been ignored and belittled. We know our bodies, listen and do better. So sad this is so real
This hit so close to my heart. I have endo. Took ten years to diagnose. Doctors just throw painkillers at you and that's it. Horrendous.
Or if you're young, sometimes they'll go as far as to withhold certain pain meds.
I get there's an opioid crisis and they don't want patients to overdose and die; but it seems like they forget that dismissing a patient's pain can also lead to death.
It's insane.
I suffered hemorrhaging from endometriosis a couple of times but don’t recall such pain as the patient had in the story. The bleeding was stopped by treatment in the emergency room. It turned out to be cancer, caught in the early stages and I had a hysterectomy! I was in my late sixties!
After reading more of the comments here, I was truly surprised and appalled at how much other women and girls have been suffering from some form of medical indifference! I need to add that a good friend and neighbour was also suffering from the same problem without the cancer! We were there for each other through those months!
In my country, abortion has been decriminalized nationwide! I wonder how great a concern over abortion affects proper care for women’s reproductive health in the USA!
Endo, went into endometrioma, seeded in my intestine and on a kidney, and a "period-not-period" that lasted for 6 weeks. I can so relate to this. I can relate to the medical gaslighting. I was so glad when I finally found an OBGYN who actually listened to me and respected my wishes not to mess around with repeated procedures. I was 35, I had fibroids on top of it, I was not planning on having any more children and I probably wouldn't have been able to maintain a pregnancy anyway due to the number and size of fibroids. So, we went straight for the hysterectomy. I ended up with a radical hysterectomy, plus part of my intestine and a small part of my kidney had to be removed due to extensive adhesions and endometriosis there as well. And as an added bonus, my cervix was found to have early cancer as well, which the Pap smears completely missed. So, it was good that we took this approach right off the bat. Insurance balked of course... but ultimately they did pay out. But all of this took place after 20+ years of intense periods, severe pain, you name it. And yes, 9 months of pregnancy did stop the endo symptoms for a little while, but damn, that's no "cure". Get real, male doctors. Oh and even a natural labor and delivery *without an epidural* was nothing compared to the pain of my periods with endometriosis.
This happened to my mom. When they finally did surgery on her, it was so bad she almost bled to death in surgery, but they were trying to hold off on doing a historectomy because she ‘might want to have more kids’.eventually she found a doctor who listened.
This is so terrifying to me, I'm so worried about something happening to me and no one taking me seriously cause I'm a woman
I don’t think this particular dilemma is to do with gender. It’s the fact that people with chronic illness aren’t taken seriously or aren’t believed. Yes, women do face discrimination and are often “diagnosed” with being a worrier. I’ve faced it. But people with chronic illness, regardless of gender, are often dismissed like this. Again, I’m not saying you’re wrong, I’m just saying that this different to a gender issue.
@@carriehasaproblem4959 true, though to be fair there is so many issues with women having reproductive parts issues and not being taken seriously because it's "supposed to hurt". But I do understand the stigma of chronic illness and troubles being shown here. I think it's a mix of both though
@@carriehasaproblem4959 it absolutely has a lot to do with gender.. women aren’t taken as serious when going in especially to an ER. They think they know our bodies better than we do when that’s not the case.
Well the only time that really need a woman is for woman stuff like this. Other jobs can do just fine without hiring any woman at all in the workforce. The typical men at work jobs for example.
@@arvinr.912 this is just misogynistic for no reason wtf
I was diagnosed with endometriosis and adenomyosis after having irregular periods since the age of 12. I ended in the ED twice with heavy bleeding for an on going for 6 months. No doctor wanted to believe me but I have been on birth control pills never worked only the Depo seemed to stop the bleeding. But the pain is still there. An MRI had to find the diagnosis after the ultrasound went undetected. But best believe despite me being extremely anemic and flagged for my iron levels dangerously low! They still wanted to dismiss me
Ugh don’t get me started on doctors ignoring people’s symptoms….my mom was told my chronic headaches and vomiting were her just worrying and I was just depressed(I was 10 years old!)…was only full of cancer and my intercranial pressure was so high if we’d waited any longer I would have been brain dead…thank god a neurologist at the children’s hospital thought to do a spinal tap…didn’t find what he was looking for but found a whole lot of Cancer and released some of the pressure…was in surgery the next day and on chemo by the day after,I’m very lucky to be alive ,because of doctors ignorance and stupidity I almost died because it was “all in my head” and “mothers overbearing worrying “,guess she had a right to worry hey? And it was all in my head alright,just not in the way he was thinking….
I have stage 4 endo and have gone through 7 surgeries, along with hearing all the different bs doctors (male ones at that) will throw at you. Anywhere from "that pain is normal, it's just period cramps", "take some Advil", "have you tried yoga for the pain?", and "I think your pain is psychological". Women being dismissed is all too common.
It is shocking to know in the USA where I assume the medical is the best in the world would deny or even brush off people’s rain. But in Singapore, they would gladly do whatever tests needed to find out what is wrong with you. Maybe not so much the government side but definitely on the private side.
There have been so many times I've had to see several doctors for both my polycystic ovaries and endometriosis. They dismiss it and tell me to relax and it will go away. It doesn't.
This just happened to me a few days ago. Cept I wasn't dismissed by doctors since I was on Mirena which stops your period and I've been on it for a year. Just got released from the hospital. Got a CT scan which showed a pool of blood (lost 1.4 litres of blood from internal bleeding) and an ultrasound that shows a cyst (7cm) that ruptured. Had emergency surgery and lost half my reproductive organ.
It's gonna be a long road to recovery. First time having a blood transfusion tho.
I have endo too, and I really appreciate there being something like this
This is how I’m being treated now! After 4 years of problems that were ignored now all of a sudden my health has declined so badly and the pain is so bad I lay on my couch in my living room. I’ve had kidney cancer surgery in January a endoscopy and colonoscopy in March which showed problems. I have chronic inflammation gastritis going on for 5 years and I need antibiotics but since I didn’t have h plori they didn’t care or give me anything- Left untreated leads to ulcers and cancer. My stomach is always the size of a pregnant woman which started getting worse this year I have tons of gas accumulated in my stomach and dosent leave and water retention so bad it hurts to bend down or move my legs. I have a prolapse of the colon it said. I never got to talk to any of these drs. My husband did.
I waited 5 weeks to see this new urologist yesterday. It was hard for me to just get to the appointment. They said he would be late due to emergency surgery. We stayed they tried to get us to leave. I see dr and right away he becomes argumentative with me? I tell him it may hurt when you do pelvic exam. He says well you can go home and come back when you feel better. 🤦🏻♀️ He was mean and just cruel during the appointment. Nurse does a bladder ultrasound while Dr says he’s doing a pelvic exam I did not feel anything from the so called pelvic exam no pain? Which very not like me, so I guess he didn’t go in far enough to look at the insides to make sure I don’t have something very wrong? I get ready and he comes back. I don’t have a pelvic prolapse ( even though I have atrophy vagina and I feel like I’m sitting on a bowling ball all the time oh and the pain) And I’ve had a rectocele in my thirties. Same thing. He just says take a lot or” Push a lot of laxatives “. He knew about this ton of water weight in my entire body but did nothing I mean he said I’m healthy. This is only one example of a dr ignoring what I’ve told him about what I’m feeling not him. The pain I have everyday of my life 24/7 is on my c section scar in the middle of it. I can’t pass liquids, food gas out of me so it stays in me. And in the mood the old scar is like 2 gummy bears I can feel them and they hurt! It hurt more doing that bladder ultrasound than the pelvis exam! They have gotten bigger. It’s on the bikini line it’s unbearable! I’ve been to ERS DRS Appointments etc I’ve been pushed aside. Ignored. Then a c scan showed a cancer tumor on left kidney from a visit that a visit from another ER hospital had 2 years ago but never told us!
Ok so the chronic inflammation gastritis could be helped, just had to take a sample to see what form of gastritis it was and give me the appropriate antibiotics just because I didn’t have h plori at the time ( I’ve had it before) does not mean you leave it alone! It’s what started all of this!
Going on 5 years now and I’ll probably have more problems due to Our-health care system here in Ohio!
Ignored just don’t care anymore- send you home to live in chronic pain 24/7 ( even though there is problems with me they just don’t care enough about) so I end up getting stomach cancer and my prolapse which I have pain with gets worse. Live like this! And the kidney surgery the surgeon cut a nerve right on the end of the c section scar ( which I mentioned above) and ever since it’s been even worse! I asked him what it was he said a nerve ( vagus nerve) it’ll heal, really? It doesn’t work like that I’ll have problems with that the rest of my life. Great Health care Ohio👍🏻
I shared this video and posted a status as well and I'd like to share it here.
I know this may be a touchy subject but I feel it's important that i share this. My male gynecologist diagnosed me with endometriosis several years ago and I have had 2 surgeries since that diagnosis. I know people that have this and the pain is horrible. I'm lucky I had a doctor that listened to me but so many don't get believed and get dismissed. We know our bodies and know when something is not right. I'm am very grateful to that doctor, that I still currently see. All women deserve to be heard and taken seriously because dismissive doctors shouldn't be doctors at all, their job is to listen and take your pain seriously and care! And I don't just mean pain for women, all peoples issues need to be taken seriously!
I told the same to my doctor and it was like "meh, women feel bad before their periods" :/ same situation as this girl.
The urge she had to fight to not snap at that male doctor.
Not the same thing but I had gallstone/gallbladder attacks from age 15 to 21. I went to the ER multiple times and was told it was likely anxiety. Then told muscle spasms. Gave me muscle relaxants that didn’t help. Then told anxiety again. It varied but it was always something they couldn’t help with and then they’d send me on my way. A few months before my 22nd birthday I went to the ER 3 times in 48 hours in my small college town. They gave me ibuprofen. They told my I was fine and sent me home. I was so exhausted and in pain each time I went that I was barely crying, like this girl in the video. I was so cried out by the time I WALKED myself to the ER. The last time I went, they told me I should get an ultrasound. I did a few days later and I had gallstones. They didn’t suspect because I’m young, have an average BMI, have never been pregnant, etc. I tried to eat healthier, to do non surgical stuff because I was told to. But I was afraid to eat. Bread, butter, dairy, spices, oils, red meat, EVERYTHING set it off.
I finally got it removed, 6 years after my first attack, and I had well over 30 gallstones. They should’ve listened to me. If they’d figured it out when I got my first attack, I probably could’ve avoided surgery with a healthier diet or whatever. I scar easily/badly and I have 4 on my stomach. Still wear crop tops tho lol.
I was going to be sent home with constipation meds if a physicians assistant hadn't advocated for me and done further tests. They found that all of my organs from my belly button down were adhered to one another with endometrial scarring. I was weeks from my kidneys or bowel dying from being strangled - per my surgeon. I owe her everything for standing up for me.
When the pain scale is a 10 out of 10, the patient says it's a 10 out of 10. It is definitely a 10 on the pain scale... How can we not emphasize this enough...
I know the feeling when you keep telling them the amount of pain your in and nobody believes you .
I was 23 and kept fighting with multiple doctors saying something was wrong. Two years later I finally got an ER to do a pelvic MRI after begging and sobbing. I had a 10 cm tumor growing in my left ovary. The doctor didn’t want to remove it because he assumed it was benign. I ended up having to have my left ovary removed at 25 because the benign tumor completely destroyed it.
I am sorry. I don't understand why doctors are so dismissive? It's disgusting.
I have this AND low pain tolarance. I pass out with my eyes open, ok? It looks like I'm dead. This happened to me with appendicites. The doctor was like "oh, you can talk to me, so you can go home, If it becomes worst, we do the surgery" I was like "you're gonna do the surgery NOW"
This is what really annoys me about hospitals. My mom had esophageal CANCER, was throwing up blood, couldn’t eat and they kept releasing her and telling her to follow up with GI. She hadn’t been diagnosed at that point. GI was backed up 3 weeks for appt. I kept telling the hospital this. Finally I had my nurse friends give me the language to get her admitted. Diagnosed on admission. Saw a GI on admission. 😤
I started off with Endometriosis back in 1991 and I remember the horrifying pain like it was yesterday! I was already 29 years old married and had my children... I had to begged for a hysterectomy! Every doctor l saw absolutely refused! Finally, l was hemorrhaging so bad I needed a blood transfusion... (My lips and fingernails were pale blue!) Still they refused to give me a hysterectomy! I cried watching this remembering, how I felt being dismissed by male and much to my surprise also female doctors! Women know their own bodies and what a regular pain and what’s a different excruciating pains... Finally, I found a doctor who agreed to give me a hysterectomy... However, he made me jump through hoops first! I had to agree to see a psychiatrist and write an essay... Stating that I understood exactly what a hysterectomy is! I kid you not!
Doctors really need to listen to the patient.
Almost had my appendix bust on me because doctor's said my pain was all in my head.
I went 2 times. Once before i waited 2 weeks and the pained got so bad i went back and refused to leave til they ran every test they could think of on me.
they were annoyed and the doctor was of course pissed but i quoted my rights and they did the test. Found i was nearly a moment away from having my appendix bursting on me.
I got into emergency surgery to have it removed woke up only to be told i was right something was wrong and I would have died if i didn't insist on all those test. Goes to show being forceful is sometimes the only way to get them to take you seriously.
😭 when everyone dismiss you because they don't believe you in having pain.
This is what happens when men are for some reason allowed to decide that they know more about women's bodies than we do
FYI, female doctors can be just as dismissive.
@@arianebolt1575 they can but men are obviously more likely to
@@arianebolt1575 Good job missing the point
Funny because the doctors do know more than average women. So maybe think again. Lmao
@@JoelEmmettMcGarrity never said they don't, women should be treated by female doctors tho because men don't take women seriously enough
I’ve been fighting with pain similar to endometriosis. They said the only way to be diagnosed is through surgical means, and they don’t want to go that route. Instead, they put me on some hormonal therapy and basically said, “IF it’s endometriosis, then this should help.” It still terrifies me that it could be something else without anyone knowing it, and my body’s still just ticking away day by day. I’m tired of the system failing women.
As someone with chronic pain this hits home
🩷🩷Yes it does.
This is sooo upsetting
This made me cry so much. I live with chronic pain so debilitating and sporadic that I can't even have a regular job because I'm too unreliable. If I wake up with a bad flareup, I'm completely useless until it decides to clear up...which could be anywhere from 1 day up to 4-5 days at times. But no one can figure out what exactly is causing most of it so I've had no luck with disability either. I live off the graciousness of my mom but being the highly independent person that I am, I loathe having to rely on her so much. I've been through so many "specialists" but they've all been completely useless. I often tell my mom that no one is going to take me seriously and try to find wtf is going on until I'm on the autopsy table. It's such a frustrating, severely angering, and helpless feeling to be dismissed time and time again by so-called "professionals" that are more than happy tp bill the crap out of you, live in their luxury houses, have their luxury cars, etc and know they don't deserve one bit of that crap you help pay for. I loathe the medical field so damn much...
Similar has happened to someone I know. Person went to the ER with some sort of pelvic pain and gets a female gynecologist who just tells her that is period cramping and that she just go home instead of trying to score meds. This person is already on mandated meds for other medical problems so she definitely isn’t trying to score meds. Eventually, some male gynecologist is called in by nurse and he wants to help her out as he believes it is serious. The female gynecologist won’t let him help out and insists she only listens to a female plus thinks that she is only experiencing me strain cramps. Patient chooses female gynecologist to not treat her and tells her to leave. Male gynecologist figures out she has endometriosis and needs surgery very soon so he takes control to help her. In the end, she got better.
I have this and suffered … for years … advocating is necessary … I am crying
I have endometriosis, and I totally relate to this. When I finally had cysts forming is when they found it, and by then it was too late. Now I can’t naturally have children because my tubes were removed. I’m on a continuous birth control so I don’t have a crippling period. Before my last surgery, I bled for a month and a half straight. People don’t realize just how real this danger is to us.
This made me cry for a different reason. I too went through what she experienced to the point I gave up on having children of my own
This is heartbreaking! I have Cronin pain (luckily very mild, I mainly suffer from low energy and I sleep excessively more than anything else), I had to be evaluated for Endo. Luckily I don’t have it, but my OBGYN told me the symptoms and it sounds like HELL!
Women throw up from the pain, are unable to move, half to take days off of work. Most are often just told to take Advil. Heartbreaking
The worst pain. Seems never ending.💔
Know what its like to be ignored by doctors, for years i had problems especially excruciating headaches and doctors did nothing. They had even put on my file i was a hypochondriac and to ignore 😒. Turns out that if they had done a basic test they wouldve found a tumor in my brain that was slowly killing me and shutting down everything just very slowly. They did a test on the tumor after i had it removed and it was almost 20 yrs old. If they had done the test in the beginning it wouldve been a very basic op and very little side effects but cause of their neglect by the time it was removed it was the size of a golf ball and left me with brain damage that causes me to randomly shake uncontrollably and forget how to speak sometimes. I will never trust doctors again and if i even remotely feel like somethings wrong i force them to do every available test
This is the closest I've seen to reality about endometriosis. Female and male drs gaslighting female patients. They don't want to listen, nor hear it. Ive been thru it all in real life.
I have endometriosis as well. It took 3 ob/gyns to tell me I had it and gave me the laparoscopic surgery I desperately needed. I know it can come back, but the relief was immediate. The first doctor told me I only had PCOS and that I just needed to take birth control. the second thought I might have it, but also told me to get on birth control that I was already on. I'm SO grateful for that final doctor for listening.
My endo and fibroids were bad. At 50 I had a full hysterectomy and love it!!!
I've been in her shoes for over 20 years until I found an amazing GI Dr and Obgyn. I have chronic pancreatitis, liver issues,full blown gastroparesis that requires a feeding tube,sphincter of oddi dysfunction, pancreas divisum, endometriosis, ehlers Danlos syndrome,and a few other issues. Had doctors listened to me and my parents when I was younger I would be a lot more healthy than I am now. Years of pancreas divisum and then sphincter of oddi dysfunction caused by gallbladder removal ruined my pancreas.
Endometriosis literally almost killed me. It makes me so angry how much endo has been dismissed.
both incredibly good actresses. especially the doctor. she was brilliant - such nuance, such guilt not mostly for herself, but that no one would listen to her!!
i’ve been to the ER for many reasons, i know it’s extremely busy, but most people are there because of very real problems!! sometimes you tell them things and they don’t listen - so you go back and then they listen. it’s not that they’re not concerned, they most certainly are, but sometimes things don’t click. make sure your doctor/nurse “knows” exactly what’s going on, especially if you’re the caretaker and your person is not thinking straight. you are thinking straight. 🌷🌱
(Munchausen’s is a different matter all together.)
It took 12 years to even get a blood test done when I said I had problems with my periods, 2 years of inconsistent appointments later and I’ve been told to go for private healthcare because the hospital has a waiting list 😑
My Mom had Endometriosis, and it made her Life a living Hell....Literally a living Hell. This young lady describes exactly what that kind of pain is like. At least decades ago, Doctors actually TOOK CARE of patients suffering from complications, compared to this Medical-Moron who was totally Negligent.
It's so hard to fightfor yourself when you're in so much pain ❤ it takes so much mental energy and that's almost impossible when you can't sleep and cry all day and all night
I’m so glad that I have a competent doctor. He put me on birth control after I developed a iron deficiency from long heavy periods, got a ovarian cyst the size of an orange, and threw up 4 times in the nurses office from painful cramps. After he put me on birth control I haven’t felt this good since when I first got my period. I hate to think that women like my step grandmother become infertile because their endometriosis was brushed off as just painful cramps.
As someone dealing with chronic pain I understood her pain so clearly. Though for me its my hip and not this situation but lord it sucks when you go from doctor to doctor and everyone thinks your overreacting or trying to get out of working or something. I lost my job of 8 years because after having my baby the pain tripled I don't know why. They take MRIs, hip joint injections, steroids everything ! And it doesn't help it's so hard finding a job I can handle cause I can't stand bend walk without severe pain. They say it's cause I gained weight from my pregnancy but I've had this problem even when I was skinny so what was the problem then?? I'm so tired of looking for someone to believe me to just not blame it on the weight I gained and just figure out what is truly wrong ! It's so exhausting. Physically and mentally. 🙄🙄🙄
this happens to people with chronic illness all the time. People die because of this. Sometimes I feel like no doctor would be better than a doctor who sends a patient like this home.
Knowing there's something wrong, knowing you're in danger, knowing your pain is absolutely unbearable even for you, a person who deals with chronic pain, and being told go home.
And people die from this.
This is so true. …. Look , I’ve been fighting a chronic illness for 2 years now and have been pushing and pushing for care . When you watch your body drastically change ( weight , vomiting, brutal pain etc ) you lose hope in the medical field . All it takes is one doctor to just listen beyond the constraints of hospital regulations - or have most forgotten about the Oath they take . 😢
This is why I want to give up on the Healthcare system. It's exhausting as a chronic pain patient.
For some reason people think they do know what you feel. I have period cramps. Only one day. Manageable if it's on a weekend. But if it's workday, I need painkiller. My classmate even fainted. But the P.E. teacher didn't belive she was in pain. Until she bled threw her clothes and was rushed to the hospital from the dorms. And diagnosed with hormone disorder.
This is crazy im lucky that mines was diagnosed and on file so when i go to the hospital they call my doctor and i get admitted and treated for pain so happy ill have my surgery the end of this month thank god….
Happened to me I have endometriosis and I had a cyst so big I could feel it when I laid on my back…ended up with an ovarian torsion and had to be rushed into surgery I was visiting the ER so much they reported me for abusing my insurance until I had to call the ambulance an hour after sending me home I bled so bad I blacked out
That is messed up. What horrible doctors. Please sue them immediately if you can. I love how doctors just tell me to lose weight like nothing was wrong with me. I was diagnosed with PCOS late last year.
I struggled with Endometriosis for years, along with the dismissive and disrespectful behavior and treatment by various "care" givers. After being put on anti-depressants (after my 2nd child) by my OB/GYN (because he said it was all in my head), he finally sent me off to a gynecological pain center in a local hospital in order to get me off his back. There, I was finally listened to -- after 10 minutes of describing my years of symptoms, my new doctor said that there was no doubt: it was Endometriosis. I endured months of painful and expensive shots for the pain, as well as 4 laparoscopies to try to dig out the painful cells. I had a ruptured cyst, which sent me to the hospital and resulted in a hysterectomy & oopherectomy at the age of 36. Thank God I was able to have my 2 daughters beforehand. Then, as my girls grew up, I witnessed their same pain that I myself had dealt with at their same age. Doctors (especially males) need to LISTEN to patients with chronic pain. When we say that the pain is worse than before, they need to really LISTEN and HELP us. Unfortunately, cases like in this video happen way too often in real life, and so much pain, misery and losing body parts due to "too late" surgeries could be avoided if health professionals would just LISTEN, and TRUST that we often know our bodies so much better than they do.
Welcome to my world. I've been living with this crap for 40 years! At that time nobody knew about this disease when i was young. Suffered like hell in high school and by the time they diagnosed me with endometriosis I was staged 3. Had 3 surgeries and now is under control with contraceptive pills. Thank
God all of my gynecologist treated me well. It sucks that some doctors ignore you but you have to push harder to get someone to listen.
I am 17 now and I have had endometriosis well diagnosed since I was 14. Period pain is so unbelievably bad. I get cyst on my ovaries and had surgery and let me tell you the doctors NEVER listen!!!
i almost died from a simple uti, that became a kidney infection then became sepsis, then severe sepsis with severe pain extremely high fever (106-107 !!) hallucination's, delirium, feeling of impending doom, and much more. i went to the hospital in my small town and kept getting the same doctor robert duran who works at benson hospital in benson AZ. hes harmed many people and no doubt many have died from curable and treatable aliments.
I have been through this and is the same treatment. Ignored.
I was told I would not be able to have any children.
One day at work the pain got so intense that in a split second I had drift due to a black out.
I use to work ridiculous hours unable to get to see a private doctor.
I finally got to find out was endometriosis from an ultrasound.
I got 3 tablets which was a bit expensive I guess it worked.
Later on I hemorrhage for a year. I lost a lot of weight. One pound each month I already was underweight less than 85lbs.
I went on injection to help with the bleeding.
The bleeding stopped but I started to get some strange pains plus I was losing weight drastically.
I stopped the injections.
About three years after I got pregnant.
About 10 years after to find out I had a very serious critical condition.
I could of die and never knew.
I met a good doctor who did a coloscopy.
The results alarmed the doctor who helped me get an emergency surgery.
I got further complicated medically. I was ignored everywhere that I went.
I never got follow up treatment.
Years after again the pain came back.
Two years after it came back and I had to do another emergency surgery.
It was too complicated that the doctors still did not perform the surgery as planned.
I got some strange sensations but I have to wait until next surgery while I get worse.
So when will I get that surgery which will make me much more complicated.
Prolapse of everything inside me.
I have chronic pain and knew something was severely wrong when I had terrible pain in my side. Doctors told me several times on multiple occasions it was because of my weight and to fix my eating. Finally, a doctor did a CT and found a huge mass on my colon that had been there since birth and had gotten worse. 5 months after I got it removed, my uncle's colon burst after being told similar dismissive things about his pain and being told to schedule with his primary care. He became septic and was diagnosed with colon cancer during all of this. He survived but would not have if my grandparents hadn't taken him to a different hospital. Doctors can be so cruel towards certain patients.